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"I Don't Know What to Say": A Multimodal Educational and Environmental Intervention to Improve Bedside Nursing Communication at End of Life. “我不知道该说什么”:一个多模式的教育和环境干预,以改善临终护理沟通。
IF 1.2 4区 医学 Q3 NURSING Pub Date : 2025-04-01 DOI: 10.1097/NJH.0000000000001084
Gregory Wolownik, Dorothy Wholihan

The American Association of Colleges of Nursing identifies palliative and hospice care as one of 4 core spheres of nursing in its new Essentials outcomes. However, research shows inpatient medical-surgical nurses are not adequately trained to deliver end-of-life (EOL) care. This lack of foundational learning leads to gaps when communicating with patients and families and negatively impacts quality of care. When a large urban hospital opened a specialty unit for comfort-focused EOL care, nurses felt unprepared to communicate effectively with patients and families. A literature review and staff interviews identified barriers to communication, such as lack of formal education and experience; personal, cultural, and emotional challenges; and high workload. A multimodal intervention focusing on improving staff nurse communication skills was designed. It included environmental cues, engaging pocket cards, and an education module on communication techniques. Data were collected on nurses' confidence and competence in EOL communication, and qualitative feedback on the usefulness of the interventions was obtained. Nurses demonstrated increased confidence and competence immediately following the education session, enduring at 4 weeks. Nurses reported pocket cards and posters were helpful clinical reminders. Innovative, clinically relevant interventions can positively impact communication skills without requiring increased time commitments or high cost.

美国护理学院协会确定姑息治疗和临终关怀作为护理的4个核心领域之一,在其新的基本成果。然而,研究表明,住院内科外科护士没有接受过足够的培训,无法提供临终护理。缺乏基础学习导致在与患者和家属沟通时存在差距,并对护理质量产生负面影响。当一家大型城市医院开设了一个以舒适为中心的EOL护理专业部门时,护士们感到没有准备好与患者和家属进行有效的沟通。文献综述和工作人员访谈确定了沟通障碍,如缺乏正规教育和经验;个人、文化和情感挑战;而且工作量大。设计了以提高护理人员沟通技巧为重点的多模式干预。它包括环境提示、引人入胜的口袋卡和交流技巧的教育模块。收集了护士对EOL沟通的信心和能力的数据,并获得了干预措施有效性的定性反馈。护士在教育课程结束后立即表现出增强的信心和能力,并持续到4周。护士报告说,口袋卡片和海报是有用的临床提醒。创新的、临床相关的干预措施可以对沟通技巧产生积极影响,而不需要增加时间承诺或高成本。
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引用次数: 0
Being in Community. 身处社区。
IF 1.2 4区 医学 Q3 NURSING Pub Date : 2025-04-01 DOI: 10.1097/NJH.0000000000001106
Betty R Ferrell
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引用次数: 0
A Rapid Review of Psychedelic-Assisted Therapy in the Context of Palliative Care. 姑息治疗背景下致幻剂辅助治疗的快速回顾。
IF 1.3 4区 医学 Q3 NURSING Pub Date : 2025-04-01 DOI: 10.1097/NJH.0000000000001113
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引用次数: 0
Communication Preferences in Pediatric Palliative Care: Insights From Caregivers and Specialists-A Central-Eastern European Perspective. 沟通偏好在儿童姑息治疗:从护理人员和专家的见解-中欧和东欧的观点。
IF 1.2 4区 医学 Q3 NURSING Pub Date : 2025-04-01 Epub Date: 2025-01-27 DOI: 10.1097/NJH.0000000000001099
Teodora Mathe, Nicoleta Mitrea, Camelia Ancuta, Carrie Cormack, Liliana Rogozea

Effective communication is crucial in pediatric palliative care and is essential to facilitate shared decision making between families and the health care team. This study explored the communication preferences of caregivers and health care specialists in Central-Eastern Europe, a region with unique cultural and health care dynamics. Through qualitative interviews, key communication style preferences and barriers were identified. The results affirm that caregivers need thorough information about their child's illness, symptoms, therapeutic options, and care plans. Pediatric palliative care specialists must deliver this information competently and compassionately. Both caregivers and specialists showed common preferences for clear, timely, and empathetic communication. However, specialists faced challenges in finding time within institutional frameworks to meet these communication needs effectively. These findings highlight the need for pediatric palliative care policies and practices that enable specialists to engage in meaningful, culturally sensitive communication, aligning with caregiver preferences while navigating health care system constraints to enhance caregiver satisfaction and improve patient outcomes.

