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The Mediating Role of Sleep Quality in the Relationship Between Quick-Return Shift Work Schedules and Work-Family Conflict: A Cross-Sectional Study.
Pub Date : 2025-03-11 DOI: 10.1097/jnr.0000000000000663
Sawsan Safieh, Tamar Shochat, Einav Srulovici

Background: Nursing is a highly demanding profession involving shift-work schedules around the clock. Rest time between shifts is an issue that has gained increasing research attention in recent years, with brief rest periods (< 11 hours) between shifts coined "quick-return." Quick-return work schedules have been linked to negative health outcomes such as poor sleep quality and stress, which may create a vicious cycle that can contribute to work-family conflict.

Purpose: This study aimed to investigate mediation models exploring the role of sleep quality in mediating the relationship between quick-return work shift schedules and work-family conflict among female nurses with children.

Methods: A cross-sectional approach was used, and data were collected from 131 female nurses with children under the age of 18 years between October 2020 and February 2021 in three hospitals. The participants completed a set of questionnaires to evaluate quick-return frequency within the past week, sleep quality between different types of shifts (morning [07:00-15:00]-night [23:00-07:00], evening [15:00-23:00]-morning, night-evening, morning-morning, evening-evening, night-night, and 2 days off), work-family conflict, workload, and sociodemographic factors. Seven mediation models were conducted using the SPSS PROCESS macro.

Results: Only one mediation model was supported. In the supported model, sleep quality between morning-night shifts mediates the relationship between quick-returns within the past week and work-family conflict. Specifically, shift-work schedules with higher numbers of quick-returns within the past week were significantly associated with poorer sleep quality between morning-night shifts (B = 1.047, SE = 0.457, 95% CI [0.142, 1.952]), which was in turn significantly associated with higher work-family conflict (B = -0.548, SE = 0.205, 95% CI [-0.953, -0.143]). Notably, whereas the indirect effect between quick-returns within the past week and work-family conflict was significant (B = -0.574, SE = 0.311, 95% CI [-1.301, 0.079]), the direct effect was not (p = .169).

Conclusions: The findings of this study show the potentially negative effects of a specific type of quick-return work schedule on sleep quality in nurses, which in turn has a significant impact on nurses' personal and family lives. Because sleep is a modifiable behavior, optimizing this behavior may result in better recovery between shifts. Furthermore, nurse managers should ensure their staff are not assigned work schedules that require quick-returns to work between morning and night shifts.

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引用次数: 0
The Mediating Effect of Sleep Quality on the Relationship Between Depression and Sense of Control in Women in the Third Trimester of Pregnancy: A Cross-Sectional Survey Study.
Pub Date : 2025-02-28 DOI: 10.1097/jnr.0000000000000664
Min-Hsueh Weng, Hung-Chieh Chou, Gwo-Jang Wu, Yue-Cune Chang, Jen-Jiuan Liaw

Background: Depression, poor sleep quality, and perceived lack of control all commonly impact women in the third trimester of pregnancy. Depression can influence sleep quality, whereas sense of control during pregnancy is correlated with both sleep quality and depression. However, the mediating effect of sleep quality on the relationship between depression and sense of control has not been examined in women in their third trimester.

Purpose: This study was designed to explore depression, sleep quality, and sense of control in pregnant women during the third trimester and determine the degree to which sleep quality mediates the relationship between depression and sense of control.

Methods: An exploratory correlational cross-sectional design was used to recruit 263 pregnant women with a gestational age of 35-36 weeks. Data were collected using questionnaires. Depression, sleep quality, and sense of control were respectively assessed using the Edinburgh Postnatal Depression Scale, Pittsburgh Sleep Quality Index, and Labor Agentry Scale. Data on the main outcomes were analyzed using the PROCESS macro for SPSS.

Results: Depression in pregnant women was found to correlate positively with poor sleep quality and negatively with sense of control (all ps < .001). Thus, higher levels of depression and poorer sleep quality were associated with lower sense of control. The results confirmed the relationship between depression and sense of control to be mediated by sleep quality (p < .001).

Conclusions: Pregnant women with lower levels of depression may experience better sleep quality and sense of control. Sleep quality mediates the relationship between depression and sense of control in women in the third trimester. Thus, prenatal counseling and psychological support should be provided to pregnant women to reduce depression while improving sleep quality and sense of control.

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引用次数: 0
Exercise Strategy for Reducing Visceral Adipose Tissue in Community Residents With Obesity: A Sequential Multiple Assignment Randomized Trial.
Pub Date : 2025-02-28 DOI: 10.1097/jnr.0000000000000662
Yu-Hsuan Chang, Yun-Hsiang Lee, Kay Lh Wu, Wei-Li Hsu, Hung Hung, Shiow-Ching Shun

Background: Exercise is the most effective method of reducing visceral adipose tissue (VAT). However, the optimal exercise modality and strategy for reducing VAT have yet to be determined.

