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Trustworthy Evidence to Support Quality Digital Healthcare Policy for Underserved Communities: What Needs to Happen to Translate Evidence into Policy? 为未得到充分服务的社区提供支持优质数字医疗政策的可信证据:将证据转化为政策需要做些什么?
Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27270
Clare L Ardern, Alex Haagaard, Megan MacPherson, Jessica Nadigel, Bahar Kasaai, Sonya Cressman, Jennifer Cordeiro, Kendall Ho

In this paper, we explore what is needed to generate quality research to guide evidence-informed digital health policy and call the Canadian community of patients, clinicians, policy (decision) makers and researchers to action in setting digital health research priorities for supporting underserved communities. Using specific examples, we describe how evidence is produced and implemented to guide digital health policy. We study how research environments must change to reflect and include the communities for whom the policy is intended. Our goal is to guide how future evidence reaches policy makers to help them shape healthcare services and how these services are delivered to underserved communities in Canada. Understanding the pathways through which evidence can make a difference to equitable and sustainable digital health policy is vital for guiding the types of research that attract priority resources.

在本文中,我们探讨了开展高质量研究以指导有实证依据的数字健康政策所需的条件,并呼吁加拿大的患者、临床医生、政策(决策)制定者和研究人员采取行动,确定数字健康研究的优先事项,以支持服务不足的社区。通过具体实例,我们描述了如何产生和实施证据,以指导数字健康政策。我们研究了研究环境必须如何改变,以反映并包括政策所针对的社区。我们的目标是指导决策者如何获得未来的证据,以帮助他们制定医疗保健服务,以及如何将这些服务提供给加拿大服务不足的社区。了解证据能够对公平和可持续的数字医疗政策产生影响的途径,对于指导吸引优先资源的研究类型至关重要。
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引用次数: 0
Relational Work Is the Work: Virtual Healthcare Transformation for Rural, Remote and First Nations Communities in British Columbia. 关系工作就是工作:不列颠哥伦比亚省农村、偏远地区和原住民社区的虚拟医疗转型。
Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27274
John Mah, John Pawlovich, Terri Aldred, Scott Graham, Ray Markham, Kim Williams, Bob Woollard, John Grogan, Dee Taylor, Nelly D Oelke, Alison James, Melissa Stewart, Sonya Cressman, Arianna Hogan, Daniel Harper

The healthcare crisis across unceded First Nations' territories in rural, remote and Indigenous communities in British Columbia (BC) is marked by persistent barriers to accessing care and support close to home. This commentary describes an exceptional story of how technology, trusted partnerships and relationships came together to create an innovative suite of virtual care programs called "Real-Time Virtual Support" (RTVS). We describe key approaches, learnings and future considerations to improve the equity of healthcare delivery for rural, remote and First Nations communities. The key lessons include the following: (1) moving beyond a biomedical model - the collaboration framework for health service design incorporated First Nations' perspective on health and wellness; (2) relational work is the work - the RTVS collaboration was grounded in building connections and relationships to prioritize cultivating trust in the partnership over specific outputs; and (3) aligning to the core values of co-creation - working from a commitment to do things differently and applying an inclusive approach of engagement to integrate perspectives across different sectors and interest groups.

在不列颠哥伦比亚省(BC 省)农村、偏远地区和土著社区的未受保护原住民领地上,医疗保健危机的特点是难以就近获得护理和支持。这篇评论描述了一个特殊的故事,即技术、可信赖的合作伙伴关系和各种关系如何共同创造出一套创新的虚拟护理计划,即 "实时虚拟支持"(RTVS)。我们介绍了改善农村、偏远地区和原住民社区医疗服务公平性的主要方法、经验和未来考虑。主要经验包括以下几点:(1) 超越生物医学模式--医疗服务设计的合作框架纳入了原住民对健康和福祉的观点;(2) 关系工作就是工作--实时虚拟支持的合作立足于建立联系和关系,优先考虑培养伙伴关系中的信任,而不是具体的产出;(3) 与共同创造的核心价值观保持一致--致力于以不同的方式开展工作,并采用包容性的参与方式,整合不同部门和利益群体的观点。
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引用次数: 0
Defining "Essential Digital Health for the Underserved". 定义 "为得不到医疗服务的人群提供基本数字医疗服务"。
Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27276
Kendall Ho, Owen Adams, Ambreen Sayani, Gurleen Cheema

