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Narrative modulations in patient-practitioner communication: Exploring attunement and misattunement in supported self-management 患者与医生交流中的叙事调节:探索辅助自我管理中的调和与误调
Pub Date : 2024-06-01 DOI: 10.1016/j.laheal.2023.11.002
Mimi Huang

This paper investigates the experiences of patients in communicating with healthcare practitioners within the context of supported self-management in the UK. Employing an innovative analytical concept of “narrative modulation”, this study examines narrative data from patients’ focus group discussions. Two contrasting processes, attunement and misattunement, emerge as narrative modulators that shape and form the meaning and trajectory of participants’ storytelling. The study identifies multiple instances of misattunement in patient-practitioner interactions, highlighting a prevailing emphasis on diagnosis and treatment-focused perspectives, often at the expense of individual patients' experiences during clinical encounters. Despite these challenges, the participants expressed a desire for care that listens to and understands their unique experiences. They also wished to play an active role in their healthcare decisions, endorsing attunement, which promotes understanding and collaborative self-management supported by practitioners. This paper further discusses the implications of these findings for improving both patient-practitioner communication and supported self-management.

本文研究了在英国支持自我管理的背景下,患者与医疗从业人员沟通的经历。本研究采用 "叙事调节 "这一创新分析概念,对患者焦点小组讨论中的叙事数据进行了研究。两个截然不同的过程--"适应 "和 "不适应"--成为了叙事调节器,塑造并形成了参与者讲述故事的意义和轨迹。研究发现,在患者与医生的互动中存在多种调适失误的情况,突出强调了以诊断和治疗为中心的观点,而这往往以牺牲患者在临床接触中的个人经历为代价。尽管存在这些挑战,但参与者表示希望医疗服务能够倾听并理解他们的独特经历。他们还希望在自己的医疗决策中扮演积极的角色,赞同 "调适",因为 "调适 "可以促进理解,并在医生的支持下进行合作性的自我管理。本文将进一步讨论这些研究结果对改善患者与医生之间的沟通和支持自我管理的意义。
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引用次数: 0
Cognitive-linguistic difficulties in adults with Long COVID: A follow-up study 长COVID成人的认知语言障碍:一项后续研究
Pub Date : 2024-06-01 DOI: 10.1016/j.laheal.2023.09.001
Louise Cummings

As the emergency phase of the COVID-19 pandemic subsides, the long-term health problems caused by SARS-CoV-2 infection are becoming increasingly clear. So-called Long COVID, or post COVID-19 condition, is a debilitating illness that impacts functioning for months and even years after infection. Alongside physical symptoms, Long COVID has a particularly insidious effect on cognition and language. While many studies have documented non-linguistic cognitive impairments in people with Long COVID, what has not been documented to any significant extent is the presence and duration of language difficulties in Long COVID. This study addresses this lack of research by examining the cognitive-linguistic skills of 41 adults with Long COVID. These adults were assessed at two time points using a test protocol of 12 language tasks. This paper describes the findings of the 6-month follow-up study. Results indicate that difficulties in immediate and delayed verbal recall persist long after the onset of COVID symptoms, even as improvements occur in verbal fluency and the informativeness of spoken discourse. It is argued that these difficulties are a significant contributing factor in a lack of work return in these adults. Implications of these findings for the provision of speech-language pathology services to these adults and occupational health policies relating to Long COVID are discussed.

随着 COVID-19 大流行病紧急阶段的消退,SARS-CoV-2 感染造成的长期健康问题正变得越来越明显。所谓的 "长COVID",即COVID-19后遗症,是一种在感染后数月甚至数年都会影响机体功能的衰弱性疾病。除身体症状外,长COVID对认知和语言的影响尤为隐蔽。虽然许多研究都记录了朗-克沃伊德患者的非语言认知障碍,但朗-克沃伊德患者是否存在语言障碍以及语言障碍持续的时间长短,却没有得到大量的记录。针对这一研究空白,本研究对 41 名成年 Long COVID 患者的认知语言能力进行了调查。这些成人在两个时间点接受了由 12 项语言任务组成的测试方案的评估。本文介绍了 6 个月跟踪研究的结果。研究结果表明,尽管语言流畅性和口语信息量有所改善,但在出现 COVID 症状后的很长一段时间内,即时和延迟言语回忆方面的困难仍然存在。研究认为,这些困难是导致这些成年人无法重返工作岗位的重要因素。本文讨论了这些研究结果对为这些成年人提供言语病理学服务以及与长COVID相关的职业健康政策的影响。
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引用次数: 0
Exploring women’s chronic disease experiences: A mixed-methods analysis of endometriosis narratives 探索妇女的慢性病经历:对子宫内膜异位症叙述的混合方法分析
Pub Date : 2024-06-01 DOI: 10.1016/j.laheal.2024.02.001
Viviane Ito , Mariana Pascual

