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Self-management of chronic disease in Latina Kinship caregivers: an integrative review. 拉丁裔亲属照顾者慢性病自我管理:一项综合综述
IF 1.5 4区 社会学 Q3 GERONTOLOGY Pub Date : 2023-01-01 DOI: 10.1080/08952841.2021.2007827
Aliria Muñoz Rascón, Marylyn M McEwen, Maribeth Slebodnik

In the United States, Latinos experience a higher prevalence of chronic diseases with concomitant complications when compared to Non-Latino Whites. Older Latina women often manage a chronic illness while also providing kinship care. This article presents an integrative review of Latina kinship caregivers' self-management of chronic disease. An extensive review of the literature was conducted in seven databases. Four resulting studies included qualitative, quantitative, and mixed methods research and suggested health outcomes for Latina kinship caregivers were often worse when compared to other groups. A major gap in the literature identified an absence of disease-specific self-management behaviors for this population.

在美国,与非拉丁裔白人相比,拉丁裔人患伴随并发症的慢性病的患病率更高。老年拉丁裔妇女往往在治疗慢性病的同时也提供亲属护理。本文介绍了拉丁亲属照顾者慢性病自我管理的综合综述。在七个数据库中对文献进行了广泛的回顾。由此产生的四项研究包括定性、定量和混合方法研究,表明与其他群体相比,拉丁裔亲属照顾者的健康结果往往更差。文献中的一个主要差距是,这一人群缺乏疾病特异性的自我管理行为。
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引用次数: 1
"When I suffer from fever, I eat mangos." Determinants of health-seeking beliefs and behaviors of rural older women in Sylhet, Bangladesh. “我发烧的时候就吃芒果。”孟加拉国锡尔赫特农村老年妇女求医信念和行为的决定因素。
IF 1.5 4区 社会学 Q3 GERONTOLOGY Pub Date : 2023-01-01 DOI: 10.1080/08952841.2021.1996195
Mohammad Hamiduzzaman, Anita De Bellis, Wendy Abigail, Ann Harrington, Amber Fletcher

Poverty, poor living conditions, religious values and norms, lack of education, and gender discrimination influence the beliefs and behaviors of rural older women in many low-income countries. This paper aims to report the socio-ecological determinants of health-seeking beliefs and behaviors of rural older women in North-eastern Bangladesh and how these behaviors impact their recognition within the setting. It involved semi-structured interviews with 25 older women and 11 healthcare professionals. The findings revealed various determinants at the personal level (awareness of illness, mistrust toward medical treatment, self-treatment, and religious values and norms), the interpersonal level (isolation in family and communication with clinicians), community level (community perception of aging, neighboring and community organizations), and in the sphere of human rights (care affordability, social safety-net coverage and national policy). Four core determinants (poverty, education, gender and religiosity) were intertwined in shaping beliefs and behaviors.

贫穷、恶劣的生活条件、宗教价值观和规范、缺乏教育以及性别歧视影响着许多低收入国家农村老年妇女的信仰和行为。本文旨在报告孟加拉国东北部农村老年妇女寻求健康的信念和行为的社会生态决定因素,以及这些行为如何影响她们在环境中的认可。它包括对25名老年妇女和11名保健专业人员的半结构化访谈。调查结果揭示了个人层面(对疾病的认识、对医疗、自我治疗和宗教价值观和规范的不信任)、人际层面(家庭隔离和与临床医生的沟通)、社区层面(社区对老龄化、邻居和社区组织的看法)以及人权领域(护理负担能力、社会安全网覆盖范围和国家政策)的各种决定因素。四个核心决定因素(贫穷、教育、性别和宗教信仰)在形成信仰和行为方面相互交织。
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引用次数: 3
The intersection of race and financial strain: The pain of social disconnection among women in the United States. 种族与经济压力的交集:美国女性社会脱节的痛苦。
IF 1.5 4区 社会学 Q3 GERONTOLOGY Pub Date : 2023-01-01 DOI: 10.1080/08952841.2022.2041154
Tirth R Bhatta, Nirmala Lekhak, Timothy D Goler, Eva Kahana, Sfurti Rathi

