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Purpose in Life After Brain Injury: Expanding the Focus and Impact of Interdisciplinary Rehabilitation. 脑损伤后的生活目的:扩展跨学科康复的焦点和影响。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-14 DOI: 10.1044/2024_AJSLP-24-00113
Natalie V Covington, Olivia Vruwink, Mary Vining Radomski

Purpose: Traumatic brain injury (TBI) is a life-altering event that can abruptly and drastically derail an individual's expected life trajectory. While some adults who have sustained a TBI go on to make a full recovery, many live with persisting disability many years postinjury. Helping patients adjust to and flourish with disability that may persist should be as much a part of rehabilitative practice as addressing impairment, activity, and participation-level changes after TBI. Living with a sense of purpose in daily life has been shown to provide numerous health and psychological benefits in the general population, especially in the face of major life transitions. In this article, we argue that rehabilitative professionals across disciplines can fruitfully leverage the construct of purpose in life to lend structure, meaning, and intrinsic motivation to TBI rehabilitation and to the recrafting of lives in the aftermath of unexpected change.

Method: We provide a narrative review of the literature relevant to recovery and long-term well-being after TBI and of the role of purpose in daily life in promoting well-being in the general population. We then outline avenues for, and potential benefits of, incorporating a focus on purpose in life into TBI rehabilitation and discuss future directions in purpose-in-life rehabilitation research.

Conclusion: We propose that an overarching rehabilitative focus on purpose in daily life could improve well-being after TBI by grounding therapeutic services in a construct that meaningfully connects traditional rehabilitation targets to patients' broader lives, while concurrently addressing injury-related purpose disruption, in order to promote flourishing after brain injury irrespective of a person's degree of functional recovery.

目的:创伤性脑损伤(TBI)是一种改变生活的事件,可以突然和彻底地破坏个人预期的生活轨迹。虽然一些遭受脑外伤的成年人可以完全康复,但许多人在受伤多年后仍持续残疾。帮助患者适应并适应可能持续存在的残疾,应该与解决创伤性脑损伤后的损伤、活动和参与水平变化一样,成为康复实践的一部分。在日常生活中有目标的生活已被证明对一般人群提供了许多健康和心理上的好处,特别是在面对重大的生活转变时。在本文中,我们认为跨学科的康复专业人员可以有效地利用生活目的的构建,为TBI康复和意外变化后的生活重塑提供结构、意义和内在动机。方法:我们对创伤性脑损伤后的恢复和长期幸福感以及日常生活中目标在促进一般人群幸福感中的作用的相关文献进行了叙述性回顾。然后,我们概述了将对生活目的的关注纳入TBI康复的途径和潜在好处,并讨论了生活目的康复研究的未来方向。结论:我们提出,通过将传统康复目标与患者更广泛的生活有意义地联系起来,同时解决与损伤相关的目的中断,从而促进脑损伤后的繁荣,无论患者的功能恢复程度如何,对日常生活目的的总体康复关注可以改善TBI后的幸福感。
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引用次数: 0
Improving Cognitive Empathy Through Traumatic Brain Injury Experiential Learning: A Novel Mixed Methods Approach for Speech-Language Pathology Graduate Education. 通过创伤性脑损伤体验式学习提高认知共情:语言病理学研究生教育的一种新型混合方法。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-13 DOI: 10.1044/2024_AJSLP-24-00126
Kathryn Hardin, Jessica Rossi-Katz, Scott Busch
<p><strong>Purpose: </strong>The aim of this study was to gauge the impacts of cognitive empathy training experiential learning on traumatic brain injury (TBI) knowledge, awareness, confidence, and empathy in a pilot study of speech-language pathology graduate students.</p><p><strong>Method: </strong>A descriptive quasi-experimental convergent parallel mixed methods design intervention pilot study (QUAL + QUANT) was conducted with a diverse convenience sample of 19 first- and second-year speech-language pathology graduate students who engaged in a half-day TBI point-of-view simulation. The simulation was co-constructed through a participatory design with those living with TBI based on Kolb's experiential learning model and followed the recommendations for point-of-view simulation ethics. After setting goals, participants engaged in four station activities completing cognitive communication activities of daily living, while experiencing manipulations to their sensory systems. Activities included reading while wearing goggles with blurred or double vision, listening with tinnitus and auditory processing disorder, and taking notes during a manipulated college lecture. Participants also interacted with an individual living with TBI and responded to targeted prompts throughout the day. Quantitative outcomes were measured using published TBI knowledge and empathy scales and analyzed with descriptive, parametric and nonparametric statistics, while qualitative data were analyzed through thematic analysis. Data were then triangulated through mixed methods. Mixed methods design quality was ensured by following the Mixed Methods Appraisal Tool (Hong et al., 2018).</p><p><strong>Results: </strong>After experiential learning, significant increases in speech-language pathologist (SLP) TBI knowledge, empathy, and awareness of TBI symptom and symptom impacts were found. Many, but not all, participants also reported changes in clinical confidence.</p><p><strong>Conclusions: </strong>Cognitive empathy training using experiential learning appears to be a viable method to increase SLP knowledge, empathy, and symptom awareness for TBI clinical care. Future research should replicate the study with different types and locations of speech-language pathology graduate programs to consider TBI empathy training as a standard training method to improve both individual and provider outcomes.</p><p><strong>Plain language summary: </strong>Individuals and families living with traumatic brain injury (TBI) say their providers lack necessary knowledge; do not seem to understand what living with TBI is like; and can be dismissive, uncaring, and lacking empathy. Health care providers do not automatically imagine the world from the patient's perspectives, to "walk in another's shoes"; it takes intentional effort and training. This project attempted to train those specific empathy skills for speech-language pathology graduate students through experiential learning. Experiential learni
目的:本研究旨在探讨认知共情训练体验式学习对创伤性脑损伤(TBI)知识、意识、信心和共情的影响。方法:采用描述性准实验融合并行混合方法设计干预先导研究(QUAL + QUANT),选取19名参与为期半天的脑损伤视角模拟的一、二年级语言病理学研究生作为研究对象。基于Kolb的体验式学习模型,通过参与式设计与TBI患者共同构建模拟,并遵循观点模拟伦理的建议。在设定目标后,参与者进行四站活动,完成日常生活的认知交流活动,同时体验对感官系统的操作。这些活动包括戴着眼镜阅读,视力模糊或重影,伴有耳鸣和听觉处理障碍,以及在被操纵的大学讲座中做笔记。参与者还与TBI患者进行了互动,并对全天的目标提示做出了回应。定量结果采用已公布的TBI知识和共情量表进行测量,并采用描述性、参数性和非参数性统计进行分析,而定性数据通过专题分析进行分析。然后通过混合方法对数据进行三角测量。通过遵循混合方法评估工具(Hong et al., 2018)来确保混合方法设计质量。结果:体验式学习后,言语语言病理学家(SLP) TBI知识、共情、TBI症状和症状影响意识显著提高。许多(但不是全部)参与者也报告了临床信心的变化。结论:在TBI临床护理中,使用体验式学习的认知共情训练似乎是增加SLP知识、共情和症状意识的可行方法。未来的研究应该在不同类型和地点的语言病理学研究生课程中重复这项研究,以考虑将TBI移情训练作为一种标准的训练方法,以改善个人和提供者的结果。简单的语言总结:患有创伤性脑损伤(TBI)的个人和家庭表示,他们的医护人员缺乏必要的知识;似乎不明白脑外伤患者的生活是怎样的;而且可能会不屑一顾、漠不关心、缺乏同理心。卫生保健提供者不会自动地从病人的角度想象世界,“站在别人的角度”;它需要有意识的努力和训练。本项目试图通过体验式学习的方式来培养语言病理学研究生的移情能力。体验式学习是一个人们参与有意义的活动并花大量时间反思他们的经历的过程。与脑外伤患者一起,我们建立了一个为期半天的研讨会,让19名研究生通过不同的工作站完成正常的日常活动(如发短信、阅读),这些工作站提供了对脑外伤患者可能是什么样子的见解,比如戴上护目镜导致视力模糊或重影,耳鸣,观看一段令人眼花缭乱的精心制作的大学视频讲座。之后,参与者听一个患有脑外伤的人说话,并提出问题。这一点很重要,因为在没有与脑外伤患者互动的情况下参与活动,错过了倾听和向个人和家庭学习的关键理念。我们通过观察训练前后的调查和阅读学生的书面反思来衡量TBI知识、同理心和信心。参与者报告了他们对脑损伤的看法以及他们将来如何为TBI患者提供临床护理的重大变化。补充资料:https://doi.org/10.23641/asha.28098254。
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引用次数: 0
Speech-Language Pathologists' Experiences Working With Culturally and Linguistically Diverse Families: A Scoping Review. 语言病理学家与文化和语言多样化家庭合作的经验:范围审查。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-13 DOI: 10.1044/2024_AJSLP-24-00185
Rachel L Sinclair, Erinn H Finke, Lin Wu

