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Validation of the eHealth literacy scales: comparison between the shorter and longer versions. 电子卫生素养量表的验证:较短版本和较长版本的比较。
Pub Date : 2025-01-17 DOI: 10.1080/17538157.2025.2451427
Areti Efthymiou, Argyroula Kalaitzaki, Michael Rovithis, Gregor Petrič

Digital service provision became necessary during and after the COVID-19 pandemic highlighting the technological disparity experienced by healthcare professionals and healthcare users. eHealth Literacy skills are mostly measured with the use of the eHeals, but recently more instruments have been developed to meet this need. The aim of the study was to validate and compare the two scales in Greek: the eHeals and the revised eHeals-Extended. In total, 401 participants replied to the eHeals, the revised eHeals-Extended, and the HLS-EU-Q16. The eHeals scales provided good psychometric properties. The validation of the eHeals confirmed the two dimensions with high internal consistency (total score α = .91, eHeals1 α = .88, eHeals2 α = .78). The revised eHeals-Extended exploratory analysis extracted five factors with satisfactory internal consistency (Cronbach's α = .62-.89): awareness and quality of resources online, understanding online information, smart on the net, accessing and validating online information and perceived efficiency. The use of the revised eHeals-Extended and eHeals validated in Greek, could be valuable tools in clinical and research settings. The eHeals could be used as an additional tool when eHealth Literacy is not the core concept measured and the revised eHeals-Extended can be used when researchers wish to measure eHealth Literacy concept more thoroughly.

在2019冠状病毒病大流行期间和之后,数字服务的提供变得必要,凸显了医疗保健专业人员和医疗保健用户所经历的技术差距。电子卫生素养技能主要是通过使用电子卫生工具来衡量的,但最近开发了更多的工具来满足这一需求。本研究的目的是验证和比较两种希腊量表:ehealals和修订后的eHeals- extended。总共有401名参与者对ehealals、修订后的eHeals- extended和HLS-EU-Q16进行了回复。eHeals量表提供了良好的心理测量特性。eHeals的验证证实了两个维度具有较高的内部一致性(总分α =)。91、eHeals1 α =;88, eHeals2 α = .78)。修订后的eHeals-Extended探索性分析提取了5个内部一致性满意的因素(Cronbach's α = 0.62 - 0.89):在线资源的认知和质量、对在线信息的理解、网络智能、对在线信息的获取和验证以及感知效率。修订后的eHeals- extended和希腊文eHeals验证的使用可能是临床和研究环境中有价值的工具。当电子健康素养不是测量的核心概念时,eheal可以作为一个额外的工具,当研究人员希望更彻底地测量电子健康素养概念时,修订后的eheal - extended可以使用。
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引用次数: 0
User-centred design of a patient portal for persons living with home mechanical ventilation and long-term tracheostomy: a mixed methods study. 以用户为中心,为居家机械通气和长期气管切开术患者设计患者门户网站:一项混合方法研究。
Pub Date : 2025-01-02 DOI: 10.1080/17538157.2024.2441152
Caroline Chao, David J Berlowitz, Olivia Metcalf, Prudence A Gregson, Graeme K Hart, Mark E Howard

Patient portals are secure online platforms that offer patients access to various functions such as personal health information. While patient portals are being increasingly offered by health services, there are limited data on their use for persons living with home mechanical ventilation (HMV) and/or long-term tracheostomy. This study, conducted at an Australian hospital's home mechanical ventilation and long-term tracheostomy services, aimed to explore the perspectives and attitudes of patients and carers regarding the introduction of a patient portal. There were 231 survey responses and 6 semi-structured interview participants. Interest in using a patient portal was high with 87% of survey respondents indicating that they would consider using a patient portal if it were offered. Those that were more likely to be interested were younger, had higher levels of education, and reported being confident with using technology and accessing health information. The functions of a patient portal that were of most interest were the ability to view their own health information including ventilation and/or tracheostomy information and the ability to order ventilation and tracheostomy-related equipment. This study is the first step of a user-centered design for the implementation of a patient portal for persons living with home mechanical ventilation and/or long-term tracheostomy.

