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Development of a new patient-reported outcome measure for Dupuytren disease: A study protocol. 针对杜普伊特伦病开发新的患者报告结果测量方法:研究方案。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.1177/14604582241301642
David Eckerdal, Per-Erik Lyrén, Jane McEachan, Anna Lauritzson, Jesper Nordenskjöld, Isam Atroshi

Objectives: Dupuytren disease is a common condition that causes progressive finger contractures resulting in impaired hand function and difficulties in performing daily activities. Patient reported outcome measures (PROMs) are commonly used in research and clinical practice to evaluate treatment outcomes. Both general upper extremity PROMs and Dupuytren-specific PROMs are available, typically developed using conventional methodology based on classical test theory. However, most current PROMs have been shown to have low responsiveness and the relevance of included items have been questioned. In this study we aim to develop a new Dupuytren-specific PROM using modern measurement methodology based on item response theory (IRT). Methods: The study will be performed in three phases. In Phase 1, (completed), an expert group developed a questionnaire with a large number of potentially relevant items derived from existing PROMs and patient collaboration. In Phase 2, the questionnaire will be administered to 300 patients with Dupuytren disease, and their responses will be analyzed with IRT methodology to identify the best performing items to be included in the new PROM. In Phase 3, the new PROM will be administered to 300 additional patients for validation. Conclusion: This new Dupuytren-specific patient-reported outcome measure will help advance clinical research on Dupuytren disease.

目的:杜普伊特伦(Dupuytren)病是一种常见病,会导致进行性手指挛缩,从而损害手部功能,给日常活动带来困难。患者报告结果测量(PROMs)通常用于研究和临床实践,以评估治疗效果。目前已有通用的上肢 PROM 和杜普伊特伦专用的 PROM,它们通常采用基于经典测试理论的传统方法开发。然而,目前大多数 PROM 都被证明响应度较低,所包含项目的相关性也受到质疑。在本研究中,我们旨在采用基于项目反应理论(IRT)的现代测量方法,开发一种新的杜普伊特伦特异性 PROM。研究方法:研究将分三个阶段进行。在第一阶段(已完成),一个专家小组从现有的 PROM 和患者合作中开发了一份问卷,其中包含大量潜在的相关项目。在第二阶段,将对 300 名杜普伊特伦病患者进行问卷调查,并采用 IRT 方法对他们的回答进行分析,以确定将纳入新 PROM 的表现最佳的项目。在第三阶段,将对另外 300 名患者进行新的 PROM 验证。结论这种新的杜普伊特伦特异性患者报告结果测量法将有助于推进杜普伊特伦病的临床研究。
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引用次数: 0
BoneScore: A natural language processing algorithm to extract bone mineral density data from DXA scans. BoneScore:从 DXA 扫描中提取骨矿物质密度数据的自然语言处理算法。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.1177/14604582241295930
Samah Fodeh, Rixin Wang, Terrence E Murphy, Farah Kidwai-Khan, Linda S Leo-Summers, Baylah Tessier-Sherman, Evelyn Hsieh, Julie A Womack

Objective: To develop and test an NLP algorithm that accurately detects the presence of information reported from DXA scans containing femoral neck T-scores of the patients scanned. Methods: A rule-based NLP algorithm that iteratively built a collection of regular expressions in testing data consisting of 889 snippets of text pulled from DXA reports. This was manually checked by clinical experts to determine the proportion of manually verified annotations that contained T-score information detected by this algorithm called 'BoneScore'. Testing of 30- and 50-word lengths on each side of the key term 'femoral' were pursued until achievement of adequate accuracy. A separate clinical validation regressed the extracted T-score values on five risk factors with established associations. Results: BoneScore built a set of 20 regular expressions that in concert with a width of 50 words on each side of the key term yielded an accuracy of 98% in the testing data. The extracted T-scores, when modeled with multivariable linear regression, consistently exhibited associations supported by the literature. Conclusion: BoneScore uses regular expressions to accurately extract annotations of T-score values of bone mineral density with a width of 50 words on each side of the key term. The extracted T-scores exhibit clinical face validity.

