Context: Shared decision making is widely advocated, however most research focuses on treatment decisions. Evidence for shared decision-making in relation to diagnostic testing is limited to specific tests such as prostate specific antigen, screening and genetic tests. There is a lack of evidence regarding the relevance of shared decision-making to routine blood tests, despite increasing rates of laboratory testing in primary care. Objectives: To explore shared decision making and communication around routine blood tests in primary care. Study design: Qualitative interview study Setting:
{"title":"Doctor-patient communication about blood tests: Qualitative interview study in general practice","authors":"J. Watson, W. Hamilton, C. Salisbury, J. Banks","doi":"10.1370/afm.20.s1.2858","DOIUrl":"https://doi.org/10.1370/afm.20.s1.2858","url":null,"abstract":"Context: Shared decision making is widely advocated, however most research focuses on treatment decisions. Evidence for shared decision-making in relation to diagnostic testing is limited to specific tests such as prostate specific antigen, screening and genetic tests. There is a lack of evidence regarding the relevance of shared decision-making to routine blood tests, despite increasing rates of laboratory testing in primary care. Objectives: To explore shared decision making and communication around routine blood tests in primary care. Study design: Qualitative interview study Setting:","PeriodicalId":115130,"journal":{"name":"Patient Engagement","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125419574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
D. Howse, A. Delahunty-Pike, Olivier Dumont-Samson, Mathieu Bisson, Mireille Lambert, S. Doucet, M. Chouinard, C. Hudon, Cathy J. Scott, Fred Burge, Linda Wilhelm, Mike Warren, J. Porter, Charlotte Schwarz, Donna Rubenstein, André Gaudreau
Context: Health researchers are increasingly engaging patients and their families as partners in the research process, from inception to knowledge translation. The trend toward ‘patient - oriented’ research is encouraged by a growing view that studies which integrate the patient perspective will make better use of resources to produce more relevant evidence that can be more easily translated to clinical settings. While there is an emerging literature on best practices, challenges, and learnings related to patient engagement (PE), few studies consider the experiences of patient partners (PP) and researchers in the same project. This presentation will present PP and researcher experiences of PE, highlighting important similarities and differences and proposing recommendations. Objectives: To characterize PE experience from the perspective of researchers and PP working together on the same research program, PriCARE; to identify successes and challenges; to ascertain contributions of PE in health research. Study Design: Qualitative. Setting or Dataset: This study was conducted within the larger 5-province PriCARE study examining a nurse-led case management intervention for primary care patients with complex needs. Population studied: 22 members of the study team (7 PP, 8 coordinators, 2 co-investigators, 5 principal investigators). Methods: Data collection: In-depth interviews using guides co-created by researchers and PP covering topics such as PE-related training and knowledge, and reflections on PE processes and impact. Research assistants external to the PriCARE study conducted interviews, transcribed researcher interviews, and generated a summary of PP interviews. Analysis: Data were analyzed thematically using a coding framework that was co-developed with PP. Outcome Measures: Researcher and patient experiences of PE, PP contributions to health research. Results: All team members need PE training at the beginning
{"title":"Patient engagement works: Patient and researcher experiences of patient partnership in primary healthcare research","authors":"D. Howse, A. Delahunty-Pike, Olivier Dumont-Samson, Mathieu Bisson, Mireille Lambert, S. Doucet, M. Chouinard, C. Hudon, Cathy J. Scott, Fred Burge, Linda Wilhelm, Mike Warren, J. Porter, Charlotte Schwarz, Donna Rubenstein, André Gaudreau","doi":"10.1370/afm.20.s1.2908","DOIUrl":"https://doi.org/10.1370/afm.20.s1.2908","url":null,"abstract":"Context: Health researchers are increasingly engaging patients and their families as partners in the research process, from inception to knowledge translation. The trend toward ‘patient - oriented’ research is encouraged by a growing view that studies which integrate the patient perspective will make better use of resources to produce more relevant evidence that can be more easily translated to clinical settings. While there is an emerging literature on best practices, challenges, and learnings related to patient engagement (PE), few studies consider the experiences of patient partners (PP) and researchers in the same project. This presentation will present PP and researcher experiences of PE, highlighting important similarities and differences and proposing recommendations. Objectives: To characterize PE