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Down's syndrome, research and practice : the journal of the Sarah Duffen Centre最新文献

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Temperament and behaviour problems in young children with Down syndrome at 12, 30, and 45 months. 唐氏综合症患儿在12、30和45个月时的气质和行为问题。
Deborah J Fidler, David E Most, Cathryn Booth-LaForce, Jean F Kelly

Though cross-sectional studies have yielded important information regarding the trajectory of psychopathology in middle childhood and adolescence in Down syndrome, there has been little exploration of maladaptive behaviour in the earliest years of development. In this study, we explore the emergence of maladaptive behaviour in young children with Down syndrome (n=24) and a mental age-matched comparison group (n=33) of young children with developmental disabilities of mixed etiologies. Behavioural data (Bayley Scales of Infant Development, Infant Temperament Questionnaire, Achenbach's Child Behaviour Checklist) were collected for children in each group at 12 months, 30 months, and 45 months. Findings from this study suggest that the onset of internalising behaviour difficulties in young children with Down syndrome may emerge later in early development than in children with developmental disabilities of mixed/nonspecific etiologies. In addition, temperament at Time I appeared to be a much stronger predictor of maladaptive behaviour outcomes at Time 3 in the mixed comparison group than in the Down syndrome group. Implications of this trajectory of the early development of maladaptive behaviour in Down syndrome for intervention for young children with Down syndrome are discussed.

尽管横断面研究已经获得了关于唐氏综合症儿童中期和青春期精神病理发展轨迹的重要信息,但对早期发展阶段适应不良行为的探索却很少。在这项研究中,我们探讨了唐氏综合症幼儿(n=24)和心理年龄匹配的混合病因发育障碍幼儿(n=33)的适应不良行为的出现。收集各组儿童12个月、30个月和45个月的行为数据(Bayley婴儿发育量表、婴儿气质问卷、Achenbach儿童行为检查表)。这项研究的结果表明,唐氏综合症儿童的内化行为困难可能比混合/非特异性病因的发育障碍儿童在早期发育中出现得更晚。此外,与唐氏综合症组相比,混合对照组在时间1时的气质似乎更能预测时间3时适应不良行为的结果。本文讨论了唐氏综合症早期适应不良行为发展轨迹对唐氏综合症幼儿干预的影响。
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引用次数: 36
Language learning in Down syndrome: the speech and language profile compared to adolescents with cognitive impairment of unknown origin. 唐氏综合症的语言学习:与来历不明的认知障碍青少年相比的言语和语言概况。
Robin S Chapman

Children and adolescents with Down syndrome show an emerging profile of speech and language characteristics that is typical of the syndrome (Chapman & Hesketh, 2000; Chapman, 2003; Abbeduto & Chapman, 2005) and different from typically developing children matched for nonverbal mental age, including expressive language deficits relative to comprehension that are most severe for syntax, and, in adolescence, strengths in comprehension vocabulary, improvements in expressive syntax, but losses in comprehension of syntax (Chapman, Hesketh & Kistler, 2002). Here we compare 20 adolescents with Down syndrome to 16 individuals with cognitive impairment of unknown origin, statistically matched for age and nonverbal mental age, to show that the age-related strengths in vocabulary comprehension are not limited to the Down syndrome phenotype, but are limited to a certain type of vocabulary test: for both groups, performance on the Peabody Picture Vocabulary Test-3 is significantly greater than performance on the vocabulary subtest of the Test of Auditory Comprehension of Language-3, which does not differ from the syntax comprehension subtests. Vocabulary size, but not conceptual level, is a strength for adolescents with cognitive impairment. In contrast, deficits in auditory-verbal working memory, syntax and vocabulary comprehension, and narration of picture-books without an opportunity to preview them are all specific to the adolescent group with Down syndrome. The expressive language deficit disappears when a preview opportunity and picture support is given.

