Pub Date : 2023-10-10DOI: 10.1007/s40737-023-00353-4
Sagun Ballav Pant, Suraj Bahadur Thapa, John Howard, Saroj Prasad Ojha, Lars Lien
Abstract Opioid use disorder is associated with high levels of stigma and discrimination, which impact treatment seeking and compliance. Despite extensive evidence as an optimal intervention for opioid use disorder, enrollment in Opioid Agonist Treatment (OAT) in settings like Nepal, is accompanied by moral judgements and stigma with a broad narrative of it being merely a replacement of ‘one addiction with another’. Stigma is eventually internalized by many service users impacting enrollment and maintenance in OAT, and quality of life. This study aimed to assess internalized stigma among OAT service users in Nepal and to explore its association with sociodemographic characteristics, lifetime mental disorders and quality of life. A cross-sectional study was conducted among 231 OAT service users, the survey instrument included the Mini-International Neuropsychiatric Interview for DSM-5, Internalized Stigma of Mental Illness Inventory (ISMI) and the World Health Organization Quality of Life –BREF. Factors associated with quality of life and internalized stigma were investigated using bivariate and multivariate analyses. More than half (56.28%) of respondents reported having high internalized stigma with a mean ISMI score of 2.71 ± 0.64. All 29 ISMI items were found to have a mean score greater than 2.5 indicating a high burden of internalized stigma. Service users reporting higher internalized stigma had significantly lower quality of life across all domains, greater medical co-morbidity, lifetime anxiety and depressive disorder and alcohol use disorder. To lessen stigma and its impacts, our findings recommend a national initiative targeting stigma reduction interventions for existing OAT services and beneficiaries.
{"title":"Internalized Stigma and its Correlates Among Opioid Agonist Treatment Service Users in Nepal","authors":"Sagun Ballav Pant, Suraj Bahadur Thapa, John Howard, Saroj Prasad Ojha, Lars Lien","doi":"10.1007/s40737-023-00353-4","DOIUrl":"https://doi.org/10.1007/s40737-023-00353-4","url":null,"abstract":"Abstract Opioid use disorder is associated with high levels of stigma and discrimination, which impact treatment seeking and compliance. Despite extensive evidence as an optimal intervention for opioid use disorder, enrollment in Opioid Agonist Treatment (OAT) in settings like Nepal, is accompanied by moral judgements and stigma with a broad narrative of it being merely a replacement of ‘one addiction with another’. Stigma is eventually internalized by many service users impacting enrollment and maintenance in OAT, and quality of life. This study aimed to assess internalized stigma among OAT service users in Nepal and to explore its association with sociodemographic characteristics, lifetime mental disorders and quality of life. A cross-sectional study was conducted among 231 OAT service users, the survey instrument included the Mini-International Neuropsychiatric Interview for DSM-5, Internalized Stigma of Mental Illness Inventory (ISMI) and the World Health Organization Quality of Life –BREF. Factors associated with quality of life and internalized stigma were investigated using bivariate and multivariate analyses. More than half (56.28%) of respondents reported having high internalized stigma with a mean ISMI score of 2.71 ± 0.64. All 29 ISMI items were found to have a mean score greater than 2.5 indicating a high burden of internalized stigma. Service users reporting higher internalized stigma had significantly lower quality of life across all domains, greater medical co-morbidity, lifetime anxiety and depressive disorder and alcohol use disorder. To lessen stigma and its impacts, our findings recommend a national initiative targeting stigma reduction interventions for existing OAT services and beneficiaries.","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136353596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-10DOI: 10.1007/s40737-023-00371-2
Sarah Rabbitte, Shagufta Adam
{"title":"Involvement of People with Intellectual Disabilities and Their Carers in Research","authors":"Sarah Rabbitte, Shagufta Adam","doi":"10.1007/s40737-023-00371-2","DOIUrl":"https://doi.org/10.1007/s40737-023-00371-2","url":null,"abstract":"","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136294057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-06DOI: 10.1007/s40737-023-00370-3