Objectives: Considerable attention has been directed at increased social isolation and loneliness during the COVID-19 pandemic and their impact on later-life psychological well-being. There is a dearth of research on the effect of financial strain and associated psychosocial mechanisms on loneliness among women across racial groups. It is unclear how racial status and financial strain intersect to impact later-life loneliness amid immense uncertainty, social isolation, and anxiety induced by the pandemic.Methods: Based on our nationwide Web-based survey (n = 1,301), we used ordinary least square regression to examine the effects of financial strain on loneliness among Black and White women and assessed the role of emotional support in contributing to such effects.Results: We found that Black women face significantly more financial strain than White women but also receive more emotional support and experience less loneliness. Findings show that women experiencing financial strain report increased loneliness, but the negative effects of financial strain are significantly greater for Black women than for White women. Our mediation analysis revealed that emotional support made a significant contribution to the effects of financial strain on loneliness in White women but not in Black women.Discussion: Despite shared vulnerability and social isolation across the general population, our findings suggest that negative effects of financial strain on loneliness among women continue to differ across race, even amid the pandemic. Our findings demonstrate how emotional support explains the relationship between financial strain and later-life loneliness in a racially distinct manner.

目标:在2019冠状病毒病大流行期间,社会隔离和孤独感的增加及其对晚年心理健康的影响引起了相当大的关注。关于经济压力和相关的社会心理机制对各种族妇女孤独感的影响的研究很少。目前尚不清楚种族地位和经济压力如何相互影响,在巨大的不确定性、社会孤立和大流行引起的焦虑中影响晚年的孤独感。方法:基于我们的全国性网络调查(n = 1,301),我们使用普通最小二乘回归来检验经济压力对黑人和白人女性孤独感的影响,并评估情感支持在这种影响中的作用。结果:我们发现黑人女性比白人女性面临更大的经济压力,但也得到更多的情感支持和更少的孤独感。研究结果显示,经历经济压力的女性报告孤独感增加,但经济压力的负面影响对黑人女性的影响明显大于白人女性。我们的中介分析显示,情感支持对白人女性经济压力对孤独感的影响有显著的贡献,而对黑人女性则没有。讨论:尽管一般人群都有共同的脆弱性和社会孤立,但我们的研究结果表明,即使在大流行期间,经济压力对女性孤独感的负面影响仍然因种族而异。我们的研究结果表明,情感支持如何以一种不同种族的方式解释经济压力和晚年孤独之间的关系。
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引用次数: 1
How gender matters in demanding caring for a spouse with young-onset dementia. A narrative study. 性别在要求照顾患有年轻痴呆的配偶方面的影响。叙事性研究
IF 1.5 4区 社会学 Q3 GERONTOLOGY Pub Date : 2023-01-01 DOI: 10.1080/08952841.2022.2087455
Kirsten Thorsen, Aud Johannessen

Background: The gendered aspects of extraordinary demanding spousal caring for people with young-onset dementia have been scarcely researched.

Aim: To analyze spouses' experiences of the meaning, content, and effort of intensive caring for spouses/partners with young-onset frontotemporal dementia (YO-FTD), concentrating on a female perspective.

Method: A qualitative Norwegian study using narrative interviews with 10 wives and 6 husbands were conducted in 2014 and 2015.

Findings: The analysis resulted in four gendered main themes: Different caregiving periods, Distancing: experiencing a transformed spouse and relationship, Social isolation, and Needing assistance and relief. A case analysis of wives' and men's stories was applied, especially focusing on a wife's story, to examine the detailed interrelationships between life situation, caring demands, experiences, and reactions. Spousal care is influenced by gendered caring norms and roles. The study finds marked differences between wives and husbands in the meaning, content and sustainability of care, and needs for support vary. Wives endured more stress longer than husbands, with a greater emotional impact and negative health consequences, and their needs are more easily neglected. Husbands presented their needs more efficiently and obtained public relief earlier.

Conclusion: Women may need more support earlier during different stages of caring for a spouse with YO-FTD. They need gender sensitive person-centered support to live their own lives and preserve their selves.

