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Satisfaction in mental health care: Examining psychometric properties of experience of service questionnaire. 心理健康护理的满意度:检验服务体验问卷的心理测量特性。
Pub Date : 2024-09-28 DOI: 10.1177/13591045241287859
Pelinsu Bulut Ozer, Sibel Halfon

Measuring satisfaction with psychological health services is important in clinical settings to evaluate the benefits of treatment. Past research has shown that relationship with therapist is at the core of satisfaction reports. However, measurement tools focusing on patients' psychological health care experiences are rather scarce. The objective of this study is to adapt the Experience of Service Questionnaire (ESQ) Parent form and examine its psychometric properties in a Turkish population. ESQ Parent form was presented to parents (N = 265) of children who have received treatment at a university's psychological counseling center. Child Behavior Checklist (CBCL) was gathered from parents pre- and post-treatment to measure symptomatic gains and investigate their associations with satisfaction with treatment. Confirmatory factor analysis comparing two different constructs showed that the 2-factor structure had a better fit. In addition, participants showing higher therapeutic gains showed significantly higher satisfaction in ESQ. This study is the first to measure satisfaction in psychological health care settings in Turkey, and therefore aims to contribute to a gap in the field. Results indicate a significant association between treatment outcome and satisfaction levels. Also, adapted measurement tool demonstrates adequate reliability and validity scores supporting its use in clinical settings.

在临床环境中,衡量心理健康服务的满意度对于评估治疗效果非常重要。过去的研究表明,与治疗师的关系是满意度报告的核心。然而,关注患者心理健康护理体验的测量工具却相当匮乏。本研究旨在改编服务体验问卷(ESQ)家长表,并在土耳其人群中检验其心理测量特性。研究人员向曾在一所大学的心理咨询中心接受治疗的儿童的家长(N = 265)发放了 ESQ 家长问卷。在治疗前和治疗后向家长收集了儿童行为检查表(CBCL),以测量症状的改善情况,并研究其与治疗满意度之间的关联。比较两个不同结构的确认因素分析表明,双因素结构的拟合效果更好。此外,治疗收益较高的参与者在 ESQ 中的满意度也明显较高。本研究首次对土耳其心理保健机构的满意度进行了测量,因此旨在填补该领域的空白。研究结果表明,治疗效果与满意度之间存在明显关联。此外,改编后的测量工具显示出足够的可靠性和有效性,支持其在临床环境中的应用。
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引用次数: 0
Primary and secondary trauma in adoptive parents. 养父母的原发性和继发性创伤。
Pub Date : 2024-09-27 DOI: 10.1177/13591045241287563
Morvwen Duncan, Pasco Fearon, Matt Woolgar

Aims: Secondary trauma is recognised as one of the negative effects for professionals working with people that have experienced trauma. Research has demonstrated secondary trauma in foster carers but little research has explored trauma symptoms within adoptive parents, facing the emotional impact of parenting a child with adverse early experiences. This study aimed to document the rates of primary and secondary trauma symptoms in adoptive parents. It further explores the association between the extent of current behavioural and emotional challenges and the extent of the child's pre-adoption adverse experiences in predicting parental trauma responses.

Method: 190 adoptive parents completed an online survey including self-report measures of primary and secondary trauma.

Results: Almost one fifth of adoptive parents exhibited primary trauma scores of clinical concern; with 10% reaching the threshold for a probable diagnosis of PTSD. Participants also reported significantly higher levels of secondary trauma and burnout, and significantly lower levels of compassion satisfaction than population norms. The current behavioural and emotional challenges, including child-to-parent violence, predicted higher trauma scores more so than the extent of their child's past adverse experiences.

Conclusions: The findings have clinical implications for identifying trauma symptoms within adoptive parents and wider implications for how we understand secondary and primary trauma. They further highlight the importance of firstly addressing current child behaviour, including child-to-parent violence when treating trauma symptoms. Limitations of this study and recommendations for further research are discussed.

