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Psychometric Evaluation of the Icelandic Version of the Modified Dynamic Gait Index for Community-Dwelling Older Adults With Balance Impairments
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-11 DOI: 10.1111/jep.14262
Solveig A. Arnadottir, Ragnar F. Gustafsson, Nina D. Oskarsdottir, Holmfridur H. Sigurdardottir, Atli Agustsson

Rationale

Optimal mobility is crucial for healthy aging, particularly among older adults with balance impairments. This research examines the psychometric properties of the modified Dynamic Gait Index (mDGI) translated into Icelandic, highlighting its suitability for evaluating mobility in this demographic group and within the context of healthy aging. Addressing the scarcity of international psychometric research on the mDGI, this study contributes to the translation of geriatric outcome measures into different languages, enhancing clinical applications and international research.

Aim

To assess the reliability and validity of the mDGI among Icelandic older adults experiencing balance impairments.

Methods

This methodological study included 30 participants, aged 67–91 years, receiving outpatient physical therapy for balance impairments. The participants completed two mDGI assessments 4–7 days apart, and additional assessments using the 10-meter walking test (10MWT), Timed Up and Go (TUG), Activities-specific Balance Confidence (ABC) scale, and Short Form Health Survey (SF-36) subscales. Analysis included evaluating the mDGI's total scale and subscales' reliability and validity using Intraclass Correlation Coefficient (ICC3,1), Standard Error of Measurement (SEM), Cronbach's alpha, and Spearman's rho.

Results

The mDGI demonstrated high relative reliability (ICC3,1 = 0.95 for total mDGI; 0.73–0.92 for all subscales) and strong absolute reliability (SEM for total mDGI = 1.32; two subscales = 1.17–1.43). Internal consistency was robust (alpha for total mDGI = 0.9; two subscales = 0.86–0.89). Construct validity was confirmed by mDGI's correlations with 10MWT, TUG, and SF-36 social and physical functioning subscales. No floor or ceiling effects were observed in mDGI total scores.

Conclusion

The Icelandic version of the mDGI provides reliable and valid measures for evaluating balance and gait in older adults with balance impairments. Its sound psychometric properties support its use in similar demographic settings globally, providing a reliable tool for geriatric care practitioners and researchers worldwide.

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引用次数: 0
Evaluation of Learning Approaches Among Physiotherapy Students in Haryana: A Cross-Sectional Study
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-07 DOI: 10.1111/jep.14253
Pooja, Megha Gakhar, Bhawna Verma, Vinay Jagga

Introduction

Understanding students' learning approach, modifying teaching methods, curriculum and material accordingly is essential to deliver quality education. Knowing more about the learning approaches assists in upgrading the profession's quality for continuous professional development.

Methods

The cross-sectional study was carried out among physiotherapy students studying in physiotherapy colleges affiliated with the same university. The Approaches and Study Skills Inventory for Students questionnaire was used to evaluate learning approaches in both preclinical and clinical students. Data were analysed using the IBM Statistical Package SPSS 27. Statistical significance was set at p < 0.05.

Results

A total of 250 participants with a mean age of 21.09 + 1.93 years, 129 (51.6%) in the preclinical group and 121 (48.4%) in the clinical group participated in the study. 67 (26.7%) of the students were male, while 183 (72.9%) were females. The vast majority of participants (97.6%) adopt a deep approach to learning, while only a small fraction (2.0%) use a surface approach, with the strategic approach being rarely used (0.4%). No significant difference was observed between the males and females, and students of different colleges under the same university.

Conclusion

The predominant approach is the deep learning approach reflecting active learning. This may indicate that curriculum and strategies of teaching are employed over physiotherapy students to promote quality learning. Also, the teaching preferences varies between two group of physiotherapy students. Thus, this will also assist physiotherapy educators in planning and delivering learning activities according to learners by knowing their preferences.

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引用次数: 0
Evaluation of Community-Based Mental Health Services in the Framework of SWOT Analysis From the Perspective of Health Providers and Service Recipients: A Case Study
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 DOI: 10.1111/jep.14247
Sercan Mansuroğlu, Özge Eri̇ş Davut

Aim

This study is a case study that aims to evaluate community-based mental health services from the perspective of health providers and service recipients through SWOT analysis.

Methods

This qualitative case study was conducted through in-depth interviews with five healthcare providers providing services in a community mental health centre and five individuals with severe mental disorders receiving services. The data were analysed by content analysis.