患有唐氏综合症的儿童和青少年表现出一种新出现的语言特征,这是该综合症的典型特征(Chapman & Hesketh, 2000;查普曼,2003;Abbeduto & Chapman, 2005),并且与非语言心理年龄匹配的典型发育儿童不同,包括与语法理解相关的表达性语言缺陷,其中最严重的是语法理解,并且,在青春期,理解词汇的优势,表达性句法的改善,但语法理解的损失(Chapman, Hesketh & Kistler, 2002)。在此,我们将20名唐氏综合症青少年与16名来源不明的认知障碍个体进行了比较,年龄和非语言心理年龄在统计上是匹配的,以表明年龄相关的词汇理解优势并不局限于唐氏综合症表型,而是局限于某一类型的词汇测试:两组学生在皮博迪图片词汇测试-3上的表现显著高于语言听觉理解测试-3的词汇子测试的表现,而听觉理解测试-3的词汇子测试与语法理解子测试的表现没有差异。词汇量,而非概念水平,是认知障碍青少年的优势。相比之下,在听觉-言语工作记忆、句法和词汇理解以及没有机会预览绘本的叙述方面的缺陷都是唐氏综合症青少年群体所特有的。当提供预览机会和图片支持时,表达性语言缺陷就消失了。
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引用次数: 138
Gross motor skill acquisition in adolescents with Down syndrome. 唐氏综合症青少年大肌肉运动技能的习得。
Sarah Meegan, Brian K V Maraj, Daniel Weeks, Romeo Chua

The purpose of this study was to assess whether verbal-motor performances deficits exhibited by individuals with Down syndrome limited their ability to acquire gross motor skills when given visual and verbal instruction together and then transferred to either a visual or verbal instructional mode to reproduce the movement. Nine individuals with Down syndrome (6 males, 3 females) performed 3 gross motor skills. Both visual and verbal instructional guidance was given to the participants over a 4-day period. Twenty-four hours later, the participants were video recorded as they produced the movements (used as baseline measures). On Day 6, they were randomly assigned into verbal and visual groups and required to reproduce the skills while the experimenter provided either visual demonstration or verbal instructions depending on the group. Based on skill performance scores, participants in the verbal-motor performance group demonstrated a lower level of proficiency and an increased number of performance errors when compared to participants in the visual-motor performance group. Moreover, while the visual group demonstrated an increase in performance levels compared to baseline measures, the opposite effect was seen for the verbal group.

本研究的目的是评估唐氏综合症患者在同时接受视觉和语言教学,然后转移到视觉或语言教学模式来复制运动时,语言运动表现缺陷是否限制了他们获得大运动技能的能力。9名唐氏综合症患者(6名男性,3名女性)完成了3项粗大运动技能。在4天的时间里,对参与者进行了视觉和口头指导。24小时后,参与者的动作被录像(作为基线测量)。在第六天,他们被随机分配到语言和视觉组,并要求重现技能,而实验者根据小组提供视觉演示或口头指导。根据技能表现得分,与视觉运动表现组的参与者相比,语言运动表现组的参与者表现出较低的熟练程度和更多的表现错误。此外,与基线测量相比,视觉组表现出的表现水平有所提高,而语言组则表现出相反的效果。
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引用次数: 28
Breaking the hype cycle: using the computer effectively with learners with intellectual disabilities. 打破炒作循环:与智障学习者有效地使用计算机。
Jan Lloyd, Karen B Moni, Anne Jobling

There has been huge growth in the use of information technology (IT) in classrooms for learners of all ages. It has been suggested that computers in the classroom encourage independent and self-paced learning, provide immediate feedback and improve self-motivation and self-confidence. Concurrently there is increasing interest related to the role of technology in educational programs for individuals with intellectual disabilities. However, although many claims are made about the benefits of computers and software packages there is limited evidence based information to support these claims. Researchers are now starting to look at the specific instructional design features that are hypothesised to facilitate education outcomes rather than the over-emphasis on graphics and sounds. Research undertaken as part of a post-school program (Latch-On: Literacy and Technology - Hands On) at the University of Queensland investigated the use of computers by young adults with intellectual disabilities. The aims of the research reported in this paper were to address the challenges identified in the 'hype' surrounding different pieces of educational software and to develop a means of systematically analysing software for use in teaching programs.

