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The pandemic and the ethical dilemma of limited resources: Who to treat? 大流行与资源有限的伦理困境:治疗谁?
Pub Date : 2020-07-01 DOI: 10.1016/j.bioet.2020.09.003
Laura Palazzani

The different ethical perspectives on the issue of distribution of scarce resources are discussed in this article. While the problem of distribution of resources does not exist in an ideal situation with sufficient availability of resources for everyone, in fact, in the context of a pandemic the distribution of scarce resources is revealed in a dramatic and urgent way. As regards this issue, there is agreement on the fact that distribution should be “fair”, according to the shared meaning of justice as “not to harm others” and to “give each his own”. However, within the pluralist discussion, there are different ways of conceiving justice on a theoretical level and applying it at a concrete level. This article examines classical bioethical theories that are reappearing in the discussion today – with different levels of intensity, or in different formulations – and this, in the light of the most important international and national ethical guidelines and recommendations on the distribution of resources during the COVID-19 pandemic.

本文讨论了稀缺资源分配问题的不同伦理观点。虽然资源分配的问题并不存在于每个人都有足够资源的理想情况下,但事实上,在大流行病的情况下,稀缺资源的分配以一种戏剧性和紧迫的方式暴露出来。关于这个问题,大家一致认为分配应该是“公平的”,按照“不害人”和“各尽所能”这一正义的共同含义。然而,在多元主义的讨论中,有不同的方式在理论层面上构想正义,并在具体层面上应用正义。本文根据COVID-19大流行期间有关资源分配的最重要的国际和国家伦理准则和建议,考察了今天在讨论中重新出现的经典生物伦理理论(其强度不同,表述也不同)。
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引用次数: 2
Enseñanzas de la pandemia COVID-19. El reencuentro con la vulnerabilidad humana COVID-19大流行的教训。与人类脆弱的重逢
Pub Date : 2020-07-01 DOI: 10.1016/j.bioet.2020.09.001
M. de la Luz Casas Martínez

The pandemic caused by the new virus COVID-19 has shaken humanity due to its serious repercussions in many fields, not only in health, but also at an economic, political, and social level. From the ethical perspective, crises always lead to reflection, and in this case, the re-encounter with an aspect of the human condition, vulnerability, has been evident. Today's extreme hedonistic and autonomous society has tried to forget about this aspect, which makes it uncomfortable, but which cannot be ignored with this terrible crisis. Vulnerability also has an important ethical aspect, and therefore its recognition and the will to minimise its effects is necessary. The present reflection is based on the thoughts of Martha Nussbaum, who provides a joint vision on the consideration of vulnerability and justice; a very necessary approach in today's society.

新型病毒COVID-19引起的大流行不仅在卫生领域,而且在经济、政治和社会层面造成了严重影响,震惊了人类。从伦理的角度来看,危机总是导致反思,在这种情况下,重新遇到人类状况的一个方面,脆弱性,是显而易见的。今天的极端享乐主义和自治社会试图忘记这方面,这使它不舒服,但不能忽视这个可怕的危机。脆弱性也有一个重要的伦理方面,因此认识到它并将其影响降到最低是必要的。目前的反思是基于玛莎·努斯鲍姆的思想,他提供了对脆弱性和正义的考虑的共同愿景;这在当今社会是非常必要的。
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引用次数: 3
Patients with “dates”: Wrong for doctors but acceptable for drug companies? 有“日期”的病人:对医生来说是错误的,但对制药公司来说是可以接受的?
Pub Date : 2020-01-01 DOI: 10.1016/j.bioet.2019.07.002
Jean-Christophe Bélisle-Pipon

Direct interaction between pharmaceutical representatives and consumers is an issue that is still under-researched. In fact, the underlying ethical issues are completely absent from the radar of regulators. However, this type of communication without a mediating interface (such as a TV broadcaster or an electronic platform) or an intermediary (healthcare professionals) provides a space where consumers are highly exposed to industry influences. While the putative aim of those activities is to educate patients about their health condition, the management of their symptoms and the available treatments, the industry is seeking to replace the traditional role of health professionals. A case study, involving face-to-face interactions, allows a better understanding and provides clarifications to show that it is not the industry’s role to provide health information to consumers. Mechanisms are suggested to support government agencies in ethically regulating this practice.

