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Coordinating data management for multiple ongoing clinical trials and registries. 协调多个正在进行的临床试验和注册的数据管理。
Pub Date : 1990-12-01
M A Carr

The Epidemiology Data Center at the University of Pittsburgh has developed a standard set of data management procedures, reports, and computing configurations for use on multicenter research projects. Based on budget restrictions and study design considerations, a project-specific data management system can be quickly constructed by utilizing appropriate components from the EDC tool kit: the PoP software system for the computerization of the database from paper forms to data entry screens; program shells for telecommunication and backup procedures; and procedural documents for providing the necessary training materials for centralized or decentralized processing environments. The EDC data flow specification provides quality control assurances from entry through statistical analysis.

匹兹堡大学的流行病学数据中心开发了一套标准的数据管理程序、报告和计算配置,用于多中心研究项目。基于预算限制和研究设计方面的考虑,可以利用EDC工具包中的适当组成部分,迅速建立一个特定项目的数据管理系统:用于将数据库从纸质表格电脑化到数据输入屏幕的PoP软件系统;程序外壳用于通讯和备份程序;以及为集中或分散处理环境提供必要培训材料的程序性文件。EDC数据流规范提供了从入口到统计分析的质量控制保证。
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引用次数: 0
The relational clinical database: a possible solution to the star wars in registry systems. 关系临床数据库:注册系统中星球大战的可能解决方案。
Pub Date : 1990-12-01
D K Michels, M Zamieroski

In summary, having data from other service areas available in a relational clinical database could resolve many of the problems existing in today's registry systems. Uniting sophisticated information systems into a centralized database system could definitely be a corporate asset in managing the bottom line.

总之,在关系临床数据库中提供来自其他服务领域的数据可以解决当今注册系统中存在的许多问题。将复杂的信息系统统一到一个集中的数据库系统中,绝对可以成为管理底线的公司资产。
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引用次数: 0
A statewide cancer registry: the Pennsylvania experience. 全州癌症登记:宾夕法尼亚州的经验。
Pub Date : 1990-12-01
R L Powell, R J Dietrich

Pennsylvania has been successful in establishing a statewide cancer registry. The success of this registry results from the efforts of many different groups. The program has benefited from strong legislation making cancer a reportable disease and assigning the responsibility of reporting to hospitals. The PCR has implemented many initiatives to ensure that the cooperation of hospitals in operating the system is maintained, and that there is sufficient knowledge among hospital personnel to ensure complete casefinding. As the amount of statewide incidence data is increased over several years, the utility of these data for program planning and epidemiologic studies will increase greatly. The establishment and ongoing operation of the PCR ensure that cancer incidence data are available in providing answers to questions such as some of those asked following the accident at Three Mile Island.

宾夕法尼亚州已经成功地建立了一个全州范围的癌症登记处。这个注册表的成功源于许多不同团体的努力。该方案得益于强有力的立法,使癌症成为一种可报告的疾病,并将报告的责任分配给医院。PCR已经实施了许多举措,以确保医院在操作该系统时保持合作,并确保医院工作人员有足够的知识来确保完整的病例发现。随着几年来全州发病率数据的增加,这些数据在项目规划和流行病学研究中的效用将大大增加。聚合酶链反应的建立和持续运作确保了癌症发病率数据的可用性,以回答诸如三里岛事故后提出的一些问题。
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引用次数: 0
Evolution of a hospital-based trauma registry. 医院创伤登记的演变
Pub Date : 1990-12-01
M M Ackerman, F V Peterson, P J Manni, J C Young
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引用次数: 0
The trauma registry: an administrative and clinical tool. 创伤登记:一个行政和临床工具。
Pub Date : 1990-12-01
K Ehlinger, M J Gardner, D K Nakayama

A commitment to the maintenance of a comprehensive trauma registry can provide numerous benefits, both administrative and clinical. Uses of the information collected can vary in nature and scope based on the needs of the facility and the requirements of external regulatory bodies. Ultimately, the choice of data applications rests with the facility collecting the information. As the facility grows and evolves, so can--and must--its registry.

致力于维护一个全面的创伤登记处可以提供许多好处,无论是行政和临床。根据设施的需要和外部监管机构的要求,所收集信息的使用在性质和范围上可能有所不同。最终,数据应用程序的选择取决于收集信息的工具。随着设施的发展和演变,它的注册也可以——而且必须——发展起来。
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引用次数: 0
National scientific registry of organ transplantation: data needs and uses. 国家器官移植科学登记:数据需求和使用。
Pub Date : 1990-12-01
D K Hearington, B J Ettner, T Breen, R White

There is a lot of work yet to be accomplished through the scientific registry, which will be made more efficient by the consolidation of information into patient-specific files rather than the existing "file by form" set-up. Additionally, users will be able to input data directly, eliminating the problem of the time delays between transplant and follow-up dates and the actual use of the forms. The registry data also will become more useful as the database grows. The data on long-term graft and patient survival will directly influence future policy decisions and transplant practices. The clinical outcomes of transplantation also will be influenced by donor management and organ preservation techniques, all of which can be addressed through the use of registry data. The ultimate goal is to make transplantation more reliable, more predictable, more widely available, and less expensive. The national, comprehensive database accomplishes that goal.

