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Dying is never beautiful, but there are beautiful moments: qualitative interviews with those affected on the subject of ‘good dying’ 死亡从来不是美丽的,但也有美丽的时刻:就 "美好的死亡 "这一主题对受影响者进行定性访谈
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-10-02 DOI: 10.1080/13576275.2022.2034773
K. Heimerl, P. Schuchter, Barbara Egger, Alexander Lang, E. Frankus, Sonja Prieth, Lukas Kaelin, Stefan Dinges, K. Wegleitner, E. Reitinger
ABSTRACT The concept of the good death has been widely considered. However, the perspectives of those affected have not received sufficient attention. In our empirical study, we conducted interviews with 32 people who were confronted with dying; these people were either terminally ill, elderly or else were bereaved carers. The findings show that for this group of people, dying is not just a physical process, but also a psychological, social and spiritual one. From the perspective of those affected, dying is never beautiful, in particular because of the associated pain and suffering. At the same time, people confronted with dying do experience beautiful moments. In the stories they tell of these beautiful moments, it is a beauty emanating from a sense of elevated emotion – of moral emotion – rather than any aesthetic beauty. We conclude that good care of the dying enables beautiful moments and creates reflective spaces for those affected to express what beauty means to them. We show that the public discourse differs significantly from the perspective of those affected and more efforts need to be made to include their voices.
摘要 "美好死亡 "的概念已被广泛考虑。然而,受影响者的观点却没有得到足够的重视。在我们的实证研究中,我们对 32 位面临死亡的人进行了访谈,这些人要么身患绝症,要么年事已高,要么是失去亲人的照顾者。研究结果表明,对这些人来说,死亡不仅是一个生理过程,也是一个心理、社会和精神过程。从受影响者的角度来看,死亡从来都不是一件美好的事情,尤其是因为与之相关的痛苦和折磨。与此同时,面临死亡的人也会经历美丽的时刻。在他们讲述的这些美丽时刻的故事中,这种美来自于一种高尚的情感--道德情感--而不是任何美学上的美。我们的结论是,良好的临终关怀能够促成美丽的时刻,并为受影响者创造反思的空间,让他们表达美对他们的意义。我们表明,公共讨论与受影响者的观点有很大不同,因此需要做出更多努力,让他们发出自己的声音。
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引用次数: 0
Burning the dead: Hindu nationhood and the global construction of Indian tradition Burning the dead: Hindu nationhood and the global construction of Indian tradition , by David Arnold, California, University of California Press, 2021, 268 pp., price not listed (hardback), ISBN: 978-0-520-37934-3 《焚烧死者:印度建国与印度传统的全球建构》,大卫·阿诺德著,加州,加州大学出版社,2021年,268页,未列出价格(精装本),ISBN: 978-0-520-37934-3
0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-09-28 DOI: 10.1080/13576275.2023.2264206
Vishwambhar Nath Prajapati
"Burning the dead: Hindu nationhood and the global construction of Indian tradition." Mortality, ahead-of-print(ahead-of-print), p. 1
“焚烧死者:印度教国家和印度传统的全球建构。”死亡率,提前印刷,第1页
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引用次数: 0
An analysis of student bucket lists in death and dying courses: data from three U.S. Universities 死亡和临终课程学生遗愿清单分析:来自三所美国大学的数据
0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-09-28 DOI: 10.1080/13576275.2023.2263387
Lacey J. Ritter, Anisah Bagasra, Sharon Richards