目的:二次创伤被认为是对与经历过创伤的人打交道的专业人员造成的负面影响之一。研究表明,寄养照料者存在继发性心理创伤,但很少有研究探讨养父母的心理创伤症状,因为养父母在养育孩子的过程中会受到早期不良经历的情绪影响。本研究旨在记录养父母的原发性和继发性创伤症状的发生率。研究还进一步探讨了当前行为和情感挑战的程度与儿童收养前不良经历的程度之间在预测父母创伤反应方面的关联:190名收养父母完成了一项在线调查,其中包括对主要和次要创伤的自我报告测量:将近五分之一的养父母表现出临床关注的初级创伤评分;10%的养父母达到了创伤后应激障碍可能诊断的临界值。参与者报告的二次创伤和职业倦怠程度也明显高于人群标准,同情满意度也明显低于人群标准。当前的行为和情绪挑战,包括儿童对父母的暴力行为,比孩子过去的不良经历程度更能预测出更高的创伤得分:这些研究结果对识别养父母的创伤症状具有临床意义,并对我们如何理解继发性和原发性创伤具有更广泛的意义。研究结果进一步强调了在治疗创伤症状时首先解决当前儿童行为(包括儿童对父母的暴力行为)的重要性。本研究的局限性和进一步研究的建议也在讨论之列。
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引用次数: 0
Getting help early: An online mental health self-assessment tool for young people. 及早获得帮助:青少年在线心理健康自我评估工具。
Pub Date : 2024-09-25 DOI: 10.1177/13591045241287895
Afra Fischer, Oliver J Smith, Paula Gómez Álvarez, Jörg Wolstein, Ulrich Schall

Background: Online self-assessments are becoming more popular. They can serve as a screening tool for specific conditions or assess mental health more broadly but often lack in depth evaluation.

Methods: This study presents preliminary data from an online self-assessment tool for young people within the age range of 12-30 years (Link: redcap.hmri.org.au/surveys/?s = MK7RCELJ79). It covers key symptoms of mood and psychotic disorders and risk factors, such as eating issues, substance use, suicidality, and deliberate self-harming behaviours. Participants self-assessed their level of functioning, access to ongoing interventions, and satisfaction with the help received. Based on the severity of mental health problems and the level of risk, different recommendations of how to seek help were provided.

Results: Out of 303, 114 participants gave permission to analyse their data. A high-risk profile was defined by anxiety symptoms, panic attacks, suicidal ideation, and urges to self-harm. These individuals were more likely to report psychotic or depression symptoms, recreational substance use and low day-to-day functioning. Ongoing treatment and the satisfaction with it were not determined by the severity of symptoms.

Conclusions: These preliminary results suggest that the online self-assessment tool reaches the intended young audience, particularly those with some degree of mental health problems.

背景:在线自我评估越来越受欢迎。它们可以作为特定条件的筛查工具,也可以更广泛地评估心理健康,但往往缺乏深入评估:本研究介绍了针对 12-30 岁青少年的在线自我评估工具的初步数据(链接:redcap.hmri.org.au/surveys/?s = MK7RCELJ79)。它涵盖了情绪障碍和精神障碍的主要症状以及饮食问题、药物使用、自杀和故意自残行为等风险因素。参与者对自己的功能水平、获得持续干预的机会以及对所获帮助的满意度进行了自我评估。根据心理健康问题的严重程度和风险水平,提供了不同的求助建议:在 303 名参与者中,有 114 人同意对其数据进行分析。焦虑症状、惊恐发作、自杀念头和自残冲动被定义为高危人群。这些人更有可能出现精神病或抑郁症状、使用娱乐性药物以及日常功能低下。持续治疗和对治疗的满意度并不取决于症状的严重程度:这些初步结果表明,在线自我评估工具能够达到预期的年轻受众,尤其是那些有一定程度心理健康问题的人。
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引用次数: 0
Multiple complex developmental disorder (MCDD): Did we throw the baby out with the bathwater too fast? A systematic review. 多重复杂发育障碍(MCDD):我们是否太快将婴儿与洗澡水一起倒掉?系统回顾。
Pub Date : 2024-09-19 DOI: 10.1177/13591045241285486
Valerio Zaccaria, Ignazio Ardizzone, Francesco Pisani, Andrea Raballo, Michele Poletti