Endometriosis is a chronic gynecological illness faced by an estimated one-tenth of women worldwide. Despite being a common condition, studies of the disease in Latin American settings are still scarce. This paper presents a study of 30 autobiographical interviews with Chilean patients who are L1 Spanish speakers. Our study aims to fill the gap in understanding the endometriosis experience of Latin American women, unveiling how to assist the patients better and improve their quality of life. It is one of the first studies to describe the experience of Chilean women in navigating the disease and the impacts on their routines. We used a mixed-methods approach to achieve our goal, employing a combination of NLP and content analysis. First, we generated word embeddings for three main keywords, "pain," "endometriosis," and "menstruation." Furthermore, we processed the data to locate occurrences of "pain" in the corpus. We coded the occurrences into nine semantic domains of the endometriosis pain experience: intensity, normalization, treatment, frequency, menstruation, feeling, pain location, symptom, and impact. Our results shed light on the details of the journey with endometriosis and may lead to improvements in patient-doctor communication and policymaking to benefit patients.

子宫内膜异位症是一种慢性妇科疾病,全世界估计有十分之一的妇女患有这种疾病。尽管子宫内膜异位症是一种常见病,但在拉美地区对这种疾病的研究仍然很少。本文介绍了对智利患者进行的 30 次自传式访谈,这些患者均以西班牙语为第一语言。我们的研究旨在填补了解拉丁美洲妇女子宫内膜异位症经历方面的空白,揭示如何更好地帮助患者并提高她们的生活质量。这是第一批描述智利妇女患病经历及其对日常生活影响的研究之一。为了实现目标,我们采用了一种混合方法,将 NLP 和内容分析相结合。首先,我们为三个主要关键词 "疼痛"、"子宫内膜异位症 "和 "月经 "生成了词嵌入。此外,我们还对数据进行了处理,以确定 "疼痛 "在语料库中的出现频率。我们将这些词条编码为子宫内膜异位症疼痛体验的九个语义域:强度、正常化、治疗、频率、月经、感觉、疼痛位置、症状和影响。我们的研究结果揭示了子宫内膜异位症治疗过程中的细节,可能有助于改善医患沟通和政策制定,使患者受益。
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引用次数: 0
Expressive language variation, growth and predictors in Mandarin-exposed young children with autism spectrum disorder 接触过普通话的自闭症谱系障碍幼儿的表达性语言变异、发展和预测因素
Pub Date : 2024-06-01 DOI: 10.1016/j.laheal.2024.03.001
Yi (Esther) Su , Qian-qian Xie , Hong-hui Yao

Utilizing the Putonghua Communicative Development Inventory-Toddler Form, this longitudinal study assessed expressive language development (including lexicon, grammar, and decontextualized language) twice over a year’s span in two subgroups (high verbal, low verbal) of 77 2–6-year-old Mandarin-exposed children with autism spectrum disorder (ASD). Both subgroups showed the steeper increase of structural language (lexicon and grammar) vs. the flatter growth of decontextualized language. Moreover, children’s initial language skills (but not autism severity or language environment) predicted language outcomes one year later in both groups. The use of decontextualized language also predicted structural language development in the low verbal group. These findings confirmed the uneven expressive language growth across multiple language domains in subgroups of children with ASD and underscored the contribution of early language skills to their expressive language development. Moreover, the slow growth and significant predictivity of decontextualized language warrant targeted intervention in promoting children with ASD’s talk beyond the ‘here-and-now’ situation in communication.

