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Creating a Sustaining Culture for Patient Engagement. 创建可持续的患者参与文化。
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27370
Ross G Baker, Carol Fancott, Adrienne Zarem

Engagement-capable environments enable strategies and processes supporting patient engagement. However, research using this framework has not fully explored how leaders can help to shape organizational cultures that sustain engagement over time, even during crises such as the COVID-19 pandemic. Using interviews and documents from the Holland Bloorview Kids Rehabilitation Hospital in Toronto, ON, prior to and after the pandemic, we examine the maturation of their engagement practices and culture to illustrate how a supportive culture developed and shaped their responses to this crisis. Further exploration of such dynamics could inform leaders designing engagement strategies with greater impact and sustainment.

具有参与能力的环境能够制定支持患者参与的策略和流程。然而,使用这一框架进行的研究尚未充分探讨领导者如何帮助塑造组织文化,以长期维持参与性,即使在 COVID-19 大流行等危机期间也是如此。通过对安大略省多伦多市荷兰布卢尔维尤儿童康复医院在大流行前后的访谈和文件,我们研究了他们的参与实践和文化的成熟过程,以说明支持性文化是如何发展和塑造他们应对这场危机的。对这种动态的进一步探索可以为领导者设计具有更大影响力和持续性的参与策略提供参考。
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引用次数: 0
Key Considerations for the Design, Development and Deployment of AgeTech Solutions Supporting Aging in the Right Place. 设计、开发和部署 AgeTech 解决方案的主要考虑因素,支持在合适的地方养老。
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27399
Mary Chiu, Marianne Saragosa

"The use of technology to support AIRP [aging in the right place] holds great promise," (Kokorelias et al. 2024: 16) and ethical and human rights considerations must be considered in the design, development and deployment of AgeTech solutions. This may be realized through interprofessional and intersectoral collaboration, as well as meaningful inclusion and engagement of lived expertise and experience from older adults and their caregivers. Theoretical frameworks and evidence-based design/research models can structure the consultation processes. They can guide the agile and iterative development of AgeTech based on input and feedback from end-users and community stakeholders. Funders and accelerator programs also play an important role in ensuring that AgeTech solutions that they endorse or sponsor would be ethical, accessible and feasible to older adult populations that are ethnically, culturally and linguistically diverse at various levels of digital literacy.

"使用技术来支持 AIRP[在合适的地方养老]大有可为"(Kokorelias 等人,2024 年:16),在设计、开发和部署 AgeTech 解决方案时必须考虑道德和人权因素。这可以通过跨专业和跨部门合作,以及有意义地吸收和利用老年人及其照顾者的专业知识和经验来实现。理论框架和循证设计/研究模型可以构建咨询流程。它们可以根据最终用户和社区利益相关者的意见和反馈,指导 AgeTech 的敏捷和迭代发展。资金提供者和加速器计划也发挥着重要作用,确保他们认可或赞助的 AgeTech 解决方案符合道德规范,对不同族裔、文化和语言水平的老年人群而言是可获取和可行的。
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引用次数: 0
Resilience and Engagement in Crisis: Fostering Trauma-Informed Care and Patient Partnerships Into the Future. 危机中的复原力与参与:在未来促进创伤知情护理和患者伙伴关系。
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27367
B C Pomeroy

The COVID-19 pandemic has significantly disrupted patient engagement and exposed long-standing inequities within Canada's healthcare system. As a patient partner and caregiver, the author reflects on the exacerbated challenges during the pandemic, particularly for hardly reached communities and those managing chronic conditions. The crisis highlighted the absence of opportunities for patient partnership, with healthcare organizations halting engagement activities despite an increased need for communication and community involvement. The pandemic underlined the necessity of trauma-informed care and engagement-capable environments (ECE). To address these challenges, the author advocates for integrating trauma-informed practices with ECEs, thereby promoting a healthcare model that is both structurally supportive and responsive to individual trauma and resilience. By focusing on compassion, recognizing trauma and fostering engagement, such an approach could enhance patient outcomes and create a more adaptive, inclusive healthcare environment.

COVID-19 大流行严重扰乱了患者的参与,并暴露了加拿大医疗保健系统中长期存在的不公平现象。作为一名患者伙伴和护理者,作者反思了大流行期间加剧的挑战,尤其是对那些难以触及的社区和慢性病患者而言。这场危机凸显了患者伙伴关系机会的缺失,尽管对沟通和社区参与的需求增加,但医疗机构却停止了参与活动。大流行病凸显了创伤知情护理和具有参与能力的环境(ECE)的必要性。为了应对这些挑战,作者主张将创伤知情实践与幼儿教育相结合,从而推广一种既能在结构上提供支持,又能对个人创伤和恢复能力做出反应的医疗保健模式。通过关注同情心、认识创伤和促进参与,这种方法可以提高患者的治疗效果,并创造一个更具适应性和包容性的医疗环境。
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引用次数: 0
A Human Factors Approach for Designing, Developing and Deploying Technology for Aging in the Right Place. 设计、开发和部署适老化技术的人为因素方法。
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27394
Wendy A Rogers, Harshal P Mahajan