Charlie Freeman, Gisela Perez-Olivas, Elizabeth Patteril, Verity Chester
{"title":"Supporting Carers Within a Forensic Intellectual Disability Community Team: The Development of a Carers Strategy","authors":"Charlie Freeman, Gisela Perez-Olivas, Elizabeth Patteril, Verity Chester","doi":"10.1007/s40737-023-00370-3","DOIUrl":"https://doi.org/10.1007/s40737-023-00370-3","url":null,"abstract":"","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135346891","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-05DOI: 10.1007/s40737-023-00372-1
Cara Evans, Nick Kates, Julia Abelson, John Lavis
{"title":"“With me and for me”: Perspectives of Service Users with Complex Health and Social Needs on Mental Health Care","authors":"Cara Evans, Nick Kates, Julia Abelson, John Lavis","doi":"10.1007/s40737-023-00372-1","DOIUrl":"https://doi.org/10.1007/s40737-023-00372-1","url":null,"abstract":"","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134976432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-19DOI: 10.1007/s40737-023-00366-z
Ashok Singh, Ayomipo Amiola, Phil Temple, Charlotte Maplanka, Ignatius Gunaratna, Verity Chester
{"title":"Diagnostic Overshadowing & Implications on Treatment & Rehabilitation of People with a Genetic Syndrome and Co-existing Psychiatric Conditions: A Case Report of 22q11.2 Duplication Syndrome","authors":"Ashok Singh, Ayomipo Amiola, Phil Temple, Charlotte Maplanka, Ignatius Gunaratna, Verity Chester","doi":"10.1007/s40737-023-00366-z","DOIUrl":"https://doi.org/10.1007/s40737-023-00366-z","url":null,"abstract":"","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135015089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-17DOI: 10.1007/s40737-023-00365-0
Sally Abdalhai, Denise Zaya Berte, Fayez Mahamid, Dana Bdier
{"title":"The Role of Play in Developing Social Skills Among Children Diagnosed with Autism Spectrum Disorder in Palestine","authors":"Sally Abdalhai, Denise Zaya Berte, Fayez Mahamid, Dana Bdier","doi":"10.1007/s40737-023-00365-0","DOIUrl":"https://doi.org/10.1007/s40737-023-00365-0","url":null,"abstract":"","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135259220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-15DOI: 10.1007/s40737-023-00369-w
Samuel Tromans, Rosie Marten, Prabhleen Jaggi, Gemma Lewin, Cath Robinson, Anna Janickyj, Karishma Joshi, Dave Clarke, Reza Kiani, Satheesh Gangadharan
Abstract There is a lack of meaningful involvement of people with intellectual disability in research, outside of the context of study participation. There is a need to develop adapted means of facilitating Patient and Public Involvement when working with people with intellectual disability, that takes account for their level of neurodevelopmental functioning. In this article we describe a Patient and Public Involvement course developed for people with intellectual disability, developed by professionals working with this group, which was subsequently piloted in Leicestershire UK. Different versions of the course were developed for student participants with different levels of neurodevelopmental functioning and communication impairment. For Part 1 of the course (‘What is Research?’), students from Pathway 1 (mild intellectual disability) and Pathway 2 (moderate intellectual disability) both had significantly increased ( p ≤ 0.05) mean knowledge test scores post-course relative to pre-course, with non-significant increases in mean confidence test scores for both pathway groups. For Part 2 of the course (‘Your Involvement in Research’), most participants agreed or strongly agreed with the statement ‘I found this interesting’ (Pathway 1: 8 of 9 students [89%]; Pathway 2: 8 of 10 students [80%]), but less students provided equivalent responses to the statement ‘I want to be involved in research in the future’ (Pathway 1: 2 of 9 students [22%]; Pathway 2: 8 of 10 students [80%]). This training course provides a template to provide basic training for people with intellectual disability with respect to research involvement, but requires further evaluation in larger student samples of diverse demographic and neurodevelopmental characteristics.