Purpose: This study was designed to identify the optimal sequence exercise strategy for reducing VAT in community residents with obesity.

Methods: A sequential multiple assignment randomized trial design was used to conduct a two-stage (8 weeks each) adaptive exercise for 40- to 64-year-old residents with obesity. In the first stage, the participants were randomly allocated into two groups, one of which did 30 minutes of moderate-intensity continuous training (MICT; n = 58) and the other which did 20 minutes of high-intensity interval training (HIIT; n = 58) three times per week. In the second stage, the nonresponders (with VAT decreases < 3%) were randomly reallocated into a group that performed MICT combined with an additional 10 minutes of resistance exercise or one that performed the opposite of the first-stage treatment (HIIT or MICT). Those who responded to the first-stage intervention (with VAT decreases of ≥ 3%) continued the same exercise treatment until 16 weeks.

Results: The MICT intervention was found to be more efficacious than the HIIT intervention in reducing VAT during the first 8 weeks (β = -4.10, p = .029). Among the nonresponders to MICT, the HIIT outperformed MICT combined with resistance exercise as the alternative choice in the second stage (β = -7.36, p = .006). On the contrary, there were no significant differences between MICT and MICT combined with resistance exercise for the nonresponders to HIIT (β = 1.34, p = .626). Those participants who repeated the same exercise modality (either MICT or HIIT) in both stages exhibited superior VAT reduction to those who changed exercise modalities after the first stage.

Conclusions/implications for practice: The optimal sequence exercise strategy for reducing VAT is captured by a two-stage sequential multiple assignment randomized trial design. Community residents with obesity are advised to reduce VAT efficiently through participation in an 8-week MICT program. For those preferring HIIT rather than MICT, a 16-week program without changing the modality midway is recommended.

背景:运动是减少内脏脂肪组织(VAT)最有效的方法。目的:本研究旨在确定减少社区肥胖居民内脏脂肪组织的最佳序列运动策略:方法:采用顺序多重分配随机试验设计,对 40 至 64 岁的肥胖居民进行两阶段(各为期 8 周)的适应性锻炼。在第一阶段,参与者被随机分配到两组,一组进行 30 分钟的中等强度持续训练(MICT;58 人),另一组进行 20 分钟的高强度间歇训练(HIIT;58 人),每周三次。在第二阶段,无应答者(VAT 降幅小于 3%)被随机重新分配到进行 MICT 训练并额外进行 10 分钟阻力运动的小组,或进行与第一阶段治疗相反的训练(HIIT 或 MICT)的小组。那些对第一阶段干预有反应(增值肌肉减少≥3%)的人继续接受相同的运动治疗,直到16周:结果发现,在前 8 周内,MICT 干预比 HIIT 干预更能有效减少 VAT(β = -4.10,p = .029)。在对 MICT 无反应者中,HIIT 在第二阶段的表现优于 MICT 联合阻力运动(β = -7.36,p = .006)。相反,对 HIIT 没有反应的参与者在 MICT 和 MICT 结合阻力运动之间没有明显差异(β = 1.34,p = .626)。那些在两个阶段都重复相同运动方式(MICT 或 HIIT)的参与者与那些在第一阶段后改变运动方式的参与者相比,显示出更佳的血管张力降低效果:通过两阶段顺序多重分配随机试验设计,可掌握降低增值税的最佳顺序运动策略。建议患有肥胖症的社区居民通过参加为期 8 周的 MICT 项目来有效降低增值税。对于那些喜欢 HIIT 而非 MICT 的人,建议他们参加为期 16 周的计划,中途不要改变运动方式。
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引用次数: 0
Shaping Effective Interventions and Future Research.
Pub Date : 2025-02-01 DOI: 10.1097/jnr.0000000000000660
Hung-Ru Lin
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引用次数: 0
Correlation Between Handgrip Strength and Bone Density and Fragility Fracture Risk Among Older Adults: A Cross-Sectional Study. 老年人握力、骨密度和脆性骨折风险的相关性:一项横断面研究。
Pub Date : 2025-02-01 DOI: 10.1097/jnr.0000000000000656
Shyh-Geng Huang, Ru-Ping Lee, Ting-Kuo Yao, Jen-Hung Wang, Wen-Tien Wu, Kuang-Ting Yeh

Background: Population aging has led to a surge in elderly care needs worldwide. Bone aging, skeletal muscle degeneration, and osteoporosis pose critical health challenges for the elderly. The process of bone and skeletal muscle aging not only impacts the functional abilities but also increases fragility fracture risk. Although a negative correlation between handgrip strength and fragility fracture risk has been identified in elderly populations, there is a lack of related research in Taiwan.

