Pub Date : 2024-06-01Epub Date: 2024-02-28DOI: 10.1002/nur.22376
Dianne C Miner, Sarah H Ailey, Roy A Thompson, Allison Squires, Amyela Adarlo, Holly Brown
{"title":"\"We have met the enemy and it is us\": Healthcare professionals as the barrier to health equity for people with intellectual and developmental disability.","authors":"Dianne C Miner, Sarah H Ailey, Roy A Thompson, Allison Squires, Amyela Adarlo, Holly Brown","doi":"10.1002/nur.22376","DOIUrl":"10.1002/nur.22376","url":null,"abstract":"","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":" ","pages":"269-273"},"PeriodicalIF":2.1,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139984580","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-01Epub Date: 2024-03-24DOI: 10.1002/nur.22381
Justine Connor, Tracy Flenady, Deb Massey, Trudy Dwyer
Grounded theory comprises a family of research approaches designed to support the generation of a theory explaining a phenomenon experienced by a group of participants. One style of grounded theory, Classic grounded theory, is used less often than other types of grounded theory. The less frequent use of Classic grounded theory may be attributed to the limited availability of clearly articulated processes for conducting this method. Particularly important within Classic grounded theory, and not used in other forms of grounded theory, is identifying the participants' main concern. Identifying the participants' main concern is a signature feature of Classic grounded theory and is a prerequisite for ascertaining the core category and subsequent discovery of theory. In this article we provide a detailed explanation of how to identify the participants' main concern, and in so doing, we offer an exemplar to illustrate the process involved.
{"title":"Classic grounded theory: identifying the main concern.","authors":"Justine Connor, Tracy Flenady, Deb Massey, Trudy Dwyer","doi":"10.1002/nur.22381","DOIUrl":"10.1002/nur.22381","url":null,"abstract":"<p><p>Grounded theory comprises a family of research approaches designed to support the generation of a theory explaining a phenomenon experienced by a group of participants. One style of grounded theory, Classic grounded theory, is used less often than other types of grounded theory. The less frequent use of Classic grounded theory may be attributed to the limited availability of clearly articulated processes for conducting this method. Particularly important within Classic grounded theory, and not used in other forms of grounded theory, is identifying the participants' main concern. Identifying the participants' main concern is a signature feature of Classic grounded theory and is a prerequisite for ascertaining the core category and subsequent discovery of theory. In this article we provide a detailed explanation of how to identify the participants' main concern, and in so doing, we offer an exemplar to illustrate the process involved.</p>","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":" ","pages":"277-288"},"PeriodicalIF":2.1,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140195113","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-01Epub Date: 2024-02-05DOI: 10.1002/nur.22373
Ana Soto-Rubio, Yolanda Andreu, Beatriz Gil-Juliá, Carmen Picazo, Sergio Murgui, Cara C MacInnis, Shane Sinclair
International practice guidelines and policies recognize compassion as a fundamental dimension of quality care. A key element in enhancing compassion in healthcare settings is having reliable patient-reported experience measures. In the Spanish context, there is a need for a valid Spanish patient-reported compassion measure for use in both research and clinical practice. The Sinclair Compassion Questionnaire (SCQ) represents the gold standard for patient-reported compassion measures in English-speaking settings. The primary aim of this study is to culturally adapt and validate the SCQ in a Spanish population. A Spanish version of the SCQ (SCQesp) was used to collect data from 303 Spanish patients (in two contexts: hospitalized and medical visit). Confirmatory factor analysis confirmed a one-factor solution in the 15-item (SCQesp) and five-item (SCQesp-SF) short form version. The SCQesp showed excellent values of reliability: Cronbach's α = 0.98; composite variance = 0.98 (0.905-0.854); and stratified variance = 0.78. The SCQesp-SF showed similar values of reliability. The SCQesp has excellent psychometric properties, making it a valid and reliable measure for assessing compassion in healthcare research and clinical care. This scientifically rigorous and psychometrically robust compassion measure in Spanish could allow healthcare providers, researchers, and leaders to routinely assess compassion.