The World Health Organization envisions achieving "Health for All," to strive for equitable access to important health information and services to attain wellness (WHO 2023a). The COVID-19 pandemic reshaped the Canadian health system toward increasing digital health services, which improved access for some but underserved others. Integrating digital health into holistic health services delivery deserves careful consideration. This paper introduces the concept of "essential digital health for the underserved," by first defining the terms "digital health," "essential" and "underserved." Then, we share a summary of a discussion at a May 2023 conference with stakeholders, including patients, caregivers, health professionals, health policy makers, private sectors and health researchers. A series of papers follow to explore how digital health can help chart a responsible course for the future of essential digital health in Canada. In this post-pandemic era - with a health human resources shortage through attrition and retirement, an increased health service demand from patients and a greater strain on our recovering economy - innovative solutions need to be implemented to strengthen our Canadian health system.

世界卫生组织设想实现 "人人享有健康",努力实现公平获取重要的健康信息和服务,以达到健康的目的(WHO 2023a)。COVID-19 大流行重塑了加拿大的医疗系统,使其朝着增加数字医疗服务的方向发展,这改善了一些人的就医条件,但却使另一些人得不到充分的服务。将数字医疗整合到整体医疗服务中值得认真考虑。本文首先定义了 "数字医疗"、"基本 "和 "服务不足 "等术语,介绍了 "为服务不足者提供基本数字医疗 "的概念。然后,我们分享了 2023 年 5 月与利益相关者(包括患者、护理人员、卫生专业人员、卫生政策制定者、私营部门和卫生研究人员)举行的一次会议的讨论摘要。随后,我们将发表一系列论文,探讨数字医疗如何为加拿大基本数字医疗的未来制定负责任的发展方向。在这个后流行病时代,由于自然减员和退休导致卫生人力资源短缺,患者对医疗服务的需求增加,我们正在复苏的经济承受着更大的压力,因此需要实施创新解决方案来加强我们的加拿大卫生系统。
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引用次数: 0
Learning Health Systems: A Paradigm Shift in What We Can Do about Digital Health Inequities. 学习型卫生系统:我们能为数字健康不平等做些什么的范式转变》(Learning Health Systems: A Paradigm Shift in What We Can Do about Digital Health Inequities)。
Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27269
Sonya Cressman, Ibukun-Oluwa Omolade Abejirinde, Joan Assali, Mavis B Dennis, Alies Maybee, Michele Strom, Kendall Ho, Clare L Ardern, Ambreen Sayani, Ray Markham, Onil Bhattacharyya

Learning health systems (LHSs) embed social accountability into everyday workflows and can inform how governments build bridges across the digital health divide. They shape partnerships using rapid cycles of data-driven learning to respond to patients' calls to action for equity from digital health. Adopting the LHS approach involves re-distributing power, which is likely to be met with resistance. We use the LHS example of British Columbia's 811 services to highlight how infrastructure was created to provide care and answer questions about access to digital health, outcomes from it and the financial impact passed on to patients. In the concluding section, we offer an accountability framework that facilitates partnerships in making digital health more equitable.

学习型卫生系统(LHSs)将社会责任纳入日常工作流程,可为政府如何跨越数字卫生鸿沟搭建桥梁提供参考。它们利用数据驱动的快速学习周期来构建伙伴关系,以响应患者对数字医疗公平性的行动呼吁。采用 LHS 方法需要重新分配权力,这很可能会遇到阻力。我们以不列颠哥伦比亚省的 811 服务为例,强调了如何创建基础设施来提供医疗服务,并回答了有关数字医疗的可及性、成果以及转嫁给患者的经济影响等问题。在结论部分,我们提出了一个问责框架,以促进合作伙伴关系,使数字医疗更加公平。
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引用次数: 0
Enabling Connected Care with a Person-Centred Data Foundation. 通过以人为本的数据基础实现互联护理。
Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27271
Anne Forsyth, Ann Chapman, Shannon Malovec, Michael Tatto, Mauree Aki Matsusaka, Jennifer Cordeiro, Meagan Mak

