Pub Date : 2026-03-01Epub Date: 2025-05-09DOI: 10.1177/07334648251340163
Mahsa Seydi, Meghan Ambrens, Kim Delbaere, Kimberley S van Schooten
Chronic pain is prevalent among older people and significantly impacts daily life. Effective communication between healthcare providers and patients is essential for proper pain management, yet existing assessments frequently fail to capture the full complexity of chronic pain, especially in older populations. This study aimed to explore the lived experiences of chronic pain in older people to inform the development of more comprehensive pain assessment. Semi-structured interviews with 20 participants aged 60+ with chronic pain were thematically analyzed and mapped to the International Classification of Functioning, Disability, and Health framework. Chronic pain significantly impacted participants' mobility, social interactions, and emotional well-being. Participants highlighted the need for a holistic pain assessment that includes psychological and social dimensions alongside physical symptoms. Holistic pain assessments addressing the multidimensional impacts of chronic pain are needed to enhance clinical care and improve older people's quality of life.
{"title":"\"More Than Intensity: It Is How Pain Affects What I Do\": Unveiling the Multifaceted Impact of Pain in Older People on Daily Life.","authors":"Mahsa Seydi, Meghan Ambrens, Kim Delbaere, Kimberley S van Schooten","doi":"10.1177/07334648251340163","DOIUrl":"10.1177/07334648251340163","url":null,"abstract":"<p><p>Chronic pain is prevalent among older people and significantly impacts daily life. Effective communication between healthcare providers and patients is essential for proper pain management, yet existing assessments frequently fail to capture the full complexity of chronic pain, especially in older populations. This study aimed to explore the lived experiences of chronic pain in older people to inform the development of more comprehensive pain assessment. Semi-structured interviews with 20 participants aged 60+ with chronic pain were thematically analyzed and mapped to the International Classification of Functioning, Disability, and Health framework. Chronic pain significantly impacted participants' mobility, social interactions, and emotional well-being. Participants highlighted the need for a holistic pain assessment that includes psychological and social dimensions alongside physical symptoms. Holistic pain assessments addressing the multidimensional impacts of chronic pain are needed to enhance clinical care and improve older people's quality of life.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"443-452"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12876419/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144031999","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-05-28DOI: 10.1177/07334648251343657
Supa Pengpid, Karl Peltzer, Duanpen Theerawanviwat, Dararatt Anantanasuwong, Wasin Kaewchankha
Aim: The aim of this study was to estimate the prevalence and determinants of aging in place (AIP) willingness among persons 60 years and older in a national cross-sectional community-based study in Thailand in 2022. Methods: Information was taken from the 2022 Health, Aging, and Retirement in Thailand survey. Only community-dwelling individuals aged 60 and above were included in the sample (analytic sample: n = 3648). AIP willingness was measured using established metrics. The factors influencing AIP willingness were evaluated using logistic regression. Results: The prevalence of AIP willingness was 88.3%. Logistic regressions showed that predisposing factors (increasing age, being retired, and female sex), enabling factors (satisfactory support from children), need factors (multimorbidity, fewer depressive symptoms, and fewer pain sites), and psychosocial factors (not agreeing on an elderly home, higher subjective life expectancy, and current non-smoking) were associated with AIP willingness. Conclusions: Our knowledge of the factors influencing AIP willingness in community-living people 60 years of age and older is improved by this national study. Health and welfare strategies to increase enabling factors (satisfactory support from children), decrease need factors (depression and multisite pain), and increase psychosocial factors (positive attitudes towards AIP and smoking cessation) may help in increasing AIP willingness.
