David Schieferdecker, Philippe Joly, Natalie Berger
Trust in governmental communication is critical to the successful containment of public health crises. However, in highly politicised crises, trust varies as a function of partisanship. This research report examines the relationship between political preferences and trust in governmental health communication during the Covid-19 pandemic in Germany. We pay particular attention to the interaction between (a) different dimensions of vulnerability to the virus and (b) distrust rooted in partisan preferences. Using original data from a representative, four-wave online survey conducted in Germany in 2020 and 2021, we found moderate to low levels of trust in information from the government. Whereas belonging to a vulnerable age group (65+) and fear of infection were significantly associated with trust, identification as a member of a risk group was not. Voters of the right-wing populist AfD were less likely to trust government information. Finally, the association between fear of infection and trust was stronger among AfD voters than among voters of established parties. We conclude that public health campaigns should account for the fact that politicised individuals may not trust communicators in prolonged crises. Messages targeting members of risk groups and partisans of populist parties should make health risks relatable to them as individuals.
{"title":"Trust in Governmental Health Communication on Covid-19","authors":"David Schieferdecker, Philippe Joly, Natalie Berger","doi":"10.47368/ejhc.2024.302","DOIUrl":"https://doi.org/10.47368/ejhc.2024.302","url":null,"abstract":"Trust in governmental communication is critical to the successful containment of public health crises. However, in highly politicised crises, trust varies as a function of partisanship. This research report examines the relationship between political preferences and trust in governmental health communication during the Covid-19 pandemic in Germany. We pay particular attention to the interaction between (a) different dimensions of vulnerability to the virus and (b) distrust rooted in partisan preferences. Using original data from a representative, four-wave online survey conducted in Germany in 2020 and 2021, we found moderate to low levels of trust in information from the government. Whereas belonging to a vulnerable age group (65+) and fear of infection were significantly associated with trust, identification as a member of a risk group was not. Voters of the right-wing populist AfD were less likely to trust government information. Finally, the association between fear of infection and trust was stronger among AfD voters than among voters of established parties. We conclude that public health campaigns should account for the fact that politicised individuals may not trust communicators in prolonged crises. Messages targeting members of risk groups and partisans of populist parties should make health risks relatable to them as individuals.","PeriodicalId":504966,"journal":{"name":"European Journal of Health Communication","volume":"37 32","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141644928","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Liselotte M. van Dijk, Linda Van Eikenhorst, M. Triemstra, M. Huisman, Cordula Wagner
Deep vein thrombosis (DVT) and pulmonary embolism (PE) are prevalent diseases associated with high morbidity and mortality. This study aimed to explore the experiences and needs of patients and physicians within the care pathway of DVT and PE. Ensuring care pathways match patients’ and physicians’ needs, could positively impact therapy adherence and patient satisfaction. Participants were 34 patients and 18 physicians. The qualitative focus groups occurred face-to-face and on an online discussion forum, utilising a predefined topic list. Focus group transcripts were analysed through deductive thematic analysis. Patients and physicians shared similar needs and experiences with information provision and shared decision making. Differences emerged regarding the adequacy of information provided, follow-up and monitoring of residual complaints, and personalised care. Generally, patients expressed higher levels of dissatisfaction compared to physicians. Our findings reveal a disparity between the perceived quality of care by physicians and patients, with patients expressing needs that diverge from physicians' assumptions. Patients need psychological support following DVT and PE, whereas physicians focus on physical recovery. Treatment intensity could be adjusted to align with patients' preferences. These findings highlight the potential for optimising care for patients and ensuring better outcomes in the management of DVT and PE.