目的开发并测试一种 NLP 算法,该算法可准确检测 DXA 扫描报告中是否存在包含被扫描患者股骨颈 T 值的信息。方法: 基于规则的 NLP 算法:采用基于规则的 NLP 算法,在从 DXA 报告中提取的 889 个文本片段组成的测试数据中迭代建立正则表达式集合。临床专家对此进行了人工检查,以确定经人工验证的注释中包含该算法检测到的 T 评分信息的比例,该算法称为 "BoneScore"。在关键术语 "股骨 "的两侧分别测试了 30 和 50 个字的长度,直到达到足够的准确性。另外还进行了临床验证,将提取的 T 评分值与五个已确定关联的风险因素进行回归。结果BoneScore 建立了一套 20 个正则表达式,配合关键字每边 50 个字的宽度,测试数据的准确率达到 98%。用多元线性回归建模时,提取的 T 值始终显示出文献支持的关联性。结论BoneScore 使用正则表达式准确提取了骨矿物质密度 T 分数值的注释,关键术语每边宽度为 50 个单词。提取的 T 值具有临床表面有效性。
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引用次数: 0
Creating and implementing a medical consultation recording app: Improving health information recall and shared decision-making with My Care Conversations. 创建并实施医疗咨询记录应用程序:通过 "我的护理对话 "改进健康信息回忆和共同决策。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.1177/14604582241300304
Linda Watson, Se'era May Anstruther, Claire Link, Siwei Qi, Andrea DeIure, Dean Ruether

Research indicates that recording medical consultations benefits patients by helping them recall information pertinent to their care. Cancer Care Alberta set out to develop a mobile recording app to enable patients to safely and securely record appointments and take notes. Stakeholder engagement was conducted with patients, healthcare providers, and the Alberta Health Services Legal & Privacy team. App testing was completed with patient and family advisors. The app was piloted in a clinic to assess workflow impacts before moving to a public launch. The app launched in late November 2018 and continues to be used by patients in the cancer program and beyond. Earlier in 2024, the app underwent additional testing with advisors and user-friendly improvements were made based on feedback and previous user reviews. This article summarizes the development, implementation, and sustainment of the My Care Conversations app. Implementation challenges and effective strategies are highlighted.

研究表明,记录医疗咨询有助于患者回忆起与护理相关的信息,从而使患者受益。艾伯塔癌症护理部着手开发一款移动记录应用程序,使患者能够安全可靠地记录预约和笔记。我们与患者、医疗服务提供者以及艾伯塔省卫生服务法律与隐私团队进行了利益相关者参与。与患者和家属顾问一起完成了应用程序测试。该应用程序在一家诊所试用,以评估工作流程的影响,然后再向公众推出。该应用程序于 2018 年 11 月底推出,并继续被癌症项目内外的患者使用。2024 年早些时候,该应用程序接受了顾问的额外测试,并根据反馈意见和之前的用户评论对用户友好性进行了改进。本文总结了 "我的护理对话 "应用程序的开发、实施和维护情况。重点介绍了实施过程中遇到的挑战和有效策略。
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引用次数: 0
"It tracks me!": An analysis of apple watch nudging and user adoption mechanisms. "它能追踪我!":苹果手表的诱导和用户采用机制分析。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.1177/14604582241291405
Grigorios Asimakopoulos, Stavros Asimakopoulos, Frank Spillers

Objective: The current study aims to understand how Apple Watch helped users maintain wellness routines during the COVID-19 lockdown period, where access to public gyms and spaces was curtailed. We explore the effectiveness of biofeedback engagement aspects of Apple Watch: goals, alerts and notifications, and sociability aspects of the device or social interaction with other users. Methods: We report the results of a 2-week digital diary study based in the United States with 10 adults with 6 months or longer exposure to Apple Watch, followed by online survey responses gathered from 330 additional users. Results: The study findings show how Apple Watch transforms notifications from distractions into positive wellness tools. Data suggests that personal context (custom goals and supported intent) combined with motivational nudges from alerts and notifications as well as contextually triggered nudges contribute to Apple Watch user adoption and satisfaction. Conclusion: This study highlights how Apple Watch transforms notifications from distractions into positive wellness tools; emphasizing the importance of balancing nudging with customization with user control. Sociability and privacy remain crucial, especially with biofeedback-enabled fitness trackers. We conclude that Apple Watch enhances user engagement by triggering context-relevant interactions, nudging users to achieve their goals through small, motivated behaviors.