{"title":"Determinants of Aging in Place Willingness Among Community-Dwelling Older Adults in Thailand: Results of a National Survey.","authors":"Supa Pengpid, Karl Peltzer, Duanpen Theerawanviwat, Dararatt Anantanasuwong, Wasin Kaewchankha","doi":"10.1177/07334648251343657","DOIUrl":"10.1177/07334648251343657","url":null,"abstract":"<p><p><b>Aim:</b> The aim of this study was to estimate the prevalence and determinants of aging in place (AIP) willingness among persons 60 years and older in a national cross-sectional community-based study in Thailand in 2022. <b>Methods:</b> Information was taken from the 2022 Health, Aging, and Retirement in Thailand survey. Only community-dwelling individuals aged 60 and above were included in the sample (analytic sample: <i>n</i> = 3648). AIP willingness was measured using established metrics. The factors influencing AIP willingness were evaluated using logistic regression. <b>Results:</b> The prevalence of AIP willingness was 88.3%. Logistic regressions showed that predisposing factors (increasing age, being retired, and female sex), enabling factors (satisfactory support from children), need factors (multimorbidity, fewer depressive symptoms, and fewer pain sites), and psychosocial factors (not agreeing on an elderly home, higher subjective life expectancy, and current non-smoking) were associated with AIP willingness. <b>Conclusions:</b> Our knowledge of the factors influencing AIP willingness in community-living people 60 years of age and older is improved by this national study. Health and welfare strategies to increase enabling factors (satisfactory support from children), decrease need factors (depression and multisite pain), and increase psychosocial factors (positive attitudes towards AIP and smoking cessation) may help in increasing AIP willingness.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"592-600"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162944","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-06-11DOI: 10.1177/07334648251343330
Jarmin Yeh, Leslie Ross, Jennifer Schlesinger, Barbra McLendon, Jason Flatt, Brooke Hollister, Debra Cherry
Recent policy shifts in the United States have created opportunities for managed care organizations (MCOs) to put in place care navigators, like Dementia Care Specialists (DCS), to coordinate care for older adults living with dementia and their families. This paper presents findings of the DCS training model developed primarily for nurse and social work care managers within ten MCOs that participated in California's pilot program serving Medicare-Medicaid dual-eligible members as part of a contracted collaboration with state agencies and the Centers for Medicare and Medicaid Services between 2013 and 2018, along with updated training model resources for replication.
{"title":"Dementia Care Navigation: The Role and Training of Dementia Care Specialists in Managed Care Organizations.","authors":"Jarmin Yeh, Leslie Ross, Jennifer Schlesinger, Barbra McLendon, Jason Flatt, Brooke Hollister, Debra Cherry","doi":"10.1177/07334648251343330","DOIUrl":"10.1177/07334648251343330","url":null,"abstract":"<p><p>Recent policy shifts in the United States have created opportunities for managed care organizations (MCOs) to put in place care navigators, like Dementia Care Specialists (DCS), to coordinate care for older adults living with dementia and their families. This paper presents findings of the DCS training model developed primarily for nurse and social work care managers within ten MCOs that participated in California's pilot program serving Medicare-Medicaid dual-eligible members as part of a contracted collaboration with state agencies and the Centers for Medicare and Medicaid Services between 2013 and 2018, along with updated training model resources for replication.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"411-423"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144276319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-05-31DOI: 10.1177/07334648251345191
Stephanie M Simone, Marina Kaplan, Tania Giovannetti
Modifiable risk factors account for nearly half of dementia cases, with the greatest impact on dementia prevention in midlife. Little is known about what motivates middle-aged adults to engage in healthy behaviors for dementia risk reduction. This study examined associations between motivation to make lifestyle changes for dementia risk reduction and engagement in health behaviors associated with dementia risk in 347 middle-aged adults. Multivariate linear regressions examined associations between motivation and engagement in health behaviors. Greater self-efficacy and higher education significantly predicted greater physical and cognitive activity and better sleep quality. Greater perceived barriers and general health motivation, lower self-efficacy, and younger age significantly predicted greater perceived loneliness. Self-efficacy consistently predicted engagement in health behaviors associated with dementia risk reduction in midlife. Thus, incorporating empirically supported strategies to increase self-efficacy in lifestyle interventions for dementia prevention may increase long-term adherence and overall success of dementia prevention efforts.