这项纵向研究利用《普通话交际发展量表-幼儿表》,对 77 名 2-6 岁患有自闭症谱系障碍(ASD)的普通话儿童在一年时间内的两次表达性语言发展(包括词汇、语法和非语境化语言)进行了评估。两个亚组的结构性语言(词汇和语法)的增长速度较快,而非语境化语言的增长速度较慢。此外,两组儿童最初的语言技能(而非自闭症严重程度或语言环境)都能预测一年后的语言成果。去语境化语言的使用也预示着低语言能力组的语言结构发展。这些发现证实了自闭症儿童亚组在多个语言领域的语言表达能力发展不平衡,并强调了早期语言技能对其语言表达能力发展的贡献。此外,非语境化语言发展缓慢且具有显著的预测性,因此有必要采取有针对性的干预措施,以促进 ASD 儿童的谈话超越 "此时此地 "的交流情景。
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引用次数: 0
Interpreters as facilitators of emotional expressions in multilingual medical interactions: Observations from Italian healthcare practices 口译员在多语言医疗互动中促进情感表达:意大利医疗实践观察
Pub Date : 2024-06-01 DOI: 10.1016/j.laheal.2024.01.002
Federico Farini

This article discusses insights from a research on the management of emotions in medical interactions involving Italian healthcare providers, Arabic speaking interpreters and Arabic speaking patients. The findings suggest that the possibility for patient’s emotions to become relevant in the medical encounter is affected by the activity of interpreters as mediators of the inter-linguistic interaction. While this contribution also considers examples of interpreters’ choices excluding the emotions of the patients from the interaction, the discussion focuses on affective formulations of patient’s expression of emotions, as an interactional resource to make doctors aware of patients’ emotional expressions emerged from dyadic monolingual interactions. This article concludes by suggesting that interpreters as linguistic mediators may effectively promote emotional literacy in healthcare interactions, promoting a patient-centred model of multilingual healthcare.

本文讨论了意大利医疗服务提供者、阿拉伯语口译员和阿拉伯语患者在医疗互动中的情绪管理研究。研究结果表明,患者的情绪在医疗互动中的相关性受到作为语言间互动媒介的口译员活动的影响。虽然本文也考虑了口译员选择将病人的情绪排除在互动之外的例子,但讨论的重点是病人表达情绪的情感表述,将其作为一种互动资源,使医生意识到病人在二元单语互动中的情绪表达。本文最后提出,作为语言中介的口译员可以有效促进医疗互动中的情感素养,促进以患者为中心的多语言医疗保健模式。
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引用次数: 0
Spoken language-based automatic cognitive assessment of stroke survivors 对中风幸存者进行基于口语的自动认知评估
Pub Date : 2024-06-01 DOI: 10.1016/j.laheal.2024.01.001
Bahman Mirheidari , Simon M. Bell , Kirsty Harkness , Daniel Blackburn , Heidi Christensen

Stroke survivors (SSs) often experience cognitive decline following their initial stroke, necessitating repeat post-stroke cognitive assessments. Current methods of assessment, such as the pen-and-paper-based Montreal Cognitive Assessment (MoCA), is time-consuming and often reliant on seeing skilled clinicians in person. This is at a time when patients have a lot of often diverse rehabilitation needs. To address these challenges, our paper introduces the first system of its kind to be used for this cohort. CognoSpeak is an automated cognitive assessment system that people can use initially on the ward immediately post-stroke (baseline) and subsequently at home (follow-ups). CognoSpeak assesses cognitive decline by asking users to engage with a virtual agent by answering questions and completing clinically-motivated tasks and cognitive tests. The system then uses AI to extract and process speech, language, and interactional cues for cognitive decline. The system was originally developed for dementia; here, we show that it can successfully predict MoCA scores (regression) and identify cognitive decline predicated on a MoCA-based threshold (classification) in the stroke survivor cohort. We explore an extensive set of acoustic- and text-based features as well as different machine learning models. Leveraging a unique dataset of 55 SS CognoSpeak interactions, our findings show excellent performance for both regression and classification style prediction with the best regression result (Normalised Root Mean Squared Error (N-RMSE)) of 0.092. In addition, we show that direct classification of the MoCA score cutoff of 26 yields an F1-score of 0.74 (Specificity: 0.73, Sensitivity: 0.75) using a Logistic Regression Classifier. This demonstrates the first evidence of the system’s robustness and clinical potential.