{"title":"Adaptation and validation of a patient-reported compassion measure in the Spanish population: The Spanish version of the Sinclair Compassion Questionnaire (SCQesp).","authors":"Ana Soto-Rubio, Yolanda Andreu, Beatriz Gil-Juliá, Carmen Picazo, Sergio Murgui, Cara C MacInnis, Shane Sinclair","doi":"10.1002/nur.22373","DOIUrl":"10.1002/nur.22373","url":null,"abstract":"<p><p>International practice guidelines and policies recognize compassion as a fundamental dimension of quality care. A key element in enhancing compassion in healthcare settings is having reliable patient-reported experience measures. In the Spanish context, there is a need for a valid Spanish patient-reported compassion measure for use in both research and clinical practice. The Sinclair Compassion Questionnaire (SCQ) represents the gold standard for patient-reported compassion measures in English-speaking settings. The primary aim of this study is to culturally adapt and validate the SCQ in a Spanish population. A Spanish version of the SCQ (SCQesp) was used to collect data from 303 Spanish patients (in two contexts: hospitalized and medical visit). Confirmatory factor analysis confirmed a one-factor solution in the 15-item (SCQesp) and five-item (SCQesp-SF) short form version. The SCQesp showed excellent values of reliability: Cronbach's α = 0.98; composite variance = 0.98 (0.905-0.854); and stratified variance = 0.78. The SCQesp-SF showed similar values of reliability. The SCQesp has excellent psychometric properties, making it a valid and reliable measure for assessing compassion in healthcare research and clinical care. This scientifically rigorous and psychometrically robust compassion measure in Spanish could allow healthcare providers, researchers, and leaders to routinely assess compassion.</p>","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":" ","pages":"344-355"},"PeriodicalIF":2.1,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139693546","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-01Epub Date: 2023-12-24DOI: 10.1002/nur.22366
Mustafa Sabri Kovanci, Azize Atli Özbaş
Health care providers are expected to have a certain moral sensitivity (MS) to make an ethical assessment. Moral distress (MD) is a common phenomenon in nursing. It can negatively affect nurses physically, psychologically, socially, and spiritually. This study aimed to investigate the relationship between MD and MS among nurses using a cross-sectional descriptive design. The study was conducted in two stages. The first stage was a methodological study that analyzed validity and reliability of the Measure of MD-Healthcare Professionals. The second stage was a descriptive- predictive analysis that investigated the relationship between MD and MS. The MD intensity and frequency scores of the participants were high and moderately high, respectively. There was no direct effect on the total score and frequency of MS and MD. However, a direct and significant negative effect of MS was seen on the intensity of MD. Based on the results of this study, MS should be considered as a measure in studies aimed at understanding MD among clinical nurses. Empowerment programs should be established to increase the awareness of health workers about ethical and moral situations and to support them to cope with the problems they experience in these areas.