{"title":"Self-Efficacy is Key: Examining the Role of Motivation to Engage in Healthy Lifestyle Behaviors for Dementia Prevention in Midlife.","authors":"Stephanie M Simone, Marina Kaplan, Tania Giovannetti","doi":"10.1177/07334648251345191","DOIUrl":"10.1177/07334648251345191","url":null,"abstract":"<p><p>Modifiable risk factors account for nearly half of dementia cases, with the greatest impact on dementia prevention in midlife. Little is known about what motivates middle-aged adults to engage in healthy behaviors for dementia risk reduction. This study examined associations between motivation to make lifestyle changes for dementia risk reduction and engagement in health behaviors associated with dementia risk in 347 middle-aged adults. Multivariate linear regressions examined associations between motivation and engagement in health behaviors. Greater self-efficacy and higher education significantly predicted greater physical and cognitive activity and better sleep quality. Greater perceived barriers and general health motivation, lower self-efficacy, and younger age significantly predicted greater perceived loneliness. Self-efficacy consistently predicted engagement in health behaviors associated with dementia risk reduction in midlife. Thus, incorporating empirically supported strategies to increase self-efficacy in lifestyle interventions for dementia prevention may increase long-term adherence and overall success of dementia prevention efforts.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"433-442"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12353781/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144192338","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-05-22DOI: 10.1177/07334648251343654
Sarah A Kim, Hsiao-Wen Liao
Younger adults often hold negative perceptions toward older adults, which can compromise intergenerational relationships. This study examines interpersonal synchrony as a potential intervening venue. Past research shows that synchronous activities enhance positive interactions among same-generation individuals. We extend the investigation to young-old dyads. Adopting a pre-test and post-test design, this study examined whether synchronous walking improves younger adults' sentiments toward older partners regarding perceived self-other merging, connectedness, general liking, and impression. Participants (N = 51; 64.7% female) were paired with an older adult, randomly assigned to synchronous, asynchronous, or no walking conditions. After walking, dyads had a conversation. Results indicated that synchronous walking (vs. asynchronous or no walking conditions) significantly improved all aspects of younger adults' sentiments toward their older partners. Having conversations enhanced connectedness and impressions, but synchronous walking outweighed conversing for strengthening self-other merging. This study sheds light on interventions for improving intergenerational relationships, cultivating an age-friendly society.
{"title":"Synchronous Walking Enhanced Younger Adults' Sentiments Toward Older Adults.","authors":"Sarah A Kim, Hsiao-Wen Liao","doi":"10.1177/07334648251343654","DOIUrl":"10.1177/07334648251343654","url":null,"abstract":"<p><p>Younger adults often hold negative perceptions toward older adults, which can compromise intergenerational relationships. This study examines interpersonal synchrony as a potential intervening venue. Past research shows that synchronous activities enhance positive interactions among same-generation individuals. We extend the investigation to young-old dyads. Adopting a pre-test and post-test design, this study examined whether synchronous walking improves younger adults' sentiments toward older partners regarding perceived self-other merging, connectedness, general liking, and impression. Participants (<i>N</i> = 51; 64.7% female) were paired with an older adult, randomly assigned to synchronous, asynchronous, or no walking conditions. After walking, dyads had a conversation. Results indicated that synchronous walking (vs. asynchronous or no walking conditions) significantly improved all aspects of younger adults' sentiments toward their older partners. Having conversations enhanced connectedness and impressions, but synchronous walking outweighed conversing for strengthening self-other merging. This study sheds light on interventions for improving intergenerational relationships, cultivating an age-friendly society.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"570-580"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121269","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-06-24DOI: 10.1177/07334648251343513
Soe Han Tha, Katrina Hough, Nhat Bui, Sarah Dulaney, Carla Perissinotto
Telemedicine has become standard in health care, and telehealth access is increasingly important. Some populations such as older adults may not have the tools nor the understanding to successfully use telehealth. We describe two cases where GrandPad, a tablet designed for older adults, was implemented at the University of California, San Francisco in (1) a home-based primary care practice and (2) a dementia specialty clinic. Using the Consolidated Framework for Implementation Research, we assess the barriers and facilitators to implementing GrandPad and present user outcomes. Most participants found GrandPad easy and comfortable to use, though there were mixed results about connecting with the provider's office. Our implementation science analysis demonstrates that GrandPad may best be used when there is otherwise no access to telehealth, where there are frequent visits, and a need for continuity of care. Successful implementation includes clear integration into existing clinic processes, understanding users' abilities, reducing provider barriers, and fostering potential users' interest.
