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Examining Peer-to-Peer and Patient-Provider Interactions on a Social Media Community Facilitating Ask the Doctor Services. 研究促进 "问医生 "服务的社交媒体社区上的点对点互动和患者与医疗服务提供者之间的互动。
Alicia L Nobles, Eric C Leas, Mark Dredze, John W Ayers

Ask the Doctor (AtD) services provide patients the opportunity to seek medical advice using online platforms. While these services represent a new mode of healthcare delivery, study of these online health communities and how they are used is limited. In particular, it is unknown if these platforms replicate existing barriers and biases in traditional healthcare delivery across demographic groups. We present an analysis of AskDocs, a subreddit that functions as a public AtD platform on social media. We examine the demographics of users, the health topics discussed, if biases present in offline healthcare settings exist on this platform, and how empathy is expressed in interactions between users and physicians. Our findings suggest a number of implications to enhance and support peer-to-peer and patient-provider interactions on online platforms.

问医生(AtD)服务为患者提供了利用在线平台寻求医疗建议的机会。虽然这些服务代表了一种新的医疗保健服务模式,但对这些在线健康社区及其使用方式的研究却很有限。特别是,这些平台是否复制了传统医疗保健服务在不同人口群体中存在的障碍和偏见,目前还不得而知。我们对 AskDocs 进行了分析,这是一个作为社交媒体上公共 AtD 平台的子reddit。我们研究了用户的人口统计学特征、所讨论的健康话题、线下医疗环境中存在的偏见在该平台上是否存在,以及在用户与医生的互动中如何表达同理心。我们的研究结果对加强和支持在线平台上的点对点互动和患者与医生之间的互动提出了一些建议。
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引用次数: 0
Examining Peer-to-Peer and Patient-Provider Interactions on a Social Media Community Facilitating Ask the Doctor Services 在促进医生咨询服务的社交媒体社区中检查点对点和患者-提供者互动
A. Nobles, E. Leas, Mark Dredze, J. Ayers
Ask the Doctor (AtD) services provide patients the opportunity to seek medical advice using online platforms. While these services represent a new mode of healthcare delivery, study of these online health communities and how they are used is limited. In particular, it is unknown if these platforms replicate existing barriers and biases in traditional healthcare delivery across demographic groups. We present an analysis of AskDocs, a subreddit that functions as a public AtD platform on social media. We examine the demographics of users, the health topics discussed, if biases present in offline healthcare settings exist on this platform, and how empathy is expressed in interactions between users and physicians. Our findings suggest a number of implications to enhance and support peer-to-peer and patient-provider interactions on online platforms.
“问医生”(AtD)服务为患者提供了利用在线平台寻求医疗建议的机会。虽然这些服务代表了一种新的医疗保健提供模式,但对这些在线卫生社区及其使用方式的研究有限。特别是,目前尚不清楚这些平台是否会在人口群体中复制传统医疗保健服务中的现有障碍和偏见。我们对AskDocs进行了分析,AskDocs是reddit的一个子版块,在社交媒体上充当公共AtD平台。我们检查了用户的人口统计数据、讨论的健康主题、该平台上是否存在线下医疗保健设置中的偏见,以及用户和医生之间的互动如何表达同理心。我们的研究结果提出了一些建议,以加强和支持在线平台上的点对点和患者-提供者互动。
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引用次数: 10
Correcting Sociodemographic Selection Biases for Population Prediction from Social Media 纠正社会人口选择偏差对社会媒体人口预测的影响
Salvatore Giorgi, Veronica E. Lynn, Keshav Gupta, F. Ahmed, S. Matz, Lyle Ungar, H. A. Schwartz
