Measurement and Evaluations in Cancer Care最新文献_第2页

Perspectives of health care professionals on the value of physical examinations for early detection of breast cancer recurrences: More than just a detection method? 保健专业人员对早期发现乳腺癌复发的体检价值的看法：不仅仅是一种检测方法？

Measurement and Evaluations in Cancer Care

Pub Date : 2025-03-11 DOI: 10.1016/j.ymecc.2025.100016

A. Dekker-Klaassen , L.T.H. Godding , M. van Hezewijk , J.C. Korevaar , J. Wiegersma , C.H.C. Drossaert , S. Siesling , on behalf of the NABOR project group

Background and objectives

Physical examinations (PE) detect relatively few recurrences after breast cancer treatment, but are still recommended in surveillance guidelines. This study explores Health Care Professionals (HCPs) perspectives on the frequency and value of PE.

Methods

Semi-structured interviews were conducted in 11 Dutch hospitals with 22 HCPs involved in breast cancer follow-up. Interviews were coded by the framework methodology using the software Atlas.ti 23.

Results

Most HCPs occasionally deviated from the guideline, giving some patients more and others less PE than recommended. The majority attributed rather limited value to PE for detecting recurrences and all performed PE more often than they perceived valuable. More PE was performed to meet patients’ wishes, to evaluate treatment effects or to detect signals of recurrences which imaging cannot assess. Also the organization of consultations determined PE’s frequency. Performing less PE was mainly because of PE’s low detection rates of recurrences.

Conclusions

HCPs seem aware of the low detection rates but still perform more PE than perceived as valuable to detect recurrences because of reasons other than detecting recurrences. Better information provision on PE’s limited value in detecting recurrences may prevent unrealistic expectations and unnecessary PE. Further evidence on the cost-effectiveness of PE is warranted to revise guidelines.

背景和目的：乳腺癌治疗后，体格检查（PE）检测到的复发相对较少，但仍被推荐用于监测指南。本研究探讨卫生保健专业人员（HCPs）对体育锻炼频率和价值的看法。方法对荷兰11家医院22名参与乳腺癌随访的HCPs进行半结构化访谈。访谈采用框架方法，使用Atlas软件进行编码。ti 23。结果大多数HCPs偶尔会偏离指南，给一些患者的PE比推荐的多，而另一些患者的PE比推荐的少。大多数人认为PE在检测复发方面的价值相当有限，而且所有人都比他们认为的价值更频繁地进行PE。更多的PE是为了满足患者的愿望，评估治疗效果或检测影像学无法评估的复发信号。协商的组织也决定了PE的频率。PE较少的主要原因是PE的复发检出率低。结论shcps似乎意识到检出率较低，但由于其他原因，他们仍然执行更多的PE，而不是认为有价值的复发检测。更好地提供关于PE在发现复发方面的有限价值的信息，可以防止不切实际的期望和不必要的PE。关于PE成本效益的进一步证据有必要修订指南。

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引用次数: 0

Prospective psychometric validation of the swahili translated and adapted Pediatric Patient Reported Outcomes version of the Common Terminology Criteria for Adverse Events (Ped-PRO-CTCAE) 不良事件通用术语标准（Ped-PRO-CTCAE）的斯瓦希里语翻译和改编的儿科患者报告结果版本的前瞻性心理测量学验证

Measurement and Evaluations in Cancer Care

Pub Date : 2025-01-29 DOI: 10.1016/j.ymecc.2025.100014

Hutton Chapman , Jacqueline Kamanga , Heronima J. Kashaigili , Kristin Schroeder

Background

High quality clinical research is necessary in order to address the significant disparities in pediatric cancer outcomes seen in low- and middle-income countries (LMICs). Patient reported outcomes are now recognized as a critical part of many clinical trials, however, use of patient reported outcomes (PROs) in LMICs is limited by the lack of thoroughly translated and validated PRO surveys. To address this gap in Tanzania, we subsequently undertook the prospective psychometric validation of a recently translated Swahili Ped-PRO-CTCAE survey in order to support its use in Swahili speaking settings.

Methodology

Between June and September, 2023, 41 patients seen in the pediatric oncology clinic at Bugando Medical Centre, in Mwanza, Tanzania, were enrolled. Patients or their parents, as age appropriate, were administered the Swahili Ped-PRO-CTCAE. Simultaneously, a CTCAE provider assessment was completed. Descriptive statistical and psychometric analysis of survey results was performed using R.

