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Intention to Engage in Exercise Rehabilitation Among Patients with Cardiovascular Disease: A Scoping Review. 心血管疾病患者参与运动康复的意向:一项范围综述
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-29 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S578094
Yanyan Song, Lishu Peng, Lin Wu, Xue Liu, Yan Wang

Purpose: This paper compiles the scope of research on exercise rehabilitation intention among patients with cardiovascular diseases and identifies the current landscape, influencing factors, assessment instruments, and intervention strategies related to exercise rehabilitation intention, aiming to inform clinical efforts aimed at encouraging active patient engagement in rehabilitation.

Methods: Eleven Chinese and English databases were systematically searched between the database's creation and August 28, 2024, under the scoping review methodology. Two researchers independently performed literature screening and data extraction.

Results: A total of 25 studies were included (21 in English, 4 in Chinese), 16 specifically assessed exercise rehabilitation intentions in cardiovascular disease patients, approximately half (8/16) of the cardiovascular disease patients exhibited suboptimal exercise rehabilitation intention. The assessment tools for exercise rehabilitation intentions are diverse, with dimensions primarily focused on willingness and planning. Determinants included psychosocial, disease-related, and sociodemographic factors. Identified intervention strategies included group health education, individual psychological support, and motivational interviewing.

Conclusion: Among cardiovascular disease patients exercise rehabilitation intentions remain inconsistent, as approximately half of the studies indicating medium-to-low average levels, which are influenced by several factors. Therefore, to accurately assess patients' levels of exercise rehabilitation intention, further research may focus on enhancing the dimensions, reliability, and validity of assessment tools. Exploring multifaceted and varied intervention strategies could potentially improve patients' exercise rehabilitation intention and compliance.

目的:梳理心血管疾病患者运动康复意愿的研究范围,明确运动康复意愿的现状、影响因素、评估手段和干预策略,为临床鼓励患者积极参与康复提供依据。方法:系统检索自数据库创建至2024年8月28日的11个中英文数据库,采用范围综述方法。两位研究者独立进行文献筛选和数据提取。结果:共纳入25项研究(英文21项,中文4项),其中16项专门评估了心血管疾病患者的运动康复意愿,约有一半(8/16)的心血管疾病患者表现出次优的运动康复意愿。运动康复意愿的评估工具多种多样,维度主要集中在意愿和计划上。决定因素包括心理社会因素、疾病相关因素和社会人口因素。确定的干预策略包括团体健康教育、个人心理支持和动机性访谈。结论:在心血管疾病患者中,运动康复意愿仍然不一致,大约一半的研究表明平均水平中低,受多种因素的影响。因此,为了准确地评估患者的运动康复意愿水平,进一步的研究可侧重于提高评估工具的维度、信度和效度。探索多方面、多样化的干预策略,有可能提高患者运动康复的意愿和依从性。
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引用次数: 0
Latent Physical Activity Patterns and Their Related Factors in Breast Cancer Patients During Chemotherapy Intervals. 乳腺癌患者化疗期间潜在体力活动模式及其相关因素
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-29 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S561144
Siqi Shi, Guangting Chang, Chunying Xie, Jingjing Xiao, Yanling Liu, Shu Cai

Objective: Previous research on breast cancer patients has primarily examined singular behavioral indicators, often overlooking the coexistence and interaction between physical activity and sedentary behavior-particularly screen-based sedentary time. This study aims to identify the latent activity pattern categories among breast cancer patients during chemotherapy intervals and explore their associated factors to inform targeted behavioral interventions.

Methods: A cross-sectional survey was conducted with 292 breast cancer patients undergoing chemotherapy intervals at four general hospitals in Foshan, Guangdong Province. Latent Profile Analysis (LPA) was applied as a person-centered analytic approach to identify distinct activity pattern profiles. Data were collected using a general information questionnaire, the Adult Sedentary Behavior Questionnaire (ASBQ), the Chinese version of the International Physical Activity Questionnaire (IPAQ-SC), the Exercise Self-Efficacy Scale (ESES), the Perceived Social Support Scale (PSSS), and the Hospital Anxiety and Depression Scale (HADS).

Results: The activity patterns of breast cancer patients were categorized into three groups: Moderate Activity-Dominant Group (37.33%), Screen-Sedentary High-Risk Group (8.22%), and Activity-Sedentary Coexistence Group (54.45%). Logistic regression analysis showed that, compared to the Moderate Activity-Dominant Group, patients with low exercise self-efficacy and higher anxiety and depression levels were more likely to be classified into the Screen-Sedentary High-Risk Group and Activity-Sedentary Coexistence Group. Higher education levels and being on medical leave were associated with a higher probability of belonging to the Activity-Sedentary Coexistence Group (all P < 0.05).