在所有年龄段的学习者的课堂上,信息技术(IT)的使用已经有了巨大的增长。有人认为,课堂上的电脑鼓励独立和自主学习,提供即时反馈,提高自我激励和自信。与此同时,人们对技术在智障人士教育项目中的作用越来越感兴趣。然而,尽管有许多关于计算机和软件包的好处的说法,但支持这些说法的证据信息有限。研究人员现在开始研究特定的教学设计特征,这些特征被假设为促进教育成果,而不是过分强调图形和声音。作为毕业后项目的一部分,昆士兰大学开展了一项研究,调查了有智力障碍的年轻人使用电脑的情况。本文报告的研究目的是解决围绕不同教育软件的“炒作”所确定的挑战,并开发一种系统分析教学程序中使用的软件的方法。
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引用次数: 39
Early learning and adaptive behaviour in toddlers with Down syndrome: evidence for an emerging behavioural phenotype? 唐氏综合症幼儿的早期学习和适应行为:新出现的行为表型的证据?
Deborah J Fidler, Susan Hepburn, Sally Rogers

Background: Though the Down syndrome behavioural phenotype has been described as involving relative strengths in visuo-spatial processing and sociability, and relative weaknesses in verbal skills and motor planning, the early emergence of this phenotypic pattern of strengths and weaknesses has not yet been fully explored.

Method: In this study, we compared the performance of eighteen 2 to 3-year-olds with Down syndrome to an MA-matched comparison group of nineteen 2 to 3-year-olds with mixed developmental disabilities, and an MA-matched comparison group of 24 children with typical development on two developmental measures: the Mullen Scales of Early Learning and the Vineland Adaptive Behaviour Scales.

Results: While the specificity of the Down syndrome profile was (for the most part) not yet evident, results showed that toddlers with Down syndrome in this study did show emerging areas of relative strength and weakness similar to that which has been described in older children and young adults with Down syndrome. This pattern included relatively stronger social skills, weaker expressive language, and poor motor coordination. When this pattern of strengths and weaknesses was compared to the developmental profiles of the two comparison groups, socialisation strengths differentiated the Down syndrome group from the mixed developmental disabilities group.

背景:虽然唐氏综合症的行为表型被描述为涉及视觉空间处理和社交能力的相对优势,以及语言技能和运动计划的相对劣势,但这种优势和劣势的表型模式的早期出现尚未得到充分探讨。方法:在本研究中,我们比较了18名2至3岁的唐氏综合症儿童与19名2至3岁的混合发育障碍儿童的ma匹配对照组和24名典型发育儿童的ma匹配对照组在两项发展指标上的表现:Mullen早期学习量表和Vineland适应行为量表。结果:虽然唐氏综合症特征的特异性(在大多数情况下)尚不明显,但结果表明,本研究中患有唐氏综合症的幼儿确实表现出与患有唐氏综合症的大龄儿童和年轻人相似的相对强弱区域。这种模式包括相对较强的社交技能,较弱的表达语言和较差的运动协调能力。当将这种优势和劣势模式与两个对照组的发展概况进行比较时,社交优势将唐氏综合症组与混合发育障碍组区分开来。
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引用次数: 146
Profiles and development of adaptive behavior in children with Down syndrome. 唐氏综合症儿童适应行为的概况和发展。
Elisabeth M Dykens, Robert M Hodapp, David W Evans

The profiles and developmental trajectories of adaptive behavior were cross-sectionally examined in 80 children with Down syndrome ages 1 to 11.5 years using the Vineland Adaptive Behavior Scales. Profile findings indicated a significant weakness in communication relative to daily living and socialization skills. Within communication itself, expressive language was significantly weaker than receptive skills, especially when children's overall communicative levels were above 24 months. One to 6-year-old children showed significant age-related gains in adaptive functioning, but older subjects showed no relation between age and adaptive behavior. There was, however, increased variability within this older group, implying that not all children plateau in adaptive development during the middle childhood years. Implications for development in Down syndrome and intervention programs were discussed.

采用Vineland适应行为量表对80例1 ~ 11.5岁唐氏综合症儿童的适应行为特征和发展轨迹进行了横断面研究。档案调查结果显示,与日常生活和社交技能相关的沟通能力明显不足。在沟通本身,表达性语言明显弱于接受能力,特别是当儿童的整体沟通水平超过24个月时。1至6岁的儿童在适应功能方面表现出明显的年龄相关增长,但年龄较大的受试者在适应行为和年龄之间没有表现出任何关系。然而,在这个年龄较大的群体中,差异有所增加,这意味着并不是所有的孩子在童年中期都处于适应发展的平稳期。讨论了唐氏综合症发展的意义和干预方案。
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引用次数: 229
A comparison of mainstream and special education for teenagers with Down syndrome: implications for parents and teachers. 唐氏综合症青少年主流教育与特殊教育的比较:对家长和教师的启示。
Sue Buckley, Gillian Bird, Ben Sacks, Tamsin Archer

