Pub Date : 2021-01-26DOI: 10.1177/1471301220985401
V. Shepherd
{"title":"Consent support tool: Including people with communication disorders in health research studies","authors":"V. Shepherd","doi":"10.1177/1471301220985401","DOIUrl":"https://doi.org/10.1177/1471301220985401","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"1855 - 1856"},"PeriodicalIF":2.4,"publicationDate":"2021-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301220985401","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45481493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.1177/1471301219862439
Jessica A Young, C. Lind, J. Orange
Introduction The current qualitative systematic review identified and examined critically the literature on how persons with dementia experience transitions to long-term care. Results are intended to help develop guidelines for future care and research. Method A search was conducted of OvidSP, SCOPUS, Web of Science, ProQuest, PsycINFO, CINAHL, AgeLine and Informit databases. In total, 4705 articles were reviewed (published 1954–2018). A textual narrative approach was used to synthesise the findings of the included articles. Results Seven articles met inclusion criteria (five using data collected from interviews with persons with dementia and two using reports from a proxy). Overall, the findings showed that transition to long-term care possesses varied meanings for persons with dementia, is often not the decision of the persons with dementia, and is a process throughout which social connections remain important. Discussion Accounts of the experiences of persons with dementia regarding transitions from community to long-term care show that they and their families should be supported: with respect to their individual contexts, to share the positives and negatives of the transition experiences, to make decisions together, and to maintain old and establish new social connections.
引言目前的定性系统综述对痴呆症患者如何过渡到长期护理的文献进行了批判性的鉴定和审查。研究结果旨在帮助制定未来护理和研究的指导方针。方法检索OvidSP、SCOPUS、Web of Science、ProQuest、PsycINFO、CINAHL、AgeLine和Informit数据库。总共审查了4705篇文章（发表于1954年至2018年）。采用文本叙述法综合收录文章的研究结果。结果7篇文章符合入选标准（5篇使用痴呆症患者访谈收集的数据，2篇使用代理报告）。总体而言，研究结果表明，向长期护理的过渡对痴呆症患者具有不同的意义，通常不是痴呆症患者的决定，而且在整个过程中，社会关系仍然很重要。讨论对痴呆症患者从社区向长期护理过渡的经历的描述表明，他们和他们的家人应该得到支持：就他们的个人背景而言，分享过渡经历的积极和消极因素，共同做出决定，并保持旧的和建立新的社会联系。
{"title":"A qualitative systematic review of experiences of persons with dementia regarding transition to long-term care","authors":"Jessica A Young, C. Lind, J. Orange","doi":"10.1177/1471301219862439","DOIUrl":"https://doi.org/10.1177/1471301219862439","url":null,"abstract":"Introduction The current qualitative systematic review identified and examined critically the literature on how persons with dementia experience transitions to long-term care. Results are intended to help develop guidelines for future care and research. Method A search was conducted of OvidSP, SCOPUS, Web of Science, ProQuest, PsycINFO, CINAHL, AgeLine and Informit databases. In total, 4705 articles were reviewed (published 1954–2018). A textual narrative approach was used to synthesise the findings of the included articles. Results Seven articles met inclusion criteria (five using data collected from interviews with persons with dementia and two using reports from a proxy). Overall, the findings showed that transition to long-term care possesses varied meanings for persons with dementia, is often not the decision of the persons with dementia, and is a process throughout which social connections remain important. Discussion Accounts of the experiences of persons with dementia regarding transitions from community to long-term care show that they and their families should be supported: with respect to their individual contexts, to share the positives and negatives of the transition experiences, to make decisions together, and to maintain old and establish new social connections.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"5 - 27"},"PeriodicalIF":2.4,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219862439","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49605071","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-12-08DOI: 10.1177/1471301220975955
P. Roach
{"title":"David Truswell, Supporting people living with dementia in Black, Asian and minority ethnic communities","authors":"P. Roach","doi":"10.1177/1471301220975955","DOIUrl":"https://doi.org/10.1177/1471301220975955","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"1496 - 1497"},"PeriodicalIF":2.4,"publicationDate":"2020-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301220975955","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46617526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-23DOI: 10.1177/1471301220976448
E. Wolverson
{"title":"Sandra Evans, Jane Garner and Rachel Darnley-Smith, Psychodynamic approaches to the experience of dementia","authors":"E. Wolverson","doi":"10.1177/1471301220976448","DOIUrl":"https://doi.org/10.1177/1471301220976448","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"20 1","pages":"1187 - 1188"},"PeriodicalIF":2.4,"publicationDate":"2020-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301220976448","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45169866","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-01DOI: 10.1177/1471301219872587