Background: Multiple complex developmental disorder (MCDD) manifests as early-onset impairment across different domains. Although it could appear as a transitional condition between autism and childhood-onset schizophrenia, interest in MCDD has progressively waned. This study attempts to discern MCDD current relevance to avoid "throwing the baby out with the bathwater" too fast.

Methods: All available studies published up to January 2024 were retrieved and evaluated following on the PRISMA guidelines for systematic reviews using the term "multiple complex developmental disorder" or "MCDD", without any filter for study design nor year of publication.

Results: Only 16 studies were included and analyzed. Overall, a variable heterogeneity was observed in terms of country of investigation, study design, and clinical groups. Most of the included studies explored the construct of MCDD in developmental age, comparing MCDD mostly with autistic patients, and observing how the former group had higher levels of paranoia, illusions, and psychotic thoughts, whereas the latter showed more frequently difficulties in social interactions and stereotypical behaviors.

Conclusion: Overall, these results showed how progressive changes in diagnostic criteria over time led MCDD to be abandoned as nosographic construct, leaving perhaps a diagnostic void between autism and psychotic disorders that needs to be further studied. A systematic review on the Multiple Complex Developmental Disorder (MCDD): a forgotten diagnosis between autism and schizophrenia.

背景:多重复杂发育障碍(MCDD)表现为早期出现的不同领域的障碍。虽然它可能是自闭症和儿童期精神分裂症之间的一种过渡性疾病,但人们对 MCDD 的兴趣已逐渐减弱。本研究试图揭示 MCDD 目前的相关性,以避免 "操之过急":方法:按照系统综述的 PRISMA 指南,使用 "多重复杂发育障碍 "或 "MCDD "一词,检索并评估了截至 2024 年 1 月发表的所有可用研究,未对研究设计或发表年份进行任何过滤:结果:仅纳入并分析了 16 项研究。总体而言,在调查国家、研究设计和临床组别方面存在不同的异质性。所纳入的大多数研究都探讨了发育年龄阶段的精神发育迟滞症,将精神发育迟滞症患者与自闭症患者进行了比较,观察到前者有更高程度的偏执、幻想和精神病性思维,而后者则更多地表现出社会交往困难和刻板行为:总之,这些研究结果表明,随着时间的推移,诊断标准的逐步变化导致多重发展障碍作为一种命名结构而被放弃,这或许在自闭症和精神病之间留下了一个诊断空白,需要进一步研究。关于多重复杂发育障碍(MCDD)的系统综述:自闭症与精神分裂症之间被遗忘的诊断。
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引用次数: 0
Linking heart and mind - lived experiences of parents to children with congenital heart disease and mental health issues. 心与心的联系--先天性心脏病和心理健康问题患儿父母的生活经历。
Pub Date : 2024-07-23 DOI: 10.1177/13591045241267129
Julie L Hejl, Ditte R Hulgaard, Anne Sofie D Rasmussen, Lærke Emilie N Larsen, Charlotte U Rask

Children with congenital heart disease are more likely to receive special educational services in schools and have an increased risk of mental health issues. We explored the lived experiences of parents caring for a child with heart disease and concurrent mental health issues in Denmark. Semi-structured interviews with ten parents (age 39-57 years) to these children (age 5-17 years) were analysed using interpretative phenomenological analysis. Three Group Experiential Themes (GETs) were generated from the analysis: The first GET, Parental roles and caring behaviours, described parental struggles of fulfilling their parenting role ideals and experiences with stigmatization of MHI. GET two, Parental reflections on their illness explanations, portrayed how parents utilize different illness explanations to make sense of their child's MHI. GET three, Differences in access to help and support, captured how the CHD affected overall access to mental health support. The results may inform various topics of importance for health professionals to address in their clinical encounters with these families.

