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Citizen Science Principles in Practice: Lessons From Uganda and the Democratic Republic of Congo 实践中的公民科学原则:乌干达和刚果民主共和国的经验教训
Pub Date : 2026-03-20 DOI: 10.1029/2025CSJ000149
Mercy Gloria Ashepet, Jay Mulmi, Caroline Michellier, Lies Jacobs, Katrien Pype, Tine Huyse

Citizen science (CS), the participation of laypeople in scientific research, is arguably a new concept in low- and middle-income countries (LMICs). Consequently, formal CS guidelines and support infrastructure are largely non-existent in these regions. This study seeks to contribute to this discussion by examining the factors that shape CS implementation and success in LMICs by analysing the strategies employed in the Action Towards Reducing snail-borne Parasitic diseases (ATRAP) project. ATRAP aimed to prevent snail-borne diseases in the Democratic Republic of Congo (DRC) and Uganda by establishing CS networks in selected communities. The project empowered community members to become “local snail experts” and communication “ambassadors” by collecting data on snail vectors. This study compared ATRAP's participant recruitment strategies and interests in DRC and Uganda, juxtaposing them with CS principles and practices observed in high-income countries (HICs). The findings indicate that although project implementation followed similar strategies in both countries, the outcomes varied. Specifically, more participants were nominated in Uganda, while in DRC, female participants worked alongside their spouses. However, participant interests were consistent across both countries, with tangible benefits (financial compensation and smartphones) and social recognition observed as major motivating factors. These findings, among others, deviate from typical HIC-based CS models that emphasize voluntary engagement, underscoring the need for context-specific adaptations. Rather than simply replicating “standard” CS practices, future (LMICs-focused) initiatives should prioritize proper community entry, diverse recruitment strategies, and strong support systems to address participation barriers within the communities they aim to serve.

在低收入和中等收入国家(LMICs),非专业人员参与科学研究的公民科学(CS)可以说是一个新概念。因此,这些地区基本上不存在正式的CS指导方针和支助基础设施。本研究通过分析减少蜗牛传播的寄生虫病的行动项目(ATRAP)所采用的战略,审查影响在中低收入国家实施和取得成功的因素,以期促进这一讨论。该计划旨在通过在选定社区建立蜗牛传播网络,在刚果民主共和国和乌干达预防蜗牛传播疾病。该项目通过收集有关蜗牛病媒的数据,使社区成员成为“当地蜗牛专家”和交流“大使”。本研究比较了ATRAP在刚果民主共和国和乌干达的参与者招募策略和兴趣,并将其与高收入国家(HICs)观察到的CS原则和实践相比较。研究结果表明,尽管两国的项目实施策略相似,但结果却有所不同。具体来说,乌干达有更多的参与者被提名,而在刚果民主共和国,女性参与者与配偶一起工作。然而,两国参与者的兴趣是一致的,有形利益(经济补偿和智能手机)和社会认可被认为是主要的激励因素。除其他外,这些发现偏离了典型的基于hicc的CS模型,该模型强调自愿参与,强调需要根据具体情况进行调整。与其简单地复制“标准的”CS实践,未来的(以低收入和中等收入国家为重点的)计划应优先考虑适当的社区进入、多样化的招聘策略和强大的支持系统,以解决其目标服务社区内的参与障碍。
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引用次数: 0
Citizen Science Principles in Practice: Lessons From Uganda and the Democratic Republic of Congo 实践中的公民科学原则:乌干达和刚果民主共和国的经验教训
Pub Date : 2026-03-20 DOI: 10.1029/2025CSJ000149
Mercy Gloria Ashepet, Jay Mulmi, Caroline Michellier, Lies Jacobs, Katrien Pype, Tine Huyse

