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Practice variation in induction of labour: women's role in the decision-making process.
Pub Date : 2025-02-19 DOI: 10.1007/s43999-025-00059-z
Anne E M Brabers, Tamar M Van Haaren-Ten Haken, Judit K J Keulen, Pien M Offerhaus, Marianne J Nieuwenhuijze, Judith D de Jong

In the Netherlands, percentages of induction of labour (IOL) range from 14.3 to 41.1% in regional maternity care networks (MCNs). In this study, we focus on women's contribution in explaining this variation in range. We examine if different factors at the level of the individual woman (micro) and the level of the woman's social context (meso) are related to decision-making on IOL, and the variation. We used an online questionnaire inviting women counselled for IOL (n = 180, response rate 40%) from six different MCNs, three with a high and three with a low percentage of IOL. Factors included are, for example, attitude towards birth, reason for IOL, and social norms. Descriptive statistics and regression analyses were performed to examine the relation between the included factors and the intended decision on IOL. Our results show that only the factor women's attitude towards birth is related to the intended decision on IOL. The more women believe that birth is a medical process, the higher the odds that the intended decision is to induce labour. This may contribute to variation in IOL between individual women, but appears to contribute less to variation in IOL between MCNs. This is because the percentages of women with an intended decision for IOL do not differ within MCNs with a low or high percentage of IOL. A next step in explaining practice variation, is to examine mechanisms at the level of the individual healthcare provider (micro) and the MCN (meso).

在荷兰,地区孕产妇护理网络(MCN)中引产(IOL)的比例从 14.3%到 41.1%不等。在本研究中,我们将重点关注妇女在解释这一范围差异方面的贡献。我们研究了妇女个人层面(微观)和妇女社会环境层面(中观)的不同因素是否与 IOL 的决策和差异有关。我们使用了一份在线问卷,邀请来自六个不同 MCN 的接受过人工晶体咨询的妇女(n = 180,回复率为 40%)参与调查,其中三个 MCN 的人工晶体比例较高,三个较低。调查因素包括对生育的态度、人工晶体植入的原因和社会规范等。我们对这些因素进行了描述性统计和回归分析,以研究它们与 IOL 意向决定之间的关系。结果表明,只有妇女对生育的态度这一因素与人工晶体植入的预期决定有关。越多的妇女认为分娩是一个医疗过程,那么做出引产决定的几率就越高。这可能会导致个别妇女之间的 IOL 差异,但似乎对产妇和新生儿网络之间的 IOL 差异影响较小。这是因为在 IOL 百分比较低或较高的母婴网络中,打算决定 IOL 的产妇百分比并无差异。解释实践差异的下一步,是研究个体医疗服务提供者(微观)和 MCN(中观)层面的机制。
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引用次数: 0
The instrumental value of advance directives: lesson learned from the COVID-19 pandemic for policymaking.
Pub Date : 2025-02-05 DOI: 10.1007/s43999-025-00060-6
Elisabeth Stock, Christian H Nickel, Bernice S Elger, Andrea Martani

Open conversations between patients and healthcare professionals (HCP) are required to evaluate which treatments are reasonable for the individual case, especially towards the end of life. Advance Care Planning (ACP), which often results in drafting an Advance Directive (AD), is a useful tool to help with decisions in these circumstances, but the rate of AD completion remains low. During the COVID-19 pandemic, ACP and AD gained popularity due to the alleged advantage that they could facilitate resource allocation, to the benefit of public health. In this article, which presents a theoretical reflection grounded in scientific evidence, we underline an even stronger ethical argument to support the implementation of AD in end-of-life care (eol-C) i.e. the instrumental value at the individual level. We show, with particular reference to lessons learned from the COVID-19 pandemic, that AD are instrumentally valuable in that they: (1) allow to thematise death; (2) ensure that overtreatment is avoided; (3) enable to better respect the wish of people to die at their preferred place; (4) help revive the "lost skill" of prognostication. We thus conclude that these arguments speak for promoting the territorially uniform implementation and accessibility of high-quality AD in care.