Results

49 surveys were collected, with 8 participants repeating surveys at later clinic visits. Internal consistency within symptom domains was supported by polychoric correlation coefficients all ≥ 0.5 with most ≥ 0.7. Principle component analysis of all evaluable symptom domains demonstrated one component explained > 70 % of the cumulative variance for most symptoms. Concurrent validity was supported as nearly all Spearman correlation coefficients between Ped-PRO-CTCAE questions and relevant provider assessment questions were all ≥ 0.5.

Conclusions

Administration of the Swahili translated and adapted Ped-PRO-CTCAE in a representative Swahili speaking pediatric cancer patient population proved feasible and psychometric evaluation of survey results support the validity of the translation.

背景：为了解决中低收入国家儿童癌症结局的显著差异，高质量的临床研究是必要的。患者报告的结果现在被认为是许多临床试验的关键部分，然而，由于缺乏彻底翻译和验证的PRO调查，在低收入国家中使用患者报告的结果（PRO）受到限制。为了解决坦桑尼亚的这一差距，我们随后对最近翻译的斯瓦希里语Ped-PRO-CTCAE调查进行了前瞻性心理测量验证，以支持其在斯瓦希里语环境中的使用。方法：在2023年6月至9月期间，在坦桑尼亚姆万扎Bugando医疗中心儿科肿瘤学诊所就诊的41名患者被纳入研究。患者或其父母按年龄适当给予斯瓦希里Ped-PRO-CTCAE。同时，完成了CTCAE提供者评估。结果收集了49份调查问卷，其中8名参与者在以后的门诊访问中重复调查。多时相关系数均≥ 0.5，多数≥ 0.7支持症状域内部一致性。所有可评估症状域的主成分分析表明，一个成分解释了大多数症状的累积方差>； 70 %。同时效度得到支持，几乎所有的pd - pro - ctcae问题与相关提供者评估问题的Spearman相关系数均≥ 0.5。结论在有代表性的斯瓦希里语儿童癌症患者群体中使用翻译和改编的Ped-PRO-CTCAE证明是可行的，调查结果的心理测量评估支持翻译的有效性。

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引用次数: 0

Performance of Subjective Global Nutrition Assessment (SGNA) in predicting nutritional status among children with cancer: A cross-sectional study 主观整体营养评估（SGNA）在预测癌症儿童营养状况中的表现：一项横断面研究

Measurement and Evaluations in Cancer Care

Pub Date : 2025-01-16 DOI: 10.1016/j.ymecc.2025.100013

Maira Razzaq , Qaisar Raza , Muniba Khaliq , Sajid Khan Tahir , Mahwish Faizan

Background

Children diagnosed with cancer are more susceptible to malnutrition and should receive extra consideration when it comes to nutritional evaluation. It is difficult to analyze nutritional status in children undergoing cancer therapy because there isn't a single, reliable tool. Anthropometric measurements are the most widely used objective tool for evaluating malnutrition in children; but it can be easily affected by disease and treatment, reducing its accuracy for evaluating body composition. The aim of this study was to evaluate the effectiveness of Subjective Global Nutrition Assessment (SGNA) in predicting nutritional status as compared to anthropometric measurements among children with cancer in Pakistan.

Methods

This cross-sectional study was conducted in oncology department of hospitals in Lahore, Pakistan. SGNA along with anthropometric were conducted on children aged 2–18 years receiving oncological treatment. To evaluate agreement between SGNA and anthropometric indicators in identifying malnutrition status, sensitivity, specificity, positive predictive value (PPV) and negative predictive value (NPV) was performed.

Results

In 135 children 68.1 % were identified as having moderate or severe malnutrition according to SGNA. SGNA demonstrated the best performance with MUAC/A, showing a sensitivity of 85.7 %, specificity of 47.2 %, PPV of 58.7 %, and NPV of 88.1 %. But the agreement between SGNA and objective measures was only fair.

Conclusion

The SGNA proved useful for assessing the nutritional status of children with cancer and was effective in monitoring the prevalence of malnutrition when compared to objective nutritional evaluation methods.

