Pub Date : 2024-11-02DOI: 10.1136/fmch-2024-003137
Liesbeth Hunik, Elizabeth Sturgiss, Amanda Terry, David Blane, Kyle Eggleton, Rohan Maharaj, Taria Tane, Tim Olde Hartman, Jessica Drinkwater, Morgane Gabet, Fern R Hauck, Melanie Henry, Nick Mamo, Ramona Wallace, Doug Klein
The need for effective primary healthcare to address social and structural determinants of health and to mitigate health inequalities has been well established. Here, we report on the international forum of the 2023 NAPCRG (formerly known as North American Primary Care Research Group) Annual Meeting. The aim of the forum was to develop principles for action for the primary healthcare research community on addressing social and structural determinants of health. From this forum, 10 key recommendations for the primary care research community were identified.
{"title":"The role of the primary healthcare research community in addressing the social and structural determinants of health: a call to action from NAPCRG 2023.","authors":"Liesbeth Hunik, Elizabeth Sturgiss, Amanda Terry, David Blane, Kyle Eggleton, Rohan Maharaj, Taria Tane, Tim Olde Hartman, Jessica Drinkwater, Morgane Gabet, Fern R Hauck, Melanie Henry, Nick Mamo, Ramona Wallace, Doug Klein","doi":"10.1136/fmch-2024-003137","DOIUrl":"10.1136/fmch-2024-003137","url":null,"abstract":"<p><p>The need for effective primary healthcare to address social and structural determinants of health and to mitigate health inequalities has been well established. Here, we report on the international forum of the 2023 NAPCRG (formerly known as North American Primary Care Research Group) Annual Meeting. The aim of the forum was to develop principles for action for the primary healthcare research community on addressing social and structural determinants of health. From this forum, 10 key recommendations for the primary care research community were identified.</p>","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 4","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-11-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11535704/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142565258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Objective: Several research gaps affect the improvement of care for healthy ageing. Their identification is crucial to developing a specific research prioritisation agenda supporting progress at the micro (clinical), meso (service delivery) and macro (system) levels. To achieve this, a scoping review was carried out to describe the most significant gaps impeding the improvement of care for healthy ageing.
Design: A scoping review of the literature was conducted according to the Joanna Briggs Institute methodology. The selected articles were analysed to identify topics or areas essential for improving care for healthy ageing but requiring further support from research.
Eligibility criteria: Every type of scientific article, except for randomised controlled trials, was considered of potential interest without restrictions on publication date, type of publication and methodology.
Information sources: A systematic search (last search: 6 December 2023) was conducted using PubMed, MEDLINE and Scopus.
Results: Overall, 1558 articles were retrieved from the literature. Of these, 310 were finally retained for this work. A total of 1195 research gaps were identified (average: 3.85 per article) and clustered into the 13 primary areas: ageing, care approach, caregivers, health economics, health, interventions, policies, research, settings, training, technology, specific populations and understanding the older person. In particular, research for improving the person-centred approach (n=38), better considering cultural diversities (n=27), implementing integrated care (n=25) and ensuring access to care (n=25) were the most prevalent priorities reported in the literature.
Conclusions: A wide range of factors spanning multiple disciplines, from clinical to policy levels, require special consideration, exploration and resolution. The findings of this scoping review represent an essential step in identifying gaps for developing a research prioritisation agenda to improve care for healthy ageing.
{"title":"Identification of research gaps to improve care for healthy ageing: <b>a scoping review</b>.","authors":"Matteo Cesari, Marco Canevelli, Jotheeswaran Amuthavalli Thiyagarajan, Soung-Eun Choi, Polina Grushevska, Saloni Kumar, Muyan Chen, Hyobum Jang, Yuka Sumi, Anshu Banerjee","doi":"10.1136/fmch-2024-003116","DOIUrl":"10.1136/fmch-2024-003116","url":null,"abstract":"<p><strong>Objective: </strong>Several research gaps affect the improvement of care for healthy ageing. Their identification is crucial to developing a specific research prioritisation agenda supporting progress at the micro (clinical), meso (service delivery) and macro (system) levels. To achieve this, a scoping review was carried out to describe the most significant gaps impeding the improvement of care for healthy ageing.</p><p><strong>Design: </strong>A scoping review of the literature was conducted according to the Joanna Briggs Institute methodology. The selected articles were analysed to identify topics or areas essential for improving care for healthy ageing but requiring further support from research.</p><p><strong>Eligibility criteria: </strong>Every type of scientific article, except for randomised controlled trials, was considered of potential interest without restrictions on publication date, type of publication and methodology.</p><p><strong>Information sources: </strong>A systematic search (last search: 6 December 2023) was conducted using PubMed, MEDLINE and Scopus.</p><p><strong>Results: </strong>Overall, 1558 articles were retrieved from the literature. Of these, 310 were finally retained for this work. A total of 1195 research gaps were identified (average: 3.85 per article) and clustered into the 13 primary areas: ageing, care approach, caregivers, health economics, health, interventions, policies, research, settings, training, technology, specific populations and understanding the older person. In particular, research for improving the person-centred approach (n=38), better considering cultural diversities (n=27), implementing integrated care (n=25) and ensuring access to care (n=25) were the most prevalent priorities reported in the literature.</p><p><strong>Conclusions: </strong>A wide range of factors spanning multiple disciplines, from clinical to policy levels, require special consideration, exploration and resolution. The findings of this scoping review represent an essential step in identifying gaps for developing a research prioritisation agenda to improve care for healthy ageing.</p>","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 4","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11499781/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142509984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-23DOI: 10.1136/fmch-2024-002991
Elizabeth T Thomas, Diana R Withrow, Cynthia Wright Drakesmith, Peter J Gill, Rafael Perera-Salazar, Carl Heneghan
Objective: The primary objective was to investigate temporal trends and between-practice variability of paediatric test use in primary care.
