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Consent and Meaningful Inclusion of People Living with Dementia: Insights from Canadian Dementia Researchers. 痴呆症患者的同意和有意义的包容:来自加拿大痴呆症研究人员的见解。
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2026-02-05 DOI: 10.1017/S0714980825100470
Amanda Grenier, Deborah O'Connor, Laura Tamblyn Watts, Esmé Sanders, Daphne Imahori, Krista James, Jim Mann

Background: People living with dementia (PLWD) want - and have the right - to participate in research that impacts them. However, barriers in legislation, institutional practices, and/or biases may jeopardize inclusion.

Objective and methods: Interviews with 33 Canadian dementia researchers were conducted to explore understandings of research consent with regard to dementia, research practices, and approaches in everyday research contexts.

Findings: Analysis of these interviews revealed challenges in negotiating the space between best practices and institutional requirements; gaps in knowledge, procedures, and guidelines on inclusion and consent; tensions regarding who should be involved in decision making; and how assumptions of presumed incapacity and/or the 'protection' of vulnerable groups create and/or sustain the exclusion of PLWD from research.

Discussion: Moving forward, findings suggest that advancing the meaningful inclusion of PLWD in Canadian dementia research will require clear, consistent standardized guidelines, flexible and ongoing consent processes, accessibility accommodations, and a stronger focus on rights-based practices.

背景:痴呆症患者(PLWD)希望并有权参与对他们有影响的研究。然而,立法、制度实践和/或偏见方面的障碍可能会危及包容性。目的和方法:对33名加拿大痴呆症研究人员进行访谈,以探讨在日常研究环境中对痴呆症、研究实践和研究方法的研究同意的理解。调查结果:对这些访谈的分析揭示了在协商最佳做法与机构要求之间的空间时所面临的挑战;在包容和同意方面的知识、程序和指南方面存在差距;关于谁应该参与决策的紧张关系;以及假定残疾和/或“保护”弱势群体的假设如何造成和/或维持将PLWD排除在研究之外。讨论:展望未来,研究结果表明,推动PLWD在加拿大痴呆症研究中的有意义纳入将需要明确、一致的标准化指导方针、灵活和持续的同意程序、无障碍设施,以及更加关注基于权利的实践。
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引用次数: 0
[Affronter les barrières liées à l'accès aux soins de santé pour les personnes aînées francophones en situation minoritaire]. [解决法语少数民族老年人获得保健服务的障碍]。
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2026-01-28 DOI: 10.1017/S0714980825100238
Valérie McIntyre, Suzanne Dupuis-Blanchard

Malgré le fait que le Nouveau-Brunswick est la seule province officiellement bilingue au Canada, l'accès aux soins de santé dans la langue officielle de la minorité semble demeurer un grand défi. La province est l'une de celles avec la plus grande proportion de personnes âgées de 65 ans et plus, dont 35 % sont francophones. Le but de cette étude qualitative de type théorisation ancrée était d'identifier comment les personnes aînées francophones en situation minoritaire accèdent aux soins en français. Des entrevues avec des personnes âgées provenant des trois communautés francophones minoritaires au N.-B. furent réalisées. Les résultats mettent en lumière le processus de « l'identité contre la vulnérabilité » en présentant six étapes qui illustrent le faible nombre d'actions entreprises pour accéder aux soins de santé en français. De plus, l'influence constante de facteurs extrinsèques et intrinsèques affecte l'étape où on s'identifie comme francophone, ce qui accentue la vulnérabilité de la personne aînée dans le système de santé.

尽管新不伦瑞克省是加拿大唯一正式的双语省,但以少数民族的官方语言获得保健服务似乎仍然是一项重大挑战。该省是65岁及以上人口比例最高的省份之一,其中35%说法语。这项定性研究的目的是确定在少数民族情况下讲法语的老年人如何获得法语护理。对来自新墨西哥州三个法语少数民族社区的老年人的采访然后进行。研究结果强调了“身份与脆弱性”的过程,提出了六个步骤,说明为获得法语医疗保健而采取的行动很少。此外,外在和内在因素的持续影响影响到一个人认为自己说法语的阶段,这增加了老年人在保健系统中的脆弱性。
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引用次数: 0
Prolonged Impact of the COVID-19 Pandemic on the Well-being and Roles of Family/Friend Caregivers of Older Adults Living at Home in Canadian Official Language Minority or Majority Communities. 2019冠状病毒病大流行对加拿大官方语言少数民族或多数社区老年人家庭/朋友照顾者的福祉和角色的长期影响
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2026-01-27 DOI: 10.1017/S0714980825100494
Jacinthe Savard, Sébastien Savard, Patrick Duong, Nelly Oriane Hatungimana, Josée Benoît, Danielle de Moissac, Suzanne Dupuis-Blanchard, Annie Robitaille

Background: Studies conducted during the COVID-19 pandemic highlighted that confinement reduced access to services and increased caregivers' responsibilities and isolation.