Conclusion: Activity patterns in breast cancer patients show significant heterogeneity. Healthcare providers should pay attention to the individual physical activity characteristics of patients and offer personalized physical activity guidance. Tailored interventions that meet the needs of breast cancer patients should be developed to improve health outcomes.

目的:以往对乳腺癌患者的研究主要是检查单一的行为指标,往往忽略了身体活动和久坐行为之间的共存和相互作用,尤其是基于屏幕的久坐时间。本研究旨在确定乳腺癌患者化疗期间的潜在活动模式类别,并探讨其相关因素,为有针对性的行为干预提供依据。方法:对广东省佛山市4家综合医院292例间隔化疗的乳腺癌患者进行横断面调查。潜在剖面分析(LPA)作为一种以人为中心的分析方法来识别不同的活动模式剖面。采用一般信息问卷、成人久坐行为问卷(ASBQ)、中文版国际体育活动问卷(IPAQ-SC)、运动自我效能感量表(ESES)、感知社会支持量表(PSSS)和医院焦虑抑郁量表(HADS)收集数据。结果:乳腺癌患者的活动模式分为中度活动优势组(37.33%)、屏幕-久坐高危组(8.22%)和活动-久坐共存组(54.45%)。Logistic回归分析显示,与中度运动优势组相比,运动自我效能低、焦虑抑郁水平较高的患者更容易被划分为屏幕-久坐高危组和活动-久坐共存组。较高的教育水平和请病假与属于活动-久坐共存组的可能性较高相关(均P < 0.05)。结论:乳腺癌患者的活动模式具有显著的异质性。医疗保健提供者应关注患者的个体身体活动特征,并提供个性化的身体活动指导。应制定适合乳腺癌患者需要的干预措施,以改善健康结果。
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引用次数: 0
Adherence to Self-Care and Associated Factors Among Patients with Type 2 Diabetes in Southwestern Iran. 伊朗西南部2型糖尿病患者的自我护理依从性及其相关因素
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-28 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S569158
Zahra Shojaei, Zahra Khasraji, Abdurrahman Charkazi, Bagher Pahlavanzadeh

Background: Effective self-care is essential for managing type 2 diabetes and preventing complications. However, adherence remains suboptimal. This study assessed self-care behaviors and associated factors among patients with type 2 diabetes in southwestern Iran.

Methods: A cross-sectional study was conducted on 153 patients (selected from 160 invited individuals; response rate: 95.6%) in Behbahan and Susangerd between October 2023 and March 2024. Questionnaires were checked for completeness, and complete-case analysis was performed. Self-care was assessed using the Persian version of the Summary of Diabetes Self-Care Activities (SDSCA). Differences among components were tested using Cochran's Q, and multivariate logistic regression identified factors associated with adherence, with significance set at p < 0.05. An operational cutoff of ≥3.5 days per week was used to define "adequate" self-care.

Results: Adherence differed significantly among components (p < 0.001). It was highest for Diabetes Diet (OR 7.57, 4.63-12.39) and Non-Smoking (OR 5.23, 3.25-8.41) compared with General Diet (39.2%), whereas Glucose Monitoring (OR 0.41, 0.25-0.67), Foot Care (OR 0.07, 0.03-0.17), and Physical Activity (OR 0.03, 0.01-0.10) were substantially lower. Only 8.5% adhered to five or more components. Higher income, older age, longer disease duration, and being single were associated with better adherence to specific behaviors.

Conclusion: Overall self-care was suboptimal, particularly for physical activity and foot care. Targeted interventions focusing on patient education and follow-up, especially for individuals with lower income or education, are urgently needed to improve adherence and reduce diabetes-related complications.

