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Social Aspects of Health Communication – Towards a Research Agenda 健康传播的社会方面-迈向研究议程
Pub Date : 2021-10-27 DOI: 10.47368/ejhc.2021.200
Sarah Geber, Tobias Frey, Thomas N. Friemel
Health and health-related behaviours are embedded in social contexts in various ways which comprise both risks and opportunities for health communication. We propose a research agenda on social aspects of health communication and introduce the articles of the present special issue. Owing to the complexity of individuals’ social contexts, the research agenda addresses questions lying at the individual, interpersonal, and societal levels. The issue’s articles cover different and highly relevant questions of this research agenda, ranging from stigmatisation to impression management to collective action and from experimental designs to qualitative interviews and netnography. In sum, the articles demonstrate not only the diversity but also the relevance of academic research on social aspects of health communication. We expect that this topic will continue gaining importance, given the ongoing digitalisation of the media environment and the increasing interconnectedness of producers and users, doctors and patients, and experts and laypersons.
健康和与健康有关的行为以各种方式嵌入社会环境,既构成健康传播的风险,也构成健康传播的机会。我们提出了健康传播的社会层面的研究议程,并介绍了本期特刊的文章。由于个人社会背景的复杂性,研究议程涉及个人、人际和社会层面的问题。这期的文章涵盖了这一研究议程的不同和高度相关的问题,从污名化到印象管理到集体行动,从实验设计到定性访谈和网络摄影。总之,这些文章不仅表明了健康传播社会方面的学术研究的多样性,而且表明了其相关性。鉴于媒体环境的持续数字化,以及生产者和使用者、医生和患者、专家和外行之间日益紧密的联系,我们预计这一主题将继续变得越来越重要。
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引用次数: 0
The Influence of Social Support and Characteristics of the Stigmatisers on Stigmatising Attitudes Towards People With Mental Illness 社会支持及污名化者特征对精神疾病患者污名化态度的影响
Pub Date : 2021-10-27 DOI: 10.47368/ejhc.2021.204
Michélle Möhring, Natascha Katharina Krick, Anika Ditze
The stigmatisation of people with mental illness has severe negative consequences for affected individuals. As research in the context of exemplification theory (Zillmann & Brosius, 2000) shows, single-case descriptions of affected individuals (i.e., exemplars) have the potential to either strengthen or reduce stigmatising attitudes towards people with mental illness, in general. We examine the role of depicting social support for exemplars with mental illness (i.e., depression), exemplars’ age and sex as well as characteristics of the potential stigmatisers (e.g., sex, relationship status) in generalised stigma-related attitudes towards people with mental illness. A 2 × 2 × 2 online survey experiment with 854 participants was conducted. Univariate ANOVAs yielded main effects and complex interaction patterns of participants’ sex and relationship status, as well as combinations of exemplar characteristics. Overall, our results confirm the influence that single-case descriptions can have upon generalised stigma-related attitudes towards people with mental illness. They underline the potential of depicting social support for exemplars with mental illness as well as the consideration of potential stigmatisers’ sex and relationship status for (de-)stigmatisation and give starting points for future research in the field of health and anti-stigma-communication.
对精神疾病患者的污名化对受影响的个人产生了严重的负面影响。正如例证理论背景下的研究(Zillmann & Brosius, 2000)所表明的那样,一般来说,对受影响个体(即范例)的单一案例描述有可能加强或减少对精神疾病患者的污名化态度。我们研究了对精神疾病(如抑郁症)患者的社会支持、年龄和性别以及潜在污名化者的特征(如性别、关系状况)在对精神疾病患者的普遍污名化相关态度中的作用。采用2 × 2 × 2在线调查实验,共854人参与。单变量方差分析得到了参与者性别和关系状态的主效应和复杂的交互模式,以及范例特征的组合。总的来说,我们的研究结果证实了单个案例的描述可能对人们对精神疾病患者的普遍污名相关态度产生影响。它们强调了描绘对精神疾病模范的社会支持的潜力,以及考虑潜在的污名化者的性别和关系状况以(消除)污名化,并为健康和反污名化交流领域的未来研究提供了起点。
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引用次数: 2
Sick for Information? 想知道些什么?