医药代表和消费者之间的直接互动是一个尚未得到充分研究的问题。事实上,潜在的道德问题完全没有受到监管机构的关注。然而,这种没有中介接口(如电视广播公司或电子平台)或中介(医疗保健专业人员)的通信类型为消费者提供了高度暴露于行业影响的空间。虽然这些活动的假定目的是教育病人了解他们的健康状况、症状的管理和现有的治疗方法,但该行业正在寻求取代保健专业人员的传统作用。一个涉及面对面互动的案例研究,可以更好地理解并提供澄清,以表明向消费者提供健康信息不是行业的职责。建议建立机制,支持政府机构对这一做法进行道德规范。
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引用次数: 2
Un enfoque filosófico de la vejez y algunas consideraciones bioéticas 老年的哲学方法和一些生物伦理考虑
Pub Date : 2020-01-01 DOI: 10.1016/j.bioet.2020.03.001
Lourdes Velázquez

The prolongation of human life is one of the characteristic features of our technological era and establishes a scenario for philosophical questions, some of which begin to find answers in the field of Bioethics. One of the most important is the so-called institutionalisation in prolonged care, or confinement, and the question is whether this is a bioethically correct option. A positive assessment of old age is part of the very roots of Western culture, however in technologically advanced societies it begins to be accompanied by negative nuances. Far from giving a positive value to old age, a new unethical myth has surfaced: that of the «young», «productive» man. Society often deprives the elderly of almost all obligations, relegating them when their work is no longer desired. The bioethical approach to the geriatric patient grants the respect owed to them as human beings instead of pity, compassion or charity. Something similar can be said of hospitalisation, which has been shown to have negative effects on the functional capacity of the elderly. In particular, this practice increases one of the most negative factors in the life of the elderly, loneliness. To combat this loneliness there are some possibilities, the first of which is to put the elderly person in contact with other people. In addition, there are new tools for combatting the loneliness of the elderly: laughter therapy and social robotics. A brief description of these is presented, as a well a discussion on their adoption.

人类寿命的延长是我们这个技术时代的特征之一,并为哲学问题建立了一个场景,其中一些问题开始在生命伦理学领域找到答案。其中最重要的是所谓的长期护理或监禁的制度化,问题是这是否是一个生物伦理上正确的选择。对老年的积极评价是西方文化根源的一部分,然而在科技发达的社会中,它开始伴随着消极的细微差别。一个新的不道德的神话浮出水面:“年轻”、“有生产力”的人,而不是给老年一个积极的价值。社会经常剥夺老年人几乎所有的义务,当他们的工作不再被需要时,他们就被降级。对老年病人的生物伦理方法给予他们作为人应有的尊重,而不是怜悯、同情或慈善。住院治疗也有类似的情况,这已被证明对老年人的功能能力有负面影响。特别是,这种做法增加了老年人生活中最负面的因素之一——孤独。为了对抗这种孤独,有一些可能性,其中第一个是让老人与其他人接触。此外,还有一些对抗老年人孤独的新工具:笑声疗法和社交机器人。本文对这些建议作了简要说明,并讨论了采用这些建议的问题。
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引用次数: 1
Bioética: imágenes de piezas quirúrgicas en redes sociales. Un comentario a partir de una encuesta informal 生物伦理学:社交网络上手术部位的图片。来自非正式调查的评论
Pub Date : 2020-01-01 DOI: 10.1016/j.bioet.2019.12.003
J.E. Gómez-Álvarez, José Enrique Gómez-Álvarez, Nora Hilda Chávez-Hernández

The first section of the article explores human dignity, as well as the human body as a manifestation of that dignity. Examples of how, using legislation, limits and regulations are imposed on the use of body parts. In the second section of the article, using a small survey among different professionals about this topic, an analysis and discussion is presented on the ethical implications of exposing body parts. It is concluded that body parts should only be presented, for educational purposes and social awareness campaigns.