深静脉血栓（DVT）和肺栓塞（PE）是与高发病率和高死亡率相关的常见疾病。本研究旨在探讨患者和医生在深静脉血栓和肺栓塞护理路径中的经验和需求。确保护理路径符合患者和医生的需求，将对坚持治疗和患者满意度产生积极影响。参与者包括 34 名患者和 18 名医生。定性焦点小组采用面对面的方式，并利用预先确定的主题列表在网上论坛进行讨论。我们通过演绎主题分析法对焦点小组记录进行了分析。患者和医生在信息提供和共同决策方面有着相似的需求和经历。在所提供信息的充分性、残余投诉的跟踪和监测以及个性化护理方面出现了差异。一般来说，患者的不满意度高于医生。我们的研究结果表明，医生和患者对护理质量的感知存在差异，患者表达的需求与医生的假设不同。深静脉血栓和 PE 患者需要心理支持，而医生则关注身体恢复。治疗强度可根据患者的偏好进行调整。这些发现凸显了优化患者护理和确保深静脉血栓形成和 PE 治疗取得更好效果的潜力。
{"title":"Care Pathway of Venous Thromboembolism (VTE)","authors":"Liselotte M. van Dijk, Linda Van Eikenhorst, M. Triemstra, M. Huisman, Cordula Wagner","doi":"10.47368/ejhc.2024.301","DOIUrl":"https://doi.org/10.47368/ejhc.2024.301","url":null,"abstract":"Deep vein thrombosis (DVT) and pulmonary embolism (PE) are prevalent diseases associated with high morbidity and mortality. This study aimed to explore the experiences and needs of patients and physicians within the care pathway of DVT and PE. Ensuring care pathways match patients’ and physicians’ needs, could positively impact therapy adherence and patient satisfaction. Participants were 34 patients and 18 physicians. The qualitative focus groups occurred face-to-face and on an online discussion forum, utilising a predefined topic list. Focus group transcripts were analysed through deductive thematic analysis. Patients and physicians shared similar needs and experiences with information provision and shared decision making. Differences emerged regarding the adequacy of information provided, follow-up and monitoring of residual complaints, and personalised care. Generally, patients expressed higher levels of dissatisfaction compared to physicians. Our findings reveal a disparity between the perceived quality of care by physicians and patients, with patients expressing needs that diverge from physicians' assumptions. Patients need psychological support following DVT and PE, whereas physicians focus on physical recovery. Treatment intensity could be adjusted to align with patients' preferences. These findings highlight the potential for optimising care for patients and ensuring better outcomes in the management of DVT and PE.","PeriodicalId":504966,"journal":{"name":"European Journal of Health Communication","volume":"33 30","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141659421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Patients in Western countries increasingly experience a lack of continuity of care. The aim of this article is to understand how patients with one or more chronic conditions handle and prevent experiences of discontinuity of care by engaging in collaborative – and most often systemically invisible – patient work in peer-led online communities (PLOCs). The article’s analysis is based on 20 interviews with users of two Danish PLOCs and finds that care continuity is primarily addressed in its absence; that is when it has been lacking in systemic experiences, or when discontinuity is anticipated or feared in future encounters. The analysis shows that the collaborative patient work done in online communities can be understood as patients’ attempts to mend discontinuities produced by health institutions. Three dominant mending practices are (1) to interpret or vent systemic information to increase collective understanding and decrease frustration, (2) to prepare for encounters with the system to enable them to be more effective, and (3) to push the system to improve decisions and services linked to treatment and care. Considering these findings, the article concludes that there is a need to acknowledge the collaborative work of patients in PLOCs as an informal contributor to continuity of care.
