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Sharing peer advice: A case study of Chinese patients’ narratives in an online support group for mental health 同侪意见分享:中国患者在心理健康在线支持小组中的叙述案例研究
Pub Date : 2023-12-01 DOI: 10.1016/j.laheal.2023.10.002
Jack Pun, Qianwen Joyce Yu

Recent health communication studies have begun to look at online illness narratives, showing how narratives are used to report patients’ experience or to offer medical advice in various online contexts. However, few studies have sought to explore the communicative features of these online narratives in the Chinese context. Given the insufficient and uneven distribution of mental health resources and the intense stigma attached, an increasing number of Chinese patients with mental disorders are turning to online support groups (OSGs) for advice. We have limited understanding of Chinese patients’ lived experience or the potential of online illness narratives to be interpersonal tools for sharing advice. Drawing on computer-mediated discourse analysis, this study scrutinises narrative passages from a Chinese OSG to illustrate how individuals with mental illness interact in an online advisory context. The detailed analysis of narrative functions unpacks the potential of OSGs to provide storytelling opportunities for Chinese patients with mental disorders, allowing them to voice their concerns and experiences within the peer-to-peer network of relational understanding and support. This study also identifies a distinct feature of narrative activities in this online advisory context – the illness blog – and illustrates how its occurrence is related to the Chinese sociocultural values. This study can help raise awareness of illness narratives as a communication tool and facilitate culturally sensitive reactions of healthcare professionals towards patients’ narratives.

最近的健康传播研究已经开始关注在线疾病叙述,展示了在各种在线环境中如何使用叙述来报告患者的经历或提供医疗建议。然而,很少有研究试图探索这些网络叙事在中国语境下的交际特征。鉴于精神卫生资源不足且分布不均,加上强烈的耻辱感,越来越多的中国精神障碍患者转向在线支持小组(osg)寻求建议。我们对中国患者的生活经历或在线疾病叙述作为分享建议的人际工具的潜力了解有限。利用计算机媒介话语分析,本研究仔细研究了来自中国OSG的叙事段落,以说明精神疾病患者如何在在线咨询环境中互动。对叙事功能的详细分析揭示了osg为中国精神障碍患者提供讲故事机会的潜力,使他们能够在关系理解和支持的点对点网络中表达自己的担忧和经历。本研究还确定了在线咨询背景下叙事活动的一个明显特征——疾病博客,并说明了其发生与中国社会文化价值观的关系。本研究可以帮助提高疾病叙事作为沟通工具的意识,并促进医疗保健专业人员对患者叙事的文化敏感反应。
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引用次数: 0
Linguistic markers of depression: Insights from english-language tweets before and during the COVID-19 pandemic 抑郁症的语言标记:来自COVID-19大流行之前和期间的英语推文的见解
Pub Date : 2023-12-01 DOI: 10.1016/j.laheal.2023.10.001
Nurul Hayat Yahya, Hajar Abdul Rahim

Research shows that the COVID-19 outbreak negatively affected people’s mental health with depression cases being the most prevalently reported mental disorder around the world. This motivated studies on the symptoms of depression through social media such as Twitter, with most of them focusing on behavioural changes in depressive individuals. Linguistic changes in tweets of depressed Twitter users however are under-researched. To date, research on linguistic markers of depression has been linked to self-focused attention and negativity bias in depressed individuals while other domains of cognitive theories of depression have remained relatively unexplored in linguistic studies. This gap in the literature is the motivation for the current paper on linguistic markers of depression in tweets during the pandemic. It focuses on sensitive markers of depression namely first-person singular pronouns, negative emotion words, and absolutist words as they reflect increased self-focus, negativity, and absolutist thinking in depressed individuals. The current study analyses the change in the use of these linguistic markers among depressed Twitter users based on tweets in English one year prior to and a year into COVID-19 pandemic. It also explores emerging linguistic markers of depression beyond the scope of self-focused attention, negativity bias, and absolutist thinking providing understanding of how depression manifests in language during global crises such as the pandemic.