Pub Date : 2021-09-09 DOI: 10.47368/ejhc.2021.302
Fam Te Poel, A. Linn, Susanne E. Baumgartner, L. van Dijk, E. Smit
During a pandemic outbreak, timely and accurate information that matches the information needs of the public is vital to inform the public. In April 2020, 977 individuals completed a questionnaire that measured the Dutch public’s health information needs and media consumption during the early stages of the coronavirus outbreak. Results show that respondents sought information about prevention of contamination, (the severity of) symptoms, treatment, and vaccination. News outlets, both online and offline, were the most preferred sources for information. Older people were more likely to search for information in traditional media, such as on TV, in newspapers, and on the radio. Younger people more often used news websites to find information. Respondents with lower levels of education obtained information via TV more frequently than respondents with higher levels of education, who in turn used newspapers more frequently. This study, guided by the Risk Information Seeking and Processing (RISP) model, was conducted during the early stages of the pandemic in the Netherlands to provide information that public health officials and governments can use to optimise information provision during pandemics. Presently, news media have the highest degree of coverage and impact and should thus be used first to convey reliable information.
在大流行爆发期间,及时和准确地提供符合公众信息需求的信息对于告知公众至关重要。2020年4月,977人完成了一份调查问卷,调查了荷兰公众在冠状病毒爆发初期的健康信息需求和媒体消费。结果显示,应答者寻求有关预防污染、(严重程度)症状、治疗和疫苗接种的信息。新闻媒体,无论是线上还是线下,都是最受欢迎的信息来源。老年人更有可能在传统媒体上搜索信息,比如电视、报纸和广播。年轻人更常使用新闻网站查找信息。受教育程度较低的受访者比受教育程度较高的受访者更频繁地通过电视获取信息,而受教育程度较高的受访者则更频繁地使用报纸。这项研究在风险信息寻找和处理(RISP)模型的指导下,在荷兰大流行的早期阶段进行,为公共卫生官员和政府提供信息,以优化大流行期间的信息提供。目前,新闻媒体具有最高的覆盖面和影响力,因此应首先利用新闻媒体来传递可靠的信息。
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引用次数: 2
Sensible Use(rs) and the Construction of Self-Identity in Research Interviews 研究访谈中的理性使用与自我同一性建构
Pub Date : 2021-09-02 DOI: 10.47368/ejhc.2021.203
M. Huisman, Eduard Cuelenaere, Stijn Joye, D. Biltereyst
As a much-used data collection method in qualitative research, interviewing is a primary way to make sense of social life. However, critics point out that interviews are often used uncritically and unreflectively, without considering epistemological foundations and self-presentation efforts by interviewees. By way of a two-step, theory-driven qualitative thematic analysis, this study examines how Belgian middle-aged and older adults (51-79 years old) construct their self-identity in research interviews as sensible internet users with regards to online health information (OHI) and their motivations for doing so. The findings are underpinned by a theoretical framework which enhances impression management (IM) theory with the third-person effect (TPE). The study finds that respondents engage in various IM behaviours, including instances of the TPE, to maximise positive impressions and minimise negative impressions. Through IM, interviewees 1) respond to critical questions; 2) proactively demonstrate knowledge, accomplishments, and positive outcomes; 3) compare and distance oneself from others; and 4) communicate limitations and offer external explanations. The findings contribute to the scant literature on IM in research interviews and among older adults and carry various implications for the field of health communication and beyond, such as the importance of critically reflecting on interviewing and going beyond the face value of the data.