Methods and analysis: This was a descriptive study of population-based data from Clinical Practice Research Datalink Aurum primary care consultation records from 1 January 2007 to 31 December 2019. Children aged 0-15 who were registered to one of the eligible 1464 general practices and had a diagnostic test code in their clinical record were included. The primary outcome measures were (1) temporal changes in test rates measured by the average annual percent change, stratified by test type, gender, age group and deprivation level and (2) practice variability in test use, measured by the coefficient of variation.
Results: 14 299 598 diagnostic tests were requested over 27.8 million child-years of observation for 2 542 101 children. Overall test use increased by 3.6%/year (95% CI 3.4 to 3.8%) from 399/1000 child-years to 608/1000 child-years, driven by increases in blood tests (8.0%/year, 95% CI 7.7 to 8.4), females aged 11-15 (4.0%/year, 95% CI 3.7 to 4.3), and children from the most socioeconomically deprived group (4.4% /year, 95% CI 4.1 to 4.8). Tests subject to the greatest temporal increases were faecal calprotectin, fractional exhaled nitric oxide and vitamin D. Tests classified as high-use and high-practice variability were iron studies, coeliac testing, vitamin B12, folate, and vitamin D.
Conclusions: In this first nationwide study of paediatric test use in primary care, we observed significant temporal increases and practice variability in testing. This reflects inconsistency in practice and diagnosis rates and a scarcity of evidence-based guidance. Increased test use generates more clinical activity with significant resource implications but conversely may improve clinical outcomes. Future research should evaluate whether increased test use and variability are warranted by exploring test indications and test results and directly examine how increased test use impacts on quality of care.
{"title":"Temporal trends and practice variation of paediatric diagnostic tests in primary care: retrospective analysis of 14 million tests.","authors":"Elizabeth T Thomas, Diana R Withrow, Cynthia Wright Drakesmith, Peter J Gill, Rafael Perera-Salazar, Carl Heneghan","doi":"10.1136/fmch-2024-002991","DOIUrl":"https://doi.org/10.1136/fmch-2024-002991","url":null,"abstract":"<p><strong>Objective: </strong>The primary objective was to investigate temporal trends and between-practice variability of paediatric test use in primary care.</p><p><strong>Methods and analysis: </strong>This was a descriptive study of population-based data from Clinical Practice Research Datalink Aurum primary care consultation records from 1 January 2007 to 31 December 2019. Children aged 0-15 who were registered to one of the eligible 1464 general practices and had a diagnostic test code in their clinical record were included. The primary outcome measures were (1) temporal changes in test rates measured by the average annual percent change, stratified by test type, gender, age group and deprivation level and (2) practice variability in test use, measured by the coefficient of variation.</p><p><strong>Results: </strong>14 299 598 diagnostic tests were requested over 27.8 million child-years of observation for 2 542 101 children. Overall test use increased by 3.6%/year (95% CI 3.4 to 3.8%) from 399/1000 child-years to 608/1000 child-years, driven by increases in blood tests (8.0%/year, 95% CI 7.7 to 8.4), females aged 11-15 (4.0%/year, 95% CI 3.7 to 4.3), and children from the most socioeconomically deprived group (4.4% /year, 95% CI 4.1 to 4.8). Tests subject to the greatest temporal increases were faecal calprotectin, fractional exhaled nitric oxide and vitamin D. Tests classified as high-use and high-practice variability were iron studies, coeliac testing, vitamin B<sub>12</sub>, folate, and vitamin D.</p><p><strong>Conclusions: </strong>In this first nationwide study of paediatric test use in primary care, we observed significant temporal increases and practice variability in testing. This reflects inconsistency in practice and diagnosis rates and a scarcity of evidence-based guidance. Increased test use generates more clinical activity with significant resource implications but conversely may improve clinical outcomes. Future research should evaluate whether increased test use and variability are warranted by exploring test indications and test results and directly examine how increased test use impacts on quality of care.</p>","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 4","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11499842/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142509985","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-12DOI: 10.1136/fmch-2024-003002
Michael Tran, Joel Rhee, Wendy Hu, Parker Magin, Boaz Shulruf
Transitions are a period and a process, through which there is a longitudinal adaptation in response to changing circumstances in clinical practice and responsibilities. While the experience of the transition in medical student learning and in hospital-based specialty training programmes are well described and researched, the experience of the transition in community-based postgraduate general practitioner (GP) training has not been described comprehensively.
