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The role of information and choice in patient-centred care in diabetes: a hierarchy of patient-centredness 信息和选择在糖尿病患者中心护理中的作用:以患者为中心的层次结构
Pub Date : 2013-07-15 DOI: 10.1002/edn.228
Koula Asimakopoulou PhD, Sasha Scambler PhD

This paper reviews some popular models of patient-centred care and acknowledges work that has questioned the measurement and effectiveness of patient-centredness in practice. In an attempt to enhance testing the concept practically, we propose a practical hierarchy of patient-centredness that we hope will aid the practical application of patient-centred care in clinical practice. The proposed hierarchy is illustrated through a practical example and the various stages inherent in it are described.

This paper concludes with a call that this theory-driven hierarchy of patient-centredness be tested out in practice with the view of confirming or revising it where appropriate so that it might serve as a useful clinical tool in future. Copyright © 2013 FEND. Published by John Wiley & Sons, Ltd.

本文回顾了一些流行的以患者为中心的护理模式,并承认在实践中对以患者为中心的测量和有效性提出质疑的工作。为了在实践中加强对这一概念的测试,我们提出了一个实用的以患者为中心的层次结构,我们希望这将有助于以患者为中心的护理在临床实践中的实际应用。通过一个实例说明了所提出的层次结构,并描述了其固有的各个阶段。本文最后呼吁在实践中对这种以患者为中心的理论驱动的层次进行测试,以便在适当的时候确认或修改它,以便它可以作为将来有用的临床工具。版权所有©2013中国农业科学研究院。John Wiley &出版;儿子,有限公司
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引用次数: 14
Diabetes nursing research: 6th Nordic conference 糖尿病护理研究:第六届北欧会议
Pub Date : 2013-07-15 DOI: 10.1002/edn.230
Associate Professor Marit Graue, Associate Professor Åsa Hörnsten, Associate Professor Bjørg Karlsen, Professor Árún K Sigurdardottir
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引用次数: 0
Diabetes research reported by nurses in Nordic countries 北欧国家护士报告的糖尿病研究
Pub Date : 2013-07-15 DOI: 10.1002/edn.226
M Graue PhD, RN, MM Iversen PhD, RN, ÁK Sigurdardottir PhD, RN, V Zoffmann PhD, MPH, RN, B Smide PhD, RN, J Leksell PhD, RN

New knowledge from research studies is important as a foundation for high-quality care in practice as well as crucial to further stimulate research in the future.

The aims of this study were to determine the total number of peer-reviewed articles on diabetes research reported by nurses in four Nordic countries (Denmark, Iceland, Norway and Sweden) from 1979–2009, and to identify the time periods in which they had been published, different study designs and the number of publications related to nurse authors.

We performed an electronic search for potentially relevant scientific articles between 1 January 1979 and 31 December 2009 using the MEDLINE, Medline in process, EMBASE, CINAHL, PsycINFO and Cochrane databases. The studies focused either on the diabetes population or on diabetes health care professionals.

We included 164 scientific articles; 132 resulting from electronic search and 32 from manual search. They were published in 63 different scientific journals, with 52 (32%) published in nursing journals and typically by authors with university degrees. Only one in four authors had published five or more articles. The majority of the studies originated from a single country, with 23 (14%) including co-authors from another country.

It was concluded that research in diabetes reported by nurses has increased considerably after the year 2000. Further action is needed to build stronger national groups of researchers. International collaborative research networks facilitate funding opportunities and contribute to further development of professional research competence. Copyright © 2013 FEND. Published by John Wiley & Sons, Ltd.

来自研究的新知识作为实践中高质量护理的基础非常重要,对于进一步刺激未来的研究也至关重要。本研究的目的是确定1979-2009年四个北欧国家(丹麦、冰岛、挪威和瑞典)护士报告的关于糖尿病研究的同行评议文章的总数,并确定这些文章发表的时间周期、不同的研究设计和与护士作者相关的出版物数量。我们使用MEDLINE、MEDLINE in process、EMBASE、CINAHL、PsycINFO和Cochrane数据库对1979年1月1日至2009年12月31日期间可能相关的科学文章进行了电子检索。这些研究要么集中于糖尿病人群,要么集中于糖尿病保健专业人员。我们纳入了164篇科学论文;132个来自电子搜索,32个来自人工搜索。它们发表在63种不同的科学期刊上,其中52种(32%)发表在护理期刊上,作者通常拥有大学学位。只有四分之一的作者发表了五篇或更多的文章。大多数研究来自一个国家,其中23项(14%)包括来自另一个国家的共同作者。得出的结论是,护士报告的糖尿病研究在2000年之后显著增加。需要采取进一步的行动来建立更强大的国家研究人员群体。国际合作研究网络促进了资助机会,并有助于进一步发展专业研究能力。版权所有©2013中国农业科学研究院。John Wiley &出版;儿子,有限公司
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引用次数: 10
A pilot study to determine levels of diabetes knowledge among health care workers in nursing homes 一项初步研究,旨在确定疗养院卫生保健工作者的糖尿病知识水平
Pub Date : 2013-02-27 DOI: 10.1002/edn.218
Bibbi Smide RN, PhD, Ulla Nygren RN, MSc

Health care workers employed in nursing homes need sufficient diabetes knowledge to make adequate decisions in order to optimise diabetes management and minimise complications which may arise from poor diabetes control.