Purpose: This cross-sectional study was designed to investigate the association between handgrip strength and two outcome variables, bone density and risk of fragility fracture, in Taiwanese individuals aged 65 years and older with low bone mass.

Methods: A total of 548 older adults, including 84 men and 464 women, were recruited between August 2019 and July 2021. Bone mineral density T -scores acquired using dual-energy X-ray absorptiometry scan, the total score for the Taiwan-specific Fracture Risk Assessment (FRAX) tool, and bilateral handgrip strength acquired using a digital hand dynamometer were recorded along with other factors such as comorbidities, dietary habits, and daily activities.

Results: In this study, the mean age was 70.9 ( SD = 5.6) years, mean bone mass index was 24.1 ( SD = 3.5) kg/m 2 , mean FRAX main fracture risk score was 19.5% ( SD = 8.3), and mean FRAX hip fracture risk score was 7.7% ( SD = 5.7). Lumbar and hip T -scores were both significantly correlated with both dominant and nondominant handgrip strength in older woman. Older age; both lower hip and spine T -scores; both lower dominant and nondominant handgrip strengths; having Type 2 diabetes, coronary artery disease, or chronic hepatic disease; and lacking a steady job were significantly associated with a higher risk of fragility fracture.

Conclusions/implications for practice: The results of this study provide important information regarding the correlation between handgrip strength and several variables, including bone mineral density T -score, FRAX score, comorbidities, and job status, among older adults. Notably, these correlations were found to be particularly strong in the female participants. This information may be used to facilitate the early identification of elderly individuals at a high risk of fragility fractures, enabling the timely development of preventive nursing strategies and the provision of targeted interventions.

背景:人口老龄化导致全球老年人护理需求激增。骨老化、骨骼肌退化和骨质疏松症对老年人的健康构成了严峻的挑战。骨和骨骼肌的老化过程不仅影响功能,而且增加了脆性骨折的风险。虽然握力与老年人脆性骨折风险呈负相关,但台湾缺乏相关研究。目的:本横断面研究旨在探讨台湾65岁及以上低骨量老年人握力与骨密度和脆性骨折风险的关系。方法:在2019年8月至2021年7月期间招募了548名老年人,其中包括84名男性和464名女性。使用双能x线吸收仪扫描获得的骨密度t评分,台湾特定骨折风险评估(FRAX)工具的总分,以及使用数字手部测力仪获得的双侧握力,以及其他因素,如合并症,饮食习惯和日常活动,均被记录下来。结果:本组患者平均年龄为70.9 (SD = 5.6)岁,平均骨量指数为24.1 (SD = 3.5) kg/m2, FRAX主骨折风险评分平均值为19.5% (SD = 8.3),髋部骨折风险评分平均值为7.7% (SD = 5.7)。腰椎和髋部t -评分与老年妇女的优势和非优势握力均显著相关。老年;下髋关节和脊柱t评分;较低的优势握力和非优势握力;患有2型糖尿病、冠心病或慢性肝病;缺乏稳定的工作与脆性骨折的高风险显著相关。结论/实践意义:本研究的结果提供了握力与老年人骨密度t评分、FRAX评分、合并症和工作状态等变量之间相关性的重要信息。值得注意的是,这些相关性在女性参与者中尤为明显。这些信息可用于促进脆性骨折高风险老年人的早期识别,从而及时制定预防性护理策略并提供有针对性的干预措施。
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引用次数: 0
The Relationship Between Perceived Staffing and Quality of Care: The Mediating Roles of Job Satisfaction and Work Engagement. 感知人员配备与护理质量的关系:工作满意度和工作投入的中介作用。
Pub Date : 2025-02-01 DOI: 10.1097/jnr.0000000000000661
Limin Wang, Xu Dong, Shaomei Shang

Background: Although work engagement and job satisfaction are two important indicators associated with care quality, their mediating effects on the relationship between perceived staffing and quality of care have not been adequately clarified.

Purpose: This study was designed to determine the mechanism by which nurses' perceived staffing influences quality of care by clarifying the mediating roles of job satisfaction and work engagement.

Methods: A cross-sectional questionnaire survey was implemented among 2,142 clinical nurses from 211 inpatient wards in 13 hospitals. Work engagement, job satisfaction, perceived staffing, and rated quality of care were measured.

Results: Most (89.7%) of the respondents rated quality of care as good or better, and 56.1% perceived staffing in the wards as adequate. The two main findings of this study are as follows: (a) Perceived staffing influenced quality of care via one direct and three indirect pathways, with the indirect effect greater than the direct effect (β direct = 0.09, β total indirect = 0.25), and (b) work engagement and job satisfaction were important mediators of the impact of staffing on quality of care.

Conclusion: Quality of care may be enhanced by improving the work engagement and satisfaction of nurses in their current job, suggesting an effective approach to alleviating the current nursing shortage.