Having the right information at the right time and at the fingertips of the right individuals is not just a necessity for a well-functioning healthcare system but it is also the difference between life and death for Canadians. It is particularly critical to enable improved access to and quality of care for equity-deserving individuals because these data eliminate blind spots for clinicians, policy makers and system planners. The COVID-19 pandemic put a spotlight on the health data challenges that exist across Canada and the tangible impact those have on the healthcare system's ability to meet the needs of underserved populations. It sparked unified urgency at the federal and provincial/territorial levels to build a learning health system powered by connected health data for clinical care, patient access, care organization operations, health system use and population/public health. Person-centric data content standards will lie at the foundation of Canada's learning health system, enabling the creation and exchange of data.

在正确的时间和正确的人的指尖获得正确的信息,不仅是医疗保健系统良好运行的必要条件,也是加拿大人生死存亡的关键所在。这些数据消除了临床医生、政策制定者和系统规划者的盲点,因此对于改善需要公平对待的个人获得医疗服务的机会和医疗服务质量尤为重要。COVID-19 大流行凸显了加拿大各地存在的健康数据挑战,以及这些挑战对医疗保健系统满足服务不足人群需求的能力所产生的切实影响。它激发了联邦和省/地区两级的一致紧迫感,即建立一个由互联健康数据驱动的学习型医疗系统,用于临床护理、患者就医、医疗机构运营、医疗系统使用和人口/公共卫生。以人为本的数据内容标准将成为加拿大学习型医疗系统的基础,使数据的创建和交换成为可能。
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引用次数: 0
Can Answers to the Health Workforce Crisis Be Found in Equity-Informed Digital Health? 能否在公平知情的数字医疗中找到解决医疗人员危机的答案?
Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27273
Helen Novak Lauscher, Chad Kim Sing, Chantz Strong, Anita Palepu, Jason Jaswal, Dietrich Fürstenburg, Nelly D Oelke, Patricia Kay Pearce, Kendall Ho

In this paper, we describe current pressures on health human resources (HHRs) in the Canadian context and related factors that impact equity-deserving communities/populations. We explore issues of HHR challenges in rural, remote and urban underserved contexts and explore the associated benefits and challenges of incorporating digital health (DH). We present examples and evidence of integrating hybrid models of care as a means of supporting HHRs via DH in the publicly funded health system.

在本文中,我们描述了当前加拿大卫生人力资源(HHRs)面临的压力,以及影响需要公平的社区/人群的相关因素。我们探讨了在农村、偏远地区和服务不足的城市环境中卫生人力资源面临的挑战,并探讨了融入数字医疗(DH)的相关益处和挑战。我们举例说明了将混合护理模式作为通过公共资助医疗系统中的数字保健支持保健服务的一种手段。
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引用次数: 0
Consolidated Principles for Equitable and Inclusive Digital Health and Virtual Care Co-Design. 公平、包容的数字医疗和虚拟护理共同设计综合原则》。
Pub Date : 2024-01-01 DOI: 10.12927/hcpap.2024.27275
Paula Voorheis, Jennifer Major, Jennifer Stinson, Ron Beleno, Colleen Ferris, Carolyn Steele Gray

Digital health and virtual care (DH/VC) interventions have been rapidly transforming healthcare systems, offering enormous potential to bridge gaps in healthcare access and deliver person-centred interventions to equity-deserving populations. Working in partnership with patients, caregivers and communities to meaningfully integrate lived experience perspectives into DH/VC interventions can help ensure that diverse needs are met. In this commentary, we propose a consolidated set of principles for co-designing equity-informed DH/VC interventions. We also identify how these principles can be leveraged through resources and opportunities offered by Healthcare Excellence Canada and others.

