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Fourth International Congress of Person Centered Medicine; Programme outline 第四届国际以人为本医学大会;项目概述
Pub Date : 2016-07-13 DOI: 10.5750/IJPCM.V6I2.582
J. Mezzich
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引用次数: 0
What is Person Centered Medicine: Conceptual Review with Focus on George Engel’s Perspectives 什么是以人为本的医学:以恩格尔的观点为中心的概念回顾
Pub Date : 2016-07-13 DOI: 10.5750/IJPCM.V6I2.575
R. Ruiz-Moral
Background: “Person centered medicine” has recently emerged as a new alternative to “patient centered medicine” with the aim of representing a different focus for clinical practice. However, it is still necessary to clarify its conceptual bases and its identifying features. Objectives : To review the conceptual bases of Person Centered Medicine and highlight its main features. Methods: A non systematic review of the literature on the person and patient centered medicine field and particularly the works that George Engel published in 1977 and 1980 in which this author proposed the biopsychosocial (BPS) model as an alternative to the biomedical one. Results: The a nalysis led to identify one element, a “life dimension” that differs from the biopsychosociocultural determinants that are typical of the BPS and that until now has not been well understood.  The “life dimension” takes shape in the interpretation that the person makes of a series of concrete experiences and their consequences, “problems of living”, that are liable to be considered “medical problems”. This is what leads the person to adopt the condition of being a patient (patienthood). Consequently, any medical problem is above all a problem of living or, in other words, a manifestation of a “life or existential dimension” that is inherent to the person (personhood). This perspective requires the physician to consider this dimension along with the model's other components in any clinical interaction, and it is the basis for the use of a hermeneutic or interpretative methodology that has communication and dialogue as its main tools. Conclusions: The term “person centered medicine” reflects the clinical focus that takes into account the “life dimension” of the person. Further research is needed to elucidate the meaning of this dimension as a basis to clarify both the concept of this clinical approach and its main practical elements.
背景:“以人为本的医学”最近作为“以患者为中心的医学”的一种新的替代方案出现,其目的是代表临床实践的不同焦点。然而,它的概念基础和识别特征仍有必要澄清。目的:回顾以人为本医学的概念基础,突出其主要特点。方法:对以人为本和以病人为中心的医学领域的文献进行非系统回顾,特别是乔治·恩格尔(George Engel)于1977年和1980年发表的作品,其中作者提出了生物心理社会(BPS)模型作为生物医学模型的替代方案。结果:分析确定了一个因素,一个不同于生物心理社会文化决定因素的“生活维度”,这是典型的BPS,直到现在还没有得到很好的理解。"生命层面"在个人对一系列具体经历及其后果的解释中形成,即"生活问题",这些问题很可能被视为"医疗问题"。这就是导致一个人接受作为一个病人的条件(耐心)的原因。因此,任何医疗问题首先是生活问题,换句话说,是人(人格)固有的"生命或存在层面"的表现。这一观点要求医生在任何临床互动中考虑这一维度以及模型的其他组成部分,这是使用以沟通和对话为主要工具的解释学或解释性方法的基础。结论:“以人为本的医学”一词反映了考虑人的“生命维度”的临床重点。需要进一步的研究来阐明这一维度的意义,作为阐明这一临床方法的概念及其主要实践要素的基础。
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引用次数: 4
Summary Report of the Ninth Geneva Conference on Person Centered Medicine 第九届日内瓦以人为本的医学会议摘要报告
Pub Date : 2016-07-13 DOI: 10.5750/IJPCM.V6I2.581
S. Dulmen, J. Mezzich
For the 9th time, the International College for Person-Centered Medicine (ICPCM) held its annual conference on Person-Centered Medicine in Geneva, Switzerland. Like previous years, the conference was formally co-sponsored by the World Health Organization, the World Medical Association, the World Organization of Family Doctors, the International Council of Nurses, the International Alliance of Patients' Organizations and thirty other global health professional and academic institutions. The organizing committee was composed of the ICPCM Board members, Ruth Wilson as program director and Islene Araujo de Carvalho, Jim Campbell and Nuria Toro Polanco from WHO. Material support  was provided by the World Medical Association, the World Health Organization, the Geneva University Hospital, and the Paul Tournier Association.