Citizen science (CS), the participation of laypeople in scientific research, is arguably a new concept in low- and middle-income countries (LMICs). Consequently, formal CS guidelines and support infrastructure are largely non-existent in these regions. This study seeks to contribute to this discussion by examining the factors that shape CS implementation and success in LMICs by analysing the strategies employed in the Action Towards Reducing snail-borne Parasitic diseases (ATRAP) project. ATRAP aimed to prevent snail-borne diseases in the Democratic Republic of Congo (DRC) and Uganda by establishing CS networks in selected communities. The project empowered community members to become “local snail experts” and communication “ambassadors” by collecting data on snail vectors. This study compared ATRAP's participant recruitment strategies and interests in DRC and Uganda, juxtaposing them with CS principles and practices observed in high-income countries (HICs). The findings indicate that although project implementation followed similar strategies in both countries, the outcomes varied. Specifically, more participants were nominated in Uganda, while in DRC, female participants worked alongside their spouses. However, participant interests were consistent across both countries, with tangible benefits (financial compensation and smartphones) and social recognition observed as major motivating factors. These findings, among others, deviate from typical HIC-based CS models that emphasize voluntary engagement, underscoring the need for context-specific adaptations. Rather than simply replicating “standard” CS practices, future (LMICs-focused) initiatives should prioritize proper community entry, diverse recruitment strategies, and strong support systems to address participation barriers within the communities they aim to serve.

在低收入和中等收入国家(LMICs),非专业人员参与科学研究的公民科学(CS)可以说是一个新概念。因此,这些地区基本上不存在正式的CS指导方针和支助基础设施。本研究通过分析减少蜗牛传播的寄生虫病的行动项目(ATRAP)所采用的战略,审查影响在中低收入国家实施和取得成功的因素,以期促进这一讨论。该计划旨在通过在选定社区建立蜗牛传播网络,在刚果民主共和国和乌干达预防蜗牛传播疾病。该项目通过收集有关蜗牛病媒的数据,使社区成员成为“当地蜗牛专家”和交流“大使”。本研究比较了ATRAP在刚果民主共和国和乌干达的参与者招募策略和兴趣,并将其与高收入国家(HICs)观察到的CS原则和实践相比较。研究结果表明,尽管两国的项目实施策略相似,但结果却有所不同。具体来说,乌干达有更多的参与者被提名,而在刚果民主共和国,女性参与者与配偶一起工作。然而,两国参与者的兴趣是一致的,有形利益(经济补偿和智能手机)和社会认可被认为是主要的激励因素。除其他外,这些发现偏离了典型的基于hicc的CS模型,该模型强调自愿参与,强调需要根据具体情况进行调整。与其简单地复制“标准的”CS实践,未来的(以低收入和中等收入国家为重点的)计划应优先考虑适当的社区进入、多样化的招聘策略和强大的支持系统,以解决其目标服务社区内的参与障碍。
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引用次数: 0
Citizen Science Principles in Practice: Lessons From Uganda and the Democratic Republic of Congo 实践中的公民科学原则:乌干达和刚果民主共和国的经验教训
Pub Date : 2026-03-20 DOI: 10.1029/2025CSJ000149
Mercy Gloria Ashepet, Jay Mulmi, Caroline Michellier, Lies Jacobs, Katrien Pype, Tine Huyse

Citizen science (CS), the participation of laypeople in scientific research, is arguably a new concept in low- and middle-income countries (LMICs). Consequently, formal CS guidelines and support infrastructure are largely non-existent in these regions. This study seeks to contribute to this discussion by examining the factors that shape CS implementation and success in LMICs by analysing the strategies employed in the Action Towards Reducing snail-borne Parasitic diseases (ATRAP) project. ATRAP aimed to prevent snail-borne diseases in the Democratic Republic of Congo (DRC) and Uganda by establishing CS networks in selected communities. The project empowered community members to become “local snail experts” and communication “ambassadors” by collecting data on snail vectors. This study compared ATRAP's participant recruitment strategies and interests in DRC and Uganda, juxtaposing them with CS principles and practices observed in high-income countries (HICs). The findings indicate that although project implementation followed similar strategies in both countries, the outcomes varied. Specifically, more participants were nominated in Uganda, while in DRC, female participants worked alongside their spouses. However, participant interests were consistent across both countries, with tangible benefits (financial compensation and smartphones) and social recognition observed as major motivating factors. These findings, among others, deviate from typical HIC-based CS models that emphasize voluntary engagement, underscoring the need for context-specific adaptations. Rather than simply replicating “standard” CS practices, future (LMICs-focused) initiatives should prioritize proper community entry, diverse recruitment strategies, and strong support systems to address participation barriers within the communities they aim to serve.

