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Applying the hospital administrative data quality scoring tool in 15 countries. 在15个国家应用医院行政数据质量评分工具。
Namneet Sandhu, Sarah Whittle, Lucia Otero Varela, Danielle Southern, Cathy A Eastwood, Hude Quan

Background and objective: Hospital administrative data serves as a rich source of information for resource allocation, surveillance, and international comparisons. Differences in coding practices and guidelines lead to variations in hospital administrative data. This study outlines our team's process of creating a standardised tool, the Hospital Administrative Data Quality (HADQ) scoring tool, which will allow countries to assess their HADQ.

Method: We previously developed 24 indicators through a Delphi consensus method. To test the applicability of these indicators, we approached 50 countries with an online survey comprised of qualitative and quantitative questions based on the 24 indicators. An overall score out of 20 for data quality was calculated for each country based on the survey responses. The score was classified into three categories: high data quality, moderate data quality and low data quality.

Results: Of the 50 countries invited, 17 responded. Surveys from two countries were excluded due to insufficient data. Country responses were evaluated and scored by dimension. The data quality indicators showed positive face validity and were applicable for most countries providing comparative information for development of the tool with good discrimination. Canada, United States of America, New Zealand, United Kingdom, and Spain were among the countries with an overall high data quality score. Most countries scored high in 3 out of 5 dimensions of data quality. A few counties scored 0 in "Relevance" and "Timeliness" resulting in a lower score.ConclusionThe HADQ tool developed in this study will support the assessment and comparison of HADQ by applying the same standard within and across countries.Implications for health information management practice:The HADQ tool can be used by diverse users such as the researchers, government bodies and policymakers interested in improving hospital administrative data quality following standardised indicators that can applied globally.

背景和目的:医院管理数据是资源分配、监测和国际比较的丰富信息来源。编码实践和指南的差异导致医院管理数据的差异。本研究概述了我们团队创建标准化工具——医院行政数据质量(HADQ)评分工具的过程,该工具将使各国能够评估其HADQ。方法:采用德尔菲共识法编制了24项指标。为了检验这些指标的适用性,我们与50个国家进行了一项在线调查,该调查包括基于24个指标的定性和定量问题。每个国家的数据质量总分为20分,是根据调查结果计算出来的。得分分为三类:高数据质量、中等数据质量和低数据质量。结果:在受邀的50个国家中,有17个做出了回应。由于数据不足,排除了来自两个国家的调查。对各国的答复按维度进行了评估和评分。数据质量指标显示正面效度,适用于大多数国家,为开发具有良好辨别能力的工具提供了比较信息。加拿大、美利坚合众国、新西兰、联合王国和西班牙是总体数据质量得分较高的国家。大多数国家在数据质量的5个维度中的3个方面得分较高。少数国家在“相关性”和“及时性”方面得分为0,导致得分较低。本研究开发的HADQ工具将通过在国家内部和国家之间应用相同的标准来支持HADQ的评估和比较。对卫生信息管理实践的影响:HADQ工具可供不同的用户使用,如研究人员、政府机构和决策者,他们对根据可在全球应用的标准化指标提高医院行政数据质量感兴趣。
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引用次数: 0
Risk prediction model for early detection of urinary tract infection in a hospital setting in Australia. 澳大利亚一家医院尿路感染早期检测的风险预测模型
Angela Jacques, Elizabeth Lloyd, Syed Aqif Muhktar, Pammy Yeoh, Brendon Mcmullen, Aron Chakera, Jim Codde

Background: Hospital-acquired complications have detrimental effects on patient outcomes and recovery, with increased morbidity and mortality burdens, and hospital efficiency. The Australian Commission on Safety and Quality in Healthcare has identified 16 high-priority complications, including healthcare-associated infections, as potential targets of clinical risk mitigation strategies. Within the North Metropolitan Health Service in Western Australia, the prevalence of urinary tract infections (UTIs) was recognised as one of the most ubiquitous hospital-acquired complications and thus, there was desire to find new and innovative ways to enhance the existing infection prevention and control practices.

