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Erratum to "A documentary analysis of Victorian Government health information assets' websites to identify availability of documentation for data sharing and reuse in Australia". “对维多利亚州政府健康信息资产网站的文件分析,以确定澳大利亚数据共享和重复使用文件的可用性”的勘误表。
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引用次数: 0
Workforce survey of Australian health information management graduates, 2017-2021: A 5-year follow-on study. 2017-2021年澳大利亚健康信息管理专业毕业生劳动力调查:5年后续研究。
Stephanie Gjorgioski, Merilyn Riley, Jenn Lee, Natasha Prasad, Melanie Tassos, Abbey Nexhip, Sally Richardson, Kerin Robinson

Background: Employment outcomes of La Trobe University's 2012-2016 health information manager (HIM) graduate cohort were reported previously. Objectives: To identify the 2017-2021 Australia-based, graduate HIMs' early career employment experiences; identify employment roles and destinations; investigate knowledge and skill sets utilised in professional performance; and compare outcomes with the previous study. Method: A cross-sectional design was utilised. An online survey elicited: demographic data, position-related details and knowledge-skills applied in the workplace. Inter- and intra-cohort comparisons were calculated. Results: Of contactable graduates, 75% (n = 150) completed the survey; 90% (n = 132) had held at least one profession-related position postgraduation; 51% gained employment before final examinations and 92% within 6 months. In their first role, 87% joined the public healthcare sector, 47% had worked in two or more positions and 12.3% in three or more positions. Categorisation of position titles showed that 40% had undertaken "health information management" roles, 14.9% "health classification," 16.6% "data management and analytics," 17.4% "health ICT" and 11.1% "other," roles. Almost two-thirds (64.1%) had utilised three or four of the four professional knowledge-skill domains. There was an increase, from the 2012 to 2016 cohort, in those undertaking "data management and analytics" and "health ICT" roles, and a decrease in "health classification" role uptake. Conclusion: Early-career HIMs have very high employability. They engage throughout health care, predominately in the public health sector. Their mobility reflects national workforce trends. The majority utilise all or most of the professional knowledge-skill domains studied at university.

背景:拉筹伯大学2012-2016年健康信息管理(HIM)研究生群体的就业结果已有报道。目标:确定2017-2021年澳大利亚高中毕业生的早期职业生涯就业经历;确定就业角色和目的地;调查专业表现中使用的知识和技能;并将结果与之前的研究进行比较。方法:采用横断面设计。一项在线调查得出:人口统计数据、职位相关细节和工作场所应用的知识技能。计算了队列间和队列内的比较。结果:在可联系的毕业生中,75%(n = 150)完成调查;90%(n = 132)毕业后至少担任过一个与专业相关的职位;51%的人在期末考试前就业,92%的人在6年内就业 月。在他们的第一个职位上,87%的人加入了公共医疗部门,47%的人曾担任过两个或两个以上职位,12.3%的人担任过三个或三个以上职位。职位头衔分类显示,40%的人担任过“健康信息管理”职位,14.9%的人担任了“健康分类”职位,16.6%的人从事了“数据管理和分析”职位,17.4%的人承担了“健康信息通信技术”职位,11.1%的人担任了“其他”职位。近三分之二(64.1%)的人使用了四个专业知识技能领域中的三到四个。从2012年到2016年,承担“数据管理和分析”和“卫生信息通信技术”角色的人数有所增加,而承担“卫生分类”角色的人有所减少。结论:早期职业HIM具有很高的就业能力。他们参与整个医疗保健,主要是公共卫生部门。他们的流动性反映了全国劳动力的趋势。大多数人利用大学学习的全部或大部分专业知识技能领域。
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引用次数: 0
Exploring maturity of electronic medical record use among allied health professionals. 探索专职医疗人员使用电子病历的成熟度。
Maria Schwarz, Elizabeth C Ward, Anne Coccetti, Joshua Simmons, Sara Burrett, Philip Juffs, Kristy Perkins

Background: Electronic medical records (EMRs) have the potential to improve and streamline the quality and safety of patient care. Harnessing the full benefits of EMR implementation depends on the utilisation of advanced features, defined as "mature usage." At present, little is known about the maturity of EMR usage by allied health professionals (AHPs).