背景:有效的自我保健是管理2型糖尿病和预防并发症的必要条件。然而,依从性仍然不是最佳的。本研究评估了伊朗西南部2型糖尿病患者的自我保健行为及其相关因素。方法:在2023年10月至2024年3月期间,对Behbahan和Susangerd的153例患者(从160名受邀个体中选出,有效率为95.6%)进行横断面研究。对问卷进行完整性检查,并进行全个案分析。自我护理使用波斯语版糖尿病自我护理活动摘要(SDSCA)进行评估。采用Cochran’s Q检验各成分之间的差异,多因素logistic回归确定与依从性相关的因素,显著性设置为p < 0.05。每周≥3.5天的操作界限被用来定义“足够”的自我护理。结果:各组间依从性差异显著(p < 0.001)。与普通饮食(39.2%)相比,糖尿病饮食(OR 7.57, 4.63-12.39)和非吸烟饮食(OR 5.23, 3.25-8.41)的比例最高,而血糖监测(OR 0.41, 0.25-0.67)、足部护理(OR 0.07, 0.03-0.17)和体育活动(OR 0.03, 0.01-0.10)的比例明显较低。只有8.5%粘附在5个或更多的成分上。收入较高、年龄较大、疾病持续时间较长和单身与更好地坚持特定行为有关。结论:整体的自我护理是次优的,特别是身体活动和足部护理。迫切需要有针对性的干预措施,重点是患者教育和随访,特别是对收入或教育程度较低的个体,以提高依从性并减少糖尿病相关并发症。
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引用次数: 0
Public Knowledge, Attitudes, and Practices Toward Obesity and Anti-Obesity Medications in Palestine: A Cross-Sectional Study. 巴勒斯坦公众对肥胖和抗肥胖药物的知识、态度和实践:一项横断面研究。
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-21 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S566117
Heba M Albarghouthy, Tala W Abdallah, Mohammed M Salahaldin, Loae I Mashni, Abdullah Abukeshek, Hussein Hallak

Background: Obesity is a rising public health concern in Palestine and is increasingly recognized as a chronic disease requiring long-term management. Understanding knowledge, attitudes, and practices (KAP) related to obesity and anti-obesity medications is essential for improving prevention and treatment efforts. This study assessed KAP levels and awareness of anti-obesity medications among overweight and obese Palestinian adults.

Methods: A cross-sectional survey was conducted between September and December 2024 using a validated electronic questionnaire distributed through social media platforms. Overweight and obese adults aged 18-80 years were invited to participate.

Results: Among 380 respondents, 85% demonstrated good knowledge of obesity, 65.5% showed positive attitudes, and 50.5% reported good practices. Awareness of anti-obesity medications was high (75.8%), although only 8% had used them.

Conclusion: Despite strong knowledge and generally positive attitudes toward obesity management, practical engagement in healthy behaviors remains suboptimal. Public-health programs and educational interventions are needed to bridge the gap between awareness and effective practice, including better integration of evidence-based pharmacologic options.

背景:肥胖在巴勒斯坦是一个日益严重的公共卫生问题,并且越来越被认为是一种需要长期管理的慢性疾病。了解与肥胖和抗肥胖药物相关的知识、态度和实践(KAP)对于改善预防和治疗工作至关重要。这项研究评估了巴勒斯坦超重和肥胖成年人的KAP水平和对抗肥胖药物的认识。方法:于2024年9月至12月通过社交媒体平台发放有效电子问卷,进行横断面调查。年龄在18-80岁之间的超重和肥胖成年人被邀请参加。结果:在380名受访者中,85%的人对肥胖有良好的认识,65.5%的人对肥胖有积极的态度,50.5%的人对肥胖有良好的认识。虽然只有8%的人使用过减肥药,但对减肥药的知晓率很高(75.8%)。结论:尽管对肥胖管理有很强的知识和普遍积极的态度,但在健康行为方面的实际参与仍然不够理想。需要公共卫生方案和教育干预来弥合意识和有效实践之间的差距,包括更好地整合循证药理学选择。
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引用次数: 0
Experiences of Effective Psychological Adjustment in Patients Undergoing Maintenance Hemodialysis: A Qualitative Study. 维持性血液透析患者有效心理调节的经验:一项质性研究。
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-21 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S576627
Lin Zhang, Yongzhen Guo, Xin Meng, Yuping Li, Mengfan He, Hongtao Zhang

Purpose: Patients receiving long-term maintenance hemodialysis (MHD) are prone to psychological distress, which adversely affects their self-management capabilities and overall quality of life. This study explores the experiences and strategies related to positive psychological adjustment in this population, with the aim of informing interventions to improve disease adjustment and quality of life.

Patients and methods: This study, guided by the Roy adaptation model, utilized an interpretative phenomenological methodology. Adopting the patient perspective, semi-structured interviews were used to investigate the experiences of patients undergoing maintenance hemodialysis. From May to July 2025, a purposive sampling approach was employed to recruit 15 patients receiving maintenance hemodialysis from Henan Province, China, who demonstrated positive psychological adjustment. The data was organized via NVivo 12.0 and analyzed via Colaizzi's method.

Results: Four primary themes were identified: (1) Balancing acceptance of physiological limitations with proactive adjustment to life on maintenance hemodialysis; (2) Accurate Self-Repositioning; (3) Pursuing a renewed life by exploring and embracing novel social roles; (4) Drawing upon the strength of kinship and friendship to restore confidence in life.