被诊断患有癌症的儿童更容易营养不良，在营养评估方面应该得到额外的考虑。很难分析接受癌症治疗的儿童的营养状况，因为没有一个单一的、可靠的工具。人体测量是评估儿童营养不良最广泛使用的客观工具；但它很容易受到疾病和治疗的影响，从而降低了其评估身体成分的准确性。本研究的目的是评估主观全球营养评估（SGNA）在预测巴基斯坦癌症儿童营养状况方面的有效性，并将其与人体测量测量相比较。方法横断面研究在巴基斯坦拉合尔医院肿瘤科进行。对接受肿瘤治疗的2-18岁儿童进行SGNA和人体测量。为了评估SGNA和人体测量指标在识别营养不良状况方面的一致性，对敏感性、特异性、阳性预测值（PPV）和阴性预测值（NPV）进行了评估。结果135例患儿中68.1 %根据SGNA诊断为中度或重度营养不良。SGNA在MUAC/A中表现最好，敏感性为85.7 %，特异性为47.2 %，PPV为58.7 %，NPV为88.1 %。但SGNA与客观措施之间的协议是公平的。结论与客观营养评价方法相比，SGNA可用于评估癌症儿童的营养状况，并能有效监测营养不良的发生率。

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引用次数: 0

Psychometric evaluation of the Chinese version of Templer’s death anxiety scale using item response theory 用项目反应理论对中文版Templer死亡焦虑量表进行心理测量评价

Measurement and Evaluations in Cancer Care

Pub Date : 2024-12-19 DOI: 10.1016/j.ymecc.2024.100012

Furong Chen , Yiguo Deng , Siyu Li , Qihan Zhang , M. Tish Knobf , Zengjie Ye

Objective

Recently, the importance of assessing death anxiety (DA) has gained increasing recognition. The Chinese version of Templer's Death Anxiety Scale (C-T-DAS) is one of the most commonly used tools to evaluate death anxiety in cancer patients. This study is the first to examine the C-T-DAS in cancer patients using both non-parametric and parametric item response theory (IRT) methods.

Methods

This study included cancer patients from the "Be Resilient to Cancer" project in Guangdong, China, who completed the C-T-DAS after recruitment. The data collected were then randomly divided into Dataset 1 and Dataset 2 at a 1:1 ratio. Unidimensionality, monotonicity and local independence was estimated by non-parameter IRT of Mokken scale analysis (MSA) in Dataset 1. Parameter Item Response Theory (IRT) was performed in Dataset 2. Differential Item Functioning (DIF) analysis was used to compare the gender differences in all samples.

Results

A total of 462 patients participated in the study. Through MSA, three items were removed, and two factors, "Fear of Death" and "Acceptance of Death," were retained. IRT analysis showed strong discrimination, moderate difficulty, and low guessing probabilities for the items. Additionally, DIF analysis revealed non-uniform gender differences in one item from the "Fear of Death" dimension.

Conclusion

The revised C-T-DAS exhibits robust validity and reliability for evaluating death anxiety in Chinese cancer patients.

目的近年来，人们越来越认识到评估死亡焦虑（DA）的重要性。中文版Templer死亡焦虑量表（C-T-DAS）是评估癌症患者死亡焦虑最常用的工具之一。本研究首次采用非参数项目反应理论和参数项目反应理论（IRT）方法对癌症患者的C-T-DAS进行了研究。方法本研究纳入了来自中国广东省“抗癌”项目的癌症患者，他们在招募后完成了C-T-DAS。然后将收集到的数据按1:1的比例随机分为数据集1和数据集2。利用Mokken尺度分析（MSA）的非参数IRT估计数据集1的单维性、单调性和局部独立性。在数据集2中进行参数项反应理论（IRT）。差异项目功能（DIF）分析用于比较所有样本的性别差异。结果共462例患者参与研究。通过MSA，删除了三个项目，保留了两个因素，即“害怕死亡”和“接受死亡”。IRT分析显示，这些题目的辨别能力强，难度适中，猜测概率低。此外，DIF分析显示，在“对死亡的恐惧”维度的一个项目中，性别差异并不统一。结论修订后的C-T-DAS在评估中国癌症患者死亡焦虑方面具有较强的效度和信度。

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引用次数: 0

Quality criteria for paediatric oncology centres in Switzerland: A multistakeholder consensus finding process 瑞士儿科肿瘤中心的质量标准：多方利益相关者共识发现过程

Measurement and Evaluations in Cancer Care

Pub Date : 2024-12-09 DOI: 10.1016/j.ymecc.2024.100011

Sarah P. Schladerer , Maria Otth , Katrin Scheinemann

Introduction

Quality criteria aim to standardise and optimise the care provided to patients. Quality criteria for paediatric oncology centres exist in several countries but are missing for Switzerland. Therefore, we aimed to define quality criteria for paediatric oncology centres in Switzerland.