{"title":"The Use of Age-Friendly Technology in the Care of Older Adults: Two Implementation Case Studies.","authors":"Soe Han Tha, Katrina Hough, Nhat Bui, Sarah Dulaney, Carla Perissinotto","doi":"10.1177/07334648251343513","DOIUrl":"10.1177/07334648251343513","url":null,"abstract":"<p><p>Telemedicine has become standard in health care, and telehealth access is increasingly important. Some populations such as older adults may not have the tools nor the understanding to successfully use telehealth. We describe two cases where GrandPad, a tablet designed for older adults, was implemented at the University of California, San Francisco in (1) a home-based primary care practice and (2) a dementia specialty clinic. Using the Consolidated Framework for Implementation Research, we assess the barriers and facilitators to implementing GrandPad and present user outcomes. Most participants found GrandPad easy and comfortable to use, though there were mixed results about connecting with the provider's office. Our implementation science analysis demonstrates that GrandPad may best be used when there is otherwise no access to telehealth, where there are frequent visits, and a need for continuity of care. Successful implementation includes clear integration into existing clinic processes, understanding users' abilities, reducing provider barriers, and fostering potential users' interest.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"515-526"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12876409/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144477284","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-05-22DOI: 10.1177/07334648251343506
Amy Ladebue, Juliana G Barnard, Leah M Haverhals, Brianne Morgan, Kelly Blanchard, Marilyn Sloan, David B Bekelman
The Advancing Symptom Alleviation with Palliative Treatment (ADAPT) trial found that a nurse and social worker palliative telecare team (providing care via phone) improved quality of life in older Veteran patients with chronic illness. Our objective was to describe clinician and patient experiences of ADAPT and how ADAPT influenced Veterans' quality of life. We used thematic analysis on structured interviews with 36 randomly selected patients, semi-structured focus groups with nine palliative care intervention team clinicians, and clinical intervention summaries of 147 patients. ADAPT proved to be an effective model for most Veterans by improving Veterans' health care delivery and navigation and promoting timely and holistic health care and teaching skills that improved wellbeing. ADAPT also helped to improve patient engagement and sense of agency. These findings provide insights into how ADAPT improved Veterans' quality of life through a nurse and social worker telecare team.Randomized Control Trial Registry Number: CinicalTrials.gov NCT02713347.URL For Trial Registry: https://clinicaltrials.gov/study/NCT02713347.
{"title":"Advancing Symptom Alleviation With Palliative Treatment (ADAPT): A Qualitative Study to Understand How a Nurse and Social Worker Palliative Telecare Team Improved Quality of Life in Chronic Illness.","authors":"Amy Ladebue, Juliana G Barnard, Leah M Haverhals, Brianne Morgan, Kelly Blanchard, Marilyn Sloan, David B Bekelman","doi":"10.1177/07334648251343506","DOIUrl":"10.1177/07334648251343506","url":null,"abstract":"<p><p>The Advancing Symptom Alleviation with Palliative Treatment (ADAPT) trial found that a nurse and social worker palliative telecare team (providing care via phone) improved quality of life in older Veteran patients with chronic illness. Our objective was to describe clinician and patient experiences of ADAPT and how ADAPT influenced Veterans' quality of life. We used thematic analysis on structured interviews with 36 randomly selected patients, semi-structured focus groups with nine palliative care intervention team clinicians, and clinical intervention summaries of 147 patients. ADAPT proved to be an effective model for most Veterans by improving Veterans' health care delivery and navigation and promoting timely and holistic health care and teaching skills that improved wellbeing. ADAPT also helped to improve patient engagement and sense of agency. These findings provide insights into how ADAPT improved Veterans' quality of life through a nurse and social worker telecare team.<b>Randomized Control Trial Registry Number:</b> CinicalTrials.gov NCT02713347.<b>URL For Trial Registry:</b> https://clinicaltrials.gov/study/NCT02713347.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"466-476"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121222","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-06-11DOI: 10.1177/07334648251343924
Hannah Lamont, Adrien Fillon, Hunter Lanovoi, Joshua L Gills, Jeffrey E Stokes
This study examines whether caregiving presents an equal risk for diabetes among gender. This study uses data from the second wave of the Midlife in the United States Survey, which included biological markers. We tested the relationship between caregiving and risk of diabetes across various models, controlling for demographics, confounders, and mechanisms that can explain the relationship. Cross-sectional analysis of the Homeostatic Model Assessment of Insulin Resistance (HOMO-IR) determined that (1)men had a higher risk of diabetes than women overall; (2)male caregivers demonstrated a lower risk of diabetes compared to non-caregiving men; (3)female caregivers exhibited a non-significant elevation in diabetes risk compared with non-caregiving females. Findings establish the basis for future studies which identify cardiometabolic disease risks between genders. Our study also provides foundation for future studies to expand and identify differences in psychosocial resources among male and female caregivers which may mitigate cardiometabolic disease risk.
