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Journal of the Dermatology Nurses' Association最新文献

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Tips and Tricks 提示和技巧
IF 0.4 Q4 Nursing Pub Date : 2023-07-01 DOI: 10.1097/jdn.0000000000000750
Angela L. Borger
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引用次数: 0
Design, Implementation, and Usability Evaluation of the Iranian Primary Vitiligo Patient Registry 伊朗原发性白癜风患者登记的设计、实施和可用性评估
IF 0.4 Q4 Nursing Pub Date : 2023-07-01 DOI: 10.1097/JDN.0000000000000748
Zahra Arabkermani, R. Sharifian, Z. Aryanian, P. Bastani, Nafiseh Esmaeli, Azadeh Bashiri, A. Sheikhtaheri
Introduction Vitiligo is an acquired pigmentary disorder, which is usually progressive and irreversible if left untreated. Structured databases such as registries are required to continuously collect standard data about patients with the same disease. Objectives This study aimed to design and implement a vitiligo registry and evaluate its usability in Iran. Methodology This research was conducted in four stages: determining the minimum data set required for the registry, creating a conceptual model using unified modeling language diagrams and Sparx Enterprise Architect software, implementing the registry in the PhpStorm programming environment, and evaluating the software usability based on the responses of 17 end users to a questionnaire. Results The required data items, consisting of 127 items in eight categories, were approved by the experts and used to design the vitiligo registry. Then, the software was designed and implemented. In the assessment stage, the software received a 89.5% approval rate from its users. Conclusion Developing a vitiligo registry with high usability as well as making decisions based on the registry data can improve understanding of the disease and facilitate research in this field. As a result, high-quality services could be provided to patients nationwide.
白癜风是一种获得性色素紊乱,如果不及时治疗,通常是进行性和不可逆转的。需要建立结构化数据库,如登记处,以持续收集同一疾病患者的标准数据。目的本研究旨在设计和实施白癜风登记并评估其在伊朗的可用性。本研究分四个阶段进行:确定注册表所需的最小数据集,使用统一建模语言图和Sparx Enterprise Architect软件创建概念模型,在PhpStorm编程环境中实现注册表,并根据17名最终用户对问卷的回答评估软件可用性。结果白癜风患者所需的8大类127项数据经专家审核通过,用于白癜风注册表的设计。然后,对软件进行了设计和实现。在评估阶段,该软件获得了89.5%的用户满意率。结论建立一个可用性高的白癜风登记系统,并根据登记数据进行决策,可以提高对该病的认识,促进该领域的研究。从而为全国患者提供高质量的服务。
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引用次数: 0
Dermatology Patient Support Groups 皮肤病患者支持小组
Q4 Nursing Pub Date : 2023-07-01 DOI: 10.1097/01.jdn.0000947116.64547.40
Journal of the Dermatology Nurses’ Association 15(4):p 212-219, 7/8 2023. | DOI: 10.1097/01.JDN.0000947116.64547.40
中国皮肤科护理杂志15(4):p 212- 219,7 /8 2023。| doi: 10.1097/01.jdn.0000947116.64547.40
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引用次数: 0
Cutaneous Manifestations of Sexually Transmitted Infections: HIV 性传播感染的皮肤表现:HIV
IF 0.4 Q4 Nursing Pub Date : 2023-06-24 DOI: 10.1097/jdn.0000000000000751
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引用次数: 0
Cutaneous Manifestations of Sexually Transmitted Infections 性传播感染的皮肤表现
IF 0.4 Q4 Nursing Pub Date : 2023-06-24 DOI: 10.1097/JDN.0000000000000745
Yen Nguyen, Nancy G Russell
ABSTRACT Cutaneous manifestations of human immunodeficiency virus (HIV) are commonly seen in clinical practice. Almost every person living with HIV (PLWH) will present with a dermatological complaint at some point during their care. Compared with people living without HIV, PLWHs have a greater likelihood of skin eruptions because of dysregulation of the skin immune system or drug reactions. This article reviews the most common dermatological conditions in PLWHs, as well as how they typically present in clinical practice, and discusses current evidence for treatment.
人类免疫缺陷病毒(HIV)的皮肤表现在临床实践中很常见。几乎每个HIV感染者(PLWH)都会在他们的护理过程中出现皮肤疾病。与没有感染艾滋病毒的人相比,由于皮肤免疫系统失调或药物反应,PLWHs更有可能出现皮肤皮疹。本文回顾了PLWHs中最常见的皮肤病,以及它们在临床实践中的典型表现,并讨论了目前的治疗证据。
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引用次数: 0
Large Pedunculated Papule on the Left Axilla 大的有梗丘疹在左腋窝上
IF 0.4 Q4 Nursing Pub Date : 2023-06-24 DOI: 10.1097/jdn.0000000000000733
Diana Ashouri, S. Jacob
Teledermatology is a term to describe the provision of dermatologic medical services through telecommunication technology. This is a case of a large axillary papule in a patient with metabolic syndrome.