Introduction: Evidence-based practices (EBPs) use evidence (external and internal), clinician expertise, and client/caregiver perspectives to deliver effective, individualized care. Each component of EBP is highly relevant and most effective when implemented together. Families with cultural or linguistic backgrounds different from the mainstream experience inequitable treatment across all disciplines. As the United States' population becomes increasingly diverse, it is paramount for speech-language pathologists (SLPs) to obtain education and support to provide evidence-based, culturally responsive care.

Method: This study conducted a scoping review to determine what is known regarding SLPs' perspectives and experiences working with families or children with different cultural or linguistic backgrounds. Articles were included if they (a) contained empirical novel data, were available in English, were peer-reviewed, and were published; (b) included experiences of SLPs who self-reported that they work with children and/or families with cultural and/or linguistic backgrounds different from themselves or the regional mainstream; and (c) reported effects of cultural or linguistic difference on SLP service provision.

Results: Results indicated that SLPs encounter many barriers but often exhibit culturally responsive clinical decision making through the consideration of evidence (external and internal) and their clinical expertise and opinion. Multiple strategies for increasing culturally responsive care and areas that would benefit from further research and systemic change were identified.

Discussion: Barriers and solutions to culturally responsive care represented two areas of needed change: personal and within system. Though not all change may occur immediately, the present study offers suggested solutions for SLPs to implement in their clinical practice for increased culturally responsive care.

Supplemental material: https://doi.org/10.23641/asha.28119836.

