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Lessons Learned Developing Client Navigation for People who are Trans and Gender Diverse 为变性人和性别多元化者开发客户导航的经验教训
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914120
Alana Cattapan, Stéphanie Madill, Megan Clark, James Young, Cat Haines, Lori Ebbeson
Abstract:Background: People who are trans and gender diverse (PTGD) are underserved regarding healthcare in Canada, including the province of Saskatchewan.Objectives: Design and conduct a research project that will address immediate and pressing community-identified needs related to improving access to healthcare for PTGD in Saskatchewan.Methods: A multidisciplinary, community-based collaboration was established to address the self-identified obstacles to accessing healthcare of PTGD in Saskatchewan. This resulted in a pilot study creating and evaluating a healthcare navigation program.Lessons Learned: The project led to four key lessons: 1) prioritizing team building and the well-being of team members; 2) committing to community-based participatory approaches from the outset; 3) taking language seriously; and 4) acknowledging and addressing power imbalances in our team.Conclusions: The lessons we learned have enabled us to sustain a large, diverse, research team that centers the experience of PTGD in Saskatchewan and is responsive to community need.
摘要:背景:在加拿大,包括萨斯喀彻温省,变性人和性别多元化者(PTGD)的医疗服务不足:设计并开展一个研究项目,以满足社区确定的与改善萨斯喀彻温省变性者和性别多元化者医疗保健服务相关的迫切需求:方法:建立一个多学科、基于社区的合作项目,以解决萨斯喀彻温省 PTGD 患者在获得医疗保健服务方面自我认定的障碍。这促成了一项试点研究,创建并评估了一项医疗保健导航计划:该项目带来了四条重要经验:1) 优先考虑团队建设和团队成员的福利;2) 从一开始就致力于基于社区的参与式方法;3) 认真对待语言;以及 4) 承认并解决团队中的权力失衡问题:我们吸取的经验教训使我们能够维持一个大型、多元化的研究团队,以萨斯喀彻温省的 PTGD 经验为中心,并对社区需求做出响应。
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引用次数: 0
The Hows of Resident-Driven Community Empowerment toward Health Equity 居民驱动的社区赋权如何实现健康平等
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914115
Mary V. Davis, Eric Ishiwata, Jen Sethi, Bruno Sobral
Abstract:Background: This article details community engagement, design, and implementation strategies for the Raices-Xidid-Roots (RXR) Academy. RXR provided a linguistically accessible and culturally relevant curriculum to residents of Spanish and Somali-speaking immigrant, asylee, and refugee backgrounds.Objectives: This study examined the implementation of the RXR program, including participation and adjustments needed to foster participant engagement and active voice, and explored participant actions to address self-identified aspirations as part of participation. RXR's goal was to empower Morgan County, Colorado, Spanish- and Somalispeaking cohorts of residents from immigrant, asylee, and refugee backgrounds such that they could autonomously plan, create, and sustain programs and organizations to meet their community needs.Methods: The observational study design included process and implementation evaluative approaches, including interview, project team meeting debriefings, and course organizer reflections, to identify and address implementation challenges, learn how the program met participants' needs, and understand keys to maintaining participant engagement.Results: Cultural adaptation of the content was key to maintaining consistent participant engagement, including delivering programming in participant preferred languages and tailoring curriculum to participant cultural practices. Participants indicated that language barriers had previously prevented them from accessing the content provided by the program's curriculum. Adaptations included adjusting meeting logistics, participant compensation, and unit timing. The Two RXR Academy cohorts developed initiatives that addressed community-identified needs.Lessons Learned: Three RXR design elements supported participant engagement and development of community power: 1) language access beyond the language justice model by providing programming in the participants' preferred language, 2) cultural adaptation of programming, and 3) community ownership and active voiceConclusions: The RXR program provided opportunities for skill development among Morgan County's non-native English-speaking residents and led to the design and implementation of resident-driven projects.