Findings

As a result of the content analysis of the data, subthemes were identified under the main themes of strengths, weaknesses, opportunities and threats. For service recipients; under the theme of strengths, the subthemes of multidimensional support systems and treatment adherence, and under the theme of weaknesses, the subthemes of insufficient physical environment and insufficient attention were identified. Under the theme of opportunities, the subthemes of awareness, self-confidence, employment/financial gain, sharing/socialization and problem solving were identified, while under the theme of threats, the subthemes of economic constraints and feeling uncomfortable were revealed. For health providers; under the theme of strengths, the subthemes of holistic approach, early intervention and stigma prevention, under the theme of weaknesses, the subthemes of lack of resources, lack of standards, unqualified team members, inadequate professional/in-service trainings were revealed. Under the theme of opportunities, the subthemes of autonomous working environment, support systems and aids, and training programmes were identified, while under the theme of threats, the subthemes of economic constraints, stigma exposure, political deficiencies, staff reluctance/burnout, negative perceptions about the centre, and gettıng complacent were identified.

Conclusion

Community-based mental health services contain strengths, weaknesses, opportunities and threats according to the views of both health providers and service recipients, and the views of the groups overlap with each other within the supply-demand mechanism. It can be said that the effectiveness of community-based mental health services will increase by preventing threats by improving weaknesses and increasing the visibility of opportunities by recognizing strengths.

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引用次数: 0
Implications of Large Language Models for Clinical Practice: Ethical Analysis Through the Principlism Framework
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 DOI: 10.1111/jep.14250
Richard C. Armitage

Introduction

The potential applications of large language models (LLMs)—a form of generative artificial intelligence (AI)—in medicine and health care are being increasingly explored by medical practitioners and health care researchers.

Methods

This paper considers the ethical implications of LLMs for medical practitioners in their delivery of clinical care through the ethical framework of principlism.

Findings

It finds that, regarding beneficence, LLMs can improve patient outcomes through supporting administrative tasks that surround patient care, and by directly informing clinical care. Simultaneously, LLMs can cause patient harm through various mechanisms, meaning non-maleficence would prevent their deployment in the absence of sufficient risk mitigation. Regarding autonomy, medical practitioners must inform patients if their medical care will be influenced by LLMs for their consent to be informed, and alternative care uninfluenced by LLMs must be available for patients who withhold such consent. Finally, regarding justice, LLMs could promote the standardisation of care within individual medical practitioners by mitigating any biases harboured by those practitioners and by protecting against human factors, while also up-skilling existing medical practitioners in low-resource settings to reduce global health disparities.

Discussion

Accordingly, this paper finds a strong case for the incorporation of LLMs into clinical practice and, if their risk of patient harm is sufficiently mitigated, this incorporation might be ethically required, at least according to principlism.

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引用次数: 0
Optimising Outpatient Registration System Implementation Using Critical Path Method: A Case Study
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-12-01 DOI: 10.1111/jep.14254
Dan Hong

Background

Today, hospital information systems (HISs) play an irreplaceable role in hospital management. At present, HIS construction projects in many hospitals have faced the setback of ‘project quagmire’ to varying degrees. The critical path method (CPM) mainly aims to find the critical path, thus managing project progress.

Objectives

To explore the importance and practical application of the CPM to the management of HIS project schedules.

Methods

This study used the construction project of a hospital's outpatient registration subsystem as an example. CPM was used to determine the critical path. The time and workload required for the project were calculated using the forward and backward extrapolation methods. The earliest start time and earliest completion time as well as the latest start time and latest completion time of each task could be calculated using the forward and backward extrapolation methods. The path with the longest construction period was determined to be the critical path, and the unit speed rate of each activity was calculated on this basis. Then, the time schedule of the outpatient registration subsystem was compressed and the project schedule optimised.

Results

Path 3 [outpatient registration demand analysis (A)—basic data preparation (C)—subsystem test (F)—simulation test (G)] was determined to be the critical path according to the construction period, and the task time was compressed on this basis. Considering many factors, the time of the subsystem test task (F) was reduced from 7 weeks to 4 weeks. The total cost was saved by 1000 yuan, which not only ensured the progress ahead but also saved the overall cost.

Conclusion

The CPM could effectively measure the completion and deviation of each stage of the registration system project, which provided an effective guarantee for the subsequent schedule compression to ensure that the project was completed as scheduled and was of sufficient quality. However, all conditions had to be considered comprehensively; doing otherwise would lead to increased risks and costs.

