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Self-Mastery and Dementia Caregiver Burden: A Systematic Review and Meta-Analysis. 自我掌控与痴呆症照顾者负担:系统回顾与元分析。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2025-03-11 DOI: 10.1080/07317115.2025.2477588
Elizabeth Cousins-Whitus, Erin Burke, Mary Beth Spitznagel

Objectives: Dementia caregiving often results in caregiver burden, but self-mastery may buffer against burden's negative impact. This work explores the link between these variables, examining potential moderators, through systematic review and meta-analysis.

Methods: A PubMed, PsychInfo, Scopus, and Medline search in April 2024 resulted in 25 eligible studies. The Appraisal tool for Cross-Sectional Studies assessed bias risk. Meta-regression via continuous random effects model was conducted in R to examine the relationship between dementia caregiver burden and self-mastery as well as moderating variables.

Results: A medium strength meta-correlation, r=-.347 (95% CI: -.413, -.278, p < .0001) was detected. Percent of extended family caregivers (e.g. nieces, cousins, grandchildren; β=-1.01, 95% C.I. (-1.71, -.32), p < .01) and percent of cases with frontotemporal dementia (β=-.67, 95% C.I. (-1.20, -.13), p < .05) attenuated the relationship.

Conclusions: Results may support the role of self-mastery in mitigating effects of caregiver burden, though experiences unique to extended family or frontotemporal dementia may weaken that relationship. The current review was limited by lack of diversity in potential moderator variables, pointing to needs for future research.

Clinical implications: Findings highlight the robustness of the relationship between self-mastery and caregiver burden, possibly informing self-mastery-based interventions and helping clinicians identify and treat at-risk caregivers.

目的:痴呆症护理通常会给护理者带来负担,但自我管理可以减轻负担的负面影响。本研究通过系统综述和荟萃分析探讨了这些变量之间的联系,并研究了潜在的调节因素:2024 年 4 月,通过对 PubMed、PsychInfo、Scopus 和 Medline 的检索,共找到 25 项符合条件的研究。横断面研究评估工具对偏倚风险进行了评估。在R语言中通过连续随机效应模型进行元回归,研究痴呆症照护者负担与自我管理之间的关系以及调节变量:结果:中等强度的元相关性,r=-.347(95% CI:-.413,-.278,p p p 结论:结果可能支持自我管理在痴呆症护理中的作用:尽管大家庭或额颞叶痴呆症的独特经历可能会削弱这种关系,但研究结果可能支持自我管理在减轻照顾者负担方面的作用。由于潜在的调节变量缺乏多样性,目前的综述受到了限制,这也表明了未来研究的必要性:研究结果凸显了自我超越与照顾者负担之间关系的稳健性,可能会为基于自我超越的干预措施提供信息,并帮助临床医生识别和治疗高危照顾者。
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引用次数: 0
Nocturnal Awakening Associated with Greater Social Disconnectedness in Older Adults: The Compensatory Role of Cognition. 夜间觉醒与老年人更多的社会疏离有关:认知的补偿作用
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2024-10-16 DOI: 10.1080/07317115.2024.2417009
Hai-Xin Jiang, Cody Ding, Jing Yu

Objectives: This study aimed to explore the association between sleep and social disconnectedness by examining the role of global cognitive function in diverse samples of older adults.

Methods: Study 1 compared differences in social disconnectedness between older adults with clinical sleep disorders and healthy sleepers. Studies 2 and 3 examined the relationship between objective sleep and social disconnectedness in community-dwelling older adults from two independent datasets. In the three studies, we analyzed the moderating effect of global cognitive function in the association between objective sleep and social disconnectedness.

Results: Study 1 showed that older adults with clinical sleep disorders had greater social disconnectedness, among whom those with better cognition showed less influence of sleep disorder on social disconnectedness. Studies 2 and 3 showed that nocturnal awakening was robustly associated with social disconnectedness in community-dwelling older adults. Global cognitive function moderated this association, counteracting the negative effect of nocturnal awakening on social function.