{"title":"Online Patient Work","authors":"C. Stage, A. Karlsson, L. Ledderer","doi":"10.47368/ejhc.2024.203","DOIUrl":"https://doi.org/10.47368/ejhc.2024.203","url":null,"abstract":"Patients in Western countries increasingly experience a lack of continuity of care. The aim of this article is to understand how patients with one or more chronic conditions handle and prevent experiences of discontinuity of care by engaging in collaborative – and most often systemically invisible – patient work in peer-led online communities (PLOCs). The article’s analysis is based on 20 interviews with users of two Danish PLOCs and finds that care continuity is primarily addressed in its absence; that is when it has been lacking in systemic experiences, or when discontinuity is anticipated or feared in future encounters. The analysis shows that the collaborative patient work done in online communities can be understood as patients’ attempts to mend discontinuities produced by health institutions. Three dominant mending practices are (1) to interpret or vent systemic information to increase collective understanding and decrease frustration, (2) to prepare for encounters with the system to enable them to be more effective, and (3) to push the system to improve decisions and services linked to treatment and care. Considering these findings, the article concludes that there is a need to acknowledge the collaborative work of patients in PLOCs as an informal contributor to continuity of care.","PeriodicalId":504966,"journal":{"name":"European Journal of Health Communication","volume":"18 11","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140226095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
During the Covid-19 pandemic, public sector organizations have rapidly increased their use of social media platforms to directly communicate with citizens regarding various aspects of the crisis. Given the critical importance of epidemiological data during this period, this study conducts a quantitative analysis of the official Facebook channels of the 20 Italian regions in the initial emergency phase to explore the role of data communication. It employs computational methods for automated classification of the prevailing types of data communication on Facebook posts and a random-intercept negative binomial model to analyze their different impact on engagement. The findings reveal that the most common types of posts incorporate data within the message, either alone or accompanied by a link to the official website. Infographics are also commonly used. Furthermore, the most comprehensive posts, featuring data, a link to a website, and an infographic, had the highest positive impact on engagement. Overall, the study highlights a significant diversity in the way of communicating epidemiologic data, potentially leading to disparities among Italian citizens in receiving information from institutions about the spread of the virus. This poses substantial challenges for public health communication directed at citizens and the relationships between the national and local levels.
{"title":"Challenges in Communicating Public Health Data","authors":"Gea Ducci, A. Lovari, Nicola Righetti","doi":"10.47368/ejhc.2024.202","DOIUrl":"https://doi.org/10.47368/ejhc.2024.202","url":null,"abstract":"During the Covid-19 pandemic, public sector organizations have rapidly increased their use of social media platforms to directly communicate with citizens regarding various aspects of the crisis. Given the critical importance of epidemiological data during this period, this study conducts a quantitative analysis of the official Facebook channels of the 20 Italian regions in the initial emergency phase to explore the role of data communication. It employs computational methods for automated classification of the prevailing types of data communication on Facebook posts and a random-intercept negative binomial model to analyze their different impact on engagement. The findings reveal that the most common types of posts incorporate data within the message, either alone or accompanied by a link to the official website. Infographics are also commonly used. Furthermore, the most comprehensive posts, featuring data, a link to a website, and an infographic, had the highest positive impact on engagement. Overall, the study highlights a significant diversity in the way of communicating epidemiologic data, potentially leading to disparities among Italian citizens in receiving information from institutions about the spread of the virus. This poses substantial challenges for public health communication directed at citizens and the relationships between the national and local levels.","PeriodicalId":504966,"journal":{"name":"European Journal of Health Communication","volume":"36 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140245950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Patients require adequate, high-quality health information, but their most trusted source, physicians, have scarce time resources. A physician-provided digital health information service (DHIS) offers new solutions to this challenge. Guided by the extended unified theory of acceptance and use of technology (UTAUT2), this study examined patients’ intentions to use such a service. The model was supplemented by informational social norms and eHealth literacy. An online survey with a stratified German sample (N = 1,000) was conducted. In a fictitious scenario, the DHIS was described as a web-based platform for tailored health information. Data were analysed using a multiple linear regression analysis and a mediation analysis. The regression model explained 57.8% of the variance of usage intentions. The factors performance expectancy, effort expectancy, hedonic motivation, time value, and habit were positively associated, and facilitating conditions were not associated with usage intentions. eHealth literacy showed a weak but significant association with usage intentions, but social norms were not linked to it. The effect of eHealth literacy was mediated by effort expectancy and habit. Our results support the need for digital methods of information provision. Communication about DHIS should particularly address its personal value for patients’ knowledge, decision-making, and health status.
