Background: Doświadczenie porodu podczas którego rodzice witają i jednocześnie żegnają swoje dziecko, jest niewyobrażalnie trudnym/traumatycznym doświadczeniem. Zbadanie doświadczeń rodziców, wynikających z narodzin letalnie chorego dziecka. Metoda: W tym badaniu jakościowym przeprowadzono półstrukturalne wywiady pogłębione. Wywiady zostały opracowane przy użyciu analizy treści, poprzez kodowanie i konstruowanie tematów w trakcie iteracyjnych, zespołowych spotkań, za pomocą narzędzia MAXQDA. W badaniu wiło udział 13 rodziców, dziewięć kobiet po prenatalnej diagnozie o letalnym rokowaniu dla dziecka i czterech ojców dziecka. Wyniki: Analiza treści ujawniła dwa główne tematy i dwa podtematy. Pierwszy temat: „Oswojenie trudnych informacji w okresie ciąży”, w ramach drugiego tematu: „ Ten poród jest trudny ale piękny”, wyodrębniono podtematy: „radość ze spotkania z dzieckiem” i podtemat: „ czas pożegnania jest ważny”. Wnioski: Dla rodziców, którzy przygotowywali się do porodu po prenatalnej diagnozie o letalnym rokowaniu dla dziecka, doświadczenie porodu miało pozytywne implikacje. Spotkanie z nowonarodzonym dzieckiem było dla nich ważnym momentem, potwierdzeniem ich rodzicielstwa. Rodzice podkreślali, że czas pożegnania z dzieckiem był celebrowaniem ich krótkiego rodzicielstwa.
{"title":"This birth is difficult but beautiful — parents' experience of giving birth to a baby with a lethal foetal diagnosis","authors":"Urszula Tataj-Puzyna, Beata Szlendak, Magdalena Szabat, Joanna Krzeszowiak, Dorota Sys","doi":"10.5603/pmpi.a2023.0017","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0017","url":null,"abstract":"Background: Doświadczenie porodu podczas którego rodzice witają i jednocześnie żegnają swoje dziecko, jest niewyobrażalnie trudnym/traumatycznym doświadczeniem. Zbadanie doświadczeń rodziców, wynikających z narodzin letalnie chorego dziecka. Metoda: W tym badaniu jakościowym przeprowadzono półstrukturalne wywiady pogłębione. Wywiady zostały opracowane przy użyciu analizy treści, poprzez kodowanie i konstruowanie tematów w trakcie iteracyjnych, zespołowych spotkań, za pomocą narzędzia MAXQDA. W badaniu wiło udział 13 rodziców, dziewięć kobiet po prenatalnej diagnozie o letalnym rokowaniu dla dziecka i czterech ojców dziecka. Wyniki: Analiza treści ujawniła dwa główne tematy i dwa podtematy. Pierwszy temat: „Oswojenie trudnych informacji w okresie ciąży”, w ramach drugiego tematu: „ Ten poród jest trudny ale piękny”, wyodrębniono podtematy: „radość ze spotkania z dzieckiem” i podtemat: „ czas pożegnania jest ważny”. Wnioski: Dla rodziców, którzy przygotowywali się do porodu po prenatalnej diagnozie o letalnym rokowaniu dla dziecka, doświadczenie porodu miało pozytywne implikacje. Spotkanie z nowonarodzonym dzieckiem było dla nich ważnym momentem, potwierdzeniem ich rodzicielstwa. Rodzice podkreślali, że czas pożegnania z dzieckiem był celebrowaniem ich krótkiego rodzicielstwa.","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":"14 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136081803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Palliative, hospice and supportive care is beneficial for patients, families, staff and healthcare systems","authors":"W. Leppert","doi":"10.5603/pmpi.2023.0001","DOIUrl":"https://doi.org/10.5603/pmpi.2023.0001","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49588859","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Zuzanna Mucha, Beata Szlendak, Joanna Krzeszowiak, N. Anuszkiewicz, Urszula Tataj-Puzyna
{"title":"Midwives' experience of delivering women with a life-threatening foetal diagnosis","authors":"Zuzanna Mucha, Beata Szlendak, Joanna Krzeszowiak, N. Anuszkiewicz, Urszula Tataj-Puzyna","doi":"10.5603/pmpi.a2023.0012","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0012","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48511206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A. Ratajska, Agnieszka Nowakowska-Arendt, M. Zając
{"title":"Teaching clinical communication skills in postgraduate medical education with particular emphasis on palliative medicine","authors":"A. Ratajska, Agnieszka Nowakowska-Arendt, M. Zając","doi":"10.5603/pmpi.a2023.0006","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0006","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43900136","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The relationship between the Geriatric Nutrition Risk Index (GNRI) and the prognosis of COVID-19 in diabetic geriatric patients","authors":"R. Sivritepe, Sema Uçak Basat, Serhat Mert Tiril","doi":"10.5603/pmpi.a2023.0013","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0013","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46451747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Received: 17.01.2023 Accepted: 17.01.2023 Early publication date: 6.03.2023 This article is available in open access under Creative Common Attribution-Non-Commercial-No Derivatives 4.0 International (CC BY-NC-ND 4.0) license, allowing to download articles and share them with others as long as they credit the authors and the publisher, but without permission to change them in any way or use them commercially. Tomasz Grądalski 2 Chair of Palliative Medicine, Andrzej Frycz Modrzewski Kraków University, Poland St. Lazarus Hospice, Kraków, Poland