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引用次数: 0
Individual- and community-level correlates of intermittent preventive treatment of malaria in pregnancy in Ghana: further analysis of the 2019 Malaria Indicator Survey. 加纳妊娠期疟疾间歇预防治疗的个人和社区层面相关因素:对2019年疟疾指标调查的进一步分析
Pub Date : 2024-12-23 DOI: 10.1007/s43999-024-00058-6
Jacob Owusu Sarfo, Patience Fakornam Doe, Dickson Okoree Mireku

Background: Ghana adopted the policy on Intermittent Preventive Treatment of malaria in pregnancy using Sulfadoxine-Pyrimethamine (IPTp-SP) in 2004. Notwithstanding the government's and other stakeholders' efforts in Ghana, optimal uptake (three or more doses of IPTp-SP) has slightly declined since 2016. The study examined the individual and community-level correlates of pregnant women who take optimal or none/partial doses (less than three doses) of IPTp-SP using the Ghana Malaria Indicator Survey (GMIS) 2019.

Methods: We conducted a secondary analysis of the GMIS 2019 data. Our analytical sample included 1,151 women aged 15-49 with their most recent birth in the last two years before the survey.

Results: The overall uptake among participants was approximately 8.2% for none, 30.15% for 1-2 (partial), and 61.6% for 3 or more (optimal) doses of IPTp-SP. The level of uptake differs depending on the individual rather than community-level characteristics of pregnant women. Individual-level demographic factors- residents in Upper East (OR 3.0, 95% CI; 1.2-7.3) and Upper West (OR 5.3, 95% CI; 1.9-14.7) -and health-related factors-the four or more antenatal (ANC) visits (OR 3.3, 95% CI; 1.8-6.0) were associated with optimal IPTp-SP uptake among pregnant women in Ghana. However, late scheduling of the first ANC visit in the second trimester (OR 0.7, 95% CI; 0.5-1.0)- predicted less IPTp-SP uptake.

Conclusions: Few regions (Upper East and West) are doing better than the capital, Greater Accra Region, in terms of optimal uptake. Also, early scheduling of ANC in the first trimester and increased ANC attendance are key for increased uptake. There is a need for policy, interventions, and research on malaria prevention in pregnancy to improve the decline in uptake.

背景:加纳于2004年通过了使用磺胺多辛-乙胺嘧啶(IPTp-SP)间歇预防性治疗妊娠期疟疾的政策。尽管加纳政府和其他利益相关者做出了努力,但自2016年以来,IPTp-SP的最佳吸收量(三剂或更多剂)略有下降。该研究使用2019年加纳疟疾指标调查(GMIS)检查了服用最佳剂量或无/部分剂量(少于三剂)IPTp-SP的孕妇的个人和社区层面的相关性。方法:我们对GMIS 2019数据进行了二次分析。我们的分析样本包括1151名年龄在15-49岁之间的女性,她们最近一次分娩是在调查前的最后两年。结果:无IPTp-SP者的总体摄取约为8.2%,1-2剂(部分)者为30.15%,3剂或更多(最佳)剂量者为61.6%。摄取水平取决于孕妇的个人而非社区特征。个人层面的人口因素——上东区居民(OR 3.0, 95% CI;1.2-7.3)和Upper West (OR 5.3, 95% CI;1.9-14.7)和健康相关因素——四次或以上产前检查(ANC) (or 3.3, 95% CI;1.8-6.0)与加纳孕妇的最佳IPTp-SP摄取相关。然而,在妊娠中期延迟安排首次产前检查(OR 0.7, 95% CI;0.5-1.0)-预测IPTp-SP摄取较少。结论:在最佳吸收方面,很少有地区(上东部和西部)比首都大阿克拉地区做得更好。此外,在妊娠头三个月尽早安排ANC和增加ANC出勤率是提高吸收率的关键。有必要制定政策、干预措施和研究孕期疟疾预防,以改善发病率下降的情况。
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引用次数: 0
What next for the Australian Atlas of Healthcare Variation series? Focusing the system on appropriate and sustainable health care. 澳大利亚医疗保健变异地图集系列的下一步是什么?将系统重点放在适当和可持续的卫生保健上。
Pub Date : 2024-12-19 DOI: 10.1007/s43999-024-00056-8
Gillian Giles, Heather Buchan, Carolyn Hullick, Marge Overs, Anne Duggan