Technology to support aging in the right place (AIRP) has much promise, but the potential is not yet being met. In their paper outlining the opportunities and challenges in the use of technology to support AIRP, Kokorelias et al. (2024) provided a roadmap for the next steps. Our commentary focuses on two questions they raised: (1) How can technology be designed and developed to better meet the specific needs, preferences and abilities of older adults? (2) How do we evaluate technology in natural settings? Widespread technology adoption will emerge from consideration of the users; an understanding of their unique needs; iterative participatory design and user testing; and support for facilitating conditions to ease deployment into people's lives and minimize abandonment.

支持就地养老(AIRP)的技术前景广阔,但潜力尚未得到发挥。Kokorelias 等人(2024 年)在他们的论文中概述了使用技术支持居家养老(AIRP)的机遇和挑战,为下一步工作提供了路线图。我们的评论主要集中在他们提出的两个问题上:(1) 如何设计和开发技术才能更好地满足老年人的特殊需求、偏好和能力?(2) 我们如何在自然环境中评估技术?技术的广泛应用将源于对用户的考虑;对他们独特需求的了解;反复的参与式设计和用户测试;以及对便利条件的支持,以方便将技术应用于人们的生活,并最大限度地减少弃用。
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引用次数: 0
Addressing Aging-in-Place Policy Challenges in Canada: A Call to Action. 加拿大应对就地养老政策挑战:行动呼吁书》。
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27398
Maurita T Harris, Stephanie Kiggundu, Michelle Goonasekera

Aging in place (AIP) has emerged as a critical priority in policy to support older adults living in their homes and communities. However, achieving equitable support for older adults demands a multi-faceted approach that embraces their choices, capabilities and lived experiences while considering that place is a dynamic concept. This commentary explores the challenges older adults may encounter while AIP and identifies technological and policy areas to explore. Drawing insights from the UK, policy makers in Canada are urged to adopt inclusive definitions of AIP, prioritize technological solutions for recognized challenges and actively involve older adults in policy development.

居家养老(AIP)已成为支持老年人在家中和社区生活的一项重要优先政策。然而,要实现对老年人的公平支持,需要采取多方面的方法,既要考虑到他们的选择、能力和生活经验,又要考虑到场所是一个动态的概念。本评论探讨了老年人在 AIP 期间可能遇到的挑战,并确定了需要探索的技术和政策领域。借鉴英国的经验,我们敦促加拿大的政策制定者采用包容性的 AIP 定义,优先采用技术解决方案来应对公认的挑战,并让老年人积极参与政策制定。
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引用次数: 0
Leveraging Technology to Support Aging in Place: Opportunities, Challenges and Recommendations. 利用科技支持居家养老:机遇、挑战和建议。
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27397
Jing Zhao Forrest, Mirana Randriambelonoro

The aging population presents pressing societal challenges, emphasizing the importance of aging in the right place to support older individuals' quality of life. Technology can play a crucial role in facilitating aging in place by enabling multiple factors such as remote healthcare monitoring, social connectivity and access to essential services. However, several challenges must be addressed to ensure widespread adoption and effective usage of technology among older adults. From integrating digital literacy into the United Nations' Sustainable Development Goals (United Nations n.d.) to promoting co-creation and fostering intergenerational dialogue, multiple solutions can be envisioned. This commentary emphasizes these opportunities, discusses these issues and provides a set of recommendations.

人口老龄化带来了紧迫的社会挑战,强调了在合适的地方养老以提高老年人生活质量的重要性。技术可以实现多种因素,如远程医疗监控、社会连接和获得基本服务,从而在促进居家养老方面发挥至关重要的作用。然而,要确保技术在老年人中的广泛采用和有效使用,必须应对若干挑战。从将数字扫盲纳入联合国可持续发展目标(United Nations n.d.),到促进共同创造和代际对话,可以设想出多种解决方案。本评论强调了这些机会,讨论了这些问题,并提出了一系列建议。
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引用次数: 0
Beyond the Crisis: Transforming Health Systems Through Community Engagement. 超越危机:通过社区参与改造卫生系统。
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27364
Kerry Kuluski, Carol Fancott, Maggie Keresteci, Amy Lang, Ross G Baker

How can we effectively partner during crises? How can partnership with communities, patients, caregivers, providers and leaders be sustained and even evolve during difficult times? The opening paper of this special issue (Kuluski et al. 2024) probed these questions. The six response papers in this issue emphasized engagement that moves from partnership with individuals and communities to efforts that are led by communities; trauma-informed approaches at an individual and organizational level; and shed light on the interdependency of culture and leadership. By broadening our engagement efforts with communities, we are more apt to co-produce improvements in care that also address the social determinants of health.