通过科学登记还有很多工作要完成,通过将信息整合到特定于患者的文件中,而不是现有的“按表格归档”的设置,将使其更有效率。此外,用户将能够直接输入数据,消除移植和随访日期以及实际使用表格之间的时间延迟问题。随着数据库的增长,注册表数据也将变得更加有用。长期移植和患者生存的数据将直接影响未来的政策决定和移植实践。移植的临床结果也会受到供体管理和器官保存技术的影响,所有这些都可以通过使用注册数据来解决。最终的目标是使移植更可靠、更可预测、更广泛的可用性和更便宜。国家综合数据库实现了这一目标。
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引用次数: 0
Insulin-dependent diabetes mellitus: applications of health records for understanding etiology. The Pittsburgh IDDM Registry Group. 胰岛素依赖型糖尿病:健康记录在了解病因中的应用。匹兹堡IDDM注册组。
Pub Date : 1990-12-01
C Buday, L Hecht, J Joseph, K Keniston, V Kish, L Klose, P Loos, F Lucot, D Morris, G Sandidge

The estimation of incidence (or risk) of disease depends on accurate and complete reporting of new cases and precise estimation of the population at risk. Therefore, incidence studies are often based on population-based incidence registries. A critical problem in diabetes research, however, has been the lack of adequate population-based data. For diseases that have a distinct and rapid onset, the best method of obtaining population-based data is to develop registries of community health information. These disease registries form an important tool for assessing the clinical course of diseases and can lead to an understanding of their etiology and pathogenesis. Moreover, by facilitating identification of cases, disease registries can serve as a population source for genetic and immunological testing, the results of which can be directly related to absolute risk. Evaluation of factors associated with a disease can suggest methods for reducing its incidence and even lead to its eradication. Such registries also permit the evaluation of existing or proposed health care measures. Registry information can rapidly be communicated to the local area health authorities to assist in altering patterns of care. Registries are therefore important for understanding the etiology and complications of chronic diseases as well as for evaluation of medical care in populations. For diabetes, and in particular, insulin-dependent diabetes, the development and comparison of registries in diverse populations worldwide may be more important than for other diseases. A major reason for developing them is that the disease is very costly both for patients and society.(ABSTRACT TRUNCATED AT 250 WORDS)

疾病发病率(或风险)的估计取决于对新病例的准确和完整的报告以及对危险人群的精确估计。因此,发病率研究通常基于基于人群的发病率登记。然而,糖尿病研究的一个关键问题是缺乏足够的基于人群的数据。对于发病明显而迅速的疾病,获得基于人口的数据的最佳方法是建立社区卫生信息登记处。这些疾病登记构成了评估疾病临床进程的重要工具,并可导致对其病因和发病机制的理解。此外,通过促进病例识别,疾病登记可以作为遗传和免疫检测的人口来源,其结果可与绝对风险直接相关。对疾病相关因素的评估可以提出降低发病率甚至根除疾病的方法。这种登记还允许对现有或拟议的保健措施进行评估。登记处的信息可以迅速传达给当地卫生当局,以协助改变护理模式。因此,登记对于了解慢性病的病因和并发症以及对人群的医疗保健进行评估非常重要。对于糖尿病,特别是胰岛素依赖型糖尿病,在世界各地不同人群中建立和比较登记可能比其他疾病更重要。开发它们的一个主要原因是,这种疾病对患者和社会来说都是非常昂贵的。(摘要删节250字)
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引用次数: 0
The CIO and IRM (information resources management) alliance: maneuvering for the competitive edge in hospital information management. CIO与IRM(信息资源管理)联盟:在医院信息管理中谋求竞争优势。
Pub Date : 1990-09-01
M L Johns

In 1986, Johns noted that "The hospital industry was caught unprepared for the external demands and information needs required in a case-mix reimbursement environment." Lack of a data-processing philosophy and inattention to external forces were cited as having hampered technology upgrade and integration of financial and clinical databases. The intervening years have witnessed a growth of information dissemination in the health care industry concerning information value and resource management. The frequency of appearance of articles on information management in the professional literature and the number of workshops and professional meetings addressing the topic attest to the current visibility of the information resource. Despite this flurry of interest, the industry has not developed its own models of information resources management nor validated its information evolution with accepted management information systems models. While interest in health care information resource management exists, understanding of the complex issues in this area has not developed as one would expect. While there are a myriad of reasons for this, a contributing factor is the lack of a research foundation for development and application of theory and models. Even though various graduate programs exist in medical informatics and biomedical computing, few concentrate on the study of health information resource management from an organizational perspective. Because of this, academic research in the area has been minimal. The scarcity of graduate-level programs has also meant that few individuals have been educated to deal with the challenges of managing the many disparate functional activities associated with health care information resource management. Due to a variety of internal and external forces, extreme demands were placed on the hospital information resource during the past decade.(ABSTRACT TRUNCATED AT 250 WORDS)