Objective: To examine current maturity of EMR use by AHPs and explore perceived barriers to mature EMR utilisation and optimisation.

Method: AHPs were recruited from three health services. Participants completed a 27-question electronic questionnaire based on the EMR Adoption Framework, which measures clinician EMR utilisation (0 = paper chart, 5 = theoretical maximum) across 10 EMR feature categories. Interviews were conducted with both clinicians and managers to explore the nature of current EMR utilisation and perceived facilitators and barriers to mature usage.

Results: Questionnaire responses were obtained from 193 participants AHPs. The majority of questions (74%) showed a mean score of <3, indicating a lack of mature EMR use. Pockets of mature usage were identified in the categories of health information, referrals and administration processes. Interviews with 21 clinicians and managers revealed barriers to optimisation across three themes: (1) limited understanding of EMR opportunities; (2) complexity of the EMR change process and (3) end-user and environmental factors.

Conclusion: Mature usage across EMR feature categories of the EMR Adoption Framework was low. However, questionnaire and qualitative interview data suggested pockets of mature utilisation.

Implications: Achieving mature allied health EMR use will require strategies implemented at the clinician, EMR support, and service levels.

背景:电子病历(EMR)具有改善和简化病人护理质量和安全的潜力。要充分发挥电子病历的优势,有赖于先进功能的使用,即 "成熟使用"。目前,人们对专职医疗人员(AHPs)使用电子病历的成熟度知之甚少:目的:研究专职医疗人员目前使用电子病历的成熟度,并探讨他们在使用和优化电子病历时遇到的障碍:方法:从三家医疗服务机构招募了AHPs。方法:从三家医疗服务机构招募了AHPs,参与者根据EMR采用框架完成了一份包含27个问题的电子问卷,该框架测量了临床医生在10个EMR功能类别中的EMR使用情况(0=纸质图表,5=理论最大值)。此外,还对临床医生和管理人员进行了访谈,以了解他们目前使用电子病历的情况,以及他们认为成熟使用电子病历的促进因素和障碍:193名AHP参与了问卷调查。大多数问题(74%)的平均得分为 "结论":在 EMR 采用框架的 EMR 特征类别中,成熟使用率较低。然而,问卷调查和定性访谈数据表明,有一些地方的使用情况已经成熟:实现专职医疗电子病历的成熟使用需要在临床医生、电子病历支持和服务层面实施策略。
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引用次数: 0
Electronic health records post-implementation challenges in selected hospitals: A qualitative study in the Central Region of southern Ghana. 电子健康记录在选定医院实施后面临的挑战:加纳南部中部地区的一项定性研究。
Nathan K Mensah, Richard O Boadu, Godwin Adzakpah, Obed U Lasim, Ruth D Amuakwa, Hannah B Taylor-Abdulai, Samuel T Chatio

Background: Electronic health records (EHRs) are useful tools in healthcare settings but implementation in low and middle-income countries (LMIC) face challenges.

Objective: To explore post-implementation challenges affecting the deployment of EHRs and their use in selected health facilities in Ghana.

Method: Using a qualitative research approach, 21 in-depth interviews were conducted with health workers in two hospitals in the study area in Ghana, in February and June 2020. Purposive sampling was used to select participants. All interviews were audio recorded, transcribed, and coded into themes using QSR Nvivo12 software to aid thematic analyses.

Results: Post-implementation challenges were grouped into lack of technological, logistical and managerial support, and inadequate training. Inadequate equipment was the most reported post-implementation challenge that affected EHR use. Unreliable Internet and network connectivity was a source of frustration, which caused staff to develop negative attitudes towards use of the system. Lack of funding stalled implementation of the system and limited its use to critical care units only. It was also the reason replacement of equipment delayed.

Conclusion: While EHR post-implementation challenges facing health facilities are surmountable, managerial support, backed with the requisite logistical and technical support is needed. It is not enough to rely on funding; health institutions should prioritise emerging EHR post-implementation challenges in their operating budgets.

Implications: A national framework is needed to guide effective and sustainable EHR implementation across the country.