摘要:背景:本文详细介绍了Raices-Xidid-Roots(RXR)学院的社区参与、设计和实施策略。RXR 为讲西班牙语和索马里语的移民、受庇护者和难民背景的居民提供了语言上无障碍、文化上相关的课程:本研究考察了 RXR 计划的实施情况,包括参与情况以及为促进参与者参与和积极发言而需要做出的调整,并探讨了参与者在参与过程中为实现自我确定的愿望而采取的行动。RXR 的目标是增强科罗拉多州摩根县讲西班牙语和索马里语的移民、受庇护者和难民居民的能力,使他们能够自主规划、创建和维持项目和组织,以满足他们的社区需求:观察研究设计包括过程和实施评估方法,包括访谈、项目小组会议汇报和课程组织者反思,以确定和解决实施过程中的挑战,了解该计划如何满足参与者的需求,并了解保持参与者参与的关键:对内容进行文化调整是保持参与者持续参与的关键,包括以参与者喜欢的语言提供课程,并根据参与者的文化习俗调整课程。参与者表示,以前由于语言障碍,他们无法获得计划课程提供的内容。调整措施包括调整会议后勤、学员补偿和单元时间安排。两个零售与零售资源学院的学员针对社区确定的需求制定了计划:RXR 的三个设计要素支持了参与者的参与和社区力量的发展:1)超越语言公正模式的语言接入,以参与者偏好的语言提供方案;2)方案的文化调整;3)社区所有权和积极发言权:RXR 计划为摩根县的非英语母语居民提供了技能发展机会,并促成了居民主导项目的设计和实施。
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引用次数: 0
Critical Reflections on This Historical Moment for Community-engaged and Participatory Research 对社区参与和参与式研究这一历史时刻的批判性思考
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914113
Milton "Mickey" Eder, Ysabel Duron, Lori Carter-Edwards, E. Greene-Moton, Meredith Minkler, Leo S. Morales, Keith Norris, Nina B. Wallerstein
) pandemic starkly exposed, once again, the depth of the racial and social inequities in morbidity and mortality across individuals and communities. It reified systemic racism, with ongoing police shootings further highlighting the deeply entrenched anti-Black racism and how little has changed since the first slave patrols evolved into our system of policing. It further exposed the support for policing from a system of justice that effectively sustains racial separation accompanied by inequality of access to services. Social biases are further evident in the consistency of data by group regarding racial profiling and traffic stops, involvement with the legal system and incarceration rates. Although racism touches every group at some point in time, its genesis in the United States validated Native American genocide and African chattel slavery. As Native Indians were relegated to reservations, slaves remained a visible part of everyday America. Visibility has produced an embedding of anti-Black racism into our laws, policies, practices, history and media, resulting in a massive imbalance in the distribution of community level life and health affirming resources and opportunities. Confrontations regarding rights and the potential for silencing populations most adversely impacted once again occupies the public conscience. Current legislated actions to restrict voting rights, to censor and/or ban books from schools and libraries that address race and gender orientation and identity differences, and debates about academic freedom and first amendment rights in institutions of higher learning and the media, resonate with post reconstruction action to rescind the rights of freed Black Americans to citizenship through repressive Black Codes/Jim Crow laws. 1,2 As we chart a way forward, the proactive response of many communities of color during COVID and the response to the brutal police murder of George Floyd, among so many other often unarmed Black people, remind us of the central role of community engagement for raising awareness and for collaboratively addressing the needs and priorities of our most marginalized.