Conclusion: The psychological adjustment of patients undergoing maintenance hemodialysis is a dynamic process characterized by accepting their health status, reconstructing personal values, and reshaping social roles, with robust social support systems playing a pivotal role in this process. This experiential framework offers critical insights for informing clinical patient management and designing targeted psychological interventions.

目的:长期维持性血液透析(MHD)患者易出现心理困扰,影响其自我管理能力和整体生活质量。本研究探讨该人群积极心理适应的经验和策略,旨在为干预提供信息,以改善疾病适应和生活质量。患者和方法:本研究以Roy适应模型为指导,采用解释性现象学方法。采用患者视角,采用半结构化访谈法调查维持性血液透析患者的经历。本研究于2025年5 - 7月,采用目的抽样方法,从中国河南省招募15例心理适应良好的维持性血液透析患者。数据通过NVivo 12.0进行整理,并通过Colaizzi的方法进行分析。结果:确定了四个主要主题:(1)平衡接受生理限制与主动适应维持性血液透析的生活;(2)精确的自我重新定位;(3)通过探索和拥抱新的社会角色,追求新的生活;(4)依靠亲情和友谊的力量,恢复生活的信心。结论:维持性血液透析患者的心理调适是一个接受自身健康状态、重构个人价值、重塑社会角色的动态过程,健全的社会支持系统在这一过程中起着关键作用。这一经验框架为告知临床患者管理和设计有针对性的心理干预提供了关键的见解。
{"title":"Experiences of Effective Psychological Adjustment in Patients Undergoing Maintenance Hemodialysis: A Qualitative Study.","authors":"Lin Zhang, Yongzhen Guo, Xin Meng, Yuping Li, Mengfan He, Hongtao Zhang","doi":"10.2147/PPA.S576627","DOIUrl":"https://doi.org/10.2147/PPA.S576627","url":null,"abstract":"<p><strong>Purpose: </strong>Patients receiving long-term maintenance hemodialysis (MHD) are prone to psychological distress, which adversely affects their self-management capabilities and overall quality of life. This study explores the experiences and strategies related to positive psychological adjustment in this population, with the aim of informing interventions to improve disease adjustment and quality of life.</p><p><strong>Patients and methods: </strong>This study, guided by the Roy adaptation model, utilized an interpretative phenomenological methodology. Adopting the patient perspective, semi-structured interviews were used to investigate the experiences of patients undergoing maintenance hemodialysis. From May to July 2025, a purposive sampling approach was employed to recruit 15 patients receiving maintenance hemodialysis from Henan Province, China, who demonstrated positive psychological adjustment. The data was organized via NVivo 12.0 and analyzed via Colaizzi's method.</p><p><strong>Results: </strong>Four primary themes were identified: (1) Balancing acceptance of physiological limitations with proactive adjustment to life on maintenance hemodialysis; (2) Accurate Self-Repositioning; (3) Pursuing a renewed life by exploring and embracing novel social roles; (4) Drawing upon the strength of kinship and friendship to restore confidence in life.</p><p><strong>Conclusion: </strong>The psychological adjustment of patients undergoing maintenance hemodialysis is a dynamic process characterized by accepting their health status, reconstructing personal values, and reshaping social roles, with robust social support systems playing a pivotal role in this process. This experiential framework offers critical insights for informing clinical patient management and designing targeted psychological interventions.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"576627"},"PeriodicalIF":2.0,"publicationDate":"2026-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13003813/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147499734","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Patient Persona of the Self-Management Experience of Home-Based Rehabilitation for Spinal Cord Injury Patients: A Qualitative Study [Letter]. 脊髓损伤患者居家康复自我管理体验的患者角色:一项定性研究[信]。
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-20 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S594076
Xu Liu, Li Ning
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引用次数: 0
Factors Associated with Adherence to the Atrial Fibrillation Better Care (ABC) Pathway Among Rural Patients with Atrial Fibrillation: A Path Analysis Based on the Integrated Theory of Health Behavior Change (ITHBC). 农村房颤患者坚持房颤更好护理(ABC)途径的相关因素:基于健康行为改变综合理论(ITHBC)的路径分析
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-20 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S556835
Jun Huang, Jing Chen, Qirao Ye, Xiaomei Cai, Yuanchun Feng, Xinwei Lai, Xiulin Diao, Qingxiang Dai, Xiaomin Zhang, Kun Li

Background: The atrial fibrillation better care (ABC) pathway is an effective strategy for the integrated management of atrial fibrillation (AF). However, the adherence rate of ABC pathway in rural Chinese patients with AF is extremely low.

