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Pink cardigan 粉红色开襟羊毛衫
Pub Date : 2021-10-28 DOI: 10.1017/s1478951521001383
Ellen Zhang
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引用次数: 0
PAX volume 19 issue 5 Cover and Front matter PAX第19卷第5期封面和封面问题
Pub Date : 2021-10-01 DOI: 10.1017/s1478951521001760
A. Applebaum
ed and indexed in the following: CINAHL database; Cumulative Index to Nursing and Allied Health Liteature; MEDLINE Change of address: Allow six weeks for all changes to become effective. All communication should include both old and new addresses (with postal codes) and should be accompanied by a mailing label from a recent issue. Editorial Office: William Breitbart, Editor-in-Chief, Memorial Sloan Kettering Cancer Center, Department of Psychiatry and Behavioral Sciences, 641 Lexington Avenue, New York, NY 10022, USA. Telephone: (646) 888-0020. Fax: (212) 888-2356. E-mail: breitbaw@mskcc.org. Office of Publication: Cambridge University Press, One Liberty Plaza, New York, NY 10006, USA: Telephone: (212) 337-5000. Fax: (212) 337-5959. Printed in the United States of America on acid-free paper. Emeritus Lea Baider, Sharett Institute of Oncology, Israel Susan Block, Dana-Farber Cancer Institute, USA Irene Higginson, King’s College London, UK Paul Jacobsen, Ph.D., National Cancer Institute, USA Professor Uwe Koch, University Hospital at Hamburg-Eppendorf, Germany Neil MacDonald, McGill University, Canada Volume 19 October 2021 Number 5
编辑和索引如下:CINAHL数据库;护理及相关卫生文献累积索引;MEDLINE地址变更:所有变更生效的时间为六周。所有通信应包括新旧地址(邮政编码),并应附有最近一期的邮寄标签。编辑部:William Breitbart,总编辑,纪念斯隆凯特琳癌症中心精神病学和行为科学部,纽约列克星敦大道641号,NY 10022,美国电话:(646)888-0020。传真:(212)888-2356。电子邮件:breitbaw@mskcc.org。出版办公室:剑桥大学出版社,美国纽约自由广场一号,NY 10006;电话:(212)337-5000。传真:(212)337-5959。在美国用无酸纸印刷的。美国达纳法伯癌症研究所Irene Higginson,英国伦敦国王学院Paul Jacobsen博士,美国国家癌症研究所教授Uwe Koch,德国汉堡-埃彭多夫大学医院Neil MacDonald,加拿大麦吉尔大学卷19 2021年10月5号
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引用次数: 0
Q & A @ End-of-life Q & A @生命终结
Pub Date : 2021-09-30 DOI: 10.1017/s1478951521001528
D. H. Xiang
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引用次数: 0
A decision tree prediction model for a short-term outcome of delirium in patients with advanced cancer receiving pharmacological interventions: A secondary analysis of a multicenter and prospective observational study (Phase-R) 接受药物干预的晚期癌症患者谵妄短期预后的决策树预测模型:一项多中心前瞻性观察性研究的二次分析(r期)
Pub Date : 2021-09-30 DOI: 10.1017/S1478951521001565
Ken Kurisu, S. Inada, Isseki Maeda, A. Ogawa, S. Iwase, T. Akechi, T. Morita, S. Oyamada, Takuhiro Yamaguchi, Kengo Imai, Rika Nakahara, Keisuke Kaneishi, N. Nakajima, M. Sumitani, K. Yoshiuchi
Abstract Objective There is no widely used prognostic model for delirium in patients with advanced cancer. The present study aimed to develop a decision tree prediction model for a short-term outcome. Method This is a secondary analysis of a multicenter and prospective observational study conducted at 9 psycho-oncology consultation services and 14 inpatient palliative care units in Japan. We used records of patients with advanced cancer receiving pharmacological interventions with a baseline Delirium Rating Scale Revised-98 (DRS-R98) severity score of ≥10. A DRS-R98 severity score of <10 on day 3 was defined as the study outcome. The dataset was randomly split into the training and test dataset. A decision tree model was developed using the training dataset and potential predictors. The area under the curve (AUC) of the receiver operating characteristic curve was measured both in 5-fold cross-validation and in the independent test dataset. Finally, the model was visualized using the whole dataset. Results Altogether, 668 records were included, of which 141 had a DRS-R98 severity score of <10 on day 3. The model achieved an average AUC of 0.698 in 5-fold cross-validation and 0.718 (95% confidence interval, 0.627–0.810) in the test dataset. The baseline DRS-R98 severity score (cutoff of 15), hypoxia, and dehydration were the important predictors, in this order. Significance of results We developed an easy-to-use prediction model for the short-term outcome of delirium in patients with advanced cancer receiving pharmacological interventions. The baseline severity of delirium and precipitating factors of delirium were important for prediction.