The aim of this study was to determine levels of diabetes knowledge among health care workers when presented with a case description regarding an older person. Ten health care workers were asked to read a paper copy of the case description, reflect upon it and express their understanding of the case in question.

The main results were summarised in two categories: namely, diabetes knowledge in relation to the presented case description and general diabetes knowledge. Some of the respondents considered the symptoms to be related to hyperglycaemia, while others were uncertain. Health care workers' general diabetes knowledge varied.

In order to optimise diabetes management and minimise complications, health care workers' knowledge gaps in diabetes need to be reduced through regular diabetes education. Copyright © 2013 FEND. Published by John Wiley & Sons, Ltd.

疗养院雇用的卫生保健工作者需要足够的糖尿病知识来做出适当的决定,以便优化糖尿病管理并最大限度地减少糖尿病控制不良可能引起的并发症。本研究的目的是确定卫生保健工作者的糖尿病知识水平,当提出一个关于老年人的病例描述。10名卫生保健工作者被要求阅读病例描述的纸质副本,反思并表达他们对有关病例的理解。主要结果总结为两类:即糖尿病知识与所提出的病例描述和一般糖尿病知识。一些应答者认为这些症状与高血糖有关,而另一些人则不确定。医护人员对糖尿病的一般认知存在差异。为了优化糖尿病管理和减少并发症,需要通过定期的糖尿病教育来缩小卫生保健工作者在糖尿病方面的知识差距。版权所有©2013中国农业科学研究院。John Wiley &出版;儿子,有限公司
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引用次数: 5
Are we failing vulnerable older people with diabetes in care homes? 我们是否辜负了护理院里易受伤害的糖尿病老年人?
Pub Date : 2013-02-27 DOI: 10.1002/edn.216
Magdalena Annersten Gershater, Angus Forbes
In this issue of European Diabetes Nursing we have two papers reporting on the care of older people in care homes (Hausken and Graue; Smide and Nygren). Over a quarter of residents in care homes have diabetes, 1 a number that will increase as life expectancy rises. Older people with diabetes in care homes often have multiple co-morbidities, are frail and are very vulnerable. They have a high risk of avoidable hospital admission, acute complications and hypoglycaemia. Not only are these hazardous events dangerous to the older person, they can be distressing, disruptive and erode that most valuable of commodities in older age: quality of life. The evidence suggests, however, that many older people in care homes experience poor clinical care. There is often a lack of consideration for: the nutri tional needs of the older person; the need to tackle polypharmacy; the importance of preventing hypo glycaemia; the management of inter-current illness; and the need to minimise diabetes symptoms such as polyuria. Older people with diabetes in care homes may also experience problems with pain, fatigue and urinary incontinence. There is often increased mental frailty in care home residents, with high levels of cognitive impairment and dementia. This mental frailty may impede the person’s capacity to self-manage their diabetes, leading to changes in the level of external support they receive with their care. In some instances, older people may be restricted in undertaking their own self-management with the routines