{"title":"Hospice and Palliative Care Evaluation Symptoms and Problems Checklist (HOPE-SP-CL): A simple tool in the eligibility process for patients in palliative and hospice care","authors":"Tomasz Gradalski","doi":"10.5603/pmpi.a2023.0007","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0007","url":null,"abstract":"Received: 17.01.2023 Accepted: 17.01.2023 Early publication date: 6.03.2023 This article is available in open access under Creative Common Attribution-Non-Commercial-No Derivatives 4.0 International (CC BY-NC-ND 4.0) license, allowing to download articles and share them with others as long as they credit the authors and the publisher, but without permission to change them in any way or use them commercially. Tomasz Grądalski 2 Chair of Palliative Medicine, Andrzej Frycz Modrzewski Kraków University, Poland St. Lazarus Hospice, Kraków, Poland","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44267441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Muhammad Amirul Maidin, Noor Artini Abdul Rahman, Asmah Husaini, Shyh Poh Teo
Background: Pain is an unpleasant sensory and emotional experience associated with actual or potential tissue damage. It is common in older people, and tends to be under-reported and under-treated. In addition to quantifying pain severity using the visual analogue scale (VAS), use of the translated Short-Form McGill Pain Questionnaire (SF-MPQ-2) to identify pain descriptors may assist with pain assessment in older people. Aims: identify pain descriptors for different pain aetiology in older people using the adapted SF-MPQ-2 Brunei Malay version and compare pain severity assessments using the VAS and SF-MPQ-2. Patients and methods: A prospective study using the translated SF-MPQ-2 in older people admitted or seen in clinic under Orthopaedics and Geriatrics specialties between November 2018 and February 2019. Results: There were 75 participants, with 21 pain descriptors used. The main descriptors for fractures, osteoarthritis or muscle/tendon problems were identified. Despite pain medication, more than a third still experienced moderate to severe pain. However, almost all were satisfied with the pain management. There was a statistically significant difference between pain severity between the VAS and SF-MPQ-2, with the VAS possibly underestimating pain. Conclusions: The adapted SF-MPQ-2 appears feasible for use with older people in Brunei. Further studies are required to formally validate the SF-MPQ-2 in older patients and with specific medical conditions, such as diabetes or surgery.
{"title":"Pain descriptors and adaptation of Short Form McGill Pain Questionnaire 2 (SF-MPQ-2) for older people in Brunei Darussalam","authors":"Muhammad Amirul Maidin, Noor Artini Abdul Rahman, Asmah Husaini, Shyh Poh Teo","doi":"10.5603/pmpi.a2023.0011","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0011","url":null,"abstract":"Background: Pain is an unpleasant sensory and emotional experience associated with actual or potential tissue damage. It is common in older people, and tends to be under-reported and under-treated. In addition to quantifying pain severity using the visual analogue scale (VAS), use of the translated Short-Form McGill Pain Questionnaire (SF-MPQ-2) to identify pain descriptors may assist with pain assessment in older people. Aims: identify pain descriptors for different pain aetiology in older people using the adapted SF-MPQ-2 Brunei Malay version and compare pain severity assessments using the VAS and SF-MPQ-2. Patients and methods: A prospective study using the translated SF-MPQ-2 in older people admitted or seen in clinic under Orthopaedics and Geriatrics specialties between November 2018 and February 2019. Results: There were 75 participants, with 21 pain descriptors used. The main descriptors for fractures, osteoarthritis or muscle/tendon problems were identified. Despite pain medication, more than a third still experienced moderate to severe pain. However, almost all were satisfied with the pain management. There was a statistically significant difference between pain severity between the VAS and SF-MPQ-2, with the VAS possibly underestimating pain. Conclusions: The adapted SF-MPQ-2 appears feasible for use with older people in Brunei. Further studies are required to formally validate the SF-MPQ-2 in older patients and with specific medical conditions, such as diabetes or surgery.","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":"24 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135479557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Too much outcry about quality of life, what about the quality of death?","authors":"Priyanka Mishra, R. Makker, N. Govil","doi":"10.5603/pmpi.a2023.0009","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0009","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43075889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Institute for European Hospice Partnerships: Idea, vision, mission, and first steps of its development","authors":"Andreas Stähli, Halyna Lejzjus","doi":"10.5603/pmpi.a2023.0010","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0010","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48656889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Haniya Noun, Rami Atat, Georges Hatem, R. Ajrouche, Sara Nahas, Maya El-Hajj, Salam Zein, S. Awada
{"title":"Health-related quality of life of relapsing or remitting multiple sclerosis patients: A case-control study","authors":"Haniya Noun, Rami Atat, Georges Hatem, R. Ajrouche, Sara Nahas, Maya El-Hajj, Salam Zein, S. Awada","doi":"10.5603/pmpi.a2023.0008","DOIUrl":"https://doi.org/10.5603/pmpi.a2023.0008","url":null,"abstract":"","PeriodicalId":19965,"journal":{"name":"Palliative Medicine in Practice","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45181001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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