访谈是定性研究中常用的一种数据收集方法,是理解社会生活的主要方式。然而,批评者指出,访谈往往不加批判和反思,不考虑认识论基础和受访者的自我表现努力。通过两步,理论驱动的定性专题分析,本研究考察了比利时中老年成年人(51-79岁)如何在研究访谈中构建他们的自我认同,作为明智的互联网用户,关于在线健康信息(OHI)及其动机。这些发现得到了一个理论框架的支持,该框架通过第三人效应(TPE)增强了印象管理(IM)理论。研究发现,受访者参与各种即时通讯行为,包括TPE的实例,以最大化积极印象和最小化消极印象。通过即时通讯,受访者1)回答关键问题;2)主动展示知识、成就和积极成果;3)与他人比较并保持距离;4)沟通局限性并提供外部解释。这些发现有助于弥补研究访谈和老年人中关于即时通讯的文献不足,并对健康交流领域及其他领域产生各种影响,例如对访谈进行批判性反思和超越数据表面价值的重要性。
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引用次数: 1
Misinformation in Germany during the COVID-19 pandemic COVID-19大流行期间德国的错误信息
Pub Date : 2021-07-23 DOI: 10.31234/osf.io/cw2jn
Christina Leuker, Nadine Fleischhut, R. Hertwig, A. Kozyreva, John Gubernath
During the COVID-19 pandemic, citizens have been exposed to vast amounts of mis- and disinformation. This “infodemic” has undermined key behavioural and pharmacological measures to contain the pandemic—for instance, by increasing vaccine hesitancy. In a cross-sectional survey of residents of Germany, we investigated citizens’ perceptions of and ability to deal with misinformation across three Waves of data collection in 2020/21 (Ntotal = 3324). We observed three main results. First, there was a strong increase in the perceived prevalence of misinformation in classic and online media and in social interactions over the course of the pandemic. Second, some—but by no means all—respondents knew how to identify misinformation. Third, higher susceptibility to misinformation was associated with support for the far-right AFD party, reliance on tabloids, neighbours and social media for information and news, lower education, as well as migration background. To help people navigate the challenges of the infodemic, we propose a two-pronged approach, namely, to boost individuals’ abilities to discern false from accurate information, and to enrich citizens’ proximate environments (e.g., neighbourhoods with high rates of migration) with reliable, accessible and high-quality information.
在2019冠状病毒病大流行期间,公民接触到了大量错误和虚假信息。这种“信息大流行”破坏了控制大流行的关键行为和药理学措施——例如,增加了人们对疫苗接种的犹豫。在对德国居民的横断面调查中,我们调查了2020/21年三波数据收集中公民对错误信息的感知和处理能力(Ntotal = 3324)。我们观察到三个主要结果。首先,在大流行期间,传统媒体和在线媒体以及社会互动中普遍存在的错误信息明显增加。其次,部分(但绝不是全部)受访者知道如何识别错误信息。第三,更容易受到错误信息的影响,与支持极右翼的德国新选择党(AFD)、依赖小报、邻居和社交媒体获取信息和新闻、受教育程度较低以及移民背景有关。为了帮助人们应对信息大流行的挑战,我们提出了一个双管齐下的办法,即提高个人辨别虚假和准确信息的能力,并以可靠、可获取和高质量的信息丰富公民的邻近环境(例如,高移民率的社区)。
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引用次数: 6
Formative Research to Create Culturally Sensitive HPV Vaccine Messages for Middle-School Children 为中学生创建具有文化敏感性的HPV疫苗信息的形成性研究
Pub Date : 2021-07-15 DOI: 10.47368/EJHC.2021.104
A. Occa, Sarah Julien-Bell
HPVs (Human Papilloma Viruses) are the cause of several diseases and types of cancer, but infections can be prevented through a vaccine that children are recommended to receive when they are about 12 years of age. Communicating with children about HPV is an important albeit underdeveloped task. This is especially critical in countries such as Italy, were the HPV vaccination rate is dropping. To understand Italian middle-school children’s communication challenges, needs and preferences, and to provide evidence to inform the development of targeted and culturally-sensitive messages about HPV for them, this study adopted a multi-method participatory approach consisting of focus group discussions and participatory drawings. Results indicated that children (N = 54) wanted to be actively engaged in decisions about their health but faced several communication challenges, including adults’ language and attitude. Children struggled to retrieve reliable information on their own. They provided specific information on the sources and the strategies they would want adults to adopt. Results helped to identify positive and negative behaviours among these themes, as well as key resources to be leveraged in the development of HPV-related messages. The communication strategies identified in this study may help parents, healthcare providers, and caregivers to improve their communication with children.
