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The Role of Coping and Posttraumatic Stress in Fostering Posttraumatic Growth and Quality of Life Among Women with Breast Cancer. 应对和创伤后压力在促进癌症妇女创伤后成长和生活质量中的作用。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-06-01 Epub Date: 2023-10-07 DOI: 10.1007/s10880-023-09977-x
Amy R Senger, Chelsea G Ratcliff, Robin K Semelsberger, Alejandro Chaoul, Lorenzo Cohen

Tedeschi & Calhoun's model of posttraumatic growth (PTG) suggests that intrusive thoughts about a traumatic event, in combination with helpful coping strategies, facilitates PTG. This manuscript applies this model to a sample of breast cancer survivors, augments it to conceptualize coping strategies as "active" or "avoidant," and extends it to include health-related quality of life (HRQOL). This is a secondary analysis of a subset of breast cancer patients (N = 123) in a randomized clinical trial of Tibetan yoga, which examines the associations of coping at study entry with PTG, PTSS (i.e., intrusive thoughts and avoidance), and HRQOL (physical (PCS) and mental (MCS) component scales) reported 9 and 15 months later. Mediation analyses revealed that higher baseline active coping predicted higher 9-month PTG, which in turn predicted higher 15-month PCS [effect = .46, 95% CI (.06, 1.07)]. Exploratory moderated mediation analyses revealed that higher baseline intrusive thoughts about cancer predicted lower 9-month PTG, which in turn predicted lower 15-month PCS, but only for those reporting low active coping [effect = - .06, 95% CI (- .16, - .003)]. Active coping may play a critical role of fostering PTG and improving subsequent HRQOL in the presence of rumination about cancer.

Tedeschi和Calhoun的创伤后成长模型(PTG)表明,对创伤事件的侵入性思考,加上有用的应对策略,有助于创伤后成长。该手稿将该模型应用于癌症幸存者样本,将其扩展为将应对策略概念化为“积极”或“逃避”,并将其扩展至包括健康相关的生活质量(HRQOL)。这是对癌症患者子集的二次分析(N = 123)在一项西藏瑜伽的随机临床试验中,该试验考察了进入研究时的应对方式与9个月和15个月后报告的PTG、PTSS(即侵入性思维和回避)以及HRQOL(身体(PCS)和心理(MCS)成分量表)的关系。中介分析显示,较高的基线积极应对预测较高的9个月PTG,这反过来又预测较高的15个月PCS[效果 = .46,95%CI(.06,1.07)]。探索性调节中介分析显示,对癌症的基线侵入性想法越高,预测9个月的PTG越低,这反过来预测15个月的PCS越低,但仅适用于那些报告积极应对能力较低的人[效果 = -.06,95%CI(-16,-003)]。在对癌症进行反思的情况下,积极应对可能在促进PTG和改善后续HRQOL方面发挥关键作用。
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引用次数: 0
Perceived Stigma in Patients with Autoimmune Hepatitis. 自身免疫性肝炎患者的耻辱感。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-06-01 Epub Date: 2023-12-21 DOI: 10.1007/s10880-023-09983-z
Jessica P Naftaly, Estée C H Feldman, Rachel N Greenley

Perceived stigma (PS) adversely impacts psychosocial and disease outcomes in patients with chronic liver diseases (CLD), and those with autoimmune hepatitis (AIH) may be at risk for PS given inaccurate assumptions about the origin of their diagnosis. The aims of the current study are to describe the frequency of PS in patients with AIH, compare rates of PS in AIH to rates of PS in primary biliary cholangitis (PBC) and CLD, and examine demographic correlates of PS. 262 adults with AIH (95% female, Mage = 51.53 years) completed online questionnaires on demographics, disease information, and PS. 54-68% reported PS with themes of selective disclosure, non-disclosure, or hiding diagnosis. PS was higher in those with AIH compared to those with PBC, but lower than those with various CLD. Age was inversely related to PS. Given the results, provider screening of PS and integration of clinical health psychologists may be helpful for identifying PS in patients with AIH.