简介:循证实践(ebp)使用证据(外部和内部)、临床医生的专业知识和客户/护理者的观点来提供有效的个性化护理。EBP的每个组成部分高度相关,并且在一起实施时最有效。文化或语言背景与主流不同的家庭在所有学科中都会受到不公平待遇。随着美国人口的日益多样化,语言病理学家(slp)获得教育和支持以提供基于证据的、文化响应的护理是至关重要的。方法:本研究进行了范围审查,以确定什么是已知的关于slp的观点和经验,与不同文化或语言背景的家庭或儿童工作。如果文章(a)包含新颖的经验数据,有英文版本,经过同行评审,并且发表过;(b)包括那些自我报告说他们工作的儿童和/或家庭的文化和/或语言背景与他们自己或区域主流不同的特殊语言工作者的经验;(c)文化或语言差异对SLP服务提供的影响。结果:结果表明,slp遇到许多障碍,但通过考虑证据(外部和内部)以及他们的临床专业知识和意见,往往表现出文化响应的临床决策。确定了增加文化响应性护理的多种策略,以及将从进一步研究和系统变革中受益的领域。讨论:文化响应性护理的障碍和解决方案代表了两个需要改变的领域:个人和系统内部。虽然不是所有的改变都能立即发生,但本研究为slp提供了建议的解决方案,以便在临床实践中实施更多的文化响应性护理。补充资料:https://doi.org/10.23641/asha.28119836。
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引用次数: 0
We All Need at Least One Friend Who Understands What We Do Not Say: A Scoping Review of Friendship and Augmentative and Alternative Communication. 我们都需要至少一个理解我们不说的话的朋友:友谊与补充和替代沟通的范围审查。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-09 DOI: 10.1044/2024_AJSLP-24-00251
Erinn H Finke, Michelle C S Therrien, Jamie Azios, Jenessa McElfresh

Purpose: The purpose of this scoping review was to understand what is known about the friendships of individuals who use augmentative and alternative communication (AAC) devices. Because communication is important to friendship, severe communication impairment may impact the establishment or maintenance of friendships in unique and important ways.

Method: Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines for scoping reviews and Covidence software using an established set of operationally defined inclusion criteria supported the identification of the 46 papers included in this review. Included papers presented original data on the friendships of individuals with disabilities (acquired and developmental) who could benefit from AAC across the lifespan. Data were extracted to identify features of the body of literature and to identify themes that could inform future research and clinical practice.

Results: Themes identified from the included studies related to how friendship is defined, supports for friendship formation and maintenance, help and care in friendships, positive outcomes, barriers, the impact of AAC, and recommendations for moving clinical practice and research forward.

Conclusions: Friendships are chosen relationships that stem from congruences in perspectives between two individuals. People who use AAC, like the broader population, are likely to seek out and maintain friendships with people who are similar to them: people who share personality traits, past experiences (including experiencing disability), interests, and activities. Creative solutions are needed to increase the independence of disabled children and adults to meet and engage with new people with a variety of lived experiences.

Supplemental material: https://doi.org/10.23641/asha.28119857.

目的:本综述的目的是了解使用辅助和替代通信(AAC)设备的个体之间的友谊。因为沟通对友谊很重要,严重的沟通障碍可能会以独特而重要的方式影响友谊的建立或维持。方法:采用一套已建立的可操作定义的纳入标准,对系统评价和荟萃分析的范围评价指南和covid - 19软件的首选报告项目进行支持,以确定纳入本综述的46篇论文。收录的论文展示了残疾人(获得性和发展性)的友谊的原始数据,这些人可以在整个生命周期中受益于AAC。提取数据以确定文献主体的特征,并确定可以为未来研究和临床实践提供信息的主题。结果:从纳入的研究中确定的主题涉及友谊的定义,友谊形成和维持的支持,友谊中的帮助和关怀,积极的结果,障碍,AAC的影响,以及推动临床实践和研究的建议。结论:友谊是源于两个人观点一致的选择关系。使用AAC的人,就像更广泛的人群一样,可能会寻找和自己相似的人并保持友谊:有共同的个性特征、过去的经历(包括经历残疾)、兴趣和活动的人。需要创造性的解决方案来提高残疾儿童和成人的独立性,以便与具有各种生活经历的新朋友见面和交往。补充资料:https://doi.org/10.23641/asha.28119857。
{"title":"We All Need at Least One Friend Who Understands What We Do Not Say: A Scoping Review of Friendship and Augmentative and Alternative Communication.","authors":"Erinn H Finke, Michelle C S Therrien, Jamie Azios, Jenessa McElfresh","doi":"10.1044/2024_AJSLP-24-00251","DOIUrl":"https://doi.org/10.1044/2024_AJSLP-24-00251","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of this scoping review was to understand what is known about the friendships of individuals who use augmentative and alternative communication (AAC) devices. Because communication is important to friendship, severe communication impairment may impact the establishment or maintenance of friendships in unique and important ways.</p><p><strong>Method: </strong>Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines for scoping reviews and Covidence software using an established set of operationally defined inclusion criteria supported the identification of the 46 papers included in this review. Included papers presented original data on the friendships of individuals with disabilities (acquired and developmental) who could benefit from AAC across the lifespan. Data were extracted to identify features of the body of literature and to identify themes that could inform future research and clinical practice.</p><p><strong>Results: </strong>Themes identified from the included studies related to how friendship is defined, supports for friendship formation and maintenance, help and care in friendships, positive outcomes, barriers, the impact of AAC, and recommendations for moving clinical practice and research forward.</p><p><strong>Conclusions: </strong>Friendships are chosen relationships that stem from congruences in perspectives between two individuals. People who use AAC, like the broader population, are likely to seek out and maintain friendships with people who are similar to them: people who share personality traits, past experiences (including experiencing disability), interests, and activities. Creative solutions are needed to increase the independence of disabled children and adults to meet and engage with new people with a variety of lived experiences.</p><p><strong>Supplemental material: </strong>https://doi.org/10.23641/asha.28119857.</p>","PeriodicalId":49240,"journal":{"name":"American Journal of Speech-Language Pathology","volume":" ","pages":"1-28"},"PeriodicalIF":2.3,"publicationDate":"2025-01-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142957583","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation of Swallowing Dysfunction With Flexible Endoscopic Evaluation of Swallowing in the Neonatal Unit. 用柔性内镜评估新生儿单元的吞咽功能障碍。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-08 DOI: 10.1044/2024_AJSLP-24-00173
Aaron Heston, Anjali Patel, Kevin Ahn, Delaney Wresch, Lauren Ridgway, Bethany Shipman, Katrina Graf, Mohammed Elkhwad, Hemananda Muniraman