远程皮肤病学是一个描述通过电信技术提供皮肤医学服务的术语。这是一例代谢综合征患者腋窝大丘疹。
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引用次数: 0
Sister Mary Joseph's Nodules 玛丽·约瑟夫修女的结节
IF 0.4 Q4 Nursing Pub Date : 2023-06-24 DOI: 10.1097/jdn.0000000000000749
Sujitha Yadlapati, Faraz Yousefian, Leah Shama-Brown, Valeria J. González-Molina
Sister Mary Joseph's nodules are commonly associated with internal malignancies. It usually manifests as a nodule with an irregular border around umbilicus, however, it may present as blue–black, friable, ulcerated lump with drainage as large as 10 cm. Sister Mary Joseph's nodules has a poor prognosis with average survival time of 11 months. We report an 85-year-old female presenting with painless, erythematous nodules on the umbilicus that developed over one month. Histopathology findings of skin biopsy was consistent with metastatic adenocarcinoma. Computerized tomography imaging of abdomen and pelvic showed a large pelvic mass obstructing the sigmoid colon. The patient was subsequently managed by a multidisciplinary surgical and medical oncology team.
玛丽约瑟夫修女的结节通常与内部恶性肿瘤有关。它通常表现为脐周围不规则边界的结节,但也可能表现为蓝黑色、易碎的溃疡性肿块,排液可达10厘米。玛丽约瑟夫修女的结节预后不良,平均生存时间为11个月。我们报告一个85岁的女性表现无痛,在脐部红斑结节发展超过一个月。皮肤活检的组织病理学结果与转移性腺癌一致。腹部及盆腔电脑断层显示一个大的盆腔肿块阻塞乙状结肠。该患者随后由多学科外科和内科肿瘤小组进行治疗。
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引用次数: 0
Skin Cancer: Back to Basics 皮肤癌:回归基础
IF 0.4 Q4 Nursing Pub Date : 2023-06-23 DOI: 10.1097/jdn.0000000000000746
J. Baumann, Andrew Groneck, Kari Martin
Dermatofibrosarcoma protuberans is a soft tissue tumor that arises from the dermis. This relatively rare, low-grade tumor has a high propensity for local recurrence unless it is completely excised. Dermatofibrosarcoma protuberans classically progresses slowly as a plaque on the trunk of young adults. It often resembles a scar that is slowly growing over months to years. Because of its rarity and subtle progression, this form of skin cancer will often go undiagnosed for years. Over time, dermatofibrosarcoma protuberans can become invasive into the subcutaneous fat, muscle, fascia, and chest wall. Diagnosis of dermatofibrosarcoma protuberans is made by a core needle or incisional biopsy. Once diagnosed, cure rates approach 100%. The purpose of this article is to review the epidemiology, pathophysiology, clinical features, differential diagnosis, diagnosis, staging, and treatment of dermatofibrosarcoma protuberans. Increasing healthcare providers' awareness about this rare form of skin cancer and its recognition may improve patient outcomes.
隆突性皮肤纤维肉瘤是一种起源于真皮的软组织肿瘤。这种相对罕见的低级别肿瘤有很高的局部复发倾向,除非完全切除。隆突性皮肤纤维肉瘤通常进展缓慢,在年轻人的躯干上形成斑块。它通常像一个疤痕,在几个月到几年的时间里慢慢生长。由于它的罕见和微妙的进展,这种形式的皮肤癌通常会多年未被诊断出来。随着时间的推移,隆突性皮肤纤维肉瘤可侵入皮下脂肪、肌肉、筋膜和胸壁。诊断皮肤纤维肉瘤隆突是由核心针或切口活检。一旦确诊,治愈率接近100%。本文就皮肤纤维肉瘤的流行病学、病理生理学、临床特征、鉴别诊断、诊断、分期和治疗作一综述。提高医疗保健提供者对这种罕见形式的皮肤癌及其识别的认识可能会改善患者的预后。
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引用次数: 0
Patient Perspective Column 患者观点栏
IF 0.4 Q4 Nursing Pub Date : 2023-06-14 DOI: 10.1097/jdn.0000000000000747
Tonja Johnson, Sylvana A. Brickley
The Beautifully Unblemished Vitiligo Support Group is based in Florida, United States. In this article, Tonja Johnson, the founder of the Beautifully Unblemished Vitiligo Support Group, talks about her experience with having vitiligo and offers her perspective on how nurses can provide excellent care to patients with vitiligo.
美丽无瑕白癜风支持小组位于美国佛罗里达州。在这篇文章中,Tonja Johnson,美丽无瑕白癜风支持小组的创始人,谈到了她与白癜风的经历,并就护士如何为白癜风患者提供优质护理提供了她的观点。
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引用次数: 0
A Case of Subcutaneous Sarcoidosis Treated With Intralesional Kenalog 病灶内Kenalog治疗皮下结节病1例
IF 0.4 Q4 Nursing Pub Date : 2023-05-01 DOI: 10.1097/jdn.0000000000000739
Faraz Yousefian, Liliana Espinoza, McKay Frandsen, Sujitha Yadlapati, A. Eckert, J. Bandino
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引用次数: 0
期刊
Journal of the Dermatology Nurses' Association
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