Objective: To develop a risk prediction model for early identification of inpatients at risk of acquiring a UTI, to support clinical processes to facilitate targeted intervention strategies.

Method: Prognostic modelling techniques were employed using retrospective hospital separation data encompassing patient and local health service factors.

Results: The risk prediction model, developed from approximately 350 variables, used just 9 factors: 2 patient characteristics (age, gender), 4 clinical factors (paraplegia, dementia, prostate hyperplasia, neurosurgeon care), and 3 process measures (hospital stay duration, long theatre time, intensive care unit stay). It predicted UTI risk with 91% sensitivity, 86% specificity, and 95% discrimination (area under the curve). Real-time use in ward settings suggested it could help reduce hospital-acquired urinary tract infections (HAUTIs).

Conclusion: Predictive modelling techniques can identify patients at risk of developing a HAUTI with high sensitivity and specificity. The resulting model can be used as a real-time clinical decision-making tool to guide proactive interventions and help reduce the prevalence of UTIs among hospital inpatients.Implications for health information management practice:The development and successful validation of a real-time predictive model for HAUTIs demonstrates how health information managers can leverage routinely collected data to support proactive clinical risk mitigation. Integrating such models into electronic health record systems can enhance patient safety, improve clinical workflows, and inform targeted infection control interventions across hospital settings.

背景:医院获得性并发症对患者预后和康复有不利影响,增加了发病率和死亡率负担,降低了医院效率。澳大利亚卫生保健安全和质量委员会确定了16种高度优先的并发症,包括卫生保健相关感染,作为临床风险缓解战略的潜在目标。在西澳大利亚州的北部大都会卫生局,尿路感染的流行被认为是最普遍的医院获得性并发症之一,因此,希望找到新的和创新的方法来加强现有的感染预防和控制做法。目的:建立一种风险预测模型,用于早期识别有尿路感染风险的住院患者,以支持临床流程,促进有针对性的干预策略。方法:预后建模技术采用回顾性医院分离数据,包括患者和当地卫生服务因素。结果:风险预测模型由大约350个变量建立,仅使用了9个因素:2个患者特征(年龄、性别)、4个临床因素(截瘫、痴呆、前列腺增生、神经外科医生护理)和3个过程措施(住院时间、长时间住院、重症监护室住院)。它预测UTI风险的灵敏度为91%,特异性为86%,鉴别率为95%(曲线下面积)。在病房环境中的实时使用表明,它可以帮助减少医院获得性尿路感染(HAUTIs)。结论:预测建模技术能够以高灵敏度和特异性识别出有发生HAUTI风险的患者。该模型可作为实时临床决策工具,指导主动干预,帮助降低医院住院患者中尿路感染的患病率。对卫生信息管理实践的影响:HAUTIs实时预测模型的开发和成功验证表明,卫生信息管理人员如何利用常规收集的数据来支持主动的临床风险缓解。将这些模型集成到电子健康记录系统中可以增强患者安全,改善临床工作流程,并为整个医院环境提供有针对性的感染控制干预措施。
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引用次数: 0
Developing a code of ethics in health information management. 制定卫生信息管理的道德准则。
Marziyhe Meraji, Sanaz Sadat Mahmoodian

Background: An effective strategy for promoting ethics within organisations is to establish clear guidelines that outline acceptable behaviours in different situations through a code of ethics. In the field of health information management (HIM), a code of ethics addresses various challenges, including privacy and information security. Objective: This study aimed to develop a code of ethics for health information management (HIM) professionals in Iran. Method: A mixed-methods study was conducted using a developmental approach. First, the code of ethics of the selected HIM and medical informatics associations was reviewed, and a comparative list of the codes of ethics prepared. An expert work group proposed the HIM code of ethics and then validated it using the Delphi technique. Results: After reviewing the code of ethics of the selected associations, we identified 70 statements. Following discussions and meetings, we prepared and approved 28 of these statements with input from 42 commentators using the Delphi technique. Notably, 46% of the code of ethics statements that aligned with respect for autonomy was deemed the most important principle. The principle of justice followed this at 32%, the principle of beneficence at 29%, and the principle of non-maleficence at 14%. Conclusion: Iran's current HIM laws and policies are inadequate. Developing a code of ethics could enhance patient rights, information preservation and collaboration with specialists. Implementing these codes of ethics nationally could promote ethical culture, transparency and quality. Establishing regulatory mechanisms, training for effective implementation and periodic revisions are important. Implications for health information practice: The proposed codes of ethics guide HIM professionals, enhancing public trust and assisting with ethical dilemmas as they manage systems integrating patient data, Artificial Intelligence, and Electronic Health Records.