背景:虽然工作投入和工作满意度是与护理质量相关的两个重要指标,但它们对感知人员配备与护理质量之间关系的中介作用尚未得到充分阐明。目的:本研究旨在通过阐明工作满意度和工作投入的中介作用,探讨护士感知人员配置对护理质量的影响机制。方法:对13所医院211个住院病房的2142名临床护士进行横断面问卷调查。测量了工作投入、工作满意度、感知人员配备和护理质量。结果:大多数(89.7%)的受访者认为护理质量良好或更好,56.1%的人认为病房的人员配备足够。本研究的两个主要发现是:(a)感知人员配备通过1条直接和3条间接途径影响护理质量,且间接效应大于直接效应(βdirect = 0.09, β总间接= 0.25);(b)工作投入和工作满意度是人员配备对护理质量影响的重要中介。结论:提高护理人员的工作投入度和工作满意度可以提高护理质量,是缓解护理人员短缺的有效途径。
{"title":"The Relationship Between Perceived Staffing and Quality of Care: The Mediating Roles of Job Satisfaction and Work Engagement.","authors":"Limin Wang, Xu Dong, Shaomei Shang","doi":"10.1097/jnr.0000000000000661","DOIUrl":"10.1097/jnr.0000000000000661","url":null,"abstract":"<p><strong>Background: </strong>Although work engagement and job satisfaction are two important indicators associated with care quality, their mediating effects on the relationship between perceived staffing and quality of care have not been adequately clarified.</p><p><strong>Purpose: </strong>This study was designed to determine the mechanism by which nurses' perceived staffing influences quality of care by clarifying the mediating roles of job satisfaction and work engagement.</p><p><strong>Methods: </strong>A cross-sectional questionnaire survey was implemented among 2,142 clinical nurses from 211 inpatient wards in 13 hospitals. Work engagement, job satisfaction, perceived staffing, and rated quality of care were measured.</p><p><strong>Results: </strong>Most (89.7%) of the respondents rated quality of care as good or better, and 56.1% perceived staffing in the wards as adequate. The two main findings of this study are as follows: (a) Perceived staffing influenced quality of care via one direct and three indirect pathways, with the indirect effect greater than the direct effect (β direct = 0.09, β total indirect = 0.25), and (b) work engagement and job satisfaction were important mediators of the impact of staffing on quality of care.</p><p><strong>Conclusion: </strong>Quality of care may be enhanced by improving the work engagement and satisfaction of nurses in their current job, suggesting an effective approach to alleviating the current nursing shortage.</p>","PeriodicalId":94242,"journal":{"name":"The journal of nursing research : JNR","volume":" ","pages":"e376"},"PeriodicalIF":0.0,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143019443","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dysmenorrhea, Premenstrual Syndrome, and Lifestyle Habits in Young University Students in Spain: A Cross-Sectional Study.
Pub Date : 2025-02-01 DOI: 10.1097/jnr.0000000000000657
Cristina Franco-Antonio, Esperanza Santano-Mogena, Sergio Cordovilla-Guardia

Background: Menstruation is a physiological process that may be accompanied by pain, headache, edema, emotional changes, and other symptoms, all of which affect quality of life. Although the results of some studies indicate lifestyle habits can affect the menstrual cycle and associated symptoms, few have investigated this issue, and even fewer have explored the impact of these symptoms on quality of life, in Spanish women.

Purpose: The objectives of this study were to determine the prevalence of dysmenorrhea and premenstrual syndrome (PMS) among students at a Spanish university, assess the impact of these conditions on quality of life, and analyze the relationship among lifestyle habits, dysmenorrhea, and PMS.

Methods: A cross-sectional study was carried out on 743 women enrolled at the University of Extremadura in the 2021-2022 academic year. Data related to the menstrual cycle, pain, and PMS-related physical and emotional symptoms were collected. Quality of life related to menstruation was evaluated using the CVM-22 scale. Lifestyle data collected included adherence to a Mediterranean diet (PREDIMED [Prevención con Dieta Mediterránea] questionnaire), level of physical activity (International Physical Activity Questionnaire), and alcohol and tobacco consumption (Alcohol, Smoking, and Substance Involvement Screening Test Version 3). Also, other clinical data were recorded.

Results: In terms of the sample, the median age was 21 (19-23) years, the prevalence of dysmenorrhea was 57.9%, 92.7% reported premenstrual physical symptoms, and 55.6% reported experiencing premenstrual emotional changes. Having a low level of adherence to a Mediterranean diet was associated with the presence of dysmenorrhea, with an adjusted odds ratio (aOR) of 1.47 (95% CI [1.06, 2.03]). Having a low level of physical activity was strongly associated with the presence of premenstrual physical symptoms, with an aOR of 5.89 (95% CI [1.71, 20.26]). Also, an association was found between tobacco use and premenstrual emotional changes, with an aOR of 2.02 (95% CI [1.25, 3.25]). Furthermore, dysmenorrhea and PMS were both associated with a low quality of life, with pain and emotional changes being the most significantly associated factors, with ORs of 16.25 (95% CI [10.36, 25.47]) and 26.73 (95% CI [16.46, 43.40]), respectively.