目的晚期癌症患者谵妄的预后模型尚未得到广泛应用。本研究旨在建立一个短期结果的决策树预测模型。方法:本研究是对日本9家心理肿瘤咨询机构和14家姑息治疗住院单位开展的一项多中心前瞻性观察性研究的二次分析。我们使用基线谵妄评定量表修订-98 (DRS-R98)严重程度评分≥10分的晚期癌症患者接受药物干预的记录。第3天DRS-R98严重程度评分<10分定义为研究结果。数据集随机分为训练数据集和测试数据集。利用训练数据集和潜在预测因子建立了决策树模型。在5倍交叉验证和独立测试数据集中测量受试者工作特征曲线的曲线下面积(AUC)。最后,利用整个数据集对模型进行可视化处理。结果共纳入668例患者,其中第3天DRS-R98严重程度评分<10的患者141例。该模型在5倍交叉验证中平均AUC为0.698,在测试数据集中平均AUC为0.718(95%置信区间为0.627-0.810)。基线DRS-R98严重程度评分(临界值为15)、缺氧和脱水是重要的预测因子。我们开发了一个易于使用的预测模型,用于晚期癌症患者接受药物干预后谵妄的短期预后。谵妄的基线严重程度和谵妄的诱发因素对预测很重要。
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引用次数: 1
Factors associated with surrogate families’ life-sustaining treatment preferences for patients at home or in a geriatric health service facility: A cross-sectional study 对在家或在老年卫生服务机构的患者而言,与代孕家庭维持生命治疗偏好相关的因素:一项横断面研究
Pub Date : 2021-09-02 DOI: 10.1017/S1478951521001401
Fumio Shaku, Madoka Tsutsumi, Asumi Nakamura, H. Takagi, Takahiro Otsuka, S. Maruoka
Abstract Objective Recently, end-of-life preference in palliative care has been gaining attention in Japan. The Ministry of Health, Labor, and Welfare established the Japanese basic policy in November 2018. Patients’ decision-making is recommended; however, patients with dementia or other disorders cannot make such decisions by themselves. Thus, healthcare providers may contact surrogates and consider their backgrounds for better decision-making. Hence, the preferences of home caregivers’ and geriatric health service facility (GHSF) residents’ families on patient life-sustaining treatment (LST) were investigated. Method This cross-sectional study involved home caregivers’ and GHSF residents’ families in Japan. We distributed 925 self-reported questionnaires comprising items, such as the number of people living together, care duration, comprehension of doctor's explanations, the Patient Health Questionnaire (PHQ)-9 and Short Form (SF)-8, and families’ LST preference for patients. Results In all, 619 valid responses were obtained [242 men and 377 women (309 in the HOME Caregivers Group, response rate = 61.1%; 310 in the GHSF Group, response rate = 74.0%)]. LST preference was significantly associated with sex, the number of people living together, care duration, and comprehension of doctors’ explanations in the HOME Caregivers Group but was not significantly associated with the GHSF Group. Furthermore, PHQ-9/SF-8 scores were not significantly associated with LST preference. Significance of results There were many differences in opinions about LST preference between home caregivers’ and GHSF residents’ families. The results suggested that the burden of nursing care was greater and harder in home caregiver families, and these factors may be related to the LST preference for a patient.