Objective: We aimed to identify, and categorise, the formative experiences of transitions in GP training and their impacts on personal and professional development.
Design: We adopted Levac et al's scoping review methodology. Of 1543 retrieved records, 76 were selected for data extraction. Based on a combined model of the socioecological and multiple and multi-dimensional theories of transitions, data relating to the experiences of transitions were organised into contextual themes: being physical, psychosocial, organisational culture and chronological.
Eligibility criteria: Empirical studies focused on general practice trainees or training, that discussed the transitions experienced in general practice training and that were published in English were included.
Information sources: PubMed, MEDLINE and Web of Science databases were searched in January 2024 with no date limits for empirical studies on the transition experiences of GP into, and through, training.
Results: Our findings describe context-dependent formative experiences which advance, or impede, learning and development. Time is a significant modulator of the factors contributing to more negative experiences, with some initially adverse experiences becoming more positive. Identification of the inflection point that represents a shift from initially adverse to more positive experiences of transitions may help moderate expectations for learning and performance at different stages of training.
Conclusion: Challenges in training can either advance development and contribute positively to professional identity formation and clinical competency, or detract from learning and potentially contribute to burnout and attrition from training programmes. These findings will assist future research in identifying predictive factors of positive and adverse experiences of transitions and may strengthen existing and nascent GP training programmes. The findings are transferable to other community-based specialty training programmes.
过渡是一个时期,也是一个过程,在这一过程中,要根据临床实践和责任的变化情况进行纵向调整。虽然对医学生学习和医院专科培训项目中的过渡经历有很好的描述和研究,但对社区全科医生(GP)研究生培训中的过渡经历还没有全面的描述:我们的目的是确定全科医生培训过渡时期的形成性经验及其对个人和专业发展的影响,并对其进行分类:设计:我们采用了 Levac 等人的范围综述方法。在检索到的 1543 条记录中,我们选择了 76 条进行数据提取。根据过渡时期的社会生态理论和多重多维理论的综合模型,我们将与过渡时期经历有关的数据按背景主题进行了整理:物理背景、社会心理背景、组织文化背景和时间背景:信息来源:PubMed、MEDLINE、CSSCI、CSSCI、CSSCI/CSSCI/CSSCI/CSSCI/CSSCI/CSSCI/CSSCI/CSSCI/CSSCI:信息来源:在 2024 年 1 月对 PubMed、MEDLINE 和 Web of Science 数据库进行了检索,对有关全科医生进入培训和通过培训的过渡经历的实证研究没有日期限制:结果:我们的研究结果描述了与环境相关的形成性经验,这些经验促进或阻碍了学习和发展。时间是导致消极经历的重要调节因素,一些最初不利的经历会变得更加积极。确定代表从最初的负面经历向更积极的过渡经历转变的拐点,可能有助于在培训的不同阶段缓和对学习和表现的期望:培训中的挑战既可以促进发展,对专业认同的形成和临床能力的提高起到积极作用,也可以减损学习效果,并可能导致倦怠和培训计划的流失。这些研究结果将有助于未来的研究,以确定过渡时期积极和消极经历的预测因素,并可加强现有的和新生的全科医生培训计划。这些发现也可用于其他社区专科培训项目。
{"title":"General practice trainee, supervisor and educator perspectives on the transitions in postgraduate training: a scoping review.","authors":"Michael Tran, Joel Rhee, Wendy Hu, Parker Magin, Boaz Shulruf","doi":"10.1136/fmch-2024-003002","DOIUrl":"https://doi.org/10.1136/fmch-2024-003002","url":null,"abstract":"<p><p>Transitions are a period and a process, through which there is a longitudinal adaptation in response to changing circumstances in clinical practice and responsibilities. While the experience of the transition in medical student learning and in hospital-based specialty training programmes are well described and researched, the experience of the transition in community-based postgraduate general practitioner (GP) training has not been described comprehensively.</p><p><strong>Objective: </strong>We aimed to identify, and categorise, the formative experiences of transitions in GP training and their impacts on personal and professional development.</p><p><strong>Design: </strong>We adopted Levac <i>et al</i>'s scoping review methodology. Of 1543 retrieved records, 76 were selected for data extraction. Based on a combined model of the socioecological and multiple and multi-dimensional theories of transitions, data relating to the experiences of transitions were organised into contextual themes: being physical, psychosocial, organisational culture and chronological.</p><p><strong>Eligibility criteria: </strong>Empirical studies focused on general practice trainees or training, that discussed the transitions experienced in general practice training and that were published in English were included.</p><p><strong>Information sources: </strong>PubMed, MEDLINE and Web of Science databases were searched in January 2024 with no date limits for empirical studies on the transition experiences of GP into, and through, training.</p><p><strong>Results: </strong>Our findings describe context-dependent formative experiences which advance, or impede, learning and development. Time is a significant modulator of the factors contributing to more negative experiences, with some initially adverse experiences becoming more positive. Identification of the inflection point that represents a shift from initially adverse to more positive experiences of transitions may help moderate expectations for learning and performance at different stages of training.</p><p><strong>Conclusion: </strong>Challenges in training can either advance development and contribute positively to professional identity formation and clinical competency, or detract from learning and potentially contribute to burnout and attrition from training programmes. These findings will assist future research in identifying predictive factors of positive and adverse experiences of transitions and may strengthen existing and nascent GP training programmes. The findings are transferable to other community-based specialty training programmes.</p>","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 4","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11481147/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-24DOI: 10.1136/fmch-2024-002998
James Henry Zouch, Bjørnar Berg, Are Hugo Pripp, Kjersti Storheim, Claire E Ashton-James, Manuela L Ferreira, Margreth Grotle, Paulo H Ferreira
Objectives: To evaluate the longitudinal impact of introducing a national, direct access physiotherapy model of care on the rates of primary and secondary care consultations for musculoskeletal (MSK) conditions.