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引用次数: 0
Measurement of Physical Activity Divided Into Inside and Outside the Home in People With Parkinson's Disease: A Feasibility Study 帕金森病患者室内外体育活动测量:可行性研究
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-27 DOI: 10.1111/jep.14251
Yuichi Hirakawa, Hiroaki Sakurai, Kazuya Takeda, Soichiro Koyama, Masanobu Iwai, Ikuo Motoya, Yoshikiyo Kanada, Nobutoshi Kawamura, Mami Kawamura, Shigeo Tanabe

Rationale

In people with Parkinson's disease (PD), quantitative assessment of activities inside and outside the home is crucial for planning effective rehabilitation tailored to a person's living conditions and characteristics.

Aims and Objectives

We examined the feasibility of combining a physical activity metre and a daily activity diary for people with PD.

Methods

Physical activity was evaluated using a triaxial accelerometer and recorded in a daily activity diary by the participant. The feasibility outcome was the data adoption rate, which was the physical activity rate calculated from the activity metre wearing time and the missing times from the daily activity diary.

Results and Conclusion

Of the 10 participants, nine had a complete data set (adoption rate 90%). The mean physical activity metre wearing time was 14.12 ± 2.26 h/day, with a mean missing time of 25.7 ± 18.1 min/day in the daily activity diary. Combining a physical activity metre and a daily activity diary is feasible in people with PD, particularly when planning rehabilitation protocols to enhance daily physical activity.