背景:在机构内推广道德操守的有效策略,是订立清晰的指引,透过道德守则概述在不同情况下可接受的行为。在卫生信息管理(HIM)领域,道德守则应对各种挑战,包括隐私和信息安全。目的:本研究旨在为伊朗卫生信息管理(HIM)专业人员制定道德规范。方法:采用发展方法进行混合方法研究。首先,对选定的医疗信息科学协会和医学信息学协会的道德准则进行了审查,并编制了一份道德准则的比较清单。一个专家工作组提出了HIM伦理准则,然后使用德尔菲技术对其进行了验证。结果:在审查了所选协会的道德规范后,我们确定了70个声明。在讨论和会议之后,我们准备并批准了其中的28份声明,其中有42位评论员使用德尔菲技术提供了意见。值得注意的是,46%的道德准则声明与尊重自主权一致,被认为是最重要的原则。正义原则占32%,仁慈原则占29%,非恶意原则占14%。结论:伊朗目前的HIM法律和政策是不充分的。制定道德准则可以加强患者权利、信息保存以及与专家的合作。在全国范围内实施这些道德守则可以促进道德文化、透明度和质量。建立管理机制、培训有效执行和定期修订是重要的。对卫生信息实践的影响:拟议的道德准则指导医疗信息系统专业人员,增强公众信任,并在他们管理整合患者数据、人工智能和电子健康记录的系统时协助解决道德困境。
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引用次数: 0
Optimising insulinoma detection: Algorithm development and validation in a hospital discharge abstract database in China. 优化胰岛素瘤检测:在中国医院出院摘要数据库中的算法开发和验证。
Jingya Zhou, Qianqian Shao, Qiang Xu, Wenjie Lv, Aimin Liao, Cheng Pang, Yi Wang, Naishi Li

Background: The validity of using hospital discharge abstract database (DAD) diagnostic codes to identify insulinoma remains unverified. Objective: The study aimed to develop case-finding algorithms to identify insulinomas using ICD-10 codes from hospital DAD, evaluate their performance and investigate causes of misidentification. Method: This study utilised a 12-year retrospective dataset from a large medical centre in China to test four ICD algorithms for identifying insulinoma patients with hospital DAD. Algorithm performance was evaluated against electronic medical records, using sensitivity, specificity and predictive values as metrics. Results: This study involved 4929 patients with pancreatic tumours, including 610 insulinoma patients, resulting in 5760 hospitalisations. Algorithm variant 1, which uses the code M8151, achieved a sensitivity of 69% and a specificity of 99.7%. The most comprehensive algorithm, variant 4, demonstrated a sensitivity of 84.8% and a specificity of 99.5%. Both algorithm variants 1 and 4 showed higher sensitivity in patients admitted to the endocrinology department and in those lacking pathological evidence (p < 0.001). The use of "pancreatic neuroendocrine tumour" instead of "insulinoma" in pathology reports and inadequate documentation of hypoglycaemia were the main contributors to coding inaccuracies. Conclusion: Owing to the complexity and variability of insulinoma documentation, a single morphology code was not ideal for identifying insulinoma in the hospital DAD. Enhanced, comprehensive algorithms are expected to better recognise confirmed cases. Implications for health information management practice: A multidisciplinary approach with improved pathology reporting, hypoglycaemia statements and precise tumour site-specific coding is crucial for improving the sensitivity of coded data in the hospital DAD for the identification of insulinoma.