Social media is increasingly used for large-scale population predictions, such as estimating community health statistics. However, social media users are not typically a representative sample of the intended population - a "selection bias". Within the social sciences, such a bias is typically addressed with restratification techniques, where observations are reweighted according to how under- or over-sampled their socio-demographic groups are. Yet, restratifaction is rarely evaluated for improving prediction. In this two-part study, we first evaluate standard, "out-of-the-box" restratification techniques, finding they provide no improvement and often even degraded prediction accuracies across four tasks of esimating U.S. county population health statistics from Twitter. The core reasons for degraded performance seem to be tied to their reliance on either sparse or shrunken estimates of each population's socio-demographics. In the second part of our study, we develop and evaluate Robust Poststratification, which consists of three methods to address these problems: (1) estimator redistribution to account for shrinking, as well as (2) adaptive binning and (3) informed smoothing to handle sparse socio-demographic estimates. We show that each of these methods leads to significant improvement in prediction accuracies over the standard restratification approaches. Taken together, Robust Poststratification enables state-of-the-art prediction accuracies, yielding a 53.0% increase in variance explained (R 2) in the case of surveyed life satisfaction, and a 17.8% average increase across all tasks.
社交媒体越来越多地用于大规模人口预测,例如估计社区卫生统计数据。然而,社交媒体用户通常不是目标人群的代表性样本——这是一种“选择偏差”。在社会科学中,这种偏见通常是通过重新调整技术来解决的,即根据其社会人口群体的抽样不足或过度程度对观察结果进行重新加权。然而,重组很少被评估为改善预测。在这个由两部分组成的研究中,我们首先评估了标准的、“开箱即用”的重新定义技术,发现它们没有提供任何改进,甚至经常降低了从Twitter估计美国县人口健康统计数据的四项任务的预测准确性。表现下降的核心原因似乎与他们依赖于对每个人口的社会人口统计数据的稀疏或缩小的估计有关。在我们的研究的第二部分,我们开发和评估稳健后分层,它包括三种方法来解决这些问题:(1)估计量再分配,以考虑萎缩,以及(2)自适应分形和(3)平滑处理稀疏的社会人口估计。我们表明,这些方法中的每一种都比标准的重构方法显著提高了预测精度。综上所述,鲁棒后分层使最先进的预测准确性,在调查生活满意度的情况下,方差解释(r2)增加53.0%,所有任务平均增加17.8%。
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引用次数: 11
A Social Media Study on the Effects of Psychiatric Medication Use 社交媒体对精神科药物使用影响的研究
Koustuv Saha, Benjamin Sugar, J. Torous, B. Abrahao, Emre Kıcıman, M. Choudhury
Understanding the effects of psychiatric medications during mental health treatment constitutes an active area of inquiry. While clinical trials help evaluate the effects of these medications, many trials suffer from a lack of generalizability to broader populations. We leverage social media data to examine psychopathological effects subject to self-reported usage of psychiatric medication. Using a list of common approved and regulated psychiatric drugs and a Twitter dataset of 300M posts from 30K individuals, we develop machine learning models to first assess effects relating to mood, cognition, depression, anxiety, psychosis, and suicidal ideation. Then, based on a stratified propensity score based causal analysis, we observe that use of specific drugs are associated with characteristic changes in an individual's psychopathology. We situate these observations in the psychiatry literature, with a deeper analysis of pre-treatment cues that predict treatment outcomes. Our work bears potential to inspire novel clinical investigations and to build tools for digital therapeutics.
了解精神科药物在心理健康治疗中的作用是一个活跃的研究领域。虽然临床试验有助于评估这些药物的效果,但许多试验缺乏推广到更广泛人群的普遍性。我们利用社交媒体数据来检查自我报告使用精神药物对精神病理的影响。利用一份常见的批准和监管的精神科药物清单,以及来自3万个人的3亿篇帖子的Twitter数据集,我们开发了机器学习模型,首先评估与情绪、认知、抑郁、焦虑、精神病和自杀念头有关的影响。然后,基于分层倾向评分的因果分析,我们观察到特定药物的使用与个体精神病理的特征性变化有关。我们将这些观察结果放在精神病学文献中,并对预测治疗结果的治疗前线索进行了更深入的分析。我们的工作有可能激发新的临床研究,并为数字治疗建立工具。
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引用次数: 70
A Social Media Study on the Effects of Psychiatric Medication Use. 关于精神病药物使用影响的社交媒体研究。
Koustuv Saha, Benjamin Sugar, John Torous, Bruno Abrahao, Emre Kıcıman, Munmun De Choudhury

