Background: There is a dominant discourse, both in clinical texts and throughout the academic literature, that autistic people lack empathy; however, over the past decade, both clinicians and academics have increasingly rejected deficit-based descriptions of autism in favor of more nuanced explanations of the experience of autistic individuals in a social world. Methods: This study asked 76 autistic individuals about their own experience of empathy and the oft-cited empathy deficit. Data were thematically analyzed and revealed a wide array of empathic self-concepts among respondents. Results: Notably, there was a high proportion of hyper-empathic experiences. Many respondents reported their empathic responses to be overwhelming, or even distressing. These different experiences of empathy contrast with societal expectations of empathy, which often result in additional labor for autistic people as they navigate the non-autistic centered world. Conclusion: Although the academic literature is, in some areas, slowly moving away from a deficit perspective, more broadly there is still a negative impact from misconceptions around autistic people and empathy. Further work needs to be done to not only explore this misconception at a societal (rather than academic) level, but also better bridge the gap around the changing ideas of empathy and real-world understanding of autistic empathy. There is a stereotype that autistic people lack empathy, which can potentially lead to negative perceptions and biased behaviors. This stereotype has roots in earlier academic literature around autism. However, although this literature has become more nuanced over time, the stereotype persists among the general population. This study directly asked autistic people about their own experience of empathy and of the empathy deficit narrative to provide a richer description than is afforded by traditional studies that typically use questionnaire measures. We asked a diverse group of 76 autistic adults to tell us how they experience empathy and what their views were of the autistic empathy deficit narrative via an online survey. These data were then analyzed, and themes created, using qualitative content analysis. The first theme, heterogeneity of empathic experiences, captured the diverse ways in which autistic people experience empathy. Some did report a lack of empathy, whereas others did not, and some reported experiencing extreme emotional responses (hyper-empathy). The second theme, empathy as an effortful process, captured some of the challenges experienced during the empathy process and the strategies used to overcome these. The third theme, conditional empathy, captured the features of others that made it more or less likely that empathy would be experienced. Some participants found it easier to empathize with close others, animals, and other autistic people. The fourth theme, challenging the empathy deficit narrative, captured participants' perspectives on the empathy d
{"title":"Autistic People's Experience of Empathy and the Autistic Empathy Deficit Narrative","authors":"Lesley Kimber, Diarmuid Verrier, Stephen Connolly","doi":"10.1089/aut.2023.0001","DOIUrl":"https://doi.org/10.1089/aut.2023.0001","url":null,"abstract":"Background: There is a dominant discourse, both in clinical texts and throughout the academic literature, that autistic people lack empathy; however, over the past decade, both clinicians and academics have increasingly rejected deficit-based descriptions of autism in favor of more nuanced explanations of the experience of autistic individuals in a social world. Methods: This study asked 76 autistic individuals about their own experience of empathy and the oft-cited empathy deficit. Data were thematically analyzed and revealed a wide array of empathic self-concepts among respondents. Results: Notably, there was a high proportion of hyper-empathic experiences. Many respondents reported their empathic responses to be overwhelming, or even distressing. These different experiences of empathy contrast with societal expectations of empathy, which often result in additional labor for autistic people as they navigate the non-autistic centered world. Conclusion: Although the academic literature is, in some areas, slowly moving away from a deficit perspective, more broadly there is still a negative impact from misconceptions around autistic people and empathy. Further work needs to be done to not only explore this misconception at a societal (rather than academic) level, but also better bridge the gap around the changing ideas of empathy and real-world understanding of autistic empathy. There is a stereotype that autistic people lack empathy, which can potentially lead to negative perceptions and biased behaviors. This stereotype has roots in earlier academic literature around autism. However, although this literature has become more nuanced over time, the stereotype persists among the general population. This study directly asked autistic people about their own experience of empathy and of the empathy deficit narrative to provide a richer description than is afforded by traditional studies that typically use questionnaire measures. We asked a diverse group of 76 autistic adults to tell us how they experience empathy and what their views were of the autistic empathy deficit narrative via an online survey. These data were then analyzed, and themes created, using qualitative content analysis. The first theme, heterogeneity of empathic experiences, captured the diverse ways in which autistic people experience empathy. Some did report a lack of empathy, whereas others did not, and some reported experiencing extreme emotional responses (hyper-empathy). The second theme, empathy as an effortful process, captured some of the challenges experienced during the empathy process and the strategies used to overcome these. The third theme, conditional empathy, captured the features of others that made it more or less likely that empathy would be experienced. Some participants found it easier to empathize with close others, animals, and other autistic people. The fourth theme, challenging the empathy deficit narrative, captured participants' perspectives on the empathy d","PeriodicalId":29965,"journal":{"name":"Autism in Adulthood","volume":"9 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135938866","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-07-24DOI: 10.1089/aut.2023.29024.rfs2022
A. Pearson
{"title":"Rosalind Franklin Society Proudly Announces the 2022 Award Recipient for Autism in Adulthood","authors":"A. Pearson","doi":"10.1089/aut.2023.29024.rfs2022","DOIUrl":"https://doi.org/10.1089/aut.2023.29024.rfs2022","url":null,"abstract":"","PeriodicalId":29965,"journal":{"name":"Autism in Adulthood","volume":" ","pages":""},"PeriodicalIF":6.8,"publicationDate":"2023-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45297573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-12-01DOI: 10.1089/aut.2019.0034.correx
{"title":"Correction to: Sleep Quality in Autism from Adolescence to Old Age by Jovevska S, et al. Autism Adulthood 2020;2(2):152–162; DOI: 10.1089/aut.2019.0034","authors":"","doi":"10.1089/aut.2019.0034.correx","DOIUrl":"https://doi.org/10.1089/aut.2019.0034.correx","url":null,"abstract":"","PeriodicalId":29965,"journal":{"name":"Autism in Adulthood","volume":" ","pages":""},"PeriodicalIF":6.8,"publicationDate":"2020-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41636675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background: Autistic individuals' enrollment in universities is increasing, but we know little about their study progress over time. Many of them have poor degree completion in comparison to studen...
