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Clinical Leadership – An Important Precondition for the Success of Proactive and Interdisciplinary Follow-up of Frail Older Recipients of Home Healthcare 临床领导-一个重要的先决条件,为家庭保健的体弱多病的老年人接受积极和跨学科的随访成功
IF 1.1 Q4 NURSING Pub Date : 2023-04-27 DOI: 10.1177/10848223231170599
Gro Næss, T. Wyller, E. Gjevjon
Early identification and follow-up of sub-acute and acute functional decline in older persons living with multimorbidity at home require integrated and proactive care by interdisciplinary health personnel. Yet, in the context of the task-oriented and fragmented home healthcare services, early identification is challenging. Therefore, the aim of this study was to identify preconditions for the success of a proactive and interdisciplinary follow-up of older recipients of home healthcare. We conducted a qualitative secondary analysis of data from 6 focus group interviews with registered nurses and nurse leaders. In addition, we performed and analyzed data from 2 new focus group interviews with general practitioners and RNs who had a role as super users in a developmental project which introduced a clinical instrument for early identification of sub-acute and acute functional decline (sub-acute functional decline in the elderly—SAFE). Their experiences with using SAFE constituted the backdrop for the study. In total, 41 representatives of the interprofessional primary care staff of 3 city districts participated. Having a common goal, sharing tasks and having reciprocal understanding of each health profession’s contribution, systems and tools and clinical leadership were all seen as important factors for succeeding in the proactive and interdisciplinary follow-up of older recipients of home healthcare. Clinical leadership was deemed the strongest precondition, and clear leadership which promotes integrative and proactive care by facilitating interdisciplinary collaboration appears to be the main key for success.
早期识别和随访家中患有多种疾病的老年人的亚急性和急性功能衰退,需要跨学科卫生人员提供综合和积极的护理。然而,在以任务为导向和分散的家庭保健服务的背景下,早期识别是具有挑战性的。因此,本研究的目的是确定对老年家庭保健接受者进行积极和跨学科随访成功的先决条件。我们对注册护士和护士长进行了6次焦点小组访谈的数据进行了定性的二次分析。此外,我们执行并分析了两个新的焦点小组访谈的数据,这些访谈对象是全科医生和注册护士,他们在一个开发项目中扮演了超级用户的角色,该项目引入了一种用于早期识别亚急性和急性功能衰退的临床仪器(老年人的亚急性功能衰退- safe)。他们使用外管局的经历构成了研究的背景。共有来自3个城区的41名跨专业初级保健人员代表参加了调查。有一个共同的目标,共享任务,对每个卫生专业的贡献,系统和工具以及临床领导有相互的理解,都被视为成功地对家庭保健的老年接受者进行主动和跨学科随访的重要因素。临床领导被认为是最强的先决条件,明确的领导通过促进跨学科合作来促进综合和主动护理似乎是成功的关键。
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引用次数: 1
“They Are Measures Without Impact”: Home Care Social Workers Criticize OASIS-E “他们是没有影响的措施”:家庭护理社会工作者批评绿洲- e
IF 1.1 Q4 NURSING Pub Date : 2023-04-25 DOI: 10.1177/10848223231169038
W. Cabin
There is significant literature about the Medicare Outcome and Information Assessment (OASIS). A new OASIS Version E, effective January 2023, makes significant changes in assessing patient mental health. However, a literature review indicates no studies of the anticipated effectiveness of the OASIS-E on improving psychosocial care of Medicare home health beneficiaries. This article summarizes an initial, exploratory study to address the literature gap, based on interviews of a convenience sample of 36 home care social workers from 5 different home health agencies in the New York City metropolitan area between August 1, 2022, and November 30, 2022. Four themes emerged from the study, namely that social workers believe the OASIS-E revisions: are an improvement over prior OASIS versions; are cumbersome and do not require administration by a social worker; do not impose specific guidance requirements on using new measures scoring results in making care decisions; and do not address coverage of specific interventions that address patients with significant mental health issues. Policymakers are urged to modify the OASIS-E guidance manual to require use of new mental health assessment scores in care planning and to expand coverage of evidence-based treatment interventions for patients with significant assessed mental health conditions.