experience from the perspective of researchers and PP working together on the same research program, PriCARE; to identify successes and challenges; to ascertain contributions of PE in health research. Study Design: Qualitative. Setting or Dataset: This study was conducted within the larger 5-province PriCARE study examining a nurse-led case management intervention for primary care patients with complex needs. Population studied: 22 members of the study team (7 PP, 8 coordinators, 2 co-investigators, 5 principal investigators). Methods: Data collection: In-depth interviews using guides co-created by researchers and PP covering topics such as PE-related training and knowledge, and reflections on PE processes and impact. Research assistants external to the PriCARE study conducted interviews, transcribed researcher interviews, and generated a summary of PP interviews. Analysis: Data were analyzed thematically using a coding framework that was co-developed with PP. Outcome Measures: Researcher and patient experiences of PE, PP contributions to health research. Results: All team members need PE training at the beginning","PeriodicalId":115130,"journal":{"name":"Patient Engagement","volume":"CE-23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126542676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
G. Bartlett-Esquilant, Jamie DeMore, Roger Stoddard, Brenda Andreas, Ghislaine Rouly, Annick Beaudry, Alanna Baldwin, Mpho Begin, K. Prevost, Lynne Mansell, J. Cranston
{"title":"Demonstrating the complexity of patient-partnered research in primary care: a snapshot of patient-partners","authors":"G. Bartlett-Esquilant, Jamie DeMore, Roger Stoddard, Brenda Andreas, Ghislaine Rouly, Annick Beaudry, Alanna Baldwin, Mpho Begin, K. Prevost, Lynne Mansell, J. Cranston","doi":"10.1370/afm.20.s1.2753","DOIUrl":"https://doi.org/10.1370/afm.20.s1.2753","url":null,"abstract":"","PeriodicalId":115130,"journal":{"name":"Patient Engagement","volume":"6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128354336","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
R. Ganann, Stuart M Phillips, C. Moore, B. Newbold, Maggie MacNeil, Elizabeth Orr, S. Neil-Sztramko, A. Kuspinar, Courtney Kennedy, Elizabeth Alvarez
{"title":"The EMBOLDEN Co-design study: Partnering with older adults and communities to develop a community program to enhance mobility","authors":"R. Ganann, Stuart M Phillips, C. Moore, B. Newbold, Maggie MacNeil, Elizabeth Orr, S. Neil-Sztramko, A. Kuspinar, Courtney Kennedy, Elizabeth Alvarez","doi":"10.1370/afm.20.s1.2945","DOIUrl":"https://doi.org/10.1370/afm.20.s1.2945","url":null,"abstract":"","PeriodicalId":115130,"journal":{"name":"Patient Engagement","volume":"128 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133991438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mathieu Bisson, C. Hudon, F. Burge, Mireille Lambert, S. Doucet, D. Howse, Olivier Dumont-Samson, F. K. Aubrey-Bassler, M. Chouinard, J. Porter, V. Ramsden, André Gaudreau, Charlotte Schwarz, Donna Rubenstein, Cathy J. Scott, Linda Wilhelm, M. Macdonald, A. Delahunty-Pike
Context. There is growing evidence supporting patients’ engageme nt (PE) in primary care research to improve the quality, relevance, and uptake of research. However, guidance is still needed to plan and operationalize this engagement during the research process. Objective. To develop a logic model illustrating empirically the causal links between context, resources, activities, and expected outcomes of PE in an implementation research program in primary care. Study design. Instrumental case study. Setting. A research program (PriCARE) aiming to implement and evaluate a case management intervention (CMI) in primary care clinics across five provinces in Canada. Population studied. Research team members. Methods. Data collection. Participant observation and in-depth interviews (n=22) conducted by two independent research assistants with research team members: principal investigators (n=5); co-investigators (n=2); research coordinators and assistants (n=8); and patient partners (n=7). Analysis. Deductive thematic analysis using components of the logic model as coding categories. All data were coded using NVivo 12 software. Data were reduced and organized in a first logic model version. Team meetings helped to refine the logic model. The final version was validated by all research team members. Results. The logic model provides an empirical illustration of the relationship between context, resources, activities, and expected outcomes for PE. Mobilized resources (human, financial, organizational, and communicational) allow research team members to be involved in many activities related to PE: recruitment