Objectives: This study examines the longer-term impacts among 83 unpaid caregivers of older adults from four Canadian provinces.

Methods: Participants completed an online questionnaire between October 2021 and February 2022, and again 6 months later, on the assistance provided, support received, language of services, and psychological well-being. Additionally, eight caregivers participated in a qualitative interview.

Findings: Most home support services were maintained during the pandemic - some with restricted staffing - except for respite and transportation services. Caregivers increased their assistance during the lockdowns, and this higher involvement persisted in 2022. They perceived a negative impact of the pandemic on their health and that of the care recipient. Participants from official language minority communities described additional challenges accessing services in their preferred language.

Discussion: Greater recognition of caregivers' needs will help support their role as partners within health organizations.

背景:在COVID-19大流行期间进行的研究强调,禁闭减少了获得服务的机会,增加了护理人员的责任和隔离。目的:本研究考察了来自加拿大四个省的83名无薪照顾者对老年人的长期影响。方法:参与者在2021年10月至2022年2月期间完成一份在线问卷,并在6个月后再次完成问卷,内容涉及提供的援助、获得的支持、服务语言和心理健康状况。此外,8名护理人员参加了定性访谈。调查结果:大流行期间维持了大多数家庭支助服务,其中一些人员配备有限,但休息和运输服务除外。在封锁期间,护理人员增加了他们的帮助,这种更高的参与在2022年继续存在。他们认为大流行病对他们和接受护理者的健康产生了负面影响。来自官方语言少数民族社区的与会者描述了以其首选语言获得服务的其他挑战。讨论:更多地认识到护理人员的需求将有助于支持他们在卫生组织内作为合作伙伴发挥作用。
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引用次数: 0
Contemplative Training for Mindful Aging: Insights from a Study of Participants' Experiences in a Mind-Body Training Course. 正念衰老的冥想训练:来自身心训练课程参与者经验的研究。
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2026-01-21 DOI: 10.1017/S0714980826100531
Samantha Teichman, Rebecca Pearson, William A Cook, Albert Banerjee

Contemplative practices offer a promising lens for thinking about how people navigate change, vulnerability, and the emotional texture of later life. This article examines how such practices extend ideas of healthy aging, drawing on interviews and focus groups (n = 24) from an 8-week mind-body course. Participants reported strong satisfaction with the course, noting improvements in physical and mental health, and a notable shift towards greater kindness, openness, and curiosity towards themselves and others. Aiming to understand the key elements of contemplative training, our analysis identified three notable themes: learning to be with emotionally challenging experiences; normalizing change and vulnerability; and the ongoing development of a toolkit. Participants also reported a heightened ability to cope with challenges, make intentional life choices, and foster a positive attitude. From a gerontological perspective, the program offered helpful resources for adapting to change and embracing vulnerability as fundamental components of healthy aging. We also suggest the value of a life course perspective, which enables us to imagine contemplative practice as a form of training for aging well.

冥想练习为思考人们如何应对变化、脆弱性和晚年的情感结构提供了一个有希望的视角。本文通过一个为期8周的身心课程的访谈和焦点小组(n = 24),研究了这些做法是如何扩展健康老龄化的理念的。参与者报告说,他们对课程非常满意,注意到身体和心理健康的改善,以及对自己和他人更友善、更开放和更好奇的显著转变。为了理解冥想训练的关键要素,我们的分析确定了三个值得注意的主题:学会接受具有情感挑战性的经历;使变化和脆弱性正常化;以及正在开发的工具包。参与者还报告说,他们应对挑战、做出有意识的生活选择和培养积极态度的能力有所提高。从老年学的角度来看,该项目为适应变化和接受脆弱性作为健康老龄化的基本组成部分提供了有益的资源。我们还提出了人生历程视角的价值,它使我们能够想象冥想练习是一种训练衰老的形式。
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引用次数: 0
Building Connections among University Students and Older Adult through Co-occupation in Intergenerational Living. 通过代际共同居住构建大学生与老年人的联系。
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2026-01-20 DOI: 10.1017/S0714980825100512
Rachel Gorjup, Carri Hand, Debbie Laliberte Rudman