医疗服务提供者应具备一定的道德敏感性(MS),以便进行道德评估。道德困扰(MD)是护理工作中的一种常见现象。它会对护士的身体、心理、社会和精神造成负面影响。本研究采用横断面描述性设计,旨在调查护士的 MD 与 MS 之间的关系。研究分两个阶段进行。第一阶段是方法学研究,分析了 "MD-医疗保健专业人员测量 "的有效性和可靠性。第二阶段是描述性预测分析,调查 MD 与 MS 之间的关系。参与者的 MD 强度和频率得分分别为高分和中高分。MS和MD的总分和频率没有直接影响。然而,MS 对 MD 的强度有直接和显著的负面影响。根据本研究的结果,在旨在了解临床护士 MD 的研究中,MS 应被视为一种衡量标准。应制定赋权计划,以提高医务工作者对伦理道德状况的认识,并支持他们应对在这些领域遇到的问题。
{"title":"Moral distress and moral sensitivity in clinical nurses.","authors":"Mustafa Sabri Kovanci, Azize Atli Özbaş","doi":"10.1002/nur.22366","DOIUrl":"10.1002/nur.22366","url":null,"abstract":"<p><p>Health care providers are expected to have a certain moral sensitivity (MS) to make an ethical assessment. Moral distress (MD) is a common phenomenon in nursing. It can negatively affect nurses physically, psychologically, socially, and spiritually. This study aimed to investigate the relationship between MD and MS among nurses using a cross-sectional descriptive design. The study was conducted in two stages. The first stage was a methodological study that analyzed validity and reliability of the Measure of MD-Healthcare Professionals. The second stage was a descriptive- predictive analysis that investigated the relationship between MD and MS. The MD intensity and frequency scores of the participants were high and moderately high, respectively. There was no direct effect on the total score and frequency of MS and MD. However, a direct and significant negative effect of MS was seen on the intensity of MD. Based on the results of this study, MS should be considered as a measure in studies aimed at understanding MD among clinical nurses. Empowerment programs should be established to increase the awareness of health workers about ethical and moral situations and to support them to cope with the problems they experience in these areas.</p>","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":" ","pages":"312-323"},"PeriodicalIF":2.1,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139032893","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-01Epub Date: 2024-01-04DOI: 10.1002/nur.22363
Maichou Lor, Angie Li, Roger Brown, Matthew P Swedlund, John G Hawkins, Evan T Nolander, Betty Chewning
This pilot study assessed the feasibility of implementing a pain assessment information visualization (InfoViz) tool to address cultural and language barriers among limited English proficiency (LEP) Hmong patients in primary care. We used a static group comparison design to collect data from 20 patient, interpreter, and provider triads under usual care (i.e., interpreter using verbal pain descriptions), followed by another 20 triads under the intervention (i.e., interpreter using verbal pain descriptions and the InfoViz tool). Feasibility outcomes included recruitment and retention rates, InfoViz tool completion, acceptability, and fidelity. We also assessed mutual understanding (MU) and pain electronic health record (EHR) documentation. Descriptive data were calculated and thematic analysis was conducted. Thirty-six LEP Hmong patients (n = 29 female, mean age = 59.03), 27 providers (n = 15 female), and four interpreters participated in this study. The patient recruitment rate was 18% while the retention rate was 81%. Interpreter recruitment rate was 80%, and 75% for retention rate. The intervention fidelity mean score was 83%. In the intervention condition, patient-provider MU of pain severity improved by 30%, coupled with a 28% increase in pain severity EHR documentation compared to usual care. While communication of pain quality did not improve, there was a higher mean number of pain descriptors (3.31 in the intervention vs. 1.79 in usual care) in EHR documentation. All participants had a positive experience with the tool, reporting it as valuable with 100% completeness of all tools. Findings revealed the tool was acceptable and feasible to use among LEP patients-interpreters-providers, providing support for an efficacy study.