认知羞辱(PS)对慢性肝病(CLD)患者的社会心理和疾病预后产生了不利影响,而自身免疫性肝炎(AIH)患者可能会因为对其诊断起源的不准确假设而面临认知羞辱的风险。本研究的目的是描述自身免疫性肝炎(AIH)患者发生 PS 的频率,比较自身免疫性肝炎(AIH)与原发性胆汁性胆管炎(PBC)和慢性肝病(CLD)的 PS 发生率,并研究 PS 与人口统计学的相关性。262 名成人 AIH 患者(95% 为女性,年龄 = 51.53 岁)完成了关于人口统计学、疾病信息和 PS 的在线问卷调查。54-68%的患者报告了以选择性披露、不披露或隐瞒诊断为主题的PS。AIH患者的PS值高于PBC患者,但低于各种CLD患者。年龄与 PS 成反比。鉴于上述结果,医疗服务提供者的 PS 筛查和临床健康心理学家的整合可能有助于识别 AIH 患者的 PS。
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引用次数: 0
Linking Primary Care to Community-Based Mental Health Resources via Family Navigation and Phone-Based Care Coordination. 通过家庭导航和电话护理协调,将初级保健与社区心理健康资源联系起来。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-06-01 Epub Date: 2024-01-24 DOI: 10.1007/s10880-023-09987-9
Leandra Godoy, Renee Williams, Lindsay Druskin, Hailey Fleece, Sujatha Bergen, Gail Avent, Adelaide Robb, Matthew G Biel, Lawrence S Wissow, Lee Savio Beers, Melissa Long

Family navigation (FN) and phone-based care coordination may improve linkages from primary care to community-based mental health referrals, but research on their differential impact is limited. This mixed-methods study compared FN and phone-based care coordination in connecting families to mental health services from primary care. Families of children (56.3% male, mean age = 10.4 years, 85.4% Black) were sequentially assigned to either receive FN through a family-run organization or phone-based coordination via the child psychiatry access program (CPAP). Caregiver-reported children's mental health improved in both groups and both groups were satisfied with services. More families in the CPAP group had appointments made or completed (87%) than families in the FN group (71%) though the difference was not statistically significant. Future research with a larger sample that matches family needs and preferences (e.g., level and type of support) with navigation services would be beneficial.

家庭导航(FN)和基于电话的护理协调可以改善从初级保健到社区心理健康转介的联系,但关于它们的不同影响的研究却很有限。这项混合方法研究比较了家庭导航和电话护理协调在将家庭从初级医疗机构转介到心理健康服务方面的作用。儿童家庭(56.3% 为男性,平均年龄 = 10.4 岁,85.4% 为黑人)被依次分配到通过家庭运营组织接受家庭网络服务或通过儿童精神科就医计划(CPAP)接受电话协调服务。据护理人员报告,两组儿童的心理健康状况都有所改善,而且两组都对服务感到满意。与 FN 组(71%)相比,CPAP 组中预约或完成预约的家庭更多(87%),但差异在统计上并不显著。未来的研究将使用更多的样本,以便将家庭的需求和偏好(如支持的程度和类型)与导航服务相匹配。
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引用次数: 0
Screening for Emotional Problems in Pediatric Hospital Outpatient Clinics: Psychometric Traits of the Pediatric Symptom Checklist (Hebrew Version). 儿科医院门诊的情绪问题筛选:儿科症状检查表的心理测量特征(希伯来语版)。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-06-01 Epub Date: 2023-11-24 DOI: 10.1007/s10880-023-09982-0
Shachar-Lavie Iris, Mansbach-Kleinfeld Ivonne, Ashkenazi-Hoffnung Liat, Benaroya-Milshtein Noa, Liberman Alon, Segal Hila, Brik Shira, Fennig Silvana

This study assessed feasibility and psychometric properties of the Hebrew parent version of the Pediatric Symptom Checklist (PSC-17), aiming to improve treatment access for children and adolescents with behavioral and mental needs through early screening. The PSC-17 and the Strengths and Difficulties Questionnaire (SDQ) were filled in the waiting room, at three ambulatory clinics in a tertiary pediatric center, by 274 parents using a tablet or their cellphone. Demographic and clinical data were retrieved from patients' files. PSC results were compared to SDQ results and assessed vis-a-vis a psychiatric diagnosis, determined previously and independently by trained pediatric psychiatrists for 78 pediatric patients who attended these clinics. Construct and discriminant validity of the PSC-17 Hebrew version were good. Sensitivity, specificity, and positive and negative predictive values are presented. The PSC-17 (Hebrew version) was found to be a feasible tool for mental health screening at pediatric ambulatory care clinics.