Understanding the effects of psychiatric medications during mental health treatment constitutes an active area of inquiry. While clinical trials help evaluate the effects of these medications, many trials suffer from a lack of generalizability to broader populations. We leverage social media data to examine psychopathological effects subject to self-reported usage of psychiatric medication. Using a list of common approved and regulated psychiatric drugs and a Twitter dataset of 300M posts from 30K individuals, we develop machine learning models to first assess effects relating to mood, cognition, depression, anxiety, psychosis, and suicidal ideation. Then, based on a stratified propensity score based causal analysis, we observe that use of specific drugs are associated with characteristic changes in an individual's psychopathology. We situate these observations in the psychiatry literature, with a deeper analysis of pre-treatment cues that predict treatment outcomes. Our work bears potential to inspire novel clinical investigations and to build tools for digital therapeutics.

了解精神科药物在精神健康治疗过程中的作用是一个活跃的研究领域。虽然临床试验有助于评估这些药物的效果,但许多试验缺乏对更广泛人群的普适性。我们利用社交媒体数据来研究自我报告的精神科药物使用情况对精神病理学的影响。我们利用一份常见的已批准和受管制的精神药物清单和一个由 3 万名个人发布的 3 亿条帖子组成的 Twitter 数据集,开发了机器学习模型,首先评估与情绪、认知、抑郁、焦虑、精神病和自杀意念有关的影响。然后,基于分层倾向得分的因果分析,我们观察到特定药物的使用与个体精神病理学的特征性变化相关。我们将这些观察结果与精神病学文献相结合,对预测治疗结果的治疗前线索进行了更深入的分析。我们的工作有可能激发新的临床研究,并为数字疗法提供工具。
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引用次数: 0
A Social Media Based Examination of the Effects of Counseling Recommendations after Student Deaths on College Campuses 基于社交媒体的大学校园学生死亡后咨询建议效果的检验
Koustuv Saha, Ingmar Weber, M. Choudhury
Student deaths on college campuses, whether brought about by a suicide or an uncontrollable incident, have serious repercussions for the mental wellbeing of students. Consequently, many campus administrators implement post-crisis intervention measures to promote student-centric mental health support. Information about these measures, which we refer to as "counseling recommendations", are often shared via electronic channels, including social media. However, the current ability to assess the effects of these recommendations on post-crisis psychological states is limited. We propose a causal analysis framework to examine the effects of these counseling recommendations after student deaths. We leverage a dataset from 174 Reddit campus communities and ~400M posts of ~350K users. Then we employ statistical modeling and natural language analysis to quantify the psychosocial shifts in behavioral, cognitive, and affective expression of grief in individuals who are "exposed" to (comment on) the counseling recommendations, compared to that in a matched control cohort. Drawing on crisis and psychology research, we find that the exposed individuals show greater grief, psycholinguistic, and social expressiveness, providing evidence of a healing response to crisis and thereby positive psychological effects of the counseling recommendations. We discuss the implications of our work in supporting post-crisis rehabilitation and intervention efforts on college campuses.
大学校园里的学生死亡,无论是由自杀还是不可控制的事件引起的,都会对学生的心理健康产生严重影响。因此,许多校园管理者实施危机后干预措施,以促进以学生为中心的心理健康支持。有关这些措施的信息,我们称之为“咨询建议”,通常通过包括社交媒体在内的电子渠道分享。然而,目前评估这些建议对危机后心理状态影响的能力是有限的。我们提出了一个因果分析框架来检验这些咨询建议在学生死亡后的影响。我们利用了174个Reddit校园社区和35万用户的4亿篇帖子的数据集。然后,我们使用统计模型和自然语言分析来量化“暴露”(评论)咨询建议的个体在行为、认知和情感表达方面的心理社会转变,并与匹配的对照队列进行比较。根据危机和心理学研究,我们发现暴露的个体表现出更大的悲伤,心理语言和社会表达能力,这为危机的治疗反应提供了证据,从而为咨询建议提供了积极的心理效果。我们讨论了我们的工作在支持大学校园危机后康复和干预工作的意义。
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引用次数: 44
A Social Media Based Examination of the Effects of Counseling Recommendations After Student Deaths on College Campuses. 基于社交媒体的大学校园学生死亡后咨询建议效果的检验。
Koustuv Saha, Ingmar Weber, Munmun De Choudhury