疫情再次赤裸裸地暴露了个人和社区在发病率和死亡率方面的种族和社会不平等。它再次证明了系统性种族主义的存在,不断发生的警察枪击事件进一步凸显了根深蒂固的反黑人种族主义,以及自第一批奴隶巡逻队演变成我们的警务系统以来几乎没有发生任何变化。这进一步暴露了司法系统对警务工作的支持,这种支持有效地维持了种族隔离,并伴随着获得服务的不平等。在种族貌相、交通拦截、参与法律系统和监禁率方面,各群体数据的一致性进一步体现了社会偏见。虽然种族主义在某些时候会触及到每个群体,但其在美国的起源却验证了美洲原住民种族灭绝和非洲奴隶制。随着印第安原住民被驱逐到保留地,奴隶仍然是美国日常生活中可见的一部分。可见,反黑人的种族主义已深深扎根于我们的法律、政策、实践、历史和媒体之中,导致社区层面的生活和健康资源及机会分配严重失衡。有关权利的对抗以及使受到最不利影响的人群保持沉默的可能性,再次唤起了公众的良知。当前限制投票权、审查和/或禁止学校和图书馆中涉及种族、性别取向和身份差异的书籍的立法行动,以及关于高等院校和媒体的学术自由和第一修正案权利的辩论,与重建后通过镇压性的《黑法典》/《吉姆-克罗法》取消获得自由的美国黑人公民权利的行动产生了共鸣。1,2 在我们规划前进的道路时,许多有色人种社区在 COVID 期间的积极反应,以及对警察残暴杀害乔治-弗洛伊德(George Floyd)和其他许多手无寸铁的黑人的反应,都提醒我们社区参与在提高意识、合作解决我们最边缘化群体的需求和优先事项方面的核心作用。
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引用次数: 0
Resilience Among Small Community-based Organizations During the COVID-19 Pandemic: Insights for Future Public Health Crises 小型社区组织在 COVID-19 大流行期间的复原力:对未来公共卫生危机的启示
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914130
Shayna D. Cunningham, Candida Flores, Fawatih Y. Mohamed-Abouh, Alixe Dittmore, Stephen Schensul, Jean Schensul, Stacey Brown, Megan A. Grady
Abstract:The coronavirus disease 2019 pandemic has created numerous challenges for many community-based organizations to sustain delivery of services and programs. This paper offers perspectives from leadership of three small community-based organizations serving diverse populations in the Hartford, Connecticut, region on how they were impacted and responded to disruptions during the first year of the coronavirus disease 2019 pandemic. Community-based organizations' commitment to the populations they serve and agility with regard to programming, staffing, and finances were highlighted as key to their resilience, enabling them to serve their clients with stability. The ability to collect information on the impact of the pandemic on clients supported by a well-established, long-term partnership with researchers at the University of Connecticut School of Medicine and Institute for Community Research facilitated their making data-driven decisions on how to best allocate limited resources. The lessons learned about organizational challenges and resilience may be applicable to future public health emergencies.
摘要:2019 年冠状病毒疾病大流行给许多社区组织持续提供服务和计划带来了诸多挑战。本文从康涅狄格州哈特福德地区为不同人群提供服务的三个小型社区组织的领导层的角度,介绍了他们在冠状病毒疾病 2019 年大流行的第一年里是如何受到影响和应对干扰的。社区组织对所服务人群的承诺以及在计划、人员配备和财务方面的灵活性被强调为其复原力的关键,使其能够稳定地为客户提供服务。在与康涅狄格大学医学院和社区研究所的研究人员建立的长期伙伴关系的支持下,收集大流行病对客户影响的信息的能力促进了他们在如何最佳分配有限资源方面做出以数据为导向的决策。在组织挑战和应变能力方面吸取的经验教训可能适用于未来的公共卫生突发事件。
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引用次数: 0
Development of an Online Training to Engage Home Visitors as Research Stakeholders 开发在线培训,让家访者成为研究利益相关者
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914128
Msw Lsw Cristina M.A. Barkowski, MA Erin A. Ward, MA Sara Barrera, MS Shu-En Shen, PhD S. Darius Tandon, Karla Avila, Kerry Caverly, Lazetta Farnham, Beth Green, Kathryn Harding, Jon Korfmacher, Maria Mejia