Conclusions: These findings suggest a relationship between objective sleep, particularly nocturnal awakening, and social disconnectedness, and the compensatory role of global cognitive function.

Clinical implications: Geriatric caregivers are encouraged to consider cognitive interventions to mitigate sleep-related, specifically excessive nocturnal awakening-related, social disconnectedness in older adults.

研究目的本研究旨在通过考察不同老年人样本的整体认知功能的作用,探讨睡眠与社会脱节之间的关联:研究 1 比较了患有临床睡眠障碍的老年人与睡眠健康的老年人在社会隔离方面的差异。研究 2 和研究 3 通过两个独立的数据集研究了居住在社区的老年人的客观睡眠与社会隔离之间的关系。在这三项研究中,我们分析了整体认知功能对客观睡眠与社交脱节之间关系的调节作用:研究 1 显示,患有临床睡眠障碍的老年人与社会脱节的程度更高,其中认知能力较好的老年人睡眠障碍对与社会脱节程度的影响较小。研究 2 和研究 3 表明,在社区居住的老年人中,夜间觉醒与社交断裂有密切关系。整体认知功能调节了这种关联,抵消了夜间觉醒对社会功能的负面影响:这些研究结果表明,客观睡眠(尤其是夜间觉醒)与社会脱节之间存在关系,而整体认知功能可起到补偿作用:临床意义:我们鼓励老年护理人员考虑采取认知干预措施,以减轻老年人与睡眠(尤其是过度夜醒)相关的社交障碍。
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引用次数: 0
Distressing Aspects of Elder Abuse Victimization: Perspective of Survivors. 老年人虐待受害的痛苦方面:幸存者的观点。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2024-12-25 DOI: 10.1080/07317115.2024.2445028
David Burnes, Andie MacNeil, Jessica Hsieh, Isabel Rollandi, Clara Scher, Paula Zanotti, Olivia Fiallo, Clémentine Rotsaert, Jo Anne Sirey, Mark S Lachs

Objectives: Our understanding of elder abuse (EA) phenomena has largely been shaped from the perspective of researchers and professionals whose conceptualizations often differ from the perceptions of older adults who experience mistreatment. This study sought to understand the most distressing aspects of EA victimization from the perspective of survivors.

Methods: Using a descriptive phenomenological approach, individual interviews were conducted with a diverse sample (n = 32) of EA survivors, recruited from EA support and Adult Protective Services programs in New York City and Los Angeles. Analysis followed a constant comparison process involving two independent coders to understand distressing aspects of EA victimization.

Results: The following themes emerged as the most distressing aspects of EA victimization: fear, disbelief, disrespect, concern for perpetrator and other family members, feelings of loss, and incongruity between survivor wishes and systemic responses. Distressing aspects of EA victimization spanned personal, relational, and systemic levels of ecological influence.

Conclusions: Findings from this study advance basic knowledge on EA phenomena and carry direct implications for programs designed to support and meet the needs of survivors.

Clinical implications: Findings identify particularly distressing psycho-emotional aspects of EA victimization for clinicians interacting with survivors that can serve as targets of intervention.

