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How We Found Consensus on Pediatric Decision-Making and Why It Matters. 我们是如何就儿科决策达成共识的?
IF 1 4区 医学 Q1 Arts and Humanities Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a929017
Erica K Salter, Lainie Friedman Ross, D Micah Hester

This article describes the process engaged by 17 expert scholars in the development of a set of six consensus recommendations about the normative foundations of pediatric decision-making. The process began with a robust pre-reading assignment, followed by three days of in-person symposium discussions that resulted in a publication in Pediatrics entitled "Pediatric Decision-Making: Consensus Recommendations" (Salter et al. 2023). This article next compares the six recommendations to existing statements about pediatric decision-making (specifically those developed by the American Academy of Pediatrics), highlighting similarities and differences. Finally, the article discusses the value of finding consensus in the field of pediatric bioethics.

本文介绍了 17 位专家学者参与制定一套有关儿科决策规范基础的六项共识建议的过程。这一过程始于一项强有力的预读任务,随后是为期三天的面对面座谈会讨论,最终在《儿科学》上发表了题为 "儿科决策:共识建议"(Pediatrics:共识建议》(Salter et al.)本文接下来将这六项建议与现有的儿科决策声明(特别是美国儿科学会制定的声明)进行了比较,强调了两者的异同。最后,文章讨论了在儿科生命伦理学领域寻求共识的价值。
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引用次数: 0
Limits on Parental Discretion in Medical Decision-Making: pediatric intervention principles converge. 限制父母在医疗决策中的自由裁量权:儿科干预原则趋同。
IF 1 4区 医学 Q1 Arts and Humanities Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a929023
Mark Christopher Navin, Jason Adam Wasserman, Douglas S Diekema, Thaddeus M Pope

Pediatric intervention principles help clinicians and health-care institutions determine appropriate responses when parents' medical decisions place children at risk. Several intervention principles have been proposed and defended in the pediatric ethics literature. These principles may appear to provide conflicting guidance, but much of that conflict is superficial. First, seemingly different pediatric intervention principles sometimes converge on the same guidance. Second, these principles often aim to solve different problems in pediatrics or to operate in different background conditions. The potential for convergence between intervention principles-or at least an absence of conflict between them-matters for both the theory and practice of pediatric ethics. This article builds on the recent work of a diverse group of pediatric ethicists tasked with identifying consensus guidelines for pediatric decision-making.

儿科干预原则有助于临床医生和医疗机构在父母的医疗决定给儿童带来风险时确定适当的应对措施。儿科伦理学文献中提出并维护了几项干预原则。这些原则看似提供了相互冲突的指导,但大部分冲突都是表面现象。首先,看似不同的儿科干预原则有时会趋同于相同的指导原则。其次,这些原则往往旨在解决儿科的不同问题或在不同的背景条件下运作。干预原则之间趋同的可能性--或至少它们之间没有冲突--对儿科伦理学的理论和实践都很重要。这篇文章以一群不同的儿科伦理学家最近的工作为基础,他们的任务是确定儿科决策的共识指南。
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引用次数: 0
Sacred-in-Practice: A Framework for Teaching Religion, Health, and Medicine 实践中的神圣:宗教、健康和医学教学框架
4区 医学 Q1 Arts and Humanities Pub Date : 2023-09-01 DOI: 10.1353/pbm.2023.a909725
Barry F. Saunders
abstract: This essay proposes an unconventional approach to teaching "religion and medicine" to American medical students. Received frameworks for such teaching—articulated around faith denomination or "spirituality"—may imply that religiosities and their health effects are grounded in theology or transcendence, respectively. These frameworks may reify, or misrepresent relationships between, religion and science—for example, in supporting notions of conflict, or of an essentially secular character of technical progress. They can neglect ways in which biomedicine and its institutions are themselves engaged with and productive of religious values. In order to move toward fuller student appreciation of diverse religious materialities and embodiments in health and biomedicine, the essay proposes " the sacred, in practice " as an organizing rubric. This pedagogical intervention pivots on notions of sacrality in anthropologies of religion and offers students a wide path to consider a spectrum of material, gestural conditions, and activities—transformative techniques, intensely valued objects, trusted texts, rituals—that mark and propagate religious valences and commitments within and around contemporary biomedicine. This sacred-in-practice approach meshes with standard theological and spiritual framings of the religion/health/medicine nexus, yet offers more capacious and flexible connections to work for which medical students are training, involving vulnerable bodies and material technologies of tremendous life- and world-shaping potency.