有关于医疗保险结果和信息评估(OASIS)的重要文献。新的OASIS E版将于2023年1月生效,在评估患者心理健康方面做出了重大改变。然而,一项文献综述表明,没有研究表明OASIS-E在改善医疗保险家庭健康受益人的心理社会护理方面的预期有效性。本文总结了一项初步的探索性研究,以解决文献空白,该研究基于2022年8月1日至2022年11月30日期间对纽约市大都会地区5家不同家庭卫生机构的36名家庭护理社会工作者的访谈。研究中出现了四个主题,即社会工作者认为OASIS- e版本比以前的OASIS版本有所改进;是繁琐的,不需要社会工作者的管理;在做出护理决定时,不要对使用新的测量方法评分结果施加具体的指导要求;并且不涉及针对有重大精神健康问题的患者的具体干预措施的覆盖范围。敦促政策制定者修改OASIS-E指导手册,要求在护理规划中使用新的精神健康评估分数,并扩大对经评估的严重精神健康状况患者的循证治疗干预措施的覆盖范围。
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引用次数: 0
Unpaid Caregiver Costs in Canada: A Systematic Review 加拿大无薪看护费用:系统回顾
IF 1.1 Q4 NURSING Pub Date : 2023-04-21 DOI: 10.1177/10848223231169504
H. Marani, Allie Peckham
As utilization of home care increases across Canada, questions are emerging concerning the extent to which home care expenses, many of which are not publicly covered, are borne by unpaid caregivers of home care recipients. In this systematic review, we review English-language literature published between 2001 and 2022 exploring the magnitude and sources of home care costs incurred by unpaid caregivers in Canada. Of particular interest were empirical, cost-of-illness studies that describe the implications of these costs across domains of financial risk, including caregivers’ income level, employment status, and personal health. Following the screening of 492 studies derived across 6 databases (OVID Medline, CINAHL, PsycINFO, AMED, EconLit, and EMBASE), 24 studies were included in this review. Overall, few studies describe how home care expenses incurred by unpaid caregivers contribute to their financial risk. While some studies characterize the direct costs of caregiving incurred by caregivers, including out-of-pocket expenditure on transportation to medical appointments, respite care, home renovations, supplemental housekeeping, and prescription medications, limited studies attempt to estimate the magnitude of these expenses. Concerning financial risk, the literature is chiefly concerned with indirect costs of caregiving, including consequences on caregivers’ employment (foregone wages). Findings from this literature review suggest further work is needed in Canadian context to document costs associated with unpaid home care provision.
随着加拿大各地对家庭护理的利用的增加,关于家庭护理费用在多大程度上由家庭护理接受者的无薪照顾者承担的问题正在出现,其中许多费用不是公共支付的。在这篇系统综述中,我们回顾了2001年至2022年间发表的英语文献,探讨了加拿大无偿护理人员家庭护理费用的规模和来源。特别令人感兴趣的是经验性的疾病成本研究,这些研究描述了这些成本在金融风险领域的影响,包括照顾者的收入水平、就业状况和个人健康。在筛选了来自6个数据库(OVID Medline、CINAHL、PsycINFO、AMED、EconLit和EMBASE)的492项研究后,本综述纳入了24项研究。总的来说,很少有研究描述无薪照顾者的家庭护理费用是如何增加他们的财务风险的。虽然一些研究描述了护理人员所产生的直接护理成本,包括自费前往医疗预约的交通费用、临时护理费用、家庭装修费用、补充家政费用和处方药费用,但有限的研究试图估计这些费用的规模。关于财务风险,文献主要关注照顾的间接成本,包括照顾者就业的后果(放弃工资)。本文献综述的发现表明,在加拿大的背景下,需要进一步的工作来记录与无偿家庭护理相关的成本。
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引用次数: 0
Access and Quality of Pediatric Home Healthcare: A Systematic Review 儿童家庭保健的可及性和质量:一项系统综述
IF 1.1 Q4 NURSING Pub Date : 2023-04-17 DOI: 10.1177/10848223231167878
C. Foster, L. Morales, Andrea J. Fawcett, Cara Coleman