Abstract:Background: Home visiting (HV) has demonstrated positive impacts across family well-being domains. Home visitors receive training in HV model requirements as well as to develop knowledge and various skills. Despite growth in HV research, we are not aware of existing training or required competencies in research design, research methods, or dissemination of research findings for home visitors.Objectives: Via ongoing collaboration with an Advisory Board of key HV stakeholders, we developed a three-module online training that incorporated examples from HV research and practice to address the gap in research training for home visitors and to promote home visitors' engagement as research stakeholders.Methods: A convenience sample of home visitors (n = 176) was surveyed on research knowledge, research self-efficacy, and priority training topics, with results used to create a beta version of the training completed by six home visitors. Home visitor feedback on the beta version, coupled with Advisory Board recommendations, led to creation of the final online training. Forty home visitors viewed the final training and completed pre- and post-training surveys to assess changes in research knowledge and self-efficacy. Twelve home visitors also completed a semi-structured qualitative interview. Home visitors demonstrated improvements in research knowledge and self-efficacy and found the training easy to understand and useful.Conclusions: Guidance from stakeholders led to development of an online training that was effective in improving home visitors' research knowledge and self-efficacy. This training can be used by HV researchers and practitioners as a tool to promote home visitors' active engagement as stakeholders in research.
摘要:背景:家访(HV)对家庭幸福的各个领域都产生了积极影响。家访者接受有关 HV 模式要求的培训,并学习相关知识和各种技能。尽管家访研究有所增长,但我们并不了解现有的培训或要求家访者具备的研究设计、研究方法或传播研究结果的能力:通过与家访员主要利益相关者咨询委员会的持续合作,我们开发了一个包含三个模块的在线培训,其中纳入了家访员研究和实践中的实例,以弥补家访员研究培训方面的不足,并促进家访员作为研究利益相关者的参与:方法:对方便抽样的家访者(n = 176)进行了有关研究知识、研究自我效能感和优先培训主题的调查,调查结果用于创建由六名家访者完成的测试版培训。家访者对测试版的反馈意见,加上顾问委员会的建议,促成了最终在线培训的创建。40 名家庭访视者观看了最终培训,并完成了培训前后的调查,以评估研究知识和自我效能的变化。12 名家访员还完成了半结构化定性访谈。家庭访视者在研究知识和自我效能方面都有所提高,并认为培训易于理解且非常有用:在利益相关者的指导下,我们开发了一种在线培训,有效地提高了家庭访视者的研究知识和自我效能感。家庭访视研究人员和从业人员可将该培训作为促进家庭访视者作为利益相关者积极参与研究的工具。
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引用次数: 0
Evaluation of a Remote Youth Health Advocate Training Program During the COVID-19 Pandemic 对 COVID-19 大流行期间远程青年健康倡导者培训计划的评估
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914117
Sara W. Heinert, Shaveta Khosla, Nasseef Quasim, Jenni Schneiderman, Victoria Soliz, Olivia Finks, Terry Vanden Hoek
Abstract:Background: Since 2016, Changing Health through Advocacy & eMPloyment In Our NeighborhoodS (CHAMPIONS) has utilized in-person programming to engage high school students from underserved Chicago communities in health advocacy education and exposure to health professional careers.Objective: Describe outcomes after CHAMPIONS' shift from in-person to remote programming during the corona-virus disease 2019 (COVID-19) pandemic.Methods: The Summer 2020 remote program consisted of four main activities: 1) didactic public health curriculum, 2) phone calls to COVID-19 patients, 3) COVID-19 community health projects, and 4) health professional speaker series. Program evaluation consisted of pre-/post-program surveys and focus groups.Results: Participants were very satisfied with CHAMPIONS and reported increased healthy habits, self-efficacy, and knowledge. "First-hand experiences" increased equivalently or more for the remote compared to in-person cohorts.Conclusions: The remote CHAMPIONS program maximized positive effects for participants. Strengths and lessons learned may be used in future enrichment programs to improve accessibility and exposure for underserved students.