数字健康和虚拟医疗(DH/VC)干预措施正在迅速改变医疗保健系统,为缩小医疗保健服务的差距和向需要公平的人群提供以人为本的干预措施提供了巨大的潜力。与患者、护理人员和社区合作,将生活经验观点有意义地融入 DH/VC 干预措施中,有助于确保满足不同需求。在本评论中,我们提出了一套共同设计公平知情的 DH/VC 干预措施的综合原则。我们还确定了如何通过加拿大卓越医疗服务机构及其他机构提供的资源和机会来利用这些原则。
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引用次数: 0
The Guest Editor's Response to "Canadians Need Improved Access to Drugs for Rare Diseases, Not More Denial". 客座编辑对“加拿大人需要改善罕见病药物的获取,而不是更多的拒绝”的回应。
Pub Date : 2023-07-01 DOI: 10.12927/hcpap.2023.27198
Joel Lexchin

Rawson and Adams (2023) are certainly entitled to express their views about the lead and response articles by Sirrs et al. (2023a; 2023b). Their entitlement comes with a responsibility to accurately and comprehensively state their conflicts of interest (COI) so that readers can assess whether their arguments may be influenced by other interests.

Rawson和Adams(2023)当然有权表达他们对Sirrs等人的引导和回应文章的看法。(2023a;2023b)。他们的权利伴随着准确、全面地陈述他们的利益冲突(COI)的责任,这样读者就可以评估他们的论点是否会受到其他利益的影响。
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引用次数: 0
Systemic Anti-Blackness and Racism in Healthcare: A European Perspective. 医疗保健中的系统性反黑人和种族主义:欧洲视角。
Pub Date : 2023-07-01 DOI: 10.12927/hcpap.2023.27195
Alana Helberg-Proctor, Jamiu O Busari

Despite notions of colour-blindness and denials of widespread systemic racism, anti-Black racism remains inherent in the political, economic, educational and healthcare systems in Europe. We use the Netherlands as a case study to explore some of these mechanisms. Here, we discuss how a focus on cultural deficiency and the denial of racism allows the bearers of inequality and inequity to be blamed for their own disenfranchisement. Nonetheless, scholars in the Netherlands continue to show how everyday racism is negatively impacting marginalized people's lives and their access to the social determinants of health and well-being in society.

尽管有色盲的概念,并否认普遍存在的系统性种族主义,但反黑人种族主义仍然是欧洲政治、经济、教育和医疗体系中固有的。我们以荷兰为个案研究,探讨其中一些机制。在这里,我们讨论了关注文化缺陷和否认种族主义如何让不平等和不公平的承担者因自己被剥夺选举权而受到指责。尽管如此,荷兰的学者继续表明,日常种族主义如何对边缘化人群的生活以及他们获得社会健康和福祉的社会决定因素产生负面影响。
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引用次数: 1
Uprooting Medical Violence: Excavating the Roots of Settler Colonialism and Systemic Anti-Black Racism within Healthcare. 根除医疗暴力:挖掘定居者殖民主义和医疗保健中系统性反黑人种族主义的根源。
Pub Date : 2023-07-01 DOI: 10.12927/hcpap.2023.27190
Nanky Rai

In this issue, Dryden (2023) disrupts the myth of neutrality in healthcare and outlines the importance of naming anti-Black racism in order to dismantle it. In this commentary, I take up Dryden's (2023) call to study the relationship between colonialism, anti-Blackness and healthcare. I utilize historical and present-day examples that uncover the roots of settler colonialism and slavery within North American healthcare systems. Finally, I explore how dispossessed communities have resisted medical violence. I call on healthcare workers to fight for non-reformist reforms, uplift self-determining care and engage in resistance toward liberatory futures.

在本期中,Dryden(2023)打破了医疗保健中立的神话,并概述了命名反黑人种族主义以消除它的重要性。在这篇评论中,我接受了Dryden的呼吁,研究殖民主义、反黑人和医疗保健之间的关系。我利用历史和当今的例子来揭示北美医疗系统中定居者殖民主义和奴隶制的根源。最后,我探讨了被剥夺权利的社区是如何抵制医疗暴力的。我呼吁医护人员为非改革主义改革而战,提升自主护理,并对解放的未来进行抵抗。
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引用次数: 1
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HealthcarePapers
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