Aim: To explore the factors and mechanisms of adherence to the ABC pathway based on the integrated theory of health behavior change (ITHBC) among rural patients with AF.

Methods: In this cross-sectional study, we recruited 940 patients with AF from rural areas in China from July 2022 to September 2023. Patients completed a questionnaire covering AF-related demographic and clinical characteristics, AF knowledge, AF health beliefs, AF self-management ability, and social support. Adherence to ABC pathway was assessed based on AF-demographic and clinical characteristics. Path analysis was used to explore the relationship between variables.

Results: Adherence to ABC pathway among rural patients with AF was extremely low (5.7%). AF self-management ability (β = 0.449; P<0.001) and social support (β = 0.429; P<0.001) directly and positively affected adherence to ABC pathway. Additionally, AF knowledge (β = 0.211; P<0.001), AF health beliefs (β = 0.350; P<0.001) and social support (β = 0.085; P<0.001) can also indirectly and positively affect adherence to ABC pathway through AF self-management ability. AF knowledge (β = 0.121; P<0.001) can indirectly affect adherence to the ABC pathway through a series of mediations via AF health beliefs and AF self-management ability.

Conclusion: AF knowledge, AF health beliefs, and social support are important intervention components that should be closely integrated with AF self-management ability.

背景:房颤优化护理(ABC)途径是房颤(AF)综合治疗的有效策略。然而,中国农村AF患者ABC通路的依从率极低。目的:探讨基于健康行为改变综合理论(ITHBC)的农村房颤患者ABC通路依从性的影响因素及机制。方法:在横断面研究中,我们于2022年7月至2023年9月在中国农村招募了940例房颤患者。患者完成一份调查问卷,内容包括房颤相关的人口学和临床特征、房颤知识、房颤健康信念、房颤自我管理能力和社会支持。根据af人口统计学和临床特征评估ABC途径的依从性。通过通径分析探讨变量之间的关系。结果:农村AF患者对ABC途径的依从性极低(5.7%)。房颤自我管理能力(β = 0.449, Pβ = 0.429, Pβ = 0.211, Pβ = 0.350, Pβ = 0.085, Pβ = 0.121)结论:房颤知识、房颤健康信念、社会支持是房颤自我管理能力应密切结合的重要干预成分。
{"title":"Factors Associated with Adherence to the Atrial Fibrillation Better Care (ABC) Pathway Among Rural Patients with Atrial Fibrillation: A Path Analysis Based on the Integrated Theory of Health Behavior Change (ITHBC).","authors":"Jun Huang, Jing Chen, Qirao Ye, Xiaomei Cai, Yuanchun Feng, Xinwei Lai, Xiulin Diao, Qingxiang Dai, Xiaomin Zhang, Kun Li","doi":"10.2147/PPA.S556835","DOIUrl":"https://doi.org/10.2147/PPA.S556835","url":null,"abstract":"<p><strong>Background: </strong>The atrial fibrillation better care (ABC) pathway is an effective strategy for the integrated management of atrial fibrillation (AF). However, the adherence rate of ABC pathway in rural Chinese patients with AF is extremely low.</p><p><strong>Aim: </strong>To explore the factors and mechanisms of adherence to the ABC pathway based on the integrated theory of health behavior change (ITHBC) among rural patients with AF.</p><p><strong>Methods: </strong>In this cross-sectional study, we recruited 940 patients with AF from rural areas in China from July 2022 to September 2023. Patients completed a questionnaire covering AF-related demographic and clinical characteristics, AF knowledge, AF health beliefs, AF self-management ability, and social support. Adherence to ABC pathway was assessed based on AF-demographic and clinical characteristics. Path analysis was used to explore the relationship between variables.</p><p><strong>Results: </strong>Adherence to ABC pathway among rural patients with AF was extremely low (5.7%). AF self-management ability (<i>β</i> = 0.449; <i>P</i><0.001) and social support (<i>β</i> = 0.429; <i>P</i><0.001) directly and positively affected adherence to ABC pathway. Additionally, AF knowledge (<i>β</i> = 0.211; <i>P</i><0.001), AF health beliefs (<i>β</i> = 0.350; <i>P</i><0.001) and social support (<i>β</i> = 0.085; <i>P</i><0.001) can also indirectly and positively affect adherence to ABC pathway through AF self-management ability. AF knowledge (<i>β</i> = 0.121; <i>P</i><0.001) can indirectly affect adherence to the ABC pathway through a series of mediations via AF health beliefs and AF self-management ability.</p><p><strong>Conclusion: </strong>AF knowledge, AF health beliefs, and social support are important intervention components that should be closely integrated with AF self-management ability.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"556835"},"PeriodicalIF":2.0,"publicationDate":"2026-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13003817/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147499722","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dilemmas of Self-Management in Patients with Pulmonary Arterial Hypertension: A Descriptive Phenomenological Study. 肺动脉高压患者自我管理的困境:描述性现象学研究。
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-17 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S563550
Jianping Cai, Na Zhao, Yang Gao, Lanxia Pan, Qiaofang Yang

Objective: To explore how patients with PAH experience self-management challenges.