脑卒中幸存者(SSs)在首次脑卒中后往往会出现认知能力下降,因此需要重复进行脑卒中后认知评估。目前的评估方法,如基于纸笔的蒙特利尔认知评估(MoCA),非常耗时,而且往往需要与熟练的临床医生面对面交流。而此时患者的康复需求往往多种多样。为了应对这些挑战,我们的论文介绍了首个用于该群体的同类系统。CognoSpeak 是一种自动认知评估系统,患者可以在中风后立即在病房使用(基线),随后在家中使用(随访)。CognoSpeak 通过要求用户与虚拟代理互动,回答问题并完成临床任务和认知测试来评估认知能力的下降。然后,该系统利用人工智能来提取和处理语音、语言和互动线索,以了解认知能力衰退的情况。该系统最初是为痴呆症开发的;在此,我们展示了它可以成功预测 MoCA 分数(回归),并根据基于 MoCA 的阈值识别中风幸存者队列中的认知衰退(分类)。我们探索了大量基于声音和文本的特征以及不同的机器学习模型。利用由 55 个 SS CognoSpeak 互动组成的独特数据集,我们的研究结果表明,回归和分类预测的性能都非常出色,最佳回归结果(归一化均方根误差 (N-RMSE) )为 0.092。此外,我们还表明,使用逻辑回归分类器对 MoCA 26 分临界值进行直接分类可获得 0.74 的 F1 分数(特异性:0.73,灵敏度:0.75)。这首次证明了该系统的鲁棒性和临床潜力。
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引用次数: 0
Assessment of pragmatic skills in adults with ADHD 评估多动症成人的实用技能
Pub Date : 2024-06-01 DOI: 10.1016/j.laheal.2024.02.002
Elena Even-Simkin

Although Attention Deficit Hyperactivity Disorder (ADHD) is among the most common diagnoses in childhood, a formal diagnosis, frequently, is delayed until adulthood. As a result, the individuals who are not diagnosed in childhood miss out on the early treatment and may experience considerable social and pragmatic challenges, culminating in factors that impact their daily living, educational achievements and professional performance. Children and adolescents who do not receive an ADHD treatment carry their symptoms into adulthood, that typically result in functional and pragmatical difficulties. However, assessing pragmatic deficits in adults with ADHD presents challenges, stemming from various factors such as educational backgrounds, under-resourced family environments, compensatory mechanisms in individuals with high intelligence and the presence of other comorbid conditions. Consequently, overlooking pragmatic and functional difficulties can lead to significant social difficulties, which in turn may negatively impact their daily living, educational achievements and career progression. This study proposes a comprehensive and cost-effective approach to evaluating pragmatic skills in adults with ADHD, by adapting a systematic and standardized method, for the assessment of the pragmatic abilities, originally developed for neurotypical individuals by Acara and Bambini (2016). The results show the importance of incorporating this assessment tool into the diagnostic procedures for ADHD that can be further applied in the intervention programs. This assessment tool provides a valid onset criterion for advancing effective intervention programs that are focused on the pragmatic skills. Thus, this evaluation tool, first, can pinpoint pragmatic deficits within the ADHD community, and, second, can foster the development of the targeted intervention programs concentrated on enhancing pragmatic skills in the individuals with ADHD.