Conclusions: Similar to previous studies, the findings of this study indicate a high prevalence of dysmenorrhea and PMS among young university students in western Spain, with both of these symptoms impacting quality of life significantly and negatively. In addition, lifestyle habits, diet, physical activity, and tobacco use seem to influence the occurrence of these symptoms. Promoting lifestyle changes may be an effective strategy to reduce the incidence of dysmenorrhea and PMS and improve the quality of life of young women.

{"title":"Dysmenorrhea, Premenstrual Syndrome, and Lifestyle Habits in Young University Students in Spain: A Cross-Sectional Study.","authors":"Cristina Franco-Antonio, Esperanza Santano-Mogena, Sergio Cordovilla-Guardia","doi":"10.1097/jnr.0000000000000657","DOIUrl":"https://doi.org/10.1097/jnr.0000000000000657","url":null,"abstract":"<p><strong>Background: </strong>Menstruation is a physiological process that may be accompanied by pain, headache, edema, emotional changes, and other symptoms, all of which affect quality of life. Although the results of some studies indicate lifestyle habits can affect the menstrual cycle and associated symptoms, few have investigated this issue, and even fewer have explored the impact of these symptoms on quality of life, in Spanish women.</p><p><strong>Purpose: </strong>The objectives of this study were to determine the prevalence of dysmenorrhea and premenstrual syndrome (PMS) among students at a Spanish university, assess the impact of these conditions on quality of life, and analyze the relationship among lifestyle habits, dysmenorrhea, and PMS.</p><p><strong>Methods: </strong>A cross-sectional study was carried out on 743 women enrolled at the University of Extremadura in the 2021-2022 academic year. Data related to the menstrual cycle, pain, and PMS-related physical and emotional symptoms were collected. Quality of life related to menstruation was evaluated using the CVM-22 scale. Lifestyle data collected included adherence to a Mediterranean diet (PREDIMED [Prevención con Dieta Mediterránea] questionnaire), level of physical activity (International Physical Activity Questionnaire), and alcohol and tobacco consumption (Alcohol, Smoking, and Substance Involvement Screening Test Version 3). Also, other clinical data were recorded.</p><p><strong>Results: </strong>In terms of the sample, the median age was 21 (19-23) years, the prevalence of dysmenorrhea was 57.9%, 92.7% reported premenstrual physical symptoms, and 55.6% reported experiencing premenstrual emotional changes. Having a low level of adherence to a Mediterranean diet was associated with the presence of dysmenorrhea, with an adjusted odds ratio (aOR) of 1.47 (95% CI [1.06, 2.03]). Having a low level of physical activity was strongly associated with the presence of premenstrual physical symptoms, with an aOR of 5.89 (95% CI [1.71, 20.26]). Also, an association was found between tobacco use and premenstrual emotional changes, with an aOR of 2.02 (95% CI [1.25, 3.25]). Furthermore, dysmenorrhea and PMS were both associated with a low quality of life, with pain and emotional changes being the most significantly associated factors, with ORs of 16.25 (95% CI [10.36, 25.47]) and 26.73 (95% CI [16.46, 43.40]), respectively.</p><p><strong>Conclusions: </strong>Similar to previous studies, the findings of this study indicate a high prevalence of dysmenorrhea and PMS among young university students in western Spain, with both of these symptoms impacting quality of life significantly and negatively. In addition, lifestyle habits, diet, physical activity, and tobacco use seem to influence the occurrence of these symptoms. Promoting lifestyle changes may be an effective strategy to reduce the incidence of dysmenorrhea and PMS and improve the quality of life of young women.</p>","PeriodicalId":94242,"journal":{"name":"The journal of nursing research : JNR","volume":"33 1","pages":"e374"},"PeriodicalIF":0.0,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Phenomenological Description of the Experiences of Teenagers With Critically Ill Parents.
Pub Date : 2025-02-01 DOI: 10.1097/jnr.0000000000000659
Maya Barr, Aishwarya Thakur, Varun K Thvar, David Dupee, Nina Vasan

Background: Critical illness not only threatens the life of the patient but also may profoundly impact the lives of their loved ones. For teenagers with a critically ill parent, these impacts may have significant, developmentally impactful effects. A descriptive understanding of these effects may advance scholarly understanding of the challenges these teenagers face.

Purpose: In this study, we sought to understand this overlooked population, i.e., teenagers with a critically ill parent, using a descriptive analysis of their experiences.