背景:使用医院出院摘要数据库(DAD)诊断代码识别胰岛素瘤的有效性尚未得到验证。目的:本研究旨在开发病例查找算法,利用医院DAD的ICD-10代码识别胰岛素瘤,评估其性能并调查误认的原因。方法:本研究利用来自中国一家大型医疗中心的12年回顾性数据集,测试四种用于识别胰岛素瘤患者住院DAD的ICD算法。使用灵敏度、特异性和预测值作为指标,对电子病历进行算法性能评估。结果:该研究涉及4929例胰腺肿瘤患者,包括610例胰岛素瘤患者,导致5760例住院治疗。算法变体1,使用代码M8151,实现了69%的灵敏度和99.7%的特异性。最全面的算法变体4的敏感性为84.8%,特异性为99.5%。算法变体1和4在内分泌科住院患者和缺乏病理证据的患者中都显示出更高的敏感性(p结论:由于胰岛素瘤文献的复杂性和可变性,单一的形态学代码并不适合在医院DAD中识别胰岛素瘤。增强的综合算法有望更好地识别确诊病例。对健康信息管理实践的影响:采用多学科方法,改进病理报告、低血糖报告和精确的肿瘤位点特异性编码,对于提高医院DAD编码数据的敏感性,以识别胰岛素瘤至关重要。
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引用次数: 0
The effectiveness of the ICD-11 training program among clinical coders in Malaysia. 马来西亚临床编码员ICD-11培训计划的有效性。
Ahmad Soufi Ahmad Fuad, Erwyn Chin Wei Ooi, Azman Ahmad, Inai Dulliyah Abdullah, Nuraidah Mohd Marzuki, Ai Kah Ng

Background: The World Health Organization endorsed the International Classification of Diseases 11th revision (ICD-11) in 2019 for ICD morbidity and mortality data reports. In Malaysia, the Ministry of Health (MOH) started to use it in 2024 after the long history of ICD-10 used since the 1990s. Objective: The present study aimed to evaluate the effectiveness of the ICD-11 training program conducted by the MOH. Method: A prospective single-arm study was conducted among 45 clinical coders at the MOH, where an online self-administered questionnaire included the (i) reaction level and (ii) learning level. Descriptive statistics were applied to the learning and reaction level input for data analysis. A paired t-test statistical analysis was used to analyse the difference in learning level scores in pre- and post-training programs. Results: Participants' overall satisfaction with the training courses was 93%, with most choosing somewhat agree and strongly agree in the reaction-level questionnaire. For the learning level, the average mean score for post-training (5.47) was higher when compared to pre-training scores (3.62), with a paired-sample test showing a significant difference (p < 0.05) between the mean scores. Conclusion: The increased efficacy in ICD-11 diagnosis coding among participant clinical coders post-training was statistically significant, and we recommend that MOH continue to host such training programs to enhance the knowledge and expertise of clinical coders. Implications for health information management practice: These findings emphasise the effectiveness of ICD-11 training programs, and add to the growing evidence about the need for standardised ICD training programs and resources to educate and train clinical coders in preparation for ICD-11 international rollout.