Mapping, identifying and reducing unwarranted healthcare variation is integral to improving the appropriateness of care - minimising wasteful or unnecessary care and redirecting care to those who could benefit most (J Eval Clin Pract 26: 687-696, 2020). The Australian Atlas of Healthcare Variation series has examined variation in healthcare use since 2015. The findings reported in the Atlas series have led to important system changes. National safety and quality standards, mandatory for all hospitals and day procedure services, now require health service organisations to monitor and investigate variation and address unwarranted variation. Clinical care standards have been developed for clinical conditions in which the Atlas series has identified considerable variation. But the overuse of low-value care and underuse of high-value care persists, as suggested by the marked variation the Atlas series continues to uncover. We must now develop an approach that systematically links reporting of data and investigation of variation with a suite of responses to address unwarranted variation. This paper focuses on efforts to reduce low value-care, so that resources can be redirected to supporting high-value care as well as reducing waste and cutting carbon emissions from health care (Med J Aust 216: 67-68, 2022).

测绘、识别和减少不必要的医疗保健差异对于改善护理的适当性是不可或缺的——最大限度地减少浪费或不必要的护理,并将护理重新定向到最可能受益的人(J评估临床实践26:687-696,2020)。自2015年以来,澳大利亚医疗保健变化地图集系列研究了医疗保健使用的变化。阿特拉斯系列报告的发现导致了重要的系统变化。国家安全和质量标准对所有医院和日间手术服务都是强制性的,现在要求卫生服务机构监控和调查变化,并解决不合理的变化。针对临床情况制定了临床护理标准,其中Atlas系列已确定了相当大的差异。但是,正如Atlas系列继续揭示的显著差异所表明的那样,低价值护理的过度使用和高价值护理的不足仍然存在。我们现在必须开发一种方法,系统地将数据报告和变异调查与一套应对措施联系起来,以解决无根据的变异。本文侧重于减少低价值护理的努力,以便资源可以重新定向到支持高价值护理以及减少浪费和减少医疗保健的碳排放(医学杂志216:67-68,2022)。
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引用次数: 0
Socioeconomic and geographic variation in adjuvant chemotherapy among elderly patients with stage III colon cancer in Norway - a national register-based cohort study. 挪威 III 期结肠癌老年患者辅助化疗中的社会经济和地域差异--一项基于国家登记的队列研究。
Pub Date : 2024-12-17 DOI: 10.1007/s43999-024-00057-7
Elin Marthinussen Gustavsen, Stig Norderval, Liv Marit Dørum, Aina Balto, Ragnhild Heimdal, Barthold Vonen, Eva Stensland, Ellinor Haukland, Beate Hauglann

Background: About half of the patients diagnosed with colon cancer are 70 years or older. Standard treatment for stage III colon cancer is major surgical resection followed by adjuvant chemotherapy (ACT). Norwegian guidelines recommend initiation of ACT within 6 weeks after resection.

Objective: This study investigated socioeconomic and geographic variation in the recommended provision of ACT to elderly patients with stage III colon cancer in Norway.

Methods: This population-based retrospective cohort study included patients aged 70 years or older diagnosed with stage III colon cancer between 2011 and 2021 who underwent major surgical resection. Individual data were obtained from national registries. Multilevel logistic regression analysis was used to model variation in provision of ACT.

