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Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group. 开发和验证姑息治疗的核心结果测量:姑息治疗结果量表。姑息治疗核心审计项目咨询组。
Pub Date : 1999-12-01 DOI: 10.1136/qshc.8.4.219
J Hearn, I J Higginson

Objectives: To develop an outcome measure for patients with advanced cancer and their families which would cover more than either physical symptoms or quality of life related questions. To validate the measure in various specialist and non-specialist palliative care settings throughout the UK.

Design: A systematic literature review of measures appropriate for use in palliative care settings was conducted. In conjunction with a multidisciplinary project advisory group, questions were chosen for inclusion into the scale based on whether they measured aspects of physical, psychological, or spiritual domains pertinent to palliative care, and whether similar items had shown to be valid as part of another measure. A staff completed version was developed to facilitate data collection on all patients throughout their care, and a patient completed version was designed to enable the patient to contribute to the assessment of their outcomes when possible. A full validation study was conducted to evaluate construct validity, internal consistency, responsiveness to change over time, and test-retest reliability. Assessments were timed.

Setting: Eight centres in England and Scotland providing palliative care, including inpatient care, outpatient care, day care, home care, and primary care.

Patients: A total of 450 patients entered care during the study period. Staff collected data routinely on patients in care long enough to be assessed (n = 337). Of these, 262 were eligible for patient participation; 148 (33%) went on to complete a questionnaire.

Main measures: The Palliative Care Outcome Scale (POS), the European Organisation for Research on Cancer Treatment, and the Support Team Assessment Schedule.

Results: The POS consists of two almost identical measures, one of which is completed by staff, the other by patients. Agreement between staff and patient ratings was found to be acceptable for eight out of 10 items at the first assessment. The measure demonstrated construct validity (Spearman rho = 0.43 to 0.80). Test/re-test reliability was acceptable for seven items. Internal consistency was good (Cronbach's alpha = 0.65 (patients), 0.70 (staff)). Change over time was shown, but did not reach statistical significance. The questionnaire did not take more than 10 minutes to complete by staff or patients.

Conclusion: The POS has acceptable validity and reliability. It can be used to assess prospectively palliative care for patients with advanced cancer.

目的:为晚期癌症患者及其家属制定一种结局指标,该指标不仅涵盖身体症状,还包括与生活质量相关的问题。在英国各地的各种专科和非专科姑息治疗环境中验证该措施。设计:对适用于姑息治疗环境的措施进行了系统的文献回顾。与一个多学科项目顾问组合作,根据问题是否测量与姑息治疗相关的身体、心理或精神领域的各个方面,以及类似的问题是否作为另一个测量的一部分显示有效,选择问题纳入量表。开发了一个工作人员完成的版本,以促进所有患者在整个护理过程中的数据收集,并设计了一个患者完成的版本,使患者能够在可能的情况下对其结果进行评估。我们进行了一项完整的验证性研究来评估结构效度、内部一致性、随时间变化的反应性和重测信度。评估是定时的。环境:英格兰和苏格兰的8个中心提供姑息治疗,包括住院治疗、门诊治疗、日间护理、家庭护理和初级保健。患者:研究期间共有450名患者进入护理。工作人员定期收集病人的护理数据,以便进行评估(n = 337)。其中,262例符合患者参与条件;148人(33%)继续完成问卷调查。主要测量方法:姑息治疗结果量表(POS)、欧洲癌症治疗研究组织和支持团队评估表。结果:POS由两个几乎相同的测量组成,一个由工作人员完成,另一个由患者完成。在第一次评估中,工作人员和患者的评分在10个项目中有8个是可以接受的。测量结果显示结构效度(Spearman rho = 0.43 ~ 0.80)。七个项目的测试/再测试信度是可接受的。内部一致性良好(Cronbach’s alpha = 0.65(患者),0.70(工作人员))。随时间变化,但未达到统计学意义。工作人员或患者完成问卷的时间不超过10分钟。结论:POS具有良好的效度和信度。它可用于评估晚期癌症患者的前瞻性姑息治疗。
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引用次数: 498
Clinical governance: bridging the gap between managerial and clinical approaches to quality of care. 临床治理:弥合管理和临床方法之间的差距,以提高护理质量。
Pub Date : 1999-09-01 DOI: 10.1136/qshc.8.3.184
S A Buetow, M Roland