背景:世界卫生组织于2019年批准了《国际疾病分类》第11次修订(ICD-11),用于ICD发病率和死亡率数据报告。马来西亚卫生部于2024年开始使用ICD-10,这是自20世纪90年代以来使用ICD-10的悠久历史。目的:本研究旨在评估由卫生部开展的ICD-11培训计划的有效性。方法:对卫生部45名临床编码员进行了一项前瞻性单臂研究,其中在线自填问卷包括(i)反应水平和(ii)学习水平。学习和反应水平输入采用描述性统计进行数据分析。采用配对t检验统计分析训练前后学习水平得分的差异。结果:参与者对培训课程的总体满意度为93%,在反应级问卷中选择“一般同意”和“非常同意”的比例最高。在学习水平上,培训后的平均得分(5.47)高于培训前的平均得分(3.62),配对样本检验显示差异有统计学意义(p)。结论:培训后参与临床编码员对ICD-11诊断编码的有效性提高具有统计学意义,我们建议卫生部继续举办此类培训项目,以提高临床编码员的知识和专业知识。对卫生信息管理实践的影响:这些发现强调了ICD-11培训规划的有效性,并进一步证明需要标准化的ICD培训规划和资源,以教育和培训临床编码员,为ICD-11的国际推广做准备。
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引用次数: 0
Junior doctors' perspectives on the hospital discharge process: A qualitative study exploring preparation of discharge summaries and medication reconciliation. 初级医生对出院过程的看法:一项探讨出院摘要准备与药物和解的质性研究。
Christina Meligonis, Laetitia Hattingh, Sean Alcorn

Background: Hospital discharge is a vulnerable point in a patient's journey where increased medication-related errors occur. Despite the importance of discharge summaries as a communication tool at the hospital-community healthcare interface, many factors impede doctors' ability to prepare accurate and timely discharge summaries and medication lists. Objective: To explore junior doctors' perceptions of the hospital discharge process. Method: Semi-structured interviews were conducted with purposively selected junior doctors (interns, residents and registrars) from a metropolitan health service between November and December 2022. The interview tool contained prompts to explore opinions and experiences relating to the discharge processes, specifically discharge summaries, medication reconciliation and collaboration between healthcare professionals. Interview transcriptions were thematically analysed. Results: Twenty junior doctors were interviewed. Five interconnected themes emerged: (1) workload and time restraints, (2) perceptions of medication reconciliation, (3) collaboration with pharmacists, (4) communication between healthcare professionals and (5) impact of organisational factors. Significant barriers to preparing discharge summaries included time pressures and high patient turnover. Factors aiding doctors included direct involvement in the patient's care, designated time to complete discharge summaries, well-documented in-patient progress notes and availability of comprehensive admission medication information recorded by pharmacists. Conclusion: Junior doctors face significant challenges during the hospital discharge process. Under heavy workloads and high patient turnover, continuity of care can be compromised as direct patient care tasks take priority over preparing discharge summaries. Implications for health information management practice: The findings underscore the need for enhanced medicines education and support for junior doctors, alongside improved integration of pharmacist expertise, to facilitate clear, accurate and timely discharge documentation.

背景:出院是一个脆弱的点在病人的旅程中增加药物相关的错误发生。尽管出院摘要作为医院-社区医疗界面的沟通工具很重要,但许多因素阻碍了医生准备准确及时的出院摘要和药物清单的能力。目的:探讨初级医生对出院过程的认知。方法:于2022年11月至12月,对某城市卫生服务机构的初级医生(实习生、住院医师和注册医师)进行半结构化访谈。访谈工具包含提示,以探索与出院过程有关的意见和经验,特别是出院摘要、药物和解和医疗保健专业人员之间的协作。访谈记录按主题进行分析。结果:对20名初级医生进行了访谈。五个相互关联的主题出现了:(1)工作量和时间限制,(2)对药物和解的看法,(3)与药剂师的合作,(4)卫生保健专业人员之间的沟通,以及(5)组织因素的影响。准备出院总结的主要障碍包括时间压力和高病人流动率。帮助医生的因素包括直接参与病人的护理,指定时间完成出院总结,记录良好的住院病人进展记录,以及药剂师记录的综合住院药物信息的可用性。结论:初级医生在出院过程中面临着重大挑战。在工作量大、病人流动率高的情况下,护理的连续性可能会受到影响,因为直接的病人护理任务优先于准备出院摘要。对卫生信息管理实践的影响:研究结果强调需要加强对初级医生的医学教育和支持,同时改进药师专业知识的整合,以促进清晰、准确和及时的出院记录。
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引用次数: 0
Information system support for case-based knowledge formation in social welfare: a cross-sectional study. 社会福利中基于案例的知识形成的信息系统支持:一个横断面研究。
Elina Tynkkynen, Samuel Salovaara, Johanna Viitanen, Tinja Lääveri