在低收入和中等收入国家(LMICs),非专业人员参与科学研究的公民科学(CS)可以说是一个新概念。因此,这些地区基本上不存在正式的CS指导方针和支助基础设施。本研究通过分析减少蜗牛传播的寄生虫病的行动项目(ATRAP)所采用的战略,审查影响在中低收入国家实施和取得成功的因素,以期促进这一讨论。该计划旨在通过在选定社区建立蜗牛传播网络,在刚果民主共和国和乌干达预防蜗牛传播疾病。该项目通过收集有关蜗牛病媒的数据,使社区成员成为“当地蜗牛专家”和交流“大使”。本研究比较了ATRAP在刚果民主共和国和乌干达的参与者招募策略和兴趣,并将其与高收入国家(HICs)观察到的CS原则和实践相比较。研究结果表明,尽管两国的项目实施策略相似,但结果却有所不同。具体来说,乌干达有更多的参与者被提名,而在刚果民主共和国,女性参与者与配偶一起工作。然而,两国参与者的兴趣是一致的,有形利益(经济补偿和智能手机)和社会认可被认为是主要的激励因素。除其他外,这些发现偏离了典型的基于hicc的CS模型,该模型强调自愿参与,强调需要根据具体情况进行调整。与其简单地复制“标准的”CS实践,未来的(以低收入和中等收入国家为重点的)计划应优先考虑适当的社区进入、多样化的招聘策略和强大的支持系统,以解决其目标服务社区内的参与障碍。
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引用次数: 0
Engagement of Community Health Workers in the Amazonas in the Development of an Educational Technology: A Co-Design Study 亚马逊地区社区卫生工作者参与教育技术发展:一项共同设计研究
Pub Date : 2026-03-05 DOI: 10.1029/2025CSJ000159
Yandra Alves Prestes, Camila Fabiana Rossi Squarcini, Thais Favero Alves, Thalyta Mariany Rego Lopes Ueno, Amanda Laranjeira Alves, Hércules Lázaro Morais Campos, Elisa Brosina de Leon

Community Health Workers (CHWs) play a pivotal role in the management of Type 2 Diabetes Mellitus (T2DM) within Primary Health Care settings. Adequate training is essential to strengthen their capacity to deliver care, particularly by fostering dialogue between the health team and the community. This study aimed to describe the co-design process underlying the development of an educational technology (ET) intended to train CHWs in T2DM management in the Brazilian Amazon. This mixed-methods study involved the development of video lectures and printed support materials through the following stages: identification of CHWs' primary training needs; definition of the ET structure; development of thematic content, scripts, and instructional materials; creation of interactive resources; expert review; preliminary presentation to CHWs; and final evaluation and validation by experts. Usability was assessed by CHWs using the System Usability Scale (SUS), with scores ≥72.74 considered indicative of acceptable usability. The 17 participating CHWs rated the ET positively, with a mean SUS score of 84 ± 11.1, reflecting high usability. The educational technology demonstrated strong usability and, given its collaborative and problem-oriented development process, represents a promising tool to enhance CHWs’ performance in T2DM management.

社区卫生工作者(CHWs)在初级卫生保健机构管理2型糖尿病(T2DM)方面发挥着关键作用。充分的培训对于加强他们提供护理的能力至关重要,特别是通过促进保健小组与社区之间的对话。本研究旨在描述一种教育技术(ET)开发的协同设计过程,该技术旨在培训巴西亚马逊地区的chw管理T2DM。这项混合方法的研究包括制作视频讲座和印刷辅助材料,分为以下几个阶段:确定护理人员的主要培训需求;ET结构的定义;编写专题内容、脚本和教学材料;创建互动资源;专家审查;向卫生工作者作初步介绍;并最终由专家进行评估和验证。可用性由chw使用系统可用性量表(SUS)进行评估,得分≥72.74被认为是可接受的可用性。17个参与的chw对ET的评价是肯定的,平均SUS得分为84±11.1,反映了较高的可用性。教育技术显示出很强的可用性,并且由于其协作和问题导向的开发过程,代表了一个有前途的工具,以提高保健医生在T2DM管理方面的表现。
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引用次数: 0
Community Voices in Action: A Framework for Flood Resilience Workshops in a Coastal Community 行动中的社区声音:沿海社区抗洪工作坊框架
Pub Date : 2026-02-06 DOI: 10.1029/2025CSJ000161
Meredith Hovis, Mariko Polk, Philip J. Bresnahan, Chelsea Kasney, Jordan Davidson, B. Troy Frensley, Joanne Halls, Erin Moran, Kimberly Lebby, Craig Harris, Lynn Leonard