{"title":"Improving pain communication between limited English-speaking Hmong patients, medical interpreters, and health care providers in primary care: A pilot study.","authors":"Maichou Lor, Angie Li, Roger Brown, Matthew P Swedlund, John G Hawkins, Evan T Nolander, Betty Chewning","doi":"10.1002/nur.22363","DOIUrl":"10.1002/nur.22363","url":null,"abstract":"<p><p>This pilot study assessed the feasibility of implementing a pain assessment information visualization (InfoViz) tool to address cultural and language barriers among limited English proficiency (LEP) Hmong patients in primary care. We used a static group comparison design to collect data from 20 patient, interpreter, and provider triads under usual care (i.e., interpreter using verbal pain descriptions), followed by another 20 triads under the intervention (i.e., interpreter using verbal pain descriptions and the InfoViz tool). Feasibility outcomes included recruitment and retention rates, InfoViz tool completion, acceptability, and fidelity. We also assessed mutual understanding (MU) and pain electronic health record (EHR) documentation. Descriptive data were calculated and thematic analysis was conducted. Thirty-six LEP Hmong patients (n = 29 female, mean age = 59.03), 27 providers (n = 15 female), and four interpreters participated in this study. The patient recruitment rate was 18% while the retention rate was 81%. Interpreter recruitment rate was 80%, and 75% for retention rate. The intervention fidelity mean score was 83%. In the intervention condition, patient-provider MU of pain severity improved by 30%, coupled with a 28% increase in pain severity EHR documentation compared to usual care. While communication of pain quality did not improve, there was a higher mean number of pain descriptors (3.31 in the intervention vs. 1.79 in usual care) in EHR documentation. All participants had a positive experience with the tool, reporting it as valuable with 100% completeness of all tools. Findings revealed the tool was acceptable and feasible to use among LEP patients-interpreters-providers, providing support for an efficacy study.</p>","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":" ","pages":"289-301"},"PeriodicalIF":2.1,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11079862/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139089387","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Integrating safety and health practices in therapeutic communities: Insights from Taiwan's Chieh‐Lo‐Shan Villa","authors":"Jen‐Chin Lee, Lien‐Chung Wei","doi":"10.1002/nur.22390","DOIUrl":"https://doi.org/10.1002/nur.22390","url":null,"abstract":"","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":"41 1","pages":""},"PeriodicalIF":2.0,"publicationDate":"2024-05-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140833274","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Eileen T. Lake, Jennifer Gil, Lynne Moronski, Matthew D. Mchugh, Linda H. Aiken, Karen B. Lasater
The Practice Environment Scale of the Nursing Work Index (PES‐NWI) has been utilized for two decades globally to measure nurse work environments. Its 31 items in five domains present a substantial respondent burden, threatening survey response rates. The purpose of this study was to derive and validate a short form: the PES‐5. We conducted a cross‐sectional, secondary analysis of survey data from nurses in 760 hospitals in six U.S. states in 2016 or 2019. One representative item per subscale was selected by highest item‐to‐subscale R2 from the original PES‐NWI publication. Five psychometric properties of the PES‐5 were evaluated. The reproduced structure of the full form was confirmed in the 2016 data by the highest R2 for the selected items. The unidimensional structure of the PES‐5 was confirmed through confirmatory factor analysis. The correlation between the composite values of the 28‐item and 5‐item versions was 0.94. The Cronbach's alpha reliability of the PES‐5 was >0.80. The intraclass correlation coefficient (ICC 1, k), which evaluates the stability of aggregated values when data are clustered, i.e., nurses are nested within hospitals, was >0.80 in both datasets, demonstrating satisfactory aggregate properties. Construct validity was supported by the selected items being ranked highly in their respective subscales by an expert panel. Criterion validity was supported by an analysis of variance of the PES‐5 mean value across responses to a single‐item work environment measure. Similar patterns of relationships with other key variables were identified by statistically significant odds ratios in regression models predicting patient mortality from the PES‐5. The classification accuracy of the PES‐5 was high, with 88% of hospitals classified identically by both versions. The PES‐5 shows promise for measurement of nurses’ work environments while maximizing response rate by reducing participant burden.