目的:我们对虐待老人(EA)现象的理解主要来自于研究人员和专业人士的视角,他们的概念往往不同于遭受虐待的老年人的看法。本研究试图从幸存者的角度来了解虐待老人现象中最令人痛苦的一面:采用描述性现象学方法,对从纽约市和洛杉矶市的 EA 支持和成人保护服务项目中招募的不同 EA 幸存者样本(n = 32)进行了个人访谈。分析采用两个独立编码员参与的持续比较过程,以了解 EA 受害的痛苦方面:以下主题是 EA 受害中最令人痛苦的方面:恐惧、不信、不尊重、对犯罪者和其他家庭成员的关注、失落感以及幸存者愿望与系统反应之间的不协调。EA受害的痛苦方面跨越了生态影响的个人、关系和系统层面:本研究的结果增进了对 EA 现象的基本认识,并对旨在支持和满足幸存者需求的计划产生了直接影响:研究结果为与幸存者互动的临床医生确定了EA受害中特别令人痛苦的心理情感方面,这些方面可以作为干预的目标。
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引用次数: 0
Biopsychosocial Profile of Community-Dwelling Older Adults at Risk for Direct and Indirect Self-Harm. 有直接和间接自我伤害风险的社区居住老年人的生物心理社会特征。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2025-04-01 DOI: 10.1080/07317115.2025.2487003
Lisa Van Hove, Beau M Nieuwenhuijs, Steven Vanderstichelen, Nico De Witte, Ellen Gorus, Lara Stas, Imke Baetens

Objectives: A biopsychosocial model of self-harm risk factors in older adults was explored, distinguishing between direct and indirect self-harm.

Methods: A cross-sectional, matched pair sample was drawn from a community-dwelling sample of 625 adults aged 60 years and over, including 44 participants with and 44 without self-harm. Mean age was 68.7 years (age range = 60-91). Data were gathered using a survey composed of validated instruments and additional self-developed items.

Results: From our total sample, 8.2% had engaged in self-harm at age 60 and over. Indirect methods (e.g. substance misuse, not eating) were most common. The presence of a mental disorder, emotional loneliness, cognitive and physical frailty, and a lack of resilience were identified as potential risk factors. Those who have engaged in direct or both types of self-harm exhibit higher levels of these factors. A stepwise regression model showed that only emotional loneliness and mental disorder(s) were significantly associated with self-harm in old age.

Conclusions: Investigating self-harm (subtypes) among community-dwelling older adults is vital, especially in those with a mental disorder and emotional loneliness.

Clinical implications: Clinicians should be vigilant for self-harm in older adults, particularly for indirect methods and among those with a mental disorder and who experience emotional loneliness.

目的:探讨老年人自我伤害风险因素的生物心理社会模型,区分直接和间接的自我伤害。方法:对625名60岁及以上的社区居民进行横断面配对抽样,其中44名有自残行为,44名无自残行为。平均年龄68.7岁(60 ~ 91岁)。数据是通过一项由经过验证的仪器和额外的自行开发的项目组成的调查来收集的。结果:在我们的总样本中,8.2%的人在60岁及以上有过自残行为。间接方法(如药物滥用、不进食)最为常见。精神障碍、情感孤独、认知和身体虚弱以及缺乏适应力被认为是潜在的风险因素。那些有过直接自残或两种自残行为的人表现出更高水平的这些因素。逐步回归模型显示,只有情绪孤独和精神障碍与老年自残有显著关系。结论:调查社区老年人的自我伤害(亚型)是至关重要的,特别是那些有精神障碍和情感孤独的老年人。临床意义:临床医生应该警惕老年人的自我伤害,特别是对间接方法和那些有精神障碍和经历情感孤独的人。
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引用次数: 0
Relationships Among Caregiver Burden, Psychological Flexibility Processes, and Anxiety in Family Caregivers of People with Dementia. 痴呆症患者家庭照顾者负担、心理弹性过程和焦虑的关系
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2025-02-09 DOI: 10.1080/07317115.2025.2464868
Areum Han, Ho Kyung Lee, Ickpyo Hong

Objectives: This cross-sectional study examined the relationships among caregiver burden, anxiety, and key psychological flexibility processes - cognitive fusion, experiential avoidance, and values-driven actions - in family caregivers of individuals with dementia.

Methods: Data were collected from 191 caregivers in the United States. Structural equation modeling was used to assess direct and indirect relationships among caregiver burden, anxiety, and key psychological flexibility processes.