Clinical governance has been introduced as a new approach to quality improvement in the UK national health service. This article maps clinical governance against a discussion of the four main approaches to measuring and improving quality of care: quality assessment, quality assurance, clinical audit, and quality improvement (including continuous quality improvement). Quality assessment underpins each approach. Whereas clinical audit has, in general, been professionally led, managers have driven quality improvement initiatives. Quality assurance approaches have been perceived to be externally driven by managers or to involve professional inspection. It is discussed how clinical governance seeks to bridge these approaches. Clinical governance allows clinicians in the UK to lead a comprehensive strategy to improve quality within provider organisations, although with an expectation of greatly increased external accountability. Clinical governance aims to bring together managerial, organisational, and clinical approaches to improving quality of care. If successful, it will define a new type of professionalism for the next century. Failure by the professions to seize the opportunity is likely to result in increasingly detailed external control of clinical activity in the UK, as has occurred in some other countries.

临床治理已被引入作为提高英国国家卫生服务质量的一种新方法。本文通过讨论衡量和改进护理质量的四种主要方法来描绘临床治理:质量评估、质量保证、临床审计和质量改进(包括持续质量改进)。质量评估是每种方法的基础。一般来说,临床审计是由专业人员领导的,而管理人员则推动质量改进计划。质量保证方法被认为是由管理人员外部驱动的,或者涉及专业检查。它讨论了临床治理如何寻求这些方法之间的桥梁。临床治理允许临床医生在英国领导一个全面的战略,以提高提供者组织内的质量,尽管期望大大增加外部问责制。临床治理旨在将管理、组织和临床方法结合起来,以提高护理质量。如果成功,它将为下个世纪定义一种新型的专业主义。专业人士未能抓住机会,可能会导致英国临床活动的外部控制越来越详细,就像在其他一些国家发生的那样。
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引用次数: 112
Reducing errors in medicine. 减少医疗差错。
Pub Date : 1999-09-01 DOI: 10.1136/qshc.8.3.145
D M Berwick, L L Leape
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引用次数: 21
Judging journalism: how should the quality of news reporting about clinical interventions be assessed and improved? 评判新闻:如何评估和提高关于临床干预的新闻报道的质量?
Pub Date : 1999-09-01 DOI: 10.1136/qshc.8.3.172
V A Entwistle, I S Watt
Health care receives a lot of attention in the media. Rarely a day goes by without the wonders or horrors of some screening programme, drug, surgical procedure, or clinical service being discussed in the pages of our newspapers and on our television screens. Most of the major newspapers and television channels employ correspondents who specialise in health and medicine. Every day, these correspondents expect to be alerted to many potential “stories” by medical journals, policy makers, health service managers, professional interest groups, consumer interest groups, the pharmaceutical industry, research funders, and researchers. The correspondents’ interactions with these sources and their own activities in seeking, selecting, and structuring information all contribute to the shaping of stories. Media reports can influence the use that people make of healthcare interventions. Recent contraceptive “pill scares” communicated via the media have been associated with increases in the numbers of terminations of unwanted pregnancies among some populations, 2 although not others. 4 Women themselves have directly reported that they became pregnant after they stopped taking their oral contraceptives because of adverse media publicity. A systematic review of the eVects of media “campaigns” has shown that these can, at least in some circumstances, affect the use people make of health services. For example, publicity about the extremely high rates of hysterectomy among women in one Swiss canton appears to have triggered a fall in these rates, and there have been several examples of media campaigns that have increased the uptake of immunisations. 8 It seems likely that both healthcare professionals and the general public are influenced. Although it is not clear how and to what extent the specific characteristics of media reports of a particular issue influence their impact, most people would agree that media coverage of healthcare interventions should be of good quality. Their judgments about what constitutes good quality, however, are likely to vary according to their values and perspectives, and what they consider the purpose of such coverage to be. Representatives of diVerent groups tend to judge the quality of news reports according to diVerent criteria. The quotations in box 1 summarise several published opinions about one newspaper article that discussed possible genetic causes of asthma and the factors that aVected its publication.
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引用次数: 15
Assessing good quality dental care. 评估优质牙科护理。
Pub Date : 1999-09-01 DOI: 10.1136/qshc.8.3.148
D Plamping
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引用次数: 1
Measuring patients' attitudes to care across the primary/secondary interface: the development of the patient career diary. 通过主要/次要界面测量患者对护理的态度:患者职业日记的发展。
Pub Date : 1999-09-01 DOI: 10.1136/qshc.8.3.154
R Baker, C Preston, F Cheater, H Hearnshaw