Student deaths on college campuses, whether brought about by a suicide or an uncontrollable incident, have serious repercussions for the mental wellbeing of students. Consequently, many campus administrators implement post-crisis intervention measures to promote student-centric mental health support. Information about these measures, which we refer to as "counseling recommendations", are often shared via electronic channels, including social media. However, the current ability to assess the effects of these recommendations on post-crisis psychological states is limited. We propose a causal analysis framework to examine the effects of these counseling recommendations after student deaths. We leverage a dataset from 174 Reddit campus communities and ~400M posts of ~350K users. Then we employ statistical modeling and natural language analysis to quantify the psychosocial shifts in behavioral, cognitive, and affective expression of grief in individuals who are "exposed" to (comment on) the counseling recommendations, compared to that in a matched control cohort. Drawing on crisis and psychology research, we find that the exposed individuals show greater grief, psycholinguistic, and social expressiveness, providing evidence of a healing response to crisis and thereby positive psychological effects of the counseling recommendations. We discuss the implications of our work in supporting post-crisis rehabilitation and intervention efforts on college campuses.

大学校园里的学生死亡,无论是由自杀还是不可控制的事件引起的,都会对学生的心理健康产生严重影响。因此,许多校园管理者实施危机后干预措施,以促进以学生为中心的心理健康支持。有关这些措施的信息,我们称之为“咨询建议”,通常通过包括社交媒体在内的电子渠道分享。然而,目前评估这些建议对危机后心理状态影响的能力是有限的。我们提出了一个因果分析框架来检验这些咨询建议在学生死亡后的影响。我们利用了174个Reddit校园社区和35万用户的4亿篇帖子的数据集。然后,我们使用统计模型和自然语言分析来量化“暴露”(评论)咨询建议的个体在行为、认知和情感表达方面的心理社会转变,并与匹配的对照队列进行比较。根据危机和心理学研究,我们发现暴露的个体表现出更大的悲伤,心理语言和社会表达能力,这为危机的治疗反应提供了证据,从而为咨询建议提供了积极的心理效果。我们讨论了我们的工作在支持大学校园危机后康复和干预工作的意义。
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引用次数: 0
"Is This an STD? Please Help!": Online Information Seeking for Sexually Transmitted Diseases on Reddit “这是性病吗?”请帮助!:在Reddit上寻找性传播疾病的在线信息
A. Nobles, C. Dreisbach, J. Keim-Malpass, Laura E. Barnes
Increasing incidence of sexually transmitted diseases (STDs) has prompted the public health and technology communities to innovate new measures to understand how individuals use Internet resources to attain relevant information, particularly for sensitive or stigmatized conditions. The purpose of this study is to examine recent health information seeking and needs of the r/STD community, a subreddit focused exclusively on STDs. We found that the majority of posts crowd-source information about intermediate, non-reportable STDs such as human papillomavirus (HPV). Crowdsourced information in this community focused on symptoms, treatment, as well as the social and emotional aspects of sexual health such as fear of misdiagnosis. From our analysis, it is clear that online communities focused on discussion of health symptoms have the ripe potential to influence information-seeking behavior and consumer action.
性传播疾病发病率的增加促使公共卫生界和技术界创新措施,以了解个人如何利用互联网资源获取相关信息,特别是敏感或污名化情况的信息。本研究的目的是研究r/STD社区(一个专门关注性病的reddit子社区)最近的健康信息寻求和需求。我们发现,大多数帖子都是关于中间的、不可报告的性传播疾病(如人乳头瘤病毒(HPV))的信息。这个社区的众包信息侧重于症状、治疗以及性健康的社会和情感方面,如对误诊的恐惧。从我们的分析来看,很明显,关注健康症状讨论的在线社区具有影响信息寻求行为和消费者行为的成熟潜力。
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引用次数: 24
"Is this a STD? Please help!": Online Information Seeking for Sexually Transmitted Diseases on Reddit. “这是性病吗?”请帮助!:在Reddit上寻找性传播疾病的在线信息。
Alicia L Nobles, Caitlin N Dreisbach, Jessica Keim-Malpass, Laura E Barnes