Methods

We conducted a three-round modified online Delphi process with 65 national stakeholders to reach a consensus on quality criteria retrieved from international sources. We asked stakeholders to decide on the relevance of categories of quality criteria (round 1), to rate (round 2) and re-rate (round 3) quality criteria regarding their relevance on a 5-point Likert scale, and to agree on a final list of quality criteria (round 3).

Results

Twenty-nine stakeholders (response rate (RR) 45 %) participated in round 1, 23 (RR 35 %) in round 2, and 24 (RR 37 %) in round 3. In round 1, ≥ 50 % of stakeholders agreed that the six categories of facilities, multidisciplinary team and other experts, supportive care, treatment, long-term care, and volume and numbers are relevant in round 1. In round 2, ≥ 75 % of stakeholders rated 61 quality criteria as “relevant” or “very relevant”. In round 3, ≥ 75 % of stakeholders rated one additional quality criterion as “relevant” or “very relevant”, resulting in the agreement on a list of 62 relevant quality criteria.

Conclusion

Implementing these quality criteria can improve transparency, comparability, and, therefore, the quality of care in treatment centres. These quality criteria can be piloted nationally but need to be regularly reviewed. They may also serve as a reference for other countries.

质量标准旨在标准化和优化提供给患者的护理。几个国家都有儿科肿瘤中心的质量标准，但瑞士没有。因此，我们旨在确定瑞士儿科肿瘤中心的质量标准。方法我们对65个国家的利益相关者进行了三轮改进的在线德尔菲过程，以就从国际资源中检索的质量标准达成共识。我们要求利益相关者决定质量标准类别的相关性（第1轮），在5点李克特量表上对质量标准的相关性进行评分（第2轮）和重新评分（第3轮），并就质量标准的最终清单达成一致（第3轮）。结果29名利益相关者（反应率（RR） 45 %）参加了第1轮，23名（RR 35 %）参加了第2轮，24名（RR 37 %）参加了第3轮。在第1轮中，≥ 50 %的利益相关者同意6类设施、多学科团队和其他专家、支持性护理、治疗、长期护理以及数量和数量在第1轮中是相关的。在第2轮中，≥ 75 %的利益相关者将61个质量标准评为“相关”或“非常相关”。在第3轮中，≥ 75 %的利益相关者将一个额外的质量标准评为“相关”或“非常相关”，导致对62个相关质量标准的列表达成一致。结论实施这些质量标准可以提高透明度和可比性，从而提高治疗中心的护理质量。这些质量标准可以在全国试行，但需要定期审查。对其他国家也有借鉴意义。

{"title":"Quality criteria for paediatric oncology centres in Switzerland: A multistakeholder consensus finding process","authors":"Sarah P. Schladerer , Maria Otth , Katrin Scheinemann","doi":"10.1016/j.ymecc.2024.100011","DOIUrl":"10.1016/j.ymecc.2024.100011","url":null,"abstract":"<div><h3>Introduction</h3><div>Quality criteria aim to standardise and optimise the care provided to patients. Quality criteria for paediatric oncology centres exist in several countries but are missing for Switzerland. Therefore, we aimed to define quality criteria for paediatric oncology centres in Switzerland.</div></div><div><h3>Methods</h3><div>We conducted a three-round modified online Delphi process with 65 national stakeholders to reach a consensus on quality criteria retrieved from international sources. We asked stakeholders to decide on the relevance of categories of quality criteria (round 1), to rate (round 2) and re-rate (round 3) quality criteria regarding their relevance on a 5-point Likert scale, and to agree on a final list of quality criteria (round 3).</div></div><div><h3>Results</h3><div>Twenty-nine stakeholders (response rate (RR) 45 %) participated in round 1, 23 (RR 35 %) in round 2, and 24 (RR 37 %) in round 3. In round 1, ≥ 50 % of stakeholders agreed that the six categories of facilities, multidisciplinary team and other experts, supportive care, treatment, long-term care, and volume and numbers are relevant in round 1. In round 2, ≥ 75 % of stakeholders rated 61 quality criteria as “relevant” or “very relevant”. In round 3, ≥ 75 % of stakeholders rated one additional quality criterion as “relevant” or “very relevant”, resulting in the agreement on a list of 62 relevant quality criteria.</div></div><div><h3>Conclusion</h3><div>Implementing these quality criteria can improve transparency, comparability, and, therefore, the quality of care in treatment centres. These quality criteria can be piloted nationally but need to be regularly reviewed. They may also serve as a reference for other countries.</div></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"3 ","pages":"Article 100011"},"PeriodicalIF":0.0,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143136155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Assessing needs at the workplace: The development of a questionnaire for oncology professionals 工作场所需求评估：肿瘤专业人员问卷调查的开发