of the institu tion becoming dominant over their own needs. This may create problems in the timing of medications like insulin, in blood glucose monitoring or in mealtimes. Older people have a highly elevated risk of foot complications. Foot complications affect over 20% of older people. Therefore, preventing foot problems is of vital importance in this population. The key to solving these problems and improving the quality of life experienced by older people with diabetes in care homes is to ensure that those who are responsible for supporting them have the necessary skills to manage their diabetes effectively. Skills that should include: recognising diabetes symptoms; being aware of the selfmanagement needs of each patient; and the ability to develop and deliver an individualised care plan that will minimise risk, reduce symptoms and promote quality of life. Skills for minimising risk and preventing problems such as hypoglycaemia, foot ulcers and poly-pharmacy are essential. These skills are required at all levels of personnel: those involved in supporting the daily living needs of the person, nursing staff, the catering and nutri tional staff, and the managers of the care home. Patients also require regular access to health professionals with expertise in diabetes to help construct the care plan in conjunction with the older person and their carers. Diabetes specialist nurses can make an important contribution here, both by facilitating integrate
然而,有证据表明,许多老年人在养老院经历了糟糕的临床护理。往往缺乏对以下方面的考虑:老年人的营养需要;解决多重用药问题的必要性;预防低血糖的重要性;交叉疾病的管理;以及减少多尿症等糖尿病症状的必要性。老年糖尿病患者在养老院也可能遇到疼痛、疲劳和尿失禁的问题。护理院的住院者往往精神脆弱,认知障碍和痴呆的程度很高。这种精神上的脆弱可能会阻碍患者自我管理糖尿病的能力,导致他们在接受护理时获得的外部支持水平发生变化。在某些情况下,老年人在进行自我管理方面可能受到限制,因为机构的日常工作压倒了他们自己的需要。这可能会在胰岛素等药物的使用时间、血糖监测或用餐时间上产生问题。老年人患足部并发症的风险很高。足部并发症影响了20%以上的老年人。因此,预防足部问题对这一人群至关重要。解决这些问题和改善老年糖尿病患者在养老院的生活质量的关键是确保那些负责支持他们的人拥有有效管理糖尿病的必要技能。应具备的技能包括:识别糖尿病症状;了解每位患者的自我管理需求;以及制定和提供个性化护理计划的能力,该计划将风险降至最低,减少症状并提高生活质量。降低风险和预防低血糖、足部溃疡和多种药物等问题的技能是必不可少的。所有级别的人员都需要这些技能:那些参与支持个人日常生活需求的人员,护理人员,餐饮和营养人员以及养老院的管理人员。患者还需要定期获得具有糖尿病专业知识的保健专业人员的帮助,以便与老年人及其照顾者一起制定护理计划。糖尿病专科护士可以在这方面作出重要贡献,通过促进综合工作模式和开发护理管理系统来支持养老院的糖尿病管理。豪斯肯和格劳恩通过他们的培训项目已经开始发展这种贡献;我们希望倡导糖尿病护理界在解决这一重要和脆弱人群的糖尿病问题方面发挥带头作用。
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引用次数: 0
Reflections on ‘Tackling type 2 diabetes and coexisting conditions’ 关于“应对2型糖尿病及共存疾病”的思考
Pub Date : 2013-02-27 DOI: 10.1002/edn.223
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引用次数: 0
Weight management: a practitioner's guide 体重管理:从业者指南
Pub Date : 2013-02-27 DOI: 10.1002/edn.222
Emma Potter
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引用次数: 3
A structured educational insulin pump therapy programme: the views of children/young people and their parents 一个结构化的教育胰岛素泵治疗方案:儿童/青少年及其父母的观点
Pub Date : 2013-02-27 DOI: 10.1002/edn.220
Fatemah M Alsaleh BPharm, MSc, PhD, Felicity J Smith BPharm, MA, PhD, FRPharmS, Rebecca Thompson RSCN, BSc, MSc, Kevin MG Taylor BPharm, PhD, MRPharmS