Intergenerational programs can support social connectedness, and an important element is engaging in activities together, known as 'co-occupation'. To address gaps in the literature, we explored how older adults and university students living together in a retirement home enacted co-occupations, the factors that shaped the co-occupations, and how the co-occupations affected intergenerational relationship-building and connections. We conducted a focused ethnography using a constructivist-interpretivist paradigm, interviews with university students and older adults, and on-site observations. We analysed data using reflexive thematic analysis. Co-occupations were critical in creating connections and mutually beneficial intergenerational relationships. Participants often transformed co-occupations to promote interactions. Important features of intergenerational housing appear to be access to co-occupations that are structured and unstructured, flexibility to modify co-occupations, and physical spaces that promote co-occupation. This research illustrates how co-occupation within intergenerational housing programs can support connection and relationship-building. Findings can be applied within intergenerational housing and other intergenerational programs.

代际项目可以支持社会联系,一个重要的因素是一起参与活动,被称为“共同占有”。为了解决文献上的空白,我们探讨了共同生活在养老院的老年人和大学生如何制定共同职业,共同职业的形成因素,以及共同职业如何影响代际关系的建立和联系。我们采用建构主义-解释主义范式,对大学生和老年人进行了访谈,并进行了现场观察。我们使用反身性主题分析来分析数据。共同职业对于建立联系和互利的代际关系至关重要。参与者经常转变共同职业来促进互动。代际住宅的重要特征似乎是可以获得结构化和非结构化的共住,改变共住的灵活性,以及促进共住的物理空间。这项研究说明了代际住房项目中的共住如何支持联系和关系的建立。研究结果可以应用于代际住房和其他代际项目。
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引用次数: 0
Perceptions et attitudes des personnes âgées souffrant d'insomnie par rapport aux médicaments et aux produits de santé naturels - CORRIGENDUM. 患有失眠的老年人对药物和天然保健品的看法和态度-正确。
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2025-12-17 DOI: 10.1017/S0714980825100457
Patrick Viet-Quoc Nguyen, Thanh Dang-Vu, Geneviève Forest, Lidia Saidi, Philippe Desmarais
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引用次数: 0
Developing a Frailty Care Pathway for Older Adults in Long-Term Care: A Modified Delphi Process. 开发老年人长期护理的虚弱护理途径:一个改进的德尔菲过程。
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2025-12-01 DOI: 10.1017/S0714980825100123
Pauline Wu, Jayna Holroyd-Leduc, Sharon Kaasalainen, David B Hogan, Aynharan Sinnarajah, Michelle Grinman, James Silvius, Jessica E Simon, Ann Madeline Toohey, Jacqueline McMillan, Vanessa Slobogian, Jenna Naylor, Wayne Hykaway, Daniel Gaetano, Sandra Gilroy, Chandra Vig, Loralee Fox, Itode Vivian Ewa, Zahra Goodarzi

Objective: We developed a clinical care pathway for the detection and management of frailty for older adults living in long-term care (LTC) homes.

Methods: We utilized a modified Delphi with residents of LTC homes experiencing frailty, their caregivers, and care providers. The pathway was created using existing literature and input from key LTC experts.

Findings: Fifty-two panelists completed round one of the Delphi, and 55.8% of these respondents completed round two. Both rounds had high agreement and ratings. We added six new statements following analysis of round two, and 15 statements were modified/updated to reflect panelist feedback. The final pathway included 28 statements and promotes a resident-centered approach that highlights caregiver involvement and inter-professional teamwork to identify and manage frailty, as well as initiate palliative care earlier.

Conclusion: Implementing this pathway will allow health care providers to adopt screening measures and adapt care to a resident's frailty severity.

