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Patterns of Online Information Seeking and Avoidance about SARS-CoV-2 and COVID-19 SARS-CoV-2和COVID-19在线信息查找与回避模式
Pub Date : 2022-04-21 DOI: 10.47368/ejhc.2022.103
E. Link, Magdalena Rosset, Anna Freytag
Based on the uncertainty management theory considering different information-based coping strategies that are relevant during health crises, the purpose of the present study is to understand how individuals seek and avoid information during the COVID-19 pandemic. We focus on online information seeking and avoidance because of the high share of people searching for information about the pandemic online and the questionable quality of information about the virus available online. Data for this qualitative exploratory study were collected in semi-structured interviews with 21 participants. Our findings revealed four information-seeking patterns that can be located on a continuum between more active, targeted, and less purposeful acquisitions of information, and three avoidance patterns that are distinguished by different motives to avoid certain information. The findings on specific factors involved in individuals’ choices between seeking and avoiding information will help to design better information environments and to identify barriers to the adequate use of information during such crises.
基于不确定性管理理论,考虑与健康危机相关的不同信息应对策略,本研究旨在了解COVID-19大流行期间个体如何寻求和避免信息。我们重点关注在线信息搜索和回避,因为在线搜索大流行信息的人占很大比例,而且网上可获得的有关病毒的信息质量有问题。本定性探索性研究的数据收集于21位参与者的半结构化访谈中。我们的研究结果揭示了四种信息寻求模式,它们可以位于更积极、更有针对性和更无目的性的信息获取之间的连续体,以及三种回避模式,它们由避免某些信息的不同动机区分开来。关于个人在寻求和避免信息之间作出选择所涉及的具体因素的调查结果将有助于设计更好的信息环境,并查明在这种危机期间充分利用信息的障碍。
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引用次数: 3
Addressing Covid-19 Vaccination Conspiracy Theories and Vaccination Intentions 解决Covid-19疫苗接种阴谋论和疫苗接种意图
Pub Date : 2022-04-07 DOI: 10.47368/ejhc.2022.201
Lotte Pummerer, Kevin Winter, K. Sassenberg
Conspiracy theories often involve topics of uncertainty and ambivalence. One of those topics during the Covid-19 pandemic was the vaccination based on the new method using messenger RNA. In a preregistered study with N = 382 participants, we tested an intervention addressing the uncertainty concerning this new vaccination at a time when conspiracy theories about the vaccination method were not yet widely spread. Participants either only read short facts about the new vaccination (no explanation condition), or read these facts in addition to an explanation about the function of messenger RNA vaccines (relevant explanation condition), or they read the facts after the explanation of an alternative issue (irrelevant explanation condition). Results showed that individuals reading the relevant explanations addressing uncertainties surrounding the new vaccination method were less likely to agree with a Covid-19 vaccination conspiracy theory and were more willing to get a Covid-19 vaccination compared to the other conditions. An exploratory analysis showed that agreement with the Covid-19 vaccination conspiracy theory mediated the effect of explanation type on vaccination intentions. Potential implications and limitations are discussed.
阴谋论经常涉及不确定和矛盾的话题。在Covid-19大流行期间,其中一个主题是基于使用信使RNA的新方法的疫苗接种。在一项有N = 382名参与者的预登记研究中,我们测试了一种干预措施,在有关疫苗接种方法的阴谋论尚未广泛传播的时候,解决了这种新疫苗接种的不确定性。参与者要么只阅读有关新疫苗的简短事实(无解释条件),要么在阅读这些事实的同时阅读有关信使RNA疫苗功能的解释(相关解释条件),要么在解释另一个问题之后阅读事实(无关解释条件)。结果显示,与其他条件相比,阅读有关新疫苗接种方法不确定性的相关解释的个人不太可能同意Covid-19疫苗接种阴谋论,并且更愿意接种Covid-19疫苗。探索性分析显示,与Covid-19疫苗接种阴谋论的一致介导了解释类型对疫苗接种意图的影响。讨论了潜在的影响和局限性。
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引用次数: 8
Shared Decision Making in Clinical Practice 临床实践中的共同决策
Pub Date : 2022-02-24 DOI: 10.47368/ejhc.2022.102
J. Noordman, M. Oosterveld-Vlug, J. Rademakers
Shared Decision Making (SDM), currently considered a preferred model for making decisions in healthcare, requires that patients have the knowledge and skills to actively participate in the consultation and decision-making process. Patients with limited health literacy (LHL) often fail to do so. To gain insight into the experiences, needs and support for LHL-patients concerning SDM in clinical practice, five focus groups were held with 26 patients with LHL. A focus group discussion guide was developed based on 4-steps SDM models. Data was coded using thematic content analyses. LHL patients participating in this study had little experience with SDM in practice, but do prefer it. Important barriers for this are healthcare provider-related (involving patients too little in decision-making, using medical jargon), patient-related (feeling insecure to play a role in decision-making, inability to understand their diagnosis or information about treatment options), patient-provider interaction-related (relationship of trust) or system-related (too little consultation time). For SDM to take place more often, a shared responsibility between patients and healthcare providers is required. We recommend expanding the SDM models, by adding a step zero (patients understand their diagnosis) and a fifth step (reviewing the decision), to improve the process for LHL patients.
