Pub Date : 2024-10-01Epub Date: 2024-09-19DOI: 10.4078/jrd.2024.0091
Jin Kyun Park
{"title":"Giant cell arteritis in South Korea.","authors":"Jin Kyun Park","doi":"10.4078/jrd.2024.0091","DOIUrl":"10.4078/jrd.2024.0091","url":null,"abstract":"","PeriodicalId":56161,"journal":{"name":"Journal of Rheumatic Diseases","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11439629/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142360700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2024-02-23DOI: 10.4078/jrd.2023.0071
Hend Alkwai, Reem Alshammari, Reem Abdwani, Muna Almutairi, Raed Alzyoud, Thaschawee Arkachaisri, Sumaira Farman, Soad Hashad, Rebecca James, Khulood Khawaja, Hala Lotfy, Swee Ping Tang, Soamarat Vilaiyuk, Sulaiman M Al-Mayouf
Objective: To develop a set of quality indicators (QIs) tailored to improve the care provided to children with juvenile idiopathic arthritis (JIA) in countries across the Asia-Pacific region.
Methods: An adaptation of the Research and Development Corporation (RAND)/University of California, Los Angeles (UCLA) Appropriateness Method (RAM) was used. An initial set of 32 QIs was developed after a systematic search of the literature. These were presented to members of a Delphi panel composed of pediatric rheumatologists and other relevant stakeholders from the Asia Pacific League of Associations for Rheumatology Pediatric Special Interest Group (APLAR-Pediatric SIG). After each round, the mean scores for validity and reliability, level of disagreement, and median absolute deviation from the mean were calculated.
Results: The panelists were presented with 32 QIs in two rounds of voting, resulting in the formulation of a final set of 22 QIs for JIA. These QIs are categorized within six domains of care, including access to care, clinical assessment, medications and medication monitoring, screening for comorbidities, counseling, and self-efficacy and satisfaction with care.
Conclusion: These QIs have been developed to evaluate and improve the quality of care provided to children with JIA, aiming to enhance health outcomes and ensure that healthcare services are tailored to the unique needs of this patient population.
{"title":"Quality indicators for care in juvenile idiopathic arthritis.","authors":"Hend Alkwai, Reem Alshammari, Reem Abdwani, Muna Almutairi, Raed Alzyoud, Thaschawee Arkachaisri, Sumaira Farman, Soad Hashad, Rebecca James, Khulood Khawaja, Hala Lotfy, Swee Ping Tang, Soamarat Vilaiyuk, Sulaiman M Al-Mayouf","doi":"10.4078/jrd.2023.0071","DOIUrl":"10.4078/jrd.2023.0071","url":null,"abstract":"<p><strong>Objective: </strong>To develop a set of quality indicators (QIs) tailored to improve the care provided to children with juvenile idiopathic arthritis (JIA) in countries across the Asia-Pacific region.</p><p><strong>Methods: </strong>An adaptation of the Research and Development Corporation (RAND)/University of California, Los Angeles (UCLA) Appropriateness Method (RAM) was used. An initial set of 32 QIs was developed after a systematic search of the literature. These were presented to members of a Delphi panel composed of pediatric rheumatologists and other relevant stakeholders from the Asia Pacific League of Associations for Rheumatology Pediatric Special Interest Group (APLAR-Pediatric SIG). After each round, the mean scores for validity and reliability, level of disagreement, and median absolute deviation from the mean were calculated.</p><p><strong>Results: </strong>The panelists were presented with 32 QIs in two rounds of voting, resulting in the formulation of a final set of 22 QIs for JIA. These QIs are categorized within six domains of care, including access to care, clinical assessment, medications and medication monitoring, screening for comorbidities, counseling, and self-efficacy and satisfaction with care.</p><p><strong>Conclusion: </strong>These QIs have been developed to evaluate and improve the quality of care provided to children with JIA, aiming to enhance health outcomes and ensure that healthcare services are tailored to the unique needs of this patient population.</p>","PeriodicalId":56161,"journal":{"name":"Journal of Rheumatic Diseases","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11439632/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142360703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2024-08-27DOI: 10.4078/jrd.2024.0040
Vitaly Omelchenko, Elena Letyagina, Maxim Korolev
Osteopoikilosis (OPK) is a rare benign congenital genetic-mediated sclerosing skeletal disease, characterized by the formation of osteosclerosis foci. OPK is usually clinically asymptomatic, but some patients (15%~20%) may have arthralgia and synovitis. OPK may be associated with rheumatic diseases and might lead to unreasonable over-examination in real clinical practice. Single cases of the OPK together with ankylosing spondylitis (AS) have been described. Here we present a 33-year-old patient diagnosed with AS coexisting with OPK. In the case considered, the combination of AS and OPK accompanied with a high activity of inflammation, peripheral arthritis, a rapid rate of structural progression in axial skeleton, inefficiency of disease-modifying antirheumatic drugs and nonsteroidal anti-inflammatory drugs, a lack of response to anti interleukin-17 and a good response to a tumor necrosis factor inhibitor golimumab. We describe the important points of differential diagnosis associated with the identification of focal changes in bone tissue, especially neoplastic lesion. Foci revealed had typical localization, so, acquaintance of practicing doctors with such rare cases would minimize unnecessary examinations.