Coastal communities face increasing risks from hurricanes, heavy rainfall, sea-level rise, and flooding—all of which are intensified by climate change. Many of these communities are striving to plan proactively in advance of the next severe event; involving community members alongside managers, scientists, and other stakeholders in the resiliency planning process is necessary to build sustainable solutions. In Wilmington, North Carolina, we held two community workshops to understand residents' perceptions of flood risks, assess barriers to preparedness, and explore locally relevant strategies for flood resilience and preparedness. These workshops were designed in collaboration with trusted community partners and intentionally structured to be inclusive, responsive to local needs, and trauma-informed. Through interactive activities and facilitated discussion, participants shared lived experiences, identified gaps in communication, and co-developed ideas for improving flood safety in their communities. Findings reveal strong concern about future neighborhood flooding, a desire for more transparent and timely information, and interest in ongoing involvement in resilience planning. This paper presents a framework for designing trauma-informed, inclusive workshops to support flood resilience planning in a coastal community.

沿海社区面临着飓风、强降雨、海平面上升和洪水带来的越来越大的风险——所有这些都因气候变化而加剧。其中许多社区正在努力在下一次严重事件发生之前积极规划;让社区成员、管理人员、科学家和其他利益相关者参与到弹性规划过程中,对于建立可持续的解决方案是必要的。在北卡罗来纳州的威尔明顿,我们举办了两场社区研讨会,以了解居民对洪水风险的看法,评估防范的障碍,并探索与当地相关的抗洪能力和防范策略。这些研讨会是与值得信赖的社区伙伴合作设计的,并有意构建为包容性,响应当地需求,并了解创伤。通过互动活动和便利的讨论,参与者分享了生活经验,确定了沟通中的差距,并共同制定了改善社区洪水安全的想法。调查结果显示,人们对未来的社区洪水有着强烈的担忧,希望获得更透明和及时的信息,并有兴趣继续参与复原力规划。本文提出了一个框架,用于设计创伤信息,包容性讲习班,以支持沿海社区的洪水恢复规划。
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引用次数: 0
The Tar Creek Superfund and Flood Map: A Case Study in the Equitable Co-Production of Maps for Storytelling, Environmental Activism, and Education 柏油河超级基金和洪水地图:为讲故事、环境行动主义和教育公平合作制作地图的案例研究
Pub Date : 2026-02-05 DOI: 10.1029/2024CSJ000077
M. Lively, R. Jim, J. Tran, E. Hatley, K. Meierdiercks

Case studies on co-production and geographic information systems have reported on the utility and value of community members contributing local knowledge for and providing feedback on maps in ways that can increase the accuracy and usability of the map. However, how the concept for and goals of the map are co-produced and how the maps are then used by the community is understudied. This paper uses a co-operative inquiry approach to assess equity in co-production throughout the process of building and using the Tar Creek Superfund and Flood map for storytelling, environmental activism, and education. The project team designed and built an interactive flood map demonstrating that floodwaters flow through the Tar Creek Superfund site, potentially carrying and distributing mining waste throughout the community, further exacerbating the environmental harm the community has experienced as a result of mining. The team was formed through the Thriving Earth Exchange, which brings community leaders, volunteer scientists, and technical experts together to work on community-driven projects. The purpose of this project was to both make—and use—the map dynamically within the community in pursuit of education and environmental activism goals. Equity is measured by assessing roles and labor not only within making the map but also within its various uses by community members.

