Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.529-A
L. Chavez, A. Hakkim, A. Damianos, J. Kimberly, J. Solis, G. Cantwell, Marta G. Galarza
{"title":"Establishing a NICU-integrated Palliative Care Service","authors":"L. Chavez, A. Hakkim, A. Damianos, J. Kimberly, J. Solis, G. Cantwell, Marta G. Galarza","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.529-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.529-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115510693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.544
Louise Glaser, Katherine Schreiner, H. Homler, E. Schreiner, Q. Tran
Background: Palliative care provides holistic supportive care for people with complex life-limiting disease including symptom relief, navigation of complex medical decisions and support for their unique psychological, social, and spiritual needs to enhance their quality of life. Children are distinct from adults in many ways including their diagnoses, disease trajectories, symptom burden, and spectrum of caregivers. As medical technologies improve, the number of children who are appropriate for pediatric palliative care (PPC) expertise is increasing. This project sought to characterize …
{"title":"Pediatric Palliative Care: Practice Variation and Recommendations","authors":"Louise Glaser, Katherine Schreiner, H. Homler, E. Schreiner, Q. Tran","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.544","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.544","url":null,"abstract":"Background: Palliative care provides holistic supportive care for people with complex life-limiting disease including symptom relief, navigation of complex medical decisions and support for their unique psychological, social, and spiritual needs to enhance their quality of life. Children are distinct from adults in many ways including their diagnoses, disease trajectories, symptom burden, and spectrum of caregivers. As medical technologies improve, the number of children who are appropriate for pediatric palliative care (PPC) expertise is increasing. This project sought to characterize …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"171 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127580149","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.520
Audrey Y. Ofir, M. Nares, Kim Juanico, A. Alladin, G. Cantwell
Introduction: Children with complex, chronic disease face hospital readmissions, considerations for advanced technologies and fractured care coordination. This case highlights the impactful role of palliative medicine in general pediatrics. Case Discussion: 16 mo female infant with congenital Zika virus infection required admission for RSV bronchiolitis and aspiration pneumonia. PMH: severe microcephaly with skull collapse, hydrocephaly, periventricular calcifications, chorioretinal scars; 3 brief admissions due to irritability and seizures. G-tube and tracheostomy considered due to severe failure to thrive, neurologic impairment and upper airway compromise. The infant’s care involved 14 subspecialties and …
{"title":"Challenges for Children Living with Complex Chronic Disease: It Takes a Village","authors":"Audrey Y. Ofir, M. Nares, Kim Juanico, A. Alladin, G. Cantwell","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.520","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.520","url":null,"abstract":"Introduction: Children with complex, chronic disease face hospital readmissions, considerations for advanced technologies and fractured care coordination. This case highlights the impactful role of palliative medicine in general pediatrics. Case Discussion: 16 mo female infant with congenital Zika virus infection required admission for RSV bronchiolitis and aspiration pneumonia. PMH: severe microcephaly with skull collapse, hydrocephaly, periventricular calcifications, chorioretinal scars; 3 brief admissions due to irritability and seizures. G-tube and tracheostomy considered due to severe failure to thrive, neurologic impairment and upper airway compromise. The infant’s care involved 14 subspecialties and …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"12 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134609178","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.551
Melody J. Cunningham, Joanna Lyman
{"title":"Two Case Reports: Utilizing Autopsy Review in Bereavement to Clarify Misconceptions and Help Families Find Meaning","authors":"Melody J. Cunningham, Joanna Lyman","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.551","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.551","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"55 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116361752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.546
C. C. Paine
Pediatric Palliative Care's guiding principle of whole-patient and whole-family care brings with it a unique opportunity to appreciate and advocate for care gaps and disparities. The growing population of children with medical complexity and technological dependency have represented a challenge in Palliative Care practice as well as resource utilization and economic justice. Serving at the only major academic medical center in an under-resourced state, we have a population of majority-minority, …
{"title":"Seeking Comfort In Complexity: A Path Home for Permanently Hospitalized Children","authors":"C. C. Paine","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.546","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.546","url":null,"abstract":"Pediatric Palliative Care's guiding principle of whole-patient and whole-family care brings with it a unique opportunity to appreciate and advocate for care gaps and disparities. The growing population of children with medical complexity and technological dependency have represented a challenge in Palliative Care practice as well as resource utilization and economic justice. Serving at the only major academic medical center in an under-resourced state, we have a population of majority-minority, …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"38 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127218094","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.525
Tressia M. Shaw, Bille Winegard, Zebulon Timmons
{"title":"Determining Futility - One Free-standing Children's Hospital's Experience with a Policy","authors":"Tressia M. Shaw, Bille Winegard, Zebulon Timmons","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.525","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.525","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"27 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114209199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.533
G. Knowles, T. Vente, Jessica T. Fry
{"title":"Hospice Home Birth","authors":"G. Knowles, T. Vente, Jessica T. Fry","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.533","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.533","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132964085","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.546-A
Eve R. Golden, T. Shimotake, M. Moody
{"title":"Shared Decision Making in Pediatrics: When the Burden Outweighs the Benefit. A Case Illustration from the Intensive Care Nursery","authors":"Eve R. Golden, T. Shimotake, M. Moody","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.546-A","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.546-A","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"116 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134266290","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.538
Tressia M. Shaw, Wendy Bernatavicius, K. Berger, C. Berkel
{"title":"Is Inpatient Hospice Unit Utilization Affected By The Availability Of A Pediatric Specific Unit?","authors":"Tressia M. Shaw, Wendy Bernatavicius, K. Berger, C. Berkel","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.538","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.538","url":null,"abstract":"","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"40 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114222283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-02-24DOI: 10.1542/PEDS.147.3_MEETINGABSTRACT.528
Jennifer E. mayer, T. Vente
Title: Dreams as a Gateway to Facilitate Difficult Discussion at the End of Life Objectives: 1. Recognize the common experience of dreams at end-of-life 2. Explore how disclosure of dreams at end-of-life may facilitate difficult conversations with patients and families 3. Recognize the utility of integrating dream assessment into routine care Background: Dreams and visions at end-of-life have been documented throughout history and across cultures. Studies of bereaved family …
{"title":"Dreams as a Gateway to Facilitate Difficult Discussion at the End of Life","authors":"Jennifer E. mayer, T. Vente","doi":"10.1542/PEDS.147.3_MEETINGABSTRACT.528","DOIUrl":"https://doi.org/10.1542/PEDS.147.3_MEETINGABSTRACT.528","url":null,"abstract":"Title: Dreams as a Gateway to Facilitate Difficult Discussion at the End of Life Objectives: 1. Recognize the common experience of dreams at end-of-life 2. Explore how disclosure of dreams at end-of-life may facilitate difficult conversations with patients and families 3. Recognize the utility of integrating dream assessment into routine care Background: Dreams and visions at end-of-life have been documented throughout history and across cultures. Studies of bereaved family …","PeriodicalId":158699,"journal":{"name":"Section on Hospice and Palliative Medicine Program","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114917012","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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