{"title":"Corrigendum to “An acceptance, role transition, and couple dynamics-based program for caregivers: A qualitative study of the experience of spouses of persons with young-onset dementia”","authors":"","doi":"10.1177/1471301219872587","DOIUrl":"https://doi.org/10.1177/1471301219872587","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"19 1","pages":"NP1 - NP1"},"PeriodicalIF":2.4,"publicationDate":"2020-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301219872587","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43411188","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-07-15DOI: 10.1177/1471301220944815
J. Keady
{"title":"Ann-Charlotte Nedlund, Ruth Bartlett and Charlotte L. Clarke, Everyday citizenship and people with dementia","authors":"J. Keady","doi":"10.1177/1471301220944815","DOIUrl":"https://doi.org/10.1177/1471301220944815","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"19 1","pages":"2128 - 2129"},"PeriodicalIF":2.4,"publicationDate":"2020-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1471301220944815","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46385470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Post-Diagnostic Support needs of Family Members and Friends who Provide Care and Support","authors":"A. Innes, L. Calvert, Gail Bowker","doi":"10.4324/9781315709000-7","DOIUrl":"https://doi.org/10.4324/9781315709000-7","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2020-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49034653","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-06-15DOI: 10.4324/9781315709000-12
A. Innes, L. Calvert, Gail Bowker
{"title":"Conclusion","authors":"A. Innes, L. Calvert, Gail Bowker","doi":"10.4324/9781315709000-12","DOIUrl":"https://doi.org/10.4324/9781315709000-12","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":"1 1","pages":""},"PeriodicalIF":2.4,"publicationDate":"2020-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41830270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Stanley I. Rapoport, MD, is Chief of the Laboratory of Neurosciences, National Institute on Aging, Bethesda, Maryland. Synopsis Using standardized history, physical and neurological examinations, laboratory evaluation, and tests of cognitive performance, mood, and functional status, 155 patients admitted consecutively to an outpatient dementia clinic were diagnosed as "demented" or "nondemented." Diagnostic groups were: primary degenerative dementia (60 percent); multi-infarct dementia (7.1 percent); mixed degenerativevascular dementia (12.3 percent); miscellaneous dementias (11.6 percent); referral group with normal test scores (9 percent). The Hachinski Ischemic Score distinguished (p < 0.05) the multi-infarct and mixed degenerative-vascular dementia groups from the nondemented subjects. The Mini-Mental State Examination Score, which indicated that the demented patients were, on an average, moderately demented (mean score 11 to 21), was highly correlated (r = 0.91) with the Blessed Memory, Information and Concentration Test. Both equally discriminated the demented groups from the nondemented group. Functional impairment, as measured by the Katz Index ofActivities ofDaily Living, was moderate in the demented patients. For the primary progressive dementia patients, severity ofdementia was correlated with duration, functional impairment, and depressive symptoms.
{"title":"Diagnosis of Dementia","authors":"A. Innes, L. Calvert, Gail Bowker","doi":"10.4324/9781315709000-4","DOIUrl":"https://doi.org/10.4324/9781315709000-4","url":null,"abstract":"Stanley I. Rapoport, MD, is Chief of the Laboratory of Neurosciences, National Institute on Aging, Bethesda, Maryland. Synopsis Using standardized history, physical and neurological examinations, laboratory evaluation, and tests of cognitive performance, mood, and functional status, 155 patients admitted consecutively to an outpatient dementia clinic were diagnosed as \"demented\" or \"nondemented.\" Diagnostic groups were: primary degenerative dementia (60 percent); multi-infarct dementia (7.1 percent); mixed degenerativevascular dementia (12.3 percent); miscellaneous dementias (11.6 percent); referral group with normal test scores (9 percent). The Hachinski Ischemic Score distinguished (p < 0.05) the multi-infarct and mixed degenerative-vascular dementia groups from the nondemented subjects. The Mini-Mental State Examination Score, which indicated that the demented patients were, on an average, moderately demented (mean score 11 to 21), was highly correlated (r = 0.91) with the Blessed Memory, Information and Concentration Test. Both equally discriminated the demented groups from the nondemented group. Functional impairment, as measured by the Katz Index ofActivities ofDaily Living, was moderate in the demented patients. For the primary progressive dementia patients, severity ofdementia was correlated with duration, functional impairment, and depressive symptoms.","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2020-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45408505","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-06-15DOI: 10.4324/9781315709000-10
A. Innes, L. Calvert, Gail Bowker
{"title":"Care need Transitions in the Journey with Dementia","authors":"A. Innes, L. Calvert, Gail Bowker","doi":"10.4324/9781315709000-10","DOIUrl":"https://doi.org/10.4324/9781315709000-10","url":null,"abstract":"","PeriodicalId":51413,"journal":{"name":"Dementia-International Journal of Social Research and Practice","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2020-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41889210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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