Measurement and Evaluations in Cancer Care

Pub Date : 2024-12-07 DOI: 10.1016/j.ymecc.2024.100010

Francesca Chiesi , Georgia Marunic , Aldo Chioni , Lucia Caligiani , Laura Belloni , Monica Giuli , Guido Miccinesi , Andrea Bonacchi

Background and aim

The unmet needs of patients with cancer have been largely documented, but there is a lack of investigations into the needs of people who care for them. The current study aimed to fill this gap by developing a valid, reliable, easy-to-use questionnaire to assess the work-related needs of oncology professionals.

Methods

The instrument was developed following several phases. Different groups of experts worked to identify the relevant needs and to formulate a provisional pool of items and the relative response mode. Content validity was tested, and some adjustments were made excluding some items and changing the response mode. The psychometric properties of the resulting questionnaire were analyzed collecting data on a large sample of oncology professionals (N= 380; 80% females; age: M = 48.25, SD = 10.64 [range: 23-77], 35.8% physicians, 42.6% nurses, 8.4% socio-health workers, 7.9% medical diagnostic technicians, 5.3% psychologists).

Results

During different steps of exploratory factor analyses, several items were removed, and four factors emerged. Exploratory graph analysis confirmed the presence of four clusters consisting of the same items. Construct and criterion validity were tested founding evidence of relationships with resilience, job satisfaction, psychological, relational and general well-being, work-related burnout, depression, and stress. Incremental validity was also proved.

Conclusion

The present study provides a reliable and valid questionnaire to evaluate the needs of oncology professionals. Surveying these needs could be done to prevent psycho-physical discomfort, promote well-being, and, eventually, improve the quality of healthcare service delivery.

背景与目的癌症患者未满足的需求已被大量记录，但缺乏对照顾他们的人的需求的调查。目前的研究旨在通过开发一种有效、可靠、易于使用的问卷来评估肿瘤专业人员的工作需求，从而填补这一空白。方法本仪器的研制分几个阶段进行。不同的专家小组努力确定相关的需求，并制订一个临时项目库和相应的应对模式。进行了内容效度测试，并做了一些调整，剔除了部分项目，改变了回答方式。收集大量肿瘤学专业人员(N= 380；80%的女性;年龄：M = 48.25, SD = 10.64[范围：23-77]，医生35.8%，护士42.6%，社会卫生工作者8.4%，医疗诊断技术人员7.9%，心理学家5.3%)。结果在探索性因素分析的不同步骤中，剔除了几个项目，产生了四个因素。探索性图分析证实了由相同项目组成的四个聚类的存在。结构和标准效度测试与弹性、工作满意度、心理、关系和总体幸福感、工作倦怠、抑郁和压力之间的关系。增量有效性也得到了证明。结论本研究提供了一份可靠、有效的问卷来评估肿瘤专业人员的需求。调查这些需求可以预防身心不适，促进健康，并最终提高医疗保健服务的质量。

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引用次数: 0

Enhancing validity through cognitive interviewing: A methodological example using the registered nursing forecasting nurse survey 通过认知访谈提高有效性：注册护士预测护士调查的方法学实例

Measurement and Evaluations in Cancer Care

Pub Date : 2024-12-01 DOI: 10.1016/j.ymecc.2024.100008

Zhuming Bao , Jenny Harris , Verna Lavender , Anne Marie Rafferty , Jo Armes

Purpose

Systemic anti-cancer therapy (SACT) nurses are facing increasing workload challenges against the backdrop of increased treatment complexity and patient caseload, coupled with a lack of policy guidance or research about the required composition of SACT workforce to ensure optimal care and outcomes. The Registered Nursing Forecasting (RN4CAST) study is an international research initiative designed to model what happens to the quality of patient care and care outcomes when components of the workforce change in acute and geriatric inpatient units. The insights from the RN4CAST have not been applied to the oncology setting. Therefore, the purpose of the study is to amend and test the RN4CAST nurse survey to ensure draft Registered Nursing Forecasting SACT day unit (RN4CAST-SACT-D) survey items are relevant, unambiguous/straightforward and the design/format is usable.