Background: Preterm and low-birth-weight infants often experience discoordination of the suck-swallow-breathe pattern, leading to dysrhythmic feeding, inefficient feeding skills, and swallowing dysfunction, increasing the risk of aspiration and respiratory morbidity. While videofluoroscopic swallowing study is commonly utilized to assess swallow function in neonates, flexible endoscopic evaluation of swallowing (FEES) has been an emerging modality and has been utilized routinely at our institution since 2018.

Method: A single-center, retrospective study including 90 infants admitted to the neonatal unit between 2018-2023 who underwent FEES procedure. Our objective was to evaluate the utility of FEES for evaluating functional and anatomical abnormalities, secretions, penetration/aspiration, and residue in infants in the Neonatal Intensive Care Unit. Our secondary objective was to observe whether clinical feeding decisions were changed based on FEES and describe progress in oral feeding.

Results: A majority of infants (85.5%) were reported to have abnormal FEES findings, with aspiration below the vocal cords noted in 37.7% and laryngeal penetration reported in 34.5% of the infants. Anatomical abnormalities were reported in 39% of infants including predominantly laryngomalacia (27.7%). Ten infants were noted to have unanticipated anatomical abnormalities, of which four went on to require surgical interventions. Changes in nipple or bottle were the most frequent recommendations (68.8%) with thickening of feeds recommended in 35% of infants. The percentage of oral feedings increased from median of 45% to 75% with a decrease in infants with apneic, bradycardic, and desaturation events in the 7 days after FEES guided interventions were introduced.

Conclusions: Majority of the infants with clinical concerns of swallow dysfunction were noted to have abnormalities on FEES, with one third of infants reported to have aspiration and anatomical abnormalities. Changes in feeding practices were recommended to majority of the infants based on FEES evaluation. Four of the five infants with anatomical abnormalities referred urgently for specialist evaluation required interventions.

背景:早产儿和低出生体重儿经常出现吸吮-吞咽-呼吸模式失调,导致进食节奏紊乱、喂养技巧低下和吞咽功能障碍,增加误吸和呼吸道疾病的风险。虽然视频透视吞咽研究通常用于评估新生儿的吞咽功能,但自2018年以来,柔性内镜吞咽评估(FEES)已成为一种新兴的方式,并已在我们机构常规使用。方法:一项单中心回顾性研究,纳入2018-2023年期间在新生儿病房接受FEES手术的90名婴儿。我们的目的是评估FEES在评估新生儿重症监护病房婴儿的功能和解剖异常、分泌物、渗透/吸入和残留方面的效用。我们的次要目的是观察临床喂养决策是否会根据FEES而改变,并描述口服喂养的进展。结果:大多数婴儿(85.5%)报告有异常的FEES表现,37.7%的婴儿出现声带以下误吸,34.5%的婴儿出现喉部穿透。39%的婴儿报告解剖异常,主要包括喉软化症(27.7%)。10名婴儿被注意到有意想不到的解剖异常,其中4名继续需要手术干预。更换乳头或奶瓶是最常见的建议(68.8%),35%的婴儿建议增稠喂养。在引入FEES指导干预措施后的7天内,口服喂养的比例从中位数45%增加到75%,出现呼吸暂停、心动过缓和去饱和事件的婴儿数量减少。结论:大多数有吞咽功能障碍临床问题的婴儿都注意到FEES异常,三分之一的婴儿报告有误吸和解剖异常。根据FEES评估,建议大多数婴儿改变喂养方法。5名有解剖异常的婴儿中有4名需要紧急进行专家评估和干预。
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引用次数: 0
North American Pilot of TBIconneCT: A Social Communication Intervention via Telehealth for Individuals With Traumatic Brain Injury and Their Conversation Partners. tbicconnect的北美试点:通过远程医疗对创伤性脑损伤患者及其谈话伙伴的社会沟通干预。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-08 DOI: 10.1044/2024_AJSLP-24-00148
Alyssa Hall, Jerry K Hoepner, Rachael Rietdijk, Leanne Togher

Purpose: The purpose of this pilot investigation was to identify formative feedback to guide the development of a North American version of the TBIconneCT program. A secondary purpose was to examine the feasibility of delivering the intervention by graduate students.

Method: Two cohorts of individuals with chronic brain injuries and their communication partners were recruited for a 10-week, modified TBIconneCT program delivered by graduate student clinicians via telehealth. Eight dyads were recruited for the first cohort, but only four dyads completed the investigation. Ten dyads participated in the second cohort, but only seven dyads completed the investigation. Along with pre and post self-reported measures of communication and participation, participants completed an interview about their experiences. Interviews were transcribed and qualitatively coded using reflexive thematic analysis.

Results: Participants from both cohorts improved in all pre- and postmeasures of communication and participation; however, gains were modest across the cohorts. Qualitative analyses were conducted separately by cohort, as results from the first cohort informed modifications that were implemented in the second cohort, primarily to address Australian English dialects. Across both contexts, overarching constructs included "participant perspectives regarding outcomes," "assessments of the effectiveness of specific portions of the program," and "suggestions for improvement."