摘要目的最近,临终关怀的临终偏好在日本引起了人们的关注。厚生劳动省于2018年11月制定了日本基本政策。建议患者自主决策;然而,患有痴呆症或其他疾病的患者不能自己做出这样的决定。因此,医疗保健提供者可能会联系代孕母亲,并考虑她们的背景,以便做出更好的决策。因此,本研究调查了家庭照护者和老年卫生服务机构(GHSF)居民家庭对患者维持生命治疗(LST)的偏好。方法采用横断面研究方法,对日本家庭照护者家庭和家庭护理人员家庭进行调查。我们发放了925份自述问卷,包括共同居住人数、护理持续时间、对医生解释的理解程度、患者健康问卷(PHQ)-9和简短表格(SF)-8以及家属对患者的LST偏好等项目。结果共获得有效问卷619份[男性242份,女性377份,其中家庭护理组309份,有效率为61.1%;GHSF组310例,有效率= 74.0%)。在家庭护理组中,LST偏好与性别、同居人数、护理持续时间和医生解释的理解程度显著相关,而与GHSF组无显著相关。此外,PHQ-9/SF-8得分与LST偏好无显著相关。结果的意义家庭照护者与家庭帮扶者家庭对LST偏好的看法存在很大差异。结果表明,家庭护理人员家庭的护理负担更大、更困难,这些因素可能与患者的LST偏好有关。
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引用次数: 0
The experiences of health professionals, patients, and families with truth disclosure when breaking bad news in palliative care: A qualitative meta-synthesis 在姑息治疗中突发坏消息时,卫生专业人员、患者和家属披露真相的经验:一项定性综合研究
Pub Date : 2021-08-25 DOI: 10.1017/S1478951521001243
Elizabeth M. Miller, Joanne E. Porter, Michael S. Barbagallo
Abstract Objective Disclosing the truth when breaking bad news continues to be difficult for health professionals, yet it is essential for patients when making informed decisions about their treatment and end-of-life care. This literature review aimed to explore and examine how health professionals, patients, and families experience truth disclosure during the delivery of bad news in the inpatient/outpatient palliative care setting. Methods A systemized search for peer-reviewed, published papers between 2013 and 2020 was undertaken in September 2020 using the CINAHL, Medline, and PsycInfo databases. The keywords and MeSH terms (“truth disclosure”) AND (“palliative care or end-of-life care or terminal care or dying”) were used. The search was repeated using (“bad news”) AND (“palliative care or end-of-life care or terminal care or dying”) terms. A meta-synthesis was undertaken to synthesize the findings from the eight papers. Results Eight papers were included in the meta-synthesis and were represented by five Western countries. Following the synthesis process, two concepts were identified: “Enablers in breaking bad news” and “Truth avoidance/disclosure.” Several elements formed the concept of Enablers for breaking bad news, such as the therapeutic relationship, reading cues, acknowledgment, language/delivery, time/place, and qualities. A conceptual model was developed to illustrate the findings of the synthesis. Significance of results The conceptual model demonstrates a unique way to look at communication dynamics around truth disclosure and avoidance when breaking bad news. Informed decision-making requires an understanding of the whole truth, and therefore truth disclosure is an essential part of breaking bad news.