目的:我们开发了一种临床护理途径,用于检测和管理生活在长期护理(LTC)家中的老年人的虚弱。方法:我们采用改进的德尔菲法,调查了长期养老中心中经历虚弱的居民、他们的照顾者和护理提供者。该路径是使用现有文献和关键LTC专家的输入创建的。结果:52名小组成员完成了第一轮德尔菲,55.8%的受访者完成了第二轮。两轮都有很高的一致性和收视率。在第二轮分析之后,我们增加了6条新陈述,并修改/更新了15条陈述,以反映小组成员的反馈。最后的路径包括28个声明,并促进以居民为中心的方法,强调护理人员的参与和跨专业团队合作,以识别和管理虚弱,并尽早启动姑息治疗。结论:实施这一途径将允许卫生保健提供者采取筛查措施,并根据居民的虚弱严重程度调整护理。
{"title":"Developing a Frailty Care Pathway for Older Adults in Long-Term Care: A Modified Delphi Process.","authors":"Pauline Wu, Jayna Holroyd-Leduc, Sharon Kaasalainen, David B Hogan, Aynharan Sinnarajah, Michelle Grinman, James Silvius, Jessica E Simon, Ann Madeline Toohey, Jacqueline McMillan, Vanessa Slobogian, Jenna Naylor, Wayne Hykaway, Daniel Gaetano, Sandra Gilroy, Chandra Vig, Loralee Fox, Itode Vivian Ewa, Zahra Goodarzi","doi":"10.1017/S0714980825100123","DOIUrl":"10.1017/S0714980825100123","url":null,"abstract":"<p><strong>Objective: </strong>We developed a clinical care pathway for the detection and management of frailty for older adults living in long-term care (LTC) homes.</p><p><strong>Methods: </strong>We utilized a modified Delphi with residents of LTC homes experiencing frailty, their caregivers, and care providers. The pathway was created using existing literature and input from key LTC experts.</p><p><strong>Findings: </strong>Fifty-two panelists completed round one of the Delphi, and 55.8% of these respondents completed round two. Both rounds had high agreement and ratings. We added six new statements following analysis of round two, and 15 statements were modified/updated to reflect panelist feedback. The final pathway included 28 statements and promotes a resident-centered approach that highlights caregiver involvement and inter-professional teamwork to identify and manage frailty, as well as initiate palliative care earlier.</p><p><strong>Conclusion: </strong>Implementing this pathway will allow health care providers to adopt screening measures and adapt care to a resident's frailty severity.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"458-464"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144800610","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors Influencing Transitions from Driver to Non-Driver: Evidence from the Canadian Longitudinal Study on Aging (CLSA). 影响驾驶员向非驾驶员转变的因素:来自加拿大老龄化纵向研究的证据(里昂证券)。
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2025-12-01 DOI: 10.1017/S0714980825100184
Arne Stinchcombe, Shawna Hopper, Sylvain Gagnon, Michel Bédard

Driving enables older adults to maintain independence and community mobility. Driving plays a pivotal role in the ability to engage in activities, socialize, run errands, and access health care services; yet many people eventually stop driving. This study investigates factors that contribute to transitions from driver to non-driver (i.e., driving status) using data from the Canadian Longitudinal Study on Aging (CLSA). Among participants aged 45-85 who reported driving at baseline (n = 30,901), 1.65 percent (n = 510) had stopped driving at follow-up (three years later). Logistic regression identified predictors of this transition, including older age, female sex, lower income, urban residence, poorer self-rated health, difficulties with activities of daily living, low memory scores, and vision problems. These findings highlight the interplay of physical, cognitive, and environmental factors in driving cessation. This research advances understanding of mobility transitions in later life and informs targeted strategies to support older adults as they plan for driving retirement.

驾驶使老年人能够保持独立性和社区流动性。驾驶在参与活动、社交、跑腿和获得医疗保健服务的能力方面起着关键作用;然而,许多人最终不再开车。本研究使用来自加拿大老龄化纵向研究(CLSA)的数据,调查了促成从驾驶员到非驾驶员转变的因素(即驾驶状态)。在45-85岁的参与者中(n = 30,901), 1.65% (n = 510)的人在随访(三年后)停止了驾驶。逻辑回归确定了这一转变的预测因素,包括年龄较大、女性、收入较低、居住在城市、自我评估健康状况较差、日常生活活动困难、记忆力评分较低和视力问题。这些发现强调了身体、认知和环境因素在戒烟过程中的相互作用。这项研究促进了对老年生活中流动性转变的理解,并告知有针对性的策略,以支持老年人计划驾驶退休。
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引用次数: 0
Association between Possible Sarcopenia and Fall Risk, Depression, and Quality of Life in Middle-Aged and Older Adults. 中老年人肌肉减少症与跌倒风险、抑郁和生活质量之间的关系
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2025-12-01 DOI: 10.1017/S0714980825100202
Jaisun Koo, Seung Kil Lim, Sunga Kong

This study aimed to identify the associations between possible sarcopenia (p-sarcopenia) and fall risk, depression, and quality of life (QOL) in middle-aged (age ≥ 45 years) and older (age ≥ 65 years) adults. In this study, we analyzed a total of 10,181 men and women aged 45-85 years from the initial survey sample of the 2006 Korean Longitudinal Study of Aging. Among middle-aged men (women) adults, fall risk and depression were 4.09 (1.34) and 2.25 (2.05) times higher in the p-sarcopenia group than in the non-possible sarcopenia (np-sarcopenia) group, respectively (p < 0.05). Middle-aged and older men and women all showed low QOL-related scores, especially middle-aged men and women in the p-sarcopenia group (p < 0.05). Therefore, adequate management of sarcopenia is necessary in both older and middle-aged adults to reduce its burden as a public health concern.