患有先天性心脏病的儿童更有可能在学校接受特殊教育服务,而且出现心理健康问题的风险也更高。我们探讨了丹麦父母照顾患有先天性心脏病并同时伴有心理健康问题的儿童的生活经历。我们采用解释现象学分析方法,对十位父母(39-57 岁)和这些孩子(5-17 岁)的半结构式访谈进行了分析。分析结果产生了三个群体体验主题(GET):第一组体验主题 "父母的角色和照顾行为 "描述了父母在履行其养育子女的理想角色时所遇到的困难,以及他们对产妇保健的偏见。第二项 GET "父母对其疾病解释的反思 "描述了父母如何利用不同的疾病解释来解释其子女的 MHI。第三部分 "获得帮助和支持的差异 "反映了慢性疾病如何影响获得心理健康支持的总体情况。这些结果可以为医疗专业人员在与这些家庭的临床接触中解决各种重要问题提供参考。
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引用次数: 0
"I didn't come here for your judgement" alongside "they understand you and encourage you": Exploring the narratives of young black and mixed-race LGBTQ+ people who have a physical health condition and their experiences within physical health services. "他们理解你,鼓励你 "的同时,"我不是为了你的评判而来":探索患有身体疾病的黑人和混血 LGBTQ+ 年轻人的叙述及其在身体健康服务中的经历。
Pub Date : 2024-07-21 DOI: 10.1177/13591045241258504
Nicole Williams, James McParland, Shreena Unadkat, Jaymie Huckridge

Lesbian, gay, bisexual, transgender, and queer or questioning (LGBTQ+) individuals experience health inequalities. Young people living with a health condition are also more likely to experience adverse mental health outcomes. Developing positive identity can help to mitigate the impact of this. Young black LGBTQ+ people have additional barriers to developing positive identity. Current research rarely considers the intersection of these identities for young people despite the discrimination they may face, and the impact this may have on their health. A narrative approach allows these voices to be heard in research. Eight participants were interviewed using a narrative approach. Interviews were analysed using content and thematic narrative analysis. Global summaries of each interview were developed and 'plot lines' emerged from these. A central plot related to identity development, with two plots embedded in these exploring experiences of illness and of healthcare. Participants had positive experiences of healthcare despite encountering stigma. Access to positive role models and being able link in with various communities allowed participants to integrate and accept their identities. A key discussion point in this study is the ways in which healthcare staff could become role models for young LGBTQ+ people and help them to integrate and accept their identities.

女同性恋、男同性恋、双性恋、跨性别者、同性恋者或质疑者(LGBTQ+)在健康方面遭受不平等待遇。有健康问题的年轻人也更有可能经历不利的心理健康结果。发展积极的身份认同有助于减轻这种影响。年轻的黑人 LGBTQ+ 在发展积极的身份认同方面有更多的障碍。尽管年轻人可能会面临歧视,但目前的研究很少考虑他们这些身份的交集,以及这可能对他们的健康产生的影响。叙事方法可以让这些声音在研究中被听到。我们采用叙事方法对八位参与者进行了访谈。采用内容和主题叙事分析法对访谈进行了分析。我们对每次访谈进行了全面总结,并从中得出了 "情节线"。中心情节与身份发展有关,其中包含两个情节,分别探讨疾病和医疗保健的经历。尽管遭遇了污名化,但参与者对医疗保健的体验是积极的。积极的榜样以及与不同社区的联系使参与者能够融入并接受自己的身份。本研究的一个关键讨论点是,医疗保健人员如何才能成为年轻的 LGBTQ+ 人群的榜样,并帮助他们融入和接受自己的身份。
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引用次数: 0
"People don't have the answers": A qualitative exploration of the experiences of young people with Long COVID. "人们没有答案":长COVID青少年经历的定性探索。
Pub Date : 2024-07-01 Epub Date: 2024-05-08 DOI: 10.1177/13591045241252463
Fiona Newlands, Celine Lewis, Anais d'Oelsnitz, Snehal M Pinto Pereira, Terence Stephenson, Trudie Chalder, Anna Coughtrey, Emma Dalrymple, Isobel Heyman, Anthony Harnden, Tamsin Ford, Shamez N Ladhani, Claire Powell, Kelsey McOwat, Rowan Bhopal, Jake Dudley, Paige Kolasinska, Mohammed Z Muhid, Manjula Nugawela, Natalia K Rojas, Angel Shittu, Ruth Simmons, Roz Shafran