研究表明,新冠肺炎疫情对人们的心理健康产生了负面影响,抑郁症是世界上报告最多的精神障碍。这激发了通过推特等社交媒体对抑郁症症状的研究,其中大多数研究都集中在抑郁症患者的行为变化上。然而,对抑郁推特用户推文的语言变化研究不足。迄今为止,对抑郁症语言标记的研究已与抑郁症个体的自我关注和消极偏见联系在一起,而抑郁症认知理论的其他领域在语言学研究中仍相对未被探索。文献上的这种差距是当前关于大流行期间推文中抑郁的语言标记的论文的动机。它主要关注抑郁症的敏感标记,即第一人称单数代词、消极情绪词汇和绝对主义词汇,因为它们反映了抑郁症患者日益增加的自我关注、消极情绪和绝对主义思维。目前的研究基于2019冠状病毒病大流行前一年和一年后的英语推文,分析了抑郁推特用户使用这些语言标记的变化。它还探索了超越自我关注、消极偏见和绝对主义思维范围的抑郁症新出现的语言标记,从而了解抑郁症在全球危机(如大流行)期间如何在语言中表现出来。
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引用次数: 0
Language and health studies in the era of holistic health: Achievements and prospects 全面健康时代的语言与健康研究:成就与展望
Pub Date : 2023-12-01 DOI: 10.1016/j.laheal.2023.11.001
Wen Ma, Qingsong Liu

Language and health studies is scientific, pioneering and promising in nature given the close yet intricate relationship between human’s language and health. A diverse range of research topics encompasses the panorama of language and health studies, with the overarching objective of promoting the holistic well-being of individuals across the entire spectrum of age demographics, spanning from children, through adults, to the elderly. The present systematic review corroborates a flourishing trajectory of language and health research over the past three decades. Language disorders and speech-language pathology are among the most critical research topics in the field, with a primary focus on diagnosis and intervention. There are also rich investigations of language and mental health disorders in atypical populations. Clinical analysis, applied conversation analysis and narrative medicine are the three important approaches to the examination of communication in medical and healthcare interactions, which is crucial to public health promotion. The application of cutting-edge technologies and interdisciplinary cooperation can provide innovative solutions to the difficulties and challenges that arise in this field.

鉴于人类语言与健康之间密切而复杂的关系,语言与健康研究具有科学性、开拓性和前景性。各种各样的研究课题涵盖了语言和健康研究的全景,其总体目标是促进从儿童到成人再到老年人的整个年龄人口统计范围内个人的整体福祉。目前的系统回顾证实了过去三十年语言和健康研究的蓬勃发展轨迹。语言障碍和语言病理学是该领域最重要的研究课题之一,主要集中在诊断和干预方面。在非典型人群中也有丰富的语言和精神健康障碍的调查。临床分析、应用会话分析和叙事医学是检验医疗卫生互动沟通的三种重要方法,对公共健康促进具有重要意义。前沿技术的应用和跨学科合作可以为这一领域出现的困难和挑战提供创新的解决方案。
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引用次数: 0
Communication disorders: A complex population in healthcare 沟通障碍:医疗保健中的复杂人群
Pub Date : 2023-12-01 DOI: 10.1016/j.laheal.2023.06.005
Louise Cummings

This article provides readers with an overview of a population of clients that requires special consideration in healthcare settings: children and adults with communication disorders. In addition to standard barriers to effective communication between patients and doctors, people with communication disorders face a further challenge – communicating with medical and health professionals when their speech and language skills are impaired. The article examines how communication skills may fail to develop normally in the early years or may break down in adulthood and later life in the context of illness, injury or disease. Several communication disorders are illustrated using a lifespan perspective. The prevalence and impact of communication disorders are also considered. Finally, the article examines how communication disorders are assessed and treated by speech-language pathologists. The discussion serves as a primer or orientation for health practitioners and communication researchers to an important population of clients who have largely been neglected in health communication research that has been conducted to date.