Results: The model showed excellent fit. Caregiver burden had a significant direct effect on anxiety (59.1% of the total effect), while indirect effects accounted for 40.9%. Cognitive fusion was the only significant mediator between caregiver burden and anxiety, accounting for 20.8% of the total effect. Additionally, experiential avoidance - both alone and when preceded by cognitive fusion - significantly mediated the relationship between caregiver burden and reduced engagement in values-driven actions.

Conclusions: These findings highlight cognitive fusion as a key mechanism linking caregiver burden to anxiety. Furthermore, both cognitive fusion followed by experiential avoidance and experiential avoidance alone appear to influence the relationship between caregiver burden and values-driven actions.

Clinical implications: Clinicians may consider implementing skills training targeting cognitive fusion and experiential avoidance to mitigate the negative impact of caregiver burden on anxiety and values-driven actions.

目的:本横断面研究探讨了痴呆症患者家庭照顾者负担、焦虑和关键心理灵活性过程(认知融合、经验回避和价值观驱动行为)之间的关系。方法:收集美国191名护理人员的数据。采用结构方程模型评估照顾者负担、焦虑和关键心理弹性过程之间的直接和间接关系。结果:模型拟合良好。照顾者负担对焦虑有显著的直接影响(占总影响的59.1%),而间接影响占40.9%。认知融合是照顾者负担与焦虑之间唯一显著的中介,占总效应的20.8%。此外,经验回避-无论是单独的还是在认知融合之前-显着调解照顾者负担和减少参与价值观驱动的行为之间的关系。结论:这些发现强调认知融合是将照顾者负担与焦虑联系起来的关键机制。此外,认知融合后的经验回避和单独的经验回避似乎都影响照顾者负担与价值观驱动行为之间的关系。临床意义:临床医生可以考虑实施以认知融合和经验回避为目标的技能培训,以减轻照顾者负担对焦虑和价值观驱动行为的负面影响。
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引用次数: 0
Neuropsychiatric Symptoms and Alzheimer's Disease Severity. A Focus on Sex-Differences. 神经精神症状和阿尔茨海默病严重程度。关注性别差异。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2025-06-10 DOI: 10.1080/07317115.2025.2518093
Antonina Luca, Maria Luca, Alessandro Serretti

Objectives: The aim of the present study was to investigate possible sex predictors in the severity of NPS in a large cohort of patients with AD and to assess the role of severity in sex-related differences in NPS.

Methods: Four hundred and twenty-four participants (295 women, mean age 78.4 ± 8.3 years, mean disease duration 7.4 ± 8.5 years) were included with a diagnosis of AD according to NINCDS/ADRDA criteria. Clinical data and presence of NPS were collected from family interview, medical records, and patient interview and examination. Dementia severity was assessed using the Clinical Dementia Rating Scale (CDRS) extended version.

Results: CDRS score was available for 407 participants (mean score 2.6 ± 1.1); 407 (22.1%) patients had CRDS = 1, 104 (25.5%) had CRDS = 2, 127 (31.2%) had CRDS = 3, 64 (15.7%) had CDRS = 4 and 22 (15.4%) had CDRS = 5. Apathy (85.7%), agitation or restlessness (75.1%) and paranoia (59.4%) were the most common NPS. Higher CDRS scores were associated with several neuropsychiatric features, including apathy, wandering and physical aggression. In the sex-stratified analysis, NPS were associated with more severe AD only in men.

Conclusions: Our findings suggest relevant sex differences in NPS with increasing severity.

Clinical implications: A timely and targeted behavioral management could improve treatment outcome.