患者门户是安全的在线平台,为患者提供各种功能,如个人健康信息。虽然卫生服务机构越来越多地提供患者门户,但关于其在家庭机械通气和/或长期气管切开术患者中的使用情况的数据有限。本研究在澳大利亚一家医院的家庭机械通气和长期气管切开术服务中进行,旨在探讨患者和护理人员对引入患者门户的观点和态度。共有231份调查回复和6名半结构化访谈参与者。使用患者门户网站的兴趣很高,87%的调查受访者表示,如果提供患者门户网站,他们会考虑使用。那些更有可能对此感兴趣的人更年轻,受教育程度更高,并报告对使用技术和获取健康信息有信心。患者门户网站最令人感兴趣的功能是能够查看他们自己的健康信息,包括通气和/或气管切开术信息,以及能够订购通气和气管切开术相关设备。这项研究是以用户为中心的设计的第一步,旨在为家庭机械通气和/或长期气管切开术的患者实现患者门户。
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引用次数: 0
Usability testing of a palliative care information resource - outcomes from the formative evaluation of the CarerHelp Toolkit prototype. 一个姑息治疗信息资源的可用性测试——从carehelp工具包原型的形成性评估的结果。
Pub Date : 2024-12-23 DOI: 10.1080/17538157.2024.2433942
A Adams, L Miller-Lewis, J Tieman

CarerHelp is an online resource supporting Australian family carers providing palliative care to loved ones at home. To confidently care for a dying person, family carers require access to evidence-based resources, accessible day or night when healthcare professionals or services are unavailable. Given carer diversity, usability evaluations assist online developers in shaping information experiences to family carer's needs and abilities. This study aimed to use a comprehensive usability testing protocol to evaluate the prototype, with a sample involving six family carers aged 36-74 years. A concurrent think-aloud approach generated quantitative and qualitative feedback from scenario-based tasks. Single ease questions (SEQ) and computer satisfaction usability questionnaire (CSUQ) assessed end-user attitudes. Performance, SEQ, and CSUQ were calculated, errors were analyzed, and severity rating applied. Overall, family carers identified 54 errors. All carers detected highly severe errors impacting critical function; technical ability influenced error detection, affecting navigation, utility, and content. Language modification was guided by family carers' narratives, contextualizing interface use with real-life experiences. For the multidisciplinary development team, formal reporting of findings was advantageous in informing meaningful reiterative interface changes and giving a voice to family carers. This approach was essential to assist as many carers as possible in accessing palliative care information when needed.

carehelp是一个在线资源,支持澳大利亚家庭护理人员在家中为亲人提供姑息治疗。为了自信地照护临终者,家庭照护者需要获得基于证据的资源,在没有卫生保健专业人员或服务的情况下,无论白天还是晚上都可以获得这些资源。考虑到照顾者的多样性,可用性评估有助于在线开发人员根据家庭照顾者的需求和能力塑造信息体验。本研究旨在使用全面的可用性测试协议来评估原型,样本涉及6名年龄在36-74岁之间的家庭护理人员。并发的有声思考方法从基于场景的任务生成定量和定性反馈。单简单问题(SEQ)和计算机满意度可用性问卷(CSUQ)评估最终用户的态度。计算性能、SEQ和CSUQ,分析错误,并应用严重性等级。总的来说,家庭护理人员发现了54个错误。所有护理人员都发现了影响关键功能的严重错误;技术能力影响错误检测,影响导航、实用程序和内容。语言修改以家庭照顾者的叙述为指导,将界面使用与现实生活经验相结合。对于多学科开发团队来说,正式报告研究结果有利于告知有意义的重复界面变化,并给予家庭照顾者发言权。这种方法对于帮助尽可能多的护理人员在需要时获取姑息治疗信息至关重要。
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引用次数: 0
Older adults' views on training tools to prevent cognitive decline. 老年人对预防认知能力下降的培训工具的看法。
Pub Date : 2024-10-01 Epub Date: 2024-10-27 DOI: 10.1080/17538157.2024.2417659
Celine Cammarata, Elaine Wethington, Adam K Anderson, Eve De Rosa