有效的沟通在儿童姑息治疗中至关重要,对于促进家庭和卫生保健团队之间的共同决策至关重要。本研究探讨了中东欧地区护理人员和卫生保健专家的沟通偏好,这是一个具有独特文化和卫生保健动态的地区。通过定性访谈,确定了关键的沟通风格偏好和障碍。结果证实,照顾者需要全面的信息,他们的孩子的疾病,症状,治疗方案和护理计划。儿科姑息治疗专家必须有能力、有同情心地传递这些信息。护理人员和专家都表现出对清晰、及时和感同身受的沟通的共同偏好。然而,专家们面临着在体制框架内寻找时间来有效满足这些交流需要的挑战。这些发现强调了儿科姑息治疗政策和实践的必要性,使专家能够进行有意义的、文化敏感的沟通,在应对医疗保健系统限制的同时,与护理者的偏好保持一致,以提高护理者的满意度并改善患者的预后。
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引用次数: 0
Recognizing Grace in Grief Through Reflection in Nursing Education: A Qualitative Research Study. 在护理教育中通过反思认识悲伤中的恩典:定性研究。
IF 1.2 4区 医学 Q3 NURSING Pub Date : 2025-04-01 Epub Date: 2024-12-13 DOI: 10.1097/NJH.0000000000001094
Erin Thornton, Lindsey Moseley, Kelley Noll, Ann W Lambert

Diverse teaching and learning strategies are needed to develop emotionally intelligent new-graduate nurses who can empathetically care for dying patients. Reflective pedagogy, a teaching strategy that infuses reflection into education, is an effective strategy to enhance nursing student learning, educational enrichment, and emotional intelligence. This project aimed to explore nursing students' thoughts and feelings about end-of-life care through participation in the Grace in Grief intervention. This study examined the implementation of the student-centered intervention with mindful reflection and artistic expression to discuss emotions surrounding death and grief. The intervention was completed in a safe learning environment where course faculty facilitated the navigation of emotions, attitudes, and fears about death and how to care for dying patients and families through classroom discussion, artistic expression, and private reflection. After the intervention, students were asked to complete an online survey to reflect on the experience. Thematic analysis was used to analyze the students' responses to the survey. Four themes emerged from the qualitative analysis of open-ended responses. Summative themes indicated that educators could utilize reflection-based, student-centered learning activities to assist nursing students' development of emotional intelligence.

培养高情商的新毕业护士需要多样化的教学策略,使其能够同情地照顾临终病人。反思性教学法是一种将反思融入教育的教学策略,是提高护理学生学习能力、丰富教育内容和情商的有效策略。本研究旨在探讨护生透过参与“悲伤中的恩典”干预,对临终关怀的想法和感受。本研究探讨以学生为中心的正念反思与艺术表达干预,探讨死亡与悲伤情绪的实施情况。干预是在一个安全的学习环境中完成的,课程教师通过课堂讨论,艺术表达和私人反思,促进了对死亡的情绪,态度和恐惧的导航,以及如何照顾垂死的病人和家属。在干预之后,学生们被要求完成一份在线调查,以反映他们的经历。主题分析用于分析学生对调查的反应。从对开放式答复的定性分析中出现了四个主题。总结性主题表明,教育者可以利用反思为基础,以学生为中心的学习活动来帮助护生情商的发展。
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引用次数: 0
"More Areas of Grey": Ambiguities in Neuropalliative Care: Erratum. “更多的灰色区域”:神经姑息治疗的模糊性:勘误。
IF 1.2 4区 医学 Q3 NURSING Pub Date : 2025-04-01 DOI: 10.1097/NJH.0000000000001103
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引用次数: 0
The Intent of the Physician's Order for Life-Sustaining Treatment: Reflecting Patient Wishes and Institutional Obligations. 医生维持生命治疗指令的意图:反映病人意愿和机构义务。
IF 1.2 4区 医学 Q3 NURSING Pub Date : 2025-04-01 Epub Date: 2025-02-11 DOI: 10.1097/NJH.0000000000001093
Jeannette Jeannie Meyer