Methods

This study adopted cognitive interviewing (CI), it combed two analytical approaches (reparative approach and descriptive approach) while Question Appraisal System (QAS) and cognitive theory were adopted.

Results

Totally, 12 interviews were conducted within two rounds, 48 items remained unchanged, 20 items underwent rephrasing for enhanced clarity, 20 new items were incorporated to address test content gaps, and adjustments were made to the provided answers to 5 questions.

Conclusion

This study refined the RN4CAST survey for SACT day units through cognitive interviewing, addressing comprehension, retrieval, judgment, and response.issues. Adjustments in wording improved clarity and relevance, aligning the survey with nurses' experiences.

目的：系统性抗癌治疗（SACT）护士在治疗复杂性和患者数量增加的背景下，面临着越来越多的工作量挑战，再加上缺乏政策指导或关于SACT劳动力组成的研究，以确保最佳的护理和结果。注册护理预测（RN4CAST）研究是一项国际研究倡议，旨在模拟急性和老年住院病房劳动力组成变化对患者护理质量和护理结果的影响。RN4CAST的见解尚未应用于肿瘤学领域。因此，本研究的目的是修改和测试RN4CAST护士调查，以确保注册护理预测SACT日单位（RN4CAST-SACT- d）调查项目的相关性、明确/直接性和设计/格式的可用性。方法本研究采用认知访谈法（cognitive interview， CI），在问题评价系统（Question evaluation System， QAS）和认知理论的基础上，对两种分析方法（修复法和描述法）进行梳理。结果两轮共进行了12次访谈，其中48项保持不变，20项进行了改写以提高清晰度，20项新增以解决测试内容空白，并对5个问题的已提供答案进行了调整。结论本研究通过认知访谈完善了RN4CAST对SACT日单位的调查，解决了理解、检索、判断和反应问题。措辞的调整提高了清晰度和相关性，使调查与护士的经验保持一致。

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引用次数: 0

Patient reported experience measures to assess psychosocial cancer care: A rapid review of current instruments 用于评估社会心理癌症护理的患者报告体验测量方法：对现有工具的快速审查

Measurement and Evaluations in Cancer Care

Pub Date : 2024-08-24 DOI: 10.1016/j.ymecc.2024.100007

Zoe Clothier , Jo Armes , Agnieszka Kehinde , Victoria Mumford , Kate Upshon , Clare Williamson , Rachel MacAthur , Rachel Stevenson , Sophie Otter , May Teoh , Jenny Harris

Purpose

Patient Reported Experience Measures (PREMs) are instruments that capture patients’ perspectives of health care services and offer insight into the perceived quality of care and identify areas for improvement. This rapid review aimed to identify and evaluate existing PREMs that explore patients’ experiences of psychosocial cancer care, describe their conceptual content and assess the quality of their development.

Methods

Databases (MEDLINE and PsycINFO) were searched from January 1995 to January 2023. Eligible papers included PREMs developed or tested in adult cancer populations. The psychosocial content of concepts assessed by PREMs were mapped and the quality of their development assessed using the Quality Assessment Checklist (QAC).

Results

Twenty-three articles describing the development of 20 PREMs were identified. The content of these PREMs varied in terms of psychosocial domain coverage and the rigour of the development process. Quality assessment indicated that whilst instruments were well-developed, psychometric testing at this stage was less thoroughly reported on.

Conclusion

Several patient-reported instruments are available to measure patients’ psychosocial cancer care experiences; however, these differ in content and thoroughness. The choice of instrument used by researchers will therefore depend on research or clinical objectives and on striking a balance between comprehension and length. Limitations of this review are discussed.

目的患者报告体验测量（Patient Reported Experience Measures，PREMs）是一种记录患者对医疗保健服务看法的工具，可帮助患者深入了解所感知的医疗保健质量并确定需要改进的方面。本快速综述旨在识别和评估现有的患者社会心理癌症护理经验报告量表（PREMs），描述其概念内容并评估其开发质量。符合条件的论文包括在成人癌症人群中开发或测试的 PREMs。对 PREMs 所评估概念的社会心理内容进行了映射，并使用质量评估核对表 (QAC) 对其开发质量进行了评估。这些 PREM 的内容在社会心理领域的覆盖面和开发过程的严谨性方面各不相同。质量评估表明，虽然工具开发得很好，但对这一阶段的心理测试报告得不太全面。结论目前有多种患者报告工具可用于测量患者的社会心理癌症护理体验；但是，这些工具的内容和全面性各不相同。因此，研究人员对工具的选择将取决于研究或临床目标，以及在理解力和篇幅之间取得平衡。本综述的局限性也在讨论之列。