ABSTRACTThis article describes and analyzes the use of a bucket list assignment in three undergraduate university Death and Dying courses as a way to teach students about death, while also learning about this generation’s aspirations and anxieties related to dying. The Death and Dying professors at three different universities, each using a similar assignment, require students to create their own bucket lists, or a list of things they want to complete before they die. Analyses of 146 lists, containing a total of 2,210 list items, revealed similarities across these different student populations, primarily in their focus on travel, spending time with loved ones, and an interesting lack of concern for end-of-life preparations. The results of this study have implications for death education and health care providers, supporting previous scholarship on death anxiety and death transcendence.KEYWORDS: College teachingdeath and dyingbucket listsend of lifedeath anxiety Disclosure statementNo potential conflict of interest was reported by the author(s).Additional informationFundingThe author(s) declared no financial support for the research, authorship, and/or publication of this article.Notes on contributorsLacey J. RitterLacey J. Ritter, Ph.D., is an Assistant Professor of Sociology and Department Chair of Health at Mount Mercy University where she teaches various courses within sociology and public health, including The Final Journey: Sociology of Death & Dying. Dr. Ritter received the Faculty Member of the Year Award at Mount Mercy University in 2021 and enjoys working with students as an advisor, internship coordinator, and professor. Her research specialties include sexuality and health, with a particular interest on older adults' health outcomes, though she enjoys conducting social psychological research on a variety of topic areas. Ritter received her Ph.D. from Florida State University in 2017. Her recent publications including the book Sexual Deviance in Health and Aging: Uncovering Later Life Intimacy, edited book “The Changing Faces of Higher Education: From Boomers to Millennials,” and various journal articles.Anisah BagasraAnisah Bagasra, Ph.D. is an Associate Professor in the Department of Psychological Science at Kennesaw State University who specializes in behavioral health research in the Muslim American and African American faith communities. Her experience building traditional and online undergraduate curriculum led to the creation of a Psychology major at Claflin University, where she also spearheaded the launch of online degree programs prior to joining KSU. She teaches a wide range of psychology courses and mentors students engaged in undergraduate research with a focus on culturally competent research in minority communities. Specific research interests include Islamic Psychology, acculturation, teaching Death & Dying, measuring religiosity, and perceptions of mental illness. Her recent publications include three edited volumes, “W