Results: Of 4 501 included patients, 603 (13%) and 1 182 (26%) received ACT within 6 and 8 weeks after resection, respectively. The provision of ACT decreased with increasing age and frailty. Odds of ACT within 6 weeks decreased for patients with low socioeconomic status (SES) compared to high SES (odds ratio (OR) 0.67 (95% confidence interval (CI) 0.50-0.91)), and decreased for patients living alone compared to those living with a cohabitant (OR 0.72 (95% CI 0.58-0.91)). Geographic variation was found between hospital referral areas (OR 0.41-2.58).

Conclusions: Our study found that ACT provision to elderly stage III colon cancer patients is associated with SES and geography, indicating variation in guidelines adherence. Further research is needed to explore the impact of ACT timing among elderly patients with stage III colon cancer in Norway.

背景:在确诊的结肠癌患者中,约有一半是 70 岁或以上的老人。III 期结肠癌的标准治疗方法是大手术切除,然后进行辅助化疗(ACT)。挪威指南建议在切除术后 6 周内开始辅助化疗:本研究调查了挪威建议为 III 期结肠癌老年患者提供 ACT 的社会经济和地理差异:这项基于人群的回顾性队列研究纳入了 2011 年至 2021 年期间确诊为 III 期结肠癌并接受大手术切除的 70 岁或以上患者。个人数据来自国家登记处。研究采用多层次逻辑回归分析来模拟 ACT 提供情况的变化:在纳入的 4 501 名患者中,分别有 603 人(13%)和 1 182 人(26%)在切除术后 6 周和 8 周内接受了 ACT 治疗。随着年龄和体弱程度的增加,提供 ACT 的比例有所下降。与社会经济地位高的患者相比,社会经济地位低的患者在 6 周内接受 ACT 的几率降低(几率比(OR)0.67(95% 置信区间(CI)0.50-0.91)),与同居患者相比,独居患者在 6 周内接受 ACT 的几率降低(几率比(OR)0.72(95% 置信区间(CI)0.58-0.91))。医院转诊地区之间存在地域差异(OR 0.41-2.58):我们的研究发现,向老年 III 期结肠癌患者提供 ACT 与社会经济地位和地理位置有关,这表明在遵守指南方面存在差异。需要进一步开展研究,探讨ACT时机对挪威老年III期结肠癌患者的影响。
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引用次数: 0
Socioeconomic factors influencing rural-urban ambulance response time disparities in Connecticut. 影响康涅狄格州城乡救护车反应时间差异的社会经济因素。
Pub Date : 2024-12-04 DOI: 10.1007/s43999-024-00055-9
Eashwar Krishna

Across the U.S, it is a documented fact that rural areas have longer ambulance response times and tend to have lower median income. The objective of this study was to test if the rural-urban emergency medical service (EMS) response time disparity was related to wealth disparity in the state of Connecticut. All mean EMS response times were sourced from the 2016 Office of Emergency Medical Services Data Report. Rural definitions were sourced from the Connecticut Office of Rural Health. Median income data was drawn from the Connecticut Office of Policy and Management. A Mann-Whitney U test determined if the average rural EMS response time was greater than the non-rural EMS response time. Pearson coefficients quantified the relationship between median income and EMS response time. A t-test ascertained if the average median income differed between the two datasets. The mean EMS response time was 12.98 min (SD = 3.36) rural and 8.26 min (SD = 2.12) non-rural. Rural mean response time and median income were not significantly correlated (r = -.148, p=.247); non-rural mean response time and median income were also not significantly related. No significant disparity was detected (t=0.478, p=.633) between the mean rural household income ($98,258) and mean non-rural household income ($95,706). Significant disparities in EMS response times can exist between rural and non-rural towns separate from median income trends, as is the case in Connecticut. These findings may have limited generalizability because of Connecticut's relatively high median income as compared to other states yet may be relevant to states with similar economic metrics.

