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Monographs of the American Association on Mental Retardation最新文献

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Foster family care for persons with mental retardation. 为智障人士提供寄养家庭照顾。
S A Borthwick-Duffy, K F Widaman, T D Little, R K Eyman
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引用次数: 0
Overview of the family support movement. 家庭支持运动概述。
V J Bradley
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引用次数: 0
Supporting families. State family support efforts. 支持家庭。国家家庭支持工作。
J Knoll, S Covert, R Osuch, S O'Connor, J Agosta, B Blaney
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引用次数: 0
Being a family. The experience of raising a child with a disability or chronic illness. 作为一个家庭。抚养有残疾或慢性疾病的孩子的经历
J Knoll

This chapter examined the experiences of families of children with a variety of specialized needs, families who, as pioneers in family-centered, community-based care, are defining the future of services. It also looked at the services that are supposed to support the families in their efforts. On one hand, we have exposed the reader to the tension between traditional approaches to services for children with special needs and the expressed needs of families for coherence and empowerment. On the other hand, the data testify to the development of a new definition of the parent-professional relationship as individual professionals and select service systems around the country strive to work out what it means to support families. When the testimony of these families is carefully read, we are left with an impression of a schizophrenic system of public and private supports for home care for children with severe disabilities and specialized health care needs. The official rhetoric affirms the primacy of the family, and yet the experience of these families is otherwise. Again and again, the families told of benefits managers, case managers, discharge planners, social workers, program administrators, special educators, and the like who implied that parents were out to "milk the system." This attitude was conveyed even in dealing with entitlements and plans to which the parents had long contributed. Families were treated as beneficiaries of benevolent charity for which they should be grateful. Families, already struggling to come to terms with their child's impairment and the care demands associated with it, find themselves stigmatized, impoverished, and degraded. In a society of rugged individualists they are forced to ask for help. That in itself is more than some of the parents can deal with. It should be clear that these parents are not asking for charity. No one here is out to "milk the system." They are simply seeking support to meet some of the extraordinary demands associated with raising their children. As parents, they are not looking for the state to assume their responsibilities. Rather, they seek supports that will enable them to devote their energies to being parents. Their testimony suggests the need for states to recognize support for the family as an entitlement that affirms that the family. They base this call on the fact that support for families is the most cost effective service the state can provide.(ABSTRACT TRUNCATED AT 400 WORDS)