Portable Medical Orders (PMO) such as the Physician's Order for Life-Sustaining Treatment and the Medical Order for Life-Sustaining Treatment have proven to be valuable documents that allow patients who are medically frail or have life-limiting illnesses to communicate their health care wishes. Because these documents are in the form of a Physician's Order that can travel across multiple health care settings, they offer a form of certainty and reassurance for the patient that their wishes will be respected. The PMO depends on a conversation between the trained health care provider and the patient or their designee. The PMO functions as a legal document, communicating medical orders that must be followed and providing clinicians who do so with legal protection. The choices within (including resuscitation, treatment choices, and artificial feeding) must be understood by the patient in association with their own prognosis and health care status; the signatures within the form attest that a discussion of those choices has taken place and the patient understands not only their choices, but also the implications of them. A PMO with incomplete signatures is not a valid legal document. In the scenario presented here, the author discusses a scenario in which the discussions did not take place and the signatures are questionable, leading the patient to receive aggressive medical treatment that might not be in their best interests. The reasons behind the above ethical issues are related to a misconception and misuse of the PMO within a long-term care facility. Unfortunately, as noted in the literature cited and in the author's own experience, these ethical issues are not uncommon.

便携式医嘱(PMO),如《维持生命治疗医嘱》和《维持生命治疗医嘱》,已被证明是有价值的文件,可以让身体虚弱或患有限制生命疾病的患者传达他们的医疗保健愿望。由于这些文件以医生的医嘱形式存在,可以在多个医疗保健机构之间传递,因此它们为患者提供了一种确定性和保证,即他们的愿望将得到尊重。PMO取决于训练有素的卫生保健提供者与患者或其指定人员之间的对话。PMO作为一份法律文件,传达必须遵守的医疗命令,并为这样做的临床医生提供法律保护。内部选择(包括复苏、治疗选择和人工喂养)必须由患者根据自己的预后和卫生保健状况了解;表格内的签名证明已经对这些选择进行了讨论,患者不仅了解他们的选择,而且了解这些选择的含义。签名不完整的PMO不是有效的法律文件。在这里提出的情况下,提交人讨论了一种情况,在这种情况下,没有进行讨论,签名也有问题,导致患者接受可能不符合其最佳利益的积极治疗。上述伦理问题背后的原因与长期护理机构中对PMO的误解和滥用有关。不幸的是,正如引用的文献和作者自己的经历所指出的那样,这些伦理问题并不罕见。
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引用次数: 0
Association News. 协会的消息。
IF 1.2 4区 医学 Q3 NURSING Pub Date : 2025-04-01 DOI: 10.1097/NJH.0000000000001105
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引用次数: 0
The Necessity of Palliative Care Interventions in Emergency Departments: A Literature Review. 急诊科姑息治疗介入的必要性:文献回顾。
IF 1.2 4区 医学 Q3 NURSING Pub Date : 2025-04-01 Epub Date: 2024-11-21 DOI: 10.1097/NJH.0000000000001085
Austin DesJardin

Palliative care, a beacon of relief and comfort, ensures the best quality of life for patients nearing death, a patient population that often presents to emergency departments, by providing interventions to promote comfort and support final wishes. The purpose of this literature review was to examine the outcomes of palliative care interventions for adult patients with chronic illnesses who have died in emergency departments. The literature review was conducted in CINAHL, PubMed, SCOPUS, OVID, and APA Psych using the keywords "palliative," "emergency department," "adult," and "chronic disease." The search was limited to English language publications with no date limits and performed according to Preferred Reporting Items for Systematic reviews and Meta-Analysis statement standards. The search yielded 531 articles, with 226 duplicates excluded. After a review, only 16 articles met the inclusion criteria. Common interventions included implementing screening tools, enhancing communication skills, providing end-of-life care education, and health record alerts for palliative care criteria. This review highlights how critical palliative care interventions are needed in emergency departments. The inevitability of seriously ill patients presenting to emergency departments underscores the urgency and importance of palliative care interventions, leading to increased comfort and decreasing distressing symptoms experienced by dying patients.