1986年,约翰斯指出:“在病例混合报销环境中,医院行业对外部需求和信息需求毫无准备。”据指出,缺乏数据处理理念和不重视外部力量阻碍了技术升级和金融和临床数据库的整合。在此期间,医疗保健行业的信息传播在信息价值和资源管理方面有所增长。专业文献中关于信息管理的文章出现的频率以及讨论该主题的讲习班和专业会议的数量证明了当前信息资源的可见性。尽管有这种兴趣,但该行业还没有开发出自己的信息资源管理模型,也没有用公认的管理信息系统模型验证其信息演进。虽然人们对医疗保健信息资源管理有兴趣,但对这一领域复杂问题的理解并没有如人们所期望的那样发展。造成这种情况的原因有很多,其中一个原因是缺乏理论和模型发展和应用的研究基础。尽管在医学信息学和生物医学计算领域有各种各样的研究生课程,但很少有人从组织的角度来研究卫生信息资源管理。正因为如此,该领域的学术研究一直很少。缺乏研究生水平的课程也意味着很少有人受过教育,以应对管理与医疗保健信息资源管理相关的许多不同功能活动的挑战。近十年来,由于各种内外部因素的影响,对医院信息资源提出了极高的要求。(摘要删节250字)
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引用次数: 0
Strategic information systems: can you support your decisions? 战略信息系统:你能支持你的决策吗?
Pub Date : 1990-09-01
G B Marsh

Information technology will continue to have a profound effect on decision analysis. Clinicians and technologists must continue to work together to achieve systems that enhance patient quality and managerial decision making. Users will continue to grow more sophisticated in using information systems for patient care and organizational analyses. Strategic information systems will not solve all problems that health care professionals may face. However, better decisions will result from improved availability of information. The acceptance, support, and imagination of power users will enhance and drive information system development and design. Strategic information systems will provide opportunities for data analysis enabling health care professionals to better support decisions.

信息技术将继续对决策分析产生深远的影响。临床医生和技术人员必须继续共同努力,以实现提高患者质量和管理决策的系统。用户在使用信息系统进行病人护理和组织分析方面将继续变得更加成熟。战略信息系统不会解决卫生保健专业人员可能面临的所有问题。然而,更好的决策将来自于信息可用性的提高。高级用户的接受、支持和想象力将增强和推动信息系统的开发和设计。战略信息系统将为数据分析提供机会,使卫生保健专业人员能够更好地支持决策。
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引用次数: 0
The effects of positive incentive programs on physician chart completion. 积极激励计划对医生病历完成的影响。
Pub Date : 1990-09-01
M E Mahoney, M R Schiller, M L Johns

It seems evident that both concurrent review programs and positive incentive programs have been implemented by a number of facilities in which little, if any, monitoring has occurred. Only half of the hospitals performing concurrent analysis provided statistics concerning the percentage of daily discharges arriving in the medical record department complete. Only one fourth of the hospitals provided information concerning the number of incomplete and delinquent medical records before and after the implementation of concurrent review. These data underscore the need for medical record administrators to evaluate the effectiveness of various strategies used to improve completion of medical records. Likewise, only a few of the hospitals that have implemented an incentive program for chart completion were able to provide all of the requested statistics concerning their chart status prior to and following the implementation of their programs. The results of the study indicate that numerous innovative procedures have been implemented in hospitals, with varying degrees of impact on the number of incomplete and delinquent medical records. The use of positive incentive programs in conjunction with punitive action is effective in helping to reduce the number of incomplete medical records.

很明显,许多设施都实施了同步审查计划和积极激励计划,而这些设施几乎没有进行监督。在进行同步分析的医院中,只有一半的医院提供了关于到达医疗记录部门完成的每日出院百分比的统计数据。只有四分之一的医院提供了关于实施并行审查前后不完整和拖欠医疗记录数量的资料。这些数据强调了医疗记录管理员需要评估用于提高医疗记录完成度的各种策略的有效性。同样,只有少数实施了图表完成激励计划的医院能够提供有关其计划实施前后图表状态的所有要求统计数据。研究结果表明,医院实施了许多创新程序,对不完整和拖欠医疗记录的数量产生了不同程度的影响。积极的激励计划与惩罚措施相结合,可以有效地减少不完整医疗记录的数量。
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Topics in health record management
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