This paper investigates the experiences of patients in communicating with healthcare practitioners within the context of supported self-management in the UK. Employing an innovative analytical concept of “narrative modulation”, this study examines narrative data from patients’ focus group discussions. Two contrasting processes, attunement and misattunement, emerge as narrative modulators that shape and form the meaning and trajectory of participants’ storytelling. The study identifies multiple instances of misattunement in patient-practitioner interactions, highlighting a prevailing emphasis on diagnosis and treatment-focused perspectives, often at the expense of individual patients' experiences during clinical encounters. Despite these challenges, the participants expressed a desire for care that listens to and understands their unique experiences. They also wished to play an active role in their healthcare decisions, endorsing attunement, which promotes understanding and collaborative self-management supported by practitioners. This paper further discusses the implications of these findings for improving both patient-practitioner communication and supported self-management.
As the emergency phase of the COVID-19 pandemic subsides, the long-term health problems caused by SARS-CoV-2 infection are becoming increasingly clear. So-called Long COVID, or post COVID-19 condition, is a debilitating illness that impacts functioning for months and even years after infection. Alongside physical symptoms, Long COVID has a particularly insidious effect on cognition and language. While many studies have documented non-linguistic cognitive impairments in people with Long COVID, what has not been documented to any significant extent is the presence and duration of language difficulties in Long COVID. This study addresses this lack of research by examining the cognitive-linguistic skills of 41 adults with Long COVID. These adults were assessed at two time points using a test protocol of 12 language tasks. This paper describes the findings of the 6-month follow-up study. Results indicate that difficulties in immediate and delayed verbal recall persist long after the onset of COVID symptoms, even as improvements occur in verbal fluency and the informativeness of spoken discourse. It is argued that these difficulties are a significant contributing factor in a lack of work return in these adults. Implications of these findings for the provision of speech-language pathology services to these adults and occupational health policies relating to Long COVID are discussed.
Endometriosis is a chronic gynecological illness faced by an estimated one-tenth of women worldwide. Despite being a common condition, studies of the disease in Latin American settings are still scarce. This paper presents a study of 30 autobiographical interviews with Chilean patients who are L1 Spanish speakers. Our study aims to fill the gap in understanding the endometriosis experience of Latin American women, unveiling how to assist the patients better and improve their quality of life. It is one of the first studies to describe the experience of Chilean women in navigating the disease and the impacts on their routines. We used a mixed-methods approach to achieve our goal, employing a combination of NLP and content analysis. First, we generated word embeddings for three main keywords, "pain," "endometriosis," and "menstruation." Furthermore, we processed the data to locate occurrences of "pain" in the corpus. We coded the occurrences into nine semantic domains of the endometriosis pain experience: intensity, normalization, treatment, frequency, menstruation, feeling, pain location, symptom, and impact. Our results shed light on the details of the journey with endometriosis and may lead to improvements in patient-doctor communication and policymaking to benefit patients.
Utilizing the Putonghua Communicative Development Inventory-Toddler Form, this longitudinal study assessed expressive language development (including lexicon, grammar, and decontextualized language) twice over a year’s span in two subgroups (high verbal, low verbal) of 77 2–6-year-old Mandarin-exposed children with autism spectrum disorder (ASD). Both subgroups showed the steeper increase of structural language (lexicon and grammar) vs. the flatter growth of decontextualized language. Moreover, children’s initial language skills (but not autism severity or language environment) predicted language outcomes one year later in both groups. The use of decontextualized language also predicted structural language development in the low verbal group. These findings confirmed the uneven expressive language growth across multiple language domains in subgroups of children with ASD and underscored the contribution of early language skills to their expressive language development. Moreover, the slow growth and significant predictivity of decontextualized language warrant targeted intervention in promoting children with ASD’s talk beyond the ‘here-and-now’ situation in communication.
This article discusses insights from a research on the management of emotions in medical interactions involving Italian healthcare providers, Arabic speaking interpreters and Arabic speaking patients. The findings suggest that the possibility for patient’s emotions to become relevant in the medical encounter is affected by the activity of interpreters as mediators of the inter-linguistic interaction. While this contribution also considers examples of interpreters’ choices excluding the emotions of the patients from the interaction, the discussion focuses on affective formulations of patient’s expression of emotions, as an interactional resource to make doctors aware of patients’ emotional expressions emerged from dyadic monolingual interactions. This article concludes by suggesting that interpreters as linguistic mediators may effectively promote emotional literacy in healthcare interactions, promoting a patient-centred model of multilingual healthcare.