{"title":"Osteopoikilosis in a young ankylosing spondylitis patient.","authors":"Vitaly Omelchenko, Elena Letyagina, Maxim Korolev","doi":"10.4078/jrd.2024.0040","DOIUrl":"10.4078/jrd.2024.0040","url":null,"abstract":"<p><p>Osteopoikilosis (OPK) is a rare benign congenital genetic-mediated sclerosing skeletal disease, characterized by the formation of osteosclerosis foci. OPK is usually clinically asymptomatic, but some patients (15%~20%) may have arthralgia and synovitis. OPK may be associated with rheumatic diseases and might lead to unreasonable over-examination in real clinical practice. Single cases of the OPK together with ankylosing spondylitis (AS) have been described. Here we present a 33-year-old patient diagnosed with AS coexisting with OPK. In the case considered, the combination of AS and OPK accompanied with a high activity of inflammation, peripheral arthritis, a rapid rate of structural progression in axial skeleton, inefficiency of disease-modifying antirheumatic drugs and nonsteroidal anti-inflammatory drugs, a lack of response to anti interleukin-17 and a good response to a tumor necrosis factor inhibitor golimumab. We describe the important points of differential diagnosis associated with the identification of focal changes in bone tissue, especially neoplastic lesion. Foci revealed had typical localization, so, acquaintance of practicing doctors with such rare cases would minimize unnecessary examinations.</p>","PeriodicalId":56161,"journal":{"name":"Journal of Rheumatic Diseases","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11439639/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142360701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Min Jung Kim, Jun Won Park, Sun-Kyung Lee, Yumi Jang, Soyoung Kim, Matthias Stoelzel, Jonathan Lumen Chua, Kichul Shin
[This corrects the article on p. 26 in vol. 30, PMID: 37476522.].
[此处更正了第 30 卷第 26 页的文章,PMID:37476522]。
{"title":"Corrigendum: Treatment sequence after initiating biologic therapy for patients with rheumatoid arthritis in Korea: a nationwide retrospective cohort study.","authors":"Min Jung Kim, Jun Won Park, Sun-Kyung Lee, Yumi Jang, Soyoung Kim, Matthias Stoelzel, Jonathan Lumen Chua, Kichul Shin","doi":"10.4078/jrd.22.0024C","DOIUrl":"https://doi.org/10.4078/jrd.22.0024C","url":null,"abstract":"<p><p>[This corrects the article on p. 26 in vol. 30, PMID: 37476522.].</p>","PeriodicalId":56161,"journal":{"name":"Journal of Rheumatic Diseases","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11439631/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142360699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2024-08-02DOI: 10.4078/jrd.2024.0077
Se Rim Choi, Soo-Kyung Cho, Yoon-Kyoung Sung
Effective management of rheumatoid arthritis (RA) necessitates the accurate measurement of disease activity using a treat-to-target strategy established as a cornerstone approach. Disease activity assessment tools such as the Disease Activity Score in 28 joints (DAS28), Simplified Disease Activity Index, Clinical Disease Activity Index, and Routine Assessment of Patient Index Data 3 have been internationally validated and recognised. In Korea, the government initiated a quality assessment program mandating routine measurement of DAS28 to ensure high-quality RA management. However, whether the DAS28 is the most suitable disease activity measurement tool in the Korean clinical environment is a topic worth considering. In this review, we comprehensively examined disease activity measurement tools and their performance in the Korean context. We also propose a new strategy for measuring RA disease activity, tailored to the different situations encountered by physicians in routine clinical practice. This review may contribute to the improvement of the quality of care for patients with RA in Korea.