国际以人为中心医学学院(ICPCM)第9次在瑞士日内瓦举行了以人为中心医学年会。与往年一样,这次会议由世界卫生组织、世界医学协会、世界家庭医生组织、国际护士理事会、国际患者组织联盟和其他30个全球卫生专业和学术机构正式共同主办。组织委员会由ICPCM董事会成员、Ruth Wilson作为规划主任以及世卫组织的Islene Araujo de Carvalho、Jim Campbell和Nuria Toro Polanco组成。世界医学协会、世界卫生组织、日内瓦大学医院和保罗·图尼耶协会提供了物质支助。
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引用次数: 0
Challenges and Opportunities for Person Centered Integrated Care Through the Life Course 生命历程中以人为本的综合护理的挑战与机遇
Pub Date : 2016-07-13 DOI: 10.5750/IJPCM.V6I2.576
C. Wilson, J. Appleyard, J. Mezzich, M. Abou-Saleh, C. Gutkin, C. Weel, T. Epperly
Objective: To examine the opportunities and challenges in achieving person centered integrated care through the life course. Methods: Critical literature review and evidence based analysis of person-centered integrated care through the life course, combined with expert consultation. The World Health Organization’s “Global Framework on Integrated People-Centred Health Services” is used as a basis. Results: Using the approach of the life cycle allows connection of persons’ current health status to their sociocultural, biological, and psychological context. Person centered medicine has as its central precept the relationship between the health professional and person seeking care. This principle is the link to primary health care, which is built on a lasting relationship with individuals and populations in their social context. The patient’s medical home provides one promising model of how health services can be organized to support the full achievement of person centered integrated care. Re-orientation of the health professional education towards generalism, and the development of metrics for measurement of person centered integrated care are required. In 2016 the global crisis in refugees is a particularly prominent challenge for the delivery of person centered integrated care . Conclusion: Universal health coverage can provide equitable access to person centered integrated care throughout the life course. Specialized expertise and skills are important for caring for persons with specific conditions at particular times in the life course. When care is well-integrated, transitions of care are smooth and the critical paradigm of person-centeredness is retained.
目的:探讨在生命历程中实现以人为本的综合护理的机遇与挑战。方法:结合专家咨询,对以人为本的生命全程综合护理进行批判性文献回顾和循证分析。使用世界卫生组织的“以人为本的综合保健服务全球框架”作为基础。结果:使用生命周期的方法可以将个人当前的健康状况与其社会文化、生物和心理环境联系起来。以人为本的医学的核心原则是卫生专业人员与求助者之间的关系。这一原则是与初级卫生保健的联系,初级卫生保健是建立在与个人和人口在其社会背景下的持久关系之上的。病人的医疗之家提供了一个有前途的模式,如何组织卫生服务,以支持全面实现以人为本的综合护理。需要将卫生专业教育重新定位为全科教育,并制定衡量以人为本的综合护理的指标。2016年,全球难民危机是提供以人为本的综合护理的一个特别突出的挑战。结论:全民健康覆盖可以在整个生命过程中公平获得以人为本的综合护理。专业知识和技能对于在生命过程的特定时期照顾患有特定疾病的人是重要的。当护理很好地整合,护理的过渡是顺利的,以人为中心的关键范式被保留。
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引用次数: 3
ETHICS OF TERMINATION OF PREGNANCY (TOP) IN MYASTHENIA GRAVIS: A CASE REPORT 重症肌无力终止妊娠伦理(上)1例报告
Pub Date : 2016-07-13 DOI: 10.5750/IJPCM.V6I2.516
S. Nalliah, S. M. Ling, C. Thuraisingham
Introduction: Myasthenia gravis (MG), an autoimmune disorder characterised by muscle weakness caused by impairment of the acetylcholine receptors at the neuromuscular junction as a result of autoantibodies acting against the ACh receptors, is twice as common in women, occurring in the second and third decades.  Successful pregnancy outcomes are possible with patient compliance to medication and care by a multidisciplinary team. Objective: The article demonstrates the ethical dilemma doctors face when dealing with termination of pregnancy in myasthenia gravis in pregnancy. Discussion: During pregnancy, MG exacerbates in one third of patients during the first trimester, and tends to improve during the second and third trimesters, with most women achieving normal delivery. The authors put up a case where decision for termination of pregnancy (TOP) could have been avoided through application of an ethical decision making framework.  The patient could have decided otherwise if a clear alternative line of management had been offered. Fully informed consent is essential preserving was not given and patient autonomy in such complex decisions. The emotive effects on the patient that biomedical imaging like showing a normal and active foetus through ultrasonography also needs to be considered. Analysis: A possible ethical framework using some of the principles of ethical decision-making, under the headings of i) . Clear justification according to the norms and values of the individual, law and society for the intervention ii) . Patient autonomy iii). Incongruence between parents in the abortion decision iv). The foetus as a person v). Directive counselling vi). Principle-based ethics, and, vii) . Case-based ethics and case-based reasoning could be applied when confronted with the issue of termination of pregnancy in MG. While principle-based ethics is a useful starting point, care-based ethics also has a place in decisions on TOP.