这篇文章为读者提供了在医疗保健设置中需要特别考虑的客户群体的概述:患有沟通障碍的儿童和成人。除了患者和医生之间有效沟通的标准障碍之外,沟通障碍患者还面临着另一个挑战——当他们的言语和语言技能受损时,如何与医疗和卫生专业人员沟通。这篇文章研究了沟通技巧如何在早年不能正常发展,或者在成年后和以后的生活中因生病、受伤或疾病而崩溃。几个沟通障碍说明使用寿命的观点。沟通障碍的流行和影响也被考虑。最后,本文探讨了语言病理学家如何评估和治疗沟通障碍。该讨论为卫生从业人员和传播研究人员提供了入门或方向,以了解迄今为止在卫生传播研究中被忽视的重要客户群体。
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引用次数: 1
Information presentation and gaze-following for grounding in simulated anaesthesia emergencies: A multimodal analysis 模拟麻醉紧急情况中接地的信息呈现和目光跟随:多模态分析
Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.06.003
Keiko Tsuchiya , Hitoshi Sato , Kyota Nakamura , Takeru Abe , Arisa Fujii , Atsushi Miyazaki , Yuka Okuyama , Daisuke Kuwabara

Unanticipated difficult intubation is a relatively common problem anaesthetists face in everyday practice. Algorithms to manage the problem were issued (Japanese Society of Anesthesiologists, 2014), but how anaesthetists actually perceive the problem and respond to the difficulties with other healthcare professionals present is still to be uncovered. Drawing on the concept of resilient healthcare (Hollnagel et al., 2013), which values “how things go well”, this study analysed interactions in simulated emergencies between a less experienced anaesthetist (trainee) and an experienced anaesthetist (trainer). The latter took a role as a nurse and led the scenario of difficult intubation. Five sessions with the same trainer, one of five different trainees and a manikin as a patient were recorded with a 360-degree camera in an operating room at a large teaching hospital in Japan. The data was transcribed and analysed with discourse and multimodal corpus analytic approaches. In the simulated interactions, four phases of grounding (Clark, 1996) were observed in the joint decision-making process between the trainer and the trainee: (1) the trainer’s information presentation with her gaze address at the referent, (2) the trainee’s gaze following and acknowledgement of information reception, (3) the trainer’s prompt for the trainee’s decision-making, and (4) the trainee’s (or trainer’s) giving instruction to manage the difficulty. The trainer presented the patient’s condition and visual/audio information affordable in the environment (e.g., signals on a vital monitor), using verbal and multimodal resources, i.e., gaze address and deictic gestures. The participants as individual sensory agencies were engaged in the embodied process of shared sense-making in the particular context to establish common ground for joint decision-making on immediate actions required.

无法预料的插管困难是麻醉师在日常实践中面临的一个相对常见的问题。管理这个问题的算法已经发布(日本麻醉师学会,2014),但麻醉师如何真正感知这个问题,并在其他医疗专业人员在场的情况下应对困难,仍有待研究。本研究借鉴了弹性医疗的概念(Hollnagel等人,2013),该概念重视“事情进展如何”,分析了经验不足的麻醉师(受训者)和经验丰富的麻醉医师(培训师)在模拟紧急情况下的互动。后者扮演了一名护士的角色,并领导了插管困难的场景。在日本一家大型教学医院的手术室里,用360度摄像机记录了同一名教练、五名不同受训者中的一名以及一名患者的人体模型的五次训练。使用语篇和多模态语料库分析方法对数据进行转录和分析。在模拟的互动中,在培训师和受训者之间的联合决策过程中,观察到了四个基础阶段(Clark,1996):(1)培训师的信息展示,她的凝视地址指向参考对象,(2)受训者的凝视跟随和对信息接收的确认,(3)培训师对受训者决策的提示,以及(4)受训者(或培训师)给出管理难度的指示。培训师使用语言和多模式资源,即凝视地址和指示手势,介绍了患者的病情和环境中可负担的视觉/音频信息(例如,生命监护仪上的信号)。参与者作为个体感官机构,在特定的背景下参与共同感知的具体过程,为共同决策所需的即时行动奠定共同基础。
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引用次数: 0
“Why don't they talk to our daughter?”: Eye-tracking AAC and medical communication in Rett syndrome “他们为什么不和我们的女儿谈谈?”: Rett综合征的眼动追踪AAC和医学交流
Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.06.002
Usree Bhattacharya , Wisnu A. Pradana , Xing Wei , Bukunmi Ogunsola