Computerized training platforms could be an accessible means for older adults to maintain cognitive health, and several such tools are already commercially available. However, it remains unclear whether older adults use these tools if training is not externally prescribed. We explored older adults' self-initiated experiences with cognitive training. We conducted semi-structured interviews with 13 community-dwelling adults aged 58-85 years, comprising university retirees (N = 8) and public housing residents (N = 5). Interviews were analyzed by thematic analysis. No participants voluntarily used cognitive training, and those who had done so previously reported negative experiences. Several factors shaped older adults' engagement with cognitive training, especially a preference for stimulating activities that are organic and inherently enjoyable. We reveal a mismatch between older adults' priorities and the interventions currently available and uncover issues of access and interest among low-income and minority individuals. We suggest ways to better align future interventions with older adults' priorities.

计算机化的训练平台可以成为老年人保持认知健康的一种便捷手段,目前市场上已经有几种这样的工具。然而,如果没有外部规定的训练,老年人是否会使用这些工具仍不清楚。我们探讨了老年人自发进行认知训练的经历。我们对 13 名居住在社区的 58-85 岁成年人进行了半结构化访谈,其中包括大学退休人员(8 人)和公共住房居民(5 人)。我们对访谈内容进行了主题分析。没有参与者自愿使用认知训练,以前使用过认知训练的人则报告了负面的经历。有几个因素影响了老年人对认知训练的参与,尤其是他们更喜欢有机的、本质上令人愉快的刺激性活动。我们揭示了老年人的优先事项与现有干预措施之间的不匹配,并揭示了低收入和少数群体中的获取和兴趣问题。我们提出了一些方法,使未来的干预措施更好地与老年人的优先事项保持一致。
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引用次数: 0
Identifying biological markers and sociodemographic factors that influence the gap between phenotypic and chronological ages. 确定影响表型年龄和计时年龄之间差距的生物标记和社会人口因素。
Pub Date : 2024-10-01 Epub Date: 2024-09-24 DOI: 10.1080/17538157.2024.2400247
Daniele Pala, Jia Xu, Yuezhi Xie, Yuqin Zhang, Li Shen

Introduction: The world's population is aging rapidly, leading to increased public health and economic burdens due to age-related cardiovascular and neurodegenerative diseases. Early risk detection is essential for prevention and to improve the quality of life in elderly individuals. Plus, health risks associated with aging are not directly tied to chronological age, but are also influenced by a combination of environmental exposures. Past research has introduced the concept of "Phenotypic Age," which combines age with biomarkers to estimate an individual's health risk.

Methods: This study explores which factors contribute most to the gap between chronological and phenotypic ages. We combined ten machine learning regression techniques applied to the NHANES dataset, containing demographic, laboratory and socioeconomic data from 41,474 patients, to identify the most important features. We then used clustering analysis and a mixed-effects model to stratify by sex, ethnicity, and education.

Results: We identified 28 demographic, biological and environmental factors related to a significant gap between phenotypic and chronological ages. Stratifying for sex, education and ethnicity, we found statistically significant differences in the outcome distributions.

Conclusion: By showing that health risk prevention should consider both biological and sociodemographic factors, we offer a new approach to predict aging rates and potentially improve targeted prevention strategies for age-related conditions.

导言:世界人口正在迅速老龄化,与年龄相关的心血管和神经退行性疾病增加了公共卫生和经济负担。早期风险检测对于预防和提高老年人的生活质量至关重要。此外,与衰老相关的健康风险并不直接与年龄相关,还受到环境暴露的综合影响。过去的研究提出了 "表型年龄 "的概念,即结合年龄和生物标志物来估计个人的健康风险:本研究探讨了哪些因素是造成计时年龄与表型年龄之间差距的主要原因。我们将十种机器学习回归技术结合应用于 NHANES 数据集,其中包含 41,474 名患者的人口学、实验室和社会经济数据,以确定最重要的特征。然后,我们使用聚类分析和混合效应模型按性别、种族和教育程度进行分层:结果:我们确定了 28 个与表型年龄和实际年龄之间存在显著差距有关的人口、生物和环境因素。根据性别、教育程度和种族进行分层后,我们发现结果分布存在显著的统计学差异:通过证明健康风险预防应同时考虑生物和社会人口因素,我们提供了一种预测老龄化率的新方法,并有可能改进针对老年相关疾病的预防策略。
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引用次数: 0
Multimorbidity in neurodegenerative diseases: a network analysis. 神经退行性疾病的多病症:网络分析。
Pub Date : 2024-10-01 Epub Date: 2024-10-03 DOI: 10.1080/17538157.2024.2405869
Mostafa Amini, Ali Bagheri, Martin P Paulus, Dursun Delen