在美国,农村地区的救护车反应时间更长,收入中位数也往往较低,这是一个有据可查的事实。摘要本研究的目的是检验康涅狄格州城乡紧急医疗服务(EMS)反应时间差异是否与财富差异有关。所有EMS平均响应时间均来自2016年紧急医疗服务办公室数据报告。农村定义来自康涅狄格州农村卫生办公室。收入中位数数据来自康涅狄格州政策与管理办公室。Mann-Whitney U检验确定农村EMS的平均反应时间是否大于非农村EMS的平均反应时间。皮尔逊系数量化了收入中位数与EMS响应时间之间的关系。t检验确定了两个数据集的平均收入中位数是否不同。农村地区EMS平均反应时间为12.98 min (SD = 3.36),非农村地区为8.26 min (SD = 2.12)。农村平均反应时间与收入中位数无显著相关(r = -)。148年,p = .247);非农村平均反应时间与收入中位数也无显著相关。农村家庭平均收入(98,258美元)与非农村家庭平均收入(95,706美元)之间没有显著差异(t=0.478, p=.633)。从中等收入趋势来看,农村和非农村城镇之间的EMS响应时间可能存在显著差异,康涅狄格州就是如此。这些发现可能具有有限的普遍性,因为与其他州相比,康涅狄格州的收入中位数相对较高,但可能与具有类似经济指标的州相关。
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引用次数: 0
Pediatric palliative care in Brazil: reflections on end of life based on geographic mapping. 巴西的儿科姑息关怀:基于地理测绘的生命终结反思。
Pub Date : 2024-11-28 DOI: 10.1007/s43999-024-00054-w
Esther Angélica Luiz Ferreira, Leandro Saito, Maycon Rodrigo Sarracini, Cristina Helena Bruno, Augustus Relo Mattos, Cristina Ortiz Sobrinho Valete, Rodrigo Bezerra de Menezes Reiff

Introduction: In Brazil, a country of continental dimensions, the lack of services in the different regions is a major barrier that prevents patients from accessing Pediatric Palliative Care (PPC). If accessing PPC is already challenging, end-of-life care for these patients may also be difficult. Therefore, this study is based on a recent mapping effort, aimed at reflecting on the end-of-life care for children in Palliative Care in Brazil.

Method: Descriptive, cross-sectional study, and online survey research, based on a larger study of Palliative Care Network.

Results: The final sample comprised 90 Pediatric Palliative Care services, which proved to be unevenly distributed across the country. Many services lack a minimum team, 40% face difficulties accessing opioids, and one-third do not provide bereavement care.

Discussion: There should be more services with better distribution across the country, and a minimum team should be required to provide adequate care for children and adolescents. Strategies to improve symptom control and grief support should be introduced.

Conclusions: It is concluded that continuing education and the inclusion of relevant topics in health courses are necessary. Additionally, health service managers must expand their focus to address these issues effectively.

导言:巴西是一个大陆性国家,不同地区服务的缺乏是阻碍患者获得儿科姑息治疗(PPC)的主要障碍。如果获得姑息治疗已经是一项挑战,那么这些患者的临终关怀也可能会很困难。因此,本研究以最近的一项调查工作为基础,旨在反思巴西姑息治疗中的儿童临终关怀:方法:描述性横断面研究和在线调查研究,以姑息治疗网络的一项大型研究为基础:最终样本包括 90 家儿科姑息关怀服务机构,事实证明这些机构在全国的分布并不均衡。许多服务机构缺乏最基本的团队,40%的服务机构难以获得阿片类药物,三分之一的服务机构不提供丧亲关怀:讨论:应在全国范围内提供更多分布更合理的服务,并应要求最低限度的团队为儿童和青少年提供适当的护理。讨论:应在全国范围内建立更多分布更合理的服务机构,并要求至少有一个团队为儿童和青少年提供适当的护理,同时应引入改善症状控制和悲伤支持的策略:结论:有必要开展继续教育,并在保健课程中纳入相关主题。此外,医疗服务管理人员必须扩大工作重点,以有效解决这些问题。
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引用次数: 0
Population-based cross-sectional survey of cervical cancer screening prevalence and socio-demographic correlates in Bangladeshi women. 孟加拉国妇女宫颈癌筛查流行率及社会人口相关因素的人群横断面调查。
Pub Date : 2024-11-06 DOI: 10.1007/s43999-024-00053-x
Mohammad Jobair Khan, Priya Kannan, Sayma, Stanley John Winser