文章的第一部分探讨了人的尊严,以及作为这种尊严表现形式的人体。举例说明如何通过立法、限制和规定来限制身体部位的使用。在文章的第二部分,利用对不同专业人士关于这一主题的小型调查,分析和讨论了暴露身体部位的伦理含义。得出的结论是,身体部位只应用于教育目的和社会宣传活动。
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引用次数: 0
A systemic approach to bioethics 生物伦理学的系统方法
Pub Date : 2020-01-01 DOI: 10.1016/j.bioet.2019.12.001
Evandro Agazzi
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引用次数: 1
Una alarma nada excepcional: CRISPR/Cas9 y la edición de la línea germinal en seres humanos 一个不寻常的警报:CRISPR/Cas9和人类生殖系编辑
Pub Date : 2020-01-01 DOI: 10.1016/j.bioet.2019.12.002
Nahuel Pallitto, Guillermo Folguera

In this article, an analysis is presented on the birth of the first human beings subjected to an embryonic genetic modification using CRISPR/Cas9 technology from a perspective that considers the conditions that has led to its emergence. As opposed to the approaches presented so far by bioethics, an alternative account is presented that does not reduce the event to an act of individual disobedience, but rather conceives it as the expected result of certain epistemic, institutional, political, and economic dimensions of technoscience. Moreover, thoughts are presented on the role assumed by bioethics with regards to CRISPR/Cas9 and the response it has provided to its application in human embryos. It is concluded by suggesting that the model of bioethics based on heteronomy and the external control of science and technology is neither significant nor effective in the indicated context, with an alternative systemic approach being provided.

在这篇文章中,从考虑导致其出现的条件的角度,分析了第一个使用CRISPR/Cas9技术进行胚胎基因改造的人类的诞生。与迄今为止由生命伦理学提出的方法相反,提出了另一种解释,它没有将事件简化为个人不服从的行为,而是将其视为技术科学的某些认知、制度、政治和经济维度的预期结果。此外,还对生物伦理学在CRISPR/Cas9方面所扮演的角色及其在人类胚胎中的应用所提供的反应进行了思考。结论认为,基于他律和科学技术外部控制的生命伦理模式在上述背景下既不重要也不有效,并提出了一种替代的系统方法。
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引用次数: 1
A complete treatise on rational suicide 关于理性自杀的完整论述
Pub Date : 2019-07-01 DOI: 10.1016/j.bioet.2019.02.005
Al Giwa

It was believed for a long time that people brought to the attention of healthcare and/or legal authorities with suicidality were automatically deemed to lack medical decision-making capacity or competence. This is despite many of these patients possessing the “mental ability to make a rational decision, which includes the ability to perceive, to appreciate all relevant facts and to reach a rational judgment upon such facts”. Several ethical and psychiatric specialists and defenders of patient rights have criticized this traditional paternalistic approach for failing to respect the right of a competent, rational person to self-determination and autonomy.

As society increasingly recognizes patients’ rights to refuse treatment, their autonomy to make decisions and the right to self-determination, the bioethical, medical and legal community must strive to identify those individuals who are not just impulsively acting and/or under the influence of factors that may hinder their capacity. As moral people who respect competent individuals who make rational decisions, regardless of whether we agree with them or not, we have a duty to respect their right to self-determination and suicide.

长期以来,人们认为,向保健和/或法律当局提出自杀倾向的人自动被视为缺乏医疗决策能力或能力。尽管这些患者中有许多人拥有“做出理性决定的精神能力,其中包括感知、欣赏所有相关事实并对这些事实做出理性判断的能力”。一些伦理和精神病学专家以及病人权利的捍卫者批评了这种传统的家长式做法,认为它没有尊重一个有能力、理性的人的自决和自主权。随着社会日益认识到病人拒绝治疗的权利、他们自主作出决定的权利和自决权,生物伦理、医学和法律界必须努力查明那些不是冲动行事和/或受到可能妨碍其能力的因素影响的个人。作为有道德的人,我们尊重那些做出理性决定的有能力的人,无论我们是否同意他们,我们都有责任尊重他们自决和自杀的权利。
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引用次数: 0
Los bancos de células madre de cordón umbilical y su necesidad de regulación en México 墨西哥脐带血干细胞库及其监管需求
Pub Date : 2019-07-01 DOI: 10.1016/j.bioet.2017.12.001
Ignacio Mora-Magaña , Arantxa Quiroz , Myriam Marlene Altamirano Bustamante