摘要本文描述并分析了在三所本科大学的《死亡与临终》课程中使用遗愿清单作业的方法,以此来教授学生关于死亡的知识,同时也了解了这一代人对死亡的渴望和焦虑。来自三所不同大学的“死亡与临终”教授们,每个人都有一个类似的任务,要求学生们列出自己的“遗愿清单”,或者列出他们在死前想完成的事情。对146份清单的分析,总共包含2210个清单项目,揭示了这些不同学生群体的相似之处,主要是他们对旅行的关注,与亲人共度时光,以及对临终准备的有趣缺乏关注。本研究结果对死亡教育和卫生保健提供者具有启示意义,支持先前关于死亡焦虑和死亡超越的学术研究。关键词:大学教学;死亡与临终遗愿清单;生死焦虑;披露声明;作者声明对本文的研究、作者身份和/或出版没有任何经济支持。作者简介莱西·j·里特(lacey J. Ritter)博士,梅西山大学(Mount Mercy University)社会学助理教授和卫生系系主任,教授社会学和公共卫生方面的各种课程,包括《最后的旅程:死亡与临终社会学》。Ritter博士于2021年获得Mount Mercy University的年度教师奖,并喜欢与学生一起担任顾问,实习协调员和教授。她的研究专长包括性与健康,对老年人的健康结果特别感兴趣,尽管她喜欢在各种主题领域进行社会心理学研究。里特于2017年获得佛罗里达州立大学博士学位。她最近的出版物包括《健康和衰老中的性偏差:揭示晚年生活的亲密关系》,编辑的《高等教育的变化面孔:从婴儿潮一代到千禧一代》,以及各种期刊文章。Anisah Bagasra博士是肯尼索州立大学心理科学系副教授,专门从事美国穆斯林和非裔美国人信仰社区的行为健康研究。她在建立传统和在线本科课程方面的经验促使克拉夫林大学(Claflin University)开设了心理学专业,在加入KSU之前,她还率先推出了在线学位课程。她教授广泛的心理学课程,并指导从事本科研究的学生,重点是少数民族社区的文化能力研究。具体的研究兴趣包括伊斯兰心理学,文化适应,教学死亡与死亡,测量宗教虔诚,以及对精神疾病的看法。她最近出版了三本书,分别是《与帮助行业的穆斯林客户合作》、《高等教育的变化:从婴儿潮一代到千禧一代》和《HBCUs在21世纪的影响》。她还为心理学家、冲突解决和基于社区的研究举办宗教和精神能力领域的CE讲习班。莎朗RichardsDr。Sharon Richards, Claflin大学心理学副教授,拥有教育心理学博士学位、I/O心理学硕士学位和心理学学士学位。在克拉弗林的五年多里,她作为学术顾问、各种心理学课程的老师、委员会成员和求职委员会的负责人做出了重大贡献。她的教学组合包括发展心理学,成人发展,认知,人格理论,I/O心理学等课程。理查兹博士也是一位积极的导师,监督本科生的研究和指导荣誉论文委员会。她对学生和克拉夫林大学的奉献体现在她不同的角色和对学术卓越的承诺上。
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引用次数: 0
Life stories interrupted: an exploration of United States obituaries during the COVID-19 pandemic 生活故事中断:探索美国在2019冠状病毒病大流行期间的讣告
0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-09-26 DOI: 10.1080/13576275.2023.2263381
Anna F. Carmon, Matthew C. Rothrock
ABSTRACTThe COVID-19 global pandemic drastically changed the lives of so many, including creating a sense of mass bereavement in the United States because of the million plus lives lost. As obituaries provide public documentation of personal legacies as well as serve to create a generational memory, this study sought to determine how obituaries, published in the United States during a public health crisis with excess deaths, discuss living and dying. We analysed 82 obituaries published in the United States during the COVID-19 pandemic to determine their functions during this time. These U.S. obituaries documented how the COVID-19 pandemic interrupted the life stories of so many. Several key themes emerged in the obituaries – cause of death, COVID-19 changing lives, resilience/positivity, political statements, and thanking healthcare workers. These COVID-19 obituaries shared many of the known functions of obituaries, but they also served as public service death announcements.KEYWORDS: COVID-19deathobituariespublic service death announcementbereavement Disclosure statementNo potential conflict of interest was reported by the author(s).Notes1. Excess deaths include not only confirmed COVID-19 deaths, but also COVID-19 deaths that were not correctly diagnosed and reported as well as deaths from other causes attributable to overall pandemic conditions (Giattino et al., Citation2022).Additional informationNotes on contributorsAnna F. CarmonAnna F. Carmon is an associate professor of Communication Studies in the Division of Liberal Arts at Indiana University-Columbus. She received her Ph.D. from North Dakota State University. Her research interests include death communication, obituaries as rhetorical messages, and family communication.Matthew C. RothrockMatthew C. Rothrock is An Educational Resources Leader for the Office of Student Affairs at Indiana University-Columbus. He received his M.A. in Applied Communication from Indiana University-Indianapolis. His research interests include obituaries as rhetorical messages, and science communication, in particular the communication of risk in weather contexts, and communication as it relates to the United States weather enterprise.