Conclusions: The modified TBIconneCT program (North American pilot version) produced modest gains in measures of social communication, participation, and quality of life. Qualitative analyses provided insights into the strengths and weaknesses of the modified program, along with suggestions for refinement of the pilot version.

目的:这项试点调查的目的是确定形成性反馈,以指导北美版tbiceconnect计划的发展。第二个目的是检验研究生提供干预的可行性。方法:招募两组慢性脑损伤患者及其交流伙伴,参加由研究生临床医生通过远程医疗提供的为期10周的改进tbiceconnect项目。第一组招募了8对,但只有4对完成了调查。第二组有10对,但只有7对完成了调查。除了事前和事后自我报告的沟通和参与程度外,参与者还完成了一份关于他们经历的访谈。使用反身性主题分析对访谈进行转录和定性编码。结果:两个队列的参与者在沟通和参与的所有前后测量中均有所改善;然而,整个队列的收益都不大。定性分析是按队列单独进行的,因为第一个队列的结果为在第二个队列中实施的修改提供了信息,主要是为了解决澳大利亚英语方言。在这两种情况下,总体结构包括“参与者对结果的看法”、“对项目特定部分有效性的评估”和“改进建议”。结论:改进后的TBIconneCT项目(北美试点版本)在社会沟通、参与和生活质量方面取得了适度的进展。定性分析提供了对修改后的程序的优点和缺点的见解,以及改进试点版本的建议。
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引用次数: 0
The Impact of Autistic Traits on Joint Attention in Young Children With Down Syndrome During Mother-Child and Father-Child Interactions. 自闭症特征对唐氏综合征幼儿母子互动和父子互动中共同注意的影响。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-08 DOI: 10.1044/2024_AJSLP-24-00041
Audra Sterling, Emily Lorang, Kelsey Reis, Marianne Elmquist

Purpose: Joint attention predicts later language in Down syndrome (DS) and autism. The co-occurrence of autism in children with DS is 6%-19%, which is higher than in the general population. However, little is known about how co-occurring autism in DS impacts the development of joint attention. This study compared mother-child and father-child interactions in families of children with DS. Our purpose was to investigate differences in caregiver joint-attention bids and whether caregiver and child joint attention were associated with autistic traits and receptive language in children with DS.

Method: Fifteen children with DS (Mage = 39.67 months) and their biological caregivers participated in the current study. We collected mother-child and father-child interactions in participant's homes. Using Wilcoxon signed-ranks tests, we examined if there were differences in mothers' and fathers' joint attention bids and if children responded differently to their bids. We used Spearman correlations to examine the associations between child autistic traits, receptive language, and caregiver and child joint attention.

Results: We found that mothers initiated more joint-attention bids than fathers but did not find differences in child responsiveness or initiations based on communication partner. Mothers used more bids when children had more autistic traits. Child autistic traits were negatively correlated with child responsiveness to father joint-attention bids. Children with more autistic traits produced fewer joint-attention bids with both caregivers.

Conclusions: Findings suggest mothers and fathers may use differing approaches to support their child's language development. Regardless of communication partner, children with more autistic traits engaged in fewer instances of joint attention.

目的:联合注意预测唐氏综合症(DS)和自闭症的后期语言。自闭症患儿的发生率为6%-19%,高于一般人群。然而,对于DS中同时发生的自闭症如何影响共同注意的发展,我们知之甚少。本研究比较了退行性残疾儿童家庭中母子和父子之间的互动。我们的目的是研究照顾者共同注意出价的差异,以及照顾者和儿童共同注意是否与退行性障碍儿童的自闭症特征和接受性语言有关。方法:15例DS患儿(年龄39.67个月)及其生物学照顾者参与本研究。我们收集了参与者家中母亲与孩子和父亲与孩子之间的互动。使用Wilcoxon符号秩检验,我们检查了母亲和父亲的共同注意力是否存在差异,以及孩子们对他们的注意力是否有不同的反应。我们使用斯皮尔曼相关性来检验儿童自闭症特征、接受性语言和照顾者和儿童共同注意之间的关系。结果:我们发现母亲比父亲发起更多的共同关注竞价,但没有发现孩子的反应性差异或基于沟通伙伴的发起。当孩子有更多的自闭症特征时,母亲会使用更多的出价。儿童自闭症特征与儿童对父亲共同注意的反应呈负相关。具有更多自闭症特征的儿童与两个照顾者的共同注意力请求更少。结论:研究结果表明,父母可能会使用不同的方法来支持孩子的语言发展。不管交流对象是什么,具有更多自闭症特征的儿童参与共同关注的情况更少。
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引用次数: 0
A Mixed Methods Evaluation of Implementation Outcomes of a Self-Regulation Strategy for Health Education: Perspectives of Clinicians and Older Adults With and Without Traumatic Brain Injury. 健康教育自我调节策略实施结果的混合方法评价:临床医生和有和没有创伤性脑损伤的老年人的观点。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-08 DOI: 10.1044/2024_AJSLP-24-00100
Amy M Kemp, Katy H O'Brien

Purpose: Effective self-management is key for older adults with and without traumatic brain injury (TBI) to maintain their health, safety, and independence. Self-regulation is one method of promoting self-management. However, it is essential to examine effective methods of self-regulation interventions to maximize the use of such health promotion.