Background: Cervical cancer, albeit preventable, is the second-most deadly gynecological cancer in developing nations. Little is known about cervical cancer among Bangladeshi women. This study aims to estimate the prevalence of cervical cancer screening and demographic correlates to identify potential variabilities in screening rates among different demographic groups and regions.

Methods: This study used secondary data from the WHO STEPS 2018 Survey. We used Bayesian regression to perform the bivariate analyses between the outcome and each explanatory factor, as it generates more acceptable results and improves parameter estimates. The top-ranked socio-demographic factors were identified using a two-step cluster analysis. This method determines the relevance of predictor variables and automatically establishes the number of clusters.

Results: The prevalence of Bangladeshi women who had ever been screened for cervical cancer was 6.2%. In the adjusted model, women with the following socio-demographic factors had a higher likelihood of developing cervical cancer: being 18-29 years old (AOR = 3.3, 95% CI: 0.24, 15.27) or 45-59 years old (AOR = 2.8, 95% CI: 1.22, 6.0), currently married (AOR = 2.3, 95% CI: 1.36, 3.70), and employed (AOR = 2.4, 95% CI: 1.40, 4.06). Women in the Barisal division were found to have higher odds of being screened for cervical cancer (AOR = 21, 95% CI: 0.66, 121.97). Cluster analysis found residence status predisposes women to cervical cancer screening.

Conclusion: There is a significant potential for substantial reductions in the burden of cervical cancer in Bangladesh by strengthening the application of cervical cancer screening. Future studies should examine how socioeconomic status, culture, and healthcare access affect cervical cancer screening trends for different divisions in Bangladesh. An independent national cancer registry is urgently needed to evaluate screening trends and outcomes.

背景:宫颈癌虽然可以预防,但却是发展中国家第二大致命的妇科癌症。孟加拉国妇女对宫颈癌知之甚少。本研究旨在估算宫颈癌筛查的普及率和人口统计学相关因素,以确定不同人口群体和地区筛查率的潜在差异:本研究使用了世卫组织 STEPS 2018 调查的二手数据。我们采用贝叶斯回归法对结果和每个解释因素进行二元分析,因为这种方法能得出更容易接受的结果,并能改善参数估计。通过两步聚类分析确定了排名靠前的社会人口因素。这种方法可以确定预测变量的相关性,并自动确定聚类的数量:结果:曾经接受过宫颈癌筛查的孟加拉国妇女的患病率为 6.2%。在调整模型中,具有以下社会人口因素的妇女患宫颈癌的可能性更高:18-29 岁(AOR = 3.3,95% CI:0.24,15.27)或 45-59 岁(AOR = 2.8,95% CI:1.22,6.0)、已婚(AOR = 2.3,95% CI:1.36,3.70)和就业(AOR = 2.4,95% CI:1.40,4.06)。巴里萨尔分区的妇女接受宫颈癌筛查的几率更高(AOR = 21,95% CI:0.66,121.97)。聚类分析发现,居住状况使妇女更容易接受宫颈癌筛查:结论:通过加强宫颈癌筛查的应用,孟加拉国有可能大幅降低宫颈癌的负担。未来的研究应探讨社会经济地位、文化和医疗保健的普及如何影响孟加拉国不同地区的宫颈癌筛查趋势。迫切需要建立一个独立的国家癌症登记处,以评估筛查趋势和结果。
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引用次数: 0
Empowering health: exploring the vital role of facilitator organisations in supporting chronic disease patients in Assam, India. 增强健康能力:探讨促进者组织在支持印度阿萨姆邦慢性病患者方面的重要作用。
Pub Date : 2024-10-30 DOI: 10.1007/s43999-024-00052-y
Hiranmoyee Bhuyan, Seema S Singha