虽然注意力缺陷多动障碍(ADHD)是儿童时期最常见的诊断之一,但正式诊断往往要等到成年以后。因此,在童年时期没有得到诊断的人错过了早期治疗,可能会经历相当大的社会和实际挑战,最终影响他们的日常生活、教育成就和职业表现。没有接受多动症治疗的儿童和青少年会把症状带到成年,这通常会导致功能性和实用性困难。然而,由于教育背景、家庭环境资源不足、高智商个体的补偿机制以及其他合并症的存在等各种因素,评估成人多动症患者的实用性缺陷是一项挑战。因此,过度关注实用性和功能性困难会导致严重的社交困难,进而对他们的日常生活、教育成就和职业发展产生负面影响。本研究提出了一种全面且具有成本效益的方法,通过调整 Acara 和 Bambini(2016 年)最初为神经畸形个体开发的系统化和标准化的实用能力评估方法,来评估多动症成人的实用能力。结果表明,将这一评估工具纳入多动症诊断程序非常重要,可进一步应用于干预计划中。该评估工具为推进以实用技能为重点的有效干预计划提供了有效的发病标准。因此,这一评估工具首先可以找出多动症群体在实用技能方面的缺陷,其次可以促进制定有针对性的干预计划,集中提高多动症患者的实用技能。
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引用次数: 0
Natural language processing-driven framework for the early detection of language and cognitive decline 自然语言处理驱动框架对语言和认知衰退的早期检测
Pub Date : 2023-12-01 DOI: 10.1016/j.laheal.2023.09.002
Kulvinder Panesar , María Beatriz Pérez Cabello de Alba

Natural Language Processing (NLP) technology has the potential to provide a non-invasive, cost-effective method using a timely intervention for detecting early-stage language and cognitive decline in individuals concerned about their memory. The proposed pre-screening language and cognition assessment model (PST-LCAM) is based on the functional linguistic model Role and Reference Grammar (RRG) to analyse and represent the structure and meaning of utterances, via a set of language production and cognition parameters. The model is trained on a DementiaBank dataset with markers of cognitive decline aligned to the global deterioration scale (GDS). A hybrid approach of qualitative linguistic analysis and assessment is applied, which includes the mapping of participants´ tasks of speech utterances and words to RRG phenomena. It uses a metric-based scoring with resulting quantitative scores and qualitative indicators as pre-screening results. This model is to be deployed in a user-centred conversational assessment platform.

自然语言处理(NLP)技术有可能提供一种非侵入性的、经济有效的方法,通过及时干预来检测早期语言和认知能力下降的个体。本文提出的预筛选语言和认知评估模型(PST-LCAM)是基于功能语言模型角色和参考语法(RRG),通过一组语言产生和认知参数来分析和表征话语的结构和意义。该模型在DementiaBank数据集上进行训练,该数据集具有与全球退化量表(GDS)一致的认知衰退标记。采用了一种定性语言分析和评估的混合方法,其中包括将参与者的语音任务和单词映射到RRG现象。它使用基于度量的评分,并使用定量评分和定性指标作为预筛选结果。该模型将部署在以用户为中心的会话评估平台中。
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引用次数: 0
From interactional manifestations to interpersonal motives: A pragmatic study of attentiveness by Chinese doctors during online medical consultations 从互动表现到人际动机:中国医生在线医疗咨询注意力的语用研究
Pub Date : 2023-12-01 DOI: 10.1016/j.laheal.2023.08.001
Yansheng Mao , Xiaojiang Wang , Shuang Wei

This paper examined the attentiveness demonstrated by doctors to e-patients during online medical consultations (OMCs). Drawing upon data retrieved from www.chunyuyisheng.com (Chunyu Doctor), this study attempts to explore how doctors display attentiveness to e-patients and how attentiveness contributes to patient-centeredness during OMCs in China. It was found that three strategies (reformulation, mitigation, and empathy) were deployed by doctors to demonstrate attentiveness to e-patients during OMCs. Moreover, these three attentiveness-constructing strategies reveal the efforts of doctors toward patient-centeredness regarding communicative gaps in information, solidarity, and pathos. Notably, this paper discussed doctors’ demonstration of attentiveness as a joint goal-oriented activity, with the common goal of solving problems shared by doctors and e-patients. The findings above not only problematize the endemic idea that attentiveness is an intrapsychic essence from an interpersonal pragmatic perspective but also extend the line of doctor-patient communication by highlighting OMCs as a joint goal-oriented activity.