{"title":"Patients’ Intentions to Use a Physician-Provided Digital Health Information Service","authors":"Paula Memenga, Elena Link","doi":"10.47368/ejhc.2024.201","DOIUrl":"https://doi.org/10.47368/ejhc.2024.201","url":null,"abstract":"Patients require adequate, high-quality health information, but their most trusted source, physicians, have scarce time resources. A physician-provided digital health information service (DHIS) offers new solutions to this challenge. Guided by the extended unified theory of acceptance and use of technology (UTAUT2), this study examined patients’ intentions to use such a service. The model was supplemented by informational social norms and eHealth literacy. An online survey with a stratified German sample (N = 1,000) was conducted. In a fictitious scenario, the DHIS was described as a web-based platform for tailored health information. Data were analysed using a multiple linear regression analysis and a mediation analysis. The regression model explained 57.8% of the variance of usage intentions. The factors performance expectancy, effort expectancy, hedonic motivation, time value, and habit were positively associated, and facilitating conditions were not associated with usage intentions. eHealth literacy showed a weak but significant association with usage intentions, but social norms were not linked to it. The effect of eHealth literacy was mediated by effort expectancy and habit. Our results support the need for digital methods of information provision. Communication about DHIS should particularly address its personal value for patients’ knowledge, decision-making, and health status.","PeriodicalId":504966,"journal":{"name":"European Journal of Health Communication","volume":"119 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139858795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Patients require adequate, high-quality health information, but their most trusted source, physicians, have scarce time resources. A physician-provided digital health information service (DHIS) offers new solutions to this challenge. Guided by the extended unified theory of acceptance and use of technology (UTAUT2), this study examined patients’ intentions to use such a service. The model was supplemented by informational social norms and eHealth literacy. An online survey with a stratified German sample (N = 1,000) was conducted. In a fictitious scenario, the DHIS was described as a web-based platform for tailored health information. Data were analysed using a multiple linear regression analysis and a mediation analysis. The regression model explained 57.8% of the variance of usage intentions. The factors performance expectancy, effort expectancy, hedonic motivation, time value, and habit were positively associated, and facilitating conditions were not associated with usage intentions. eHealth literacy showed a weak but significant association with usage intentions, but social norms were not linked to it. The effect of eHealth literacy was mediated by effort expectancy and habit. Our results support the need for digital methods of information provision. Communication about DHIS should particularly address its personal value for patients’ knowledge, decision-making, and health status.
{"title":"Patients’ Intentions to Use a Physician-Provided Digital Health Information Service","authors":"Paula Memenga, Elena Link","doi":"10.47368/ejhc.2024.201","DOIUrl":"https://doi.org/10.47368/ejhc.2024.201","url":null,"abstract":"Patients require adequate, high-quality health information, but their most trusted source, physicians, have scarce time resources. A physician-provided digital health information service (DHIS) offers new solutions to this challenge. Guided by the extended unified theory of acceptance and use of technology (UTAUT2), this study examined patients’ intentions to use such a service. The model was supplemented by informational social norms and eHealth literacy. An online survey with a stratified German sample (N = 1,000) was conducted. In a fictitious scenario, the DHIS was described as a web-based platform for tailored health information. Data were analysed using a multiple linear regression analysis and a mediation analysis. The regression model explained 57.8% of the variance of usage intentions. The factors performance expectancy, effort expectancy, hedonic motivation, time value, and habit were positively associated, and facilitating conditions were not associated with usage intentions. eHealth literacy showed a weak but significant association with usage intentions, but social norms were not linked to it. The effect of eHealth literacy was mediated by effort expectancy and habit. Our results support the need for digital methods of information provision. Communication about DHIS should particularly address its personal value for patients’ knowledge, decision-making, and health status.","PeriodicalId":504966,"journal":{"name":"European Journal of Health Communication","volume":"7 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139799011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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