共享决策(SDM)目前被认为是医疗保健决策的首选模型,它要求患者具备积极参与咨询和决策过程的知识和技能。健康素养有限的患者往往无法做到这一点。为了深入了解LHL患者在临床实践中对SDM的体验、需求和支持,我们对26名LHL患者进行了5个焦点小组的研究。基于四步SDM模型制定了焦点小组讨论指南。使用主题内容分析对数据进行编码。参与本研究的LHL患者在实践中很少使用SDM,但他们更喜欢SDM。重要的障碍是与医疗保健提供者相关(患者参与决策太少,使用医学术语),与患者相关(在决策中发挥作用感到不安全,无法理解他们的诊断或治疗方案信息),与患者-提供者互动相关(信任关系)或与系统相关(咨询时间太少)。要使SDM更频繁地发生,就需要患者和医疗保健提供者共同承担责任。我们建议扩展SDM模型,通过增加第0步(患者理解他们的诊断)和第5步(审查决策)来改进LHL患者的流程。
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引用次数: 1
Informed Decision Making on the Uptake of Evidence-Based Smoking Cessation Assistance by Individuals Motivated to Quit Smoking 有动机戒烟的个人接受循证戒烟援助的知情决策
Pub Date : 2022-01-04 DOI: 10.47368/ejhc.2022.101
T. Gültzow, E. Smit, Raesita Hudales, C. Dirksen, C. Hoving
Evidence-based cessation assistance increases cessation rates. Activating preferences during decision making could improve effectiveness further. Decision aids (DAs) facilitate deciding by taking preferences into account. To develop effective DAs, potential end users' (i.e., individuals motivated to quit) needs and experts' viewpoints should be considered. Therefore, the aim of this needs assessment was: (1) To explore end users' needs and (2) to obtain consensus among smoking cessation counsellors and scientific experts to develop a self-administered DA to support end users in choosing cessation assistance. Data was gathered via two approaches: (1) twenty semi-structured interviews with potential end users and (2) two three-round Delphi studies with 61 counsellors and 44 scientific experts. Interview data and the first Delphi rounds were analysed qualitatively, the other Delphi rounds were analysed quantitatively. Potential end users acquired information in different ways, e.g., via own experiences. Important characteristics to decide between tools varied, however effectiveness and costs were commonly reported. Experts reached consensus on 38 and 40 statements, e.g., tools should be appropriate for users' addiction level. Although some trends emerged, due to the variation among stakeholders, a 'one size fits all'-approach is undesirable. This heterogeneity should be considered, e.g., by enabling users to customise the DA.