本文考察了医生在网上医疗咨询(OMCs)中对电子患者的关注程度。根据www.chunyuyisheng.com(春雨医生)的数据,本研究试图探讨医生如何对电子患者表现出关注,以及在中国的omc中,关注如何促进以患者为中心。研究发现,医生在omc期间采用了三种策略(重新制定、缓解和移情)来表现对电子患者的关注。此外,这三种注意力构建策略揭示了医生在信息、团结和同情等沟通差距方面朝着以患者为中心的努力。值得注意的是,本文讨论了医生的注意力展示是一种共同的目标导向活动,其共同目标是解决医生和电子患者共有的问题。上述发现不仅从人际语用的角度质疑了关注是一种内在心理本质的流行观点,而且通过强调关注是一种共同的目标导向活动,扩展了医患沟通的范围。
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引用次数: 0
A tale of three global cities: A comparative account of Dubai, Kuala Lumpur and Hong Kong’s multilingual repertoires evidenced in their Covidscapes as part of Covid-19 crisis and public health communication 三个全球城市的故事:迪拜、吉隆坡和香港在新冠肺炎危机和公共卫生传播中所表现出的多语言能力的比较
Pub Date : 2023-12-01 DOI: 10.1016/j.laheal.2023.06.001
Chonglong Gu

Living under the far-reaching ramifications of the Covid-19 pandemic, effective communication has been the order of the day in recent years. The very nature of the pandemic strikes home the crucial need to communicate multilingually in our increasingly (super)diverse world, in which translation has a big part to play. Constituting a socially shaped and socially shaping discourse, the multilingual communication and translation practices on the ground tell fascinating stories about a city’s demographic profile and multilingual repertoire during a public health crisis. So far, while a limited number of LL studies have been conducted in a few individual cities, there has been a glaring lack of scholarly engagement with Covid-related linguistic landscapes in our world’s global cities from a comparative perspective. To address this gap, framed within the broader context of crisis communication, this sociolinguistic study compares the Covidscapes between Dubai, Kuala Lumpur and Hong Kong, three dynamic Asian metropolises and commercial hubs featuring speakers of different languages. The signs in the three cities’ Covid-scapes all share similar themes (e.g. mask wearing and social distancing), represent multimodal and semiotic assemblages, and are realised in the form of top-down and bottom-up signage. However, the Covid-scape in Kuala Lumpur tends to involve mostly Malay and/or English and the Covid-scape in the superdiverse Dubai tends to be predominantly bilingual in Arabic and English only. In comparison, Hong Kong tends to mobilise a wider range of linguistic repertoire where multiple ethnic languages such as Hindi, Urdu, Nepali, Tagalog and Indonesian are involved (especially top-down officially instituted signs). This is fascinating (and counterintuitive) considering Dubai and Kuala Lumpur are significantly more ethnolinguistically diverse compared with Hong Kong, which features an ethnic Chinese majority. Using authentic real-world examples, the observed features and trends are discussed and analysed. The tentative reasons and implications of the findings are also explored.

近年来,在2019冠状病毒病大流行的深远影响下,有效沟通已成为当务之急。这场大流行的本质充分说明,在我们日益(超级)多样化的世界中,多语言交流至关重要,而翻译在其中发挥着重要作用。当地的多语言交流和翻译实践构成了社会塑造和社会塑造的话语,讲述了公共卫生危机期间城市人口概况和多语言储备的迷人故事。到目前为止,虽然在少数个别城市进行了数量有限的语言研究,但从比较的角度来看,我们明显缺乏对全球城市中与新冠肺炎相关的语言景观的学术参与。为了解决这一差距,在更广泛的危机沟通背景下,这项社会语言学研究比较了迪拜、吉隆坡和香港这三个充满活力的亚洲大都市和不同语言的商业中心之间的covid - scape。三个城市的新冠病毒景观中的标志都有相似的主题(例如戴口罩和保持社交距离),代表多模态和符号学组合,并以自上而下和自下而上的标志形式实现。然而,吉隆坡的Covid-scape往往主要涉及马来语和/或英语,而超级多样化的迪拜的Covid-scape往往主要是阿拉伯语和英语双语。相比之下,香港倾向于使用更广泛的语言,包括印地语、乌尔都语、尼泊尔语、他加禄语和印尼语等多种民族语言(特别是自上而下的官方制定的标志)。考虑到迪拜和吉隆坡的民族语言多样性明显高于以华人为主的香港,这一点很有趣(也违反直觉)。利用真实世界的例子,讨论和分析了观察到的特征和趋势。本文还对研究结果的初步原因和意义进行了探讨。
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引用次数: 1
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