Despite the rising prevalence of children with medical complexity who need extensive medical care at home, the literature evaluating pediatric home healthcare has not been well summarized. Our objective was to systematically review the evidence-base of pediatric home healthcare to understand what is currently know about access and quality of home healthcare for children. Pubmed, Ovid Medline, Embase, CINAHL, Cochrane Library, Proquest Dissertations and Theses Global were searched for studies in the United States, United Kingdom, Canada, and Australia English publications (1980-2020) regarding children (≤18 years) using shift-based home healthcare services. Blinded independent review was conducted followed by extraction of study characteristics including how each study examined access and/or quality, which was categorized using the National Academy of Medicine quality dimensions. Of 9533 abstracts, 101 were included. Most were US (82%) and regional (72%) studies. Half (54%) focused on home nursing followed by home services generally (43%). The majority (77%) evaluated access and patient-family centeredness (62%); their results identified consistent limitations in access and quality resulting in negative impacts on patients and families. Less than 20% of publications addressed safety, effectiveness or equity. Bias scoring found that quantitative studies were universally weak, but qualitative studies were mostly moderate or strong. Results are limited by design heterogeneity and exclusion of training research. While research in pediatric home healthcare has increased, studies remain observational and rarely evaluate quality in reproducible ways. More rigorous measures and interventional research are needed to improve this healthcare sector for children.
尽管越来越多的儿童需要在家中进行广泛的医疗护理,但评估儿童家庭医疗保健的文献尚未得到很好的总结。我们的目标是系统地回顾儿科家庭保健的证据基础,以了解目前对儿童家庭保健的可及性和质量的了解。我们检索了Pubmed、Ovid Medline、Embase、CINAHL、Cochrane Library、Proquest Dissertations和Theses Global在美国、英国、加拿大和澳大利亚发表的关于儿童(≤18岁)使用轮班制家庭医疗服务的研究(1980-2020)。进行盲法独立审查,然后提取研究特征,包括每个研究如何检查获取和/或质量,并使用美国国家医学科学院质量维度进行分类。9533篇摘要中,101篇被纳入。大多数是美国(82%)和地区(72%)的研究。一半(54%)关注家庭护理,其次是一般的家庭服务(43%)。大多数(77%)评估了可及性和以患者家庭为中心(62%);他们的结果确定了在获取和质量方面的持续限制,从而对患者和家庭产生负面影响。不到20%的出版物涉及安全性、有效性或公平性。偏倚评分发现定量研究普遍较弱,而定性研究大多是中等或较强。结果受到设计异质性和排除训练研究的限制。虽然对儿科家庭保健的研究有所增加,但研究仍然是观察性的,很少以可重复的方式评估质量。需要更严格的措施和干预性研究来改善这一儿童保健部门。
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引用次数: 0
The Role of Animal-Assisted Therapy (AAT) in Neurocognitive Disorder Group Interventions: Benefits for Participants and Care Partners 动物辅助治疗(AAT)在神经认知障碍群体干预中的作用:对参与者和护理伙伴的益处
IF 1.1 Q4 NURSING Pub Date : 2023-04-07 DOI: 10.1177/10848223231166372
Brigitte Belanger, Olivia Weeks, Ashli Suiters, Paul Arthur
An emerging crisis of care exists in the United States in the treatment of aging adults with neurocognitive disorders (NCD). Families face great obstacles locating resources and finding appropriate caregiving options for their needs. Occupational therapy practitioners are well suited to assist both persons with NCD and their care partners through training and support services to promote safety and independence and maximize participation in activities of daily living. Occupational therapy practitioners increasingly employ Animal Assisted Therapy (AAT) programs with tailored activities to foster problem-solving skills to enhance performance and behavior, improving quality of life. This feasibility study employed mixed-methodology to establish a proof of concept by offering a series of six 90-minute AAT group intervention sessions with persons with NCD and care partners at an Alzheimer’s Resource Center in Florida. While quantitative results were not significant, many promising qualitative themes emerged to direct future inquiry in AAT interventions with this population.