背景:性别方面的特殊要求配偶照顾的人与年轻的痴呆已经很少研究。目的:以女性为研究对象,分析配偶对早发性额颞叶痴呆(YO-FTD)患者进行强化护理的意义、内容和努力。方法:2014年和2015年对10名妻子和6名丈夫进行了定性挪威研究。结果:分析得出四个性别主题:不同的照顾期,距离:经历配偶和关系的转变,社会孤立,需要帮助和救济。对妻子和男人的故事进行案例分析,特别关注妻子的故事,以检查生活状况,照顾需求,经历和反应之间的详细相互关系。配偶照顾受性别照顾规范和角色的影响。研究发现,妻子和丈夫在照顾的意义、内容和可持续性方面存在显著差异,对支持的需求也各不相同。妻子承受压力的时间比丈夫更长,对情感的影响更大,对健康的负面影响也更大,而且她们的需求更容易被忽视。丈夫们更有效地提出他们的需求,并更早地得到公众的救济。结论:在照顾患有YO-FTD的配偶的不同阶段,女性可能需要更多的支持。她们需要对性别问题敏感的、以人为本的支持,才能过自己的生活,保护自己。
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引用次数: 4
African-Caribbean women ageing without children: Does African-Caribbean culture and religious identity shape their experiences? 无子女的非裔加勒比妇女:非裔加勒比文化和宗教认同是否塑造了她们的经历?
IF 1.5 4区 社会学 Q3 GERONTOLOGY Pub Date : 2023-01-01 DOI: 10.1080/08952841.2022.2071104
Shona S Freeman

This study examines the cultural, social, and religious contexts of African-Caribbean women ageing without children. Drawing on in-depth biographical interviews with ten African-Caribbean women, the study aimed to develop insight into the experiences of women who were growing older without children. Thematic analysis highlighted the implications of early socialization and the complex intersections between childlessness, cultural and religious identity, and gender. The findings suggest that culture and religious beliefs were key factors in shaping the women's earlier socialization and views on family life, children, gender and marriage. However, there was variation in the extent to which some women's earlier socialization was retained into adulthood. Some women let go of earlier beliefs and practices, whereas others chose to keep the ones that they felt were important to them, which often influenced their decisions, choices and pathways regarding having children.

本研究考察了非洲-加勒比地区无子女老年妇女的文化、社会和宗教背景。通过对10名非裔加勒比妇女进行深入的传记采访,这项研究旨在深入了解没有孩子的老年妇女的经历。专题分析强调了早期社会化的影响以及无子女、文化和宗教认同以及性别之间的复杂交集。研究结果表明,文化和宗教信仰是影响女性早期社会化以及对家庭生活、孩子、性别和婚姻看法的关键因素。然而,有些妇女在成年后保留早期社会化的程度有所不同。有些妇女放弃了以前的信仰和习惯,而另一些妇女则选择保留她们认为对她们重要的那些,这往往影响她们关于生孩子的决定、选择和途径。
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引用次数: 1
"I'm still the queen and I'm still on my throne…": Women's reflections on gender and living with dementia. “我仍然是女王,我仍然在我的宝座上……”:女性对性别和痴呆症患者的思考。
IF 1.5 4区 社会学 Q3 GERONTOLOGY Pub Date : 2023-01-01 DOI: 10.1080/08952841.2022.2054656
Elaine C Wiersma, David Harvey, Philip Caffery

People with dementia have long been defined by the label of dementia, rather than by other aspects of their identities including gender. As a result, little research has focused on gender and dementia, particularly through the perspectives of those living with dementia. The purpose of this study was to explore the experiences and perspectives of women living with dementia. Specifically, we sought to understand how gender structured their experiences of receiving and coping with a diagnosis, services, and important relationships and supports. Utilizing a qualitative research approach, twenty-one women living with dementia participated in individual or group interviews. Women discussed the following aspects of gender and dementia: caregiver roles, perceptions of gender differences, the impact of dementia on families, and women's strength and resilience. The findings of this study indicate a clear need for further research to explore diversity and gendered experiences for those diagnosed with dementia.

