Pub Date : 2024-09-27DOI: 10.1017/S1478951524001299
Rikas Saputra, Yenni Lidyawati, Kadek Suhardita, I Made Suarta, Suci Nora Julina Putri
{"title":"Improving palliative care in Nepal through virtual education.","authors":"Rikas Saputra, Yenni Lidyawati, Kadek Suhardita, I Made Suarta, Suci Nora Julina Putri","doi":"10.1017/S1478951524001299","DOIUrl":"https://doi.org/10.1017/S1478951524001299","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.9,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337064","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-27DOI: 10.1017/S147895152400124X
Sarah K Bublitz, Mara Lugassy, Roop Gursahani, Winnie Lau, Susan DeSanto-Madeya, Jessica Besbris, Neha M Kramer, John Y Rhee, Seema R Rao, Krithika S Rao, Naveen Salins, Piret Paal
Objectives: Patients with progressive neurologic illness still lack access to quality palliative care services. Barriers to the comprehensive provision of neuropalliative care include gaps in palliative care education. To address this barrier, a novel international model of neuropalliative care education e-learning program was launched in 2022.
Methods: This is a qualitative study on the self-reported learning outcomes and educational gains of participants of a neuropalliative care e-learning course.
Results: Thematic analysis shows changes in the participants' perceptions of neuropalliative care and several specific educational gains. After attending the course, participants recognized neuropalliative care as a multiprofessional and interdisciplinary effort requiring more than medical knowledge and disease-specific treatment skills. They gained understanding of the complexity of prognosis in neurological diseases, as well as ethical concepts as the basis to approach difficult decisions. Valuing the needs of patients and caregivers, as well as honest and open communication were recognized as key components of the caring process. In particular, providing emotional support and building relationships to enhance the spiritual component of care were avidly discussed as essential nonmedical treatment options.
Significance of results: E-learning courses are helping to close the gaps in healthcare professionals' knowledge and skills about neuropalliative care.
{"title":"\"It's not a one-person show\" E-learning course in neuropalliative care: A qualitative analysis of participants' educational gains and self-reported outcomes.","authors":"Sarah K Bublitz, Mara Lugassy, Roop Gursahani, Winnie Lau, Susan DeSanto-Madeya, Jessica Besbris, Neha M Kramer, John Y Rhee, Seema R Rao, Krithika S Rao, Naveen Salins, Piret Paal","doi":"10.1017/S147895152400124X","DOIUrl":"https://doi.org/10.1017/S147895152400124X","url":null,"abstract":"<p><strong>Objectives: </strong>Patients with progressive neurologic illness still lack access to quality palliative care services. Barriers to the comprehensive provision of neuropalliative care include gaps in palliative care education. To address this barrier, a novel international model of neuropalliative care education e-learning program was launched in 2022.</p><p><strong>Methods: </strong>This is a qualitative study on the self-reported learning outcomes and educational gains of participants of a neuropalliative care e-learning course.</p><p><strong>Results: </strong>Thematic analysis shows changes in the participants' perceptions of neuropalliative care and several specific educational gains. After attending the course, participants recognized neuropalliative care as a multiprofessional and interdisciplinary effort requiring more than medical knowledge and disease-specific treatment skills. They gained understanding of the complexity of prognosis in neurological diseases, as well as ethical concepts as the basis to approach difficult decisions. Valuing the needs of patients and caregivers, as well as honest and open communication were recognized as key components of the caring process. In particular, providing emotional support and building relationships to enhance the spiritual component of care were avidly discussed as essential nonmedical treatment options.</p><p><strong>Significance of results: </strong>E-learning courses are helping to close the gaps in healthcare professionals' knowledge and skills about neuropalliative care.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":" ","pages":"1-6"},"PeriodicalIF":1.9,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-27DOI: 10.1017/S1478951524001275
Hartika Utami Fitri, Rikas Saputra, Kadek Suhardita, I Made Suarta, Maria Oktasari, Siti Aminah, Palasara Brahmani Laras