Design: Interrupted time series analysis using segmented linear regression.
Setting: Norway primary care PARTICIPANTS: A cohort of 82 072 participants was derived from 3 population-based health surveys conducted across separate geographical regions in Norway. All participants surveyed were eligible for inclusion as a national representative sample of the Norwegian population. Registered MSK consultations were linked to the Norwegian Control and Payment of Health Reimbursement database and the Norwegian Patient Register using the International Classification of Primary Care diagnostic medical codes L-chapter for MSK conditions and spine related International Classification of Diseases, 10th Revision, codes.
Intervention: Direct access to physiotherapy model of care introduced nationally in Norway in 2018. This model allowed Norwegians to consult directly with qualified physiotherapists for MSK conditions (eg, back pain, knee osteoarthritis) without the need for a medical referral in order to claim a social security reimbursement.
Main outcomes measured: Rates of primary care consultations per 10 000 population (general practitioner (GP) and physiotherapist consultations) and secondary care (specialist consultations and surgical procedures) measured from 2014 to 2021.
Results: The introduction of the direct access physiotherapy model was associated with an immediate stepped reduction of 391 general practice consultations per 10 000 population, (95% CI: -564 to -216), without an associated change in physiotherapy consultations. Subgroup analyses suggested there was an associated reduction in physiotherapy consultations for those in the lowest education group of 150 consultations per quarter (95% CI:-203 to -97), 70 consultations per quarter in the intermediate education group (95% CI:-115 to -27) and a stepped reduction of 2 spinal surgical procedures per 10 000 population, for those aged between 40 and 60 years (95% CI: -3 to -1) following the introduction of the direct access physiotherapy model.
Conclusion: The national introduction of a direct access to physiotherapy model of care was associated with a reduction in the workload of GPs for the management of MSK conditions. The use of physiotherapists in direct contact roles is a potential strategic model to reduce the burden on the GP workforce in primary care worldwide.
{"title":"Reducing strain on primary healthcare systems through innovative models of care: the impact of direct access physiotherapy for musculoskeletal conditions-an interrupted time series analysis.","authors":"James Henry Zouch, Bjørnar Berg, Are Hugo Pripp, Kjersti Storheim, Claire E Ashton-James, Manuela L Ferreira, Margreth Grotle, Paulo H Ferreira","doi":"10.1136/fmch-2024-002998","DOIUrl":"https://doi.org/10.1136/fmch-2024-002998","url":null,"abstract":"<p><strong>Objectives: </strong>To evaluate the longitudinal impact of introducing a national, direct access physiotherapy model of care on the rates of primary and secondary care consultations for musculoskeletal (MSK) conditions.</p><p><strong>Design: </strong>Interrupted time series analysis using segmented linear regression.</p><p><strong>Setting: </strong>Norway primary care PARTICIPANTS: A cohort of 82 072 participants was derived from 3 population-based health surveys conducted across separate geographical regions in Norway. All participants surveyed were eligible for inclusion as a national representative sample of the Norwegian population. Registered MSK consultations were linked to the Norwegian Control and Payment of Health Reimbursement database and the Norwegian Patient Register using the International Classification of Primary Care diagnostic medical codes L-chapter for MSK conditions and spine related International Classification of Diseases, 10th Revision, codes.</p><p><strong>Intervention: </strong>Direct access to physiotherapy model of care introduced nationally in Norway in 2018. This model allowed Norwegians to consult directly with qualified physiotherapists for MSK conditions (eg, back pain, knee osteoarthritis) without the need for a medical referral in order to claim a social security reimbursement.</p><p><strong>Main outcomes measured: </strong>Rates of primary care consultations per 10 000 population (general practitioner (GP) and physiotherapist consultations) and secondary care (specialist consultations and surgical procedures) measured from 2014 to 2021.</p><p><strong>Results: </strong>The introduction of the direct access physiotherapy model was associated with an immediate stepped reduction of 391 general practice consultations per 10 000 population, (95% CI: -564 to -216), without an associated change in physiotherapy consultations. Subgroup analyses suggested there was an associated reduction in physiotherapy consultations for those in the lowest education group of 150 consultations per quarter (95% CI:-203 to -97), 70 consultations per quarter in the intermediate education group (95% CI:-115 to -27) and a stepped reduction of 2 spinal surgical procedures per 10 000 population, for those aged between 40 and 60 years (95% CI: -3 to -1) following the introduction of the direct access physiotherapy model.</p><p><strong>Conclusion: </strong>The national introduction of a direct access to physiotherapy model of care was associated with a reduction in the workload of GPs for the management of MSK conditions. The use of physiotherapists in direct contact roles is a potential strategic model to reduce the burden on the GP workforce in primary care worldwide.</p>","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 3","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11423733/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142356050","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-18DOI: 10.1136/fmch-2024-002933
Michelle S Rockwell, Brianna Chang, Vivian Zagarese, Jamie K Turner, Ally Southworth, YingXing Wu, Paul Yeaton, Li Li, Jeffrey S Stein, Sarah H Parker, John W Epling
Objective: 'Sludge' refers to administrative burdens or frictions that preclude people from getting what they want or need (eg, duplicative forms, complicated instructions, long waiting times). This mixed methods study evaluated patients' perceptions of sludge in the colorectal cancer (CRC) screening process and some impacts of this sludge.