{"title":"Caring for the Caregiver: Investigating the Relationship Between Caregiving, Gender, and Diabetes Risk in MIDUS II.","authors":"Hannah Lamont, Adrien Fillon, Hunter Lanovoi, Joshua L Gills, Jeffrey E Stokes","doi":"10.1177/07334648251343924","DOIUrl":"10.1177/07334648251343924","url":null,"abstract":"<p><p>This study examines whether caregiving presents an equal risk for diabetes among gender. This study uses data from the second wave of the Midlife in the United States Survey, which included biological markers. We tested the relationship between caregiving and risk of diabetes across various models, controlling for demographics, confounders, and mechanisms that can explain the relationship. Cross-sectional analysis of the Homeostatic Model Assessment of Insulin Resistance (HOMO-IR) determined that (1)men had a higher risk of diabetes than women overall; (2)male caregivers demonstrated a lower risk of diabetes compared to non-caregiving men; (3)female caregivers exhibited a non-significant elevation in diabetes risk compared with non-caregiving females. Findings establish the basis for future studies which identify cardiometabolic disease risks between genders. Our study also provides foundation for future studies to expand and identify differences in psychosocial resources among male and female caregivers which may mitigate cardiometabolic disease risk.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"581-591"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144267680","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-05-22DOI: 10.1177/07334648251344358
Soja Joseph, Priya Treesa Thomas, Gargi S Kumar, M Arun, Reshma P Mohandas, Kailash Ganga, M S Keerthipriya, P Binesha, S Y Aishwarya, K Sridharan, Dinesh Kumar, Priya Baby, B K Yamini, Subasree Ramakrishnan, Faheem Arshad, Suvarna Alladi
We describe the complex care needs faced by families in dementia care and specialized multidisciplinary palliative care delivered through home visits as a feasible way to support advancing stages of dementia. Participants with confirmed diagnosis of dementia were enrolled in home-based care as part of the neuropalliative and supportive care services. Disease severity, functionality, palliative care concerns, and caregiver burden were assessed at intake and three months at their homes. Forty-seven participants were enrolled. The mean age of participants was 65.48 (13.12); with more female patients (n = 27; 57%). 34/47 (72%) completed the reassessment. Moderate levels of caregiver burden were reported at 31.57 (17.9), range 18-80 at baseline, which showed a slight increase at three months follow-up, though palliative care concerns significantly reduced (Cohen's d = 1.16). Multidisciplinary home-based palliative care is feasible and can reduce the palliative care concerns in dementia. Further longitudinal studies with robust methodology are needed to explore the specific outcomes.
我们描述了痴呆症护理家庭面临的复杂护理需求,以及通过家访提供的专业多学科姑息治疗作为支持痴呆症晚期的可行方法。确诊为痴呆症的参与者参加了以家庭为基础的护理,作为神经姑息治疗和支持性护理服务的一部分。疾病严重程度、功能、姑息治疗问题和照顾者负担在入院时和在家中三个月时进行评估。47名参与者被招募。参与者平均年龄65.48岁(13.12岁);女性患者较多(n = 27;57%)。34/47(72%)完成了重新评估。中度照护者负担报告为31.57(17.9),基线范围为18-80,在三个月的随访中略有增加,尽管姑息治疗问题显着减少(Cohen’s d = 1.16)。多学科的以家庭为基础的姑息治疗是可行的,可以减少痴呆症的姑息治疗问题。需要进一步的纵向研究和可靠的方法来探索具体的结果。
{"title":"Multidisciplinary Home-Based Palliative Care for People Living with Dementia: Preliminary Findings on Palliative Care Concerns and Caregiver Burden.","authors":"Soja Joseph, Priya Treesa Thomas, Gargi S Kumar, M Arun, Reshma P Mohandas, Kailash Ganga, M S Keerthipriya, P Binesha, S Y Aishwarya, K Sridharan, Dinesh Kumar, Priya Baby, B K Yamini, Subasree Ramakrishnan, Faheem Arshad, Suvarna Alladi","doi":"10.1177/07334648251344358","DOIUrl":"10.1177/07334648251344358","url":null,"abstract":"<p><p>We describe the complex care needs faced by families in dementia care and specialized multidisciplinary palliative care delivered through home visits as a feasible way to support advancing stages of dementia. Participants with confirmed diagnosis of dementia were enrolled in home-based care as part of the neuropalliative and supportive care services. Disease severity, functionality, palliative care concerns, and caregiver burden were assessed at intake and three months at their homes. Forty-seven participants were enrolled. The mean age of participants was 65.48 (13.12); with more female patients (<i>n</i> = 27; 57%). 