摘要目的对卫生专业人员来说,披露坏消息的真相仍然是困难的,但对于患者来说,在做出有关治疗和临终关怀的知情决定时,这是必不可少的。本文献综述旨在探讨和检查在住院/门诊姑息治疗环境中,卫生专业人员、患者和家属在传递坏消息时如何经历真相披露。方法于2020年9月使用CINAHL、Medline和PsycInfo数据库系统检索2013 - 2020年同行评议的已发表论文。使用关键词和MeSH术语(“真相披露”)和(“姑息治疗或临终关怀或临终关怀”)。使用(“坏消息”)和(“姑息治疗或临终关怀或临终关怀或死亡”)术语重复搜索。对八篇论文的研究结果进行了综合分析。结果8篇论文被纳入meta-synthesis,来自5个西方国家。在综合过程之后,确定了两个概念:“打破坏消息的推动者”和“真相回避/披露”。有几个因素构成了坏消息披露的“促成因素”的概念,比如治疗关系、阅读线索、承认、语言/表达、时间/地点和质量。开发了一个概念模型来说明综合研究的结果。该概念模型展示了一种独特的方式来看待在发布坏消息时围绕真相披露和回避的沟通动态。知情决策需要了解全部真相,因此披露真相是打破坏消息的重要组成部分。
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引用次数: 9
Increasing our understanding of nonphysical suffering within palliative care: A scoping review 增加我们对姑息治疗中非身体痛苦的理解:范围回顾
Pub Date : 2021-08-24 DOI: 10.1017/S1478951521001127
Maxxine Rattner
Abstract Objective Nonphysical suffering is emotional, psychological, existential, spiritual, and/or social in nature. While palliative care is a discipline dedicated to the prevention and relief of suffering — both physical and nonphysical — little is known about existing research specific to nonphysical suffering within the context of palliative care. This scoping review helps to fill this gap. Method Three hundred and twenty-eight unique records were identified through a systematic search of three databases (MEDLINE, CINAHL, and PsycINFO). The following keywords were used: (suffering) AND (palliative OR “end of life” OR “end-of-life” OR hospice OR dying OR terminal* ill*). Thirty studies published between 1998 and 2019 met the inclusion criteria. Results Losses, worries, and fears comprise patients’ primary sources of nonphysical suffering. Patients face numerous barriers in expressing their nonphysical suffering to healthcare providers. The idea that patients can choose how they perceive their circumstances, thereby minimizing their nonphysical suffering, is pervasive in the research. The nature of nonphysical suffering experienced by family caregivers and palliative care clinicians is revealed in the review. The unique and sensitive interplay between nonphysical suffering and both palliative sedation and requests for hastened death is also evident. Overall, seven themes can be identified: (i) patients’ experiences of nonphysical suffering; (ii) patient coping mechanisms; (iii) efforts to measure nonphysical suffering; (iv) palliative sedation; (v) requests for hastened death; (vi) family suffering; and (vii) clinician suffering. Significance of results This is the first scoping review to map palliative care's research specific to suffering that is social, emotional, spiritual, psychological, and/or existential in nature. Its findings expand our understanding of the nature of nonphysical suffering experienced by patients, families, and palliative care clinicians. The review's findings have significant implications for front-line practice and future research.
非物质的痛苦本质上是情感的、心理的、存在的、精神的和/或社会的。虽然姑息治疗是一门致力于预防和减轻身体和非身体痛苦的学科,但在姑息治疗的背景下,对非身体痛苦的现有研究知之甚少。这个范围审查有助于填补这一空白。方法系统检索MEDLINE、CINAHL和PsycINFO三个数据库,鉴定出328条独特记录。使用了以下关键词:(痛苦)和(姑息治疗或“生命终结”或“生命终结”或临终关怀或临终或疾病末期)。1998年至2019年间发表的30项研究符合纳入标准。结果损失、担忧和恐惧是患者非身体痛苦的主要来源。患者在向医疗保健提供者表达他们的非身体痛苦时面临许多障碍。病人可以选择如何看待他们的环境,从而减少他们的非身体痛苦,这种想法在研究中很普遍。在审查中揭示了家庭照顾者和姑息治疗临床医生所经历的非身体痛苦的性质。非身体痛苦与姑息性镇静和加速死亡请求之间独特而敏感的相互作用也很明显。总体而言,可以确定七个主题:(i)患者的非身体痛苦经历;(ii)患者应对机制;(iii)衡量非身体痛苦的努力;(iv)姑息性镇静;㈤请求加速死亡;(六)家庭苦难;(七)临床医生的痛苦。这是第一次对姑息治疗研究的范围进行综述,这些研究具体涉及社会、情感、精神、心理和/或存在性的痛苦。它的发现扩大了我们对病人、家属和姑息治疗临床医生所经历的非身体痛苦的本质的理解。该综述的发现对一线实践和未来的研究具有重要意义。
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引用次数: 7