hpv(人类乳头状瘤病毒)是几种疾病和癌症的病因,但可以通过疫苗预防感染,建议儿童在12岁左右接种疫苗。与儿童就HPV进行沟通是一项重要的任务,尽管这一任务并不发达。这在意大利等HPV疫苗接种率正在下降的国家尤为重要。为了了解意大利中学生的沟通挑战、需求和偏好,并为他们提供有针对性和文化敏感性的HPV信息的发展提供证据,本研究采用了多方法参与式方法,包括焦点小组讨论和参与式绘图。结果表明,儿童(N = 54)希望积极参与有关其健康的决定,但面临一些沟通挑战,包括成人的语言和态度。孩子们很难自己找回可靠的信息。他们提供了具体的信息来源和他们希望成年人采取的策略。结果有助于确定这些主题之间的积极和消极行为,以及在hpv相关信息的开发中利用的关键资源。本研究确定的沟通策略可以帮助父母、医疗保健提供者和照顾者改善与儿童的沟通。
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引用次数: 1
Success Stories 成功的故事
Pub Date : 2021-06-29 DOI: 10.47368/EJHC.2021.103
Helena Taubner, Malin Hallén
Aphasia is a language impairment caused by acquired brain injury such as stroke. Public awareness about aphasia is low in Sweden as well as internationally. The media is an important source of information on aphasia, but research on how people with aphasia are portrayed in the media is scarce. Therefore, this study aimed to increase the knowledge about media representations of people living with aphasia, by studying Swedish journalistic newspaper articles. It focused on stories in which people with aphasia were included in the discussion rather than merely being the subject of the discussion. Drawing on framing theory and Frank’s typology of narrative types, a qualitative ethnographic content analysis was conducted. Swedish print media material published between 2007 and 2018 was collected and 84 articles were identified for inclusion in the analysis. The overall finding was that, within Swedish journalistic newspaper articles, living with aphasia is framed as a success story. Themes and sub-themes were identified within each narrative type, and we suggest expanding Frank’s typology with humour narratives and necessity narratives. Although several narrative types were identified in the studied articles, the overarching success story frame was predominant.
失语症是一种由后天性脑损伤如中风引起的语言障碍。瑞典乃至全世界的公众对失语症的认识都很低。媒体是失语症信息的重要来源,但媒体如何描绘失语症患者的研究却很少。因此,本研究旨在通过研究瑞典新闻报纸文章,增加对失语症患者媒体表现的了解。它关注的是失语症患者参与讨论的故事,而不仅仅是讨论的主题。借鉴框架理论和弗兰克的叙事类型类型学,进行了定性的民族志内容分析。收集了2007年至2018年期间发表的瑞典印刷媒体材料,并确定了84篇文章纳入分析。总的发现是,在瑞典新闻报纸的文章中,患有失语症的人被描绘成一个成功的故事。在每种叙事类型中都确定了主题和副主题,我们建议用幽默叙事和必要性叙事来扩展弗兰克的类型学。虽然在研究的文章中发现了几种叙述类型,但总体成功故事框架占主导地位。
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引用次数: 1
A European Journal of Health Communication in the Age of Open Science 开放科学时代的欧洲健康传播杂志
Pub Date : 2020-10-01 DOI: 10.47368/EJHC.2020.001
Thomas N. Friemel, Sarah Geber, Nico Pfiffner, J. V. van Weert, G. de Bruijn, D. Reifegerste
A decade ago, health communication research in Europe was still considered an emerging field. Today, in response to the assiduous efforts of European researchers and scholars, we are proud to present the European Journal of Health Communication (EJHC). As the first journal that is explicitly dedicated to European health communication research, EJHC can be regarded as a further milestone in the establishment of our discipline in Europe. EJHC is based on the principles of open science by making publications openly available without imposing any charges on readers or authors and providing alternatives to the traditional review and publication process. With this editorial, we want to introduce EJHC as a European journal, emphasise the arguments for the set-up of EJHC as a platinum open access journal, illustrate our efforts to improve academic publishing with various innovations, and present the people behind EJHC.