理论依据 对于帕金森病(PD)患者来说,家庭内外活动的量化评估对于根据患者的生活条件和特点制定有效的康复计划至关重要。 目的和目标 我们研究了将帕金森病患者的体力活动测量仪和日常活动日记相结合的可行性。 方法 使用三轴加速度计对参与者的体力活动进行评估,并记录在每日活动日记中。可行性结果是数据采用率,即根据活动量计的佩戴时间和每日活动日记的缺失时间计算出的体力活动率。 结果和结论 在 10 名参与者中,9 人有完整的数据集(采用率为 90%)。佩戴体力活动计的平均时间为 14.12 ± 2.26 小时/天,每日活动日记中缺失的平均时间为 25.7 ± 18.1 分钟/天。对于帕金森氏症患者来说,将体力活动计和日常活动日记相结合是可行的,尤其是在规划康复方案以加强日常体力活动时。
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引用次数: 0
The Impact of Implementing Virtual Diabetes Group Visits on Staff and Provider Wellbeing, Job Satisfaction, and Burnout: A Mixed Methods Analysis 实施虚拟糖尿病小组探访对员工和医疗服务提供者福祉、工作满意度和职业倦怠的影响:混合方法分析
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-26 DOI: 10.1111/jep.14238
Rohan Moghe, Mengqi Zhu, Erin Staab, Daisy Nuñez, Sana Basheer, Wen Wan, Amanda Campbell, Michael Quinn, Cynthia T. Schaefer, Arshiya A. Baig
<div> <section> <h3> Rationale</h3> <p>Few have assessed the impact of group visits (GVs), or shared medical appointments, on community health centre (CHC) staff and provider burnout, wellness, and job satisfaction.</p> </section> <section> <h3> Aims and Objectives</h3> <p>This study assesses the impact of diabetes GV implementation on staff and provider morale and burnout.</p> </section> <section> <h3> Methods</h3> <p>It is a pre-post study from a larger cluster randomised trial. Two cohorts of providers and staff from 13 Midwestern CHC clinics implemented in-person (<i>N</i> = 39) and virtual (<i>N</i> = 31) GVs for adults with diabetes. Semi-structured interviews (post-implementation) and surveys (pre and post-implementation) were conducted with staff and providers in both cohorts to assess changes in burnout, staff morale, and job satisfaction, along with reported benefits and burdens of GVs. Thematic analysis of interview transcripts and significance testing for survey data was then performed.</p> </section> <section> <h3> Results</h3> <p>Interview data came from the in-person cohort (<i>N</i> = 15) and the virtual cohort (<i>N</i> = 19). Survey data were collected from a total of 70 respondents from the in-person (<i>N</i> = 39) and virtual (<i>N</i> = 31) cohorts. Key results include reported improved relationships with colleagues (‘<i>it has made our professional relationships stronger and I feel more comfortable talking about other things, as well’</i>.), strengthened connections with patients (<i>‘We were able to help patients on a deeper level and provide more detail and one-on-one care’</i>.), and individual reward (<i>‘Morale has increased. They're contributing and doing something positive for the patients’</i>.). When asked about in-person versus virtual GVs, respondents noted they preferred in-person care but appreciated the flexibility virtual care afforded. Survey results revealed improved job satisfaction in the 2018 cohort and improved morale in the 2020 cohort, as well as perceived benefits including increased interprofessional collaboration and increased connection to patients.</p> </section> <section> <h3> Conclusions</h3> <p>Implementation of GVs in the CHC setting impacted key areas of burnout, including relationships, job attachment, and feelings of meaningful contribution in the workplace among providers and staff. Future clinic-based implementation studies may consider measuring staff and provider well-being as part of th
理论依据 很少有人评估过集体就诊(GVs)或共同就诊对社区卫生中心(CHC)工作人员和医疗服务提供者的职业倦怠、健康和工作满意度的影响。 目的和目标 本研究评估了糖尿病集体门诊的实施对工作人员和医疗服务提供者士气及职业倦怠的影响。 方法 这是一项大型群组随机试验中的一项前后期研究。来自美国中西部 13 家 CHC 诊所的两组医疗服务提供者和工作人员分别对成人糖尿病患者实施了面对面(39 人)和虚拟(31 人)全球志愿服务。对两组诊所的工作人员和医疗服务提供者进行了半结构化访谈(实施后)和调查(实施前和实施后),以评估职业倦怠、员工士气和工作满意度的变化,以及所报告的全球志愿服务的益处和负担。然后对访谈记录进行了主题分析,并对调查数据进行了显著性检验。 结果 访谈数据来自现场组群(15 人)和虚拟组群(19 人)。调查数据收集自现场组(39 人)和虚拟组(31 人)共 70 名受访者。主要结果包括与同事的关系得到改善("它使我们的专业关系更加牢固,我也更愿意谈论其他事情")、与病人的联系得到加强("我们能够更深层次地帮助病人,并提供更多细节和一对一护理")以及个人收获("士气提高了。他们为病人做出了贡献,做了积极的事情")。当被问及面对面与虚拟龙8国际娱乐城的区别时,受访者指出,他们更喜欢面对面护理,但也很欣赏虚拟护理所带来的灵活性。调查结果显示,2018 年的受访者工作满意度有所提高,2020 年的受访者士气有所提高,他们认为虚拟医疗服务带来的益处包括加强了专业间的合作,以及加强了与患者的联系。 结论 在社区医疗中心环境中实施全球志愿服务对职业倦怠的关键领域产生了影响,包括医疗服务提供者和员工之间的关系、工作依恋以及在工作场所做出有意义贡献的感受。未来以诊所为基础的实施研究可考虑将衡量员工和医疗服务提供者的幸福感作为评估的一部分。
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引用次数: 0
Development of Machine Learning Algorithms for Identifying Patients With Limited Health Literacy 开发用于识别健康知识有限患者的机器学习算法。
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-22 DOI: 10.1111/jep.14248
Dylan Koole, Oscar Shen, Amanda Lans, Tom M. de Groot, J. J. Verlaan, J. H. Schwab
<div> <section> <h3> Rationale</h3> <p>Limited health literacy (HL) leads to poor health outcomes, psychological stress, and misutilization of medical resources. Although interventions aimed at improving HL may be effective, identifying patients at risk of limited HL in the clinical workflow is challenging. With machine learning (ML) algorithms based on readily available data, healthcare professionals would be enabled to incorporate HL screening without the need for administering in-person HL screening tools.</p> </section> <section> <h3> Aims and Objectives</h3> <p>Develop ML algorithms to identify patients at risk for limited HL in spine patients.</p> </section> <section> <h3> Methods</h3> <p>Between December 2021 and February 2023, consecutive English-speaking patients over the age of 18 and new to an urban academic outpatient spine clinic were approached for participation in a cross-sectional survey study. HL was assessed using the Newest Vital Sign and the scores were divided into limited (0–3) and adequate (4–6) HL. Additional patient characteristics were extracted through a sociodemographic survey and electronic health records. Subsequently, feature selection was performed by random forest algorithms with recursive feature selection and five ML models (stochastic gradient boosting, random forest, Bayes point machine, elastic-net penalized logistic regression, support vector machine) were developed to predict limited HL.</p> </section> <section> <h3> Results</h3> <p>Seven hundred and fifty-three patients were included for model development, of whom 259 (34.4%) had limited HL. Variables identified for predicting limited HL were age, Area Deprivation Index-national, Social Vulnerability Index, insurance category, Body Mass Index, race, college education, and employment status. The Elastic-Net Penalized Logistic Regression algorithm achieved the best performance with a c-statistic of 0.766, calibration slope/intercept of 1.044/−0.037, and Brier score of 0.179.</p> </section> <section> <h3> Conclusion</h3> <p>Elastic-Net Penalized Logistic Regression had the best performance when compared with other ML algorithms with a c-statistic of 0.766, calibration slope/intercept of 1.044/−0.037, and a Brier score of 0.179. Over one-third of patients presenting to an outpatient spine center were found to have limited HL. While this algorithm is far from being used in clinical practice, ML algorithms offer a potential opportunity for identifying patients at
理由有限的健康素养(HL)会导致不良的健康后果、心理压力和医疗资源的滥用。尽管旨在提高健康素养的干预措施可能有效,但在临床工作流程中识别有健康素养有限风险的患者仍具有挑战性。利用基于现成数据的机器学习(ML)算法,医疗保健专业人员将能够进行 HL 筛查,而无需亲自使用 HL 筛查工具:方法:在 2021 年 12 月至 2020 年 2 月期间,对脊柱患者进行 HL 筛查:在 2021 年 12 月至 2023 年 2 月期间,连续接触了 18 岁以上、刚到城市学术性脊柱门诊就诊的英语患者,让他们参与横断面调查研究。HL采用最新生命体征进行评估,得分分为有限HL(0-3分)和足够HL(4-6分)。通过社会人口学调查和电子健康记录提取了患者的其他特征。随后,采用随机森林算法和递归特征选择法进行特征选择,并开发了五种 ML 模型(随机梯度提升、随机森林、贝叶斯点机、弹性网惩罚性逻辑回归、支持向量机)来预测局限性 HL:共纳入 753 名患者进行模型开发,其中 259 人(34.4%)患有局限性 HL。用于预测局限性 HL 的变量包括年龄、全国地区贫困指数、社会脆弱性指数、保险类别、体重指数、种族、大学教育程度和就业状况。弹性网络惩罚逻辑回归算法的性能最佳,c 统计量为 0.766,校准斜率/截距为 1.044/-0.037,布赖尔评分为 0.179:弹性网惩罚逻辑回归与其他 ML 算法相比性能最佳,c 统计量为 0.766,校准斜率/截距为 1.044/-0.037,布赖尔评分为 0.179。在脊柱中心门诊就诊的患者中,超过三分之一的患者被发现患有局限性 HL。虽然这种算法远未应用于临床实践,但 ML 算法提供了一个潜在的机会,可以在不进行亲自 HL 评估的情况下识别有局限性 HL 风险的患者。这有可能实现筛查和早期干预,以减轻局限性 HL 的潜在负面影响,而不会对现有的临床工作流程造成负担。
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引用次数: 0
Factors Associated With Junior Nurses Ability to Recognise and Respond to Clinical Deterioration: A Cross-Sectional Study in Tertiary Hospitals in Malawi 初级护士识别和应对临床恶化能力的相关因素:马拉维三级医院横断面研究
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-20 DOI: 10.1111/jep.14243
Christina Chipeta, Peng Lingli, Musa Nget, Chifundo Benedicto Thamala