Background: The research centers on an underrated type of mediator organization namely facilitator organizations (FO) that work in the health care setting. These organizations are mediators that bridge the gap between patients (healthcare customers) and medical services. The facilitator organizations considered for the study are non-governmental organizations situated in Assam that works in align to chronic diseases, particularly cancer.

Methods: The data collection was done through organizational referrals for the study making it a snowball sampling, progressively incorporating additional contemporary entities. The study's respondents were facilitator organizations (i.e.Non-Government Organizations) actively involved in addressing chronic disease. Data were gathered from these facilitator organizations situated in Assam, India, supporting healthcare customers specifically those with cancer. Key informant interviews and semi-structured questionnaires were used for data collection, the responses were documented using a field diary and the Lovelock service model was used as a reference for the construction of the questionnaire and developing the research framework.

Results: The analysis of data shows that facilitator organisations maintain continuity in relationships, which enhances health management and outcomes for customers. The shift in cancer care towards a patient-centred approach and the crucial role of FOs in providing comprehensive and individualized care, addressing diverse patient needs thereby addressing the holistic development of the health care customer is vital. In addition, effective patient-centred communication, incorporating trust, compassion, respect and comprehensive support including mental health therapy, occupational therapy, and rehabilitation plays a crucial role in leading a normal life. ` CONCLUSION: The facilitator organizations dealing with Cancer have to meet a broad range of services outside the core medical service providers for their healthcare customers. These efforts contribute to the overall recovery of both the healthcare customer with cancer and their family.

研究背景研究的中心是一种被低估的中介组织,即在医疗环境中工作的促进者组织(FO)。这些组织是病人(医疗保健客户)和医疗服务之间的桥梁。本研究考虑的促进者组织是位于阿萨姆邦的非政府组织,这些组织致力于慢性疾病,尤其是癌症的治疗:数据收集是通过组织推荐进行的,采用滚雪球式抽样,逐步纳入更多的当代实体。研究的受访者是积极参与解决慢性病问题的促进组织(即非政府组织)。数据是从位于印度阿萨姆邦的这些促进组织收集的,这些组织为医疗保健客户,特别是癌症患者提供支持。数据收集采用了关键信息提供者访谈和半结构化问卷调查的方式,并使用现场日记记录了回答情况,在构建问卷和制定研究框架时参考了洛夫洛克服务模型:数据分析显示,促进者组织保持了关系的连续性,从而加强了客户的健康管理和成果。癌症护理向以患者为中心的方法转变,促进机构在提供全面和个性化护理、满足患者不同需求从而实现医疗客户的全面发展方面发挥着至关重要的作用。此外,以病人为中心的有效沟通,包括信任、同情、尊重和全面的支持,包括心理健康治疗、职业治疗和康复,对于病人过上正常生活起着至关重要的作用。结论:治疗癌症的促进机构必须在核心医疗服务提供者之外为其医疗保健客户提供广泛的服务。这些努力有助于癌症患者及其家人的整体康复。
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引用次数: 0
Organisation and management of multi-professional care for cancer patients at end-of-life: state-of-the-art from a survey to community and hospital-based professionals. 为临终癌症患者提供多专业护理的组织和管理:对社区和医院专业人员进行调查后得出的结论。
Pub Date : 2024-10-09 DOI: 10.1007/s43999-024-00051-z
Sara Zuccarino, Angela Gioia, Filippo Quattrone, Sabina Nuti, Michele Emdin, Francesca Ferrè