美国在治疗患有神经认知障碍(NCD)的老年人方面出现了一场新的护理危机。家庭在寻找资源和寻找适合其需求的护理选择方面面临巨大障碍。职业治疗从业者非常适合通过培训和支持服务来帮助非传染性疾病患者及其护理伙伴,以促进安全和独立,并最大限度地参与日常生活活动。职业治疗从业者越来越多地采用动物辅助治疗(AAT)计划,通过量身定制的活动来培养解决问题的技能,以提高表现和行为,提高生活质量。这项可行性研究采用了混合方法,通过在佛罗里达州阿尔茨海默病资源中心与非传染性疾病患者和护理伙伴进行六次90分钟的AAT小组干预,建立了概念验证。虽然定量结果并不显著,但出现了许多有希望的定性主题,以指导未来对该人群进行AAT干预的研究。
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引用次数: 0
Symptoms Experienced at Home and Self-Care Requisites of Patients After Heart Transplantation: A Retrospective Study 心脏移植后患者在家经历的症状和自我护理要求:一项回顾性研究
IF 1.1 Q4 NURSING Pub Date : 2023-04-07 DOI: 10.1177/10848223231165754
R. Saglam Aksut, Busra Yavuz, Mehmet Aksut, Deniz Gunay, M. Kırali
Heart transplantation is the most important treatment option in end-stage heart failure, and heart transplant recipients should be monitored at home by healthcare professionals in terms of symptoms and self-care requisites. The aim of this study is to examine symptoms and self-care requisites of patients with heart transplantation after discharge. Symptoms and self-care requisites of 81 patients who had heart transplantation between 2015 and 2020 were evaluated retrospectively in this study. Survey data were collected using the telephone interview method. It was determined that 77.8% of the patients were male and their mean age was 41.87 ± 2.51 years. Fatigue (91.4%), pain in the back, neck, and joints (86.4%), restlessness/agitation (81.5%), weight gain (71.6%), and edema in the lower extremities (71.6%) were the first 5 common symptoms experienced at home after heart transplantation. It was also found that the vast majority of patients (80.2%) answered negatively to the question of eliminating the lack of knowledge about the disease, and some of the patients were found not to pay attention to some important issues (e.g., regular blood pressure check, quitting smoking, etc.). Findings revealed that patients with heart transplantation experience a series of symptoms, and their self-care requisites were mostly focused on education and information specific to the disease after discharge. As a part of public health nursing practices, home care concentrating on symptoms and learning needs of patients should be planned and organized with a multidisciplinary approach to decrease rehospitalization and contribute to cost-effectiveness after heart transplantation.
心脏移植是终末期心力衰竭最重要的治疗选择,心脏移植受者应在家中由医疗保健专业人员监测症状和自我护理要求。本研究的目的是探讨心脏移植患者出院后的症状和自我护理要求。本研究回顾性分析了2015 - 2020年间81例心脏移植患者的症状和自我护理要求。调查数据采用电话访谈法收集。男性占77.8%,平均年龄41.87±2.51岁。疲劳(91.4%)、背部、颈部和关节疼痛(86.4%)、烦躁不安/躁动(81.5%)、体重增加(71.6%)和下肢水肿(71.6%)是心脏移植术后在家中出现的前5个常见症状。同时发现绝大多数患者(80.2%)对消除对疾病知识缺乏的问题回答是否定的,并且发现部分患者不注意一些重要问题(如定期检查血压、戒烟等)。研究结果显示,心脏移植患者出现一系列症状,出院后的自我护理需求主要集中在疾病的教育和信息上。作为公共卫生护理实践的一部分,应以多学科方法计划和组织以患者症状和学习需求为重点的家庭护理,以减少心脏移植后的再住院,并有助于提高成本效益。
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引用次数: 0
Factors Influencing the Preferences of Older Japanese People for Long-term Care 影响日本老年人长期护理偏好的因素
IF 1.1 Q4 NURSING Pub Date : 2023-04-07 DOI: 10.1177/10848223231166114
Zihan Zhang, Chieko Kato, Otsuka Yoshiomi
As global aging increases, the issue of long-term care is becoming increasingly important. This study examined the factors influencing the preferences of older Japanese people for long-term care. Three hundred Japanese people over 65 years old were recruited to participate in this online survey on preferences for long-term care. Structural Equation Modeling (SEM) was conducted to demonstrate the effects of various variables. The results showed that support from the community, family savings, awareness of family caregiving, psychological indebtedness, and self-efficacy directly affected the preferences for long-term care. Gender, age, social participation, cohabitation, and health status self-assessment indirectly affected the preferences. This study demonstrated the influence of relevant factors, especially psychological factors, on the long-term care preferences of older Japanese people.