本研究评估了希伯来文版儿科症状检查表(PSC-17)的可行性和心理测量学特性,旨在通过早期筛查改善有行为和精神需求的儿童和青少年的治疗可及性。PSC-17和优势与困难问卷(SDQ)由274名家长在一家三级儿科中心的三个流动诊所的候诊室用平板电脑或手机填写。从患者档案中检索人口统计学和临床数据。将PSC结果与SDQ结果进行比较,并对精神病诊断进行评估,这些诊断是由经过培训的儿科精神病学家对78名在这些诊所就诊的儿科患者先前独立确定的。PSC-17希伯来语版本的结构效度和判别效度较好。提出了敏感性、特异性以及阳性和阴性预测值。PSC-17(希伯来语版本)被发现是一个可行的工具,心理健康筛查在儿科门诊诊所。
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引用次数: 0
The Headache Psychologists' Role in Pediatric and Adult Headache Care: A Qualitative Study of Expert Practitioners. 头痛心理学家在儿童和成人头痛护理中的作用:对专业从业者的定性研究。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-06-01 Epub Date: 2023-10-15 DOI: 10.1007/s10880-023-09972-2
Amy S Grinberg, Teresa M Damush, Hayley Lindsey, Laura Burrone, Sean Baird, Stanley Curtis Takagishi, Ivy Snyder, Roberta E Goldman, Jason J Sico, Elizabeth K Seng

Objective: We examined the perspectives of expert headache psychologists to inform best practices for integrating headache psychologists into the care of children and adults with headache disorders within medical settings.

Background: Headache disorders are prevalent, chronic, and disabling neurological conditions. As clinical providers trained in evidence-based behavior change interventions with expertise in headache disorders, headache psychologists are uniquely positioned to provide behavioral headache treatment.

Methods: In 2020, we conducted semi-structured interviews with a purposive sample of expert headache psychologists working across the United States. Open-ended questions focused on their roles, clinical flow, and treatment content. Interviews were audio-recorded, transcribed, de-identified, and analyzed using a rapid qualitative analysis method.

Results: We interviewed seven expert headache psychologists who have worked for an average of 18 years in outpatient settings with pediatric (n = 4) and adult (n = 3) patients with headache. The themes that emerged across the clinical workflow related to key components of behavioral headache treatment, effective behavioral treatment referral practices, and barriers to patient engagement. The expert headache psychologists offered evidence-based behavioral headache interventions such as biofeedback, relaxation training, and cognitive behavioral therapy emphasizing lifestyle modification as standalone options or concurrently with pharmacological treatment and were of brief duration. Participants reported many of their patients appeared reluctant to seek behavioral treatment for headache. Participants believed referrals were most effective when the referring provider explained to the patient the rationale for behavioral treatment, treatment content, and positive impact on headache activity, functioning, and quality of life. Barriers cited by participants to integrating headache psychology into headache care included the paucity of psychologists with specialized headache training, lack of insurance reimbursement, limited patient time to seek behavioral treatment, and inadequate patient knowledge of what behavioral treatment entails.

Conclusion: Headache psychologists are often core members of multidisciplinary headache teams offering short-term, evidence-based behavioral interventions, both as a standalone treatment or in conjunction with pharmacotherapy. However, barriers to care persist. Enhancing referring providers' familiarity with psychologists' role in headache care may aid successful referrals for behavioral interventions for headache.

目的:我们研究了头痛专家心理学家的观点,为将头痛心理学家纳入医疗环境中照顾患有头痛障碍的儿童和成人提供最佳实践。背景:头痛是一种常见的、慢性的、致残性的神经系统疾病。作为受过循证行为改变干预培训的临床提供者,头痛心理学家在提供行为性头痛治疗方面具有独特的地位。方法:2020年,我们对美国各地的头痛专家心理学家进行了半结构化访谈。开放式问题集中于他们的角色、临床流程和治疗内容。访谈采用快速定性分析方法进行录音、转录、去识别和分析。结果:我们采访了7位头痛专家心理学家,他们在门诊环境中平均工作了18年 = 4) 和成人(n = 3) 头痛患者。临床工作流程中出现的主题与行为性头痛治疗的关键组成部分、有效的行为治疗转诊实践以及患者参与的障碍有关。头痛专家心理学家提供了基于证据的行为性头痛干预措施,如生物反馈、放松训练和认知行为疗法,强调将改变生活方式作为独立选择,或与药物治疗同时进行,且持续时间短。参与者报告说,他们的许多患者似乎不愿意寻求头痛的行为治疗。参与者认为,当转诊提供者向患者解释行为治疗的基本原理、治疗内容以及对头痛活动、功能和生活质量的积极影响时,转诊最有效。参与者指出,将头痛心理学纳入头痛护理的障碍包括缺乏受过专门头痛培训的心理学家,缺乏保险报销,患者寻求行为治疗的时间有限,以及患者对行为治疗的知识不足。结论:头痛心理学家通常是提供短期循证行为干预的多学科头痛团队的核心成员,无论是作为独立治疗还是与药物治疗相结合。然而,护理障碍依然存在。提高转诊提供者对心理学家在头痛护理中的作用的熟悉程度,可能有助于成功转诊头痛行为干预。
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引用次数: 0
Systematic Search and Scoping Review of Physicians' Intolerance of Uncertainty and Medical Decision-Making Uncertainties During the COVID-19 Pandemic: A Summary of the Literature and Directions for Future Research. 新冠肺炎大流行期间医生对不确定性的不容忍和医疗决策的系统搜索和范围界定综述:文献综述和未来研究方向。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-06-01 Epub Date: 2023-11-06 DOI: 10.1007/s10880-023-09974-0
Helmut Appel, Samineh Sanatkar