Young people living with Long COVID are learning to navigate life with a constellation of poorly understood symptoms. Most qualitative studies on experiences living with Long COVID focus on adult populations. This study aimed to understand the experiences of young people living with Long COVID. Qualitative, semi-structured interviews were conducted (n = 16); 11 young people (aged 13-19) and five parents were recruited from the Children and Young People with Long COVID (CLoCk) study (n = 11) or its patient and public involvement and engagement (PPIE) group (n = 5). Thematic analysis generated four themes: (i) Unravelling Long COVID: Exploring Symptom Journeys and Diagnostic Dilemmas; (ii) Identity Disruption and Adjustment; (iii) Long COVID's Ripple Effect: the impact on Mental Health, Connections, and Education; and (iv) Navigating Long COVID: barriers to support and accessing services. Treatment options were perceived as not widely available or ineffective, emphasising the need for viable and accessible interventions for young people living with Long COVID.

患有长期慢性阻塞性肺病的年轻人正在学习如何在对各种症状知之甚少的情况下生活。大多数关于长COVID患者生活经历的定性研究都集中在成年人群体。本研究旨在了解患有长COVID的年轻人的生活经历。研究人员进行了半结构式定性访谈(n = 16);从长COVID儿童和青少年(CLoCk)研究(n = 11)或其患者和公众参与(PPIE)小组(n = 5)中招募了 11 名青少年(13-19 岁)和 5 名家长。主题分析产生了四个主题:(i) 解读长 COVID:探索症状之旅和诊断困境;(ii) 身份中断和适应;(iii) 长 COVID 的涟漪效应:对心理健康、联系和教育的影响;(iv) 长 COVID 导航:获得支持和服务的障碍。人们认为治疗方案并不普遍或效果不佳,因此强调需要为患有长焦虑抑郁的青少年提供可行且易获得的干预措施。
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引用次数: 0
Innovations, interventions and insights in clinical child psychology and psychiatry. 临床儿童心理学和精神病学的创新、干预和见解。
Pub Date : 2024-07-01 Epub Date: 2024-05-21 DOI: 10.1177/13591045241258258
Deborah Christie
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引用次数: 0
Assessment and treatment of mental health conditions in children and adolescents: A systematic scoping review of how virtual reality environments have been used. 儿童和青少年心理健康状况的评估和治疗:对虚拟现实环境如何使用的系统范围审查。
Pub Date : 2024-07-01 Epub Date: 2023-09-22 DOI: 10.1177/13591045231204082
Dana Blanco, Rachel M Roberts, Anne Gannoni, Steve Cook

Background: There is growing interest in the use of virtual reality environments (VREs) in psychological treatment and assessment. Most research has focused on the application of VREs in adult psychological disorders with fewer studies focusing on its applicability with children and adolescents. A systematic scoping review was undertaken of research assessing how VREs have been used in the treatment and assessment of childhood mental health disorders to provide an overview of the current state of the literature and identify future research directions.

Method: Systematic searches of online databases were conducted in PsycInfo, PubMed, Embase, Scopus, and Web of Science.

