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Patient Recommendations for the Content and Design of Electronic Returns of Genetic Test Results: Interview Study Among Patients Who Accessed Their Genetic Test Results via the Internet. 基因检测结果电子申报表内容和设计的患者建议:通过互联网访问基因检测结果的患者访谈研究。
Pub Date : 2022-05-31 DOI: 10.2196/29706
Diane M Korngiebel, Kathleen McGlone West

Background: Genetic test results will be increasingly made available electronically as more patient-facing tools are developed; however, little research has been done that collects data on patient preferences for content and design before creating results templates.

Objective: This study identifies patient preferences for the electronic return of genetic test results, including what considerations should be prioritized for content and design.

Methods: Following user-centered design methods, 59 interviews were conducted by using semistructured protocols. The interviews explored the content and design issues of patient portals that facilitated the return of test results to patients. We interviewed patients who received electronic results for specific types of genetics tests (pharmacogenetic tests, hereditary blood disorder tests, and tests for the risk of heritable cancers) or electronically received any type of genetic or nongenetic test results.

Results: In general, many of participants felt that there always needed to be some clinician involvement in electronic result returns and that electronic coversheets with simple summaries would be helpful for facilitating this. Coversheet summaries could accompany, but not replace, the more detailed report. Participants had specific suggestions for such results summaries, such as only reporting the information that was the most important for patients to understand, including next steps, and doing so by using clear language that is free of medical jargon. Electronic result returns should also include explicit encouragement for patients to contact health care providers about questions. Finally, many participants preferred to manage their care by using their smartphones, particularly in instances when they needed to access health information on the go.

Conclusions: Participants recommended that a patient-friendly front section should accompany the more detailed report and made suggestions for organization, content, and wording. Many used their smartphones regularly to access test results; therefore, health systems and patient portal software vendors should accommodate smartphone app design and web portal design concomitantly when developing platforms for returning results.