Impacts of social distancing on cancer care during the COVID-19 pandemic: Hong Kong experience – RETRACTION COVID-19大流行期间社会距离对癌症护理的影响:香港的经验-撤回
Pub Date : 2021-08-20 DOI: 10.1017/s1478951521001309
W. Chan, P. Ho, K. Yuen
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引用次数: 0
The challenges of ethical deliberation in palliative care settings: A descriptive study 在姑息治疗设置伦理审议的挑战:一项描述性研究
Pub Date : 2021-08-11 DOI: 10.1017/S1478951521000729
S. Dumont, V. Turcotte, M. Aubin, Lynn Casimiro, Mireille Lavoie, Louise Picard
Abstract Objective Inadequate deliberation processes about ethical problems occurring in palliative care settings may negatively impact both patients and healthcare professionals. Better knowledge of the palliative care professionals’ practices regarding such processes could help identify specific education needs to improve the quality of palliative care in the context of complex ethical situations. Therefore, this descriptive study aimed to (1) examine ethical deliberation processes in interprofessional teams in five palliative care settings; (2) identify organizational factors that constrain such processes; and (3) based on this knowledge, identify priority education needs for future and current palliative care professionals. Method The study involved three data collection activities: (1) direct observation of simulated interprofessional ethical deliberations in various palliative care settings; (2) individual semi-structured interviews; and (3) deliberative dialogues. Results Thirty-six healthcare professionals took part in the simulated ethical deliberations and in the deliberative dialogue activities, and 13 were met in an individual interview. The study results revealed suboptimal interprofessional collaboration and ethical deliberation competencies, particularly regarding awareness of the ethical issue under consideration, clarification of conflicting values, reasonable decision making, and implementation planning. Participants also reported facing serious organizational constraints that challenged ethical deliberation processes. Significance of results This study confirmed the need for professional education in interprofessional collaboration and ethical deliberation so that palliative care professionals can adequately face current and future ethical challenges. It also enabled the identification of educational priorities in this regard. Future research should focus on identifying promising educational activities, assessing their effectiveness, and measuring their impact on patient and family experience and the quality of palliative care.
摘要目的对姑息治疗环境中出现的伦理问题不充分的审议过程可能会对患者和医疗保健专业人员产生负面影响。更好地了解姑息治疗专业人员在这些过程中的做法,可以帮助确定在复杂的伦理情况下提高姑息治疗质量的具体教育需求。因此,本描述性研究旨在(1)检查五个姑息治疗环境中跨专业团队的伦理审议过程;(2)识别约束这些过程的组织因素;(3)基于这些知识,确定未来和当前姑息治疗专业人员的优先教育需求。方法本研究包括三个数据收集活动:(1)直接观察不同姑息治疗环境中模拟的跨专业伦理讨论;(2)个人半结构化访谈;(3)协商对话。结果36名医护人员参加了模拟伦理审议和审议对话活动,13名医护人员进行了单独访谈。研究结果显示,跨专业合作和道德审议能力不理想,特别是在考虑的道德问题的意识、澄清冲突的价值观、合理的决策和实施计划方面。与会者还报告说,他们面临着严重的组织限制,这对伦理审议过程构成了挑战。结果的意义本研究证实了专业教育在跨专业合作和伦理审议方面的必要性,以便姑息治疗专业人员能够充分面对当前和未来的伦理挑战。它还能够确定这方面的教育优先事项。未来的研究应侧重于确定有前途的教育活动,评估其有效性,并衡量其对患者和家庭体验以及姑息治疗质量的影响。
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引用次数: 0
Advancing interprofessional education in communication – ADDENDUM 推进通信领域的跨专业教育-附录
Pub Date : 2021-08-11 DOI: 10.1017/s1478951521001310
Haley Buller, B. Ferrell, J. Paice, M. Glajchen, Trace Haythorn
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引用次数: 0
期刊
Palliative and Supportive Care
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