34/47 (72%) completed the reassessment. Moderate levels of caregiver burden were reported at 31.57 (17.9), range 18-80 at baseline, which showed a slight increase at three months follow-up, though palliative care concerns significantly reduced (Cohen's d = 1.16). Multidisciplinary home-based palliative care is feasible and can reduce the palliative care concerns in dementia. Further longitudinal studies with robust methodology are needed to explore the specific outcomes.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"477-488"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144121266","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2026-03-01Epub Date: 2025-05-15DOI: 10.1177/07334648251338875
Ashley Kuzmik, Marleny Rodriguez, Jessica Wellington, Ahmed-Rufai Yahaya, Marie Boltz
Care partners of hospitalized persons with dementia often experience significant burden at discharge. This study examined whether dementia care partner health literacy mediates the relationship between education and burden at hospital discharge. Data from 277 care partners in the Family-centered Function-focused Care (Fam-FFC) trial were analyzed using mediation analysis to assess indirect effects of education on burden (Short-Form Zarit Burden Interview [ZBI-12]) through health literacy (Rapid Estimate of Adult Literacy in Medicine-Short Form [REALM-SF]). Analyses were conducted using SPSS and AMOS. For medium education (B = -0.012; 95% CI = -0.019, -0.003), the indirect effect accounted for 18.5% of the total effect, while for high education (B = -0.018; 95% CI = -0.026, -0.006), it accounted for 21.4%, indicating partial mediation. Findings underscore the role of health literacy in reducing care partner burden and highlight the need to address education and literacy disparities to provide effective support at hospital discharge.
住院痴呆患者的护理伙伴在出院时往往承受着巨大的负担。本研究探讨痴呆护理伙伴健康素养是否介导教育与出院负担之间的关系。以家庭为中心的功能护理(Fam-FFC)试验中277名护理伙伴的数据采用中介分析,通过健康素养(成人医学素养快速评估-简写[REALM-SF])评估教育对负担的间接影响(简写Zarit负担访谈[ZBI-12])。采用SPSS和AMOS进行分析。中等教育(B = -0.012;95% CI = -0.019, -0.003),间接效应占总效应的18.5%,而对于高等教育(B = -0.018;95% CI = -0.026, -0.006),占21.4%,说明部分中介作用。调查结果强调了卫生扫盲在减轻护理伙伴负担方面的作用,并强调需要解决教育和扫盲差距问题,以便在出院时提供有效支持。
{"title":"Dementia Care Partner Health Literacy as a Mediator Between Education and Burden at Hospital Discharge.","authors":"Ashley Kuzmik, Marleny Rodriguez, Jessica Wellington, Ahmed-Rufai Yahaya, Marie Boltz","doi":"10.1177/07334648251338875","DOIUrl":"10.1177/07334648251338875","url":null,"abstract":"<p><p>Care partners of hospitalized persons with dementia often experience significant burden at discharge. This study examined whether dementia care partner health literacy mediates the relationship between education and burden at hospital discharge. Data from 277 care partners in the Family-centered Function-focused Care (Fam-FFC) trial were analyzed using mediation analysis to assess indirect effects of education on burden (Short-Form Zarit Burden Interview [ZBI-12]) through health literacy (Rapid Estimate of Adult Literacy in Medicine-Short Form [REALM-SF]). Analyses were conducted using SPSS and AMOS. For medium education (B = -0.012; 95% CI = -0.019, -0.003), the indirect effect accounted for 18.5% of the total effect, while for high education (B = -0.018; 95% CI = -0.026, -0.006), it accounted for 21.4%, indicating partial mediation. Findings underscore the role of health literacy in reducing care partner burden and highlight the need to address education and literacy disparities to provide effective support at hospital discharge.</p>","PeriodicalId":47970,"journal":{"name":"Journal of Applied Gerontology","volume":" ","pages":"424-432"},"PeriodicalIF":2.0,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12353107/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}