This article presents data from a research study designed to compare the achievements of teenagers with Down syndrome educated in mainstream classrooms or in special education classrooms throughout their full-time education. Progress is reported for speech and language, literacy, socialisation, daily living skills and behaviour. For all the teenagers, there is evidence of progress with age on all the measures except for communication. Communication continued to improve through teenage years for the included children but not for those in special education classrooms. There were no significant differences in overall outcomes for daily living skills or socialisation. However, there were large significant gains in expressive language and literacy skills for those educated in mainstream classrooms. Teenagers educated in mainstream classrooms showed fewer behavioural difficulties. Further, comparison with data published by these authors in an earlier study, showed no improvements in school achievements in special education over a 13 year period in the UK (1986-1999).

本文提供了一项研究的数据,该研究旨在比较唐氏综合症青少年在全日制教育期间在主流教室和特殊教育教室接受教育的成绩。报告显示,在言语和语言、识字、社交、日常生活技能和行为方面取得了进展。对于所有的青少年来说,除了交流之外,所有的指标都随着年龄的增长而进步。在整个青少年时期,被纳入研究的儿童的沟通能力持续改善,但在特殊教育教室的儿童则没有。在日常生活技能或社交方面的总体结果没有显著差异。然而,那些在主流教室接受教育的学生在表达语言和读写能力方面有很大的进步。在主流教室接受教育的青少年表现出较少的行为障碍。此外,与这些作者在早期研究中发表的数据进行比较,发现在英国(1986-1999)的13年期间,特殊教育的学校成绩没有任何改善。
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引用次数: 160
Evidence that we can change the profile from a study of inclusive education. 我们可以从全纳教育的研究中改变概况的证据。
Sue Buckley, Gillian Bird, Ben Sacks

This paper discusses the evidence that the specific developmental profile frequently described as being associated with Down syndrome--a profile of communication weaknesses relative to social and daily living skills - can be changed. It is not an inevitable outcome of having Down syndrome. Drawing on data collected to explore the outcomes of fully inclusive education for school-age children with Down syndrome, the authors identify that the profile is seen in teenagers in special education settings but is not evident for teenagers in inclusive education. They argue that this is the result of both the effects of fully inclusive education and teaching approaches which have been adapted to address the cognitive and communication weaknesses of the children from an early age.

本文讨论了经常被描述为与唐氏综合症相关的特定发展概况的证据-与社交和日常生活技能相关的沟通弱点概况-可以改变。这并不是唐氏综合症的必然结果。根据为探索唐氏综合症学龄儿童全纳教育的结果而收集的数据,作者发现,在特殊教育环境中的青少年中可以看到这种情况,但在全纳教育的青少年中并不明显。他们认为,这是全纳教育和教学方法的结果,这些方法已经适应了从早期开始解决儿童的认知和沟通弱点。
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引用次数: 29
What's it all about? Investigating reading comprehension strategies in young adults with down syndrome. 这到底是怎么回事?研究患有唐氏综合症的年轻人的阅读理解策略。
Michelle Morgan, Karen B Moni, Anne Jobling

The purpose of reading is for the reader to construct meaning from the text. For many young adults with Down syndrome, knowing what the text is all about is difficult, and so for them the activity of reading becomes simply the practice of word calling. It is suggested in the literature that for those individuals with Down syndrome, learning can continue into adolescence and that this may be the optimal time for learning to occur. However, a review of the literature revealed limited empirical research specifically relating to the reading comprehension of young adults with Down syndrome. Recent findings from Latch-On (Literacy And Technology Hands On), a research-based literacy and technology program for young adults with Down syndrome at the University of Queensland, revealed that comprehension remained the significant area of difficulty and showed least improvement (Moni & Jobling, 2001). It was suggested by Moni and Jobling (2001) that explicit instruction in comprehension using a variety of strategies and meaningful, relevant texts was required to improve the ability of young adults with Down syndrome to construct meaning from written texts. This paper is based on an action research project that was developed within the Latch-On program. The project utilised a modification of Elliot's (1991) action research model and was conducted to investigate specific teaching and learning strategies that would enhance the reading comprehension of young adults with Down syndrome. The participants were 6 young adults with Down syndrome ranging in age from 18 to 25 years. As the data from this project are still being analysed, preliminary findings of one participant are presented as a case study. The preliminary findings appear to indicate that the program of specific teaching and learning reading comprehension strategies used in this project was beneficial in the participant's reading comprehension.