Rationale

Recognising and responding swiftly to patient deterioration is critical for preventing adverse events. Junior nurses play a vital role in identifying the signs of clinical deterioration and initiating interventions. No prior studies have assessed junior nurses’ abilities to manage clinical deterioration in Malawi.

Objectives

This study aimed to assess junior nurses’ ability to recognise and respond to clinical deterioration in Malawian tertiary hospitals and identify associated factors.

Methods

The institutional based cross-section study design was used which included 322 junior nurses across all departments of four tertiary hospitals in Malawi (November–December 2023). Data collection utilised a questionnaire for clinical deterioration recognition and response ability in junior nurses. Chi-square, Fisher's exact, and logistic regression tests were used for data analysis.

Findings

Junior nurses achieved a median score of 71 with an interquartile range of 68–75 on the clinical deterioration questionnaire. According to the study, nurses with more work experience, those who worked in intensive care units, and those who participated in discussions about clinical deterioration had better scores. In contrast, nurses with less than 1 year of experience were 5.5 times more likely to struggle with recognising and responding to clinical deterioration than those with 5 years of experience (OR: 5.506, p = 007). Additionally, working in the paediatric department decreased junior nurses’ ability to recognise and respond to clinical deterioration six times compared to working in the intensive care unit (OR: 6.068, p = 0.018). Furthermore, junior nurses who had never engaged in discussions related to clinical deterioration had a seven times higher likelihood of poor ability to recognise and respond to clinical deterioration (OR = 6.954, p = 0.005).