Method: Forty-one older adults (19 with TBI; 22 without TBI) participated in an in-person or telepractice health education intervention for fall prevention with 15 speech-language pathology student clinicians. The intervention was a self-regulation strategy, mental contrasting with implementation intentions (MCII), for promoting fall prevention. This mixed methods study explored treatment adherence and evaluated implementation outcomes through acceptability, appropriateness, feasibility, modifications to treatment, and therapist adherence and client participation.

Results: All participants demonstrated some behavior change. Participants without TBI evaluated the MCII protocol as more acceptable, F(1, 39) = 5.88, p = .018; appropriate, F(1, 39) = 5.34, p = .023; and feasible, F(1, 39) = 9.56, p = .003, than participants with TBI, although all ratings were perceived as neutral or positive. From clinician data, protocol adherence, F(1, 39) = 1.57, p = .22, and client participation, F(1, 39) = 0.10, p = .92, were similar across injury groups, but participants with TBI required more fidelity-consistent modifications to treatment, F(1, 39) = 6.88, p = .012. There were no differences between settings except that those in telepractice had more client participation, F(1, 39) = 21.02, p < .001. Clinicians felt MCII was equally appropriate for both groups in all settings, acceptability: F(1, 48) = 0.082, p = .78; appropriateness: F(1, 48) = 0.554, p = .46; feasibility: F(1, 48) = 0.197, p = .66.

Conclusion: MCII may be a feasible tool to provide health education as it offers enough structure and individualization to be considered appropriate and relevant for older adults, and for novice clinicians to administer and modify as needed based on client needs.

Supplemental material: https://doi.org/10.23641/asha.28074443.

目的:有效的自我管理是有或无创伤性脑损伤(TBI)的老年人保持健康、安全和独立的关键。自我调节是促进自我管理的一种方法。然而,必须研究自我调节干预的有效方法,以最大限度地利用这种健康促进。方法:41例老年人(19例TBI;22名无TBI的学生参加了面对面或远程的健康教育干预,与15名语言病理学学生临床医生一起预防跌倒。干预是一种自我调节策略,与实施意图(MCII)进行心理对比,以促进预防跌倒。这项混合方法研究探讨了治疗依从性,并通过可接受性、适当性、可行性、治疗修改、治疗师依从性和客户参与来评估实施结果。结果:所有参与者都表现出一定的行为改变。无TBI的参与者评价MCII方案更可接受,F(1,39) = 5.88, p = 0.018;适当,F(1,39) = 5.34, p = 0.023;和可行性,F(1,39) = 9.56, p = 0.003,比TBI参与者,尽管所有的评级被认为是中性或积极的。从临床数据来看,方案依从性(F(1,39) = 1.57, p = 0.22)和客户参与(F(1,39) = 0.10, p = 0.92)在损伤组之间相似,但TBI患者需要更符合保真度的治疗修改,F(1,39) = 6.88, p = 0.012。除了远程实习的客户参与度更高外,其他设置之间没有差异,F(1,39) = 21.02, p < .001。临床医生认为MCII在所有情况下对两组都同样合适,可接受性:F(1,48) = 0.082, p = 0.78;适宜性:F(1,48) = 0.554, p = 0.46;可行性:F(1,48) = 0.197, p = 0.66。结论:MCII可能是提供健康教育的可行工具,因为它提供了足够的结构和个性化,被认为适合和相关的老年人,并且新手临床医生可以根据客户的需要进行管理和修改。补充资料:https://doi.org/10.23641/asha.28074443。
{"title":"A Mixed Methods Evaluation of Implementation Outcomes of a Self-Regulation Strategy for Health Education: Perspectives of Clinicians and Older Adults With and Without Traumatic Brain Injury.","authors":"Amy M Kemp, Katy H O'Brien","doi":"10.1044/2024_AJSLP-24-00100","DOIUrl":"https://doi.org/10.1044/2024_AJSLP-24-00100","url":null,"abstract":"<p><strong>Purpose: </strong>Effective self-management is key for older adults with and without traumatic brain injury (TBI) to maintain their health, safety, and independence. Self-regulation is one method of promoting self-management. However, it is essential to examine effective methods of self-regulation interventions to maximize the use of such health promotion.</p><p><strong>Method: </strong>Forty-one older adults (19 with TBI; 22 without TBI) participated in an in-person or telepractice health education intervention for fall prevention with 15 speech-language pathology student clinicians. The intervention was a self-regulation strategy, mental contrasting with implementation intentions (MCII), for promoting fall prevention. This mixed methods study explored treatment adherence and evaluated implementation outcomes through acceptability, appropriateness, feasibility, modifications to treatment, and therapist adherence and client participation.</p><p><strong>Results: </strong>All participants demonstrated some behavior change. Participants without TBI evaluated the MCII protocol as more acceptable, <i>F</i>(1, 39) = 5.88, <i>p</i> = .018; appropriate, <i>F</i>(1, 39) = 5.34, <i>p</i> = .023; and feasible, <i>F</i>(1, 39) = 9.56, <i>p</i> = .003, than participants with TBI, although all ratings were perceived as neutral or positive. From clinician data, protocol adherence, <i>F</i>(1, 39) = 1.57, <i>p =</i> .22, and client participation, <i>F</i>(1, 39) = 0.10, <i>p =</i> .92, were similar across injury groups, but participants with TBI required more fidelity-consistent modifications to treatment, <i>F</i>(1, 39) = 6.88, <i>p =</i> .012. There were no differences between settings except that those in telepractice had more client participation, <i>F</i>(1, 39) = 21.02, <i>p</i> < .001. Clinicians felt MCII was equally appropriate for both groups in all settings, acceptability: <i>F</i>(1, 48) = 0.082, <i>p</i> = .78; appropriateness: <i>F</i>(1, 48) = 0.554, <i>p</i> = .46; feasibility: <i>F</i>(1, 48) = 0.197, <i>p</i> = .66.</p><p><strong>Conclusion: </strong>MCII may be a feasible tool to provide health education as it offers enough structure and individualization to be considered appropriate and relevant for older adults, and for novice clinicians to administer and modify as needed based on client needs.</p><p><strong>Supplemental material: </strong>https://doi.org/10.23641/asha.28074443.</p>","PeriodicalId":49240,"journal":{"name":"American Journal of Speech-Language Pathology","volume":" ","pages":"1-17"},"PeriodicalIF":2.3,"publicationDate":"2025-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142957651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Viewpoint on the Ethics of Pseudostuttering Assignments: Guidelines and Best Practices for Their Use. 伪口吃作业的伦理观点:假口吃作业的使用指南和最佳实践。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-07 Epub Date: 2024-11-22 DOI: 10.1044/2024_AJSLP-24-00139
Katie Gore, Seth E Tichenor