Methods: Individual and group interviews were conducted with the participants (n = 9). Interviewers presented standardized semistructured interview questions to all of the participants. The questions explored situational, emotional, relational, and dynamic phenomena related to the experience of having a critically ill parent.

Results: Themes describing the participants' lived experiences related to having a parent with a critical illness were examined using a three coding framework. Four themes emerged, including parental health interference on teenagers-fallout, worsening, and interference; emotional experience and how emotions were processed-emotions, cognitive strategies, and behavioral strategies; relationships with others-sharing feelings, company, and relationships; and information and secrecy-learning, secrecy, and history.

Conclusions/implications for practice: All of the teenagers in this study were found to suffer from both situational and emotional interference. Parentification, use of selective distraction as an emotion regulation skill, and reliance on support from others were also observed. These results shed light on the overall experience of teenagers who have a critically ill parent. The fallout effects of a parent's health can encompass situational, logistical, emotional, and relationship aspects. Importantly, attention must be paid to how teenagers cope with the emotions experienced during a parent's critical illness. This framework may inform how to more effectively support teenagers through strategies such as providing peer support opportunities.

{"title":"Phenomenological Description of the Experiences of Teenagers With Critically Ill Parents.","authors":"Maya Barr, Aishwarya Thakur, Varun K Thvar, David Dupee, Nina Vasan","doi":"10.1097/jnr.0000000000000659","DOIUrl":"https://doi.org/10.1097/jnr.0000000000000659","url":null,"abstract":"<p><strong>Background: </strong>Critical illness not only threatens the life of the patient but also may profoundly impact the lives of their loved ones. For teenagers with a critically ill parent, these impacts may have significant, developmentally impactful effects. A descriptive understanding of these effects may advance scholarly understanding of the challenges these teenagers face.</p><p><strong>Purpose: </strong>In this study, we sought to understand this overlooked population, i.e., teenagers with a critically ill parent, using a descriptive analysis of their experiences.</p><p><strong>Methods: </strong>Individual and group interviews were conducted with the participants (n = 9). Interviewers presented standardized semistructured interview questions to all of the participants. The questions explored situational, emotional, relational, and dynamic phenomena related to the experience of having a critically ill parent.</p><p><strong>Results: </strong>Themes describing the participants' lived experiences related to having a parent with a critical illness were examined using a three coding framework. Four themes emerged, including parental health interference on teenagers-fallout, worsening, and interference; emotional experience and how emotions were processed-emotions, cognitive strategies, and behavioral strategies; relationships with others-sharing feelings, company, and relationships; and information and secrecy-learning, secrecy, and history.</p><p><strong>Conclusions/implications for practice: </strong>All of the teenagers in this study were found to suffer from both situational and emotional interference. Parentification, use of selective distraction as an emotion regulation skill, and reliance on support from others were also observed. These results shed light on the overall experience of teenagers who have a critically ill parent. The fallout effects of a parent's health can encompass situational, logistical, emotional, and relationship aspects. Importantly, attention must be paid to how teenagers cope with the emotions experienced during a parent's critical illness. This framework may inform how to more effectively support teenagers through strategies such as providing peer support opportunities.</p>","PeriodicalId":94242,"journal":{"name":"The journal of nursing research : JNR","volume":"33 1","pages":"e370"},"PeriodicalIF":0.0,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Motivation in Rare Disease Self-Care: A Phenomenological Study of Pediatric Patients With Spinal Muscular Atrophy and Their Caregivers. 罕见病自我照顾的动机:小儿脊髓性肌萎缩症患者及其照顾者的现象学研究。
Pub Date : 2024-12-10 DOI: 10.1097/jnr.0000000000000652
Bao-Huan Yang, Chia-Ying Chung, Yuh-Shiow Li

Background: Spinal muscular atrophy can cause progressive physical disability and difficulties with self-care. Self-care motivation can enhance patient persistence in self-care behavior and maintain health.

Purpose: This study was designed to explore and describe motivations for self-care among school-aged children and adolescents with spinal muscular atrophy and the perspectives of their primary caregivers.

Methods: Husserl's phenomenological research method was adopted, and data were collected using in-depth, face-to-face, open-ended interviews with patients and their primary caregivers aged 8-18 years with spinal muscular atrophy. A total of eight patient-caregiver dyads were recruited via purposeful sampling from a hospital clinic and through the Muscular Dystrophy Association of Taiwan. The interviews were conducted in the participants' homes and transcribed verbatim. Data were then thematically analyzed using the Giorgi analysis method.