{"title":"Planning, operationalizing, and evaluating patient partners’ engagement in primary care research: a logic model","authors":"Mathieu Bisson, C. Hudon, F. Burge, Mireille Lambert, S. Doucet, D. Howse, Olivier Dumont-Samson, F. K. Aubrey-Bassler, M. Chouinard, J. Porter, V. Ramsden, André Gaudreau, Charlotte Schwarz, Donna Rubenstein, Cathy J. Scott, Linda Wilhelm, M. Macdonald, A. Delahunty-Pike","doi":"10.1370/afm.20.s1.2798","DOIUrl":"https://doi.org/10.1370/afm.20.s1.2798","url":null,"abstract":"Context. There is growing evidence supporting patients’ engageme nt (PE) in primary care research to improve the quality, relevance, and uptake of research. However, guidance is still needed to plan and operationalize this engagement during the research process. Objective. To develop a logic model illustrating empirically the causal links between context, resources, activities, and expected outcomes of PE in an implementation research program in primary care. Study design. Instrumental case study. Setting. A research program (PriCARE) aiming to implement and evaluate a case management intervention (CMI) in primary care clinics across five provinces in Canada. Population studied. Research team members. Methods. Data collection. Participant observation and in-depth interviews (n=22) conducted by two independent research assistants with research team members: principal investigators (n=5); co-investigators (n=2); research coordinators and assistants (n=8); and patient partners (n=7). Analysis. Deductive thematic analysis using components of the logic model as coding categories. All data were coded using NVivo 12 software. Data were reduced and organized in a first logic model version. Team meetings helped to refine the logic model. The final version was validated by all research team members. Results. The logic model provides an empirical illustration of the relationship between context, resources, activities, and expected outcomes for PE. Mobilized resources (human, financial, organizational, and communicational) allow research team members to be involved in many activities related to PE: recruitment","PeriodicalId":115130,"journal":{"name":"Patient Engagement","volume":"10a 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128186513","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jamie DeMore, Roger Stoddard, G. Bartlett-Esquilant, Brenda Andreas, Kent C Loftsgard, Mpho Begin, Annick Beaudry, K. Prevost, Ghislaine Rouly, Alanna Baldwin, J. Cranston
{"title":"Establishing patient-partner priorities within the primary and integrated health care innovations network in Canada","authors":"Jamie DeMore, Roger Stoddard, G. Bartlett-Esquilant, Brenda Andreas, Kent C Loftsgard, Mpho Begin, Annick Beaudry, K. Prevost, Ghislaine Rouly, Alanna Baldwin, J. Cranston","doi":"10.1370/afm.20.s1.2765","DOIUrl":"https://doi.org/10.1370/afm.20.s1.2765","url":null,"abstract":"","PeriodicalId":115130,"journal":{"name":"Patient Engagement","volume":"85 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130520686","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-10-11DOI: 10.1007/978-3-030-14101-1_6
R. Matthews, S. Green, Rowan Myron, C. French, S. Barber, D. Matthew, Sandra Jayacodi, Jenny Trite, Adrian Brown, Justin N. Baker, Howard Bluston, R. Grant, J. Straus, Richard M Ballerand, Maurice Hoffman, F. Husson, L. Fischer, C. Augustine
{"title":"Connections: The Power of Learning Together to Improve Healthcare in the United Kingdom","authors":"R. Matthews, S. Green, Rowan Myron, C. French, S. Barber, D. Matthew, Sandra Jayacodi, Jenny Trite, Adrian Brown, Justin N. Baker, Howard Bluston, R. Grant, J. Straus, Richard M Ballerand, Maurice Hoffman, F. Husson, L. Fischer, C. Augustine","doi":"10.1007/978-3-030-14101-1_6","DOIUrl":"https://doi.org/10.1007/978-3-030-14101-1_6","url":null,"abstract":"","PeriodicalId":115130,"journal":{"name":"Patient Engagement","volume":"10 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-10-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127261737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-10-01DOI: 10.1007/978-3-030-14101-1_7
J. Braithwaite, K. Churruca, L. Wells, F. Rapport, T. Lawson, Paula Arro, Jo Watson
{"title":"Partnering with Patients for Change and Improvement: An Australian Perspective","authors":"J. Braithwaite, K. Churruca, L. Wells, F. Rapport, T. Lawson, Paula Arro, Jo Watson","doi":"10.1007/978-3-030-14101-1_7","DOIUrl":"https://doi.org/10.1007/978-3-030-14101-1_7","url":null,"abstract":"","PeriodicalId":115130,"journal":{"name":"Patient Engagement","volume":"8 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130367319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 1900-01-01DOI: 10.1007/978-3-030-14101-1_3
M. Pomey, Vincent Dumez, A. Boivin, Ghislaine Rouly, P. Lebel, A. Berkesse, Annie Descoteaux, Mathieu Jackson, Philippe Karazivan, N. Clavel
{"title":"The Participation of Patients and Relatives in Quebec’s Health System: The Montréal Model","authors":"M. Pomey, Vincent Dumez, A. Boivin, Ghislaine Rouly, P. Lebel, A. Berkesse, Annie Descoteaux, Mathieu Jackson, Philippe Karazivan, N. Clavel","doi":"10.1007/978-3-030-14101-1_3","DOIUrl":"https://doi.org/10.1007/978-3-030-14101-1_3","url":null,"abstract":"","PeriodicalId":115130,"journal":{"name":"Patient Engagement","volume":"7 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125371729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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