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引用次数: 0

Psychometric properties of the Sexual Attitudes and Beliefs Scale (SABS-C8) for health professionals in cancer care settings 性态度和信念量表（SABS-C8）的心理测量特性，适用于癌症护理环境中的医护人员

Measurement and Evaluations in Cancer Care

Pub Date : 2024-05-10 DOI: 10.1016/j.ymecc.2024.100006

Sharon Linsey Bingham , Cherith Jane Semple , Sean Richard O’Connor , Lynn Dunwoody

Background

Cancer and associated treatment can have a significant and detrimental impact on a person’s sexual wellbeing. Sexual attitudes and beliefs of healthcare professionals (HPs) working in cancer care settings can affect the support provided to help patients and partners to manage these concerns. This study evaluated psychometric properties of the Sexual Attitudes and Beliefs Scale (SABS-C8) adapted for use in cancer care settings.

Methods

Adaptation of original SABS was informed by evidence reviews and an expert panel of researchers. The 12-item SABS was completed by HPs working in cancer care (n = 391) prior to completing an eLearning intervention aimed at promoting provision of sexual support to patients and partners. Exploratory (EFA) and confirmatory factor analysis (CFA) were conducted, reliability and validity of the scale were also explored.

Results

EFA showed potential for a three-factor model, with CFA indicating a better model fit (CMIN/DF < 3; GFI > .9; CFI > .9 and < RMSEA < .08) for 8 of the SABS-C items, lending support for a unidimensional model, with moderately acceptable reliability of.69. The 8-item scale was also able to discriminate between known groups with lower attitudinal barriers to providing sexual support apparent in HPs with over 12 years of experience, in nurses compared with other HPs, and in those with previous sexual wellbeing education (p < 0.001).

Conclusion

The SABS-C8 is a brief scale with acceptable reliability that can be used to assess attitudinal barriers to sexual support and help to identify HPs learning needs around providing sexual support in cancer care.

背景癌症和相关治疗会对患者的性健康产生重大不利影响。在癌症护理环境中工作的医护人员（HPs）的性态度和信念会影响到为帮助患者和伴侣处理这些问题而提供的支持。本研究评估了性态度和信念量表（SABS-C8）的心理测量特性，该量表经调整后可用于癌症护理环境。在完成一项旨在促进向患者及其伴侣提供性支持的电子学习干预之前，由从事癌症护理工作的 HPs（n = 391）完成了 12 个项目的 SABS。结果EFA显示了三因素模型的潜力，而CFA则表明SABS-C中的8个条目具有较好的模型拟合度（CMIN/DF < 3; GFI > .9; CFI > .9 and < RMSEA < .08），支持单维模型，信度为0.69，可适度接受。8 个项目的量表还能够区分已知的群体，在具有 12 年以上工作经验的 HPs、护士与其他 HPs 相比，以及以前接受过性健康教育的 HPs 中，提供性支持的态度障碍明显较低（p <0.001）。