Design: We employed an exploratory sequential mixed methods study design that comprised patient interviews and a patient survey. The interviews informed final survey revisions and captured contextual data about patients' experiences with sludge. Interview transcripts were inductively and deductively analysed to identify overarching themes. The survey quantified sludge, delayed or forgone screenings, screening experience (Net Promoter Score) and health system distrust (Health System Distrust Scale). We used χ2 or t-tests for univariable comparisons and logistic or linear regressions to evaluate the association between cumulative sludge score and delayed or forgone screenings, screening experience and health system distrust. Results were integrated for interpretation.
Setting: Southeastern United States.
Participants: Patients who were 45-75 years of age, at average risk for CRC and had either completed or been referred for CRC screening (colonoscopy or stool-based test) within the previous 12 months.
Results: 22 interview participants and 255 survey participants completed the study. 38 (15%) survey participants rated their screening experience as poor (Net Promoter Score=0-7 out of 10). The mean (SD) Health System Distrust Scale score was 22.4 (6.3) out of 45 possible points (higher score=greater distrust). Perceptions of sludge in the CRC screening process varied, with long waiting times and burdensome communication being the most common sources (58% and 35% of participants, respectively). Sludge was positively associated with delayed or forgone screenings (OR=1.42, 95% CI 1.28, 1.57, p<0.001), poor screening experience (OR=1.15, 95% CI 1.04, 1.28, p=0.009) and health system distrust (β=0.47, p<0.001). Qualitative findings add descriptive detail about sludge encountered, context to impacts experienced, and illustrate the heavy emotional impact of sludge: 'it just isn't worth it'.
Conclusion: Efforts to reduce sludge in the CRC screening process may improve timely completion of CRC screening, enhance patient experience and restore trust in the health system.
{"title":"Patients' experiences with 'sludge' (administrative burden) in the cancer screening process and its relationship with screening completion, experience and health system distrust.","authors":"Michelle S Rockwell, Brianna Chang, Vivian Zagarese, Jamie K Turner, Ally Southworth, YingXing Wu, Paul Yeaton, Li Li, Jeffrey S Stein, Sarah H Parker, John W Epling","doi":"10.1136/fmch-2024-002933","DOIUrl":"10.1136/fmch-2024-002933","url":null,"abstract":"<p><strong>Objective: </strong>'Sludge' refers to administrative burdens or frictions that preclude people from getting what they want or need (eg, duplicative forms, complicated instructions, long waiting times). This mixed methods study evaluated patients' perceptions of sludge in the colorectal cancer (CRC) screening process and some impacts of this sludge.</p><p><strong>Design: </strong>We employed an exploratory sequential mixed methods study design that comprised patient interviews and a patient survey. The interviews informed final survey revisions and captured contextual data about patients' experiences with sludge. Interview transcripts were inductively and deductively analysed to identify overarching themes. The survey quantified sludge, delayed or forgone screenings, screening experience (Net Promoter Score) and health system distrust (Health System Distrust Scale). We used χ<sup>2</sup> or t-tests for univariable comparisons and logistic or linear regressions to evaluate the association between cumulative sludge score and delayed or forgone screenings, screening experience and health system distrust. Results were integrated for interpretation.</p><p><strong>Setting: </strong>Southeastern United States.</p><p><strong>Participants: </strong>Patients who were 45-75 years of age, at average risk for CRC and had either completed or been referred for CRC screening (colonoscopy or stool-based test) within the previous 12 months.</p><p><strong>Results: </strong>22 interview participants and 255 survey participants completed the study. 38 (15%) survey participants rated their screening experience as poor (Net Promoter Score=0-7 out of 10). The mean (SD) Health System Distrust Scale score was 22.4 (6.3) out of 45 possible points (higher score=greater distrust). Perceptions of sludge in the CRC screening process varied, with long waiting times and burdensome communication being the most common sources (58% and 35% of participants, respectively). Sludge was positively associated with delayed or forgone screenings (OR=1.42, 95% CI 1.28, 1.57, p<0.001), poor screening experience (OR=1.15, 95% CI 1.04, 1.28, p=0.009) and health system distrust (β=0.47, p<0.001). Qualitative findings add descriptive detail about sludge encountered, context to impacts experienced, and illustrate the heavy emotional impact of sludge: '<i>it just isn't worth it'</i>.</p><p><strong>Conclusion: </strong>Efforts to reduce sludge in the CRC screening process may improve timely completion of CRC screening, enhance patient experience and restore trust in the health system.</p>","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 Suppl 2","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298045","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-25DOI: 10.1136/fmch-2023-002601
Autumn M Kieber-Emmons, Susan E Hansen, Michael Topmiller, Jaskaran Grewal, Carlos Roberto Jaen, Benjamin F Crabtree, William L Miller