基于证据的戒烟援助提高了戒烟率。在决策过程中激活偏好可以进一步提高效率。决策辅助工具(DAs)通过考虑偏好来促进决策。为了开发有效的DAs,应该考虑潜在的最终用户(即被激励戒烟的个人)的需求和专家的观点。因此,这项需求评估的目的是:(1)探索最终使用者的需求;(2)在戒烟顾问和科学专家之间达成共识,制定一项自我管理的行为准则,以支持最终使用者选择戒烟援助。通过两种方法收集数据:(1)对潜在最终用户进行20次半结构化访谈;(2)对61名咨询师和44名科学专家进行两次三轮德尔菲研究。对访谈数据和第一轮德尔菲进行定性分析,对其余德尔菲进行定量分析。潜在的最终用户以不同的方式获取信息,例如通过自己的经验。选择不同工具的重要特征各不相同,但通常报告的是有效性和成本。专家们就38条和40条陈述达成了共识,例如,工具应该适合用户的成瘾程度。尽管由于利益相关者之间的差异,出现了一些趋势,但“一刀切”的方法是不可取的。应该考虑这种异质性,例如,允许用户自定义数据处理。
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引用次数: 0
Beyond Medical Pluralism 超越医学多元化
Pub Date : 2021-12-02 DOI: 10.47368/ejhc.2021.305
Marko Uibu, Katre Koppel
Medical pluralism does not only mean the presence of multiple therapies but also the variety of health discourses and norms. By analysing the rhetoric of active participants in the Estonian health field, we portray the diverse discourses in defining and positioning complementary and alternative medicine (CAM) in relation to biomedicine (BM). On a scale of attitudes, five different positions of CAM and BM emerge. Both ends of the spectrum dominantly represent a system-level view characterized by distinct categories, opposition, and labelling. In between, integrative positions focus more on an individual’s personal needs by combining and “taking the best out of” all available knowledge systems. The presence of these competing discourses poses several challenges for health communication. Meanings offered by CAM-related health approaches are increasingly visible and influential as unlicensed health workers and laypeople contribute more to public communication due to the openness of social media. On the other hand, critics of CAM and proponents of scientific thinking have mobilized to set boundaries to defend the authoritative position of scientific medicine. Our analysis suggests that using system-level categories supports polarization, which could lead people to seek alternative explanations based on their individual experiences, and thus feeding distrust towards medicine and doctors.
医学多元化不仅意味着多种疗法的存在,也意味着健康话语和规范的多样化。通过分析爱沙尼亚卫生领域积极参与者的修辞,我们描绘了与生物医学(BM)相关的补充和替代医学(CAM)的定义和定位的各种话语。在态度量表上,CAM和BM出现了五种不同的立场。光谱的两端主要代表了一种系统级的观点,其特征是不同的类别、反对意见和标签。在两者之间,综合职位通过结合和“充分利用”所有可用的知识系统,更多地关注个人的个人需求。这些相互竞争的话语的存在给卫生传播带来了一些挑战。由于社交媒体的开放性,无执照的卫生工作者和非专业人员为公共传播做出了更多贡献,cam相关卫生方法提供的意义越来越明显和有影响力。另一方面,CAM的批评者和科学思维的支持者已经动员起来,划定界限,捍卫科学医学的权威地位。我们的分析表明,使用系统级别的分类支持两极分化,这可能导致人们根据个人经验寻求替代解释,从而助长对医学和医生的不信任。
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引用次数: 0
How do Hematologists Communicate with Patients Suffering from Chronic Lymphocytic Leukemia? 血液科医师如何与慢性淋巴细胞白血病患者沟通?
Pub Date : 2021-12-02 DOI: 10.47368/ejhc.2021.306
C. Karamanidou, A. Xochelli, P. Ghia, K. Stamatopoulos
Chronic Lymphocytic Leukemia (CLL) is a chronic hematologic malignancy with great heterogeneity and unpredictable clinical course. The European Research Initiative on CLL (ERIC), in the context of its CLL Patient Empowerment Program, conducted a study exploring hematologists’ experience of communication. Thirty semi-structured interviews were conducted with hematologists caring for CLL patients in Greece. Inductive thematic qualitative analysis was employed revealing 3 major themes: (i) disclosure of information encompassing ‘negotiating the level of disclosure’, ‘the power of cultural perceptions’, ‘fear of being held culpable’, ‘fear of patients’ and own emotions’; (ii) medical-decision making which described ‘balancing autonomy and beneficence’, ‘considering patients’ preferences’ and ‘adhering to practice guidelines’; (iii) emotional support which included ‘assessment of emotional distress’, ‘identifying and regulating patients’ emotions’ and ‘maintaining a supportive relationship’. In conclusion, physicians are aware of the importance of communication and its potential impact on CLL patients. They use a wide range of communication strategies which serve the diversity of communication goals they must achieve. However, the majority have not received formal education on patient interactions. Present findings highlight the need for specific communication protocols, guidance and training that will empower physicians to overcome challenges, inherent to the nature of CLL.