本章考察了有各种特殊需要的儿童家庭的经验,这些家庭作为以家庭为中心、以社区为基础的护理的先驱,正在定义服务的未来。它还研究了应该支持这些家庭努力的服务。一方面,我们向读者展示了为有特殊需要的儿童提供服务的传统方法与家庭对一致性和赋权的表达需求之间的紧张关系。另一方面,这些数据证明了父母-职业关系新定义的发展,因为全国各地的专业人士和精选服务系统都在努力找出支持家庭的意义。当仔细阅读这些家庭的证词时,我们留下的印象是,公共和私人支持严重残疾儿童的家庭护理和特殊医疗保健需求的系统是一个分裂的系统。官方的说辞肯定了家庭的首要地位,然而这些家庭的经历却并非如此。这些家庭一次又一次地讲述福利管理人员、个案管理人员、出院计划人员、社会工作者、项目管理人员、特殊教育工作者以及诸如此类的人,他们暗示父母是在“榨取系统”。这种态度甚至在处理父母长期出资的权利和计划时也表现出来。家庭被视为慈善事业的受益者,他们应该心存感激。已经在努力接受孩子的缺陷和与之相关的护理需求的家庭,发现自己被污名化、贫困和堕落。在一个粗犷的个人主义者的社会里,他们被迫寻求帮助。这本身就超出了一些家长的承受能力。应该清楚的是,这些父母并不是在乞求施舍。这里没有人想“压榨系统”。他们只是在寻求帮助,以满足与抚养孩子有关的一些特殊需求。作为父母,他们不希望国家承担他们的责任。相反,他们寻求支持,使他们能够投入精力成为父母。他们的证词表明,各州有必要承认对家庭的支持是一种权利,这种权利肯定了家庭。他们之所以这样呼吁,是因为对家庭的支持是国家所能提供的最具成本效益的服务。(摘要删节为400字)
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引用次数: 0
Family empowerment. Four case studies. 家庭赋权。四个案例研究。
M L Ellison, H Bersani, B Blaney, E Freud
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引用次数: 0
Emerging issues in family support: conclusion and implications. 家庭支持中的新问题:结论与启示。
V J Bradley
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引用次数: 0
Evaluating family support services. Two quantitative case studies. 评估家庭支持服务。两个定量案例研究。
J Agosta
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引用次数: 0
Before their time: fetuses and infants at risk. 在他们之前:胎儿和婴儿处于危险之中。
Pub Date : 1990-11-01 DOI: 10.1037/031859
L. Cohen
What do you do to start reading before their time fetuses and infants at risk? Searching the book that you love to read first or find an interesting book that will make you want to read? Everybody has difference with their reason of reading a book. Actuary, reading habit must be from earlier. Many people may be love to read, but not a book. It's not fault. Someone will be bored to open the thick book with small words to read. In more, this is the real condition. So do happen probably with this before their time fetuses and infants at risk.
你该怎么做才能在胎儿和婴儿有阅读风险之前就开始阅读呢?先找一本你喜欢读的书,还是找一本让你想读的有趣的书?每个人读书的理由都不一样。精算师,读书的习惯必须从小养成。许多人可能爱读书,却不爱读书。这不是错。有人会厌倦打开有小字的厚书去读。在更多的情况下,这是真实的情况。所以在胎儿和婴儿处于危险之中之前可能会发生这种情况。
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引用次数: 1
The treatment of severe behavior disorders: behavior analysis approaches. 严重行为障碍的治疗:行为分析方法。
Pub Date : 1990-07-01 DOI: 10.5014/AJOT.44.7.666A
Megan Gangl
This monograph is divided into three sections. The first section comprises five chapters that review and discuss current treatment approaches, the second section comprises two chapters concerned with severe problems, and the third section comprises two chapters that address training concerns. The authors of these chapters used various approaches, but all are based on a philosophy of behavior analysis-behavior modification. Norris Haring, the author of the foreword, sees four areas-behavioral diagnostics, positive programming, self-management, and parent training-as new territory in behavioral management, and the book includes a chapter on each of these topics. Despite their differences, the primary focus of all of these approaches seems to be the humane, respectful treatment of the client. Section 1, Treatment Approaches, reviews token economies, self-management approaches, the use of punishment, positive programming, and behavioral diagnostics. Section 2, Severe Problems, addresses aggressive and disruptive behavior and communityreferenced research on self-stimulation. Section 3, Training Concerns, reviews behavioral parent training and effective staff management. Generally, the monograph articles are well written, although some are wordy, too narrowly focused, or defensive. Each approach is presented in a positive manner and is supported by other research. Application of each approach is discussed through either case studies or research completed by the author. Ideas on the implementation of approaches with different persons are discussed. Although the title of the book indicates that it addresses exclusively the treatment of severe behavior disorders, the authors also address mild behavior problems and approaches that can be applied to any type of problem. Additionally, many references are provided for further reading related to specific topic areas. An occupational therapist would find this book helpful. Many of the ideas are practical and easy to implement with a minimum of special equipment. The approaches covered generally require the therapist to work with other professionals when treating the clients. Although this book is not addressed specifically to occupational therapists, it would be helpful to the therapist working in developmental disabilities or psychiatry. Megan Gangl, MA, OTR
这本专著分为三个部分。第一部分包括回顾和讨论当前治疗方法的五章,第二部分包括涉及严重问题的两章,第三部分包括涉及培训问题的两章。这些章节的作者使用了各种方法,但都是基于行为分析-行为修正的哲学。诺里斯·哈林,前言的作者,将四个领域——行为诊断,积极规划,自我管理和父母培训——视为行为管理的新领域,书中对每个主题都有一个章节。尽管存在差异,但所有这些方法的主要焦点似乎都是人性化,尊重客户的待遇。第1节,治疗方法,回顾了代币经济,自我管理方法,惩罚的使用,积极规划和行为诊断。第2部分,严重问题,讨论攻击性和破坏性行为以及自我刺激的社区参考研究。第3节,培训关注,审查行为父母培训和有效的员工管理。一般来说,专著文章写得很好,虽然有些是冗长的,过于狭隘的焦点,或辩护。每种方法都以积极的方式提出,并得到其他研究的支持。通过案例研究或作者完成的研究来讨论每种方法的应用。讨论了不同人实施方法的思路。虽然这本书的标题表明它专门针对严重行为障碍的治疗,但作者也讨论了轻度行为问题和可应用于任何类型问题的方法。此外,还提供了许多与特定主题领域相关的参考资料供进一步阅读。职业治疗师会觉得这本书很有帮助。许多想法都是实用的,并且很容易用最少的特殊设备来实现。所涵盖的方法通常要求治疗师在治疗客户时与其他专业人士合作。虽然这本书不是专门针对职业治疗师的,但它会对从事发育障碍或精神病学工作的治疗师有所帮助。Megan Gangl, MA, OTR
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引用次数: 23
Before their time: fetuses and infants at risk. 在他们之前:胎儿和婴儿处于危险之中。
L G Cohen
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引用次数: 0
期刊
Monographs of the American Association on Mental Retardation
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