{"title":"Psychometric properties of the Sexual Attitudes and Beliefs Scale (SABS-C8) for health professionals in cancer care settings","authors":"Sharon Linsey Bingham , Cherith Jane Semple , Sean Richard O’Connor , Lynn Dunwoody","doi":"10.1016/j.ymecc.2024.100006","DOIUrl":"10.1016/j.ymecc.2024.100006","url":null,"abstract":"<div><h3>Background</h3><p>Cancer and associated treatment can have a significant and detrimental impact on a person’s sexual wellbeing. Sexual attitudes and beliefs of healthcare professionals (HPs) working in cancer care settings can affect the support provided to help patients and partners to manage these concerns. This study evaluated psychometric properties of the Sexual Attitudes and Beliefs Scale (SABS-C8) adapted for use in cancer care settings.</p></div><div><h3>Methods</h3><p>Adaptation of original SABS was informed by evidence reviews and an expert panel of researchers. The 12-item SABS was completed by HPs working in cancer care (n = 391) prior to completing an eLearning intervention aimed at promoting provision of sexual support to patients and partners. Exploratory (EFA) and confirmatory factor analysis (CFA) were conducted, reliability and validity of the scale were also explored.</p></div><div><h3>Results</h3><p>EFA showed potential for a three-factor model, with CFA indicating a better model fit (CMIN/DF < 3; GFI > .9; CFI > .9 and < RMSEA < .08) for 8 of the SABS-C items, lending support for a unidimensional model, with moderately acceptable reliability of.69. The 8-item scale was also able to discriminate between known groups with lower attitudinal barriers to providing sexual support apparent in HPs with over 12 years of experience, in nurses compared with other HPs, and in those with previous sexual wellbeing education (<em>p</em> < 0.001).</p></div><div><h3>Conclusion</h3><p>The SABS-C8 is a brief scale with acceptable reliability that can be used to assess attitudinal barriers to sexual support and help to identify HPs learning needs around providing sexual support in cancer care.</p></div>","PeriodicalId":100896,"journal":{"name":"Measurement and Evaluations in Cancer Care","volume":"2 ","pages":"Article 100006"},"PeriodicalIF":0.0,"publicationDate":"2024-05-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949877524000017/pdfft?md5=3780c69cb28cddc0b29b4a27f862d3fb&pid=1-s2.0-S2949877524000017-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141052182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development of a structured questionnaire to assess cancer patients’ individual needs in general practice. A qualitative study 开发结构化问卷，以评估全科医生对癌症患者的个人需求。定性研究

Measurement and Evaluations in Cancer Care

Pub Date : 2023-11-30 DOI: 10.1016/j.ymecc.2023.100004

Frederik Rosenbæk , Sanne Rasmussen , Jens Søndergaard , Mette Terp Høybye , Dorte Gilså Hansen

Background

Present studies report a vast number of unmet rehabilitation needs for cancer patients and a lack of professional focus irrespective of the type of cancer, prognosis, treatment, and clinical setting. Therefore, interventions targeting individual needs assessments using patient-reported outcome measures are recommended.

Aim

This paper explores the perceived value of a primarily author-developed questionnaire that assesses the needs experienced by cancer patients and general practitioners in their interaction in general practice.

Methods

We conducted nine semi-structured qualitative interviews with nine general practitioners and nine cancer patients to evaluate their assessment of our 33-item questionnaire.

Results

The general practitioners and patients demonstrate similarities but differences in their perception of the questionnaire’s value. The general practitioners were anxious about the questionnaire's comprehensiveness, which could indicate to the patients that they should solve all their problems related to the aftermaths of their illness. This is why the alignment of expectations was essential to the general practitioners. The comprehensiveness was, however, also regarded as instructive to the general practitioners, given that they would get more knowledge about the patient’s conditions and problems. The patients saw the questionnaire as a helpful tool that could aid them in their illness, by targeting highly relevant areas that were not always addressed by their general practitioner. The comprehensiveness was thus regarded as helpful. They hoped the general practitioners would allocate enough time to go through all their needs, provided the general practitioners received the filled-in questionnaire before the consultations.

Conclusion

The GPs and patients favored the comprehensiveness of an author-developed structured questionnaire. Both groups agreed that it addressed all issues relevant to the patients during their illness. Although the GPs stressed that expectations should be aligned before introducing the questionnaire to the patients at consultations.

背景目前的研究报告显示，癌症患者存在大量未得到满足的康复需求，而且无论癌症类型、预后、治疗方法和临床环境如何，都缺乏专业关注。因此，建议使用患者报告的结果测量方法，针对个人需求评估进行干预。本文探讨了主要由作者开发的问卷的感知价值，该问卷用于评估癌症患者和全科医生在全科诊疗互动过程中体验到的需求。全科医生对问卷的全面性感到焦虑，因为这可能会向患者表明，他们应该解决与疾病后遗症有关的所有问题。因此，对全科医生来说，调整期望值至关重要。然而，全面性也被认为对普通医生有指导意义，因为他们可以获得更多关于病人病情和问题的知识。病人则认为问卷是一种有用的工具，可以帮助他们治疗疾病，因为它针对的是与疾病高度相关的领域，而这些领域并不总是由他们的全科医生来处理。因此，他们认为问卷的全面性很有帮助。他们希望全科医生能够分配足够的时间来了解他们的所有需求，前提是全科医生在会诊前收到填写完整的问卷。两组人都认为问卷涉及了患者在患病期间的所有相关问题。尽管全科医生强调，在会诊时向患者介绍问卷前应先统一预期。

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引用次数: 0