背景:随着更多面向患者的工具的开发,基因检测结果将越来越多地以电子方式提供;然而,在创建结果模板之前,很少有研究收集患者对内容和设计的偏好数据。目的:本研究确定了患者对基因检测结果电子返回的偏好,包括内容和设计应优先考虑的因素。方法:采用以用户为中心的设计方法,采用半结构化协议进行59次访谈。访谈探讨了患者门户网站的内容和设计问题,这些门户网站有助于将测试结果返回给患者。我们采访了接受特定类型遗传学测试(药物遗传学测试、遗传性血液病测试和遗传性癌症风险测试)电子结果或接受任何类型遗传或非遗传测试结果的患者。结果:总的来说,许多参与者认为总是需要一些临床医生参与电子结果返回,带有简单摘要的电子封面将有助于促进这一点。封面摘要可以附在更详细的报告中,但不能取代它。参与者对这些结果摘要有具体的建议,例如只报告对患者来说最重要的信息,包括下一步行动,并使用不含医学术语的清晰语言。电子结果报告还应明确鼓励患者就问题联系医疗保健提供者。最后,许多参与者更喜欢使用智能手机来管理他们的护理,尤其是在他们需要随时随地访问健康信息的情况下。结论:参与者建议在更详细的报告中加入一个对患者友好的正面部分,并对组织、内容和措辞提出建议。许多人定期使用智能手机获取测试结果;因此,在开发返回结果的平台时,卫生系统和患者门户软件供应商应同时考虑智能手机应用程序设计和门户网站设计。
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引用次数: 2
Peer Review of “Patient Recommendations for the Content and Design of Electronic Returns of Genetic Test Results: Interview Study Among Patients Who Accessed Their Genetic Test Results via the Internet” 同行评审“患者对基因检测结果电子申报表内容和设计的建议:通过互联网访问基因检测结果的患者访谈研究”
Pub Date : 2022-05-31 DOI: 10.2196/38486
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引用次数: 1
Authors’ Response to Peer Reviews of “Patient Recommendations for the Content and Design of Electronic Returns of Genetic Test Results: Interview Study Among Patients Who Accessed Their Genetic Test Results via the Internet” 作者对“患者对基因检测结果电子申报内容和设计的建议:对通过互联网获取基因检测结果的患者的访谈研究”同行评议的回应
Pub Date : 2022-05-31 DOI: 10.2196/37170
Diane M. Korngiebel, K. West
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引用次数: 1
Peer Review of “Mask Use to Curtail Influenza in a Post–COVID-19 World: Modeling Study” “在covid -19后的世界中使用口罩遏制流感:建模研究”的同行评议
Pub Date : 2022-05-27 DOI: 10.2196/37240
Julia Frederick
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引用次数: 0
Mask Use to Curtail Influenza in a Post–COVID-19 World: Modeling Study 在covid -19后的世界中使用口罩来减少流感:建模研究
Pub Date : 2022-05-27 DOI: 10.2196/31955
H. Froese, Angel G A Prempeh
Background Face mask mandates have been instrumental in the reduction of transmission of airborne COVID-19. Thus, the question arises whether comparatively mild measures should be kept in place after the pandemic to reduce other airborne diseases such as influenza. Objective In this study, we aim to simulate the quantitative impact of face masks on the rate of influenza illnesses in the United States. Methods Using the Centers for Disease Control and Prevention data from 2010 to 2019, we used a series of differential equations to simulate past influenza seasons, assuming that people wore face masks. This was achieved by introducing a variable to account for the efficacy and prevalence of masks and then analyzing its impact on influenza transmission rate in a susceptible-exposed-infected-recovered model fit to the actual past seasons. We then compared influenza rates in this hypothetical scenario with the actual rates over the seasons. Results Our results show that several combinations of mask efficacy and prevalence can substantially reduce the burden of seasonal influenza. Across all the years modeled, a mask prevalence of 0.2 (20%) and assumed moderate inward and outward mask efficacy of 0.45 (45%) reduced influenza infections by >90%. Conclusions A minority of individuals wearing masks substantially reduced the number of influenza infections across seasons. Considering the efficacy rates of masks and the relatively insignificant monetary cost, we highlight that it may be a viable alternative or complement to influenza vaccinations.
佩戴口罩的规定有助于减少COVID-19的空气传播。因此,出现的问题是,是否应该在大流行之后保持相对温和的措施,以减少流感等其他空气传播疾病。在本研究中,我们旨在模拟口罩对美国流感发病率的定量影响。方法利用美国疾病控制与预防中心2010年至2019年的数据,我们使用一系列微分方程来模拟过去的流感季节,假设人们戴着口罩。这是通过引入一个变量来解释口罩的功效和流行程度,然后在一个符合过去实际季节的易感暴露-感染恢复模型中分析其对流感传播率的影响来实现的。然后,我们将这个假设情景中的流感发病率与各个季节的实际发病率进行了比较。结果口罩的使用效果与流行率的结合可显著减轻季节性流感的负担。在建模的所有年份中,口罩的流行率为0.2(20%),并假设中等的内向和外向口罩功效为0.45(45%),可使流感感染减少约90%。结论:少数佩戴口罩的人大大减少了流感感染的数量。考虑到口罩的有效性和相对微不足道的金钱成本,我们强调它可能是流感疫苗的可行替代或补充。
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引用次数: 6
Peer Review of “Satisfaction With Health Care Services at the Pediatric Specialist Clinic of the National Referral Center in Malaysia: Cross-sectional Study of Caregivers’ Perspectives” 同行评审“马来西亚国家转诊中心儿科专科诊所对医疗服务的满意度:护理人员视角的横断面研究”
Pub Date : 2022-05-25 DOI: 10.2196/37050
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引用次数: 1
Authors’ Response to Peer Reviews of “Satisfaction With Health Care Services at the Pediatric Specialist Clinic of the National Referral Center in Malaysia: Cross-sectional Study of Caregivers’ Perspectives” 作者对“马来西亚国家转诊中心儿科专科诊所医疗服务满意度:护理人员视角的横断面研究”同行评审的回应
Pub Date : 2022-05-25 DOI: 10.2196/37117
T. Selvarajah, E. Yamamoto, Yu Mon Saw, Tetsuyoshi Kariya, N. Hamajima
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引用次数: 0
Satisfaction With Health Care Services at the Pediatric Specialist Clinic of the National Referral Center in Malaysia: Cross-sectional Study of Caregivers' Perspectives. 马来西亚国家转诊中心儿科专科诊所对医疗服务的满意度:护理人员观点的横断面研究。
Pub Date : 2022-05-25 DOI: 10.2196/33025
Thinakaran M Selvarajah, Eiko Yamamoto, Yu Mon Saw, Tetsuyoshi Kariya, Nobuyuki Hamajima