Pandemic-related uncertainties and intolerance of uncertainty (IU) could negatively affect physicians' well-being and functioning, being associated with experiences of distress and problematic decision-making processes. To summarize the available quantitative and qualitative evidence of physicians' IU and decisional uncertainty during COVID-19 and problems associated with it, a systematic search was conducted to identify all relevant articles describing physician uncertainty with regard to medical decision making and well-being in COVID-19 pandemic conditions. Medical, psychological, and preprint databases were searched. Ten articles met all eligibility criteria, with eight describing quantitative and two describing qualitative research outcomes, assessed primarily in European regions and via online surveys. Associations between IU and symptoms of poor mental health and mental health risk factors were widespread, but inconsistencies emerged. Qualitative studies emphasized decisional uncertainty as a stressor for physicians, and quantitative studies suggest it may have fostered more unproven treatment choices. While the prevalence and impact of physician uncertainty under COVID-19 conditions requires further investigation, sighting available literature indicates that IU coincided with experiences of poor mental health and, at least towards the beginning of the pandemic, with willingness to endorse unproven treatments. Efforts to reduce uncertainty-related problems for physicians seem warranted, for example, through normalizing experiences of uncertainty or reducing avoidable uncertainty through maintaining open and timely communication channels.

与流行病相关的不确定性和对不确定性的不容忍(IU)可能会对医生的健康和功能产生负面影响,与痛苦经历和有问题的决策过程有关。为了总结医生在新冠肺炎期间的IU和决策不确定性及其相关问题的可用定量和定性证据,进行了系统搜索,以确定所有描述医生在新冠肺炎大流行条件下医疗决策和健康方面的不确定性的相关文章。检索了医学、心理学和预印本数据库。10篇文章符合所有资格标准,其中8篇描述了定量研究结果,2篇描述了定性研究结果,主要在欧洲地区通过在线调查进行评估。IU与不良心理健康症状和心理健康风险因素之间的关联很普遍,但出现了不一致的情况。定性研究强调决策的不确定性是医生的压力源,定量研究表明,这可能促进了更多未经证实的治疗选择。虽然新冠肺炎条件下医生不确定性的流行率和影响需要进一步调查,但现有文献表明,IU与精神健康状况不佳的经历相吻合,至少在大流行开始时,IU愿意支持未经证实的治疗方法。减少医生不确定性相关问题的努力似乎是必要的,例如,通过规范不确定性体验,或通过保持开放和及时的沟通渠道减少可避免的不确定性。
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引用次数: 0
Normative Perceptions and Medical Providers' Help-Seeking Behavior in a Rural Health Setting. 农村卫生环境中的规范观念与医疗服务提供者的求助行为。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-06-01 Epub Date: 2023-10-11 DOI: 10.1007/s10880-023-09980-2
Danielle L Terry, Gabrielle P Safian

Healthcare providers experience greater work stress and mental health concerns compared to the general population. This study aimed to better understand factors that promote engagement in help-seeking behaviors among rural medical providers. Considering a social norms perspective, this study examined: (a) the accuracy of medical providers' perceptions of injunctive (i.e., approval of) norms related to seeking time off for their own medical, mental, and social health care (b) determine whether greater self-other differences (SODs) predict a greater likelihood of help-seeking behavior, and (c) examine associations between self-valuation, SODs, and self-care behaviors. Electronic surveys were emailed to 805 rural medical providers (17.8% response rate). Findings suggested that providers believed that their coworkers were less approving of help-seeking behavior for a psychosocial or mental health reason than they actually were. Furthermore, self-other differences (SODs) of injunctive norms predicted help-seeking behavior, such that those with greater SODs reported less help-seeking behavior. Although this research provides some foundational evidence for the role of normative perceptions in self-care behaviors, larger systemic and organizational problems continue to drive these struggles and contribute to burnout. Future research might examine the interplay of normative interventions and organizational changes to enhance help-seeking behaviors among medical providers.