{"title":"Digging deeper: A critique of the mediation study of spirituality in ALS patients.","authors":"Hartika Utami Fitri, Rikas Saputra, Kadek Suhardita, I Made Suarta, Maria Oktasari, Siti Aminah, Palasara Brahmani Laras","doi":"10.1017/S1478951524001275","DOIUrl":"https://doi.org/10.1017/S1478951524001275","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.9,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337062","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-18DOI: 10.1017/s1478951524000956
Andrea Bovero, Irene Di Girolamo, Rossana Botto, Giuliano Carlo Geminiani
Objectives Compassion is essential in palliative care; however, there is a lack of evidence of the association between this construct and patients’ dignity-related distress. The present study aimed to investigate the association between end-of-life cancer patients’ sense of dignity, the level of compassion of the healthcare professionals (HCPs) noticed and perceived by the patients, and levels of compassion that HCPs felt they had toward patients, investigating through specific attitudes and behaviors. Furthermore, the relationship between compassion and patients’ physical and psychological symptoms, such as levels of anxiety and depression, was also investigated. Methods The study was cross-sectional. The sample consisted of 105 end-of-life cancer patients and 40 HCPs. Patients had a Karnofsky Performance Status of 50 or lower and a life expectancy of less than 4 months. For each patient, sociodemographic data were collected, and a set of rating scales assessing compassion, dignity as well as physical and psychological symptoms were administered. Results The results showed significant negative associations between patients’ perception of compassion and dignity-related distress as well as significant negative associations between patients’ perception of compassion and patients’ symptoms. Significance of results Compassion seems to be involved in diminishing dignity-related distress and alleviating physical and psychological symptoms. Other studies are needed to understand whether patients’ symptoms or whether specific HCPs’ conditions influence compassion. Exploring compassion and at the end-of-life could encourage a dignity-conserving care.
{"title":"The association of compassion with dignity and symptoms in end-of-life cancer patients","authors":"Andrea Bovero, Irene Di Girolamo, Rossana Botto, Giuliano Carlo Geminiani","doi":"10.1017/s1478951524000956","DOIUrl":"https://doi.org/10.1017/s1478951524000956","url":null,"abstract":"Objectives Compassion is essential in palliative care; however, there is a lack of evidence of the association between this construct and patients’ dignity-related distress. The present study aimed to investigate the association between end-of-life cancer patients’ sense of dignity, the level of compassion of the healthcare professionals (HCPs) noticed and perceived by the patients, and levels of compassion that HCPs felt they had toward patients, investigating through specific attitudes and behaviors. Furthermore, the relationship between compassion and patients’ physical and psychological symptoms, such as levels of anxiety and depression, was also investigated. Methods The study was cross-sectional. The sample consisted of 105 end-of-life cancer patients and 40 HCPs. Patients had a Karnofsky Performance Status of 50 or lower and a life expectancy of less than 4 months. For each patient, sociodemographic data were collected, and a set of rating scales assessing compassion, dignity as well as physical and psychological symptoms were administered. Results The results showed significant negative associations between patients’ perception of compassion and dignity-related distress as well as significant negative associations between patients’ perception of compassion and patients’ symptoms. Significance of results Compassion seems to be involved in diminishing dignity-related distress and alleviating physical and psychological symptoms. Other studies are needed to understand whether patients’ symptoms or whether specific HCPs’ conditions influence compassion. Exploring compassion and at the end-of-life could encourage a dignity-conserving care.","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"31 1","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142265342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-09-16DOI: 10.1017/S1478951524001391
Riza Amalia
{"title":"A commentary on \"Spirituality moderates the relationship between cancer caregiver burden and depression\" (La. I.S, 2023).","authors":"Riza Amalia","doi":"10.1017/S1478951524001391","DOIUrl":"https://doi.org/10.1017/S1478951524001391","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.9,"publicationDate":"2024-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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