Pub Date : 2021-11-20DOI: 10.1101/2021.11.17.21266437
Andy Bradshaw, Lesley Dunleavy, Ian Garner, Nancy Preston, Sabrina Bajwah, Rachel Cripps, Lorna K Fraser, Matthew Maddocks, Mevhibe Hocaoglu, Fliss EM Murtagh, Adejoke O Oluyase, Katherine E Sleeman, Irene J Higginson, Catherine Walshe, on behalf of the CovPall study team
Objectives To explore the experiences of, and impact on, staff working in palliative care during the COVID-19 pandemic.
目的探讨COVID-19大流行期间从事姑息治疗工作的工作人员的经验及其影响。
{"title":"Experiences of staff providing specialist palliative care during COVID-19 A multiple qualitative case study","authors":"Andy Bradshaw, Lesley Dunleavy, Ian Garner, Nancy Preston, Sabrina Bajwah, Rachel Cripps, Lorna K Fraser, Matthew Maddocks, Mevhibe Hocaoglu, Fliss EM Murtagh, Adejoke O Oluyase, Katherine E Sleeman, Irene J Higginson, Catherine Walshe, on behalf of the CovPall study team","doi":"10.1101/2021.11.17.21266437","DOIUrl":"https://doi.org/10.1101/2021.11.17.21266437","url":null,"abstract":"<strong>Objectives</strong> To explore the experiences of, and impact on, staff working in palliative care during the COVID-19 pandemic.","PeriodicalId":501412,"journal":{"name":"medRxiv - Palliative Medicine","volume":"218 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138521892","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-19DOI: 10.1101/2021.04.13.21255380
Joanne Bayly, Andy Bradshaw, Lucy Fettes, Muhammed Omarjee, Helena Talbot-Rice, Catherine Walshe, Katherine E Sleeman, Sabrina Bajwah, Lesley Dunleavy, Mevhibe Hocaoglu, Adejoke Oluyase, Ian Garner, Rachel L Cripps, Nancy Preston, Lorna K Fraser, Fliss EM Murtagh, Irene J Higginson, Matthew Maddocks
Background Palliative rehabilitation involves multi-professional processes and interventions aimed at optimising patients’ symptom self-management, independence, and social participation throughout advanced illness. Rehabilitation services were highly disrupted during the Covid-19 pandemic.
{"title":"Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data","authors":"Joanne Bayly, Andy Bradshaw, Lucy Fettes, Muhammed Omarjee, Helena Talbot-Rice, Catherine Walshe, Katherine E Sleeman, Sabrina Bajwah, Lesley Dunleavy, Mevhibe Hocaoglu, Adejoke Oluyase, Ian Garner, Rachel L Cripps, Nancy Preston, Lorna K Fraser, Fliss EM Murtagh, Irene J Higginson, Matthew Maddocks","doi":"10.1101/2021.04.13.21255380","DOIUrl":"https://doi.org/10.1101/2021.04.13.21255380","url":null,"abstract":"<strong>Background</strong> Palliative rehabilitation involves multi-professional processes and interventions aimed at optimising patients’ symptom self-management, independence, and social participation throughout advanced illness. Rehabilitation services were highly disrupted during the Covid-19 pandemic.","PeriodicalId":501412,"journal":{"name":"medRxiv - Palliative Medicine","volume":"6 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138524101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-03-01DOI: 10.1101/2021.02.25.21252474
Ben Bowers, Kristian Pollock, Stephen Barclay
Background Anticipatory medications are injectable drugs prescribed ahead of possible need for administration if distressing symptoms arise in the final days of life. Little is known about how they are prescribed in primary care.
{"title":"Unwelcome memento mori or best clinical practice? Community end-of-life anticipatory medication prescribing practice: a mixed methods observational study","authors":"Ben Bowers, Kristian Pollock, Stephen Barclay","doi":"10.1101/2021.02.25.21252474","DOIUrl":"https://doi.org/10.1101/2021.02.25.21252474","url":null,"abstract":"<strong>Background</strong> Anticipatory medications are injectable drugs prescribed ahead of possible need for administration if distressing symptoms arise in the final days of life. Little is known about how they are prescribed in primary care.","PeriodicalId":501412,"journal":{"name":"medRxiv - Palliative Medicine","volume":"53 12","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138524112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-16DOI: 10.1101/2021.02.15.21251756
Sarah Mitchell, Phillip Oliver, Clare Gardiner, Helen Chapman, Dena Khan, Kirsty Boyd, Jeremy Dale, Stephen Barclay, Catriona Mayland
Background Thousands of people in the UK have required end-of-life care in the community during the COVID-19 pandemic. Primary healthcare teams (general practice and community nursing services) have provided the majority of this care, alongside specialist colleagues. There is a need to learn from this experience in order to inform future service delivery and planning.