目的:本研究的目的是在一个大型AD患者队列中研究NPS严重程度的可能性别预测因素,并评估严重程度在NPS性别相关差异中的作用。方法:根据NINCDS/ADRDA诊断标准,纳入424例AD患者(295名女性,平均年龄78.4±8.3岁,平均病程7.4±8.5年)。临床资料和NPS的存在收集自家庭访谈、医疗记录、患者访谈和检查。使用临床痴呆评定量表(CDRS)扩展版评估痴呆严重程度。结果:407名受试者获得CDRS评分(平均评分2.6±1.1);CRDS = 1的407例(22.1%),CRDS = 2的104例(25.5%),CRDS = 3的127例(31.2%),CDRS = 4的64例(15.7%),CDRS = 5的22例(15.4%)。冷漠(85.7%)、躁动或不安(75.1%)和偏执(59.4%)是最常见的NPS。较高的CDRS分数与一些神经精神特征有关,包括冷漠、徘徊和身体攻击。在性别分层分析中,NPS仅在男性中与更严重的AD相关。结论:我们的研究结果表明,NPS的性别差异与严重程度的增加有关。临床意义:及时、有针对性的行为管理可以改善治疗效果。
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引用次数: 0
A Systematic Review of Third-Wave Therapies to Reduce Distress and Improve Wellbeing and Quality of Life in People with Parkinson's Disease. 第三波疗法减少帕金森病患者的痛苦,改善他们的健康和生活质量的系统回顾。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2025-05-31 DOI: 10.1080/07317115.2025.2511957
Demetra Christodoulou, Suzanne Reeves, Naashoma P Carvalho, Judith Stellman, Rebecca L Gould

Objectives: This systematic review assessed use of third-wave psychotherapies in reducing psychological distress and improving psychological well-being and quality of life in people with Parkinson's disease and critically evaluated intervention adaptations.

Methods: A literature search, conducted across five databases identified randomized controlled trials (RCTs) evaluating third-wave psychotherapies for individuals with Parkinson's disease.

Results: Ten RCTs were identified of which nine evaluated mindfulness-based interventions, and one acceptance and commitment therapy. Methodological quality ranged from moderate to high, but sample sizes were small, and only one study was adequately powered. Five reported on Parkinson's specific adaptations. The trial with the largest sample size reported a significant effect of Mindfulness Yoga on depression and anxiety, psychological well-being and quality of life. Other findings were mixed across all outcomes.

Conclusions: There was evidence of an effect of Mindfulness Yoga on our pre-defined outcomes. Pilot and feasibility trials showed that mindfulness-based interventions were well received and provided feedback on adaptations. There was a lack of data to draw conclusions regarding non-mindfulness-based therapies.

Clinical implications: Larger trials of mindfulness-based interventions are required to establish the clinical meaningfulness of treatment effects. Further research is needed to adapt and explore on non-mindfulness-based interventions such as acceptance and commitment therapy.

目的:本系统综述评估了第三波心理疗法在减少帕金森病患者心理困扰、改善心理健康和生活质量方面的应用,并对干预适应进行了批判性评估。方法:通过五个数据库进行文献检索,确定了评估帕金森病患者第三波心理治疗的随机对照试验(rct)。结果:10个随机对照试验,其中9个评估基于正念的干预,1个评估接受和承诺治疗。方法学质量从中等到高不等,但样本量很小,只有一项研究得到了充分的支持。五篇报道了帕金森病的特殊适应。样本量最大的试验报告了正念瑜伽对抑郁和焦虑、心理健康和生活质量的显著影响。其他研究结果在所有结果中都是混合的。结论:有证据表明正念瑜伽对我们预先定义的结果有影响。试点和可行性试验表明,以正念为基础的干预措施很受欢迎,并提供了有关适应的反馈。缺乏数据来得出关于非正念疗法的结论。临床意义:需要更大规模的正念干预试验来确定治疗效果的临床意义。接受和承诺治疗等非正念干预需要进一步的研究来适应和探索。
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引用次数: 0
Effects of Simple Reminiscence on Reminiscence Functions in Older Adults with Mild Cognitive Impairment Due to Alzheimer's Disease. 简单记忆对老年阿尔茨海默病轻度认知障碍患者记忆功能的影响。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2025-06-10 DOI: 10.1080/07317115.2025.2518100
Gema Soria-Urios, Jesus Gonzalez-Moreno, Encarnacion Satorres, Juan C Meléndez

Objectives: Simple reminiscence has been used as a non-pharmacological strategy to improve emotional well-being and adaptation in older adults, particularly those with mild cognitive impairment due to Alzheimer's disease. This study examined the effects of a simple reminiscence-based intervention on different reminiscence functions in this population.