Providing timely and satisficing End-of-Life care (EOLC) is a priority for healthcare systems since aging population and chronic diseases are boosting the global demand for care at end-of-life (EOL). In OECD countries the access to EOLC is insufficient. In Italy, the average rate of cancer patients assisted by the palliative care (PC) network at EOL was 28% in 2021, with high variability in the country. Among the Italian regions offering the best coverages, Tuscany has a rate of about 40%, but intraregional variation is marked as well. The study aims to explore the delivery of EOLC to adult cancer patients in public facilities in the Tuscany region through survey data collection among professionals. Two online surveys were delivered to Directors of community-based PC Functional-Units (FUs) and Directors of hospital-based medical-oncology units. All FU Directors responded to the survey (n = 14), and a response rate of 96% was achieved from hospital-unit Directors (n = 27). The results highlight the availability of numerous dedicated services, but reveal heterogeneity among and within organisations, including variations in the professionals involved, pathways, and tools adopted. Care continuity is supported by institutionalized collaboration between hospital and community settings, but hindered by fragmented care processes and heterogeneous transition pathways. Late referral to PC is perceived as a major constraint to EOLC. Developing structured pathways for patient transition to end-stage PC is crucial, and practices/processes should be uniformly implemented to ensure equity. Multi-professional care should be facilitated through tailored supporting tools. Both hospital-unit and FU Directors suggest developing shared pathways between organisations/professionals (82% and 80% respectively) and digital information sharing (61% and 80% respectively). Hospital and community-based professionals have similar perceptions about the concerns and challenges to EOLC provision in the region, but community-based professionals are more sensitive to the importance of improving communication on PC to the public and early discussing EOLC with caregivers. This finding suggests the need of enhancing hospital personnel's awareness about these issues. Professional training and the capacity to assess patients' needs and preferences should be improved. The identified needs can inform future research and interventions to improve the quality and outcomes of EOLC for cancer patients.

由于人口老龄化和慢性疾病增加了全球对临终关怀(EOL)的需求,因此提供及时、满意的临终关怀(EOLC)是医疗保健系统的当务之急。在经济合作与发展组织(OECD)国家中,获得临终关怀服务的机会不足。在意大利,2021 年癌症患者在临终关怀(PC)网络协助下接受治疗的平均比例为 28%,全国各地的差异很大。在意大利覆盖率最高的大区中,托斯卡纳区的覆盖率约为 40%,但大区内的差异也很明显。本研究旨在通过收集专业人士的调查数据,探讨托斯卡纳大区公共设施为成年癌症患者提供的 EOLC 服务。研究人员向社区 PC 功能单位 (FU) 主任和医院肿瘤内科主任发送了两份在线调查问卷。所有功能室主任都对调查做出了回应(n = 14),医院单位主任的回应率达到 96%(n = 27)。调查结果凸显了许多专门服务的可用性,但也揭示了组织之间和组织内部的差异性,包括参与的专业人员、路径和采用的工具的差异。医院与社区之间的制度化合作为护理的连续性提供了支持,但分散的护理流程和不同的过渡途径则阻碍了护理的连续性。晚转诊至个人护理中心被认为是限制临终关怀的一个主要因素。为患者过渡到终末期 PC 制定结构化路径至关重要,应统一实施相关实践/流程,以确保公平。应通过量身定制的支持工具促进多专业护理。医院科室主任和护理部主任均建议在机构/专业人员之间建立共享路径(分别为 82% 和 80%),并实现数字信息共享(分别为 61% 和 80%)。医院和社区的专业人员对该地区提供临终关怀服务所面临的问题和挑战有着相似的看法,但社区的专业人员对加强向公众宣传临终关怀的重要性以及尽早与照护者讨论临终关怀的重要性更为敏感。这一发现表明,有必要提高医院工作人员对这些问题的认识。应加强专业培训,提高评估患者需求和偏好的能力。所确定的需求可为未来的研究和干预措施提供参考,以提高癌症患者临终关怀的质量和效果。
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