摘要:背景:自 2016 年以来,"通过宣传和 eMPloyment 在我们的社区改变健康"(CHAMPIONS)利用面对面计划让芝加哥服务不足社区的高中生参与健康宣传教育并接触健康专业职业:描述 CHAMPIONS 在 2019 年冠状病毒病(COVID-19)大流行期间从面对面计划转变为远程计划后取得的成果:2020年夏季远程项目包括四项主要活动:方法:2020 年夏季远程计划包括四项主要活动:1)公共卫生说教课程;2)致电 COVID-19 患者;3)COVID-19 社区卫生项目;4)卫生专业人士系列演讲。项目评估包括项目前后调查和焦点小组:结果:参与者对 CHAMPIONS 项目非常满意,并表示健康习惯、自我效能和知识都得到了提高。与亲临现场的学员相比,远程学员的 "亲身经历 "增加了同等或更多:结论:远程 CHAMPIONS 项目为参与者带来了最大的积极影响。结论:远程 "CHAMPIONS "项目最大限度地提高了参与者的积极效果,其优势和经验教训可用于未来的增益项目,以提高服务不足的学生的可及性和接触机会。
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引用次数: 0
Beyond the Manuscript: Mi Gente, Nuestra Salud: Protocol for a People's Movement for Health Ownership 超越手稿:Mi Gente, Nuestra Salud: 人民争取健康所有权运动议定书
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914126
Marilyn Tseng, M. Espinoza-Kulick, Irebid Gilbert, Karen Alonzo
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引用次数: 0
Building Bridges and Strengthening Bonds: An Exploratory Investigation Into Social Capital and Youth Programming 架设桥梁,加强联系:社会资本与青年计划的探索性研究
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914116
Brenda Mathias, Kiran Magee, Regina Jackson, Phillip W. Graham, Kristine Madsen
Abstract: Background: Social capital is increasingly recognized as a key component of adolescent development, providing important opportunities to grow and strengthen their social networks while increasing access to resources such as jobs and social support. Objectives: This study explored how youth-serving organizations (YSOs) across California address social capital development and assessed need for a social capital curriculum or measurement tools. Methods: The sample for this study was drawn from the 2019 IRS Business Master File from the National Center for Charitable Statistics Data Archive . We contacted a random sample of 169 California YSOs and implemented a 15-item survey to capture organizational perspectives on the importance of social capital, tools to measure this construct, and the use of programming related to social capital. Results: Among 41 YSOs completing the survey, only 24 (59%) had heard of the term "social capital," but when the term was described, 88% felt it was a highly important asset for youth. Thirty YSOs (73%) provided programming designed to promote social capital. Most respondents (68%) said being able to measure social capital would be very important and nearly all said they would be interested in adopting a tested social capital curriculum. Conclusions: Strong interest from YSOs for additional social capital tools highlights the need for additional work in this area. With support, YSOs can connect young people to institutions and influencers significantly outside of normal social circles, thus creating an increasingly sustainable and diverse range of resources available to youth as they navigate life milestones.