重症肌无力(MG)是一种自身免疫性疾病,其特征是由于自身抗体作用于乙酰胆碱受体,导致神经肌肉连接处的乙酰胆碱受体受损,导致肌肉无力。重症肌无力在女性中发病率是男性的两倍,发生在第二和第三个十年。成功的妊娠结局是可能的患者依从药物治疗和护理的多学科团队。目的:阐述医生在处理妊娠期重症肌无力患者终止妊娠时面临的伦理困境。讨论:妊娠期间,三分之一的MG患者在妊娠早期加重,并在妊娠中期和晚期趋于改善,大多数妇女实现正常分娩。作者提出了一个案例,终止妊娠的决定(TOP)可以通过应用伦理决策框架来避免。如果提供了明确的替代治疗路线,患者可能会做出其他决定。完全知情的同意是至关重要的,在这种复杂的决定中,保留病人的自主权。通过超声检查显示胎儿正常活动等生物医学成像对患者的情绪影响也需要考虑。分析:在i)的标题下,使用一些伦理决策原则的可能的伦理框架。根据个人、法律和社会的规范和价值观进行干预的明确理由(ii)。患者自主iii).父母在堕胎决定中的不一致iv).胎儿作为一个人v).指导咨询vi).基于原则的伦理,以及,vii)。当面临MG终止妊娠的问题时,可以应用基于案例的伦理和基于案例的推理。虽然以原则为基础的伦理是一个有用的起点,但以护理为基础的伦理在TOP的决策中也占有一席之地。
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引用次数: 1
Completing the Patient Specific-Complaint Questionnaire in Physical Therapy Practice is Problematic for High and Low Literate Patients: A Qualitative Study 高、低文化水平患者在物理治疗实践中填写患者特殊投诉问卷存在问题:一项定性研究
Pub Date : 2016-04-26 DOI: 10.5750/IJPCM.V6I1.566
M. Welbie, H. Wittink, M. Westerman, W. Devillé
Objective : to get insight into the perspectives of physical therapy patients with different levels of health literacy on ‘ease of use’ and ‘usefulness’ of the most frequently used questionnaire in Dutch physical therapy: the Patient Specific-Complaint questionnaire (PSC). Methods : Cognitive interviews were conducted with twenty-five Dutch and twenty-five Turkish physical therapy patients with variable health literacy levels after they completed the Dutch PSC. A thematic content analysis approach was used to analyze the data. Results: Nineteen respondents did not complete the PSC fully and ten were not able to complete the questionnaire at all. All respondents but one experienced difficulties completing the PSC. Most problems were experienced in understanding and interpreting the instructions and questions. Low educated and low health literate respondents experienced more difficulties than high educated and adequate health literate respondents did. Due to these difficulties in twenty-four cases the PSC generated other information than was intended by its developers. Almost half of the respondents were positive about the usefulness of the PSC in relation to their treatment process. Conclusions : Completing questionnaires is more difficult for patients than care providers might realize. The results of this study confirm the necessity to collaborate with patients in all stages of questionnaire development. The ease of use of questionnaires should be tested and if necessary improved. To stimulate questionnaire developers to take usability and face and content validity into account, it is recommended to incorporate assessment of these criteria in quality evaluation tools like the COSMIN checklist.