focused Rapid Assessment Process (fRAP) 2.0 is a community engagement approach combining geospatial mapping with rapid qualitative assessment in cyclical fashion within communities to capture multifactorial and multilevel features impacting primary care problems. fRAP 2.0 offers primary care researchers a methodology framework for exploring complex community features that impact primary healthcare delivery and outcomes. The fRAP 2.0 study design expands the fRAP from a sequential design to a cyclical process of geospatial mapping and rapid qualitative assessment in search of modifiable contextual factors. Research participants are stakeholders from various socioecological levels whose perspectives inform study outcomes that they may use to then become the agents of change for the very problems they helped explore. Here, we present a proof-of-concept study for fRAP 2.0 examining disparities in cervical cancer mortality rates among Hispanic women in Texas. The primary outcomes of interest are features at the community level, medical health system level and regional government policy levels that offer opportunities for collaborative interventions to improve cervical cancer outcomes. In this study, geospatial mapping of county and ZIP code-level variables impacting postdiagnosis cervical cancer care at community, medical and policy levels were created using publicly available data and then overlaid with maps created with Texas Cancer Registry data for cervical cancer cases in three of the largest population counties. Geographically disparate areas were then qualitatively explored using participant observation and ethnographic field work, alongside 39 key informant interviews. Roundtable discussion groups and stakeholder engagement existed at every phase of the study. Applying the fRAP 2.0 method, we created an action-oriented roadmap of next steps to improve cervical cancer care disparities in the three Texas counties with emphasis on the high disparity county. We identified local change targets for advocacy and the results helped convene a stakeholder group that continues to actively create on-the-ground change in the high-disparity county to improve cervical cancer outcomes for Hispanic women.
{"title":"fRAP 2.0: a community engagement method applied to cervical cancer disparities among Hispanic women.","authors":"Autumn M Kieber-Emmons, Susan E Hansen, Michael Topmiller, Jaskaran Grewal, Carlos Roberto Jaen, Benjamin F Crabtree, William L Miller","doi":"10.1136/fmch-2023-002601","DOIUrl":"10.1136/fmch-2023-002601","url":null,"abstract":"<p><p>focused Rapid Assessment Process (fRAP) 2.0 is a community engagement approach combining geospatial mapping with rapid qualitative assessment in cyclical fashion within communities to capture multifactorial and multilevel features impacting primary care problems. fRAP 2.0 offers primary care researchers a methodology framework for exploring complex community features that impact primary healthcare delivery and outcomes. The fRAP 2.0 study design expands the fRAP from a sequential design to a cyclical process of geospatial mapping and rapid qualitative assessment in search of modifiable contextual factors. Research participants are stakeholders from various socioecological levels whose perspectives inform study outcomes that they may use to then become the agents of change for the very problems they helped explore. Here, we present a proof-of-concept study for fRAP 2.0 examining disparities in cervical cancer mortality rates among Hispanic women in Texas. The primary outcomes of interest are features at the community level, medical health system level and regional government policy levels that offer opportunities for collaborative interventions to improve cervical cancer outcomes. In this study, geospatial mapping of county and ZIP code-level variables impacting postdiagnosis cervical cancer care at community, medical and policy levels were created using publicly available data and then overlaid with maps created with Texas Cancer Registry data for cervical cancer cases in three of the largest population counties. Geographically disparate areas were then qualitatively explored using participant observation and ethnographic field work, alongside 39 key informant interviews. Roundtable discussion groups and stakeholder engagement existed at every phase of the study. Applying the fRAP 2.0 method, we created an action-oriented roadmap of next steps to improve cervical cancer care disparities in the three Texas counties with emphasis on the high disparity county. We identified local change targets for advocacy and the results helped convene a stakeholder group that continues to actively create on-the-ground change in the high-disparity county to improve cervical cancer outcomes for Hispanic women.</p>","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 Suppl 2","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142056821","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-05DOI: 10.1136/fmch-2023-002703
Matteo Cesari, Yuka Sumi, Hyobum Jang, Jotheeswaran Amuthavalli Thiyagarajan, Yejin Lee, Rachel Albone, Marco Canevelli, Monica R Perracini, Andrew M Briggs, Anshu Banerjee
{"title":"Survey of international experts on research priorities to improve care for healthy ageing.","authors":"Matteo Cesari, Yuka Sumi, Hyobum Jang, Jotheeswaran Amuthavalli Thiyagarajan, Yejin Lee, Rachel Albone, Marco Canevelli, Monica R Perracini, Andrew M Briggs, Anshu Banerjee","doi":"10.1136/fmch-2023-002703","DOIUrl":"10.1136/fmch-2023-002703","url":null,"abstract":"","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 3","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11423713/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141894564","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-08-03DOI: 10.1136/fmch-2023-002553
Robert Mash, Lisa R Hirschhorn, Inayat Singh Kakar, Renu John, Manushi Sharma, Devarsetty Praveen
Objective: To extract key lessons on primary healthcare (PHC) service delivery strategies for non-communicable diseases (NCD) from the work of researchers funded by the Global Alliance for Chronic Diseases (GACD).