摘要:背景:越来越多的人认识到,社会资本是青少年发展的一个重要组成部分,它为青少年提供了发展和加强其社会网络的重要机会,同时增加了获得工作和社会支持等资源的途径。研究目的本研究探讨了加州青少年服务机构(YSO)如何处理社会资本发展问题,并评估了对社会资本课程或测量工具的需求。研究方法本研究的样本来自国家慈善统计中心数据档案中的 2019 年美国国税局商业主文件。我们随机抽取了 169 家加利福尼亚州青年服务组织,并实施了一项包含 15 个项目的调查,以了解各组织对社会资本重要性的看法、衡量这一概念的工具以及与社会资本相关的计划的使用情况。结果:在完成调查的 41 家青年服务组织中,只有 24 家(59%)听说过 "社会资本 "这个词,但在对这个词进行描述时,88% 的组织认为它是对青少年非常重要的资产。30 个青年服务组织(73%)提供了旨在促进社会资本的项目。大多数受访者(68%)表示,能够衡量社会资本非常重要,几乎所有受访者都表示,他们有兴趣采用经过测试的社会资本课程。结论:青年社会组织对更多社会资本工具的强烈兴趣凸显了在这一领域开展更多工作的必要性。在支持下,青年服务组织可以将年轻人与正常社交圈之外的机构和有影响力的人联系起来,从而在年轻人迈向人生里程碑的过程中,为他们提供越来越多可持续的、多样化的资源。
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引用次数: 0
The Hows of Resident-Driven Community Empowerment towards Health Equity 居民驱动的社区赋权如何实现健康平等
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914110
Mary V. Davis, Eric Ishiwata, Jen Sethi, Bruno Sobral
{"title":"The Hows of Resident-Driven Community Empowerment towards Health Equity","authors":"Mary V. Davis, Eric Ishiwata, Jen Sethi, Bruno Sobral","doi":"10.1353/cpr.2023.a914110","DOIUrl":"https://doi.org/10.1353/cpr.2023.a914110","url":null,"abstract":"","PeriodicalId":503736,"journal":{"name":"Progress in Community Health Partnerships: Research, Education, and Action","volume":"93 4-5","pages":"e3 - e3"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139195152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Engaging the Asian American Community to Address Cancer Burden: Experiences and Lessons Learned 让亚裔美国人社区参与解决癌症负担问题:经验与教训
Pub Date : 2023-12-01 DOI: 10.1353/cpr.2023.a914122
Kamisha Escoto, Cassandra S. Diep, Monalisa Chandra, Beverly J. Gor, Tuong-Vi Ho, Yunee Park, Alyssa B. Cahoy, Lynne Nguyen, Maria Reynolds, Andrea Caracostis, Lorna H. McNeill
Abstract:Background: Reducing cancer health disparities in Asian Americans requires orchestrated efforts and partnerships.Objectives: To describe the approach used by the University of Texas MD Anderson Cancer Center, HOPE Clinic, and Asian American organizations to understand and engage Houston's Asian American communities in cancer research, as well as to share lessons learned.Methods: The community-academic-medical partnership used community-based research principles to build the partnership, form the community advisory board, conduct a community needs assessment, and offer cancer prevention engagement and education.Results: Some lessons learned included balancing language needs with limited resources, incorporating more time and resources to conduct health research in an ethnically diverse community, and promoting awareness of research and its role in cancer prevention in Asian American communities.Conclusions: Community–academic–medical partnerships are promising ways to engage the community, draw on combined expertise, and create research and programs that are scientifically strong and meaningful to the community.
摘要:背景:减少亚裔美国人的癌症健康差异需要多方努力和合作:缩小亚裔美国人的癌症健康差距需要协调一致的努力和合作:描述得克萨斯大学MD安德森癌症中心、HOPE诊所和亚裔美国人组织为了解休斯顿亚裔美国人社区并使其参与癌症研究而采用的方法,并分享经验教训:方法:社区-学术-医疗合作伙伴关系采用基于社区的研究原则建立合作伙伴关系,成立社区咨询委员会,进行社区需求评估,并提供癌症预防参与和教育:取得的一些经验包括:在有限的资源中平衡语言需求,在种族多元化的社区中投入更多时间和资源开展健康研究,以及提高亚裔美国人社区对研究及其在癌症预防中的作用的认识:结论:社区-学术-医疗合作伙伴关系是吸引社区参与、利用综合专业知识、创建科学性强且对社区有意义的研究和计划的有效途径。
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引用次数: 0
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Progress in Community Health Partnerships: Research, Education, and Action
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