Background: A growing number of new ways of organising services across the primary/secondary interface are being introduced and evaluated. The principal motive for such reorganisation is to improve the efficiency of health care. However, unless the impact of the new services on patients is investigated and taken into account, it is possible that patients' reactions could be negative, a factor that could lead to unexpected consequences in the use and costs of services.

Objective: To develop a measure of patients' attitudes towards care across the interface between primary and secondary care.

Design: Generation of questions to be included in the measure from a qualitative study of patients' experiences of care across the interface; administration of pilot versions of the measure to samples of patients referred to secondary care; refinement of questions guided by analysis of response patterns, principal components analysis and internal consistency; administration of the final version of the patient career diary in complete form retrospectively to patients referred to secondary care, and one section alone to patients attending outpatient departments for follow up appointments. Face validity was assessed by analysis of open comments in a sample of 50 diaries, and review of the diary by 34 health professionals. Construct validity was assessed by investigation of levels of correlation between components of each section of the diary and the components of the healthcare section overall.

Setting: In the final field test, patients were attending various hospital services, including cardiology, dermatology, neurology, gynaecology, general surgery, general medicine, ophthalmology, trauma and orthopaedics, and gastroenterology.

Results: The final version of the diary included 109 questions in seven sections: general practitioner (GP) visits and referral, other GP visits, first outpatient visit, other outpatient visits, inpatient stay and discharge, care after discharge, and care overall. Response rates were poor for retrospective completion of the entire diary, but excellent when a section was given separately. Principal components analysis confirmed that components relating to issues identified as important to patients in the qualitative study had been included in the diary. Levels of internal consistency were good, and comments of patients and health professionals supported validity.

Conclusion: The patient career diary is a valid and reliable measure of patients' attitudes to care across the interface. It should be given in sections to ensure adequate response rates, and is suitable for use in the evaluation or quality of patterns of care across the interface. In future, the impact on patients of new ways of organising services across the interface should be investigated by use of measures such as the patient career diary.