Background: Although client information systems (CIS) should provide social welfare professionals (SWPs) with a comprehensive overview of a client's situation for case-based knowledge formation (CBKF), research into SWPs' user experiences is scarce. Objective: The aim of this study was to examine SWPs' experiences of CISs' support for CBKF. Methods: In 2020, a nationwide cross-sectional CIS usability survey was conducted with 980 respondents in Finland. The 16 questionnaire statements pertained to technical functionality, usability, client information quality and access to case-based information in CISs. The factors contributing to CISs' support for CBKF were analysed using univariable and multiple classification analyses. Results: The strongest predictors of CIS support for CBKF were usability and quality of information. Moreover, SWPs working in institutional care were more satisfied than their colleagues in other working environments. Conclusion: SWPs perceived the CISs' information quality to be good, but there was a need for improvement in usability, for instance, via comprehensive summary views and dashboards of essential information. Implications for health information management practice: The findings highlight that while the information quality of CISs is generally perceived as good, improving usability is crucial for enhancing support for CBKF among SWPs.

背景:虽然客户信息系统(CIS)应该为社会福利专业人员(swp)提供基于案例的知识形成(CBKF)的客户情况的全面概述,但对swp用户体验的研究很少。目的:本研究的目的是考察社会服务人员对CBKF的支持体验。方法:2020年,芬兰对980名受访者进行了全国范围内的横断面CIS可用性调查。16项调查表说明涉及信息系统的技术功能、可用性、客户信息质量和获取基于案例的信息。采用单变量和多元分类分析,分析影响社会服务机构支持CBKF的因素。结果:CIS对CBKF支持的最强预测因子是可用性和信息质量。此外,在机构护理工作的社会福利工作者比在其他工作环境中的同事更满意。结论:SWPs认为csis的信息质量是好的,但是在可用性方面需要改进,例如,通过综合总结视图和基本信息的仪表板。对卫生信息管理实践的影响:研究结果强调,虽然人们普遍认为CISs的信息质量很好,但提高可用性对于加强swp对CBKF的支持至关重要。
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引用次数: 0
The biopsychosocial-spiritual impact on non-clinical health professionals who interact with traumatic and/or sensitive health data: A scoping review. 对接触创伤性和/或敏感健康数据的非临床卫生专业人员的生物-心理-社会-精神影响:范围审查
Melanie Tassos, Lindsay B Carey, Stephanie Gjorgioski, Brad Hodge, Merilyn Riley

Background: Existing research has long established that direct exposure to patient trauma, such as severe injuries, chronic illnesses and end-of-life care, places clinical healthcare workers at heightened risk of secondary traumatic stress, compassion fatigue and burnout. However, comparatively little attention has been paid to the impact on non-clinical healthcare personnel, such as health information managers (HIMs) who, despite being removed from direct patient care, regularly handle distressing and sensitive patient information.

Objective: This scoping review explores the literature concerning non-clinical healthcare professionals and the potential impact upon their biopsychosocial-spiritual (BPSS) well-being given prolonged exposure to medical and/or patient records.

Method: Arksey and O'Malley's five-stage scoping review strategy was utilised. An initial search of the literature yielded no results specific to HIMs and other non-clinical healthcare professionals. Therefore, the scope of the review was broadened, and a second search of the literature was conducted to explore comparable non-patient/client-facing populations such as transcriptionists.

Results: In total 1226 articles were initially identified and 13 articles revealed either a biological, psychological, social and/or spiritual impact when professionals were exposed to traumatic and/or sensitive data.

Conclusion: Exploring the roles of comparable non-patient/client-facing populations provides insight into the potential impact that exposure to traumatic and/or sensitive information may have on the health and well-being of HIMs and other non-clinical health professionals.Implications for health information management practice:Further research is recommended to explore the potential BPSS impact that HIMs and other non-clinical health professionals experience due to the exposure of traumatic and/or sensitive information.