研究目的目前的研究旨在了解 Apple Watch 如何帮助用户在 COVID-19 封锁期间保持健康生活方式,在封锁期间,用户无法进入公共健身房和场所。我们探讨了 Apple Watch 在生物反馈参与方面的有效性:目标、提醒和通知,以及设备的社交性或与其他用户的社交互动。研究方法我们在美国对 10 名接触 Apple Watch 6 个月或更长时间的成年人进行了为期 2 周的数字日记研究,随后又对另外 330 名用户进行了在线调查。研究结果研究结果表明,Apple Watch 如何将通知从分散注意力的工具转变为积极的健康工具。数据表明,个人情境(自定义目标和支持意图)与来自提醒和通知的激励性提示以及情境触发的提示相结合,有助于提高 Apple Watch 用户的采用率和满意度。结论本研究强调了 Apple Watch 如何将通知从分散注意力的工具转变为积极的健康工具;强调了在用户控制与定制之间平衡提示的重要性。社交性和隐私性仍然至关重要,尤其是对于具有生物反馈功能的健身追踪器而言。我们的结论是,Apple Watch 通过触发与上下文相关的互动来提高用户的参与度,通过激励用户的小行为来实现他们的目标。
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引用次数: 0
Ensuring the integrity assessment of IoT medical sensors using hesitant fuzzy sets. 使用犹豫模糊集确保物联网医疗传感器的完整性评估。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.1177/14604582241301019
Waeal J Obidallah

Objective: The Internet of Medical Things (IoMT) is transforming healthcare systems, but concerns about device integrity and sensitive data are growing. The study aims to develop a framework for evaluating and prioritizing integrity schemes in healthcare for IoT-based medical sensor devices, addressing the challenges of selecting the right authentication solution due to its complexity and intricacy. Methods: A unified health-hesitant fuzzy expert system for IoMT sensor integrity assessment in Saudi Arabia is described in this paper. Medical sensor integrity literature and professionals are contacted first. Delphi is used to gather attributes of integrity approaches while an Internet of Things medical sensor integrity specialist supervises the operation. After collecting characteristics, good assessment criteria are created and the hesitant fuzzy analytic network procedure is used to assess integrity. Results: Functional integrity and measurement accuracy are the biggest factors in IoMT sensor security and integrity, according to assessment. The framework achieves 93%, 94%, and 95% precision, accuracy, and recall compared to current approaches. The framework helps healthcare integrity security professionals and stakeholders assess and resolve IoT medical sensor authentication issues. Conclusion: This health-hesitant fuzzy expert system will let Saudi Arabian and international healthcare stakeholders safely deploy IoMT sensors in the changing healthcare landscape.

目的:医疗物联网(IoMT)正在改变医疗保健系统,但人们对设备完整性和敏感数据的担忧与日俱增。本研究旨在为基于物联网的医疗传感器设备开发一个框架,用于评估和优先考虑医疗保健领域的完整性方案,解决因其复杂性和错综复杂性而难以选择正确认证解决方案的难题。方法本文介绍了用于沙特阿拉伯物联网医疗传感器完整性评估的统一健康hesitant模糊专家系统。首先联系了医疗传感器完整性文献和专业人士。在物联网医疗传感器完整性专家的监督下,使用德尔菲法收集完整性方法的属性。收集特征后,创建良好的评估标准,并使用犹豫模糊分析网络程序来评估完整性。结果:根据评估结果,功能完整性和测量准确性是影响物联网医疗传感器安全性和完整性的最大因素。与目前的方法相比,该框架的精确度、准确度和召回率分别达到了 93%、94% 和 95%。该框架可帮助医疗完整性安全专业人员和利益相关者评估并解决物联网医疗传感器认证问题。结论该健康风险模糊专家系统将使沙特阿拉伯和国际医疗保健利益相关者在不断变化的医疗保健环境中安全地部署物联网医疗传感器。
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引用次数: 0
Reducing bias in healthcare artificial intelligence: A white paper. 减少医疗人工智能中的偏见:白皮书。
IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-01 DOI: 10.1177/14604582241291410
Carolyn Sun, Shannon L Harris

Objective: Mitigation of racism in artificial intelligence (AI) is needed to improve health outcomes, yet no consensus exists on how this might be achieved. Methods: At an international conference in 2022, experts gathered to discuss strategies for reducing bias in healthcare AI. Results: This paper delineates these strategies along with their corresponding strengths and weaknesses and reviews the existing literature on these strategies. Conclusions: Five major themes resulted: reducing dataset bias, accurate modeling of existing data, transparency of artificial intelligence, regulation of artificial intelligence and the people who develop it, and bringing stakeholders to the table.

目的:要想改善健康状况,就必须减少人工智能(AI)中的种族主义,但对于如何做到这一点,目前还没有达成共识。方法:在 2022 年的一次国际会议上,专家们齐聚一堂,讨论减少医疗人工智能中偏见的策略。结果:本文阐述了这些策略及其相应的优缺点,并回顾了有关这些策略的现有文献。结论会议提出了五大主题:减少数据集偏差、现有数据的精确建模、人工智能的透明度、人工智能及其开发人员的监管,以及让利益相关者参与讨论。
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引用次数: 0
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