背景:电子健康记录(EHRs)是医疗保健环境中的有用工具,但在低收入和中等收入国家(LMIC)的实施面临挑战。目的:探讨影响电子病历部署及其在加纳选定卫生机构使用的实施后挑战。方法:采用定性研究方法,于2020年2月和6月对加纳研究地区两家医院的卫生工作者进行了21次深度访谈。采用有目的抽样的方法选择研究对象。使用QSR Nvivo12软件对所有访谈进行录音、转录并编码为主题,以辅助主题分析。结果:实施后的挑战分为缺乏技术、后勤和管理支持以及培训不足。设备不足是影响电子病历使用的最常见的实施后挑战。不可靠的互联网和网络连接是令人沮丧的根源,这使工作人员对使用该系统产生消极态度。缺乏资金阻碍了该系统的实施,并限制了其在重症监护病房的使用。这也是设备更换延迟的原因。结论:虽然卫生设施面临的电子健康档案实施后的挑战是可以克服的,但需要管理支持,以及必要的后勤和技术支持。光靠资金是不够的;卫生机构应在其业务预算中优先考虑电子病历实施后出现的挑战。影响:需要一个国家框架来指导全国有效和可持续的电子病历实施。
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引用次数: 6
Use of linked patient data to assess the effect of Long-COVID on system-wide healthcare utilisation. 使用关联的患者数据评估长冠状病毒对全系统医疗保健利用的影响。
Ben J Murch, Sarah E Hollier, Charlie Kenward, Richard M Wood

Background: Within the relatively early stages of the COVID-19 pandemic, there had been an awareness of the potential longer-term effects of infection (so called Long-COVID) but little was known of the ongoing demands such patients may place on healthcare services. Objective: To investigate whether COVID-19 illness is associated with increased post-acute healthcare utilisation. Method: Using linked data from primary care, secondary care, mental health and community services, activity volumes were compared across the 3 months preceding and proceeding COVID-19 diagnoses for 7,791 individuals, with a distinction made between whether or not patients were hospitalised for treatment. Differences were assessed against those of a control group containing individuals who had not received a COVID-19 diagnosis. All data were sourced from the authors' healthcare system in South West England. Results: For hospitalised COVID-19 cases, a statistically significant increase in non-elective admissions was identified for males and females <65 years. For non-hospitalised cases, statistically significant increases were identified in GP Doctor and Nurse attendances and GP prescriptions (males and females, all ages); Emergency Department attendances (females <65 years); Mental Health contacts (males and females ≥65 years); and Outpatient consultations (males ≥65 years). Conclusion: There is evidence of an association between positive COVID-19 diagnosis and increased post-acute activity within particular healthcare settings. Linked patient-level data provides information that can be useful to understand ongoing healthcare needs resulting from Long-COVID, and support the configuration of Long-COVID pathways of care.

背景:在COVID-19大流行的相对早期阶段,人们已经意识到感染的潜在长期影响(所谓的长期covid),但对此类患者可能对医疗保健服务提出的持续需求知之甚少。目的:探讨COVID-19疾病是否与急性后医疗保健使用率增加有关。方法:利用来自初级保健、二级保健、精神卫生和社区服务的相关数据,比较了7791名患者在COVID-19诊断前和诊断后3个月内的活动量,并区分了患者是否住院治疗。与未接受COVID-19诊断的对照组的差异进行了评估。所有数据均来自作者在英格兰西南部的医疗保健系统。结果:对于住院的COVID-19病例,男性和女性的非选择性入院率在统计上显着增加。结论:有证据表明,在特定的医疗机构中,COVID-19阳性诊断与急性后活动增加之间存在关联。关联的患者级数据提供的信息可用于了解长期covid导致的持续医疗保健需求,并支持配置长期covid护理路径。
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引用次数: 2
Recording our genes: Stakeholder views on genetic test results in networked electronic medical records. 记录我们的基因:利益相关者对网络电子病历中基因检测结果的看法。
Megan Prictor, Maria Rychkova