关于联合制作和地理信息系统的个案研究报告了社区成员为地图提供当地知识和提供反馈的效用和价值,这些方式可以提高地图的准确性和可用性。然而,地图的概念和目标是如何共同产生的,以及社区如何使用地图还没有得到充分的研究。本文采用合作调查的方法来评估合作制作的公平性,整个过程中建立和使用焦油溪超级基金和洪水地图讲故事,环保活动和教育。项目团队设计并制作了一张互动洪水地图,显示洪水流经塔尔溪超级基金场地,可能会将采矿废物带到整个社区,并将其分散,进一步加剧了社区因采矿而遭受的环境危害。该小组是通过“繁荣地球交流”组织成立的,该组织将社区领导人、志愿科学家和技术专家聚集在一起,共同开展社区推动的项目。这个项目的目的是在社区内动态地制作和使用地图,以追求教育和环保活动的目标。公平是通过评估角色和劳动来衡量的,不仅在绘制地图的过程中,而且在社区成员对地图的各种使用中。
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引用次数: 0
Harnessing Community Science to Address Flood Risks and Build Climate Resilience With Nature-Based Solutions (NbS)—A Case Study From the Quad Cities Region 利用社区科学应对洪水风险并利用基于自然的解决方案(NbS)建立气候适应能力——以四城地区为例
Pub Date : 2026-01-21 DOI: 10.1029/2025CSJ000151
Abhinav Wadhwa, Arsum Pathak, Nina Struss, Mahtaab Bagherzadeh, Ashish Sharma

Urban regions situated along major river systems are increasingly facing flood risks, driven by the combined effects of rapid urbanization and intensifying climate change. The Quad Cities region, comprising Davenport and Bettendorf in Iowa, and Rock Island, Moline, and East Moline in Illinois, is vulnerable to flood hazards caused by extreme precipitation, fluvial surges, and extensive impervious surfaces. Historical records indicate 10%–20% increase in annual precipitation, with a rise in high-intensity rainfall. Projections under the SSP5-8.5 scenario, using statistically downscaled MIROC6 data, predict a continued increase in short-duration high-magnitude rainfall events. To quantify flood inundation scenarios, this study developed a coupled hydrologic-hydraulic (HH) model over a 35.5-mile Mississippi River corridor. Simulations indicate that, without intervention, flood depths could rise by 20%–45% and the inundation extent of flooding could expand significantly in low-lying areas of Rock Island and East Moline. To mitigate these risks, the study tested eight nature-based solutions (NbS), including bioswales, rain gardens, riparian buffers, infiltration trenches, and detention basins. HH modeling showed that the combined implementation of NbS can reduce peak discharge by up to 69.4% and increase water infiltration by over 25%, resulting in an estimated 37% reduction in flooded areas by the end of the century. Through over 30 stakeholder interviews, three public forums, and participatory mapping workshops, residents identified priority flood zones and proposed NbS strategies. This integrated approach helped develop a streamlined framework that combines high-resolution flood modeling with community-led planning, creating robust and socially equitable adaptation pathways for riverine urban systems.

在快速城市化和气候变化加剧的共同影响下,位于主要河流水系沿线的城市地区正日益面临洪水风险。四城地区包括爱荷华州的达文波特和贝滕多夫,伊利诺斯州的洛克岛、莫林和东莫林,极易受到极端降水、河流涌流和大面积不透水面造成的洪水灾害的影响。历史记录表明,年降水量增加10%-20%,高强度降雨增加。在SSP5-8.5情景下的预估,使用统计上缩小的MIROC6数据,预测短时间高强度降雨事件将继续增加。为了量化洪水淹没情景,本研究在35.5英里的密西西比河走廊上开发了一个耦合水文-水力(HH)模型。模拟结果表明,在没有干预的情况下,Rock Island和East Moline低洼地区的洪水深度可能会上升20%-45%,洪水淹没范围可能会明显扩大。为了减轻这些风险,该研究测试了八种基于自然的解决方案(NbS),包括生物威尔士、雨水花园、河岸缓冲、渗透沟和滞留盆地。HH模型显示,NbS的联合实施可以减少峰值流量高达69.4%,增加水入渗超过25%,到本世纪末,洪水地区估计减少37%。通过30多次利益相关者访谈、三次公共论坛和参与式制图研讨会,居民们确定了优先汛区,并提出了国家统计局的策略。这种综合方法有助于开发一个精简的框架,将高分辨率洪水建模与社区主导的规划相结合,为河流城市系统创建强大且社会公平的适应途径。
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引用次数: 0
Graduate Student Reflections on Learning and Implementing Community Science Methods to Tackle Compounding Climate Extremes 研究生对学习和实施社区科学方法应对复杂极端气候的思考
Pub Date : 2025-11-29 DOI: 10.1029/2025CSJ000143
Catherine M. McClure, Haley A. Canham, Anna Marshall, Elijah Catalan, Mariana Webb, Gods'gift Chukwuonye