Background: The concept of customer satisfaction is gaining hold in all corporate sectors worldwide, and a satisfaction survey is used as a tool to discover service problems and as a chance for customers to rate their experience with health care services. A high degree of patient satisfaction with the services given has been found in numerous studies conducted in Malaysian public health care facilities. However, there is limited information available on caregiver satisfaction with pediatric clinics run by the Ministry of Health (MoH) of Malaysia.

Objective: This was the first research performed at a public hospital's pediatric clinic, which was the first hospital to adopt the public-private-partnership model under the MoH, with the aim of discovering the prevalence and factors affecting the satisfaction of caregivers at the national referral center.

Methods: Cross-sectional research using the standard self-administered SERVQUAL questionnaire was conducted among caregivers accompanying their children to the clinic. The questionnaire consists of 16 paired statements to evaluate their expectations and experiences with the clinic services.

Results: A total of 459 caregivers were involved in this study with a majority aged between 30 and 39 years (n=254, 55.4%). Caregivers from the Indian community (adjusted odds ratio [AOR] 2.91, 95% CI 1.37-6.18) and lower income groups (AOR 2.94, 95% CI 1.87-4.64), and those with lower educational backgrounds (AOR 3.58, 95% CI 1.19-10.72) were more likely to be satisfied with the quality of pediatric clinic services. Housewives/househusbands (AOR 0.48, 95% CI 0.25-0.90), on the other hand, appeared less likely to be satisfied with the services provided during their visit to the clinic. Looking at overall patient satisfaction, 50.5% (n=232) of caregivers demonstrated satisfaction with the quality of services, compared to 49.5% (n=227) of dissatisfied respondents.

Conclusions: This paper suggests that, although most caregivers are satisfied with the services, greater emphasis must be placed on delivering reliable service in response to the MoH's mission to provide quality and integrated people-centered health services in Malaysia.

背景:客户满意度的概念在全球所有企业部门都越来越深入人心,满意度调查被用作发现服务问题的工具,也是客户评价其医疗保健服务体验的机会。在马来西亚公共卫生保健机构进行的大量研究中发现,患者对所提供的服务高度满意。然而,关于护理人员对马来西亚卫生部开设的儿科诊所的满意度的信息有限。目的:这是在公立医院的儿科诊所进行的第一项研究,也是第一家采用卫生部公私合作模式的医院,目的是了解国家转诊中心护理人员满意度的患病率和影响因素。方法:采用标准自填SERVQUAL问卷,对陪同子女到诊所就诊的护理人员进行横断面调查。问卷由16个配对陈述组成,以评估他们对诊所服务的期望和体验。结果:共有459名护理人员参与了这项研究,其中大多数年龄在30至39岁之间(n=254,55.4%)。来自印度社区(调整比值比[AOR]2.91,95%CI 1.37-6.18)和低收入群体(AOR 2.94,95%CI 1.87-4.64)的护理人员,而那些教育背景较低的人(AOR 3.58,95%CI 1.19-10.72)更有可能对儿科临床服务的质量感到满意。另一方面,家庭主妇/丈夫(AOR 0.48,95%CI 0.25-0.90)似乎不太可能对就诊期间提供的服务感到满意。从总体患者满意度来看,50.5%(n=232)的护理人员对服务质量表示满意,而不满意的受访者中这一比例为49.5%(n=227)。结论:本文建议,尽管大多数护理人员对服务感到满意,但必须更加重视提供可靠的服务,以响应卫生部在马来西亚提供优质和以人为中心的综合医疗服务的使命。
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引用次数: 7
Peer Review of “The Influence of SARS-CoV-2 Variants on National Case-Fatality Rates: Correlation and Validation Study” 《SARS-CoV-2变异对国家病死率的影响:相关性与验证性研究》同行评议
Pub Date : 2022-05-24 DOI: 10.2196/38522
R. Poluru
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引用次数: 0
Supporting Technologies for COVID-19 Prevention: Systemized Review. 预防 COVID-19 的辅助技术:系统化审查。
Pub Date : 2022-05-24 eCollection Date: 2022-04-01 DOI: 10.2196/30344
Zhuo Zhao, Rui Li, Yangmyung Ma, Iman Islam, Abdul M Azam Rajper, WenZhan Song, Hongliang Ren, Zion Tsz Ho Tse