Background: In Australia, national policy prioritises the integration of clinical genetic data with networked electronic medical records (EMRs) for enhanced coordination of care and clinical decision-making. Objective: To examine the needs, privacy expectations and concerns of patients, family members, patient advocates and clinicians in relation to the use of networked EMRs for clinical genetic information. Method: Purposive sampling was used to recruit 27 participants for a semi-structured qualitative interview, primarily over Zoom. The interviews were audio and video-recorded and externally transcribed. Interview transcripts were then coded and analysed in NVivo, using an inductive thematic approach. Results: Thematic analysis revealed diverse preferences regarding genetic information access and handling across participants, with five core themes being identified: degree of access and control; central role of genetic professionals as information gatekeepers; complexities of familial implications; external risks; and law, governance and policy; all strong themes that emerged across numerous participants. Conclusion: This project yielded unprecedented and significant insights into the views, needs and concerns of key stakeholders in Australia regarding the inclusion of health-related genetic test results in networked EMRs. Implications: These findings provide a critical reference point for much-needed law reform and policy-making around genetic test results in Australia.

背景:在澳大利亚,国家政策优先考虑临床遗传数据与网络电子病历(EMRs)的整合,以加强护理和临床决策的协调。目的:调查患者、家属、患者维权人士和临床医生在使用网络化电子病历获取临床遗传信息方面的需求、隐私期望和担忧。方法:采用有目的抽样方法,招募27名参与者进行半结构化定性访谈,主要通过Zoom进行访谈。采访是录音和录像,并对外转录。然后在NVivo中使用归纳主题方法对访谈记录进行编码和分析。结果:主题分析揭示了参与者对遗传信息获取和处理的不同偏好,确定了五个核心主题:获取和控制程度;基因专业人员作为信息守门人的核心作用;家庭影响的复杂性;外部风险;法律、治理和政策;所有这些强烈的主题都出现在众多参与者身上。结论:该项目对澳大利亚主要利益攸关方关于将健康相关基因检测结果纳入联网电子病历的观点、需求和关切产生了前所未有的重要见解。意义:这些发现为澳大利亚急需的法律改革和基因检测结果的决策提供了关键的参考点。
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引用次数: 0
Costs of acute hospitalisation for stroke and transient ischaemic attack in Australia. 澳大利亚中风和短暂性缺血性发作的急性住院费用。
Joosup Kim, Rohan Grimley, Monique F Kilkenny, Greg Cadigan, Trisha Johnston, Nadine E Andrew, Amanda G Thrift, Natasha A Lannin, Vijaya Sundararajan, Dominique A Cadilhac

Background: Stroke is a high-cost condition. Detailed patient-level assessments of the costs of care received and outcomes achieved provide useful information for organisation and optimisation of the health system.

Objectives: To describe the costs of hospital care for stroke and transient ischaemic attack (TIA) and investigate factors associated with costs.

Methods: Retrospective cohort study using data from the Australian Stroke Clinical Registry (AuSCR) collected between 2009 and 2013 linked to hospital administrative data and clinical costing data in Queensland. Clinical costing data include standardised assignment of costs from hospitals that contribute to the National Hospital Costing programme. Patient-level costs for each hospital admission were described according to the demographic, clinical and treatment characteristics of patients. Multivariable median regression with clustering by hospital was used to determine factors associated with greater costs.

Results: Among 22 hospitals, clinical costing data were available for 3909 of 5522 patient admissions in the AuSCR (71%). Compared to those without clinical costing data, patients with clinical costing data were more often aged <65 years (30% with cost data vs 24% without cost data, p < 0.001) and male (56% with cost data vs 49% without cost data, p < 0.001). Median cost of an acute episode was $7945 (interquartile range $4176 to $14970) and the median length of stay was 5 days (interquartile range 2 to 10 days). The most expensive cost buckets were related to medical (n = 3897, median cost $1577), nursing (n = 3908, median cost $2478) and critical care (n = 434, median cost $3064). Factors associated with greater total costs were a diagnosis of intracerebral haemorrhage, greater socioeconomic position, in-hospital stroke and prior history of stroke.

Conclusion: Medical and nursing costs were incurred by most patients admitted with stroke or TIA, and were relatively more expensive on average than other cost buckets such as imaging and allied health.

Implications: Scaling this data linkage to national data collections may provide valuable insights into activity-based funding at public hospitals. Regular report of these costs should be encouraged to optimise economic evaluations.