{"title":"Community end-of-life care during the COVID-19 pandemic: Initial findings of a UK primary care survey","authors":"Sarah Mitchell, Phillip Oliver, Clare Gardiner, Helen Chapman, Dena Khan, Kirsty Boyd, Jeremy Dale, Stephen Barclay, Catriona Mayland","doi":"10.1101/2021.02.15.21251756","DOIUrl":"https://doi.org/10.1101/2021.02.15.21251756","url":null,"abstract":"<strong>Background</strong> Thousands of people in the UK have required end-of-life care in the community during the COVID-19 pandemic. Primary healthcare teams (general practice and community nursing services) have provided the majority of this care, alongside specialist colleagues. There is a need to learn from this experience in order to inform future service delivery and planning.","PeriodicalId":501412,"journal":{"name":"medRxiv - Palliative Medicine","volume":"3 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-02-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138542370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-06DOI: 10.1101/2021.01.04.21249226
Amy Tan, Ronald Spice, Aynharan Sinnarajah
Objectives Canadians want to live and die in their home communities. Unfortunately, Canada has the highest proportion of deaths in acute care facilities as compared to other developed nations. This study aims to identify the essential components required to best support patients and families with palliative care needs in their communities to inform system changes and empower family physicians (FPs) in providing community-based palliative care for patients.
{"title":"Family physicians supporting patients with palliative care needs within the Patient Medical Home in the community: An Appreciative Inquiry qualitative study","authors":"Amy Tan, Ronald Spice, Aynharan Sinnarajah","doi":"10.1101/2021.01.04.21249226","DOIUrl":"https://doi.org/10.1101/2021.01.04.21249226","url":null,"abstract":"<strong>Objectives</strong> Canadians want to live and die in their home communities. Unfortunately, Canada has the highest proportion of deaths in acute care facilities as compared to other developed nations. This study aims to identify the essential components required to best support patients and families with palliative care needs in their communities to inform system changes and empower family physicians (FPs) in providing community-based palliative care for patients.","PeriodicalId":501412,"journal":{"name":"medRxiv - Palliative Medicine","volume":"34 17","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138524136","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-03DOI: 10.1101/2020.10.29.20215996
Lesley Dunleavy, Nancy Preston, Sabrina Bajwah, Andy Bradshaw, Rachel Cripps, Lorna K Fraser, Matthew Maddocks, Mevhibe Hocaoglu, Fliss EM Murtagh, Adejoke Oluyase, Katherine E Sleeman, Irene Higginson, Catherine Walshe, on behalf of the CovPall study team
Background Specialist palliative care services have a key role in a whole system response to COVID-19. There is a need to understand service response to share good practice and prepare for future care.
{"title":"‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multi-national survey (CovPall)","authors":"Lesley Dunleavy, Nancy Preston, Sabrina Bajwah, Andy Bradshaw, Rachel Cripps, Lorna K Fraser, Matthew Maddocks, Mevhibe Hocaoglu, Fliss EM Murtagh, Adejoke Oluyase, Katherine E Sleeman, Irene Higginson, Catherine Walshe, on behalf of the CovPall study team","doi":"10.1101/2020.10.29.20215996","DOIUrl":"https://doi.org/10.1101/2020.10.29.20215996","url":null,"abstract":"<strong>Background</strong> Specialist palliative care services have a key role in a whole system response to COVID-19. There is a need to understand service response to share good practice and prepare for future care.","PeriodicalId":501412,"journal":{"name":"medRxiv - Palliative Medicine","volume":"46 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138524100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-10-30DOI: 10.1101/2020.10.28.20200725
A Bradshaw, L. Dunleavy, C. Walshe, N. Preston, R. Cripps, M.B. Hocaoglu, S. Bajwah, M. Maddocks, A. Oluyase, K.E. Sleeman, I.J. Higginson, L.K. Fraser, F.E.M Murtagh, On behalf of the CovPall study team
Background During the COVID-19 pandemic, specialist palliative care services have an important role to play conducting high-quality and individualised Advance Care Planning discussions. Little is known about the challenges to Advance Care Planning in this context, or the changes services have made in adapting to them.
{"title":"Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services","authors":"A Bradshaw, L. Dunleavy, C. Walshe, N. Preston, R. Cripps, M.B. Hocaoglu, S. Bajwah, M. Maddocks, A. Oluyase, K.E. Sleeman, I.J. Higginson, L.K. Fraser, F.E.M Murtagh, On behalf of the CovPall study team","doi":"10.1101/2020.10.28.20200725","DOIUrl":"https://doi.org/10.1101/2020.10.28.20200725","url":null,"abstract":"<strong>Background</strong> During the COVID-19 pandemic, specialist palliative care services have an important role to play conducting high-quality and individualised Advance Care Planning discussions. Little is known about the challenges to Advance Care Planning in this context, or the changes services have made in adapting to them.","PeriodicalId":501412,"journal":{"name":"medRxiv - Palliative Medicine","volume":"47 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138524081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-03-20DOI: 10.1101/2020.03.18.20038448
Massimo Costantini, Katherine E Sleeman, Carlo Peruselli, Irene J Higginson
Background Palliative care is an important component of healthcare in pandemics, contributing to symptom control, psychological support, and supporting triage and complex decision making.
背景姑息治疗是流行病卫生保健的重要组成部分，有助于症状控制、心理支持以及支持分诊和复杂决策。
{"title":"Response and role of palliative care during the COVID-19 pandemic: a national telephone survey of hospices in Italy","authors":"Massimo Costantini, Katherine E Sleeman, Carlo Peruselli, Irene J Higginson","doi":"10.1101/2020.03.18.20038448","DOIUrl":"https://doi.org/10.1101/2020.03.18.20038448","url":null,"abstract":"<strong>Background</strong> Palliative care is an important component of healthcare in pandemics, contributing to symptom control, psychological support, and supporting triage and complex decision making.","PeriodicalId":501412,"journal":{"name":"medRxiv - Palliative Medicine","volume":"20 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138524116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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