Results: Six themes were identified from the patients' perspective: (a) adapting to dietary restrictions, (b) proactive measures for physical safety, c3) pursuing social connection and peer support, (d) navigating emotional well-being, (e) seeking independence, and (f) achieving success motivation. From the caregivers' perspective, the motivations for patient self-care were identified as follows: (a) ensuring safe and enjoyable eating for patients, (b) facilitating patient autonomy in health risk management, (c) facilitating patient engagement with peers, (d) balancing support with encouraging independence, (e) assessing and balancing independence and safety in patient caregiving, and (f) admiring patients' resilience and self-care innovation.

Conclusions/implications for practice: This study highlights the vital roles of caregivers in adapting to the dynamic self-care motivations of children and adolescents and of healthcare professionals in facilitating communication and care strategies. Personalized approaches are essential for enhancing autonomy and well-being in pediatric patients.

背景:脊髓性肌萎缩可导致进行性身体残疾和生活自理困难。自我护理动机可以增强患者对自我护理行为的坚持,维持健康。目的:本研究旨在探讨和描述学龄儿童和青少年脊髓性肌萎缩症患者的自我照顾动机及其主要照顾者的观点。方法:采用胡塞尔现象学研究方法,对8 ~ 18岁脊髓性肌萎缩症患者及其主要照顾者进行深度、面对面、开放式访谈。通过有目的的抽样,从一家医院诊所和台湾肌肉萎缩症协会共招募了8对患者-护理者。访谈在参与者家中进行,并逐字记录。然后使用Giorgi分析法对数据进行主题分析。结果:从患者的角度确定了六个主题:(a)适应饮食限制,(b)积极的身体安全措施,c3)追求社会联系和同伴支持,(d)导航情感健康,(e)寻求独立,(f)获得成功动机。从护理人员的角度来看,患者自我护理的动机确定如下:(a)确保患者安全愉快地进食,(b)促进患者在健康风险管理方面的自主,(c)促进患者与同伴的参与,(d)平衡支持与鼓励独立性,(e)评估和平衡患者护理的独立性和安全性,以及(f)欣赏患者的适应能力和自我护理创新。结论/对实践的启示:本研究强调了照顾者在适应儿童和青少年动态自我照顾动机方面的重要作用,以及卫生保健专业人员在促进沟通和护理策略方面的重要作用。个性化方法对于提高儿科患者的自主性和幸福感至关重要。
{"title":"Motivation in Rare Disease Self-Care: A Phenomenological Study of Pediatric Patients With Spinal Muscular Atrophy and Their Caregivers.","authors":"Bao-Huan Yang, Chia-Ying Chung, Yuh-Shiow Li","doi":"10.1097/jnr.0000000000000652","DOIUrl":"https://doi.org/10.1097/jnr.0000000000000652","url":null,"abstract":"<p><strong>Background: </strong>Spinal muscular atrophy can cause progressive physical disability and difficulties with self-care. Self-care motivation can enhance patient persistence in self-care behavior and maintain health.</p><p><strong>Purpose: </strong>This study was designed to explore and describe motivations for self-care among school-aged children and adolescents with spinal muscular atrophy and the perspectives of their primary caregivers.</p><p><strong>Methods: </strong>Husserl's phenomenological research method was adopted, and data were collected using in-depth, face-to-face, open-ended interviews with patients and their primary caregivers aged 8-18 years with spinal muscular atrophy. A total of eight patient-caregiver dyads were recruited via purposeful sampling from a hospital clinic and through the Muscular Dystrophy Association of Taiwan. The interviews were conducted in the participants' homes and transcribed verbatim. Data were then thematically analyzed using the Giorgi analysis method.</p><p><strong>Results: </strong>Six themes were identified from the patients' perspective: (a) adapting to dietary restrictions, (b) proactive measures for physical safety, c3) pursuing social connection and peer support, (d) navigating emotional well-being, (e) seeking independence, and (f) achieving success motivation. From the caregivers' perspective, the motivations for patient self-care were identified as follows: (a) ensuring safe and enjoyable eating for patients, (b) facilitating patient autonomy in health risk management, (c) facilitating patient engagement with peers, (d) balancing support with encouraging independence, (e) assessing and balancing independence and safety in patient caregiving, and (f) admiring patients' resilience and self-care innovation.</p><p><strong>Conclusions/implications for practice: </strong>This study highlights the vital roles of caregivers in adapting to the dynamic self-care motivations of children and adolescents and of healthcare professionals in facilitating communication and care strategies. Personalized approaches are essential for enhancing autonomy and well-being in pediatric patients.</p>","PeriodicalId":94242,"journal":{"name":"The journal of nursing research : JNR","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-12-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142804176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Depression and Quality of Life in Patients With Chronic Kidney Disease: A Mediation Analysis of Handgrip Strength and Demoralization. 慢性肾病患者的抑郁与生活质量:手握力与去士气的中介分析
Pub Date : 2024-12-01 DOI: 10.1097/jnr.0000000000000645
Szu-Ying Lee, Yu-Wei Fang, Chieh-Yu Liu

Background: Chronic kidney disease (CKD) is a progressive disease impacting the physical function and mental health of sufferers. Depression is known to negatively impact quality of life, whereas handgrip strength and demoralization are important factors affecting physical and mental health. Lower handgrip strength has been associated with sarcopenia and higher risk of hospitalization in patients and higher workloads for nurse caregivers. Few studies have investigated the complex relations among these factors in patients with CKD.