Scientific research that addresses the complex impacts of climate change requires training researchers capable of conducting societally relevant and actionable research through equitable community science methods. In this article, we, a cohort of eight graduate students with the United States Geological Survey Southwest Climate Adaptation Science Center 2022–2023 Natural Resource Workforce Development Fellowship, reflect on our experience learning and using community science skills as an interdisciplinary team through the lens of an experiential learning research project. Through this year-long fellowship, we increased our competency in equitable community science skills identified in the literature, including transdisciplinary and ethical thinking, building interpersonal relationships, working as a team toward a shared goal, and self-reflection. We also encountered several challenges in executing community science, some we had anticipated and some we had not, including our ability to develop meaningful and equitable collaborations within the fellowship timeframe. Our reflections highlight the importance of partnership development, flexibility, and clear communication in overcoming these challenges while also underscoring the need for longer-term community partner engagement, mentorship, and institutional support to facilitate meaningful and equitable collaborations. We share and provide reflection for future students, educators, and practitioners on our experience as graduate students participating in a training-focused fellowship to learn and engage in community science methods.

解决气候变化复杂影响的科学研究需要培训能够通过公平的社区科学方法开展与社会相关和可操作研究的研究人员。在本文中,我们作为美国地质调查局西南气候适应科学中心2022-2023自然资源劳动力发展奖学金的八名研究生,通过一个体验式学习研究项目的视角,反思我们作为一个跨学科团队的经验学习和使用社区科学技能。通过这项为期一年的奖学金,我们提高了在文献中确定的公平社区科学技能方面的能力,包括跨学科和伦理思维,建立人际关系,为共同目标而团队合作以及自我反思。在执行社区科学的过程中,我们也遇到了一些挑战,有些是我们预料到的,有些是我们没有预料到的,包括我们在奖学金期限内发展有意义和公平合作的能力。我们的反思强调了伙伴关系发展、灵活性和明确沟通对克服这些挑战的重要性,同时也强调了长期社区伙伴参与、指导和机构支持的必要性,以促进有意义和公平的合作。我们为未来的学生、教育工作者和实践者分享和反思我们作为研究生参加以培训为重点的奖学金来学习和参与社区科学方法的经验。
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引用次数: 0
Situating Place-Based, Community-Engaged Watershed Research at Xwulqw'selu Sta'lo' 基于地方、社区参与的徐武武州流域研究
Pub Date : 2025-11-28 DOI: 10.1029/2024CSJ000120
Tom Gleeson, Ella Martindale, Jennifer Shepherd, David Serrano, Kristina Disney, Tim Kulchyski, Q'utxulenuhw, Tyrone Elliott, Tuwuxuwul't-hw, e campbell

Xwulqw'selu Sta'lo' is a culturally significant and salmon-bearing river facing significant challenges, which Cowichan Tribes and the British Columbia provincial government are addressing with a first-of-its-kind watershed plan. Our research is deeply situated at Xwulqw'selu Sta'lo' and is grounded in interdisciplinary academic spheres of place-based research, water monitoring and modeling, cogovernance and systems theory. Our project is an example of developing a deliberate, robust, and responsive community science project designed to engage community, impact decision-making, and respectfully work together in place, on the land. We describe developing and initiating our project and share a visual representation of how we structure our project as “woven statements.” The five statements give our research project team a shared understanding and motivation and help us plan and make decisions. The statements can be visualized as vertical warps interwoven with research projects, goals, and partnerships as horizontal wefts. The warps and wefts mutually support each other since weaving gains strength where warp and weft meet, connect, and overlap. Key lessons include the importance of taking responsibility for positionality, knowledge, and relationships; the value of intention setting that reflects the context and the priorities of partners and community; and that projects can flourish if structured around the good present in community.