背景:中风是一种高成本的疾病。对接受治疗的费用和取得的结果进行详细的患者水平评估,为组织和优化卫生系统提供有用的信息。目的:描述卒中和短暂性脑缺血发作(TIA)的住院治疗费用,并调查与费用相关的因素。方法:回顾性队列研究,使用2009年至2013年收集的澳大利亚卒中临床登记处(AuSCR)的数据,与昆士兰的医院管理数据和临床成本数据相关。临床成本核算数据包括有助于国家医院成本核算方案的医院成本的标准化分配。根据患者的人口学、临床和治疗特征描述每次住院的患者水平费用。采用医院聚类的多变量中位数回归来确定与较高成本相关的因素。结果:在22家医院中,在AuSCR的5522例入院患者中,有3909例(71%)的临床成本核算数据可查。与没有临床成本数据的患者相比,有临床成本数据的患者往往是年龄(p < 0.001)和男性(有成本数据的患者占56%,没有成本数据的患者占49%,p < 0.001)。急性发作的中位费用为7945美元(四分位数范围为4176美元至14970美元),中位住院时间为5天(四分位数范围为2至10天)。最昂贵的费用桶与医疗(n = 3897,中位数费用1577美元),护理(n = 3908,中位数费用2478美元)和重症护理(n = 434,中位数费用3064美元)相关。与总费用较高相关的因素是脑出血诊断、较高的社会经济地位、住院卒中和既往卒中史。结论:卒中或TIA住院患者的医疗护理费用较高,平均费用高于影像学和辅助健康等其他费用。影响:将此数据链接扩展到国家数据收集可能为公立医院基于活动的资助提供有价值的见解。应鼓励定期报告这些费用,以优化经济评价。
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引用次数: 0
Impact of the ICD-11 on the accuracy of clinical coding in Korea. ICD-11对韩国临床编码准确性的影响。
Hyunkyung Lee, Sukil Kim

Background: ICD-11 was officially released at the World Health Assembly on 25 May 2019. Objective: To find effective ways to increase the accuracy of coding for diagnostic terms in Korea for a stable transition from Korean modification of ICD-10 (7th Revision of Korean Classification of Disease, KCD-7) to ICD-11. Method: A total of 27 skilled Korean health information managers performed KCD-7 and ICD-11 coding simultaneously (line coding [56]; case coding [17]). Accuracy rates and percentage agreements were calculated, and granularity and difficulty of the ICD-11 were rated by participants. Results: The average accuracy rate of line coding was 71.6 % in ICD-11 and 80.2% in KCD-7, which was similar to results in other studies. The mean percentage agreements for ICD-11 and KCD-7 for line coding were 64.2% and 72.1%, respectively; while for case coding it was 15.3% and 26.6%. Selection criteria for the case scenarios may have influenced the low agreements in case coding. Cluster coding, changes of terms in ICD-11 and removal of codes used in ICD-10 contributed to low agreement in ICD-11 (46.6% of participants reported that granularity of ICD-11 was similar to ICD-10, while 36.9% reported that ICD-11 had finer granularity). In terms of difficulty, 15.3% of participants found line coding difficult and 10.9% found case coding difficult. Conclusion: Provision of more detailed reference guidelines and efficient training for coding professionals by the World Health Organization would enable ICD-11 to be an excellent tool for gathering relevant information about diseases in Korea.

背景:《国际疾病分类-11》于2019年5月25日在世界卫生大会上正式发布。目的:探讨提高韩国诊断术语编码准确性的有效途径,实现韩国版《疾病分类》(ICD-10)向《疾病分类》(ICD-11)的平稳过渡。方法:共有27名熟练的韩国卫生信息管理人员同时进行KCD-7和ICD-11编码(行编码[56];大小写编码[17])。计算准确率和一致性百分比,并由参与者对ICD-11的粒度和难度进行评分。结果:ICD-11和KCD-7的行编码平均准确率分别为71.6%和80.2%,与其他研究结果相似。ICD-11和KCD-7编码的平均符合率分别为64.2%和72.1%;而对于案例编码,这一比例分别为15.3%和26.6%。案例场景的选择标准可能影响了案例编码中的低一致性。聚类编码、ICD-11中术语的变化以及删除ICD-10中使用的代码导致ICD-11的一致性较低(46.6%的参与者报告说ICD-11的粒度与ICD-10相似,而36.9%的参与者报告说ICD-11的粒度更细)。在难度方面,15.3%的参与者认为行编码困难,10.9%的参与者认为案例编码困难。结论:世界卫生组织为编码专业人员提供更详细的参考准则和有效的培训,将使《国际疾病分类-11》成为收集韩国疾病相关信息的极好工具。
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引用次数: 1
Family violence homicide rates: a state-wide comparison of three data sources in Victoria, Australia. 家庭暴力杀人率:澳大利亚维多利亚州全州范围内三个数据来源的比较。
Reena Sarkar, Joanna F Dipnall, Richard Bassed, Joan Ozanne-Smith Ao