Methods: A descriptive phenomenological research was applied to conduct face-to-face, semi-structured, in-depth interviews with 12 patients diagnosed with PAH recruited from Fuwai Central China Cardiovascular Hospital in Henan Province, from January to June 2025. The collected data were analyzed using Colaizzi's phenomenological analysis method.

Results: Analysis revealed two overarching themes: (1) Individual-level barrier, comprising lack of awareness,insufficient knowledge about medications and disease management, and heavy financial burden; and (2) Contextual challenges, comprising uncertainty about the disease progression, lack of family and social support, poor accessibility to medications, and disruptions due to public health emergencies.

Conclusion: Patients with PAH face significant multi-faceted barriers to effective self-management. Interventions should be multifaceted, involving structured patient education, psychological support, family involvement, and policy-level changes to improve drug accessibility and financial support.

目的:探讨PAH患者自我管理面临的挑战。方法:采用描述现象学研究方法,对2025年1 - 6月从河南省阜外华中心血管医院招募的12例确诊为PAH的患者进行面对面、半结构化、深度访谈。采用Colaizzi现象学分析方法对收集到的数据进行分析。结果:分析揭示了两个总体主题:(1)个人层面的障碍,包括缺乏对药物和疾病管理的认识,知识不足,以及沉重的经济负担;(2)环境挑战,包括疾病进展的不确定性、缺乏家庭和社会支持、难以获得药物以及突发公共卫生事件造成的中断。结论:PAH患者在有效的自我管理方面面临着多方面的障碍。干预措施应该是多方面的,包括结构化的患者教育、心理支持、家庭参与和政策层面的改变,以改善药物可及性和财政支持。
{"title":"Dilemmas of Self-Management in Patients with Pulmonary Arterial Hypertension: A Descriptive Phenomenological Study.","authors":"Jianping Cai, Na Zhao, Yang Gao, Lanxia Pan, Qiaofang Yang","doi":"10.2147/PPA.S563550","DOIUrl":"https://doi.org/10.2147/PPA.S563550","url":null,"abstract":"<p><strong>Objective: </strong>To explore how patients with PAH experience self-management challenges.</p><p><strong>Methods: </strong>A descriptive phenomenological research was applied to conduct face-to-face, semi-structured, in-depth interviews with 12 patients diagnosed with PAH recruited from Fuwai Central China Cardiovascular Hospital in Henan Province, from January to June 2025. The collected data were analyzed using Colaizzi's phenomenological analysis method.</p><p><strong>Results: </strong>Analysis revealed two overarching themes: (1) Individual-level barrier, comprising lack of awareness,insufficient knowledge about medications and disease management, and heavy financial burden; and (2) Contextual challenges, comprising uncertainty about the disease progression, lack of family and social support, poor accessibility to medications, and disruptions due to public health emergencies.</p><p><strong>Conclusion: </strong>Patients with PAH face significant multi-faceted barriers to effective self-management. Interventions should be multifaceted, involving structured patient education, psychological support, family involvement, and policy-level changes to improve drug accessibility and financial support.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"563550"},"PeriodicalIF":2.0,"publicationDate":"2026-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13005139/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147499724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of Nurse-Led Swallowing Rehabilitation on Swallowing Function, Quality of Life, and Adherence in Patients with Oral Cancer: A Single Center Randomized Controlled Trial. 护士主导的吞咽康复对口腔癌患者吞咽功能、生活质量和依从性的影响:一项单中心随机对照试验
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-17 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S577315
Ze-Ying Hu, Ling-Nv Xie, Guan-Mian Liang, Yu-Wei Liu, Xiao-Xue Wen, Jian-Wen Hou

Objective: Oral cancer patients frequently experience high rates of dysphagia, multiple complications, and poor rehabilitation compliance post-surgery. This study aims to evaluate the effectiveness of specialized nurse-led dysphagia rehabilitation program in improving patients' swallowing function, quality of life, adherence, and nutritional status.