Methods: 113 participants were randomly assigned to an experimental (n = 61) or control group (n = 52). The experimental group received 16 reminiscence sessions over eight weeks. Assessments occurred pre-, post-intervention, and at follow-up. The eight subscales of the Reminiscence Functions Scale served as the study's primary outcome variables. Intervention effects were analyzed using 2 × 3 mixed ANOVAs (group × time).

Results: The results showed significant improvements in adaptive reminiscence functions, including identity, problem-solving, and preparation for death, as well as in the prosocial functions of conversation and teaching/informing in the experimental group compared to the control group.

Conclusions: These findings suggest that simple reminiscence can be an effective strategy for preserving and enhancing adaptive reminiscence functions in older adults with mild cognitive impairment due to Alzheimer's disease. Clinical Implications: This intervention can be integrated into routine care for individuals with cognitive impairment, helping maintain emotional-cognitive functioning and improve quality of life.

目的:简单回忆已被用作一种非药物策略来改善老年人的情绪健康和适应,特别是那些因阿尔茨海默病而患有轻度认知障碍的老年人。本研究考察了简单的基于记忆的干预对该人群不同记忆功能的影响。方法:113名受试者随机分为实验组(n = 61)和对照组(n = 52)。实验组在八周内接受了16次回忆训练。评估分别在干预前、干预后和随访时进行。记忆功能量表的八个子量表作为研究的主要结果变量。采用2 × 3混合方差分析(组×时间)分析干预效果。结果:实验组在自我认同、问题解决、死亡准备等适应性记忆功能以及会话、教学/告知等亲社会功能上均有显著提高。结论:这些研究结果表明,简单记忆可能是保存和增强老年阿尔茨海默病轻度认知障碍患者适应性记忆功能的有效策略。临床意义:这种干预可以整合到认知障碍患者的日常护理中,帮助维持情绪认知功能,提高生活质量。
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引用次数: 0
Illness Intrusiveness, Perceived Control, and Quality of Life in Older Adults with Arthritis and Multimorbidity. 老年关节炎和多重疾病患者的疾病侵入性、感知控制和生活质量。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2025-01-22 DOI: 10.1080/07317115.2025.2454977
Sama Joshi, M Carrington Reid, Irina Mindlis

Objectives: Arthritis is associated with poor quality of life (QOL) among older adults; and QOL is even worse among those with arthritis and multimorbidity (MM). Illness intrusiveness and perceived control have been identified in studies of single illnesses as modifiable mechanisms for QOL, but are understudied in older adults with arthritis and MM. We investigated the role of these potential mechanisms with QOL among older adults with arthritis and MM.

Methods: Secondary analysis of a sample of older adults aged ≥ 62 years with arthritis and MM (N = 228) using PROCESS macro for SPSS.

Results: Participants were on average 72 years with 4 chronic illnesses, and high levels of pain intensity and illness intrusiveness. Perceived control was a significant mediator (but not moderator) in the relationship between illness intrusiveness and QOL, even after adjustment for pain intensity [β = -0.16, 95% CI (-0.13, -0.06)].

Conclusions: Lower levels of illness intrusiveness were associated with improved QOL through greater perceived control. Longitudinal studies are needed to further assess these mechanisms in older adults with arthritis and MM to adapt existing interventions.

Clinical implications: Perceived control may be a target for future behavioral interventions to improve QOL in this population.