Background: Family violence homicide (FVH) is a major public health and social problem in Australia. FVH trend rates are key outcomes that determine the effectiveness of current management practices and policy directions. Data source-related methodological problems affect FVH research and policy and the reliable measurement of homicide trends.

Objective: This study aimed to determine data reliability and temporal trends of Victorian FVH rates and sex and relationship patterns.

Method: FVH rates per 100,000 persons in Victoria were compared between the National Coronial Information System (NCIS), Coroners Court of Victoria (CCoV) Homicide Register, and the National Homicide Monitoring Program (NHMP). Trends for 2001-2017 were analysed using Joinpoint regression. Crude rates were determined by sex and relationship categories using annual frequencies and Australian Bureau of Statistics population estimates.

Results: NCIS closed FVH cases totalled 360, and an apparent downward trend in the FVH rate was identified. However, CCoV and NHMP rates trended upwards. While NCIS and CCoV were case-based, NHMP was incident-based, contributing to rate variations. The NCIS-derived trend was particularly impacted by unavailable case data, potential coding errors and entry backlog. Neither CCoV nor NHMP provided victim-age in their public domain data to enable age-adjusted rate comparison.

Conclusion: Current datasets have limitations for FVH trend determination; most notably lag times for NCIS data.

Implications: This study identified an indicative upward trend in FVH rates in Victoria, suggesting insufficiency of current management and policy settings for its prevention and control.

背景:家庭暴力杀人(FVH)是澳大利亚一个主要的公共卫生和社会问题。FVH趋势率是决定当前管理做法和政策方向有效性的关键结果。与数据来源有关的方法问题影响到家庭暴力的研究和政策以及对杀人趋势的可靠衡量。目的:本研究旨在确定维多利亚时期FVH率和性别及关系模式的数据可靠性和时间趋势。方法:比较维多利亚州国家死因信息系统(NCIS)、维多利亚州死因法院(CCoV)杀人登记和国家杀人监测计划(NHMP)中每10万人中FVH的发生率。使用Joinpoint回归分析2001-2017年的趋势。根据年度频率和澳大利亚统计局的人口估计,按性别和关系类别确定粗略比率。结果:NCIS共查获FVH病例360例,FVH发生率呈明显下降趋势。然而,冠状病毒和NHMP发病率呈上升趋势。NCIS和冠状病毒是基于病例的,而NHMP是基于事件的,这导致了发病率的变化。ncis衍生的趋势尤其受到不可用病例数据、潜在编码错误和输入积压的影响。cov和NHMP都没有在其公共领域数据中提供受害者年龄,以便进行年龄调整后的比率比较。结论:现有数据集在确定FVH趋势方面存在局限性;最明显的是NCIS数据的滞后时间。含义:该研究确定了维多利亚州FVH率的指示性上升趋势,表明目前预防和控制FVH的管理和政策设置不足。
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引用次数: 1
The suitability of government health information assets for secondary use in research: A fit-for-purpose analysis. 政府卫生信息资产在研究中二次使用的适宜性:目的适宜性分析。
Merilyn Riley, Kerin Robinson, Monique F Kilkenny, Sandra G Leggat

Background: Governments have responsibility for ensuring the quality and fitness-for-purpose of personal health data provided to them. While these health information assets are used widely for research, this secondary usage has received minimal research attention.

Objective: This study aimed to investigate the secondary uses, in research, of population health and administrative datasets (information assets) of the Department of Health (DoH), Victoria, Australia. The objectives were to (i) identify research based on these datasets published between 2008 and 2020; (ii) describe the data quality studies published between 2008 and 2020 for each dataset and (iii) evaluate "fitness-for-purpose" of the published research.