{"title":"Validation of a short form of the practice environment scale of the nursing work index: The PES‐5","authors":"Eileen T. Lake, Jennifer Gil, Lynne Moronski, Matthew D. Mchugh, Linda H. Aiken, Karen B. Lasater","doi":"10.1002/nur.22388","DOIUrl":"https://doi.org/10.1002/nur.22388","url":null,"abstract":"The Practice Environment Scale of the Nursing Work Index (PES‐NWI) has been utilized for two decades globally to measure nurse work environments. Its 31 items in five domains present a substantial respondent burden, threatening survey response rates. The purpose of this study was to derive and validate a short form: the PES‐5. We conducted a cross‐sectional, secondary analysis of survey data from nurses in 760 hospitals in six U.S. states in 2016 or 2019. One representative item per subscale was selected by highest item‐to‐subscale <jats:italic>R</jats:italic><jats:sup>2</jats:sup> from the original PES‐NWI publication. Five psychometric properties of the PES‐5 were evaluated. The reproduced structure of the full form was confirmed in the 2016 data by the highest <jats:italic>R</jats:italic><jats:sup>2</jats:sup> for the selected items. The unidimensional structure of the PES‐5 was confirmed through confirmatory factor analysis. The correlation between the composite values of the 28‐item and 5‐item versions was 0.94. The Cronbach's alpha reliability of the PES‐5 was >0.80. The intraclass correlation coefficient (ICC 1, <jats:italic>k</jats:italic>), which evaluates the stability of aggregated values when data are clustered, i.e., nurses are nested within hospitals, was >0.80 in both datasets, demonstrating satisfactory aggregate properties. Construct validity was supported by the selected items being ranked highly in their respective subscales by an expert panel. Criterion validity was supported by an analysis of variance of the PES‐5 mean value across responses to a single‐item work environment measure. Similar patterns of relationships with other key variables were identified by statistically significant odds ratios in regression models predicting patient mortality from the PES‐5. The classification accuracy of the PES‐5 was high, with 88% of hospitals classified identically by both versions. The PES‐5 shows promise for measurement of nurses’ work environments while maximizing response rate by reducing participant burden.","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":"292 1","pages":""},"PeriodicalIF":2.0,"publicationDate":"2024-04-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140798170","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Issue Information ‐ TOC","authors":"","doi":"10.1002/nur.22318","DOIUrl":"https://doi.org/10.1002/nur.22318","url":null,"abstract":"","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":"62 1","pages":""},"PeriodicalIF":2.0,"publicationDate":"2024-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140624699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Monique M. Ridosh, William Adams, Colleen F. B. Driscoll, Fabiola Magaña, Kathleen J. Sawin, Grayson N. Holmbeck
The purpose of this study was to assess family‐related predictors of self‐management trajectories in youth with spina bifida (SB). Participants with SB completed the Adolescent/Young Adult Self‐Management and Independence Scale (AMIS II) interview across four time points. Family functioning, family‐related stress, and perceived family support were assessed by multiple reporters and multiple methods. Growth in AMIS II total self‐management and the AMIS II subscales (Condition and Independent Living) were estimated using linear mixed effect models as a function of family factors, after controlling for socio‐demographic, condition‐related, and neuropsychological variables that had been found to be significant predictors of self‐management in prior studies. Model fit and parsimony were assessed using Akaike's information criterion (AIC). This diverse community sample included 99 respondents aged 18–27 years old. About half were female (52.5%) and White (52.5%); 15.2% were Black, and 32.3% were Hispanic/Latino. Observed family cohesion at baseline was associated with all self‐management scales at age 18 (all p < 0.05). Growth in self‐management was associated with parent‐reported number of family stress events. For growth in total self‐management, the best model included age, race/ethnicity, family income, shunt status, lesion level, neuropsychological function, observed family cohesion, and an age‐by‐number of family stress events interaction effect. The study findings suggested that family factors were important predictors of self‐management trajectories, even after controlling for socio‐demographic, condition‐related, and neuropsychological covariates. Risk and protective factors identified in families of youth with SB can inform family‐focused interventions for self‐management.