慢性淋巴细胞白血病(CLL)是一种慢性血液系统恶性肿瘤,具有很大的异质性和不可预测的临床病程。欧洲慢性淋巴细胞白血病研究计划(ERIC)在其慢性淋巴细胞白血病患者授权计划的背景下,进行了一项研究,探索血液学家的沟通经验。对希腊治疗慢性淋巴细胞白血病患者的血液学家进行了30次半结构化访谈。采用归纳主题定性分析揭示了3个主要主题:(i)信息披露包括“协商披露水平”,“文化观念的力量”,“对被判有罪的恐惧”,“对患者的恐惧”和自己的情绪;(ii)医疗决策,其中描述了“平衡自主和慈善”,“考虑病人的喜好”和“坚持实践指南”;(iii)情感支持,包括“评估情绪困扰”、“识别和调节患者情绪”和“维持支持关系”。总之,医生意识到沟通的重要性及其对慢性淋巴细胞白血病患者的潜在影响。他们使用广泛的传播策略,服务于他们必须实现的传播目标的多样性。然而,大多数医生都没有接受过与病人互动的正规教育。目前的研究结果强调,需要制定具体的沟通协议、指导和培训,以使医生能够克服CLL固有的挑战。
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引用次数: 0
Trading Data for Health 健康贸易数据
Pub Date : 2021-11-03 DOI: 10.47368/ejhc.2021.304
Sven Joeckel, Jakob Henke, Leyla Dogruel
mHealth apps are growing in popularity among smartphone users. Such apps often contain social features that enable users to compare their behavior with others but to function, mHealth apps require users to share health information which is considered a threat to individuals’ privacy. Building on social comparison theory and research on privacy decision-making, we investigate the effects of users’ social comparison orientation and privacy attitudes as well as the potential mediating effect of health information disclosure on users’ intention to use a dietary app. Relying on a PLS-based structural-equation model in a sample of N = 528 participants, our study supports claims of a positive effect of social comparison orientation on intention to use a mHealth app. Further, the negative effect of privacy attitude and the positive mediation of information disclosure were supported as well. The study also demonstrated that findings were stable when the context of information disclosure is changed.
移动健康应用程序在智能手机用户中越来越受欢迎。此类应用程序通常包含社交功能,使用户能够将自己的行为与其他人进行比较,但要发挥作用,移动健康应用程序需要用户分享健康信息,这被认为是对个人隐私的威胁。在社会比较理论和隐私决策研究的基础上,我们调查了用户的社会比较取向和隐私态度的影响,以及健康信息披露对用户使用饮食应用程序意愿的潜在中介作用。在N = 528名参与者的样本中,我们的研究依托基于pls的结构方程模型,支持了社会比较取向对使用移动健康应用程序意愿的积极影响的主张。隐私态度的负向效应和信息披露的正向中介效应也得到了支持。研究还表明,当信息披露的背景发生变化时,调查结果是稳定的。
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引用次数: 0
Social Aspects of Health Communication – Towards a Research Agenda 健康传播的社会方面-迈向研究议程
Pub Date : 2021-10-27 DOI: 10.47368/ejhc.2021.200
Sarah Geber, Tobias Frey, Thomas N. Friemel
Health and health-related behaviours are embedded in social contexts in various ways which comprise both risks and opportunities for health communication. We propose a research agenda on social aspects of health communication and introduce the articles of the present special issue. Owing to the complexity of individuals’ social contexts, the research agenda addresses questions lying at the individual, interpersonal, and societal levels. The issue’s articles cover different and highly relevant questions of this research agenda, ranging from stigmatisation to impression management to collective action and from experimental designs to qualitative interviews and netnography. In sum, the articles demonstrate not only the diversity but also the relevance of academic research on social aspects of health communication. We expect that this topic will continue gaining importance, given the ongoing digitalisation of the media environment and the increasing interconnectedness of producers and users, doctors and patients, and experts and laypersons.