背景:现有的研究早已确定,直接接触病人的创伤,如严重伤害,慢性疾病和临终关怀,使临床卫生保健工作者处于继发性创伤应激,同情疲劳和倦怠的高风险中。然而,相对较少关注对非临床医疗保健人员的影响,例如健康信息管理人员(HIMs),尽管他们被排除在直接患者护理之外,但他们经常处理令人痛苦和敏感的患者信息。目的:本综述探讨了有关非临床医疗保健专业人员的文献,以及长期接触医疗和/或患者记录对他们的生物心理社会精神(BPSS)健康的潜在影响。方法:采用Arksey和O'Malley的五阶段范围审查策略。对文献的初步搜索没有发现针对HIMs和其他非临床医疗保健专业人员的特定结果。因此,我们扩大了综述的范围,并对文献进行了第二次检索,以探索类似的非患者/面向客户的人群,如转录员。结果:总共有1226篇文章被初步确定,13篇文章揭示了当专业人员暴露于创伤性和/或敏感数据时对生物、心理、社会和/或精神的影响。结论:探索非患者/客户群体的作用,可以深入了解暴露于创伤性和/或敏感信息可能对HIMs和其他非临床卫生专业人员的健康和福祉产生的潜在影响。对健康信息管理实践的影响:建议进一步研究,以探索HIMs和其他非临床卫生专业人员因暴露创伤性和/或敏感信息而遭受的潜在BPSS影响。
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引用次数: 0
Attitudes towards data access and sharing health data for research: a case study of Australian data custodian perspectives. 对获取数据和共享用于研究的卫生数据的态度:澳大利亚数据保管人观点的案例研究。
Richard J Varhol, Suzanne Robinson, Crystal Man Ying Lee, Sean Randall, James H Boyd

Background: The effective sharing of health data is critical for advancing public health research and improving health outcomes. Data custodians responsible for managing these data encounter various obstacles that prevent the efficient exchange of this information for research purposes. This study explores specific challenges to effective data custodianship and how they can be addressed to improve data sharing within the Australian health and human services sectors.

Objectives: A case study to explore the complex landscape of data sharing from the perspective of data custodians. This includes identifying legislative complexities and related organisational cultural challenges associated with data requests that accompany the role of a data custodian and suggesting strategies to facilitate data sharing.

Method: Utilising qualitative thematic analysis, semi-structured interviews were conducted to collect detailed perspectives on the practices and challenges of sharing health data from 11 data custodians across nine Australian healthcare organisations.

Results: The study highlighted several common challenges affecting data sharing for research, including legislative hurdles, lack of uniform standards for data access, and inconsistent consent protocols across datasets. Internal organisational factors, such as data request assessment processes, organisational culture, and attitudes towards data sharing, emerged as critical barriers to the efficient sharing of data.

Conclusion: Overcoming data-sharing barriers necessitates a multifaceted approach, requiring clear and consistent legislative frameworks for data access and establishing standards for transparent and efficient request assessment processes.Implications for health information management:Shifting data from a liability to a valuable asset can enhance decision-making, foster collaboration, and drive health sector innovation.