This investigation explores medical advocacy for Rett syndrome—a rare neurological disorder causing loss of speech and hand function—through the lens of eye-tracking augmentative and alternative communication (AAC) technology. We gathered data from five individuals with Rett syndrome and their caregivers, encompassing semi-structured virtual interviews, video analyses of AAC device usage, and examination of AAC pageset screenshots. The findings reveal diverse AAC strategies employed to express discomfort or illness and highlight caregivers' pivotal role in processing medical information. Notwishstanding challenges like cost, time limitations in medical contexts, training needs, and the lack of standardized AAC symptom descriptions, eye-tracking AAC technology has the potential to enhance symptom assessment, foster patient autonomy, and facilitate personalized medical care. This study illuminates the transformative power of this AAC technology in medical communication, showcasing its promise in tackling communication challenges and underscoring its capacity to enhance quality of life for those with Rett syndrome and similar health conditions.

这项调查通过眼动追踪增强和替代通信(AAC)技术的视角,探讨了Rett综合征的医学宣传。Rett综合症是一种罕见的导致言语和手部功能丧失的神经系统疾病。我们收集了五名雷特综合征患者及其护理人员的数据,包括半结构化虚拟访谈、AAC设备使用的视频分析以及AAC页面集截图的检查。研究结果揭示了AAC用于表达不适或疾病的不同策略,并强调了护理人员在处理医疗信息中的关键作用。众所周知的挑战,如成本、医疗环境中的时间限制、培训需求以及缺乏标准化的AAC症状描述,眼动追踪AAC技术有可能增强症状评估,培养患者自主性,并促进个性化医疗。这项研究阐明了AAC技术在医疗通信中的变革力量,展示了其在应对通信挑战方面的前景,并强调了其提高雷特综合征和类似健康状况患者生活质量的能力。
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引用次数: 1
Pragmatic impairment and multimodal compensation in older adults with dementia 老年痴呆患者的语用障碍和多模态补偿
Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.06.004
Lihe Huang, Yiran Che

Compensation emerges when older adults encounter pragmatic impairment. Though studies are plentiful in pragmatic impairments of patients with aphasia or neurodegenerative diseases, discussions about compensation, especially older adult’s multimodal performance, need further generalization and interpretation. To fill this gap, this paper attempts to sketch the performance of multimodal compensation of Chinese older adults in pragmatic disorders and its corresponding pragmatic functions. Based on different viewing perspectives, this paper distinguishes three types of compensatory performances, i.e. compensation from inter- and intra- personal perspectives, compensation across language levels, and compensation across semiotic systems and modalities, by giving examples from Multimodal Corpus of Gerontic Discourse constructed by the authors’ team and explains how these compensatory performances help to complete communication. Compensatory performances of older adults classified and analyzed in this study can be explained by brain adaptation and compensation hypothesis. Compensatory performances are on account of interconnection among multiple sensory organs and their neural networks. The exploration of performance and mechanism of multimodal compensation of Chinese older adults not only verifies and expands brain adaptation and compensation theories, but also may prompt the communicative efficiency of older adults when encountering pragmatic impairments.

当老年人遇到语用障碍时,补偿就会出现。尽管对失语症或神经退行性疾病患者的语用障碍有大量研究,但关于补偿的讨论,特别是老年人的多模式表现,还需要进一步的概括和解释。为了填补这一空白,本文试图勾勒出中国老年人在语用障碍中的多模式补偿表现及其相应的语用功能。基于不同的视角,本文区分了三种类型的补偿表现,即个人间和个人内视角的补偿、跨语言层面的补偿以及跨符号系统和模式的补偿,通过举例说明作者团队构建的多模式老年语篇语料库,并解释了这些补偿性表现如何有助于完成交际。本研究中分类和分析的老年人的补偿表现可以用大脑适应和补偿假说来解释。补偿性能是由于多个感觉器官及其神经网络之间的互连。对中国老年人多模式补偿的表现和机制的探索,不仅验证和拓展了大脑适应和补偿理论,而且可能提高老年人在遇到语用障碍时的交际效率。
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引用次数: 0
Promoting language and health studies for a better society 促进语言和健康研究,建设更美好的社会
Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.07.003
Wen Ma , Louise Cummings
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引用次数: 0
Long COVID: The impact on language and cognition 长冠肺炎:对语言和认知的影响
Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.05.001
Louise Cummings