十年前,欧洲的卫生传播研究仍被认为是一个新兴领域。今天,在欧洲研究人员和学者的不懈努力下,我们自豪地推出《欧洲健康传播杂志》(EJHC)。作为第一本明确致力于欧洲健康传播研究的期刊,EJHC可以被视为我们学科在欧洲建立的又一个里程碑。EJHC基于开放科学的原则,使出版物公开可得,不向读者或作者收取任何费用,并为传统的审查和出版过程提供替代方案。通过这篇社论,我们希望介绍EJHC作为一份欧洲期刊,强调将EJHC建立为白金开放获取期刊的论点,说明我们通过各种创新来改善学术出版的努力,并介绍EJHC背后的人。
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引用次数: 0
Health-Related Decision-Making of People with Thyroid Disease 甲状腺疾病患者的健康相关决策
Pub Date : 1900-01-01 DOI: 10.47368/ejhc.2021.202
Judith Schossböck
Social networking sites have become increasingly important for self-diagnosis and obtaining health information, which are particularly relevant in the context of a lack of care. Their structures can further encourage the politicisation of health topics, as they offer a space for the production of crowdsourced knowledge and the amplification of activist content. Hence, it is important to examine how online discourse shapes the decision-making of specific patient groups. This article uses the conceptual lenses of health activism, connective action, and politicised illness identity to investigate health-related decision-making of people with thyroid disease. Drawing on a participatory netnography within activist spaces and 33 in-depth interviews, the study identifies contemporary decision-making paradigms and discusses the role of connective action and politicisation in this context. A typology based on salient strategic themes of decision-making is proposed. The results provide valuable input for researchers of illness identities, as well as practitioners who need to consider different patient types. They contribute to the study of socio-political dimensions of health and an increasingly important discourse that has so far been under-investigated by health communication research.
社交网站对于自我诊断和获取健康信息变得越来越重要,这在缺乏护理的情况下尤其重要。它们的结构可以进一步鼓励卫生议题的政治化,因为它们为生产众包知识和扩大活动家内容提供了空间。因此,研究在线话语如何影响特定患者群体的决策是很重要的。本文使用健康行动主义、关联行动和政治化疾病认同的概念镜头来调查甲状腺疾病患者的健康相关决策。通过参与网络研究和33次深度访谈,该研究确定了当代决策范式,并讨论了在此背景下关联行动和政治化的作用。提出了一种基于决策突出战略主题的类型学。该结果为疾病身份的研究人员以及需要考虑不同患者类型的从业者提供了有价值的输入。它们有助于研究健康的社会政治层面,以及迄今为止卫生传播研究尚未充分调查的日益重要的论述。
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引用次数: 1
The Onset of Habituation Effects 习惯效应的开始
Pub Date : 1900-01-01 DOI: 10.47368/ejhc.2021.303
Viorela Dan, H. Brosius
While extraordinary events like pandemics may prompt an increase in information-seeking behaviour, such trends are unlikely to be sustainable. Over time, issue fatigue/overdose is expected to set in. This study employed generalised additive mixed models (GAMMs) to determine whether attention to TV news corresponded with real-world developments. We sought to predict news use in Germany during the first wave of the COVID-19 pandemic based on disease occurrence next to two well-established predictors of news use (total TV use and day of the week). The association of key events with news use was also assessed. Initially, news use increased with disease occurrence. However, as the pandemic progressed, the linkage between the two variables weakened considerably, suggesting the onset of a habituation effect. Some support emerged for the idea that key events increased news use. Overall, our results are more in line with the explanation provided by agenda-setting theory and various information-seeking models than with the notion of coping through information avoidance. Thus, how the pandemic progresses appears to be a good predictor of news use at the aggregate level, although its predictive power decreases over time.
虽然流行病等特殊事件可能促使人们增加寻求信息的行为,但这种趋势不太可能持续下去。随着时间的推移,问题疲劳/过量预期开始出现。本研究采用广义加性混合模型(GAMMs)来确定对电视新闻的关注是否与现实世界的发展相对应。我们试图根据疾病发生和两个公认的新闻使用预测指标(电视总使用时间和一周中的哪一天)来预测德国在COVID-19大流行第一波期间的新闻使用情况。关键事件与新闻使用的关联也被评估。最初,新闻的使用随着疾病的发生而增加。然而,随着大流行的发展,这两个变量之间的联系大大减弱,表明习惯效应开始出现。一些人支持关键事件增加新闻使用的观点。总体而言,我们的研究结果更符合议程设置理论和各种信息寻求模型的解释,而不是通过信息回避来应对的概念。因此,大流行的进展情况似乎可以很好地预测总体上的新闻使用情况,尽管其预测能力会随着时间的推移而下降。
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引用次数: 4
期刊
European Journal of Health Communication
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