健康和与健康有关的行为以各种方式嵌入社会环境,既构成健康传播的风险,也构成健康传播的机会。我们提出了健康传播的社会层面的研究议程,并介绍了本期特刊的文章。由于个人社会背景的复杂性,研究议程涉及个人、人际和社会层面的问题。这期的文章涵盖了这一研究议程的不同和高度相关的问题,从污名化到印象管理到集体行动,从实验设计到定性访谈和网络摄影。总之,这些文章不仅表明了健康传播社会方面的学术研究的多样性,而且表明了其相关性。鉴于媒体环境的持续数字化,以及生产者和使用者、医生和患者、专家和外行之间日益紧密的联系,我们预计这一主题将继续变得越来越重要。
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引用次数: 0
The Influence of Social Support and Characteristics of the Stigmatisers on Stigmatising Attitudes Towards People With Mental Illness 社会支持及污名化者特征对精神疾病患者污名化态度的影响
Pub Date : 2021-10-27 DOI: 10.47368/ejhc.2021.204
Michélle Möhring, Natascha Katharina Krick, Anika Ditze
The stigmatisation of people with mental illness has severe negative consequences for affected individuals. As research in the context of exemplification theory (Zillmann & Brosius, 2000) shows, single-case descriptions of affected individuals (i.e., exemplars) have the potential to either strengthen or reduce stigmatising attitudes towards people with mental illness, in general. We examine the role of depicting social support for exemplars with mental illness (i.e., depression), exemplars’ age and sex as well as characteristics of the potential stigmatisers (e.g., sex, relationship status) in generalised stigma-related attitudes towards people with mental illness. A 2 × 2 × 2 online survey experiment with 854 participants was conducted. Univariate ANOVAs yielded main effects and complex interaction patterns of participants’ sex and relationship status, as well as combinations of exemplar characteristics. Overall, our results confirm the influence that single-case descriptions can have upon generalised stigma-related attitudes towards people with mental illness. They underline the potential of depicting social support for exemplars with mental illness as well as the consideration of potential stigmatisers’ sex and relationship status for (de-)stigmatisation and give starting points for future research in the field of health and anti-stigma-communication.
对精神疾病患者的污名化对受影响的个人产生了严重的负面影响。正如例证理论背景下的研究(Zillmann & Brosius, 2000)所表明的那样,一般来说,对受影响个体(即范例)的单一案例描述有可能加强或减少对精神疾病患者的污名化态度。我们研究了对精神疾病(如抑郁症)患者的社会支持、年龄和性别以及潜在污名化者的特征(如性别、关系状况)在对精神疾病患者的普遍污名化相关态度中的作用。采用2 × 2 × 2在线调查实验,共854人参与。单变量方差分析得到了参与者性别和关系状态的主效应和复杂的交互模式,以及范例特征的组合。总的来说,我们的研究结果证实了单个案例的描述可能对人们对精神疾病患者的普遍污名相关态度产生影响。它们强调了描绘对精神疾病模范的社会支持的潜力,以及考虑潜在的污名化者的性别和关系状况以(消除)污名化,并为健康和反污名化交流领域的未来研究提供了起点。
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引用次数: 2
Attitudes towards science during the COVID-19 pandemic: A psychological network approach COVID-19大流行期间对科学的态度:心理网络方法
Pub Date : 2021-10-13 DOI: 10.31219/osf.io/zrwy9
Tobias Wingen, Óscar Lecuona, S. Dohle
A better understanding of the public attitude towards science could be crucial to tackle the spread of mis- and disinformation related to the COVID-19 pandemic and beyond. We here contribute to this understanding by conceptualizing and analyzing the attitude toward science as a psychological network. For this analysis, we utilized data from a German probability sample (N = 1,009), the “Science Barometer”, collected during the first wave of the COVID-19 pandemic. Overall, our network analysis revealed that especially the perceived value of science for curbing the pandemic is central to the attitude towards science. Beliefs about this value are related to trust in science and trust in scientific information and to positive and negative evaluations of scientific controversy and complexity. Further, valuing common sense over science was related to seeking less scientific information on official websites, suggesting that this belief, in particular, may drive mis- and disinformation and could be a promising target for interventions. Finally, we found no evidence that seeking scientific information on social media had detrimental consequences for the attitude towards science. Implications for health communication and science communication, limitations, and future directions are discussed.
更好地了解公众对科学的态度,对于解决与COVID-19大流行及其他方面有关的错误和虚假信息的传播至关重要。我们在此通过将对待科学的态度概念化和分析为一个心理网络来促进这种理解。在这项分析中,我们使用了德国概率样本(N = 1009)的数据,即“科学晴雨表”,该数据是在COVID-19大流行第一波期间收集的。总的来说,我们的网络分析显示,特别是对遏制大流行的科学价值的感知是对科学态度的核心。对这一价值的信念与对科学的信任和对科学信息的信任以及对科学争议和复杂性的积极和消极评价有关。此外,重视常识而不是科学与在官方网站上寻求较少的科学信息有关,这表明这种信念尤其可能导致错误和虚假信息,并且可能成为干预的一个有希望的目标。最后,我们没有发现证据表明在社交媒体上寻求科学信息会对科学态度产生不利影响。讨论了健康传播和科学传播的意义、局限性和未来发展方向。
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引用次数: 0
期刊
European Journal of Health Communication
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