Methods: A single center randomized controlled trial design was employed. 89 patients admitted to the Department of Oral and Maxillofacial Surgery at Zhejiang Cancer Hospital between July 17, 2025, and October 20, 2025, were randomly assigned to an intervention group (n=45) or a usual care group (n=44). The intervention group received a comprehensive rehabilitation program (diagnostic phase, perioperative phase, pre-discharge preparation phase, adjustment and adaptation phase) implemented by a multidisciplinary team led by specialized nurses, supported by a WeChat mini-program. The usual care group received a standard rehabilitation program. Outcome measures included functional oral intake scale, swallowing-related quality of life scale, swallowing function exercise compliance scale, and body mass index. Assessments were conducted at baseline (T0), 1 week post-surgery (T1), 2 weeks (T2), and 4 weeks (T3). Generalized estimating equations were used to analyze changes in outcomes over time.

Results: Post-intervention, the intervention group demonstrated significantly superior scores compared to the usual care group in swallowing function (at T2 and T3), quality of life (at T1, T2, and T3), and adherence (at T1, T2, and T3). Nutritional status was also significantly better in the intervention group at T1 and T2. Generalized estimating equations analysis revealed statistically significant group-by-time interaction effects for swallowing function, quality of life, adherence, and nutritional status.

Conclusion: Compared with conventional rehabilitation protocols, a swallowing rehabilitation program led by specialized nurses effectively improves swallowing function, quality of life, adherence, and early nutritional status in patients after oral cancer surgery.

目的:口腔癌患者吞咽困难发生率高,术后并发症多,康复依从性差。本研究旨在评估专科护士主导的吞咽困难康复计划在改善患者吞咽功能、生活质量、依从性和营养状况方面的有效性。方法:采用单中心随机对照试验设计。选取浙江省肿瘤医院口腔颌面外科于2025年7月17日至2025年10月20日收治的89例患者,随机分为干预组(n=45)和常规护理组(n=44)。干预组接受由专科护士领导的多学科团队实施的综合康复方案(诊断阶段、围手术期、出院前准备阶段、调整和适应阶段),并辅以微信小程序。常规治疗组接受标准的康复计划。结果测量包括功能性口服摄入量表、吞咽相关生活质量量表、吞咽功能运动依从性量表和体重指数。分别在基线(T0)、术后1周(T1)、2周(T2)和4周(T3)进行评估。使用广义估计方程来分析结果随时间的变化。结果:干预后,干预组在吞咽功能(T2和T3时)、生活质量(T1、T2和T3时)和依从性(T1、T2和T3时)得分明显优于常规护理组。干预组在T1和T2时营养状况也明显改善。广义估计方程分析显示,在吞咽功能、生活质量、依从性和营养状况方面,有统计学意义的群体-时间交互作用。结论:与常规康复方案相比,专科护士指导下的吞咽康复方案能有效改善口腔癌术后患者的吞咽功能、生活质量、依从性和早期营养状况。
{"title":"Effect of Nurse-Led Swallowing Rehabilitation on Swallowing Function, Quality of Life, and Adherence in Patients with Oral Cancer: A Single Center Randomized Controlled Trial.","authors":"Ze-Ying Hu, Ling-Nv Xie, Guan-Mian Liang, Yu-Wei Liu, Xiao-Xue Wen, Jian-Wen Hou","doi":"10.2147/PPA.S577315","DOIUrl":"https://doi.org/10.2147/PPA.S577315","url":null,"abstract":"<p><strong>Objective: </strong>Oral cancer patients frequently experience high rates of dysphagia, multiple complications, and poor rehabilitation compliance post-surgery. This study aims to evaluate the effectiveness of specialized nurse-led dysphagia rehabilitation program in improving patients' swallowing function, quality of life, adherence, and nutritional status.</p><p><strong>Methods: </strong>A single center randomized controlled trial design was employed. 89 patients admitted to the Department of Oral and Maxillofacial Surgery at Zhejiang Cancer Hospital between July 17, 2025, and October 20, 2025, were randomly assigned to an intervention group (n=45) or a usual care group (n=44). The intervention group received a comprehensive rehabilitation program (diagnostic phase, perioperative phase, pre-discharge preparation phase, adjustment and adaptation phase) implemented by a multidisciplinary team led by specialized nurses, supported by a WeChat mini-program. The usual care group received a standard rehabilitation program. Outcome measures included functional oral intake scale, swallowing-related quality of life scale, swallowing function exercise compliance scale, and body mass index. Assessments were conducted at baseline (T0), 1 week post-surgery (T1), 2 weeks (T2), and 4 weeks (T3). Generalized estimating equations were used to analyze changes in outcomes over time.</p><p><strong>Results: </strong>Post-intervention, the intervention group demonstrated significantly superior scores compared to the usual care group in swallowing function (at T2 and T3), quality of life (at T1, T2, and T3), and adherence (at T1, T2, and T3). Nutritional status was also significantly better in the intervention group at T1 and T2. Generalized estimating equations analysis revealed statistically significant group-by-time interaction effects for swallowing function, quality of life, adherence, and nutritional status.</p><p><strong>Conclusion: </strong>Compared with conventional rehabilitation protocols, a swallowing rehabilitation program led by specialized nurses effectively improves swallowing function, quality of life, adherence, and early nutritional status in patients after oral cancer surgery.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"577315"},"PeriodicalIF":2.0,"publicationDate":"2026-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13003664/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147499738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Preferences of Chinese Women for Perinatal Depression Screening: A Discrete Choice Experiment. 中国妇女围产期抑郁筛查偏好:离散选择实验。
IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Pub Date : 2026-01-15 eCollection Date: 2026-01-01 DOI: 10.2147/PPA.S539503
Jun Quan, Yiru Wen, Shuang Wu, Xin Li, Xiaofeng Zuo, Shuiying Li