目的:关节炎与老年人生活质量差(QOL)相关;关节炎和多病(MM)患者的生活质量更差。疾病侵入性和感知控制在单一疾病的研究中被确定为生活质量的可改变机制,但在患有关节炎和MM的老年人中尚未得到充分研究。我们调查了这些潜在机制在患有关节炎和MM的老年人中对生活质量的作用。方法:使用SPSS的PROCESS宏对年龄≥62岁的患有关节炎和MM的老年人样本(N = 228)进行二次分析。结果:参与者平均年龄72岁,患有4种慢性疾病,疼痛强度高,疾病侵入性强。感知控制是疾病侵入性和生活质量之间关系的重要中介(但不是调节因子),即使在调整疼痛强度后也是如此[β = -0.16, 95% CI(-0.13, -0.06)]。结论:较低的疾病侵入性水平与较好的生活质量相关。需要纵向研究来进一步评估老年关节炎和MM患者的这些机制,以适应现有的干预措施。临床意义:感知控制可能是未来行为干预的目标,以改善该人群的生活质量。
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引用次数: 0
Uncovering Psychosocial Contexts in Goals of Care Conversations: A Qualitative Study in a Multi-Centered Randomized Controlled Trial. 揭示护理对话目标中的社会心理背景:一项多中心随机对照试验的定性研究。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2025-10-01 Epub Date: 2025-02-17 DOI: 10.1080/07317115.2025.2464023
Julia Gambino, Lindsay M Schlichte, Marie C Haverfield, Craig Libman, David B Bekelman, Jessica E Ma

Objectives: Patients often struggle with psychological and social stressors that accompany life-limiting chronic illness. Because psychosocial concerns may be conveyed through emotional sentiments, this study aimed to identify emotional expressions to describe psychosocial contexts communicated during goals of care conversations.

Methods: This qualitative study evaluated 26 transcripts of goals of care conversations using a "goals of communication guide" from the ADvancing system Alleviation with Palliative Treatment (ADAPT) trial in VA Eastern Colorado and Puget Sound Health Systems. Using an inductive and deductive approach, a codebook was developed to examine participants' expressed emotions regarding overall goals of care, illness, end of life, and family involvement. Major themes around psychosocial concerns were summarized.

Results: Four themes on psychosocial contexts in goals of care conversations emerged, with instances of both positive and negative affect. Participants commonly discussed contexts relating to: acceptance of illness, the feeling of being a burden; illness transitions; and suffering from disease.

Conclusions: Unprompted within these conversations, patient emotional sentiments in goals of care conversations highlight psychosocial contexts important to patient values and preferences around treatment decisions.

Clinical implications: Emphasis on clinician recognition of these psychosocial contexts may help clinicians better support and elicit patient goals and preferences.

目的:患者经常与伴随限制生命的慢性疾病的心理和社会压力源作斗争。由于心理社会关注可能通过情绪情绪传达,本研究旨在确定情感表达来描述在护理谈话目标中传达的心理社会背景。方法:本定性研究使用“沟通目标指南”评估了26份护理目标对话的文本,这些对话来自弗吉尼亚州东科罗拉多州和普吉特海湾卫生系统的姑息治疗推进系统缓解(ADAPT)试验。使用归纳和演绎的方法,开发了一个密码本来检查参与者对护理,疾病,生命终结和家庭参与的总体目标所表达的情绪。总结了有关社会心理问题的主要主题。结果:四个主题的社会心理背景的目标护理对话出现,有实例的积极和消极的影响。参与者通常讨论的背景涉及:接受疾病、成为负担的感觉;疾病转变;并遭受疾病的折磨。结论:在这些对话中,患者的情绪情绪在护理对话的目标中突出了对患者价值观和治疗决策偏好重要的社会心理背景。临床意义:强调临床医生对这些社会心理环境的认识可能有助于临床医生更好地支持和引出患者的目标和偏好。
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引用次数: 0
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Clinical Gerontologist
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