目的:了解不同健康素养水平的物理治疗患者对荷兰物理治疗中最常用的问卷:患者特殊投诉问卷(PSC)的“易用性”和“有用性”的看法。方法:对25名不同健康素养水平的荷兰和土耳其物理治疗患者在完成荷兰PSC后进行认知访谈。采用主题内容分析法对数据进行分析。结果:19名受访者未完整完成PSC, 10名受访者根本无法完成问卷。除了一位受访者外,所有受访者都在完成PSC方面遇到了困难。大多数问题都是在理解和解释说明和问题时遇到的。受教育程度低和卫生知识水平低的答复者比受教育程度高和卫生知识充分的答复者遇到更多的困难。由于这些困难,在24个案例中,PSC产生了与开发者预期不同的信息。几乎一半的受访者对PSC对其治疗过程的有用性持积极态度。结论:完成问卷对患者来说比医护人员可能意识到的要困难得多。本研究的结果证实了在问卷开发的各个阶段与患者合作的必要性。应测试调查表的易用性,并在必要时加以改进。为了激励问卷开发者考虑可用性、外观和内容有效性,建议将这些标准的评估纳入质量评估工具,如COSMIN检查表。
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引用次数: 2
Latin American Conference on Person Centered Medicine 18-19 December 2015, Lima, Peru, Summary Report 2015年12月18-19日,秘鲁利马,拉丁美洲以人为本医学会议,总结报告
Pub Date : 2016-04-26 DOI: 10.5750/IJPCM.V6I1.568
J. Mezzich
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引用次数: 0
Communication and Relationships in Person Centered Medicine 以人为本的医学中的沟通和关系
Pub Date : 2016-04-26 DOI: 10.5750/IJPCM.V6I1.570
J. Mezzich, J. Appleyard, T. Ghebrehiwet, M. Botbol, J. Groves, I. Salloum, S. Dulmen
a Editor in Chief, International Journal of Person Centered Medicine; Secretary General, International College of Personcentered Medicine; Professor of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, USA. b President, International College of Person Centered Medicine; Former President, World Medical Association, London, United Kingdom. c Board Director, International College of Person-centered Medicine; Chair, World Psychiatric Association Section on Psychoanalysis in Psychiatry; Professor of Child and Adolescent Psychiatry, University of Western Brittany, Brest, France. d Board Director, International College of Person-centered Medicine; Former Officer, International Council of Nurses; Independent Consultant, Nursing and Health Policy, Alberta, Canada. e Board Director, International College of Person-centered Medicine; Former Chief Executive Officer, International Alliance of Patients' Organizations, London, United Kingdom. f Board Director, International College of Person-centered Medicine; Chair, Section on Classification, World Psychiatric Association; Professor of Psychiatry, University of Miami Miller School of Medicine, Miami, Florida, USA. g Board Director of the International College of Person-Centered Medicine and Professor of Communication in Healthcare at the Netherlands Institute for Health Services Research, Utrecht, the Netherlands; at the Department of Primary and Community Care at Radboud University Medical Center, Nijmegen, the Netherlands; and at the Faculty of Health Sciences, University College of Southeast Norway, Drammen, Norway.
国际以人为本医学杂志主编;国际以人为本医学学院秘书长;美国纽约西奈山伊坎医学院精神病学教授。b国际以人为本医学学院院长;世界医学协会前主席,英国伦敦。c国际以人为本医学学院董事;世界精神病学协会精神分析科主席;法国布雷斯特西布列塔尼大学儿童与青少年精神病学教授。d国际以人为本医学学院董事;国际护士理事会前干事;护理和保健政策独立顾问,阿尔伯塔,加拿大。e国际以人为本医学学院董事;英国伦敦国际患者组织联盟前首席执行官。f国际以人为本医学学院董事;世界精神病学协会分类科主席;美国佛罗里达州迈阿密市迈阿密大学米勒医学院精神病学教授。g荷兰乌得勒支荷兰卫生服务研究所国际以人为中心医学学院董事会主任和卫生保健传播学教授;荷兰奈梅亨内梅亨大学医学中心初级和社区护理系;以及挪威德拉门东南挪威大学学院健康科学学院。
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引用次数: 1
Patterns and Prospects for the Implementation of Person-Centered Primary Care and People-Centered Public Health 以人为本的初级保健与以人为本的公共卫生实施模式与展望
Pub Date : 2016-04-26 DOI: 10.5750/IJPCM.V6I1.563
J. Appleyard, M. Botbol, T. Epperly, T. Ghebrehiwet, Joanna Grove, J. Mezzich, S. Rawaf, I. Salloum, J. Snaedal, S. Dulmen
Primary care and public health have a shared goal of health improvement for each person and their populations. Public health is the science and art of promoting health, preventing disease and prolonging life (adding life to years and years to life) through the organized efforts of society. Public health needs to be person- and people- centered taking into account the biomedical, social, cultural, psychological, and spiritual elements that are crucial to understanding the whole person and the community at large. This paper provides a review of the International College of Person Centred Medicine’s Declarations, which have formed a platform for the development of the ICPCM’s London Declaration on Primary Care and Public Health. Person-Centered Primary Health Care is by its very nature integrative by involving a broad knowledge of all sectors of health care and a strong understanding of community resources and other social determinants of health. Through trusted and healing relationships, a person-centered approach with people over time can achieve the required integration and coordination of care that leads to better health, effective health care and lower cost. Systems of care need to be built around primary care as the core foundational element to ensure that all people are seen and helped at the right time, by the right providers, for the right reasons, and in the right locations.  By integrating primary, secondary, tertiary, preventive, and end-of-life care, we will collectively produce healthier persons, healthier people, and healthier nations. The London Declaration sets out a 10-point plan to achieve this by establishing a shared goal of improvement in the health and well being of the population through person and people centered primary care and public health.