Introduction: Perinatal depression affects 17.7% of women globally, with prevalence reaching 20-30% in China and higher in low-income regions. It poses severe risks, including adverse pregnancy outcomes, maternal suicide, and infanticide. Despite its high prevalence, many cases go undiagnosed due to low screening participation. Screening is cost-effective and reduces depression risk by 2.1-9.1%, yet current strategies often fail to align with patient preferences. In this study, a discrete choice experiment was utilized to assess women's preferences for postpartum depression screening characteristics, and to quantify trade-offs and preference heterogeneity, providing information for a more patient-centered approach.

Methods: We identified six key screening attributes through literature review, interviews, and focus groups. A D-efficiency design approach was implemented to create 36 choice sets and randomly divide them into 3 blocks. A mixed logit model was applied to analyze participants' preferences, assess the relative importance of attributes, and predict the choice probabilities of participants for screening situations.

Results: There are 291 respondents were included in analysis. Healthcare provider type emerged as the most important screening characteristic (27% relative importance), with strongest preference for doctor-led screenings. Women consistently preferred shorter screening duration (15 minutes). Younger women (18-34 years) preferred online screening, while Postpartum women showed stronger preferences for telephone screenings. The most preferred scenario-online by a physician, lasted 15 minutes, occurred every three months, and provided as a rouhad a 0.270 predicted choice probability. These findings highlight the need for tailored screening approaches based on age and pregnancy status.

Conclusion: This study identified a preference for brief, physician-led screening with follow-up. To enhance implementation in primary care, particularly in resource-limited settings, we recommend integrating short screenings into routine visits and utilizing trained non-specialists with digital support. These strategies can improve screening accessibility and long-term management.

导言:围产期抑郁症影响全球17.7%的妇女,在中国患病率达到20-30%,在低收入地区更高。它带来了严重的风险,包括不良妊娠结果、孕产妇自杀和杀婴。尽管发病率很高,但由于筛查参与率低,许多病例未得到诊断。筛查具有成本效益,可将抑郁症风险降低2.1-9.1%,但目前的策略往往无法与患者的偏好保持一致。在本研究中,采用离散选择实验来评估女性对产后抑郁症筛查特征的偏好,并量化权衡和偏好异质性,为更以患者为中心的方法提供信息。方法:通过文献回顾、访谈和焦点小组,我们确定了六个关键的筛选属性。采用d效率设计方法,创建36个选择集,并将其随机分为3个块。采用混合logit模型分析参与者的偏好,评估属性的相对重要性,并预测参与者在筛选情况下的选择概率。结果:共有291名受访者被纳入分析。医疗保健提供者类型成为最重要的筛查特征(相对重要性为27%),最倾向于医生主导的筛查。女性一贯倾向于较短的筛查时间(15分钟)。年轻女性(18-34岁)更喜欢在线筛查,而产后女性更喜欢电话筛查。医生最喜欢的在线场景,持续15分钟,每三个月发生一次,并且作为一个回合提供的预测选择概率为0.270。这些发现强调了根据年龄和妊娠状况量身定制筛查方法的必要性。结论:本研究确定了对医生主导的简短随访筛查的偏好。为了加强初级保健的实施,特别是在资源有限的情况下,我们建议将短期筛查纳入常规就诊,并利用经过培训的非专业人员提供数字支持。这些策略可以提高筛查的可及性和长期管理。
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Patient preference and adherence
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