本文提出了一种非传统的美国医学生“宗教与医学”教学方法。这种教导的公认框架——围绕着信仰宗派或“灵性”——可能暗示宗教信仰及其对健康的影响分别建立在神学或超然的基础上。这些框架可能具体化或歪曲宗教与科学之间的关系——例如,支持冲突的概念,或技术进步本质上的世俗特征。他们可以忽视生物医学及其机构本身与宗教价值观的联系和产生的方式。为了使学生更充分地欣赏各种宗教物质和在健康和生物医学中的体现,本文提出“实践中的神圣”作为组织标题。这种教学干预以宗教人类学中的神圣性概念为中心,为学生提供了一个广泛的途径来考虑一系列材料、姿态条件和活动——转化技术、高度重视的对象、可信的文本、仪式——这些都标志着和传播了当代生物医学内部和周围的宗教价值和承诺。这种神圣的实践方法与宗教/健康/医学联系的标准神学和精神框架相吻合,但为医学生正在接受培训的工作提供了更广阔和灵活的联系,涉及脆弱的身体和具有巨大生命和世界塑造能力的物质技术。
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引用次数: 0
Futures of Care: Care Technologies and Graphic Medicine 护理的未来:护理技术和图形医学
4区 医学 Q1 Arts and Humanities Pub Date : 2023-09-01 DOI: 10.1353/pbm.2023.a909731
Sathyaraj Venkatesan, Livine Ancy A
abstract: Assistive care technologies, developed to replace, support, or extend human capabilities and to address the surging demands of care, have been gaining prominence recently. The current trend summons a posthuman approach through decentering the privileged role of humans in several spaces of caregiving, such as hospitals and eldercare homes. The existence of these cutting-edge assistive technologies, exciting as they are, hints at a possible future when the distinction between humans and technology will be blurred, thus transforming care relations. However, these technological advances carry equal promises and dangers. While care robots may reduce the burden of caregiving, they also threaten to minimize human contact with vulnerable populations. This critical assessment reviews technological advances in care and close-reads several single-panel cartoons to theorize the impact of technologies on caring relations. The article also examines the neoliberal underpinnings of such technologies and the moral dangers of their unreflective use.
辅助护理技术,发展取代,支持,或扩展人的能力,并解决护理的激增的需求,已获得突出最近。目前的趋势是,通过在医院和养老院等几个护理空间中分散人类的特权角色,召唤出一种后人类的方法。这些尖端的辅助技术的存在,虽然令人兴奋,但它暗示了一个可能的未来,人与技术之间的区别将变得模糊,从而改变护理关系。然而,这些技术进步带来了同样的希望和危险。虽然护理机器人可能会减轻护理的负担,但它们也有可能减少人类与弱势群体的接触。这一批判性评估回顾了护理方面的技术进步,并仔细阅读了几幅单面板漫画,以理论化技术对护理关系的影响。这篇文章还探讨了这些技术的新自由主义基础,以及不加反思地使用它们的道德危险。
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引用次数: 0
Imagine This: Happy Aging in America 想象一下:美国的快乐老龄化
4区 医学 Q1 Arts and Humanities Pub Date : 2023-09-01 DOI: 10.1353/pbm.2023.a909730
Tia Powell
abstract: This essay explores what it means to age happily, beginning with concepts of aging and happiness and proceeding to factors that promote or undermine happy aging. Relationships, contribution, and personal growth all add value to an aging life. Community also matters, as does the acceptance that a happy older age requires neither perfect health nor immense wealth.
本文从衰老和幸福的概念开始,探讨了快乐衰老的意义,进而探讨了促进或破坏快乐衰老的因素。人际关系、贡献和个人成长都会为老年生活增添价值。社区也很重要,就像人们接受幸福的老年生活既不需要完美的健康,也不需要巨额财富一样。
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引用次数: 0
Negative Impacts of Taegyo : Feminist and Disability Perspectives 太极的负面影响:女权主义和残疾视角
4区 医学 Q1 Arts and Humanities Pub Date : 2023-09-01 DOI: 10.1353/pbm.2023.a909729
Hajung Lee
abstract: This study examines the origin and religious roots of taegyo , Korean traditional prenatal education, and raises concerns about potential negative impacts of contemporary taegyo practice from feminist and disability perspectives. Taegyo has been accepted without much criticism due to its deep integration into prenatal care culture, and most existing literature focuses on taegyo 's positive impacts on fetal health and development from scientific or nursing perspectives. This article analyzes a 19th-century taegyo manual, Taegyo Singi , and Seon and Won Buddhist literatures on taegyo in order to understand the religio-cultural concepts and contexts of taegyo . The article then discusses the potential downsides of taegyo practice today, considering its patriarchal, mother-blaming, ablest roots in Korean history and culture. The author raises concerns about social oppression, the control of women's bodily autonomy, and the disproportionate responsibility burden that taegyo places on Korean women. The article concludes with suggestions for future research and for well-balanced taegyo practice.