本研究旨在评估脊柱裂(SB)青少年自我管理轨迹的家庭相关预测因素。脊柱裂患者在四个时间点完成了青少年自我管理和独立量表(AMIS II)访谈。家庭功能、与家庭相关的压力和感知到的家庭支持由多个报告人和多种方法进行评估。在控制了社会人口学、病情相关变量和神经心理学变量(这些变量在之前的研究中被认为是自我管理的重要预测因素)后,使用线性混合效应模型估算了 AMIS II 自我管理总分量表和 AMIS II 分量表(病情和独立生活)的增长情况,并将其作为家庭因素的函数。采用阿凯克信息准则(AIC)对模型的拟合度和简约性进行了评估。这个多样化的社区样本包括 99 名 18-27 岁的受访者。约半数为女性(52.5%)和白人(52.5%);15.2%为黑人,32.3%为西班牙裔/拉丁裔。基线观察到的家庭凝聚力与 18 岁时的所有自我管理量表相关(所有 p 均为 0.05)。自我管理能力的增长与家长报告的家庭压力事件数量有关。对于总自我管理能力的增长,最佳模型包括年龄、种族/民族、家庭收入、分流状态、病变程度、神经心理功能、观察到的家庭凝聚力以及年龄与家庭压力事件数量的交互效应。研究结果表明,即使在控制了社会人口学、病情相关和神经心理学协变量后,家庭因素仍是自我管理轨迹的重要预测因素。在患有SB的青少年家庭中发现的风险和保护因素可以为以家庭为中心的自我管理干预提供参考。
{"title":"Trajectories of self‐management and independence in youth with spina bifida: Family‐related predictors of growth","authors":"Monique M. Ridosh, William Adams, Colleen F. B. Driscoll, Fabiola Magaña, Kathleen J. Sawin, Grayson N. Holmbeck","doi":"10.1002/nur.22387","DOIUrl":"https://doi.org/10.1002/nur.22387","url":null,"abstract":"The purpose of this study was to assess family‐related predictors of self‐management trajectories in youth with spina bifida (SB). Participants with SB completed the Adolescent/Young Adult Self‐Management and Independence Scale (AMIS II) interview across four time points. Family functioning, family‐related stress, and perceived family support were assessed by multiple reporters and multiple methods. Growth in AMIS II total self‐management and the AMIS II subscales (Condition and Independent Living) were estimated using linear mixed effect models as a function of family factors, after controlling for socio‐demographic, condition‐related, and neuropsychological variables that had been found to be significant predictors of self‐management in prior studies. Model fit and parsimony were assessed using Akaike's information criterion (AIC). This diverse community sample included 99 respondents aged 18–27 years old. About half were female (52.5%) and White (52.5%); 15.2% were Black, and 32.3% were Hispanic/Latino. Observed family cohesion at baseline was associated with all self‐management scales at age 18 (all <jats:italic>p</jats:italic> < 0.05). Growth in self‐management was associated with parent‐reported number of family stress events. For growth in total self‐management, the best model included age, race/ethnicity, family income, shunt status, lesion level, neuropsychological function, observed family cohesion, and an age‐by‐number of family stress events interaction effect. The study findings suggested that family factors were important predictors of self‐management trajectories, even after controlling for socio‐demographic, condition‐related, and neuropsychological covariates. Risk and protective factors identified in families of youth with SB can inform family‐focused interventions for self‐management.","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":"111 1","pages":""},"PeriodicalIF":2.0,"publicationDate":"2024-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140615413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The development and commercialization of digital therapeutics are increasing. The aim of this study was to determine the effects of digital technology interventions on cognitive function, thereby providing evidence for the development and practical application of interventions to manage cognitive function in patients with mild cognitive impairment and dementia. We conducted a systematic review and meta‐analysis of randomized controlled trials according to PRISMA (Preferred Reporting Items for Systematic Reviews and Meta‐Analysis) guidelines. Randomized controlled trials on digital technology interventions published until April 2023 were searched in PubMed, Embase, Cochrane Library, and Cumulative Index to Nursing and Allied Health Literature (CINAHL) databases without a period limit. Articles that identified the effects of digital technology interventions on cognitive function improvement in dementia and mild cognitive impairment were integrated and analyzed. RevMan software 5.4 was used for quality assessment and meta‐analysis. Twelve out of 708 studies were included in the review and meta‐analysis. Digital technology interventions had significant effects on global cognitive function (standardized mean difference [SMD] = 0.31; 95% confidence interval [CI] = 0.04–0.57; p = 0.02; I² = 60%). In addition, these interventions had significant effects on neuropsychological characteristics, including attention (SMD = 1.17; 95% CI = 0.36–1.97; p = 0.004; I² = 84%), visuospatial perception (SMD = 0.68; 95% CI = 0.19–1.17; p = 0.006; I² = 57%), and memory (SMD = 0.45; 95% CI = 0.19–0.71; p = 0.0007; I² = 22%). The results suggest that digital technology interventions help improve cognitive function in patients with dementia and mild cognitive impairment.