{"title":"First-Year Progression and Retention of Autistic Students in Higher Education: A Propensity Score-Weighted Population Study","authors":"T. Bakker, L. Krabbendam, S. Bhulai, S. Begeer","doi":"10.1089/aut.2019.0053","DOIUrl":"https://doi.org/10.1089/aut.2019.0053","url":null,"abstract":"Background: Autistic individuals' enrollment in universities is increasing, but we know little about their study progress over time. Many of them have poor degree completion in comparison to studen...","PeriodicalId":29965,"journal":{"name":"Autism in Adulthood","volume":" ","pages":""},"PeriodicalIF":6.8,"publicationDate":"2020-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1089/aut.2019.0053","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47471008","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-06-01DOI: 10.1089/aut.2020.29010.cfp
C. Nicolaidis
{"title":"Call for Papers: Autism in Adulthood","authors":"C. Nicolaidis","doi":"10.1089/aut.2020.29010.cfp","DOIUrl":"https://doi.org/10.1089/aut.2020.29010.cfp","url":null,"abstract":"","PeriodicalId":29965,"journal":{"name":"Autism in Adulthood","volume":" ","pages":""},"PeriodicalIF":6.8,"publicationDate":"2020-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1089/aut.2020.29010.cfp","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46892154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Catherine J. Crompton, Cos Michael, Michael Dawson, S. Fletcher‐Watson
As autistic people get older, they may suffer increasingly with poor health and as a result may transition to residential care. Very little is known about the support needs of older autistic adults...
{"title":"Residential Care for Older Autistic Adults: Insights from Three Multiexpert Summits","authors":"Catherine J. Crompton, Cos Michael, Michael Dawson, S. Fletcher‐Watson","doi":"10.1089/aut.2019.0080","DOIUrl":"https://doi.org/10.1089/aut.2019.0080","url":null,"abstract":"As autistic people get older, they may suffer increasingly with poor health and as a result may transition to residential care. Very little is known about the support needs of older autistic adults...","PeriodicalId":29965,"journal":{"name":"Autism in Adulthood","volume":"1 1","pages":""},"PeriodicalIF":6.8,"publicationDate":"2020-01-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1089/aut.2019.0080","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41416893","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Abstract Many serious medical conditions are more common in autistic adults than the general population. Yet, improving the physical health and well-being of autistic adults has not been a significant research focus to date. In collaboration with Newcastle University (the United Kingdom), Autistica (the United Kingdom's autism research charity) hosted a workshop bringing together autistic people, relatives, clinicians, managers, clinical commissioners, international researchers, and funders to establish priority research areas and catalyze research to improve the physical health and well-being of autistic people. This article provides an overview of the design and methods used at the workshop to maximize collaborative working, and summarizes the 11 priority research concepts that emerged.
{"title":"Workshop Report: Establishing Priority Research Areas to Improve the Physical Health and Well-Being of Autistic Adults and Older People","authors":"Georgina Warner, Jeremy R. Parr, James Cusack","doi":"10.1089/AUT.2018.0003","DOIUrl":"https://doi.org/10.1089/AUT.2018.0003","url":null,"abstract":"Abstract Many serious medical conditions are more common in autistic adults than the general population. Yet, improving the physical health and well-being of autistic adults has not been a significant research focus to date. In collaboration with Newcastle University (the United Kingdom), Autistica (the United Kingdom's autism research charity) hosted a workshop bringing together autistic people, relatives, clinicians, managers, clinical commissioners, international researchers, and funders to establish priority research areas and catalyze research to improve the physical health and well-being of autistic people. This article provides an overview of the design and methods used at the workshop to maximize collaborative working, and summarizes the 11 priority research concepts that emerged.","PeriodicalId":29965,"journal":{"name":"Autism in Adulthood","volume":"1 1","pages":""},"PeriodicalIF":6.8,"publicationDate":"2019-03-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1089/AUT.2018.0003","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48737803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-01-01DOI: 10.1007/978-3-030-28833-4_1
Inbal Vortman-Shoham, S. Kenny
{"title":"Emerging Adulthood and ASD","authors":"Inbal Vortman-Shoham, S. Kenny","doi":"10.1007/978-3-030-28833-4_1","DOIUrl":"https://doi.org/10.1007/978-3-030-28833-4_1","url":null,"abstract":"","PeriodicalId":29965,"journal":{"name":"Autism in Adulthood","volume":"21 12","pages":""},"PeriodicalIF":6.8,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50960007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-01-01DOI: 10.1007/978-3-030-28833-4_12
Gal Goltzer, Shiri Pearlman-Avnion
{"title":"Feelings of Parents with Broader Autism Phenotype Towards Their Autistic Child","authors":"Gal Goltzer, Shiri Pearlman-Avnion","doi":"10.1007/978-3-030-28833-4_12","DOIUrl":"https://doi.org/10.1007/978-3-030-28833-4_12","url":null,"abstract":"","PeriodicalId":29965,"journal":{"name":"Autism in Adulthood","volume":"34 12","pages":""},"PeriodicalIF":6.8,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50960354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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