Conclusion

This study highlights the need for specialised training programmes related to clinical deterioration that incorporate active learning, such as clinical scenarios and practical applications, along with mentorship initiatives to enhance junior nurses’ skills and confidence in recognising and responding to clinical deterioration.

理由 识别病人病情恶化并迅速做出反应是防止不良事件发生的关键。初级护士在识别临床病情恶化迹象和启动干预措施方面发挥着至关重要的作用。以前没有研究评估过马拉维初级护士处理临床病情恶化的能力。 本研究旨在评估马拉维三级医院初级护士识别和应对临床病情恶化的能力,并确定相关因素。 方法 采用基于机构的横断面研究设计,包括马拉维四家三级医院所有科室的 322 名初级护士(2023 年 11 月至 12 月)。数据收集采用问卷调查的方式,以了解初级护士对临床病情恶化的识别能力和反应能力。数据分析采用了卡方检验、费雪精确检验和逻辑回归检验。 研究结果 初级护士在临床病情恶化问卷中的得分中位数为 71 分,四分位数间距为 68-75 分。研究显示,工作经验丰富、在重症监护室工作过以及参与过临床恶化讨论的护士得分更高。相比之下,工作经验不足 1 年的护士在识别和应对临床病情恶化方面遇到困难的可能性是工作经验 5 年的护士的 5.5 倍(OR:5.506,P = 007)。此外,与在重症监护室工作的初级护士相比,在儿科工作的初级护士识别和应对临床病情恶化的能力下降了六倍(OR:6.068,p = 0.018)。此外,从未参与过临床病情恶化相关讨论的低年资护士识别和应对临床病情恶化的能力较差的可能性高出七倍(OR = 6.954,p = 0.005)。 结论 本研究强调有必要开展与临床病情恶化相关的专门培训计划,将临床情景模拟和实际应用等主动学习方式与导师计划相结合,以提高低年资护士识别和应对临床病情恶化的技能和信心。
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引用次数: 0
Unseen Heroes: Exploring the Impact of Schizophrenia Caregiving on Families 看不见的英雄:探索精神分裂症护理对家庭的影响》(Unseen Heroes: Exploring the Impact of Schizophrenia Caregiving on Families.
IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-11-20 DOI: 10.1111/jep.14246
Ghinasha Chaudhary, Alia Asmat

Background

Schizophrenia is a complex mental health disorder that not only affects the individual diagnosed but also has profound implications for their families and caregivers. This paper aims to shed light on the emotional, social and practical challenges faced by caregivers, as well as the coping mechanisms they employ to navigate the complexities of caregiving.

Methods

Through semi-structured interviews with caregivers of patients with schizophrenia, thematic analysis was employed to uncover the initial reactions, dynamics, daily life impact and coping skills.

Results

Thematic analysis of caregiver interviews reveals dominant themes including the emotional rollercoaster of caregiving, fostering fulfilling lives for loved ones with schizophrenia, the balancing act of caregiving responsibilities and the importance of social support networks.

Conclusion

Caregivers often experience a wide range of emotions, from love and empathy to frustration and helplessness, as they navigate the challenges of supporting their loved ones with schizophrenia. Additionally, caregivers may face stigma, social isolation and financial strain, further complicating their caregiving journey.

背景:精神分裂症是一种复杂的精神疾病,它不仅会影响被诊断的患者,还会对其家人和照顾者产生深远的影响。本文旨在阐明照护者所面临的情感、社会和实际挑战,以及他们在复杂的照护过程中所采用的应对机制:方法:通过对精神分裂症患者的护理人员进行半结构式访谈,采用主题分析法揭示其最初的反应、动态、对日常生活的影响以及应对技巧:对照护者访谈的主题分析揭示了一些主要的主题,包括照护过程中的情绪波动、为精神分裂症患者的亲人创造充实的生活、平衡照护责任以及社会支持网络的重要性:照顾者在应对照顾精神分裂症患者所面临的挑战时,往往会经历从爱和同情到沮丧和无助等各种情绪。此外,照护者还可能面临污名化、社会隔离和经济压力等问题,从而使他们的照护历程变得更加复杂。
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引用次数: 0
期刊
Journal of evaluation in clinical practice
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