我们如何才能在危机期间有效地开展合作?如何在困难时期保持甚至发展与社区、患者、护理人员、医疗服务提供者和领导者的伙伴关系?本特刊的开篇论文(Kuluski et al.本期的六篇回应论文强调了从与个人和社区合作到由社区领导的参与;个人和组织层面的创伤知情方法;并阐明了文化与领导力的相互依存关系。通过扩大与社区的合作,我们更有可能共同改善医疗服务,同时解决健康的社会决定因素。
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引用次数: 0
Meaningful Engagement or Co-Production, or Both? 有意义的参与还是共同制作,抑或两者兼而有之?
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27366
Christian von Plessen, Paul Batalden

The COVID-19 pandemic magnified the cracks in healthcare performance. Dysfunctionalities and exhaustion appeared, but so did resilience and innovation. Examination of these cracks offers opportunities for learning and potential for new developments just as in the Japanese art of kintsugi, which is about building new objects from pieces of broken ceramic and mending the cracks. Engagement and partnership activities came under strain in Canada, as well - a pioneer in the field. Some were put on hold; others proved resilient and contributed to surmounting the challenges of the pandemic. Applying their Engagement-Capable Environments Framework, Kuluski and colleagues (2024) studied kintsugi in partnership activities in Canada during the pandemic. The resulting case studies exemplify the factors facilitating engagement and partnership during crisis. Through a lens of co-production that we see as a precondition for understanding and improving healthcare during a crisis and beyond, we challenge the results of the study, hoping to open new perspectives and advance engagement and partnership.

COVID-19 大流行加剧了医疗保健工作的裂缝。功能失调和疲惫出现了,但复原力和创新也出现了。对这些裂缝的研究为学习提供了机会,也为新的发展提供了潜力,就像日本的金陶艺术(kintsugi),即用破碎的陶瓷碎片制作新的物品并修补裂缝。作为该领域的先驱,加拿大的参与和合作活动也面临压力。一些活动被搁置,另一些活动则表现出了顽强的生命力,为克服大流行病带来的挑战做出了贡献。库卢斯基及其同事(2024 年)运用他们的 "参与能力环境框架",研究了大流行病期间加拿大合作伙伴活动中的 "金木"。由此产生的案例研究体现了危机期间促进参与和伙伴关系的因素。我们认为共同生产是在危机期间及之后理解和改善医疗保健的先决条件,通过共同生产的视角,我们对研究结果提出了质疑,希望能打开新的视角,促进参与和合作。
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引用次数: 0
Realizing the Promise of Technologies for Enhancing Aging in Place Within Long-Term Care Homes. 实现在长期护理院内加强居家养老技术的承诺。
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27395
Alisa Grigorovich, Josephine McMurray

While residential long-term care (LTC) settings can be the right places to age well, they have received relatively little attention in research and policy conversations about technology. In this commentary, we discuss how technologies are currently being integrated into LTC, the ethical challenges and considerations this raises and the potential for improving how technologies are designed and implemented to empower and make the lives of older residents better. We advocate for innovative policy reforms and standards to ensure that technology design and development are equitable and inclusive and better aligned with the wishes and values of older adults and their families.

虽然长期护理(LTC)机构可以成为老年人安享晚年的理想场所,但在有关技术的研究和政策对话中,这些机构受到的关注却相对较少。在这篇评论中,我们将讨论技术目前是如何被整合到长期护理中的、由此引发的伦理挑战和考虑因素,以及如何改进技术的设计和实施以增强老年居民的能力并改善其生活的潜力。我们倡导创新的政策改革和标准,以确保技术设计和开发的公平性和包容性,并更好地与老年人及其家人的愿望和价值观保持一致。
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引用次数: 0
The Power of Partnership Beyond Social Prescribing. 社会处方之外的伙伴关系力量。
Pub Date : 2024-07-01 DOI: 10.12927/hcpap.2024.27369
Andrew Boozary, Maggie Keresteci

This commentary focuses on the social determinants of health and how they may be more fully integrated into engagement-capable environments. In this commentary, the authors provide excerpts from their in-depth discussion that explored how the foundational principles of the Gattuso Centre for Social Medicine emphasize the importance of prioritizing care for populations that are marginalized and engaging communities to improve health outcomes. The article delves into some of the historic and current issues facing communities and individuals that are marginalized and describes how a large academic centre has leveraged its structures and resources to build partnerships with communities and community organizations to address these challenges.

这篇评论的重点是健康的社会决定因素,以及如何将这些因素更充分地融入具有参与能力的环境中。在这篇评论中,作者摘录了他们的深入讨论,探讨了加图索社会医学中心的基本原则如何强调优先照顾边缘化人群以及让社区参与改善健康结果的重要性。文章深入探讨了边缘化社区和个人所面临的一些历史和现实问题,并介绍了一个大型学术中心如何利用其结构和资源与社区和社区组织建立伙伴关系,以应对这些挑战。
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引用次数: 0
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HealthcarePapers
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