The socioeconomic costs of neurodegenerative diseases (NDs) are highly affected by comorbidities. This study aims to enhance our understanding of the prevalent complications of NDs through the lens of network analysis. A multimorbidity network (MN) was constructed based on a longitudinal EHR dataset of 93,647,498 diagnoses of 824,847 patients. The association between the conditions was measured by two metrics, i.e. Phi-correlation and Cosine Index (CI). Based on multiple network centrality measures, a fused ranking list of the prevalent multimorbidities was provided. Finally, class-level networks depicting the prevalence and strength of diseases in different classes were constructed. The general MN included 928 diseases and 337,253 associations. Considering a 99% confidence level, two networks of 575 relationships were constructed based on Phi-correlations (73 diseases) and CI (102 diseases). Five out of 19 ICD-9 categories did not appear in either of the networks. Also, ND's immediate MNs for the top 50% of the significant associations included 42 relationships, whereas the Phi-correlation and CI networks included 36 and 34 diseases, respectively. Thirteen diseases were identified as the most notable multimorbidities based on various centrality measures. The analysis framework helps practitioners toward better resource allocations, more effective preventive screenings, and improved quality of life for ND patients and caregivers.

神经退行性疾病(NDs)的社会经济成本深受并发症的影响。本研究旨在通过网络分析的视角,加深我们对神经退行性疾病普遍并发症的了解。多病网络(MN)的构建基于纵向电子病历数据集,该数据集包含 824,847 名患者的 93,647,498 项诊断。病症之间的关联通过两个指标来衡量,即腓相关和余弦指数(CI)。根据多种网络中心度量,提供了一份多病流行的融合排序列表。最后,构建了描述不同等级疾病流行率和强度的等级网络。一般 MN 包括 928 种疾病和 337 253 个关联。考虑到 99% 的置信度,根据 Phi-相关性(73 种疾病)和 CI(102 种疾病)构建了两个包含 575 种关系的网络。在 19 个 ICD-9 类别中,有 5 个没有出现在这两个网络中。此外,ND 的前 50% 重要关联的直接 MN 包括 42 种关系,而 Phi 相关性和 CI 网络分别包括 36 种和 34 种疾病。根据各种中心度量,有 13 种疾病被确定为最值得注意的多病症。该分析框架有助于从业人员更好地分配资源、更有效地进行预防性筛查以及提高 ND 患者和护理人员的生活质量。
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引用次数: 0
Health seeking behavior during high health-risk period: a bibliometric analysis. 健康风险高发期的求医行为:文献计量分析。
Pub Date : 2024-10-01 Epub Date: 2024-10-27 DOI: 10.1080/17538157.2024.2412563
Akash Pal, Pragya Taneja, Milind K Yadav, Pratap C Mohanty

Health-seeking behavior represents the actions taken to prevent the disease and promote health. It emphasizes both the illness response and the healthcare utilization driven by perceived threat and effectiveness of the preventive behavior. This study aims to scrutinize the progression of research conducted on health-seeking behavior in high-risk period such as COVID-19 using bibliometric analysis. The bibliometric analysis is performed on Scopus and Web of Science databases. Research articles in the English language were extracted using keywords, such as health-seeking behavior and COVID. Eight hundred twenty-five research articles at the final and early publication stage in the English language were extracted from Scopus and 623 from WoS using the keywords Health Seeking Behavior and COVID. Of these, 259 in Scopus and 109 in WoS were selected for the final study following the authors' eligibility criteria. It analyses the research directions, countries of publications, core journals, leading authors and institutions and important publications followed by research trends in this field. It summarizes the academic interest of the researchers in health-seeking behavior in low- and middle-income countries. The paper informs and directs researchers and policymakers on the state of research in health-seeking behavior during high-health risk periods.