2019冠状病毒病(COVID-19)全球大流行彻底改变了许多人的生活,包括在美国造成了一种大规模的丧亲之痛,因为数百万人失去了生命。由于讣告提供了个人遗产的公共文件,并有助于创造一代人的记忆,本研究试图确定,在死亡人数过多的公共卫生危机期间,美国发表的讣告是如何讨论生与死的。我们分析了在COVID-19大流行期间在美国发布的82份讣告,以确定它们在此期间的功能。这些美国讣告记录了COVID-19大流行如何打断了许多人的生活故事。讣告中出现了几个关键主题——死因、COVID-19改变生活、复原力/积极性、政治声明和感谢医护人员。这些COVID-19讣告具有许多已知的讣告功能,但它们也具有公共服务死亡公告的功能。关键词:2019冠状病毒病死率公职人员死亡公告丧亲声明作者未报告潜在利益冲突。超额死亡不仅包括确诊的COVID-19死亡,还包括未正确诊断和报告的COVID-19死亡,以及可归因于总体大流行状况的其他原因造成的死亡(Giattino等人,Citation2022)。作者简介:安娜·f·卡蒙安娜·f·卡蒙是印第安纳大学哥伦布分校文科传播研究专业的副教授。她在北达科他州立大学获得博士学位。她的研究兴趣包括死亡沟通、作为修辞信息的讣告和家庭沟通。Matthew C. Rothrock是印第安纳大学哥伦布分校学生事务办公室的教育资源负责人。他在印第安纳大学印第安纳波利斯分校获得应用通信硕士学位。他的研究兴趣包括作为修辞信息的讣告,以及科学传播,特别是天气环境中风险的传播,以及与美国气象企业相关的传播。
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引用次数: 0
Refused gifts: understanding the over and above work of Medical School Anatomy Unit staff when donor bodies cannot be accepted 拒绝捐赠:理解医学院解剖单位工作人员在不能接受捐赠尸体时的以上工作
0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-09-21 DOI: 10.1080/13576275.2023.2248024
Z. N. Murphy, J. Cooper, P. J. Bazira, T. Green, J. Seymour
In England, Wales, and Northern Ireland, people can choose to donate their bodies post-mortem to Medical School Anatomy Units. The body donation (BD) process is facilitated by anatomy unit staff (AUS). However, little is known about the extent and nature of AUS work with families, including when a body cannot be accepted. To address this gap, this paper draws on data from an ethnographic study, including a survey of 15 anatomy units (AUs) in England and Northern Ireland, a case study of one AU, 20 semi-structured interviews with 31 AUS and document analysis. We reveal the number of bodies (878) that are refused across AUs and examine how AUS deal with refusals. We argue that activities around refusals constitutes ‘over and above’ work for AUS, as it goes beyond their expected role. We suggest that this is done out of a duty of care, and is related to the discomfort of refusing the BD gift. Attention is given to the ‘over and above’ work of the AUS which allows for an exploration of gift relationships and emotion management in a new arena. We conclude with recommendations to address the lack of recognition and training around AUS refusal work.
在英格兰、威尔士和北爱尔兰,人们可以选择在死后将尸体捐赠给医学院的解剖部门。遗体捐赠(BD)过程由解剖组职员协助。然而,我们对澳大利亚家庭工作的范围和性质知之甚少,包括当一个身体不能被接受时。为了解决这一差距,本文利用了一项民族志研究的数据,包括对英格兰和北爱尔兰15个解剖学单位(AU)的调查,对一个AU的案例研究,对31个AU的20次半结构化访谈和文献分析。我们揭示了澳大利亚被拒绝的尸体数量(878),并研究了澳大利亚如何处理拒绝。我们认为,围绕拒绝的活动构成了AUS的“超出”工作,因为它超出了他们的预期角色。我们认为这样做是出于注意义务,并且与拒绝BD礼物的不适有关。重点放在AUS的“超越”工作上,它允许在一个新的领域探索礼物关系和情感管理。最后,我们提出了一些建议,以解决AUS拒绝工作中缺乏认可和培训的问题。
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引用次数: 0
We find the front everywhere: grievability and the proximity of social and anonymous death in Doris Salcedo’s “Plegaria Muda” 在多丽丝·萨尔塞多的《Plegaria Muda》中,我们到处都能找到这种前线:悲伤和接近社会和匿名死亡
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-09-07 DOI: 10.1080/13576275.2023.2225046
Jamie DiSarno
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引用次数: 0
The king is dead, long live the king! Majesty, mourning and modernity in Edwardian Britain 国王死了,国王万岁!爱德华时代英国的女王陛下、哀悼与现代性
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-08-30 DOI: 10.1080/13576275.2023.2252350
Terri Sabatos
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引用次数: 0
Three roads back: how Emerson, Thoreau, and William James responded to the greatest losses of their lives 往回走三条路:爱默生、梭罗和威廉·詹姆斯如何应对他们生命中最大的损失
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-08-30 DOI: 10.1080/13576275.2023.2252359