The preservation of cells, whether living or not, along with their sociodemographic and clinical data is common. The umbilical cord blood banks are a clear example of personalised medicine. Bioethics problems in biobanks are just emerging. A systematic review of the literature was carried out, searching in more than 4 databases, using methodology of the Cochrane Collaboration, with a total of 98 papers being found. These were divided into four subjects: bioethics, informed consent, legal and regulatory aspects, and health care policies. freedom, confidentiality, respect and dignity of the person, formed a relevant cluster. In this analysis an emergent theme appeared: the ownership, which now acquires its true significance. Informed Consent involves the respect by the health professional on the freedom of the patient, whether child or adult, capable or not. In Mexico there is no law, regulation or guidelines. The regulation of cord blood banks is urgently required in Mexico.

保存细胞,无论是活的还是死的,连同它们的社会人口学和临床数据是很常见的。脐带血银行是个性化医疗的一个明显例子。生物银行的生物伦理问题才刚刚出现。采用Cochrane Collaboration的方法,对4个以上的数据库进行了系统的文献综述,共发现了98篇论文。这些研究分为四个主题:生物伦理、知情同意、法律和监管方面以及卫生保健政策。自由、保密、尊重和人的尊严构成了相关的一组。在这一分析中,出现了一个新兴的主题:所有权,它现在获得了真正的意义。知情同意涉及卫生专业人员对病人的自由的尊重,无论病人是儿童还是成人,是否有能力。在墨西哥,没有法律、法规或指导方针。墨西哥迫切需要对脐带血银行进行监管。
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引用次数: 0
Neuroética en México: Reflexiones médicas, legales y socioculturales 墨西哥神经伦理学:医学、法律和社会文化反思
Pub Date : 2019-07-01 DOI: 10.1016/j.bioet.2019.05.001
Karen Herrera-Ferrá , Garbiñe Saruwatari Zavala , Humberto Nicolini Sánchez , Héctor Pinedo Rivas

Current neuroscience and neurotechnology have led to an increased insight in putative mechanisms involved in emotions, behaviours, thoughts, and in moral decision-making. Concerns arise on the possible misuse and/or overuse of these tools, as well as brain manipulation. Neuroethics is the discipline dedicated to study these issues. Neuroethics in Mexico is in a nascent stage, and this prompts caveats due to issues that have not been reported in the international literature, such as medical factors (e.g. pre-Hispanic medicine), legal factors (e.g. ambiguity in neuroscientific and neurotechnological frameworks), and socio-cultural factors (e.g. ethnography and the mix of western and pre-Hispanic philosophies). Hence reflection is needed in order to (a) focus on the best interests of the patients within a Mexican culture context, and (b) foster a global neuroethics, taking into account neurocognitive cultural diversity within a framework of ethnographic respect.

当前的神经科学和神经技术已经使人们对涉及情感、行为、思想和道德决策的假定机制有了更深入的了解。人们担心这些工具可能被误用和/或过度使用,以及大脑操纵。神经伦理学是专门研究这些问题的学科。墨西哥的神经伦理学尚处于起步阶段,由于国际文献中未报道的问题,例如医学因素(例如前西班牙医学)、法律因素(例如神经科学和神经技术框架的模糊性)和社会文化因素(例如人种学以及西方和前西班牙哲学的混合),这就提出了警告。因此,需要进行反思,以便(a)在墨西哥文化背景下关注患者的最佳利益,以及(b)在民族志尊重的框架内考虑到神经认知文化多样性,促进全球神经伦理学。
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引用次数: 5
期刊
Bioethics Update
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