背景:有效共享卫生数据对于推进公共卫生研究和改善卫生成果至关重要。负责管理这些数据的数据保管人遇到各种障碍,阻碍了为研究目的有效交换这些信息。本研究探讨了有效数据管理面临的具体挑战,以及如何解决这些挑战,以改善澳大利亚卫生和人类服务部门的数据共享。目的:通过一个案例研究,从数据托管者的角度探讨数据共享的复杂前景。这包括识别与数据保管人角色相关的数据请求相关的立法复杂性和相关的组织文化挑战,并提出促进数据共享的策略。方法:利用定性专题分析,进行了半结构化访谈,以收集有关九个澳大利亚医疗保健组织的11个数据保管人共享健康数据的实践和挑战的详细观点。结果:该研究强调了影响研究数据共享的几个常见挑战,包括立法障碍、缺乏统一的数据访问标准以及数据集之间不一致的同意协议。内部组织因素,如数据请求评估过程、组织文化和对数据共享的态度,成为有效共享数据的关键障碍。结论:克服数据共享障碍需要采取多方面的方法,需要明确和一致的数据访问立法框架,并建立透明和有效的请求评估过程标准。对卫生信息管理的影响:将数据从负债转变为有价值的资产可以加强决策、促进协作并推动卫生部门创新。
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引用次数: 0
Predictive analytics for early detection of hospital-acquired complications: An artificial intelligence approach. 早期发现医院并发症的预测分析:人工智能方法。
Pub Date : 2025-05-01 Epub Date: 2024-07-25 DOI: 10.1177/18333583241256048
Syed Aqif Mukhtar, Benjamin R McFadden, Md Tauhidul Islam, Qiu Yue Zhang, Ehsan Alvandi, Philippa Blatchford, Samantha Maybury, John Blakey, Pammy Yeoh, Brendon C McMullen

Background: Hospital-acquired complications (HACs) have an adverse impact on patient recovery by impeding their path to full recovery and increasing healthcare costs.

Objective: The aim of this study was to create a HAC risk prediction machine learning (ML) framework using hospital administrative data collections within North Metropolitan Health Service (NMHS), Western Australia.

Method: A retrospective cohort study was performed among 64,315 patients between July 2020 to June 2022 to develop an automated ML framework by inputting HAC and the healthcare site to obtain site-specific predictive algorithms for patients admitted to the hospital in NMHS. Univariate analysis was used for initial feature screening for 270 variables. Of these, 77 variables had significant relationship with any HAC. After excluding non-contemporaneous data, 37 variables were included in developing the ML framework based on logistic regression (LR), decision tree (DT) and random forest (RF) models to predict occurrence of four specific HACs: delirium, aspiration pneumonia, pneumonia and urinary tract infection.

Results: All models exhibited similar performance with area under the curve scores around 0.90 for both training and testing datasets. For sensitivity, DT and RF exceeded LR performance while on average, false positives were lowest for LR-based models. Patient's length of stay, Charlson Index, operation length and intensive care unit stay were common predictors.

Conclusion: Integrating ML-based risk detection systems into clinical workflows can potentially enhance patient safety and optimise resource allocation. LR-based models exhibited best performance.

Implications: We have successfully developed a "real-time" risk prediction model, where patient risk scores are calculated and reviewed daily.

背景:医院获得性并发症(HAC医院获得性并发症(HAC)会阻碍患者完全康复并增加医疗成本,从而对患者的康复产生不利影响:本研究旨在利用西澳大利亚北都会卫生服务(NMHS)收集的医院管理数据,创建一个HAC风险预测机器学习(ML)框架:在2020年7月至2022年6月期间,对64,315名患者进行了回顾性队列研究,通过输入HAC和医疗机构来开发自动ML框架,从而获得NMHS医院住院患者的特定地点预测算法。采用单变量分析对 270 个变量进行初步特征筛选。其中,77 个变量与任何 HAC 都有显著关系。在排除非同期数据后,37 个变量被纳入基于逻辑回归(LR)、决策树(DT)和随机森林(RF)模型的 ML 框架,以预测四种特定 HAC 的发生:谵妄、吸入性肺炎、肺炎和尿路感染:所有模型都表现出相似的性能,训练和测试数据集的曲线下面积均在 0.90 左右。就灵敏度而言,DT 和 RF 超过了 LR,而平均而言,基于 LR 的模型的误报率最低。患者的住院时间、查尔森指数、手术时间和重症监护室住院时间是常见的预测因素:结论:将基于 ML 的风险检测系统集成到临床工作流程中可能会提高患者的安全性并优化资源分配。基于 LR 的模型表现出最佳性能:我们已成功开发出一种 "实时 "风险预测模型,每天计算并审核患者的风险评分。
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引用次数: 0
期刊
Health information management : journal of the Health Information Management Association of Australia
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