随着全球老龄化的加剧,长期护理问题变得越来越重要。本研究考察了影响日本老年人长期护理偏好的因素。300名65岁以上的日本人参与了这项关于长期护理偏好的在线调查。采用结构方程模型(SEM)分析了各变量的影响。结果显示,社区支持、家庭储蓄、家庭护理意识、心理负债和自我效能感直接影响长期护理偏好。性别、年龄、社会参与、同居和健康状况自我评估间接影响偏好。本研究证明了相关因素,尤其是心理因素对日本老年人长期护理偏好的影响。
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引用次数: 1
They Live in an Isolation Chamber: Medicare Fails the Depressed Homebound Elderly 他们生活在一个孤立的房间:医疗保险辜负了沮丧的居家老人
IF 1.1 Q4 NURSING Pub Date : 2023-04-07 DOI: 10.1177/10848223231165274
W. Cabin
There is significant literature on the existence and adverse effects of social isolation and depression among the elderly, exacerbated by the recent COVID-19 pandemic. A literature review indicates no studies of how the Medicare home health benefit addresses social isolation and depression, including no studies of home care social workers’ perceptions of the nature and consequences of Medicare coverage. This article summarizes an initial, exploratory study to address the literature gap, based on interviews of a convenience sample of 44 home care social workers from 5 different home health agencies in the New York City metropolitan area between November 1, 2021 and May 31, 2022. Six themes emerged from the study. Social workers believe: (1) extensive social isolation and depression exist among Medicare home health beneficiaries; (2) Medicare home health policy provides no systematic measure to detect or monitor social isolation and a limited measure for depression among the homebound elderly; (3) Medicare home health policy provides no coverage to treat either depression or social isolation; (4) effective interventions are available to prevent and treat depression and social isolation. Social workers also believe that: (5) the lack of social isolation and depression coverage results in additional mental and physical health conditions; (6) lack of social isolation and depression coverage exacerbates existing mental and physical health conditions. Policymakers are urged to modify the Medicare home health benefit to improve detection and monitoring of social isolation and depression as well as coverage of appropriate evidence-based preventative and treatment interventions.
关于老年人社会隔离和抑郁的存在及其不利影响的文献很多,最近的COVID-19大流行加剧了这种情况。文献综述表明,没有关于医疗保险家庭健康福利如何解决社会孤立和抑郁的研究,包括没有关于家庭护理社会工作者对医疗保险覆盖的性质和后果的看法的研究。本文总结了一项初步的探索性研究,以解决文献空白,该研究基于2021年11月1日至2022年5月31日期间对纽约市大都会地区5家不同家庭卫生机构的44名家庭护理社会工作者的访谈。这项研究产生了六个主题。社会工作者认为:(1)医疗保险家庭健康受益人存在广泛的社会孤立和抑郁;(2)医疗保险家庭健康政策没有提供系统的措施来检测或监测社会隔离,并且对居家老年人的抑郁措施有限;(3)医疗保险家庭健康政策不提供治疗抑郁症或社会孤立的保险;(4)有效的干预措施可以预防和治疗抑郁症和社会孤立。社会工作者还认为:(5)缺乏对社会隔离和抑郁症的报道导致了额外的精神和身体健康状况;(6)缺乏社会隔离和抑郁症覆盖加剧了现有的精神和身体健康状况。敦促政策制定者修改医疗保险家庭健康福利,以改善对社会孤立和抑郁症的检测和监测,以及适当的循证预防和治疗干预措施的覆盖范围。
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引用次数: 0
Examination of Factors Associated With Informal Caregivers’ Reactions to Different Problem Behaviors Among Persons With Alzheimer’s Disease 非正式照顾者对阿尔茨海默病患者不同问题行为的反应相关因素的研究
IF 1.1 Q4 NURSING Pub Date : 2023-03-28 DOI: 10.1177/10848223231162861
Junrong Shi, C. Scott