Xwulqw'selu Sta‘lo’是一条具有重要文化意义和鲑鱼的河流,面临着重大挑战,coichan部落和不列颠哥伦比亚省政府正在制定一项史无前例的流域计划。我们的研究深度位于徐武库selu Sta'lo',并以跨学科的学术领域为基础,基于地点的研究,水监测和建模,共同治理和系统理论。我们的项目是开发一个深思熟虑的、稳健的、响应性强的社区科学项目的一个例子,该项目旨在让社区参与进来,影响决策,并在土地上相互尊重地合作。我们描述了开发和启动我们的项目,并分享了我们如何将项目组织为“编织语句”的可视化表示。这五个陈述给我们的研究项目团队一个共同的理解和动力,并帮助我们计划和做出决定。这些陈述可以被想象成垂直的经纬,与研究项目、目标和伙伴关系交织在一起,形成水平的经纬。经纱和纬纱相互支持,因为在经纱和纬纱相遇、连接和重叠的地方,编织的强度会增加。关键的教训包括对职位、知识和关系负责的重要性;意图设定的价值,反映了合作伙伴和社区的背景和优先事项;如果围绕社区中的好东西来组织,项目就会蓬勃发展。
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引用次数: 0
The Case for Community-Owned and -Managed Research and Community Health Assessments: Promotora-Researchers’ Partnerships Generate Adaptive Health Evaluation Tools 社区拥有和管理的研究和社区健康评估的案例:促进者-研究人员的伙伴关系产生适应性健康评估工具
Pub Date : 2025-11-15 DOI: 10.1029/2025CSJ000135
W. L. J. Ho, S. Rodriguez, E. Pardo, J. Tang, D. Piñon, S. Somepalle, J. Kelty, S. Manukian, M. Wilson, J. Ontiveros, N. Deeb-Sossa, A. Aranda, 2018 Knights Landing Promotora-Researchers

Federal and state health data sets often lack the granularity needed for medically underserved small towns. To address this, we conducted two community health assessment surveys in Knights Landing (KL), a rural agricultural town in California, to identify local healthcare strengths, barriers, and needs. Utilizing a Community-Based Participatory Action Research (CBPAR) framework, our project centered on a collaboration between academic-researchers and promotora-researchers: community leaders who evolved from activists to empowered research partners over a decade. Data from an initial randomized survey in 2013 (N = 88) informed the design of a follow-up survey in 2018 (N = 100). For the 2018 survey, promotora-researchers made the executive decision to shift to snowball sampling, which provided a deeper understanding of the health experiences of the clinic's most vulnerable and historically underrepresented populations. Both surveys produced actionable community-owned data that stimulated significant community organizing, led to expanded services at the student-led clinic (KLOHC), and cultivated public health investments for Knights Landing. This study demonstrates how a decade-long partnership, grounded in shared power and evolving into a Community-Owned and -Managed Research (COMR) model, can generate a robust and adaptive health assessment tool. Ultimately, this work highlights the transformative power of community involvement in health research for creating impactful and enduring change.

联邦和州卫生数据集往往缺乏医疗服务不足的小城镇所需的粒度。为了解决这个问题,我们在加利福尼亚州的一个农村农业城镇Knights Landing (KL)进行了两次社区健康评估调查,以确定当地的医疗保健优势、障碍和需求。利用基于社区的参与式行动研究(CBPAR)框架,我们的项目侧重于学术研究人员和促进研究人员之间的合作:十多年来从活动家演变为授权研究伙伴的社区领导人。2013年初始随机调查(N = 88)的数据为2018年后续调查(N = 100)的设计提供了依据。对于2018年的调查,推广人员做出了行政决定,转向雪球抽样,这为诊所最脆弱和历史上代表性不足的人群的健康经历提供了更深入的了解。这两项调查都产生了可操作的社区拥有的数据,刺激了重要的社区组织,扩大了学生主导诊所(KLOHC)的服务,并为骑士登陆带来了公共卫生投资。这项研究表明,以共享权力为基础并逐步发展成为社区拥有和管理研究(COMR)模式的长达十年的伙伴关系如何能够产生强大和适应性强的健康评估工具。最终,这项工作突出了社区参与卫生研究的变革力量,以创造有影响力和持久的变化。
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