Purpose: This study was designed to investigate the mediating effects of grip strength and demoralization on the relationship between depression and quality of life in patients with CKD.

Methods: Two hundred fifty patients with CKD comprised the study sample. The hypotheses were tested using the PROCESS macro.

Results: Depression was found to be negatively associated with handgrip strength and quality of life but positively associated with demoralization. The results indicate that both handgrip strength and demoralization mediate the association between depression and quality of life. Moreover, the results of multiple mediation model analysis showed handgrip strength and demoralization both play important roles in the link between depression and quality of life.

Conclusions: The results of this study indicate that handgrip strength and demoralization mediate the relationship between depression and quality of life in patients with CKD. Thus, increasing handgrip strength and decreasing demoralization levels may mitigate the impact of depression on quality of life. Therefore, nurses should better appreciate the importance of handgrip strength for patients with CKD and evaluate handgrip strength. Nurses should also develop physical and mental interventions to increase handgrip strength and decrease demoralization.

背景:慢性肾脏病(CKD)是一种渐进性疾病,会影响患者的身体功能和心理健康。众所周知,抑郁症会对生活质量产生负面影响,而手握强度和意志消沉则是影响身心健康的重要因素。手握力较低与肌肉疏松症、患者住院风险较高和护理人员工作量较大有关。目的:本研究旨在探讨握力和士气对慢性肾脏病患者抑郁和生活质量之间关系的中介作用:研究样本由 250 名慢性肾脏病患者组成。方法:250 名慢性肾脏病患者组成研究样本,使用 PROCESS 宏检验假设:结果:抑郁与手握力和生活质量呈负相关,但与意志消沉呈正相关。结果表明,手握力和士气对抑郁与生活质量之间的关联具有中介作用。此外,多重中介模型分析的结果表明,手握力和士气在抑郁与生活质量之间的联系中都起着重要作用:本研究结果表明,握力和士气对慢性肾脏病患者的抑郁与生活质量之间的关系具有中介作用。因此,增加握力和降低士气水平可减轻抑郁对生活质量的影响。因此,护士应更好地了解握力对慢性肾脏病患者的重要性,并对握力进行评估。护士还应该制定身体和心理干预措施,以增加手握力和减少意志消沉。
{"title":"Depression and Quality of Life in Patients With Chronic Kidney Disease: A Mediation Analysis of Handgrip Strength and Demoralization.","authors":"Szu-Ying Lee, Yu-Wei Fang, Chieh-Yu Liu","doi":"10.1097/jnr.0000000000000645","DOIUrl":"10.1097/jnr.0000000000000645","url":null,"abstract":"<p><strong>Background: </strong>Chronic kidney disease (CKD) is a progressive disease impacting the physical function and mental health of sufferers. Depression is known to negatively impact quality of life, whereas handgrip strength and demoralization are important factors affecting physical and mental health. Lower handgrip strength has been associated with sarcopenia and higher risk of hospitalization in patients and higher workloads for nurse caregivers. Few studies have investigated the complex relations among these factors in patients with CKD.</p><p><strong>Purpose: </strong>This study was designed to investigate the mediating effects of grip strength and demoralization on the relationship between depression and quality of life in patients with CKD.</p><p><strong>Methods: </strong>Two hundred fifty patients with CKD comprised the study sample. The hypotheses were tested using the PROCESS macro.</p><p><strong>Results: </strong>Depression was found to be negatively associated with handgrip strength and quality of life but positively associated with demoralization. The results indicate that both handgrip strength and demoralization mediate the association between depression and quality of life. Moreover, the results of multiple mediation model analysis showed handgrip strength and demoralization both play important roles in the link between depression and quality of life.</p><p><strong>Conclusions: </strong>The results of this study indicate that handgrip strength and demoralization mediate the relationship between depression and quality of life in patients with CKD. Thus, increasing handgrip strength and decreasing demoralization levels may mitigate the impact of depression on quality of life. Therefore, nurses should better appreciate the importance of handgrip strength for patients with CKD and evaluate handgrip strength. Nurses should also develop physical and mental interventions to increase handgrip strength and decrease demoralization.</p>","PeriodicalId":94242,"journal":{"name":"The journal of nursing research : JNR","volume":" ","pages":"e361"},"PeriodicalIF":0.0,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142678150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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The journal of nursing research : JNR
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