Increasing incidence of sexually transmitted diseases (STDs) has prompted the public health and technology communities to innovate new measures to understand how individuals use Internet resources to attain relevant information, particularly for sensitive or stigmatized conditions. The purpose of this study is to examine recent health information seeking and needs of the r/STD community, a subreddit focused exclusively on STDs. We found that the majority of posts crowd-source information about intermediate, non-reportable STDs such as human papillomavirus (HPV). Crowdsourced information in this community focused on symptoms, treatment, as well as the social and emotional aspects of sexual health such as fear of misdiagnosis. From our analysis, it is clear that online communities focused on discussion of health symptoms have the ripe potential to influence information-seeking behavior and consumer action.

性传播疾病发病率的增加促使公共卫生界和技术界创新措施,以了解个人如何利用互联网资源获取相关信息,特别是敏感或污名化情况的信息。本研究的目的是研究r/STD社区(一个专门关注性病的reddit子社区)最近的健康信息寻求和需求。我们发现,大多数帖子都是关于中间的、不可报告的性传播疾病(如人乳头瘤病毒(HPV))的信息。这个社区的众包信息侧重于症状、治疗以及性健康的社会和情感方面,如对误诊的恐惧。从我们的分析来看,很明显,关注健康症状讨论的在线社区具有影响信息寻求行为和消费者行为的成熟潜力。
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引用次数: 0
Loyalty in Online Communities. 在线社区的忠诚度。
William L Hamilton, Justine Zhang, Cristian Danescu-Niculescu-Mizil, Dan Jurafsky, Jure Leskovec

Loyalty is an essential component of multi-community engagement. When users have the choice to engage with a variety of different communities, they often become loyal to just one, focusing on that community at the expense of others. However, it is unclear how loyalty is manifested in user behavior, or whether certain community characteristics encourage loyalty. In this paper we operationalize loyalty as a user-community relation: users loyal to a community consistently prefer it over all others; loyal communities retain their loyal users over time. By exploring a large set of Reddit communities, we reveal that loyalty is manifested in remarkably consistent behaviors. Loyal users employ language that signals collective identity and engage with more esoteric, less popular content, indicating that they may play a curational role in surfacing new material. Loyal communities have denser user-user interaction networks and lower rates of triadic closure, suggesting that community-level loyalty is associated with more cohesive interactions and less fragmentation into subgroups. We exploit these general patterns to predict future rates of loyalty. Our results show that a user's propensity to become loyal is apparent from their initial interactions with a community, suggesting that some users are intrinsically loyal from the very beginning.

忠诚是多社区参与的重要组成部分。当用户可以选择加入各种不同的社区时,他们通常会只忠于一个社区,而牺牲其他社区。然而,目前尚不清楚忠诚度是如何在用户行为中表现出来的,或者是否某些社区特征鼓励了忠诚度。在本文中,我们将忠诚度作为一种用户-社区关系进行操作:忠诚于一个社区的用户始终比其他社区更喜欢这个社区;随着时间的推移,忠实的社区会留住忠实的用户。通过研究大量的Reddit社区,我们发现忠诚表现在非常一致的行为上。忠诚的用户使用表达集体身份的语言,并参与更深奥、不太流行的内容,这表明他们可能在新材料的出现中发挥策展作用。忠诚的社区有更密集的用户-用户互动网络和更低的三合一关闭率,这表明社区层面的忠诚与更紧密的互动和更少的分裂成子群体有关。我们利用这些一般模式来预测未来的忠诚度。我们的研究结果表明,用户的忠诚倾向从他们最初与社区的互动中就可以明显看出,这表明一些用户从一开始就具有内在的忠诚。
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引用次数: 0
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Proceedings of the ... International AAAI Conference on Weblogs and Social Media. International AAAI Conference on Weblogs and Social Media
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