长期以来,痴呆症患者被定义为痴呆症的标签,而不是他们身份的其他方面,包括性别。因此,很少有研究关注性别与痴呆症之间的关系,特别是从痴呆症患者的角度进行研究。本研究的目的是探讨女性痴呆症患者的经历和观点。具体来说,我们试图了解性别如何构成他们接受和应对诊断、服务以及重要关系和支持的经历。利用定性研究方法,21名患有痴呆症的妇女参加了个人或小组访谈。妇女们讨论了性别与痴呆症的以下几个方面:照顾者的角色、对性别差异的看法、痴呆症对家庭的影响、以及女性的力量和韧性。这项研究的结果表明,明确需要进一步研究,以探索痴呆症患者的多样性和性别经历。
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引用次数: 1
A photovoice study on the meaning of life in widows. 寡妇生活意义的光声研究。
IF 1.5 4区 社会学 Q3 GERONTOLOGY Pub Date : 2023-01-01 DOI: 10.1080/08952841.2022.2052545
Christianti Rebeca Pombu, Juliana Marlin Y Benu, Indra Yohanes Kiling

This study aimed to picture the experience of the meaning of life in widows by using a photovoice approach with thematic analysis. The participants involved were 10 widows living in West Timor, Indonesia. The results of the thematic analysis show that the meaning of life in widows relates to the following three themes: the spiritual meaning of life, risks of abuses and harassment, and supporting systems for widows. The photovoice approach managed to spark social change and improve community awareness on issues threatening widows' well-being.

本研究旨在利用专题分析的光声方法,描绘寡妇对生命意义的体验。参加者是居住在印度尼西亚西帝汶的10名寡妇。专题分析结果表明,丧偶妇女的生命意义涉及以下三个主题:生命的精神意义、虐待和骚扰的风险以及丧偶妇女的支持系统。photovoice方法成功地激发了社会变革,提高了社区对威胁丧偶妇女福祉的问题的认识。
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引用次数: 1
Developing and maintaining intergenerational relationships in an economically vulnerable community: findings from the Flint women's study. 在经济脆弱的社区中发展和维持代际关系:弗林特妇女研究的结果。
IF 1.5 4区 社会学 Q3 GERONTOLOGY Pub Date : 2022-11-01 Epub Date: 2021-12-14 DOI: 10.1080/08952841.2021.2015229
Rodlescia S Sneed, Maji Hailemariam, Kent D Key, Tamara Jordan, Raven Miller, Fallon Richie, DeWaun Robinson, Sharon Saddler, Bryan Spencer, Monicia Summers, Jonne McCoy White, Jennifer E Johnson

Few studies describe how community disadvantage impacts intergenerational relationships. Using interviews with women and service providers (n = 100), we explored benefits and challenges of intergenerational relationships in Flint, Michigan, an economically vulnerable community. Women valued relationships that increased social connections and generativity; however, few community resources promoted such relationships. Intergenerational relationships were important for leaving a social legacy in lieu of a meaningful economic legacy. Some middle-aged women are overwhelmed by caregiving, balancing employment while caring for multiple generations. Women desired intergenerational activities that include children and younger adult women. Further, caregiving programs should attend to the needs of middle-aged caregivers.

很少有研究描述社区劣势如何影响代际关系。通过对女性和服务提供者(n=100)的采访,我们探讨了密歇根州弗林特市一个经济脆弱的社区代际关系的好处和挑战。妇女重视能增加社会联系和代际关系的关系;然而,很少有社区资源促进这种关系。代际关系对于留下社会遗产而不是有意义的经济遗产非常重要。一些中年妇女在照顾几代人的同时,兼顾就业,这让她们不堪重负。妇女希望开展包括儿童和年轻成年妇女在内的代际活动。此外,护理项目应满足中年护理人员的需求。
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引用次数: 0
Changes in Life Circumstances and Mental Health Symptoms during the COVID-19 Pandemic among Midlife Women with Elevated Risk for Cardiovascular Disease. 心血管疾病风险较高的中年女性在 COVID-19 大流行期间生活环境和心理健康症状的变化。
IF 1.7 4区 社会学 Q3 GERONTOLOGY Pub Date : 2022-09-01 Epub Date: 2021-08-25 DOI: 10.1080/08952841.2021.1967654
Megan M Brown, Danielle Arigo