本研究旨在确定中年(年龄≥45岁)和老年人(年龄≥65岁)可能的肌肉减少症(p-sarcopenia)与跌倒风险、抑郁和生活质量(QOL)之间的关系。在这项研究中,我们分析了10181名年龄在45-85岁之间的男性和女性,这些人来自2006年韩国老龄化纵向研究的初始调查样本。在中年成年男性(女性)中,p型肌肉减少症组的跌倒风险和抑郁风险分别是非可能性肌肉减少症(np-sarcopenia)组的4.09(1.34)倍和2.25(2.05)倍(p < 0.05)
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引用次数: 0
[Sentiment de reconnaissance des familles]. [家庭的感激之情]。
IF 1.2 4区 医学 Q3 GERONTOLOGY Pub Date : 2025-12-01 DOI: 10.1017/S0714980825100147
Ingrid Hennebert, Thierry Darnaud, Christine-Vanessa Cuervo-Lombard

Un certain nombre d'articles et de chapitres d'ouvrages évoquent les remaniements fonctionnels des familles face à la maladie neuro-évolutive (MNE) d'un de leurs proches. Cependant, peu d'études s'arrêtent sur le vécu de ces familles, sur leur positionnement face à la maladie et de comment elles se sentent reconnues par leurs proches atteints d'une MNE à un stade sévère. Dans cette étude, nous nous sommes intéressés au sentiment de reconnaissance des enfants et des conjoints, aux émotions de colère et de tristesse ainsi qu'aux sentiments de découragement et d'impuissance vécus par les familles face à l'évolution de la MNE de leurs parents / conjoints. Nous avons souhaité savoir s'il existait une différence significative entre les enfants et les conjoints au niveau de leur sentiment de reconnaissance et de leurs vécus. Nos résultats montrent qu'il existe une différence significative entre les enfants et les conjoints au niveau de la colère.

许多文章和书籍章节描述了家庭在面对亲属的神经进化疾病(NCD)时的功能重组。然而,很少有研究详细说明这些家庭的经历,他们在面对疾病时的立场,以及他们在患有严重非传染性疾病时如何感觉被他们的亲人认可。在这项研究中,我们研究了孩子和配偶被认可的感觉,愤怒和悲伤的感觉,以及家庭在面对父母/配偶的非传染性疾病发展时所经历的沮丧和无助的感觉。我们想知道孩子和配偶之间的认可感和经历是否有显著差异。我们的研究结果表明,孩子和配偶之间的愤怒程度存在显著差异。
{"title":"[Sentiment de reconnaissance des familles].","authors":"Ingrid Hennebert, Thierry Darnaud, Christine-Vanessa Cuervo-Lombard","doi":"10.1017/S0714980825100147","DOIUrl":"10.1017/S0714980825100147","url":null,"abstract":"<p><p>Un certain nombre d'articles et de chapitres d'ouvrages évoquent les remaniements fonctionnels des familles face à la maladie neuro-évolutive (MNE) d'un de leurs proches. Cependant, peu d'études s'arrêtent sur le vécu de ces familles, sur leur positionnement face à la maladie et de comment elles se sentent reconnues par leurs proches atteints d'une MNE à un stade sévère. Dans cette étude, nous nous sommes intéressés au sentiment de reconnaissance des enfants et des conjoints, aux émotions de colère et de tristesse ainsi qu'aux sentiments de découragement et d'impuissance vécus par les familles face à l'évolution de la MNE de leurs parents / conjoints. Nous avons souhaité savoir s'il existait une différence significative entre les enfants et les conjoints au niveau de leur sentiment de reconnaissance et de leurs vécus. Nos résultats montrent qu'il existe une différence significative entre les enfants et les conjoints au niveau de la colère.</p>","PeriodicalId":47613,"journal":{"name":"Canadian Journal on Aging-Revue Canadienne Du Vieillissement","volume":" ","pages":"512-519"},"PeriodicalIF":1.2,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145087702","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Canadian Journal on Aging-Revue Canadienne Du Vieillissement
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