{"title":"Developing a Patient and Public Involvement Training Course for People with Intellectual Disabilities: The Leicestershire Experience","authors":"Samuel Tromans, Rosie Marten, Prabhleen Jaggi, Gemma Lewin, Cath Robinson, Anna Janickyj, Karishma Joshi, Dave Clarke, Reza Kiani, Satheesh Gangadharan","doi":"10.1007/s40737-023-00369-w","DOIUrl":"https://doi.org/10.1007/s40737-023-00369-w","url":null,"abstract":"Abstract There is a lack of meaningful involvement of people with intellectual disability in research, outside of the context of study participation. There is a need to develop adapted means of facilitating Patient and Public Involvement when working with people with intellectual disability, that takes account for their level of neurodevelopmental functioning. In this article we describe a Patient and Public Involvement course developed for people with intellectual disability, developed by professionals working with this group, which was subsequently piloted in Leicestershire UK. Different versions of the course were developed for student participants with different levels of neurodevelopmental functioning and communication impairment. For Part 1 of the course (‘What is Research?’), students from Pathway 1 (mild intellectual disability) and Pathway 2 (moderate intellectual disability) both had significantly increased ( p ≤ 0.05) mean knowledge test scores post-course relative to pre-course, with non-significant increases in mean confidence test scores for both pathway groups. For Part 2 of the course (‘Your Involvement in Research’), most participants agreed or strongly agreed with the statement ‘I found this interesting’ (Pathway 1: 8 of 9 students [89%]; Pathway 2: 8 of 10 students [80%]), but less students provided equivalent responses to the statement ‘I want to be involved in research in the future’ (Pathway 1: 2 of 9 students [22%]; Pathway 2: 8 of 10 students [80%]). This training course provides a template to provide basic training for people with intellectual disability with respect to research involvement, but requires further evaluation in larger student samples of diverse demographic and neurodevelopmental characteristics.","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135436305","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-13DOI: 10.1007/s40737-023-00364-1
Brittany Wright, Shannon B. Juengst, Karen Brewer-Mixon, C. Munro Cullum, Kristin Wilmoth, Lauren Terhorst
{"title":"Rasch Analysis of the Behavioral Assessment Screening Tool for Adolescents (BAST-A) in Mild Traumatic Brain Injury","authors":"Brittany Wright, Shannon B. Juengst, Karen Brewer-Mixon, C. Munro Cullum, Kristin Wilmoth, Lauren Terhorst","doi":"10.1007/s40737-023-00364-1","DOIUrl":"https://doi.org/10.1007/s40737-023-00364-1","url":null,"abstract":"","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135741571","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-09-12DOI: 10.1007/s40737-023-00362-3
Dolly Sud, Archana Anandaram, Helen Atkins, Robyn McAskill, Sion Scott
Abstract The World Health Organisation defines health technologies as the “application of organized knowledge and skills in the form of devices, medicines, vaccines, procedures and systems developed to solve a health problem and improve quality of lives.” Innovative health technologies have immense potential to improve human health and well-being. However, their advent does not guarantee equitable health outcomes. Not all individuals have equal access to health technologies resulting in different health outcomes for those individuals. Barriers to adoption, implementation, access, research and design can lead to exclusion and perpetuate the health inequalities already experienced by vulnerable or marginalised groups, for example those with intellectual disabilities (ID). Point of care testing (POCT) is a health technology used to monitor physical health and has been available for almost a decade. POCT is reported to be minimally invasive, can be conducted in a wide range of settings, enables shorter time to clinical decision making, improved self-management of health conditions and patient empowerment. Despite the benefits of POCT, adoption, use, awareness and research of the use of this technology in people with ID to monitor physical health appears to be scant. This article will explore the application of POCT in this group of individuals for whom evidence informs us die up to 25 years earlier when compared to the general population, and physical health disease account for the overwhelming majority of premature deaths. This is a narrative review exploring the use of POCT for physical health of people with ID.
{"title":"Utilisation of Health Technologies for Physical Health of People with Learning Disabilities: Point of Care Testing","authors":"Dolly Sud, Archana Anandaram, Helen Atkins, Robyn McAskill, Sion Scott","doi":"10.1007/s40737-023-00362-3","DOIUrl":"https://doi.org/10.1007/s40737-023-00362-3","url":null,"abstract":"Abstract The World Health Organisation defines health technologies as the “application of organized knowledge and skills in the form of devices, medicines, vaccines, procedures and systems developed to solve a health problem and improve quality of lives.” Innovative health technologies have immense potential to improve human health and well-being. However, their advent does not guarantee equitable health outcomes. Not all individuals have equal access to health technologies resulting in different health outcomes for those individuals. Barriers to adoption, implementation, access, research and design can lead to exclusion and perpetuate the health inequalities already experienced by vulnerable or marginalised groups, for example those with intellectual disabilities (ID). Point of care testing (POCT) is a health technology used to monitor physical health and has been available for almost a decade. POCT is reported to be minimally invasive, can be conducted in a wide range of settings, enables shorter time to clinical decision making, improved self-management of health conditions and patient empowerment. Despite the benefits of POCT, adoption, use, awareness and research of the use of this technology in people with ID to monitor physical health appears to be scant. This article will explore the application of POCT in this group of individuals for whom evidence informs us die up to 25 years earlier when compared to the general population, and physical health disease account for the overwhelming majority of premature deaths. This is a narrative review exploring the use of POCT for physical health of people with ID.","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135879148","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Psychiatry of Intellectual Disability in the Elderly: A Baseline Audit","authors":"Ayomipo Amiola, Phil Temple, Ashok Singh, Manilka Brahmana, Meghana Rayala, Ignatius Gunaratna","doi":"10.1007/s40737-023-00363-2","DOIUrl":"https://doi.org/10.1007/s40737-023-00363-2","url":null,"abstract":"","PeriodicalId":73916,"journal":{"name":"Journal of psychosocial rehabilitation and mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135982548","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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