背景:越来越多的跨主/从接口组织服务的新方法正在被引入和评估。这种重组的主要动机是提高卫生保健的效率。然而,除非调查并考虑到新服务对患者的影响,否则患者的反应可能是负面的,这一因素可能导致服务的使用和成本方面的意外后果。目的:发展一种测量患者对初级和二级护理之间的护理态度的方法。设计:通过界面对患者的护理体验进行定性研究,生成要纳入测量的问题;对转诊至二级医疗机构的患者样本实施该措施的试点版本;以响应模式分析、主成分分析和内部一致性为指导,对问题进行细化;管理的最终版本的患者职业生涯日记的完整形式回顾性的病人转诊到二级保健,并单独一个部分的病人到门诊部门进行随访预约。通过分析50份日记样本中的公开评论,以及34名卫生专业人员对日记的回顾,来评估面部有效性。建构效度是通过调查日记各部分组成部分与整体医疗保健部分组成部分之间的相关水平来评估的。环境:在最后的现场测试中,患者在各种医院服务部门就诊,包括心脏病科、皮肤科、神经内科、妇科、普通外科、普通内科、眼科、创伤和整形外科以及胃肠科。结果:日记的最终版本包括109个问题,分为7个部分:全科医生(GP)就诊和转诊、其他全科医生就诊、首次门诊就诊、其他门诊就诊、住院和出院、出院后护理和总体护理。回顾完成整个日记的回复率很低,但单独给出一个部分的回复率很好。主成分分析证实,与定性研究中确定的对患者重要的问题相关的成分已包括在日记中。内部一致性水平良好,患者和卫生专业人员的评论支持效度。结论:患者职业日记是一种有效、可靠的跨界面护理态度测量方法。它应该分章节给出,以确保足够的响应率,并且适合用于跨界面的护理模式的评估或质量。在未来,应该通过使用诸如患者职业日记之类的措施来调查跨界面组织服务的新方式对患者的影响。
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引用次数: 29
Improvement through inspection? The development of the new Commission for Health Improvement in England and Wales. 通过检查来改进?在英格兰和威尔士建立新的健康改善委员会。
Pub Date : 1999-09-01 DOI: 10.1136/qshc.8.3.191
K Walshe
Introduction Inspection and external review are increasingly used in healthcare systems throughout the world, in various forms, in pursuit of quality assurance and improvement. Although the experience of systems such as accreditation in those countries which have used them for decades is decidedly mixed, we are nevertheless witnessing what has been described as an explosion in external audit, regulation, review, and inspection—not just in health care, but across the public and private sector. But little evidence exists to show that regulation and inspection improve quality, and some would argue that they conflict with a modern understanding of eVective quality improvement. This article explores the contribution that external review and inspection can make to quality improvement in the context of the National Health Service (NHS) in England and Wales, where a new national statutory healthcare inspectorate is about to be established.
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引用次数: 18
Practice visits as a tool in quality improvement: mutual visits and feedback by peers compared with visits and feedback by non-physician observers. 实践访问作为质量改进的工具:同行相互访问和反馈与非医生观察员访问和反馈的比较。
Pub Date : 1999-09-01 DOI: 10.1136/qshc.8.3.161
P van den Hombergh, R Grol, H J van den Hoogen, W J van den Bosch

Objective: To evaluate and compare the effects of two programmes of assessment of practice management in a practice visit: mutual visits and feedback by peers compared with visits and feedback by non-physician observers.

Design: Prospective, randomised intervention study, with follow up after one year.

Setting: General practices in the Netherlands in 1993 and 1994.

Subjects: A total of 90 general practitioners (GPs) in 68 practices; follow up after one year comprised 81 GPs in 62 practices.

Main measures: Scores on indicators and dimensions of practice management in the visit instrument to assess practice management and organisation (a validated Dutch method to assess practice management in a practice visit). Change was defined as the difference in score between the first visit and the visit after one year on 208 indicators and on 33 dimensions of practice management.

Results: Data of 44 mutual visits by peers were compared with data of 46 visits by non-physician observers. After a year both programmes showed improvements on many aspects of practice management, but different aspects changed in each of the two programmes. After mutual practice visits, GPs scored significantly higher on content of the doctor's bag, on collaboration with colleagues, on collaboration with other care providers, and on accessibility of patient information than after a visit by a non-physician observer. The visits by non-physician observers resulted in a higher score on extent of use of records and on assessment on outcome and year report.

Conclusion: Change after mutual practice visits and feedback by peers is more marked than after a visit and feedback by a non-physician observer.