摘要:本研究考察了韩国传统的产前教育——太极的起源和宗教根源,并从女权主义和残疾人的角度提出了对当代太极实践潜在负面影响的担忧。由于其与产前护理文化的深度融合,太极拳已被接受而没有太多批评,大多数现有文献都从科学或护理的角度关注太极拳对胎儿健康和发育的积极影响。本文分析了19世纪的《太极手册》、《太极信志》、有关太极的善元佛教文献,以了解太极的宗教文化概念和背景。这篇文章接着讨论了当今太极练习的潜在弊端,考虑到它在韩国历史和文化中的父权、责备母亲和最无能的根源。作者对社会压迫、对女性身体自主权的控制、太极给韩国女性带来的不成比例的责任负担表示担忧。文章最后对今后的研究和平衡的太极练习提出了建议。
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引用次数: 0
Disputing Darwin: On Piloerection and Mental Illness 质疑达尔文:论阴茎勃起和精神疾病
4区 医学 Q1 Arts and Humanities Pub Date : 2023-09-01 DOI: 10.1353/pbm.2023.a909723
Pieter R. Adriaens
abstract: Most of Charles Darwin's ideas have withstood the test of time, but some of them turned out to be dead ends. This article focuses on one such dead end: Darwin's ideas about the connection between piloerection and mental illness. Piloerection is a medical umbrella term to refer to a number of phenomena in which our hair tends to stand on end. Darwin was one of the first scientists to study it systematically. In The Expression of the Emotions in Man and Animals (1872), he discusses piloerection in the context of his analysis of the expressions involved in fear and anger, relying heavily on the evidence provided by one of his correspondents, the British psychiatrist James Crichton Browne. This essay reveals how Darwin's initial doubts about the similarity between piloerection in animals and psychiatric patients were eased when studying photographic portraits of female psychiatric patients sent to him by Crichton Browne. It considers arguments against Darwin's reading of these portraits and the apparent contrast between this reading and his own skepticism, in later years, about the value of documentary photography. The article concludes with some notes regarding the reception of Darwin's ideas about psychopathology.
查尔斯·达尔文的大部分思想都经受住了时间的考验,但其中一些却被证明是死胡同。这篇文章聚焦于这样一个死胡同:达尔文关于勃起和精神疾病之间联系的观点。毛发竖起是一个医学术语,指的是我们的头发直立的一系列现象。达尔文是最早系统研究它的科学家之一。在《人与动物的情感表达》(1872年)一书中,他在分析恐惧和愤怒的表达时讨论了飞行员勃起,并大量引用了他的一位通讯员、英国精神病学家詹姆斯·克莱顿·布朗提供的证据。这篇文章揭示了达尔文最初对动物和精神病患者之间的相似性的怀疑是如何在研究克莱顿·布朗寄给他的女性精神病患者的照片肖像时得到缓解的。它考虑了反对达尔文对这些肖像的解读的争论,以及这种解读与他晚年对纪实摄影价值的怀疑之间的明显对比。文章最后对接受达尔文的精神病理学思想作了一些说明。
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引用次数: 0
Degendering Parents on Birth Certificates 在出生证明上改变父母的性别
4区 医学 Q1 Arts and Humanities Pub Date : 2023-09-01 DOI: 10.1353/pbm.2023.a909728
Timothy E. Murphy, Jennifer A. Parks
abstract: Birth certificates typically designate parents as "mothers" or "fathers," although some US states offer nongendered designations. The authors argue that gendered characterizations offer scant legal or moral value and that states should move to degender parental status on birth certificates but retain that information in registrations of birth. Registrations of birth identify the person giving birth to a child, when, and where, and they report demographic and health information useful for civic and public health purposes. Birth certificates typically report a child's name, sex, date and location of birth, and parentage so far as known. As documents establishing parents' standing in relation to children and vice versa, as well as age and presumptive citizenship, birth certificates add no legal or moral value by gendering parents. Gendering parents on birth certificates obliges the state to rely on exclusionary criteria of "mother" and "father." By contrast, degendering parental status withdraws the need for such criteria and confers benefits on people with transgender and nonbinary identities, as well as undercutting any problematic presumption that parents have responsibilities to their children qua mother or qua father.