要对类风湿关节炎(RA)进行有效管理,就必须采用 "靶向治疗 "策略,准确测量疾病活动度,并将此作为基础方法。疾病活动性评估工具,如28个关节的疾病活动性评分(DAS28)、简化疾病活动性指数、临床疾病活动性指数和患者指数数据常规评估3,已在国际上得到验证和认可。在韩国,政府启动了一项质量评估计划,强制要求对 DAS28 进行常规测量,以确保高质量的 RA 管理。然而,在韩国的临床环境中,DAS28是否是最合适的疾病活动度测量工具是一个值得思考的问题。在这篇综述中,我们全面考察了疾病活动度测量工具及其在韩国环境中的表现。我们还针对医生在日常临床实践中遇到的不同情况,提出了一种测量 RA 疾病活动度的新策略。本综述可能有助于提高韩国 RA 患者的护理质量。
{"title":"Application of disease activity index in rheumatoid arthritis management in Korea.","authors":"Se Rim Choi, Soo-Kyung Cho, Yoon-Kyoung Sung","doi":"10.4078/jrd.2024.0077","DOIUrl":"10.4078/jrd.2024.0077","url":null,"abstract":"<p><p>Effective management of rheumatoid arthritis (RA) necessitates the accurate measurement of disease activity using a treat-to-target strategy established as a cornerstone approach. Disease activity assessment tools such as the Disease Activity Score in 28 joints (DAS28), Simplified Disease Activity Index, Clinical Disease Activity Index, and Routine Assessment of Patient Index Data 3 have been internationally validated and recognised. In Korea, the government initiated a quality assessment program mandating routine measurement of DAS28 to ensure high-quality RA management. However, whether the DAS28 is the most suitable disease activity measurement tool in the Korean clinical environment is a topic worth considering. In this review, we comprehensively examined disease activity measurement tools and their performance in the Korean context. We also propose a new strategy for measuring RA disease activity, tailored to the different situations encountered by physicians in routine clinical practice. This review may contribute to the improvement of the quality of care for patients with RA in Korea.</p>","PeriodicalId":56161,"journal":{"name":"Journal of Rheumatic Diseases","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11439630/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142360698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kyung-Su Park, Seung Min Jung, Yune-Jung Park, Ki-Jo Kim
{"title":"Calcific periarthritis of the hand showing a variable disease course","authors":"Kyung-Su Park, Seung Min Jung, Yune-Jung Park, Ki-Jo Kim","doi":"10.4078/jrd.2024.0061","DOIUrl":"https://doi.org/10.4078/jrd.2024.0061","url":null,"abstract":"","PeriodicalId":56161,"journal":{"name":"Journal of Rheumatic Diseases","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141809156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Early human migration determines the risk of being attacked by wolves: ethnic gene diversity on the development of systemic lupus erythematosus","authors":"So-Young Bang, Seung Cheol Shim","doi":"10.4078/jrd.2024.0051","DOIUrl":"https://doi.org/10.4078/jrd.2024.0051","url":null,"abstract":"","PeriodicalId":56161,"journal":{"name":"Journal of Rheumatic Diseases","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141810576","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kyung-Ann Lee, Sooyoung Kim, Ho-Yeon Song, Moon Kyun Cho, Hyun-Sook Kim
{"title":"A pilot study of skin barrier function in patients with systemic sclerosis and primary Sjögren’s syndrome","authors":"Kyung-Ann Lee, Sooyoung Kim, Ho-Yeon Song, Moon Kyun Cho, Hyun-Sook Kim","doi":"10.4078/jrd.2024.0032","DOIUrl":"https://doi.org/10.4078/jrd.2024.0032","url":null,"abstract":"","PeriodicalId":56161,"journal":{"name":"Journal of Rheumatic Diseases","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141648053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alhanouf Adnan Alsharif, Abdulaziz Marzouq Almutairi, E. Basahl, A. Alshathri, J. Kari, Mohammed Ahmad Shalaby, Mohammed Nashawi
{"title":"Juvenile lupus-like with negative serology: a clinical dilemma and diagnostic challenge","authors":"Alhanouf Adnan Alsharif, Abdulaziz Marzouq Almutairi, E. Basahl, A. Alshathri, J. Kari, Mohammed Ahmad Shalaby, Mohammed Nashawi","doi":"10.4078/jrd.2024.0030","DOIUrl":"https://doi.org/10.4078/jrd.2024.0030","url":null,"abstract":"","PeriodicalId":56161,"journal":{"name":"Journal of Rheumatic Diseases","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141669773","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}