目的:评价和比较两种执业管理评估方案在执业访视中的效果:相互访视和同行反馈与非医师观察员访视和反馈。设计:前瞻性、随机干预研究,一年后随访。背景:1993年和1994年荷兰的全科医生。研究对象:68家诊所共90名全科医生(gp);一年后的随访包括81名全科医生在62个诊所。主要措施:在访问工具中评估实践管理和组织的指标和实践管理维度的得分(一种经过验证的荷兰方法来评估实践访问中的实践管理)。变化被定义为第一次就诊和一年后就诊在208个指标和33个实践管理维度上的得分差异。结果:将44例同行访视数据与46例非医师观察员访视数据进行比较。一年后,这两个项目在实践管理的许多方面都有所改善,但两个项目在不同方面都有所改变。在相互就诊后,全科医生在医生包的内容、与同事的合作、与其他护理提供者的合作以及患者信息的可及性方面的得分明显高于非医生观察员就诊后的得分。非医生观察员的访问在记录使用程度和结果评估和年度报告方面得分较高。结论:相互就诊和同伴反馈后的变化比非医师观察者就诊和反馈后的变化更明显。
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引用次数: 51
Practice visits as a tool in quality improvement: acceptance and feasibility. 实践访问作为质量改进的工具:可接受性和可行性。
Pub Date : 1999-09-01 DOI: 10.1136/qshc.8.3.167
P van den Hombergh, R Grol, H J van den Hoogen, W J van den Bosch

Objective: To evaluate the feasibility and acceptance of (a) two programmes of assessment of practice management in a practice visit: mutual practice visits and feedback by peers versus visits and feedback by non-physician observers and (2) the practice visit method used in these programmes (the visit instrument to assess practice management and organisation (VIP)--a validated Dutch tool).

Design: Prospective, randomised intervention study with the two programmes, follow up after one year. General practitioners (GPs) were visited after each programme and after the revisits by non-physician observers a year later.

Setting: General practices in the Netherlands in 1993 and 1994.

Subjects: A total of 90 GPs in 68 practices. At follow up after 1 year there were 81 GPs in 62 practices.

Main measures: Scores (mainly five point scales) for questions on appreciation and acceptance; after the follow up visit a year later, scores for questions on feasibility and practicality of the improved procedure and feedback report.

Results: Data of 44 mutual visits by peers were compared with data of 46 visits by non-physician observers. A visit by a non-physician observer was appreciated significantly more. After the practice visit at one year follow up, the participants reported to have appreciated the visit and the feedback report and to prefer feedback of a non-physician observer to that of a peer. Participants' reports on the procedure and the presentation of the feedback provided clues for the improvement of visit procedures.

Conclusions: A practice visit and feedback by a non-physician observer is more appreciated than a visit and feedback by a colleague. A practice visit with the VIP by a non-physician observer is a simple, easy, and well accepted method for assessing practice management.

目的:评估(a)实践访问中实践管理评估的两种方案的可行性和可接受性:同行的相互实践访问和反馈与非医生观察员的访问和反馈;(2)这些方案中使用的实践访问方法(评估实践管理和组织的访问工具(VIP)——一种经过验证的荷兰工具)。设计:前瞻性、随机干预研究,两种方案,一年后随访。在每个项目结束后拜访全科医生(gp),一年后再拜访非医师观察员。背景:1993年和1994年荷兰的全科医生。对象:68例90名全科医生。在1年后的随访中,62例实践中有81名全科医生。主要衡量标准:欣赏和接受问题的得分(以五分制为主);一年后随访后,对改进程序的可行性和实用性问题进行评分并反馈报告。结果:将44例同行访视数据与46例非医师观察员访视数据进行比较。非医师观察员的访问更受欢迎。在一年随访的实践访问之后,参与者报告说他们对访问和反馈报告表示赞赏,并且更喜欢非医生观察员的反馈而不是同行的反馈。参加者对访视程序的报告及反馈意见的呈现,为改善访视程序提供了线索。结论:非医师观察员的实践访问和反馈比同事的访问和反馈更受欢迎。由非医师观察员与VIP进行实践访问是评估实践管理的一种简单、容易和广泛接受的方法。
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引用次数: 43
Learning from quality systems in different countries: quality improvement across borders? 从不同国家的质量体系中学习:跨越国界的质量改进?
Pub Date : 1999-09-01 DOI: 10.1136/qshc.8.3.147
F Moss, R Baker
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引用次数: 3
期刊
Quality in health care : QHC
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