Purpose: Pseudostuttering, or the act of voluntarily stuttering or stuttering on purpose, has been both regularly used by clinicians alongside clients in stuttering therapy and taught to students in stuttering courses for decades. However, in recent years, teaching speech-language pathology students how to pseudostutter in stuttering courses has been increasingly questioned by students on grounds that pseudostuttering may be ableist, a disability simulation, and of questionable clinical value. The purpose of this article is to discuss the value and ethics of pseudostuttering assignments as part of graduate clinical education for speech-language pathologists (SLPs).

Method: The history of pseudostuttering and the pseudostuttering assignment within speech-language pathology pedagogy, disability studies literature, and community perspectives are reviewed. In so doing, we incorporate views from the broader disability rights community, the stuttering community, and stuttering research and clinical literature.

Results: Stuttering literature and community perspectives not only confirm the value of pseudostuttering assignments but also underscore the critical importance of assignment purpose, framing, structure, and scope.

Conclusions: Pseudostuttering continues to be a critical clinical skill for SLPs who work with people who stutter, and pseudostuttering assignments are an invaluable learning experience for speech-language pathology graduate students. However, assignments must be designed and implemented according to a specific set of principles and best practices. Assignment design that does not follow these principles and best practices is likely to perpetuate ableist constructs and inadequately prepare students to work with individuals who stutter. Graduate course instructors should educate themselves on these principles and engage with students who express concerns with the assignment.

目的:伪口吃,即自愿口吃或故意口吃的行为,几十年来一直被临床医生在口吃治疗中与客户一起经常使用,并在口吃课程中教授给学生。然而,近年来,在口吃课程中教授言语病理学学生如何假口吃的做法受到越来越多学生的质疑,理由是假口吃可能是能力主义、残疾模拟和临床价值有问题。本文旨在讨论作为言语病理学家(SLPs)研究生临床教育一部分的假口吃作业的价值和伦理问题:方法:本文回顾了假性口吃和假性口吃作业在言语病理学教学法、残疾研究文献和社区观点中的历史。在此过程中,我们纳入了来自更广泛的残疾人权利团体、口吃团体以及口吃研究和临床文献的观点:结果:口吃文献和社区观点不仅证实了假性口吃作业的价值,还强调了作业目的、框架、结构和范围的重要性:假性口吃仍然是为口吃患者服务的语言治疗师的一项重要临床技能,而假性口吃作业对于语言病理学研究生来说是一种宝贵的学习经历。然而,作业的设计和实施必须遵循一套特定的原则和最佳实践。不遵循这些原则和最佳实践的作业设计很可能会延续能力主义的结构,并使学生无法为与口吃者打交道做好充分准备。研究生课程指导教师应了解这些原则,并与对作业表示担忧的学生进行交流。
{"title":"A Viewpoint on the Ethics of Pseudostuttering Assignments: Guidelines and Best Practices for Their Use.","authors":"Katie Gore, Seth E Tichenor","doi":"10.1044/2024_AJSLP-24-00139","DOIUrl":"10.1044/2024_AJSLP-24-00139","url":null,"abstract":"<p><strong>Purpose: </strong>Pseudostuttering, or the act of voluntarily stuttering or stuttering on purpose, has been both regularly used by clinicians alongside clients in stuttering therapy and taught to students in stuttering courses for decades. However, in recent years, teaching speech-language pathology students how to pseudostutter in stuttering courses has been increasingly questioned by students on grounds that pseudostuttering may be ableist, a disability simulation, and of questionable clinical value. The purpose of this article is to discuss the value and ethics of pseudostuttering assignments as part of graduate clinical education for speech-language pathologists (SLPs).</p><p><strong>Method: </strong>The history of pseudostuttering and the pseudostuttering assignment within speech-language pathology pedagogy, disability studies literature, and community perspectives are reviewed. In so doing, we incorporate views from the broader disability rights community, the stuttering community, and stuttering research and clinical literature.</p><p><strong>Results: </strong>Stuttering literature and community perspectives not only confirm the value of pseudostuttering assignments but also underscore the critical importance of assignment purpose, framing, structure, and scope.</p><p><strong>Conclusions: </strong>Pseudostuttering continues to be a critical clinical skill for SLPs who work with people who stutter, and pseudostuttering assignments are an invaluable learning experience for speech-language pathology graduate students. However, assignments must be designed and implemented according to a specific set of principles and best practices. Assignment design that does not follow these principles and best practices is likely to perpetuate ableist constructs and inadequately prepare students to work with individuals who stutter. Graduate course instructors should educate themselves on these principles and engage with students who express concerns with the assignment.</p>","PeriodicalId":49240,"journal":{"name":"American Journal of Speech-Language Pathology","volume":" ","pages":"428-436"},"PeriodicalIF":2.3,"publicationDate":"2025-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11745307/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142693512","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Attitudes of Teachers, Students, and the Public Toward Stuttering in India: A Comparison. 印度教师、学生和公众对口吃的态度:比较。
IF 2.3 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Pub Date : 2025-01-07 Epub Date: 2024-12-02 DOI: 10.1044/2024_AJSLP-24-00204
Rakesh Chowkalli Veerabhadrappa, Shubhaganga Dhrruvakumar, Chaithanyanayaka Manjunatha, Hani Sulthana, Santosh Maruthy, Kenneth O St Louis