Design: A convergent mixed methods study that extracted data using a standardised template from research projects funded by the GACD that focused on PHC. The strategies implemented in these studies were mapped onto the PHC Performance Initiative framework. Semistructured qualitative interviews were conducted with researchers from purposefully selected projects to understand the strategies and contextual factors in more depth.
Setting: PHC contexts from low or middle-income countries (LMIC) as well as vulnerable groups within high-income countries. Projects came from all regions of the world, particularly East Asia and Pacific, sub-Saharan Africa, South Asia, Latin America and Caribbean.
Participants: The study extracted data on 84 research projects and interviewed researchers from 16 research projects.
Results: Research projects came from all regions of the world, and mainly focused on diabetes (35.3%), hypertension (28.3%) and mental health (27.6%). Mapped onto the PHC Performance Initiative framework: 49.4% focused on high-quality PHC (particularly the comprehensiveness of NCD care, 41.2%); 41.2% on the availability of PHC services (particularly the competence of healthcare workers, 36.5%); 35.3% on population health management (particularly community-based services, 35.3%); 34.1% on facility organisation and management (particularly team-based care, 20.0%) and 31.8% on access (particularly digital technology, 23.5%). Most common strategies were task shifting and training to improve the comprehensiveness of NCD care through community-based services. Contextual factors related to inputs: infrastructure, equipment and medication, workforce (particularly community health workers), finances, health information systems and digital technology.
Conclusion: Key strategies and contextual factors to improve PHC service delivery for NCDs in LMICs were identified. These strategies should combine with other strategies to strengthen the PHC system as a whole, while improving care for NCDs.
{"title":"Global lessons on delivery of primary healthcare services for people with non-communicable diseases: convergent mixed methods.","authors":"Robert Mash, Lisa R Hirschhorn, Inayat Singh Kakar, Renu John, Manushi Sharma, Devarsetty Praveen","doi":"10.1136/fmch-2023-002553","DOIUrl":"10.1136/fmch-2023-002553","url":null,"abstract":"<p><strong>Objective: </strong>To extract key lessons on primary healthcare (PHC) service delivery strategies for non-communicable diseases (NCD) from the work of researchers funded by the Global Alliance for Chronic Diseases (GACD).</p><p><strong>Design: </strong>A convergent mixed methods study that extracted data using a standardised template from research projects funded by the GACD that focused on PHC. The strategies implemented in these studies were mapped onto the PHC Performance Initiative framework. Semistructured qualitative interviews were conducted with researchers from purposefully selected projects to understand the strategies and contextual factors in more depth.</p><p><strong>Setting: </strong>PHC contexts from low or middle-income countries (LMIC) as well as vulnerable groups within high-income countries. Projects came from all regions of the world, particularly East Asia and Pacific, sub-Saharan Africa, South Asia, Latin America and Caribbean.</p><p><strong>Participants: </strong>The study extracted data on 84 research projects and interviewed researchers from 16 research projects.</p><p><strong>Results: </strong>Research projects came from all regions of the world, and mainly focused on diabetes (35.3%), hypertension (28.3%) and mental health (27.6%). Mapped onto the PHC Performance Initiative framework: 49.4% focused on high-quality PHC (particularly the comprehensiveness of NCD care, 41.2%); 41.2% on the availability of PHC services (particularly the competence of healthcare workers, 36.5%); 35.3% on population health management (particularly community-based services, 35.3%); 34.1% on facility organisation and management (particularly team-based care, 20.0%) and 31.8% on access (particularly digital technology, 23.5%). Most common strategies were task shifting and training to improve the comprehensiveness of NCD care through community-based services. Contextual factors related to inputs: infrastructure, equipment and medication, workforce (particularly community health workers), finances, health information systems and digital technology.</p><p><strong>Conclusion: </strong>Key strategies and contextual factors to improve PHC service delivery for NCDs in LMICs were identified. These strategies should combine with other strategies to strengthen the PHC system as a whole, while improving care for NCDs.</p>","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 3","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-08-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11331933/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141890373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-07-18DOI: 10.1136/fmch-2024-002983
Jennifer E Bayly, Mara A Schonberg, Marcia C Castro, Kenneth J Mukamal
Background: Colorectal cancer (CRC) is the second leading cause of cancer death in US adults but can be reduced by screening. The roles of individual and contextual factors, and especially physician supply, in attaining universal CRC screening remains uncertain.
