Informatics for health & social care最新文献

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Alzheimer's in the modern age: Ethical challenges in the use of digital monitoring to identify cognitive changes. 现代老年痴呆症：使用数字监控识别认知变化的伦理挑战。

Informatics for health & social care

Pub Date : 2023-12-20 DOI: 10.1080/17538157.2023.2294203

Claire M Erickson, Anna Wexler, Emily A Largent

Pushes toward earlier detection of Alzheimer's disease (AD)-related cognitive changes are creating interest in leveraging technologies, like cellphones, that are already widespread and well-equipped for data collection to facilitate digital monitoring for AD. Studies are ongoing to identify and validate potential "digital biomarkers" that might indicate someone has or is at risk of developing AD dementia. Digital biomarkers for AD have potential as a tool in aiding more timely diagnosis, though more robust research is needed to support their validity and utility. While there are grounds for optimism, leveraging digital monitoring and informatics for cognitive changes also poses ethical challenges, related to topics such as algorithmic bias, consent, and data privacy and security. As we confront the modern era of Alzheimer's disease, individuals, companies, regulators and policymakers alike must prepare for a future in which our day-to-day interactions with technology in our daily life may identify AD-related cognitive changes.

为了更早地发现与阿尔茨海默病（AD）相关的认知变化，人们开始关注如何利用手机等已经广泛普及并具备良好数据收集条件的技术来促进对阿尔茨海默病的数字监测。目前正在进行研究，以确定和验证可能表明某人患有或有可能患有注意力缺失性痴呆症的潜在 "数字生物标志物"。注意力缺失性痴呆症的数字生物标志物有可能成为帮助更及时诊断的工具，但还需要更有力的研究来支持其有效性和实用性。虽然我们有理由感到乐观，但利用数字监测和信息学研究认知变化也带来了伦理挑战，涉及算法偏差、同意、数据隐私和安全等话题。当我们面对现代阿尔茨海默病时，个人、公司、监管机构和政策制定者都必须为未来做好准备，我们在日常生活中与技术的日常互动可能会发现与阿尔茨海默病相关的认知变化。

引用次数: 0

Evaluation of a multifunctional technology system in a memory care unit: Opportunities for innovation in dementia care. 记忆护理单元中多功能技术系统的评估：痴呆症护理创新的机会。

Informatics for health & social care

Pub Date : 2016-12-01 Epub Date: 2016-01-28 DOI: 10.3109/17538157.2015.1064428

Amanda Lazar, George Demiris, Hilaire J Thompson

Introduction: Stimulating recreational and leisure activities (RLAs) are essential to physical and mental well-being; however, people living in memory care units (MCUs) may lack access to them. Technology has the potential to facilitate and enrich activity engagement in this context.

Objectives: In this 6-month study, we evaluated a commercially available system designed to encourage the engagement of people with dementia in activities and social interactions, using a mixed-methods approach in a MCU.

Methods: Quantitative measures included those to evaluate cognition, depression, quality of life, and resource utilization. We qualitatively evaluated the system using semi-structured interviews with family members and staff. Five residents with dementia, four family members, and seven staff were included in the 6-month study.

Results: Staff and family members reported benefits for residents such as enjoyment, interactions and connections with others, and mental stimulation. Findings also highlight challenges such as technical and ethical concerns. Factors that influence system use and integration are also discussed.

Conclusion: It was feasible to introduce a system designed for recreation and engagement in a MCU, and staff, family members, and residents experienced benefits. However, barriers existed in the introduction and use of the system.

引言：刺激娱乐和休闲活动对身心健康至关重要；然而，生活在记忆护理单元（MCU）的人可能无法使用它们。技术有可能促进和丰富这方面的活动参与。目的：在这项为期6个月的研究中，我们使用MCU中的混合方法，评估了一个商业可用的系统，该系统旨在鼓励痴呆症患者参与活动和社交。方法：定量测量包括评估认知、抑郁、生活质量和资源利用率的测量。我们使用对家庭成员和工作人员的半结构化访谈对该系统进行了定性评估。这项为期6个月的研究包括5名痴呆症患者、4名家庭成员和7名工作人员。结果：工作人员和家庭成员报告了对居民的好处，如享受、与他人的互动和联系以及精神刺激。调查结果还突出了技术和伦理问题等挑战。还讨论了影响系统使用和集成的因素。结论：在MCU中引入一个旨在娱乐和参与的系统是可行的，工作人员、家庭成员和居民都能从中受益。然而，在引进和使用该系统方面存在障碍。

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引用次数: 23

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