寻求健康的行为代表了为预防疾病和促进健康而采取的行动。它既强调疾病反应,也强调由感知到的威胁和预防行为的有效性所驱动的医疗保健利用。本研究旨在利用文献计量学分析方法,仔细研究在 COVID-19 等高风险时期对寻求健康的行为所开展研究的进展情况。文献计量分析在 Scopus 和 Web of Science 数据库中进行。使用关键字(如寻求健康行为和 COVID)提取了英文研究文章。使用关键词 "寻求健康的行为 "和 "COVID",从 Scopus 和 WoS 分别提取了 825 篇处于最终和早期出版阶段的英文研究文章和 623 篇英文研究文章。其中,根据作者的资格标准,Scopus 中的 259 篇和 WoS 中的 109 篇被选入最终研究。报告分析了该领域的研究方向、发表论文的国家、核心期刊、主要作者和机构以及重要论文,并介绍了该领域的研究趋势。它总结了中低收入国家研究人员对寻求健康行为的学术兴趣。本文为研究人员和政策制定者提供了有关高健康风险时期求医行为研究状况的信息和指导。
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引用次数: 0
SLB - SMOTE logistic blending hybrid machine learning model for chronic polycystic ovary syndrome prediction with correlated feature selection. SLB - 利用相关特征选择预测慢性多囊卵巢综合征的 SMOTE 逻辑混合混合机器学习模型。
Pub Date : 2024-10-01 Epub Date: 2024-10-27 DOI: 10.1080/17538157.2024.2405868
S Vairachilai, Devarakonda Anuhya, Anjeleen Tirkey, S P Raja

Objective: In this study, we aimed to develop a machine learning (ML) model for predicting Polycystic Ovary Syndrome (PCOS) based on demographic, clinical, and biochemical parameters.

Methodology: We collected data from Kaggle, which included information on age, body mass index, menstrual cycle length, follicle-stimulating hormone, hair growth, and more. Using this data, we trained several traditional ML and ensemble algorithms to predict PCOS.

Results: Among the traditional ML algorithms, Logistic Regression emerged as the best, boasting the highest accuracy of 0.91 and an AUC of 0.90. In ensemble algorithms, the Blending algorithm outperformed other ensemble methods, also achieving an accuracy of 0.91 and an AUC of 0.90, with a balanced precision and recall of 0.88.

Significance of the research: These results establish Logistic Regression and the Blending algorithm as optimal choices for accurate and reliable PCOS prediction, demonstrating strong discriminative power and the ability to correctly classify PCOS cases.

目的:本研究旨在开发一种机器学习(ML)模型,根据人口统计学、临床和生化参数预测多囊卵巢综合征(PCOS):在这项研究中,我们旨在开发一种机器学习(ML)模型,用于根据人口、临床和生化参数预测多囊卵巢综合症(PCOS):我们从 Kaggle 收集了数据,其中包括年龄、体重指数、月经周期长度、卵泡刺激素、毛发生长等信息。利用这些数据,我们训练了几种传统的 ML 算法和集合算法来预测多囊卵巢综合症:在传统的 ML 算法中,逻辑回归(Logistic Regression)是最好的,准确率最高,达到 0.91,AUC 为 0.90。在集合算法中,混合算法的表现优于其他集合方法,准确率也达到了 0.91,AUC 为 0.90,精确度和召回率均为 0.88:这些结果表明,Logistic 回归和混合算法是准确可靠地预测多囊卵巢综合症的最佳选择,具有很强的判别能力和正确分类多囊卵巢综合症病例的能力。
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引用次数: 0
Adoption of mobile dementia prevention services for middle-aged and older adults: applying the theory of coping strategies for dementia risks. 为中老年人提供预防痴呆症的移动服务:应用痴呆症风险应对策略理论。
Pub Date : 2024-10-01 Epub Date: 2024-10-06 DOI: 10.1080/17538157.2024.2404941
Jimin Lee, Hyeyoon Bae, Euehun Lee