Cardiovascular disease (CVD) remains the leading cause of death among women. During midlife (ages 40-60), universal aging processes, sex-specific factors such as menopause, psychological distress, and conditions such as hypertension substantially increase women's risk for CVD. The onset of the COVID-19 pandemic has impacted employment, social interactions, caregiving responsibilities, and overall well-being worldwide; however, little research has investigated how COVID-19 has affected women in midlife. The present study was designed to determine how COVID-19 has affected women in midlife with elevated risk for CVD, by examining changes in their mental health symptoms and life domains across three time points: prior to COVID-19 (2019), during stay-at-home orders (April-June 2020), and during initial reopening (August 2020). Women in midlife with one or more CVD risk conditions (e.g., hypertension; n = 35) responded to questions related to COVID-19, changes in life circumstances, and mental health symptoms at each time point. Findings showed meaningful changes in caregiving, medical visits, and employment status, as well as significant changes in depression and sleep quality scores across time. However, the findings also showed that women were distressed prior to COVID-19 and did not exhibit changes in perceived stress, body dissatisfaction, or anxiety symptoms over time. Findings from this study highlight the impact of the COVID-19 pandemic on an at-risk group of women, which may be used to help guide future health promotion efforts specifically tailored to this population.

心血管疾病(CVD)仍然是女性死亡的主要原因。在中年时期(40-60 岁),普遍的衰老过程、性别特异性因素(如更年期)、心理困扰以及高血压等疾病都会大大增加女性罹患心血管疾病的风险。COVID-19 的流行影响了全球范围内的就业、社会交往、护理责任和整体福祉;然而,很少有研究调查 COVID-19 对中年女性的影响。本研究旨在确定 COVID-19 对心血管疾病风险升高的中年女性有何影响,方法是检查她们的心理健康症状和生活领域在三个时间点上的变化:COVID-19 之前(2019 年)、在家待产期间(2020 年 4 月至 6 月)和最初重新开放期间(2020 年 8 月)。患有一种或多种心血管疾病风险条件(如高血压;n = 35)的中年女性在每个时间点回答了与 COVID-19、生活环境变化和心理健康症状相关的问题。研究结果表明,在不同时期,护理、就医和就业状况发生了有意义的变化,抑郁和睡眠质量得分也发生了显著变化。然而,研究结果还显示,妇女在 COVID-19 之前就已感到痛苦,随着时间的推移,她们在感知压力、身体不满意度或焦虑症状方面并没有表现出变化。这项研究的结果突显了 COVID-19 大流行对高危女性群体的影响,可用于指导未来专门针对这一人群的健康促进工作。
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引用次数: 0
"How much desire should I have?": a qualitative study of low libido in postmenopausal women. “我应该有多少欲望?”绝经后妇女性欲低下的定性研究。
IF 1.5 4区 社会学 Q3 GERONTOLOGY Pub Date : 2022-09-01 DOI: 10.1080/08952841.2021.1977070
Holly M Thomas, Megan Hamm, Tamar Krishnamurti, Rachel Hess, Sonya Borrero, Rebecca C Thurston

We conducted 15 interviews and 3 focus groups (total N = 36) among women 60 and older with low libido to better understand the role that it plays in their lives. Interviews and focus groups were led by facilitators using open-ended questions. A codebook was developed, then codes were assigned to all data. We identified three themes. First, women reported that sex was an important aspect of their lives. Second, women desired to know what was "normal" with regards to sexuality and aging. Third, women were distressed by low libido, concerned that it could have negative effects on romantic relationships and self-image.

我们对60岁及以上性欲低下的女性进行了15次访谈和3个焦点小组(共36人),以更好地了解性欲低下在她们生活中的作用。访谈和焦点小组由主持人主持,采用开放式问题。人们发明了密码本,然后给所有数据分配了代码。我们确定了三个主题。首先,女性报告说性是她们生活的一个重要方面。其次,女性想知道在性和衰老方面什么是“正常的”。第三,女性因性欲低下而苦恼,担心这会对恋爱关系和自我形象产生负面影响。
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引用次数: 1
期刊
Journal of Women & Aging
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