初级保健和公共卫生的共同目标是改善每个人及其人口的健康。公共卫生是通过社会的有组织努力促进健康、预防疾病和延长寿命(延长寿命和延长寿命)的科学和艺术。公共卫生需要以人为中心,同时考虑到生物医学、社会、文化、心理和精神因素,这些因素对于了解整个人和整个社区至关重要。本文对国际以人为本医学学院的宣言进行了回顾,这些宣言为ICPCM伦敦初级保健和公共卫生宣言的发展提供了一个平台。以人为本的初级卫生保健本质上是综合性的,涉及对卫生保健所有部门的广泛了解,以及对社区资源和健康的其他社会决定因素的深刻理解。通过信任和治愈关系,以人为本的方法随着时间的推移可以实现所需的护理整合和协调,从而改善健康、有效的医疗保健和降低成本。需要围绕初级保健这一核心基本要素建立护理系统,以确保所有人在正确的时间、由正确的提供者、出于正确的原因和在正确的地点得到治疗和帮助。通过整合初级、二级、三级、预防性和临终关怀,我们将共同创造更健康的人、更健康的人民和更健康的国家。为实现这一目标,《伦敦宣言》提出了一项10点计划,确立了通过以人为本的初级保健和公共卫生改善人口健康和福祉的共同目标。
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引用次数: 2
Communicating Respect for Patients as Persons: A Qualitative Study 沟通尊重病人作为人:一项定性研究
Pub Date : 2016-04-26 DOI: 10.5750/IJPCM.V6I1.567
M. Beach, S. Saha, E. Branyon, I. Ehanire, Z. Mathews, L. Cooper
Background : Respect for persons is regarded as an important value in medical ethics, and yet, there is little written in the bioethics or professionalism literature about what respect actually entails in day-to-day clinical practice. Objective : To describe respectful behaviors and attitudes from the patient’s perspective. Methods: We conducted in-depth semi-structured interviews with 29 adults who saw their primary care physician on a regular basis. This sample consisted of 15 women and 14 men; 19 were African American and 10 were white.  Patients were asked to describe their ideas about respect and to provide examples that illustrated respect and disrespect on the part of the physician.  Interviews were transcribed and coded to identify major themes for each interview and to link together related themes across all interviews.  Results : Participants identified four definitions of respect: being treated ‘as a person’, being treated as an equal, being treated as the physician would want to be treated, and being cared about.  Patients readily identified behaviors that they associated with respect.  These included listening to and understanding the patient, being polite (e.g. greeting and addressing the patient by name), explaining things in a way he or she can understand, allowing patient input into the treatment plan, attending to privacy/modesty, spending enough time, and being thorough.  Conclusions: Patients are aware of, and sensitive to, subtle verbal, behavioral, and attitudinal cues from the physician that are interpreted as conveying respect or disrespect, and these cues may strongly influence the medical encounter. Cultivating an attitude of respect for patients, and communicating that respect through specific behaviors, can help create a more patient-centered healthcare system that embodies the values of the people it serves.
背景:对人的尊重被认为是医学伦理学的一个重要价值,然而,在生物伦理学或专业主义文献中很少有关于尊重在日常临床实践中实际需要的内容。目的:从患者的角度描述尊重的行为和态度。方法:我们对29名定期看初级保健医生的成年人进行了深入的半结构化访谈。该样本由15名女性和14名男性组成;其中19人是非裔美国人,10人是白人。病人被要求描述他们对尊重的看法,并提供例子来说明医生的尊重和不尊重。采访被转录和编码,以确定每次采访的主要主题,并将所有采访的相关主题联系在一起。结果:参与者确定了尊重的四种定义:被“当作一个人”对待,被平等对待,被按照医生希望被对待的方式对待,被关心。病人很容易识别出与尊重有关的行为。这些包括倾听和理解病人,有礼貌(例如问候和称呼病人的名字),用他或她能理解的方式解释事情,允许病人参与治疗计划,注意隐私/谦虚,花足够的时间,彻底。结论:患者对来自医生的微妙的言语、行为和态度暗示很敏感,这些暗示被解释为表达尊重或不尊重,这些暗示可能强烈地影响医疗接触。培养尊重患者的态度,并通过具体的行为传达这种尊重,可以帮助建立一个更加以患者为中心的医疗保健系统,体现其服务对象的价值观。
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引用次数: 2
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the International Journal of Person-Centered Medicine
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