The prevalence of dementia is increasing due to the aging population, leading to significant investments in information technology-based dementia care solutions such as mobile dementia prevention services (MDPS). These services aim to facilitate early diagnosis and prevent cognitive decline, with the ultimate goal of reducing medical costs. This study examines how aging individuals perceive and evaluate MDPS and how these perceptions influence their adoption intentions. Drawing from a coping perspective, we analyze the impact of susceptibility and severity dimensions in dementia risk perception on the perceived usefulness and self-incongruence in MDPS adoption. Focusing on middle-aged and older adults aged 55 and above, the study reveals significant but contrasting effects of susceptibility and severity. Perceived susceptibility of dementia is associated with emotion-focused coping, positively influencing self-incongruence with MDPS. Perceived severity of dementia is linked to problem-focused coping, negatively impacting self-incongruence but positively influencing the perceived usefulness of MDPS, promoting adoption. These findings provide insights into promoting MDPS by considering dementia risk perceptions and contribute to the development of effective dementia-related strategies for aging individuals.

由于人口老龄化,痴呆症的发病率在不断上升,这导致对基于信息技术的痴呆症护理解决方案(如移动痴呆症预防服务 (MDPS))的大量投资。这些服务旨在促进早期诊断和预防认知能力下降,最终目的是降低医疗成本。本研究探讨了老年人如何看待和评价 MDPS,以及这些看法如何影响他们的采用意向。我们从应对的角度出发,分析了痴呆风险感知中的易感性和严重性维度对采用 MDPS 的感知有用性和自我一致性的影响。研究以 55 岁及以上的中老年人为重点,揭示了易感性和严重性的显著影响,但两者的影响却截然不同。对痴呆症易感性的认知与以情绪为中心的应对方式有关,对采用 MDPS 的自我一致性有积极影响。对痴呆症严重程度的认知与以问题为中心的应对方式有关,对自我一致性有负面影响,但对 MDPS 的有用性认知有正面影响,从而促进了 MDPS 的采用。这些发现为通过考虑痴呆症风险认知来促进 MDPS 提供了见解,并有助于为老年个体制定有效的痴呆症相关策略。
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引用次数: 0
Functional size measurement of postnatal care apps: Morocco case study. 产后护理应用程序的功能大小测量:摩洛哥案例研究。
Pub Date : 2024-04-02 Epub Date: 2024-03-26 DOI: 10.1080/17538157.2024.2332693
Karima Moumane, Lamyae Sardi, Ali Idri, Alain Abran

This study empirically evaluates the functionality coverage of 18 mobile applications (apps) for Postnatal care including a recently developed app in Morocco "Mamma&Baby". This evaluation is based on a comparison of the COSMIC _ISO 19,761 functional size of these apps with the score obtained in a previous evaluation based on functions extraction through a quality assessment questionnaire. This comparison allows to discuss the relationship between the functional size of the 18 apps, their users' ratings in the Play Store as well as the number of downloads. While for most of the assessed apps, there is only a small shift between the rankings of the two evaluations, for some apps, the shift is huge due to the number of features added and not covered by the score previously obtained. This study illustrates the use of COSMIC as an effective method for corrective or evolutionary updates since it takes into account all the functions and features of postnatal apps. For the "Mamma&Baby" app, efforts are required to boost the number of downloads, optimize its visibility, and attract the highest number of users.

本研究对 18 款产后护理移动应用程序(App)的功能覆盖范围进行了实证评估,其中包括摩洛哥最近开发的一款应用程序 "Mamma&Baby"。该评估基于这些应用程序的 COSMIC _ISO 19,761 功能大小与之前通过质量评估问卷进行功能提取的评估所获得的分数进行比较。通过比较,我们可以讨论这 18 款应用程序的功能大小、用户在 Play Store 中的评分以及下载量之间的关系。对于大多数被评估的应用程序来说,两次评估的排名仅有微小的变化,但对于某些应用程序来说,由于增加了一些功能,而之前获得的分数并没有涵盖这些功能,因此变化是巨大的。这项研究说明,COSMIC 是一种有效的修正或进化更新方法,因为它考虑到了产后应用程序的所有功能和特点。对于 "Mamma&Baby "应用程序来说,需要努力提高下载量,优化其知名度,吸引更多用户。
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引用次数: 0
期刊
Informatics for health & social care
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