出生证明通常会将父母标注为“母亲”或“父亲”,尽管美国的一些州也提供非性别标识。作者认为,性别特征没有提供多少法律或道德价值,各州应该采取行动,在出生证明上取消父母身份的性别化,但在出生登记中保留这些信息。出生登记确定生育子女的人、时间和地点,并报告对公民和公共卫生目的有用的人口和健康信息。出生证明通常会报告孩子的姓名、性别、出生日期和地点,以及目前已知的父母身份。作为证明父母与子女关系的文件,以及年龄和推定的公民身份,出生证没有增加父母性别的法律或道德价值。在出生证明上对父母进行性别划分,政府不得不依赖“母亲”和“父亲”的排除标准。相比之下,父母身份的性别化消除了对这些标准的需求,并给跨性别和非二元身份的人带来了好处,同时也削弱了任何有问题的假设,即父母作为母亲或父亲对孩子负有责任。
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引用次数: 0
Futures of Care: Care Technologies and Graphic Medicine 护理的未来:护理技术和图形医学
4区 医学 Q1 Arts and Humanities Pub Date : 2023-09-01 DOI: 10.1353/pbm.2023.a909732
Sathyaraj Venkatesan, Livine Ancy A
abstract: Assistive care technologies, developed to replace, support, or extend human capabilities and to address the surging demands of care, have been gaining prominence recently. The current trend summons a posthuman approach through decentering the privileged role of humans in several spaces of caregiving, such as hospitals and eldercare homes. The existence of these cutting-edge assistive technologies, exciting as they are, hints at a possible future when the distinction between humans and technology will be blurred, thus transforming care relations. However, these technological advances carry equal promises and dangers. While care robots may reduce the burden of caregiving, they also threaten to minimize human contact with vulnerable populations. This critical assessment reviews technological advances in care and close-reads several single-panel cartoons to theorize the impact of technologies on caring relations. The article also examines the neoliberal underpinnings of such technologies and the moral dangers of their unreflective use.
辅助护理技术,发展取代,支持,或扩展人的能力,并解决护理的激增的需求,已获得突出最近。目前的趋势是,通过在医院和养老院等几个护理空间中分散人类的特权角色,召唤出一种后人类的方法。这些尖端的辅助技术的存在,虽然令人兴奋,但它暗示了一个可能的未来,人与技术之间的区别将变得模糊,从而改变护理关系。然而,这些技术进步带来了同样的希望和危险。虽然护理机器人可能会减轻护理的负担,但它们也有可能减少人类与弱势群体的接触。这一批判性评估回顾了护理方面的技术进步,并仔细阅读了几幅单面板漫画,以理论化技术对护理关系的影响。这篇文章还探讨了这些技术的新自由主义基础,以及不加反思地使用它们的道德危险。
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引用次数: 0
In the Tradition of William Osler: A New Biohumanistic Model of Psychiatry 威廉·奥斯勒的传统:一种新的精神病学生物人文主义模式
4区 医学 Q1 Arts and Humanities Pub Date : 2023-09-01 DOI: 10.1353/pbm.2023.a909724
S. Nassir Ghaemi
abstract: William Osler (1849–1919) is often considered the most influential physician in the emergence of science-based medicine. However, his approach to clinical medicine tends to be misunderstood, and its relevance to psychiatry has not been explored systematically. Osler's approach to the patient had four components: biological reductionism about disease, a scientific approach to clinical diagnosis, therapeutic conservatism, and a humanistic approach to the person. These concepts conflict with the pragmatic, eclectic, anti-reductionistic assumptions of contemporary psychiatry, as codified in its interpretation of a "biopsychosocial" model. This model leads to unscientific practice, with excessive use of medications given for symptoms, and inattention to identifying and treating diseases. This article suggests that implementing Osler's philosophy of medicine in psychiatry would greatly benefit the latter. It would inaugurate a new "biohumanistic" approach to psychiatry.
威廉·奥斯勒(William Osler, 1849-1919)通常被认为是科学医学出现过程中最有影响力的医生。然而,他的临床医学方法往往被误解,其与精神病学的相关性尚未被系统地探讨。奥斯勒对待病人的方法有四个组成部分:关于疾病的生物还原论、临床诊断的科学方法、治疗的保守主义和对待人的人文主义方法。这些概念与当代精神病学的实用主义、折衷主义、反简化主义的假设相冲突,正如其对“生物心理社会”模型的解释所编纂的那样。这种模式导致不科学的做法,过度使用针对症状的药物,忽视疾病的识别和治疗。本文认为,在精神病学中实施奥斯勒的医学哲学将大大有利于后者。它将开创一种新的精神病学“生物人文主义”方法。
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引用次数: 0
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