Problem behaviors among persons with Alzheimer’s Disease (AD) have a significant impact on caregivers. However, caregivers’ subjective reaction to the problem behaviors better predicts the caregiving outcomes than the objective frequency of problem behaviors. With a sample recruited from community agencies serving Alzheimer’s Disease (AD) caregivers (n = 108), this study examined the effect of various factors on the caregivers ’reaction to different types of problem behaviors, including demographics, caregivers’ knowledge about the AD, and resilience level, controlling for the frequency of problem behaviors and other caregiving context factors. Caregivers’ reaction to problem behaviors was measured by the Revised Memory and Behavior Problem Checklist. Findings indicated that African American caregivers had a lower level of reactions to disruptive ( B = −3.956; p < .01) and depressive behaviors ( B = −2.443; p < .05) than white caregivers, but not for memory-loss problems. Age, being spousal caregivers, and knowledge of AD only affected reactions to memory-loss problems but not for other types of behaviors. No effects were observed for personal resilience. Intervention should be tailored to the varied needs of family caregivers to deal with problem behaviors among people with AD to delay institutionalization. More training/resources at the skill level over the information-only caregiver intervention should be promoted.
阿尔茨海默病(AD)患者的问题行为对照顾者有重大影响。然而,照顾者对问题行为的主观反应比问题行为的客观频率更能预测照顾结果。本研究从服务阿尔茨海默病(AD)护理人员的社区机构中招募样本(n = 108),在控制问题行为发生频率和其他护理环境因素的情况下,研究了人口统计学、护理人员对AD的知识和心理弹性水平等因素对护理人员对不同类型问题行为反应的影响。照护者对问题行为的反应采用修正记忆与行为问题检查表进行测量。研究结果表明,非裔美国看护者对破坏性行为的反应水平较低(B =−3.956;p < 0.01)和抑郁行为(B =−2.443;P < 0.05),但在记忆丧失问题上没有差异。年龄、配偶的照顾和对阿尔茨海默病的了解只影响对记忆丧失问题的反应,而对其他类型的行为没有影响。没有观察到对个人恢复力的影响。干预应根据家庭照顾者的不同需求进行调整,以处理AD患者的问题行为,以延迟机构化。应提倡在技能水平上提供更多的培训/资源,而不是仅提供信息的护理人员干预。
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引用次数: 0
Development and Validation of the Self-management of Dementia by Family Carers (SMDFC) Scale 家庭照顾者痴呆自我管理量表的编制与验证
IF 1.1 Q4 NURSING Pub Date : 2023-03-22 DOI: 10.1177/10848223231160273
A. Shehadeh, S. Hunter, S. Jeong
To develop and validate a scale, the Self-management of Dementia by Carers (SMDC). Mixed-methods were used. First, the domains of the SMDC Scale were identified through a systematic literature review and interviews with expert professionals and carers. Then the following psychometrics were performed: content and face validity, internal consistency, test-retest reliability, and construct validity. The final scale had 58-item grouped into 6 factors. The internal consistency and test-retest reliability coefficients were excellent. This scale can be used to determine carers’ ability to assist the person living with dementia to self-manage this condition in clinical practice and research.
开发和验证一个量表,即护理人员痴呆自我管理(SMDC)。采用混合方法。首先,通过系统的文献回顾和对专业人士和护理人员的访谈,确定了SMDC量表的领域。然后进行以下心理测量:内容和面孔效度、内部一致性、重测信度和构念效度。最终量表有58个项目,分为6个因素。内部一致性和重测信度系数均较好。该量表可用于确定护理人员在临床实践和研究中帮助痴呆症患者自我管理这种情况的能力。
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引用次数: 0
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Home Health Care Management and Practice
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