Purpose: People who stutter experience societal misconceptions and negative stereotypes due to cultural prejudices. The present study aimed to compare attitudes toward stuttering of Indian teachers, students, and members of the public and to further compare their attitudes to comparable samples regionally and internationally.

Method: Five hundred eighteen adults completed the Public Opinion Survey of Human Attributes-Stuttering (POSHA-S), translated into Kannada, which was analyzed according to standard protocol. Summary and selected item scores were compared from samples of teachers (n = 125), students (n = 233), and the public (n = 160). Additionally, the scores were compared to those from South Asian samples and an international POSHA-S database.

Results: Teachers in the current study had the most positive stuttering attitudes, followed by the public and then by students. The summary attitude scores obtained by all three groups were more positive attitudes compared to other South Asian samples and either similar to or slightly less positive than the international POSHA-S database average sample rating. Education and income were small but significant predictors of more-or less-positive attitudes, but gender, age, and familiarity with stuttering were not.

Conclusions: While teachers demonstrated a greater understanding of stuttering compared to the public and students, the lack of understanding among the latter groups highlights the need for increased awareness and education about stuttering across various segments of society. Negative social reactions toward stuttering, observed in different cultural contexts, further emphasize the need for awareness about stuttering.

Supplemental material: https://doi.org/10.23641/asha.27855195.

目的:由于文化偏见,口吃者经历了社会误解和负面刻板印象。本研究旨在比较印度教师、学生和公众对口吃的态度,并进一步将他们的态度与区域和国际可比样本进行比较。方法:518名成人完成《人类口吃特征民意调查》(POSHA-S),并将其翻译成卡纳达语,按标准程序进行分析。从教师(n = 125)、学生(n = 233)和公众(n = 160)的样本中比较总结和选择项目得分。此外,将这些分数与南亚样本和国际POSHA-S数据库的分数进行了比较。结果:在本研究中,教师对口吃的态度最为积极,其次是公众,其次是学生。与其他南亚样本相比,所有三组获得的总结态度得分更积极,与国际POSHA-S数据库的平均样本评分相似或略低。教育程度和收入虽小,但对积极态度的预测意义重大,而性别、年龄和对口吃的熟悉程度则不是。结论:虽然与公众和学生相比,教师对口吃的了解更多,但后者群体缺乏理解,这凸显了社会各阶层对口吃的认识和教育的必要性。在不同的文化背景下观察到的对口吃的负面社会反应进一步强调了对口吃的认识的必要性。补充资料:https://doi.org/10.23641/asha.27855195。
{"title":"Attitudes of Teachers, Students, and the Public Toward Stuttering in India: A Comparison.","authors":"Rakesh Chowkalli Veerabhadrappa, Shubhaganga Dhrruvakumar, Chaithanyanayaka Manjunatha, Hani Sulthana, Santosh Maruthy, Kenneth O St Louis","doi":"10.1044/2024_AJSLP-24-00204","DOIUrl":"10.1044/2024_AJSLP-24-00204","url":null,"abstract":"<p><strong>Purpose: </strong>People who stutter experience societal misconceptions and negative stereotypes due to cultural prejudices. The present study aimed to compare attitudes toward stuttering of Indian teachers, students, and members of the public and to further compare their attitudes to comparable samples regionally and internationally.</p><p><strong>Method: </strong>Five hundred eighteen adults completed the Public Opinion Survey of Human Attributes-Stuttering (POSHA-S), translated into Kannada, which was analyzed according to standard protocol. Summary and selected item scores were compared from samples of teachers (<i>n</i> = 125), students (<i>n</i> = 233), and the public (<i>n</i> = 160). Additionally, the scores were compared to those from South Asian samples and an international POSHA-S database.</p><p><strong>Results: </strong>Teachers in the current study had the most positive stuttering attitudes, followed by the public and then by students. The summary attitude scores obtained by all three groups were more positive attitudes compared to other South Asian samples and either similar to or slightly less positive than the international POSHA-S database average sample rating. Education and income were small but significant predictors of more-or less-positive attitudes, but gender, age, and familiarity with stuttering were not.</p><p><strong>Conclusions: </strong>While teachers demonstrated a greater understanding of stuttering compared to the public and students, the lack of understanding among the latter groups highlights the need for increased awareness and education about stuttering across various segments of society. Negative social reactions toward stuttering, observed in different cultural contexts, further emphasize the need for awareness about stuttering.</p><p><strong>Supplemental material: </strong>https://doi.org/10.23641/asha.27855195.</p>","PeriodicalId":49240,"journal":{"name":"American Journal of Speech-Language Pathology","volume":" ","pages":"261-280"},"PeriodicalIF":2.3,"publicationDate":"2025-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142774169","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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American Journal of Speech-Language Pathology
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