This study aimed to determine the views and experiences of parents and children regarding the training and services they had received at a London teaching hospital, when the child commenced insulin pump therapy; and to inform future services.

Face-to-face semi-structured interviews were conducted with children/young people (n=34) aged 5–17 years, using pump therapy, and their parents (n=38). Interviews were audio-recorded, transcribed verbatim and analysed using established qualitative analytical procedures.

Parents and children/young people had their own concerns on starting pump therapy: constant attachment of the child to an insulin pump and the cannula-insertion procedure respectively, being the greatest concerns. The hospital-based diabetes team supported families to overcome such issues. They provided families with 24-hour telephone contact, contacted schools and nurseries, ran a two-day Pump School at the start of pump therapy and provided ongoing services to ease patients' transition from insulin injections to pumps. The programme and services provided were generally perceived positively by children and parents. However, some limitations were reported and suggestions for improvement were made.

In conclusion, the insulin pump therapy programme was appreciated by the majority of families, and provided children and their parents with support for easier transition from insulin injections to pumps. As the numbers of young people using pump therapy increase, the results of this study can inform the development of similar services, by considering this programme as a model for establishing such a service in other specialised diabetes centres. Copyright © 2013 FEND. Published by John Wiley & Sons, Ltd.

本研究旨在确定当儿童开始胰岛素泵治疗时,父母和儿童对他们在伦敦教学医院接受的培训和服务的看法和经验;并为未来的服务提供信息。采用泵治疗的5-17岁儿童/青少年(n=34)及其父母(n=38)进行面对面半结构化访谈。访谈录音,逐字抄录,并使用既定的定性分析程序进行分析。父母和孩子/年轻人对启动泵治疗有自己的担忧:孩子对胰岛素泵的持续依恋和插管插入程序分别是最大的担忧。以医院为基础的糖尿病小组支持家庭克服这些问题。他们为家庭提供24小时电话联系,联系学校和托儿所,在泵治疗开始时开办为期两天的泵学校,并提供持续的服务,以减轻患者从胰岛素注射到泵的过渡。儿童和家长普遍认为方案和提供的服务是积极的。然而,报告了一些局限性,并提出了改进建议。总之,胰岛素泵治疗方案得到了大多数家庭的认可,并为儿童及其父母提供了支持,使他们更容易从胰岛素注射过渡到泵。随着使用泵治疗的年轻人数量的增加,本研究的结果可以为类似服务的发展提供信息,通过考虑将该计划作为在其他专业糖尿病中心建立此类服务的模型。版权所有©2013中国农业科学研究院。John Wiley &出版;儿子,有限公司
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引用次数: 6
The systematic development of an innovative DVD to raise awareness of preconception care 系统地开发一种创新的DVD,以提高对孕前护理的认识
Pub Date : 2013-02-27 DOI: 10.1002/edn.217
Dr Michelle Spence BSc, PhD, Professor Roy Harper BSc, MB BCh, BAO, MD, FRCP, Professor David R McCance BSc, MB, BCh, MD, FRCP, Professor Fiona A Alderdice BSc, PhD, Dr Michelle C McKinley BSc, PhD, Clare Hughes, Dr Valerie A Holmes RN, BSc, PhD, For the Women with Diabetes Project Team

The purpose of this article is to describe the design, development and process evaluation of a preconception counselling resource (a DVD) for women with pre-gestational diabetes.

DVD design and development centred on two key stakeholders (‘DVD user group’ and ‘professional advisory group’) working alongside a professional multimedia company. The DVD user group provided feedback on preferred DVD style, and informed modifications and improvements. The professional advisory group prepared the script, and ensured content and face validity. Evaluation of the DVD's acceptability and usefulness was assessed among women with diabetes via a postal questionnaire.

Development phase: the resulting DVD is a 45-minute programme with three parts, featuring eight women with diabetes sharing their views and experiences, alongside an evidence-based commentary. The programme focuses on the importance of preventing an unplanned pregnancy (highlighting contraception) and on essential planning advice.

Evaluation phase: 97 women (89 with type 1 and 8 with type 2 diabetes) evaluated the DVD using a rating scale of 0–10. Mean (SD) scores were: 9.1 (1.3) for quality; 9.0 (1.4) for content; 8.8 (1.5) for interest; 8.7 (1.8) for usefulness; 7.8 (2.2) for knowledge acquisition; and 8.0 (2.1) for knowledge confirmation.

This combined user and multi-professional advisory group approach has produced an innovative and highly acceptable preconception counselling resource for women with diabetes. The development process and outcome evaluation are an important point of reference for future educational programmes. Future research will evaluate the impact of this preconception counselling resource on pregnancy planning indicators and pregnancy outcome. Copyright © 2013 FEND. Published by John Wiley & Sons, Ltd.

本文的目的是描述孕前咨询资源(DVD)的设计,开发和过程评估与妊娠前糖尿病妇女。DVD设计和开发以两个关键利益相关者(“DVD用户组”和“专业咨询组”)为中心,与专业多媒体公司一起工作。DVD用户组提供了对首选DVD样式的反馈,并告知修改和改进。由专业顾问团编制剧本,确保内容和面效。通过邮寄问卷对糖尿病女性患者的DVD的可接受性和有用性进行评估。开发阶段:制作完成的DVD是一个45分钟的节目,分为三个部分,其中包括8名糖尿病女性患者分享她们的观点和经验,以及基于证据的评论。该方案的重点是预防意外怀孕(强调避孕)的重要性和基本规划咨询。评估阶段:97名女性(89名1型糖尿病患者,8名2型糖尿病患者)使用0-10的评分量表对DVD进行评估。质量的平均(SD)评分为9.1分(1.3分);9.0(1.4)为内容;8.8(1.5)利息;8.7(1.8)为有用性;7.8(2.2)知识获取;8.0(2.1)进行知识确认。这种结合用户和多专业咨询小组的方法为糖尿病妇女提供了一种创新的、高度可接受的孕前咨询资源。发展过程和成果评价是今后教育方案的重要参考点。未来的研究将评估这种孕前咨询资源对妊娠计划指标和妊娠结局的影响。版权所有©2013中国农业科学研究院。John Wiley &出版;儿子,有限公司
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引用次数: 6
Writing for publication in nursing and healthcare 为护理和保健方面的出版物而写作
Pub Date : 2013-02-27 DOI: 10.1002/edn.224
Professor Trisha Dunning
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引用次数: 4
期刊
European Diabetes Nursing
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