Background: During COVID-19, clinical and health care demands have been on the rapid rise. Major challenges that have arisen during the pandemic have included a lack of testing kits, shortages of ventilators to treat severe cases of COVID-19, and insufficient accessibility to personal protective equipment for both hospitals and the public. New technologies have been developed by scientists, researchers, and companies in response to these demands.

Objective: The primary objective of this review is to compare different supporting technologies in the subjugation of the COVID-19 spread.

Methods: In this paper, 150 news articles and scientific reports on COVID-19-related innovations during 2020-2021 were checked, screened, and shortlisted to yield a total of 23 articles for review. The keywords "COVID-19 technology," "COVID-19 invention," and "COVID-19 equipment" were used in a Google search to generate related news articles and scientific reports. The search was performed on February 1, 2021. These were then categorized into three sections, which are personal protective equipment (PPE), testing methods, and medical treatments. Each study was analyzed for its engineering characteristics and potential social impact on the COVID-19 pandemic.

Results: A total of 9 articles were selected for review concerning PPE. In general, the design and fabrication of PPE were moving toward the direction of additive manufacturing and intelligent information feedback while being eco-friendly. Moreover, 8 articles were selected for reviewing testing methods within the two main categories of molecular and antigen tests. All the inventions endeavored to increase sensitivity while reducing the turnaround time. However, the inventions reported in this review paper were not sufficiently tested for their safety and efficiency. Most of the inventions are temporary solutions intended to be used only during shortages of medical resources. Finally, 6 articles were selected for the review of COVID-19 medical treatment. The major challenge identified was the uncertainty in applying novel ideas to speed up the production of ventilators.

Conclusions: The technologies developed during the COVID-19 pandemic were considered for review. In order to better respond to future pandemics, national reserves of critical medical supplies should be increased to improve preparation. This pandemic has also highlighted the need for the automation and optimization of medical manufacturing.

背景:在 COVID-19 期间,临床和医疗保健需求急剧上升。大流行期间出现的主要挑战包括缺乏检测试剂盒、治疗 COVID-19 重症病例的呼吸机短缺以及医院和公众无法获得足够的个人防护设备。为满足这些需求,科学家、研究人员和公司开发了新技术:本综述的主要目的是对抑制 COVID-19 传播的不同辅助技术进行比较:本文对 2020-2021 年间有关 COVID-19 相关创新的 150 篇新闻报道和科学报告进行了检查、筛选和短名单筛选,共筛选出 23 篇文章进行综述。在谷歌搜索中使用了 "COVID-19 技术"、"COVID-19 发明 "和 "COVID-19 设备 "等关键词,以生成相关的新闻报道和科学报告。搜索时间为 2021 年 2 月 1 日。然后将这些文章分为三个部分,即个人防护设备 (PPE)、测试方法和医疗方法。对每项研究的工程特点和对 COVID-19 大流行的潜在社会影响进行了分析:共选取了 9 篇有关个人防护设备的文章进行审查。总体而言,个人防护设备的设计和制造正朝着增材制造和智能信息反馈的方向发展,同时兼顾环保。此外,还选取了 8 篇文章对分子检测和抗原检测两大类检测方法进行评述。所有发明都致力于提高灵敏度,同时缩短周转时间。然而,本综述论文中报告的发明并未对其安全性和效率进行充分测试。大多数发明都是临时解决方案,只打算在医疗资源短缺时使用。最后,有 6 篇文章被选作 COVID-19 医疗的综述。发现的主要挑战是在应用新想法加快呼吸机生产方面存在不确定性:我们对 COVID-19 大流行期间开发的技术进行了审查。为了更好地应对未来的大流行病,应增加国家关键医疗用品的储备,以改进准备工作。这次大流行还凸显了医疗制造自动化和优化的必要性。
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