与普通人群相比,医疗保健提供者的工作压力和心理健康问题更大。本研究旨在更好地了解促进农村医疗服务提供者参与求助行为的因素。从社会规范的角度来看,本研究考察了:(a)医疗服务提供者对与其自己的医疗、心理和社会保健寻求休假相关的禁令性(即批准)规范的感知的准确性,以及(c)研究自我评价、SOD和自我照顾行为之间的关联。通过电子邮件向805名农村医疗服务提供者发送了电子调查(17.8%的回复率)。研究结果表明,提供者认为,他们的同事出于心理社会或心理健康原因对求助行为的认可程度低于实际情况。此外,禁令规范的自我-他人差异(SOD)预测了求助行为,因此那些SOD较大的人报告的求助行为较少。尽管这项研究为规范认知在自我照顾行为中的作用提供了一些基本证据,但更大的系统性和组织性问题仍在推动这些斗争,并导致倦怠。未来的研究可能会考察规范干预和组织变革的相互作用,以增强医疗提供者的求助行为。
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引用次数: 0
Level of Evidence of Telehealth Rehabilitation and Behavioral Health Services for Traumatic Brain Injury: A Scoping Review. 创伤性脑损伤远程健康康复和行为健康服务的证据水平:范围界定综述。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-06-01 Epub Date: 2023-10-30 DOI: 10.1007/s10880-023-09981-1
Jessica P Conklin, Tracey Wallace, Katherine L McCauley, Jackie Breitenstein, Russell K Gore

Traumatic brain injury (TBI) can result in significant impairments in functioning associated with partial or permanent disabilities. Examining the evidence for domain-specific telehealth interventions is necessary to guide the development of effective clinical and research programs for this population. The present scoping review characterizes the level of evidence across a range of TBI-related disabilities and impairments. A literature search was performed across comprehensive databases using search terms related to TBI, rehabilitation, telehealth, and outcome. A total of 19 publications from 17 studies met inclusion criteria. Articles focused on telehealth interventions to improve global, cognitive, emotional, and physical functioning post-TBI. Levels of evidence ranged from 1 to 4 across domains, with predominantly experimental designs (level 1). Outcomes demonstrating improvement or benefit from telehealth treatments were reported across all functional domains (50-80% of studies). Results highlight the potential of telehealth interventions across the span of comprehensive interdisciplinary rehabilitation care. Expanded research is needed on remote treatment options for physical symptoms, for subgroups within TBI populations (i.e., mild TBI, military populations), as well as on remote and hybrid comprehensive rehabilitation programs.

创伤性脑损伤(TBI)可导致与部分或永久残疾相关的功能显著受损。检查特定领域远程医疗干预的证据对于指导为这一人群制定有效的临床和研究计划是必要的。本范围界定审查描述了一系列TBI相关残疾和损伤的证据水平。使用与TBI、康复、远程医疗和结果相关的搜索术语,在综合数据库中进行文献搜索。17项研究共有19篇出版物符合纳入标准。文章侧重于远程医疗干预,以改善脑外伤后的全球、认知、情绪和身体功能。各领域的证据水平从1到4不等,主要是实验设计(1级)。所有功能领域都报告了显示远程医疗治疗改善或受益的结果(50-80%的研究)。研究结果突出了远程医疗干预在跨学科综合康复护理领域的潜力。需要扩大对身体症状的远程治疗选择、TBI人群中的亚组(即轻度TBI、军事人群)以及远程和混合综合康复计划的研究。
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引用次数: 0
Training Psychology and Psychiatry Diversity Dialogue Facilitators. 培训心理学和精神病学多样性对话促进者。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-06-01 Epub Date: 2023-11-06 DOI: 10.1007/s10880-023-09978-w
Naadira C Upshaw, Noriel Lim, Chanda C Graves, Erica D Marshall-Lee, Eugene W Farber, Nadine J Kaslow