数字疗法的开发和商业化正在不断增加。本研究旨在确定数字技术干预对认知功能的影响,从而为开发和实际应用干预措施管理轻度认知障碍和痴呆症患者的认知功能提供证据。我们根据 PRISMA(系统综述和元分析首选报告项目)指南对随机对照试验进行了系统综述和元分析。在 PubMed、Embase、Cochrane Library 和 Cumulative Index to Nursing and Allied Health Literature (CINAHL) 数据库中检索了 2023 年 4 月之前发表的有关数字技术干预的随机对照试验,没有时间限制。对确定了数字技术干预对痴呆症和轻度认知障碍患者认知功能改善效果的文章进行了整合和分析。采用RevMan软件5.4进行质量评估和荟萃分析。708 项研究中有 12 项被纳入综述和荟萃分析。数字技术干预对总体认知功能有显著影响(标准化平均差异 [SMD] = 0.31;95% 置信区间 [CI] = 0.04-0.57;P = 0.02;I² = 60%)。此外,这些干预措施对神经心理学特征也有显著影响,包括注意力(SMD = 1.17;95% CI = 0.36-1.97;p = 0.004;I² = 84%)、视觉空间感知(SMD = 0.68;95% CI = 0.19-1.17;p = 0.006;I² = 57%)和记忆(SMD = 0.45;95% CI = 0.19-0.71;p = 0.0007;I² = 22%)。结果表明,数字技术干预有助于改善痴呆症和轻度认知障碍患者的认知功能。
{"title":"Effect of digital technology interventions for cognitive function improvement in mild cognitive impairment and dementia: A systematic review and meta‐analysis","authors":"Hyojin Park, Juyoung Ha","doi":"10.1002/nur.22383","DOIUrl":"https://doi.org/10.1002/nur.22383","url":null,"abstract":"The development and commercialization of digital therapeutics are increasing. The aim of this study was to determine the effects of digital technology interventions on cognitive function, thereby providing evidence for the development and practical application of interventions to manage cognitive function in patients with mild cognitive impairment and dementia. We conducted a systematic review and meta‐analysis of randomized controlled trials according to PRISMA (Preferred Reporting Items for Systematic Reviews and Meta‐Analysis) guidelines. Randomized controlled trials on digital technology interventions published until April 2023 were searched in PubMed, Embase, Cochrane Library, and Cumulative Index to Nursing and Allied Health Literature (CINAHL) databases without a period limit. Articles that identified the effects of digital technology interventions on cognitive function improvement in dementia and mild cognitive impairment were integrated and analyzed. RevMan software 5.4 was used for quality assessment and meta‐analysis. Twelve out of 708 studies were included in the review and meta‐analysis. Digital technology interventions had significant effects on global cognitive function (standardized mean difference [SMD] = 0.31; 95% confidence interval [CI] = 0.04–0.57; <jats:italic>p</jats:italic> = 0.02; <jats:italic>I</jats:italic>² = 60%). In addition, these interventions had significant effects on neuropsychological characteristics, including attention (SMD = 1.17; 95% CI = 0.36–1.97; <jats:italic>p</jats:italic> = 0.004; <jats:italic>I</jats:italic>² = 84%), visuospatial perception (SMD = 0.68; 95% CI = 0.19–1.17; <jats:italic>p</jats:italic> = 0.006; <jats:italic>I</jats:italic>² = 57%), and memory (SMD = 0.45; 95% CI = 0.19–0.71; <jats:italic>p</jats:italic> = 0.0007; <jats:italic>I</jats:italic>² = 22%). The results suggest that digital technology interventions help improve cognitive function in patients with dementia and mild cognitive impairment.","PeriodicalId":54492,"journal":{"name":"Research in Nursing & Health","volume":"17 1","pages":""},"PeriodicalIF":2.0,"publicationDate":"2024-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140576047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}