Method: Using a modified scoping review, research publications from 2008 to 2020 based on information assets related to health service provision and containing person-level data were reviewed. Publications were summarised by data quality and purpose-categories based on a taxonomy of data use. Fitness-for-purpose was evaluated by comparing the publicly stated purpose(s) for which each information asset was collected, with the purpose(s) assigned to the published research.

Results: Of the >1000 information assets, 28 were utilised in 756 publications: 54% were utilised for general research purposes, 14% for patient safety, 10% for quality of care and 39% included data quality-related publications. Almost 85% of publications used information assets that were fit-for-purpose.

Conclusion: The DoH information assets were used widely for secondary purposes, with the majority identified as fit-for-purpose. We recommend that data custodians, including governments, provide information on data quality and transparency on data use of their health information assets.

背景:政府有责任确保向其提供的个人健康数据的质量和适用性。虽然这些健康信息资产被广泛用于研究,但这种次要用途得到的研究关注很少。目的:探讨澳大利亚维多利亚州卫生部(DoH)人口健康和行政数据集(信息资产)在研究中的二次利用情况。目标是:(i)确定基于2008年至2020年间发表的这些数据集的研究;(ii)描述每个数据集在2008年至2020年间发表的数据质量研究,(iii)评估已发表研究的“适用性”。方法:采用改良的范围回顾法,回顾2008年至2020年基于卫生服务提供相关信息资产并包含个人层面数据的研究出版物。出版物按数据质量和基于数据使用分类的目的类别进行了总结。通过比较公开声明的收集每项信息资产的目的与分配给已发表研究的目的来评估目的的适用性。结果:在>1000个信息资产中,有28个在756份出版物中被利用:54%用于一般研究目的,14%用于患者安全,10%用于护理质量,39%包括数据质量相关的出版物。几乎85%的出版物使用了符合目的的信息资产。结论:DoH信息资产被广泛用于次要目的,大多数被认为是适合用途的。我们建议包括各国政府在内的数据保管人提供有关数据质量和其卫生信息资产数据使用透明度的信息。
{"title":"The suitability of government health information assets for secondary use in research: A fit-for-purpose analysis.","authors":"Merilyn Riley,&nbsp;Kerin Robinson,&nbsp;Monique F Kilkenny,&nbsp;Sandra G Leggat","doi":"10.1177/18333583221078377","DOIUrl":"https://doi.org/10.1177/18333583221078377","url":null,"abstract":"<p><strong>Background: </strong>Governments have responsibility for ensuring the quality and fitness-for-purpose of personal health data provided to them. While these health information assets are used widely for research, this secondary usage has received minimal research attention.</p><p><strong>Objective: </strong>This study aimed to investigate the secondary uses, in research, of population health and administrative datasets (information assets) of the Department of Health (DoH), Victoria, Australia. The objectives were to (i) identify research based on these datasets published between 2008 and 2020; (ii) describe the data quality studies published between 2008 and 2020 for each dataset and (iii) evaluate \"fitness-for-purpose\" of the published research.</p><p><strong>Method: </strong>Using a modified scoping review, research publications from 2008 to 2020 based on information assets related to health service provision and containing person-level data were reviewed. Publications were summarised by data quality and purpose-categories based on a taxonomy of data use. Fitness-for-purpose was evaluated by comparing the publicly stated purpose(s) for which each information asset was collected, with the purpose(s) assigned to the published research.</p><p><strong>Results: </strong>Of the >1000 information assets, 28 were utilised in 756 publications: 54% were utilised for general research purposes, 14% for patient safety, 10% for quality of care and 39% included data quality-related publications. Almost 85% of publications used information assets that were fit-for-purpose.</p><p><strong>Conclusion: </strong>The DoH information assets were used widely for secondary purposes, with the majority identified as fit-for-purpose. We recommend that data custodians, including governments, provide information on data quality and transparency on data use of their health information assets.</p>","PeriodicalId":73210,"journal":{"name":"Health information management : journal of the Health Information Management Association of Australia","volume":"52 3","pages":"157-166"},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10183132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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Health information management : journal of the Health Information Management Association of Australia
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