COVID-19 continues to have profound health and economic consequences around the world. Aside from the large number of deaths from this viral infection, there is a growing population of individuals who have not made a good recovery from their COVID illnesses. These children and adults continue to experience COVID symptoms for months and even years after the onset of their illness. One group of symptoms that can be particularly troubling are language and cognitive difficulties. These difficulties can compromise learning and academic attainment and prevent a return to employment in adults. The author has examined the language skills of 110 adults who reported experiencing Long COVID. Among these individuals, 99 adults reported significant cognitive-linguistic difficulties as part of their ongoing COVID symptoms. This article examines these difficulties in detail. It proposes that these cognition-based language difficulties should be included in the class of cognitive-communication disorders. These disorders are typically assessed and treated by speech-language pathologists who manage communication difficulties in clients with traumatic brain injury, right-hemisphere damage, and neurodegeneration.

新冠肺炎继续对世界各地的健康和经济产生深远影响。除了这种病毒感染导致的大量死亡外,还有越来越多的人没有从新冠肺炎中很好地康复。这些儿童和成年人在发病后数月甚至数年内仍会出现新冠肺炎症状。语言和认知困难是一组特别令人不安的症状。这些困难可能会影响学习和学术成就,并阻止成年人重返就业岗位。作者调查了110名报告患有长期新冠肺炎的成年人的语言技能。在这些人中,99名成年人报告称,作为其持续新冠肺炎症状的一部分,他们存在严重的认知语言困难。本文详细探讨了这些困难。建议将这些基于认知的语言困难纳入认知交际障碍的范畴。这些疾病通常由言语语言病理学家进行评估和治疗,他们负责处理创伤性脑损伤、右半球损伤和神经退行性变患者的沟通困难。
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引用次数: 2
Metaphorical and multimodal representation of autism in Chinese video public service announcements: Lonely twinkling 中文视频公益广告中自闭症的隐喻与多模态表现:孤独的闪烁
Pub Date : 2023-06-01 DOI: 10.1016/j.laheal.2023.06.006
Molly Xie Pan

Metaphors are prevalent in the discourse of autism. Inappropriate use of metaphors might lead to stigmatization of the autistic group. Nevertheless, the multimodal representation of autism in metaphorical video PSAs remains underexplored, leaving the metaphorical portrayals of autistic community in the PSA discourse unclear. This study addresses the aforementioned issues by investigating the representation of autism in 39 Chinese metaphorical video PSAs. Findings showed that 1) the incidence and clinical characteristics were two clinical aspects of autism multimodally represented in PSAs; 2) symptoms of Difficulties in Social Communication were more frequently presented; 3) metaphorical representations of autism concerned several topics, including the autistic group, the lives of autistic children, treatment of autism, clinical characteristics, autism, and parents of autistic children; 4) the most frequent metaphor children with autism are stars/children of stars labelled the autistic children as stars, potentially contributing to stigmatization. Practical implications for designing metaphorical video PSAs about autism were provided.

隐喻在自闭症的话语中很普遍。隐喻的不当使用可能会导致自闭症群体的污名化。然而,自闭症在隐喻性视频PSA中的多模式表现仍然没有得到充分的探索,这使得PSA话语中对自闭症社区的隐喻描述不清楚。本研究通过调查39个中国隐喻性视频公益广告中自闭症的表现来解决上述问题。研究结果表明:1)自闭症的发病率和临床特征是PSA中多模态表现的两个临床方面;2) 社会交往困难症状出现频率较高;3) 自闭症的隐喻表征涉及几个主题,包括自闭症群体、自闭症儿童的生活、自闭症的治疗、临床特征、自闭症和自闭症儿童父母;4) 自闭症儿童最常见的隐喻是星星/星星的孩子把自闭症儿童称为星星,这可能会导致污名化。为设计关于自闭症的隐喻性视频公益广告提供了实际意义。
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引用次数: 0
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Language and Health
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