Mathew A. Foust
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引用次数: 1
Foreign bodies: a conversation between Yasmin Gunaratnam and Ali Eisa 异物:Yasmin Gunaratnam与Ali Eisa的对话
0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-08-30 DOI: 10.1080/13576275.2023.2242156
Yasmin Gunaratnam, Ali Eisa
Click to increase image sizeClick to decrease image size This article is part of the following collections: Mortality Interviews AcknowledgmentsThank you to Bethan Michael-Fox for her care and patience throughout.Disclosure statementNo potential conflict of interest was reported by the author(s).Notes1. Autograph ABP (Association of Black Photographers) was established in 1988. Its mission is to “to champion the work of artists who use photography and film to highlight questions of race, representation, human rights and social justice” https://autograph.org.uk/about-us/mission.2. Lloyd Corporation is a collaboration between artists Ali Eisa and Sebastian Lloyd Rees. Their practice uses sculpture, installation, performance and text, often taking inspiration from informal and local economies. https://jerwoodarts.org/artist/ali-eisa/.3. Alongside neurodiverse artists and makers, the Project Art Works collective includes paid and unpaid caregivers who help each other to navigate through the complexities of health and social care systems. https://projectartworks.org/the-organisation/.4. Caribbean Social Forum https://caribbeansocialfor.wixsite.com/caribbeansocialforum.Additional informationNotes on contributorsYasmin GunaratnamYasmin Gunaratnam is a sociologist interested in how different types of inequality and injustice are produced, lived with and remade and how these processes create new forms of local and global inclusion and dispossession. Before she came to Kings College (London) in September 2021, she taught in the Sociology department at Goldsmiths and was co-director of the Centre for Feminist Research. Yasmin tweets @YasminGunAli EisaAli Eisa is a contemporary artist, educator and public programmer and lecturer in Fine Art at Goldsmiths (London). He is the Learning and Participation Manager at Autograph, where he works with schools, young people and marginalised groups. His practice spans over 10 years of collaborative and participatory work utilising sculpture, installation, performance, video and photography. Ali tweets @AliEisa93193127
点击放大图片点击缩小图片这篇文章是以下集合的一部分:死亡率访谈致谢感谢Bethan Michael-Fox在整个过程中的关心和耐心。披露声明作者未报告潜在的利益冲突。Autograph ABP(黑人摄影师协会)成立于1988年。它的使命是“支持那些用摄影和电影来突出种族、代表性、人权和社会正义问题的艺术家的作品”https://autograph.org.uk/about-us/mission.2。Lloyd Corporation是艺术家Ali Eisa和Sebastian Lloyd Rees的合作公司。他们的实践使用雕塑、装置、表演和文本,通常从非正式和当地经济中获得灵感。https://jerwoodarts.org/artist/ali-eisa/.3。除了神经多样性的艺术家和制造者,项目艺术作品集体还包括有偿和无偿的护理人员,他们相互帮助,以应对复杂的健康和社会护理系统。https://projectartworks.org/the-organisation/.4。加勒比社会论坛https://caribbeansocialfor.wixsite.com/caribbeansocialforum.Additional资讯投稿人说明yasmin Gunaratnam是一位社会学家,对不同类型的不平等与不公正如何产生、如何共存、如何再造,以及这些过程如何创造新形式的地方与全球包容与剥夺感兴趣。在2021年9月来到国王学院(伦敦)之前,她在金匠学院社会学系任教,并担任女权主义研究中心的联合主任。ali Eisa是一位当代艺术家、教育家、公共程序员和金匠学院(伦敦)美术讲师。他是Autograph的学习和参与经理,在那里他与学校、年轻人和边缘化群体合作。他的实践跨越了10多年,运用雕塑、装置、表演、录像和摄影进行协作和参与式的工作。阿里发推特@AliEisa93193127
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引用次数: 0
Grief: a philosophical guide 悲伤:哲学指南
IF 0.8 0 HUMANITIES, MULTIDISCIPLINARY Pub Date : 2023-08-30 DOI: 10.1080/13576275.2023.2252352
Katharina Wegerer
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引用次数: 0
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