Results: Eleven studies met eligibility criteria and were included in this review, with the majority focusing on VRE interventions for anxiety-related disorders. There is also emerging support for VRE deep breathing training for anxiety, VRE assisted treatment of internet gaming disorder and anorexia nervosa, and VRE assessment of body image evaluation in anorexia nervosa. Most studies were pilot and feasibility studies with only three randomised-controlled trials (RCT).

Conclusions: The current literature shows some promise for the use of VRE assessments and interventions of childhood mental health problems, particularly for anxiety-related disorders such as social anxiety and specific phobias. However, high-quality RCTs are now needed to establish effectiveness of VREs in this population, and how it compares to existing evidence-based approaches, given its promise to improve both engagement and outcomes.

背景:人们对虚拟现实环境在心理治疗和评估中的应用越来越感兴趣。大多数研究都集中在VRE在成人心理障碍中的应用,很少有研究关注其在儿童和青少年中的适用性。对评估VRE如何用于儿童心理健康障碍的治疗和评估的研究进行了系统的范围界定审查,以概述文献的现状并确定未来的研究方向。方法:在PsycInfo、PubMed、Embase、Scopus和Web of Science的在线数据库中进行系统搜索。结果:11项研究符合资格标准并纳入本综述,其中大多数研究侧重于VRE对焦虑相关障碍的干预。VRE深呼吸训练治疗焦虑症、VRE辅助治疗网络游戏障碍和神经性厌食症,以及VRE评估神经性厌食患者的身体形象也得到了新的支持。大多数研究都是试点和可行性研究,只有三项随机对照试验(RCT)。结论:目前的文献表明,VRE评估和干预儿童心理健康问题有一定的前景,尤其是对社交焦虑和特定恐惧症等焦虑相关障碍。然而,现在需要高质量的随机对照试验来确定VRE在这一人群中的有效性,以及它与现有循证方法的比较,因为它有望提高参与度和结果。
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引用次数: 0
A Brief Description of How Teachers Experience An Infographic Loneliness Toolkit About Supporting Adolescents to Overcome Loneliness. 教师如何体验关于支持青少年克服孤独的信息图表孤独工具包的简要描述。
Pub Date : 2024-07-01 Epub Date: 2023-11-07 DOI: 10.1177/13591045231209353
Helena Adam, Maria Loades, Vuokko Wallace

Loneliness is a common experience amongst adolescents. As adolescents spend much of their time in school, it is important that school staff can support adolescent students experiencing loneliness. The current study aimed to explore teachers' experiences of a 1-page loneliness toolkit regarding adolescent loneliness. An online survey to collect ratings and descriptions of experiences was distributed to secondary school teachers. Findings showed that both self-rated knowledge and experience of students experiencing loneliness were positively correlated with how useful teachers found the loneliness toolkit. Three themes were developed about how useful teachers found the toolkit; clarity, brings attention to loneliness, and communication. Two themes were developed about how the user experience of the toolkit could be improved; education, and interactive student support. Future research should investigate more effective methodologies aimed at supporting adolescents experiencing loneliness to aid teachers in supporting their students.

孤独是青少年的常见经历。由于青少年大部分时间都在学校度过,学校工作人员能够支持经历孤独的青少年学生是很重要的。本研究旨在探讨教师使用1岁孤独工具包的青少年孤独体验。向中学教师分发了一项在线调查,以收集对经历的评分和描述。研究结果表明,学生经历孤独的自我评价知识和经历与教师发现孤独工具包的有用程度呈正相关。制定了三个主题,即教师如何找到有用的工具包;清晰,引起人们对孤独和沟通的关注。制定了两个主题,即如何改善工具包的用户体验;教育和互动式学生支持。未来的研究应该调查更有效的方法,旨在支持经历孤独的青少年,以帮助教师支持他们的学生。
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引用次数: 0
期刊
Clinical child psychology and psychiatry
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