Methods: We used data from adults 50-75 years old participating in the 2018 New York (NY) Behavioural Risk Factor Surveillance System linked to county-level covariates, including primary care physician (PCP) density and gastroenterologist (GI) density. Data were analysed in 2023-2024. Our analyses included (1) ecological and geospatial analyses of county-level CRC screening prevalence and (2) individual-level Poisson regression models of receipt of screening, adjusted for socioeconomic and county-level contextual variables.
Results: Mean prevalence of up-to-date CRC screening was 71% (95% CI 70% to 73%) across NY's 62 counties. County-level CRC screening demonstrated significant spatial patterning (Global Moran's I=0.14, p=0.04), consistent with the existence of county-level contextual factors. In both county-level and individual-level analyses, lack of health insurance was associated with lower likelihood of up-to-date screening (ß=-1.09 (95% CI -2.00 to -0.19); adjusted prevalence ratio 0.68 (95% CI 0.60 to 0.77)), even accounting for age, race/ethnicity and education. In contrast, county-level densities of both PCPs and GIs were completely unassociated with screening at either the county or individual level. As expected, other determinants at the individual level included education status and age.
Conclusion: In this state-wide representative analysis, physician density was completely unassociated with CRC screening, although health insurance status remains strongly related. In similar screening environments, broadened insurance coverage for CRC screening is likely to improve screening far more effectively than increased physician supply.
背景:结肠直肠癌(CRC)是美国成年人癌症死亡的第二大原因,但可以通过筛查来降低死亡率。个人因素和环境因素,尤其是医生供应,在实现普及 CRC 筛查中的作用仍不确定:我们使用了参加 2018 年纽约(NY)行为风险因素监测系统的 50-75 岁成年人的数据,这些数据与县级协变量相关联,包括初级保健医生(PCP)密度和胃肠病医生(GI)密度。对 2023-2024 年的数据进行了分析。我们的分析包括:(1)县级 CRC 筛查流行率的生态和地理空间分析;(2)接受筛查的个人级泊松回归模型,并根据社会经济和县级背景变量进行调整:纽约州 62 个县的最新 CRC 筛查平均普及率为 71%(95% CI 为 70% 至 73%)。县级 CRC 筛查表现出明显的空间模式化(Global Moran's I=0.14,p=0.04),这与县级背景因素的存在是一致的。在县级和个人层面的分析中,即使考虑到年龄、种族/民族和教育程度,缺乏医疗保险也与较低的最新筛查可能性相关(ß=-1.09 (95% CI -2.00 to -0.19);调整患病率比为 0.68 (95% CI 0.60 to 0.77))。相比之下,县级初级保健医生和消化科医生的密度与县级或个人水平的筛查完全无关。正如预期的那样,个人层面的其他决定因素包括教育状况和年龄:在这项具有全州代表性的分析中,尽管医疗保险状况与 CRC 筛查密切相关,但医生密度与 CRC 筛查完全无关。在类似的筛查环境中,扩大 CRC 筛查的保险范围可能比增加医生数量更有效地提高筛查率。
{"title":"Individual and geospatial factors associated with receipt of colorectal cancer screening: a state-wide mixed-level analysis.","authors":"Jennifer E Bayly, Mara A Schonberg, Marcia C Castro, Kenneth J Mukamal","doi":"10.1136/fmch-2024-002983","DOIUrl":"10.1136/fmch-2024-002983","url":null,"abstract":"<p><strong>Background: </strong>Colorectal cancer (CRC) is the second leading cause of cancer death in US adults but can be reduced by screening. The roles of individual and contextual factors, and especially physician supply, in attaining universal CRC screening remains uncertain.</p><p><strong>Methods: </strong>We used data from adults 50-75 years old participating in the 2018 New York (NY) Behavioural Risk Factor Surveillance System linked to county-level covariates, including primary care physician (PCP) density and gastroenterologist (GI) density. Data were analysed in 2023-2024. Our analyses included (1) ecological and geospatial analyses of county-level CRC screening prevalence and (2) individual-level Poisson regression models of receipt of screening, adjusted for socioeconomic and county-level contextual variables.</p><p><strong>Results: </strong>Mean prevalence of up-to-date CRC screening was 71% (95% CI 70% to 73%) across NY's 62 counties. County-level CRC screening demonstrated significant spatial patterning (Global Moran's I=0.14, p=0.04), consistent with the existence of county-level contextual factors. In both county-level and individual-level analyses, lack of health insurance was associated with lower likelihood of up-to-date screening (ß=-1.09 (95% CI -2.00 to -0.19); adjusted prevalence ratio 0.68 (95% CI 0.60 to 0.77)), even accounting for age, race/ethnicity and education. In contrast, county-level densities of both PCPs and GIs were completely unassociated with screening at either the county or individual level. As expected, other determinants at the individual level included education status and age.</p><p><strong>Conclusion: </strong>In this state-wide representative analysis, physician density was completely unassociated with CRC screening, although health insurance status remains strongly related. In similar screening environments, broadened insurance coverage for CRC screening is likely to improve screening far more effectively than increased physician supply.</p>","PeriodicalId":44590,"journal":{"name":"Family Medicine and Community Health","volume":"12 Suppl 2","pages":""},"PeriodicalIF":2.6,"publicationDate":"2024-07-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141727943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}