姑息治疗是缓解和安慰的灯塔,通过提供干预措施,促进安慰和支持最后的愿望,确保接近死亡的患者的最佳生活质量,患者群体经常出现在急诊科。本文献综述的目的是检查在急诊科死亡的成年慢性疾病患者的姑息治疗干预的结果。文献综述在CINAHL、PubMed、SCOPUS、OVID和APA Psych上进行,关键词为“姑息治疗”、“急诊科”、“成人”和“慢性疾病”。检索仅限于没有日期限制的英文出版物,并根据系统评价和元分析声明标准的首选报告项目进行。检索结果为531篇文章,排除了226篇重复文章。经过审查,只有16篇文章符合纳入标准。常见的干预措施包括实施筛查工具、提高沟通技巧、提供临终关怀教育以及针对姑息治疗标准发出健康记录警报。这篇综述强调了急诊科如何需要关键的姑息治疗干预措施。重症患者到急诊科就诊的必然性强调了姑息治疗干预的紧迫性和重要性,从而增加了临终患者的舒适度,减少了临终患者的痛苦症状。
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引用次数: 0
Caring for Patients With Injection Drug Use-Associated Infective Endocarditis at the End of Life: A Modified Photo-Elicitation Phenomenological Study. 注射用药相关的感染性心内膜炎患者临终护理:一项改进的光激发现象学研究。
IF 1.2 4区 医学 Q3 NURSING Pub Date : 2025-04-01 Epub Date: 2024-11-29 DOI: 10.1097/NJH.0000000000001087
Kendrea Todt

Admissions for patients with injection drug use-associated infective endocarditis are increasing. Injection drug use-associated infective endocarditis is a serious and often fatal cardiac infection. Nurses are often frustrated when caring for these patients because these care assignments are physically and emotionally demanding. Nurses feel helpless, as they disposition young patients to a funeral homes, morgue, or hospice, or send them home to die, and yet a dearth of information regarding end-of-life care for injection drug use-associated infective endocarditis patients remains. This study explored the lived experiential impact these experiences have on nurses. The method was interpretive and participatory, a modified photo-elicitation phenomenological design. Twenty-nine nurses recruited by purposive sampling took photographs and wrote reflections, with 5 participating in an optional unstructured interview conducted by the author. Three themes emerged from the data that elucidated these experiences as (1) a "heartbreaking" experience to witness, (2) an "exhausting" experience to endure, and (3) a practice-altering experience that transforms. Data analysis reveals that nurses experience intense pain, exhaustion, and, yet, transformation, both negative and positive. Implications for nurses include the need for end-of-life education, formal debriefing process to mitigate turnover, and future research into nature-based therapies to help nurses process trauma, as a form of self-care.

因注射用药引起的感染性心内膜炎入院的患者越来越多。注射用药相关的感染性心内膜炎是一种严重且经常致命的心脏感染。护士在照顾这些病人时经常感到沮丧,因为这些护理任务对身体和情感都要求很高。护士感到无助,因为他们要把年轻病人送到殡仪馆、停尸房或临终关怀,或送他们回家等死,然而,关于注射药物使用相关的感染性心内膜炎患者的临终关怀的信息仍然缺乏。本研究探讨这些生活经验对护士的影响。该方法是解释性和参与性的,一种改进的照片启发现象学设计。通过有目的抽样招募的29名护士拍照并撰写感想,其中5名护士参加了作者进行的非结构化访谈。从数据中出现了三个主题,阐明了这些经历:(1)一种“令人心碎”的经历,(2)一种“令人筋疲力尽”的经历,以及(3)一种改变实践的经历。数据分析显示,护士经历了剧烈的疼痛,疲惫,以及消极和积极的转变。对护士的启示包括需要临终教育,正式的汇报过程以减少人员流失,以及未来研究以自然为基础的疗法来帮助护士处理创伤,作为一种自我护理的形式。
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引用次数: 0
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Journal of Hospice & Palliative Nursing
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