阅读的目的是让读者从文本中构建意义。对于许多患有唐氏综合症的年轻人来说,了解课文的内容是很困难的,所以对他们来说,阅读活动就变成了简单的喊词练习。文献表明,对于那些患有唐氏综合症的人来说,学习可以持续到青春期,这可能是学习发生的最佳时间。然而,对文献的回顾显示,专门与唐氏综合症青年阅读理解相关的实证研究有限。最近,昆士兰大学为患有唐氏综合症的年轻成年人开展的一项以研究为基础的读写和技术项目“识字和技术实践”的研究结果显示,理解仍然是一个重要的困难领域,而且进步最小(Moni & Jobling, 2001)。Moni和Jobling(2001)提出,需要使用各种策略和有意义的相关文本进行明确的理解指导,以提高患有唐氏综合症的年轻人从书面文本中构建意义的能力。本文基于一个行动研究项目,该项目是在闭锁计划中开发的。该项目对Elliot(1991)的行动研究模型进行了修改,旨在调查能够提高唐氏综合症年轻人阅读理解能力的具体教学策略。参与者是6名患有唐氏综合症的年轻人,年龄从18岁到25岁不等。由于该项目的数据仍在分析中,现将一名参与者的初步调查结果作为个案研究。初步研究结果表明,在本项目中使用的特定的教学和学习阅读理解策略方案对参与者的阅读理解是有益的。
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引用次数: 31
Parental experiences of feeding problems in their infants with Down syndrome. 父母对唐氏综合症婴儿喂养问题的经验。
Eilene Lewis, Alta Kritzinger

Although feeding difficulties in infants with Down syndrome are described in the literature, the experiences of parents regarding the feeding problems of their infants are largely omitted. In order to promote closer collaboration with families and speech-language therapists in early communication intervention, the study investigated some experiences of a group of parents concerning the feeding problems of their infants with Down syndrome. A descriptive survey approach was implemented to collect quantitative data. The results revealed the type of feeding problems and associated conditions occurring in the infants of the twenty participants; the type of feeding methods used; the assistance received during the feeding problems; the emotions experienced in relation to the feeding problems in their infants as well as suggestions made by the participants regarding the management of early feeding problems. Numerous feeding problems occurred in the infants and the variety of emotions experienced by the participants indicated that feeding therapy and counseling were required. As a result of the different conditions underlying the feeding problems of the participants' infants, a comprehensive approach, which included therapeutic and medical intervention, was necessary. In order to provide effective early communication intervention services from birth, the results indicated that the knowledge, skills and sensitivity of speech language therapists to identify caregiver needs, to provide appropriate family-focused intervention and to make recommendations regarding the management of feeding problems in infants with Down syndrome is of great importance.

虽然文献中描述了唐氏综合症婴儿的喂养困难,但父母关于婴儿喂养问题的经验在很大程度上被省略了。为了促进与家庭和语言治疗师在早期沟通干预中的更紧密合作,本研究调查了一组父母关于唐氏综合症婴儿喂养问题的一些经历。采用描述性调查方法收集定量数据。结果揭示了20名参与者的婴儿喂养问题和相关情况的类型;使用的喂养方法类型;在喂养问题期间获得的援助;与婴儿喂养问题相关的情绪体验,以及参与者对早期喂养问题管理的建议。许多喂养问题发生在婴儿身上,参与者经历的各种情绪表明需要喂养治疗和咨询。由于参与者的婴儿喂养问题的潜在条件不同,因此有必要采取包括治疗和医疗干预在内的综合办法。为了提供有效的早期沟通干预服务,从出生开始,言语语言治疗师的知识,技能和敏感性识别照顾者的需求,提供适当的以家庭为中心的干预,并就唐氏综合征婴儿喂养问题的管理提出建议是非常重要的。
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引用次数: 40
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Down's syndrome, research and practice : the journal of the Sarah Duffen Centre
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