This article describes a Diversity Dialogue Facilitator Training Program for Trainees, an innovative project that prepares psychology and psychiatry learners to facilitate diversity dialogues with healthcare professionals (i.e., clinical and research faculty, staff, and learners) in academic healthcare settings. Through participating in this program, trainees learn to facilitate discussions in which participants reflect upon oppression, discrimination, and disparities; explore their biases; connect and exchange views with colleagues regarding challenging societal events; and delineate action steps for advancing equity, inclusion, social responsivity, and justice in their professional and personal lives. After outlining contextual factors that informed project development, implementation, and dissemination, the iterative process of creating and implementing the training curriculum is detailed, with the aim of offering a model for other academic health center-based training programs interested in establishing a similar initiative. Lessons learned also are shared with the hope of contributing to future efforts to advance training in diversity dialogue facilitation and expand the role of psychologists in medical settings.

本文介绍了一个针对受训者的多样性对话促进者培训计划,这是一个创新项目,旨在为心理学和精神病学学习者做好准备,以促进在学术医疗环境中与医疗保健专业人员(即临床和研究教员、工作人员和学习者)进行多样性对话。通过参加该项目,受训人员学会促进讨论,参与者在讨论中反思压迫、歧视和差异;探究他们的偏见;就具有挑战性的社会事件与同事建立联系并交换意见;并阐述在他们的职业和个人生活中促进公平、包容、社会责任和正义的行动步骤。在概述了为项目开发、实施和传播提供信息的背景因素后,详细介绍了创建和实施培训课程的迭代过程,目的是为有兴趣建立类似倡议的其他学术健康中心培训项目提供一个模型。还分享了所吸取的经验教训,希望为未来推动多样性对话促进培训和扩大心理学家在医疗环境中的作用的努力做出贡献。
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引用次数: 0
Patient Information Needs and Decision-Making Before a Cardiac Implantable Electronic Device: A Qualitative Study Utilizing Social Media Data. 患者在使用心脏植入式电子设备前的信息需求和决策制定:利用社交媒体数据的定性研究。
IF 2.2 3区 心理学 Q2 Psychology Pub Date : 2024-05-21 DOI: 10.1007/s10880-024-10024-6
Mitchell Nicmanis, Joshua Holmes, Melissa Oxlad, Anna Chur-Hansen

The decision to receive a cardiac implantable electronic device (CIED) represents a challenging experience for patients. However, the majority of previous research has only considered retrospective accounts of patient experiences. This study aimed to use social media data to characterize the information sought by people anticipating or considering CIED implantation and factors that influence their decision-making experiences. A Python-based script was used to collect posts made to a community intended for discussions concerning CIEDs on the social media platform Reddit. Reflexive content analysis was used to analyze the collected data. From 799 posts collected, 101 made by 86 participants were analyzed. The reported median (range) age of participants was 34 (16-67), and most were anticipating or considering a pacemaker. Three overarching categories classified the data: "Use of social media to meet informational and other needs"; "Factors influencing acceptance of the need for implantation"; and "Specific concerns considered during decision-making." Participants anticipating or considering a CIED predominantly sought experiential information. Among asymptomatic participants, doubts were prevalent, with acceptance being an influential factor in decision-making. Healthcare professionals should recognize the informational and emotional needs of prospective CIED patients and tailor support mechanisms to better facilitate their decision-making.

决定接受心脏植入式电子设备(CIED)对患者来说是一次具有挑战性的经历。然而,以往的研究大多只考虑了患者经历的回顾性描述。本研究旨在利用社交媒体数据来描述预期或考虑植入 CIED 的患者所寻求的信息,以及影响其决策经历的因素。研究人员使用基于Python的脚本,收集了社交媒体平台Reddit上有关CIED讨论社区的帖子。对收集到的数据进行了反思性内容分析。在收集到的 799 篇帖子中,对 86 名参与者发表的 101 篇帖子进行了分析。据报告,参与者的年龄中位数(范围)为 34 岁(16-67 岁),大多数人都在期待或考虑安装心脏起搏器。数据分为三大类:"使用社交媒体满足信息和其他需求"、"影响接受植入需求的因素 "和 "决策过程中考虑的具体问题"。预期或考虑植入 CIED 的参与者主要寻求体验信息。在无症状的参与者中,普遍存在疑虑,而接受度是影响决策的一个因素。医疗保健专业人员应认识到潜在的CIED患者在信息和情感方面的需求,并为他们量身定制支持机制,以更好地帮助他们做出决策。
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引用次数: 0
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Journal of Clinical Psychology in Medical Settings
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